kate @bookhaven.bsky.social · 11/10/2026I didn't watch Whedon, but I have a longstanding "oh shit, the audience is getting [happy thing], somebody's going to die" that I am beyond sick of. It cues emotional distancing for me. 040
Reposted by kateSparrow / Liz @untonuggan.myatproto.social · 10/10/2026This might be helpful in learning more about fragrance and/or chemical sensitivities Part of the issue is companies don't have to divulge the individual ingredients in "fragrances" (and there are 4,000+ ingredients in that category) So it's very hard to tell what specifically one reacts tohedonish.comAccessibility: A Beginner's Guide to Fragrance and Chemical SensitivitiesAn in-depth, user-friendly guide breaking down why some people have severe fragrance and chemical sensitivities, why it matters, and how to accommodate it with minimal effort! 132
Reposted by kateJohn Wiswell @wiswell.bsky.social · 10/10/2026Interlude 3: Searching for better markets to submit your short fiction? Try the Submissions Grinder at Diabolical Plots! It's an amazing tool.thegrinder.diabolicalplots.comThe Submission Grinder 212527
Reposted by kateJohn Wiswell @wiswell.bsky.social · 10/10/2026These are storied magazines. Authors have long careers entwined with them. Some of the best editors of my lifetime worked there. I know authors who were in tears getting acceptances there. MRM turning them into a content farm for rights is repugnant. 214510
Reposted by kateJohn Wiswell @wiswell.bsky.social · 10/10/2026Writer Beware is a great resource for looking up potentially problematic publishers. They published this updated history of MRM’s rights grabs yesterday. Their history lesson on MRM will be better than mine. 119179
Reposted by kateNat Gertler, only mildly scarier @nat.gertler.com · 10/10/2026"If you create a character in that story and they make a movie about them, you don’t get a dime." Not true. DC pays living creators a bonus when characters they created wind up in a movie, even if they aren't the lead or title character. But you don't have rights to use the character elsewhere,comicsreporter.comThe Comics Reporter 2224
Reposted by kateJohn Wiswell @wiswell.bsky.social · 10/10/2026Recently, Must Read Magazines (MRM) bought three of the most legendary SFF magazines: Analog, Asimov’s, and The Magazine of Fantasy and Science Fiction. MRM immediately started changing the contracts to try to take more rights from authors without paying for them. 118148
Reposted by kateJohn Wiswell @wiswell.bsky.social · 10/10/2026Work For Hire. This is where the publisher buys the story from you. This is common in media tie-in writing. DC Comics hires you to write a Batman story, and they own everything about it. If you create a character in that story and they make a movie about them, you don’t get a dime. 217713
Reposted by kateJohn Wiswell @wiswell.bsky.social · 10/10/2026When the magazine accepts and publishes your story, you still own the story. You have just used up the exclusive first publication rights. You can’t sell those again (without doing some fraud). (Don’t do some fraud.) 425113
Reposted by kateJohn Wiswell @wiswell.bsky.social · 10/10/2026In light of some magazines pulling scummy things on creators lately, I’m doing a little thread on short story rights. I don't want anybody getting taken advantage of. Also, if you're new, this stuff can be confusing! 9982582
Reposted by kateJessica Ellis @baddestmamajama.bsky.social · 06/07/2026Hey friends, please help Kate if you can. Chronic illness is a volcano set off in the middle of your life and there is no institutional support for it. 12112
Reposted by kateKate Violette @kateviolette.com · 15/07/2026I've given everything I have to give to do this on my own. I do not have more energy to put in to hitting the pavement (as it were) to try to reach more people. If the world would like to keep having me in it, the world is going to have to help get the word out a bit more. Thank you for your time. 011
Reposted by kateKate Violette @kateviolette.com · 15/07/2026Had each of those 1k people chipped in even $5, I'd be close to already having a second month funded! Every little bit counts. I hope you're take the time to read my short initial thread, and the time to read the GoFundMe that I put so much effort into writing to help raise awareness about Lyme. 111
Reposted by kateKate Violette @kateviolette.com · 15/07/2026I realize the size of my need is big, and I think the most likely way I'm going to meet it is with many donations of various sizes, but probably especially many small donations. So far, GoFundMe tells me that while 78 people have donated, 1k people have viewed the fundraiser. 101
Reposted by kateKate Violette @kateviolette.com · 15/07/2026Signal boosting this at an hour I am not usually awake! I used almost every good brain hour I had for two months to put together this ask for help. I need to be able to focus on my medical care and recovery again for a while. Can you chip in, or you can simply repost and help get the word out? 💜 2813
Reposted by kateSparrow / Liz @untonuggan.myatproto.social · 24/02/2025[Food] As to your specific question, I honestly can't really do compression much anymore? But there are some antioxidants that seem to help with endothelial function that help me with peripheral vascular issues, POTS, and headachesmdpi.comThe Potential of Dietary Bioactive Compounds against SARS-CoV-2 and COVID-19-Induced Endothelial DysfunctionCOVID-19 is an endothelial disease. All the major comorbidities that increase the risk for severe SARS-CoV-2 infection and severe COVID-19 including old age, obesity, diabetes, hypertension, respirato... 141
Reposted by kateSparrow / Liz @untonuggan.myatproto.social · 09/10/2026It's also very possible to have multiple overlapping medical conditions Which each, individually, cause fluid to build up in your legs + mess with your body's blood volume That stack with each other to multiply their effects 3112
Reposted by kateSparrow / Liz @untonuggan.myatproto.social · 09/10/2026periodically tapping the sign: #POTS is not the only medical condition that can cause fluid build up in your legs + tachycardia 2289
Reposted by kateAdam @abrokenbattery.bsky.social · 04/10/2026My #MECFS Scandal explainer has just hit half a million views on YouTube. I remember worrying that 27 minutes was too long and nobody would watch it. I never expected it to get so many. Thank you to everyone who shared it! Here’s the trailer 👇 610851
kate @bookhaven.bsky.social · 09/10/2026I learned London Bridges. I didn't realize there were so many versions! 010
Reposted by kateME/CFS Science @mecfsscience.org · 06/10/20261) "... the medical aspects of the illness are on the whole better understood by sick people than by their doctors..." In this new paper, philosopher Chloé De Canson details how the ME/CFS community shares and produces scientific knowledge. 19431
kate @bookhaven.bsky.social · 05/10/2026#NEISvoid Has anyone found a cholesterol treatment option that doesn't make #MECFS worse? Statins have been a no-go, causing muscle pain and energy loss #MCAS #POTS 133
Reposted by kateElizabeth Bear @matociquala.bsky.social · 28/09/20262003: whatever you do, don't source your research from Wikipedia. 2026: Wikipedia is the safest online source to start general research from. 21734133
kate @bookhaven.bsky.social · 23/09/2026@annabookwriter.bsky.social tagging in case you have any info 100
Reposted by kateTobias S. Buckell @tobiasbuckell.bsky.social · 23/09/2026Re-posting with typo fix and re-boosting this for the US east coast time folks, I moved to Scotland and landed in an unlivable flat, so am offering 15 drm-free books of mine as a thank you for anything you offer as a way to get into a safe living space: 2130121
kate @bookhaven.bsky.social · 23/09/2026PS I am fine on general advice like bringing medication lists, surgical history, etc I'm more looking at the most helpful way to give providers a crash course on do/don't & how to help 040
kate @bookhaven.bsky.social · 23/09/2026#NEISvoid What papers/resources have you found most helpful for onboarding new doctors in a hospital visit? Surgical considerations would also be helpful (ex: anesthesia asks) I'm making up a hospital packet in case of emergency/low functioning admission 🙏 Dx list 👇 #MECFS #hEDS #POTS #MCAS 195
Reposted by katevalebodi.bsky.social @valebodi.bsky.social · 15/09/2026I scream We scream PwME scream For Bezisterim BioVie Announces Topline Results from Phase 2 ADDRESS‑LC Trial Evaluating Bezisterim for the Treatment of Neurological Symptoms Associated with Long COVID September 15, 2026 investors.bioviepharma.com/news/news-de... #LongCOVID #ME/CFS subtype…investors.bioviepharma.comBioVie Announces Topline Results from Phase 2 ADDRESS‑LC Trial Evaluating Bezisterim for the Treatment of Neurological Symptoms Associated with Long COVIDStatistically significant benefits observed in bezisterim-treated Long COVID patients in pre-specified subgroups with high baseline fatigue, cognitive impairment, and/or post‑exertional malaise Bezist... 0126
Reposted by kateBilly Hanlon @bhanlon15.bsky.social · 10/09/2026National Geographic: 'Why Do POTS and Long Covid Look So Much Like Autoimmune Disorders?' 'Researchers are studying the curious connection between autoimmune diseases and conditions like POTS and long COVID...' By Rachel Fairbank www.nationalgeographic.com/health/artic...nationalgeographic.comWhy Do POTS and Long Covid Look So Much Like Autoimmune Disorders?Researchers are studying the curious connection between autoimmune diseases and conditions like POTS and long COVID—in the hopes it might lead to more targeted treatments. 64825
Reposted by kateIt's ME(Jaime) @exceedhergrasp1.bsky.social · 11/09/2026Oh how interesting, I think he's talking about my whole anemia-of-chronic-illness thing. "The substrates responsible for bacterial and viral replication are also needed for your own cells..." bsky.app/profile/exce... 1123
Reposted by kateIt's ME(Jaime) @exceedhergrasp1.bsky.social · 11/09/2026Master post of each talk re: the Stanford #MECFS Community Symposium: 🧪 Talk 1: bsky.app/profile/exce... 37237
Reposted by kateIt's ME(Jaime) @exceedhergrasp1.bsky.social · 11/09/2026MMR is 97% effective. BUT: - Some may not mount a robust enough immune response to vax for a variety of reasons - Protection CAN wane if there's been a major immune disruption, though this is rare - Most pertinent: intense, prolonged exposure to someone with measles can supersede protection 11239107
Reposted by kateMother Jones @motherjones.com · 01/09/2026A new book examines the labor of getting chronic illness diagnosed and treated—for those lucky enough to get care.motherjones.comThe relentless work of being sickA new book examines the labor of getting chronic illness diagnosed and treated—for those lucky enough to get care. 08329
Reposted by katerahaeli @rahaeli.bsky.social · 04/09/2026The antihistamine thing has been referenced a few times since the updated COVID shots are rolling out, so bumping the reminder (please read the entire thread before "correcting" me, it's also pinned on my profile) 10237104
Reposted by katevictoria @vashetc.blacksky.app · 04/09/2026Hi friends. I've tried my best to reach out to HBCU's and other Black spaces but still have a very low amount of survey's from Black people. I even e-mailed professors directly and DM'd people online. Please share with any Black people with ME/CFS that you might know of! 24555
Reposted by kateWilhelmina Jenkins @wilhelminaj.bsky.social · 04/09/2026Friends, a major problem in the demographics of ME/CFS studies is the absence of Black participants. If you know of any Black adults with ME/CFS, please suggest that they complete this survey. I have completed it and it is relatively untaxing. Thanks! 4118112
Reposted by kateThe Green Spotlight @greenspotlight.bsky.social · 01/09/2026“There are no unsacred places; there are only sacred places and desecrated places.” -Wendell Berry 04712
Reposted by kateThe Scamperbeasts @scamperbeasts.bsky.social · 18/08/2026"I was told there would be bacon." 1295462
Reposted by kateLaina @lainasparetime.bsky.social · 18/08/2026The fact that they were going to close 5 libraries, and this will keep them open for SIX MONTHS really shows how much you could do with that much money. 22029
Reposted by kateJessica Ellis @baddestmamajama.bsky.social · 18/08/2026Part of the reason a lot of super rich people are so awful is that when normal people get an absurd amount of money, they immediately start looking around for who they can help. 3965741543
Reposted by kateNash @radiodeadair.com · 27/07/2026If you put together the season posters for Reacher they tell the story of a large man who can't remember where he put his keys. 271001265
Reposted by kateKaren Carpenter’s Halloween @kellylink.bsky.social · 14/08/2026Watching the first episode of the new season of Reacher & enjoying the way Reacher answers cop questions like a fairy would in a fantasy novel. 710611
Reposted by kateAna Marie Cox @anamariecox.com · 06/07/2026SOMEONE MENTIONED IT. You know the rules. www.youtube.com/watch?v=jPCJ...youtube.comLip Sync Battle - Tom HollandYouTube video by Comedy Central Latinoamérica 22720241
Reposted by kateIt's ME(Jaime) @exceedhergrasp1.bsky.social · 02/07/2026#MEAction is on summer break this week y'all. If you've sent anything don't expect a reply right now. I will personally be out the week after this one. 👍 1121
Reposted by katelegal cat 🐾 @legalcat.bsky.social · 02/07/2026tonight my son and i watched A League of Their Own, and he asked if women played professional baseball now. I said “I’m sure they do, let’s look it up” cue to both of us shocked because the Women’s Professional Baseball League is CURRENTLY playing their inaugural season. now. in 2026. 3193
Reposted by kateDaniel Abraham @abraham.bsky.social · 01/07/2026Physical books. You own them. They don't require updates. They don't surveil you or collect and sell your data. They are a genuinely safe hallucinogen that leaves you smarter and more empathetic and with a longer attention span the more you use them. Free from the library. What's not to like? 213830874
Reposted by kateCrime Sprees @crime-sprees.bsky.social · 29/06/2026The children's rights and deconstruction movements were richer for having had him. I'm devastated. Never lose sight of how deeply damaging the American Christian fundamentalism is to those of us who grow up in it. And how much it robs the world of the best of us. 14816