iiinova — where your digital self keeps evolving

Reposted by Carl

Didier @medidier.bsky.social · 08/10/2026

No matter how many times studies demolish this belief scientifically. You will not hear a single one of those that harmed and pushed for GET for years publicly apologise or rectify. Lack of accountability at its max expression.

1183

Carl @carlf.bsky.social · 07/10/2026

Calorie matched? Is it the drug or the reduction in calories?

020

Carl @carlf.bsky.social · 01/10/2026

Money. It’s always money.

010

Carl @carlf.bsky.social · 01/10/2026

@mecfsscience.org might know. Absolutely fantastic for research into ME.

130

Reposted by Carl

Prof Ros Gleadow FAA 💙💚 @rgleadow.bsky.social · 01/10/2026

Has anyone ever followed up a link between Cardiolipin antibodies and ME? They are found on mitochondrial membranes. Wikipedia refers to 2009 paper showing 95% of CFS patients have anti-cardiolipin antibodies. Link in first comment. #MEcfs #cardiolipin en.wikipedia.org/wiki/Cardiol...

en.wikipedia.org

Cardiolipin - Wikipedia

263

Carl @carlf.bsky.social · 30/09/2026

Terms need to be agreed prior to referendum. Same deal as before?

100

Carl @carlf.bsky.social · 30/09/2026

Rejoining on what terms though? Going back to what we had would be great. Would the EU accept that? IF there is to be another referendum then the actual terms of any deal must be known in advance.

000

Reposted by Carl

Best for Britain @bestforbritain.org · 29/09/2026

🚨 BREAKING 🚨 Burnham: "Homes, water, energy, transport, care, broken up and sold off." "The British right talk about taking back control. Never let them forget they are the ones. That gave it away in the first place."

11675196

Reposted by Carl

Paul Brand @paulbrand.bsky.social · 29/09/2026

Burnham announces a new Water Bill which will repeal Thatcher's ban on public ownership of water companies

511618

Carl @carlf.bsky.social · 28/09/2026

Shame he’s not so concerned about foreigners meddling in UK politics via dodgy crypto donations...

071

Reposted by Carl

George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

17925351729

Reposted by Carl

Shaun Lintern @shaunlintern.bsky.social · 20/09/2026

Dozens of readers have contacted The Sunday Times with their own experiences of the polypharmacy crisis. A common complaint is that requests for a medication review never happened. Some ended up in hospital, some saw relatives die: www.thetimes.com/article/c7fd...

thetimes.com

Dad died after a fall. Was his prescription of 10 drugs to blame?

Millions of elderly people are given too many medications. Readers have shared their stories of side-effects, from nausea to kidney failure

4188

Carl @carlf.bsky.social · 20/09/2026

There is a real issue with doctors not listening to patients across medicine. Whilst funding and capacity needs to increase across the NHS, the culture amongst doctors also needs to change. Too many like the status but don’t seem to want to listen to patients at all.

000

Reposted by Carl

Steve Fifield @stevefifield.bsky.social · 19/09/2026

I’ve just donated to Justice4ME. Over a year since the ‘Final Delivery’ plan for ME was published yet still: - Most NHS think we’re just a bit tired - We aren’t getting better - No treatments - Services cut - No public awareness - Barely funded - Severe ME patients still being harmed justice4me.uk

crowdjustice.com

NHS care for ME now

Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.

11617

Reposted by Carl

Guy Shrubsole @guyshrubsole.bsky.social · 19/09/2026

BREAKING; The UK has lost confidence in Jim Ratcliffe. Actually, that happened when he scooted off to Monaco to avoid paying tax, tried to force fracking on Britain, and claimed the UK had been ‘colonised by migrants’. www.bbc.co.uk/news/article...

bbc.co.uk

Billionaire Manchester United owner Sir Jim Ratcliffe says he has lost confidence in UK

Ineos founder Sir Jim Ratcliffe tells the BBC he thinks the country is "on the slide" and calls for more investment in the North Sea.

1531857

Reposted by Carl

John Oxley @joxley.jmoxley.co.uk · 18/09/2026

What on earth is happening?

This had become the new normal. RNLI crew members had been forced to take their permits off their cars after their tyres have been repeatedly slashed. Most of them have been pilloried at the school gates or turned away from local pubs. One man who worked in search and rescue had been beaten unconscious and hospitalised, recognised for TV interviews he had done.

23833111338

Carl @carlf.bsky.social · 17/09/2026

So no diagnosis means no record on medical notes. Then when said notes are scraped and used for research the numbers are skewed. While treatment options may be limited for some conditions, it’s important medical records accurately reflect a patient’s status. #hEDS #longcovid #postvaccine #mecfs

071

Reposted by Carl

Tax Justice UK @taxjusticeuk.bsky.social · 15/09/2026

"So, what should really worry us all, though, is what this story tells us about inequality in the UK, the gap between the very wealthiest and everyone else, and the scare tactics being used to maintain the status quo." 👏 Thanks to Stephen Kinsella OBE for pushing back on the panic.

02816

Reposted by Carl

Long Covid UK @longcoviduk.bsky.social · 12/09/2026

Join us for 'Neurodivergence, Hypermobility & Long COVID with Dr Jessica Eccles' on Wednesday 16 September, at 6pm! Dr Binita Kane & Dr Jessica Eccles speak about the fascinating connections between Long COVID, neurodivergence, ADHD, autism, joint hypermobility, dysautonomia, POTS, ME/CFS, & more.

31910

Reposted by Carl

Michiel @murtoz.bsky.social · 12/09/2026

It is a giant gaslighting operation. Our government is continuing to do eugenics to pwME. And they have knighted sir simon twice for his services to eugenics. Oh and did I mention? He is also on the "mental health & neurodvergence overdagnosis comittee"?

thecanary.co

Labour is trying to prove mental health is over-diagnosed so it can cut DWP benefits further

Wes Streeting's new review into mental health and neurodivergency will be vice chaired by “the most hated doctor in Britain”, Simon Wessely

2125

Carl @carlf.bsky.social · 12/09/2026

Vaccines are a miracle of science. But those harmed are ignored and gaslit by essentially everyone. Even within ME research there is a strong tendency to ignore any cohort without viral onset.

020

Carl @carlf.bsky.social · 12/09/2026

Every time something like this comes out the public are shocked that governments covered it up. Hillsborough, Post Office, Infected Blood…. Often advocates are labeled as crazy to undermine their credibility. Wonder if #postvaccine will ever get the recognition and research it deserves.

100

Reposted by Carl

Jessica Ellis @baddestmamajama.bsky.social · 12/09/2026

In May 2003, writer Simon Wessley opined about “World Trade Center Syndrome”, claiming that traumatized, anxious Manhattanites were experiencing a psychological problem, and not the real physical symptoms they were reporting. Thousands would later die from exposure to toxic chemicals from 9/11.

How have we reached this state of affairs?
Our reactions to the anthrax episode cannot be seen in isolation, or without reference to our general views of health, illness and risk.
Similarly, the emergence of 'World Trade Syndrome', a vague collection of symptoms among the residents of Lower Manhattan, blamed on various 'toxins' released after the collapse of the Twin Towers, only makes sense in the context of a seemingly endless list of other mysterious symptoms and syndromes that are blamed on similar toxic disasters.

915537

Reposted by Carl

Adam Bienkov @adambienkov.bsky.social · 11/09/2026

A reminder that Delo previously pled guilty in the US to violating money laundering protections and agreed to pay a $10 million fine for "willfully” breaking the law with his BitMex platform, which was described as "in effect a money laundering platform.” This is who owns Farage now

14623521203

Reposted by Carl

Adam @abrokenbattery.bsky.social · 11/09/2026

Today marks 25 years since 9/11. 8 months after the attack, psychiatrist Simon Wessely argued that illness reported around Ground Zero was being wrongly attributed to environmental toxins, suggesting “World Trade Centre Syndrome” was driven by social and psychological factors.

1210550

Reposted by Carl

Aaron Rupar @atrupar.com · 11/09/2026

Q: On the checks, we have $40t in debt. If your economic policies are working, why do you need an incentive for people to turn out to vote? T: I'm doing it as a reward for having to put up w/Biden Q: You also offered tariff refunds-- TRUMP: Not you Q: And that didn't happen T: You're the worst

58241831248

Reposted by Carl

Alex von Tunzelmann @alexvont.bsky.social · 10/09/2026

If you feel like donating to the RNLI, here’s a link. I just have. Their minimum donation is £2: I think it might be nice for them to receive a lot of donations this week, even if they’re mostly very modest. Just so they know a lot of people out here appreciate their work. rnli.org/support-us/g...

rnli.org

Donate to the RNLI and help save lives at sea

Your donations really make a difference. We depend on your generosity to educate people to stay safe and prevent tragedies on and offshore. Donate here.

4920911254

Reposted by Carl

Prof. Michael Fuhrer @michaelsfuhrer.bsky.social · 09/09/2026

Covid emergency department visits (blue) have peaked in US, ~60% lower than summer 2025, which was ~40% lower than summer 2024. Wastewater RNA, positivity, hospitalizations, deaths show similar trend. Covid-19 decreasing year-on-year, and the decrease is accelerating. Unexpected good news! 1/

1133

Reposted by Carl

Dale Vince @dalevince.com · 08/09/2026

Netanyahu threw his own citizens under the bus? He allowed the Hamas atrocities, used them to justify what he wanted to do next - the far greater atrocities committed in Palestine - only a truly evil person would do such a thing. www.timesofisrael.com/days-before-...

timesofisrael.com

Days before Oct. 7, UAE leader warned Netanyahu Hamas was planning war, but PM did nothing with the info – report

In month before massacre, Sinwar said to convey message via UAE he was ready to launch 'earthquake' amid moribund talks with Israel, PM didn't inform Shin Bet of Emirati president's warning; Bennett:…

25816

Reposted by Carl

Tax Justice UK @taxjusticeuk.bsky.social · 08/09/2026

Gary is just 1 of the 120 @PatrioticMillionairesuk that signed an demanding Burnham tax them more. And, despite what you might see in the press, Gary is part of the majority. 80% of UK millionaires support a 2% tax on wealth over £10million. bit.ly/46vXidv

12710

Carl @carlf.bsky.social · 06/09/2026

Recognising that it’s not just “post viral” would be a good start. Researchers are ignoring the cohorts with illness triggered by other factors. Seems utterly bizarre to exclude these cohorts when they could hold vital clues.

000

Carl @carlf.bsky.social · 06/09/2026

Seems like there has been about 100 studies on this now.

000

Reposted by Carl

Monevator @monevator.bsky.social · 05/09/2026

Are government bond buyers starting to wonder who will pay the taxes to repay them in an AI-dominant future? Plus all the week's best money and investing reads! monevator.com/weekend-read...

monevator.com

Weekend reading: are bonds discounting a robot revolution? - Monevator

Who will pay our debts? Plus all the week's best money and investing reads…

021

Reposted by Carl

Dave Vetter @davidrvetter.bsky.social · 05/09/2026

Content warning: Multiple men violently assault a female protester at Reform's conference at the Birmingham NEC, to the visible delight of Nigel Farage.

93934452234

Carl @carlf.bsky.social · 03/09/2026

Not just infections. Any immune stimulus can trigger these conditions.

000

Carl @carlf.bsky.social · 03/09/2026

Not just an infection. There are other triggers. These cohorts are excluded despite them possibly providing key evidence as to the drivers of these conditions.

000

Carl @carlf.bsky.social · 02/09/2026

Autoimmune makes so much sense. Including the higher rates seen in women. Would also explain why some get the same from the vaccine.

020

Carl @carlf.bsky.social · 02/09/2026

Why is this limited to “post viral” chronic illness? Some of us ended up with identical syndromes from other triggers - over training, stress or vaccines. We shouldn‘t be excluded from research, indeed we may provide more evidence given we didn‘t need a virus to trigger.

050

Reposted by Carl

ME/CFS Science @mecfsscience.org · 01/09/2026

1) Many patients with orthostatic intolerance do not meet the require heart rate increase of POTS criteria. This new expert consensus paper argues that that this group deserves more recognition, including a separate diagnosis and ICD-code.

33312

Reposted by Carl

ME/CFS Science @mecfsscience.org · 29/08/2026

1) New blog article: the hormone prolactin rises much higher in ME/CFS patients after taking buspirone than in controls. This is one of the most replicated findings in the field but for years this line of research was abandoned.

mecfsscience.org

Increased prolactin response to buspirone - ME/CFS Science

Multiple studies have found an increased response of the hormone prolactin to the drug buspironeContinue readingIncreased prolactin response to buspirone

34016

Carl @carlf.bsky.social · 29/08/2026

Could also explain post vaccine.

120

Reposted by Carl

Didier @medidier.bsky.social · 29/08/2026

One more that would deserve frontpages, but no one nowhere will read about it...

032

Carl @carlf.bsky.social · 26/08/2026

Pity it’s behind a paywall.

000

Carl @carlf.bsky.social · 19/08/2026

Not everyone that was harmed by their covid vaccine is MAGA.

000

Reposted by Carl

Adam @abrokenbattery.bsky.social · 15/08/2026

“It feels like I’m on an island by myself, on a different planet, because no one seems to understand.” Emily developed #LongCovid aged 9. Now 14, she lives with constant pain and struggles to fit in at school because she uses a walking stick. Clip from Channel 5 News.

18236

Carl @carlf.bsky.social · 14/08/2026

Exactly! Who is holding these coins now? They just used this vehicle to transfer money to Trump off the books. Can’t believe this level of corruption is being allowed in the USA.

000

Carl @carlf.bsky.social · 14/08/2026

🤣 I’d love for a journalist to ask him if he’ll be calling another election to stop this witch hunt. Hopefully the monumental waste of time and money this election was gets pointed out when they head to the polls again once the investigation is complete.

000