iiinova — where your digital self keeps evolving

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Elizabeth Bear @matociquala.bsky.social · 28/09/2026

2003: whatever you do, don't source your research from Wikipedia. 2026: Wikipedia is the safest online source to start general research from.

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Tobias S. Buckell @tobiasbuckell.bsky.social · 23/09/2026

Re-posting with typo fix and re-boosting this for the US east coast time folks, I moved to Scotland and landed in an unlivable flat, so am offering 15 drm-free books of mine as a thank you for anything you offer as a way to get into a safe living space:

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kate @bookhaven.bsky.social · 23/09/2026

#NEISvoid What papers/resources have you found most helpful for onboarding new doctors in a hospital visit? Surgical considerations would also be helpful (ex: anesthesia asks) I'm making up a hospital packet in case of emergency/low functioning admission 🙏 Dx list 👇 #MECFS #hEDS #POTS #MCAS

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Billy Hanlon @bhanlon15.bsky.social · 10/09/2026

National Geographic: 'Why Do POTS and Long Covid Look So Much Like Autoimmune Disorders?' 'Researchers are studying the curious connection between autoimmune diseases and conditions like POTS and long COVID...' By Rachel Fairbank www.nationalgeographic.com/health/artic...

nationalgeographic.com

Why Do POTS and Long Covid Look So Much Like Autoimmune Disorders?

Researchers are studying the curious connection between autoimmune diseases and conditions like POTS and long COVID—in the hopes it might lead to more targeted treatments.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 11/09/2026

Oh how interesting, I think he's talking about my whole anemia-of-chronic-illness thing. "The substrates responsible for bacterial and viral replication are also needed for your own cells..." bsky.app/profile/exce...

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 11/09/2026

Master post of each talk re: the Stanford #MECFS Community Symposium: 🧪 Talk 1: bsky.app/profile/exce...

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 11/09/2026

MMR is 97% effective. BUT: - Some may not mount a robust enough immune response to vax for a variety of reasons - Protection CAN wane if there's been a major immune disruption, though this is rare - Most pertinent: intense, prolonged exposure to someone with measles can supersede protection

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Premee Mohamed @premeemohamed.com · 12/09/2026

I, uh, have an alibi

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rahaeli @rahaeli.bsky.social · 04/09/2026

The antihistamine thing has been referenced a few times since the updated COVID shots are rolling out, so bumping the reminder (please read the entire thread before "correcting" me, it's also pinned on my profile)

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victoria @vashetc.blacksky.app · 04/09/2026

Hi friends. I've tried my best to reach out to HBCU's and other Black spaces but still have a very low amount of survey's from Black people. I even e-mailed professors directly and DM'd people online. Please share with any Black people with ME/CFS that you might know of!

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Wilhelmina Jenkins @wilhelminaj.bsky.social · 04/09/2026

Friends, a major problem in the demographics of ME/CFS studies is the absence of Black participants. If you know of any Black adults with ME/CFS, please suggest that they complete this survey. I have completed it and it is relatively untaxing. Thanks!

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The Green Spotlight @greenspotlight.bsky.social · 01/09/2026

“There are no unsacred places; there are only sacred places and desecrated places.” -Wendell Berry

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The Scamperbeasts @scamperbeasts.bsky.social · 18/08/2026

"I was told there would be bacon."

Smudge, sitting at the table in a chair, patiently awaiting his cured meats.

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Laina @lainasparetime.bsky.social · 18/08/2026

The fact that they were going to close 5 libraries, and this will keep them open for SIX MONTHS really shows how much you could do with that much money.

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Jessica Ellis @baddestmamajama.bsky.social · 18/08/2026

Part of the reason a lot of super rich people are so awful is that when normal people get an absurd amount of money, they immediately start looking around for who they can help.

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Nash @radiodeadair.com · 27/07/2026

If you put together the season posters for Reacher they tell the story of a large man who can't remember where he put his keys.

Reacher Season 1 Poster. "Did I leave them in the bedroom?"

Reacher Season 2, "No, I checked the bedroom. Did I leave them in the bathroom?"

Reacher Season 3. "No, I checked the bathroom. Hey, have you seen my keys?"

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Simon and Gargamel @kellylink.bsky.social · 14/08/2026

Watching the first episode of the new season of Reacher & enjoying the way Reacher answers cop questions like a fairy would in a fantasy novel.

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Ana Marie Cox @anamariecox.com · 06/07/2026

SOMEONE MENTIONED IT. You know the rules. www.youtube.com/watch?v=jPCJ...

youtube.com

Lip Sync Battle - Tom Holland

YouTube video by Comedy Central Latinoamérica

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 02/07/2026

#MEAction is on summer break this week y'all. If you've sent anything don't expect a reply right now. I will personally be out the week after this one. 👍

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legal cat 🐾 @legalcat.bsky.social · 02/07/2026

tonight my son and i watched A League of Their Own, and he asked if women played professional baseball now. I said “I’m sure they do, let’s look it up” cue to both of us shocked because the Women’s Professional Baseball League is CURRENTLY playing their inaugural season. now. in 2026.

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Daniel Abraham @abraham.bsky.social · 01/07/2026

Physical books. You own them. They don't require updates. They don't surveil you or collect and sell your data. They are a genuinely safe hallucinogen that leaves you smarter and more empathetic and with a longer attention span the more you use them. Free from the library. What's not to like?

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Crime Sprees @crime-sprees.bsky.social · 29/06/2026

The children's rights and deconstruction movements were richer for having had him. I'm devastated. Never lose sight of how deeply damaging the American Christian fundamentalism is to those of us who grow up in it. And how much it robs the world of the best of us.

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Josephine Stewart @jostewart.myatproto.social · 25/06/2026

Lyme sucks, US healthcare is garbage, and Kate here can tell you all about it. Maybe read the whole thing even if you can't donate. Kate's experience is illustrative. Even with immense advantages in play, they got pretty well screwed. It is EASY to end up in this position, or one far, far worse.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 25/06/2026

Huge thanks for that latest anonymous donation, whoever you are ❤️

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Anna Holmes @annabookwriter.bsky.social · 25/06/2026

Not me crying when I learned there is a shrine in Japan for saying goodbye to stuffed animals who are beyond repair 😭

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Sparrow / Liz @untonuggan.myatproto.social · 26/06/2026

Mae is an important part of the disabled community on here, please help her stay housed!

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Jackie Seidel @jackieseidel.bsky.social · 23/06/2026

Exactly this. STOP mocking politicians’ glasses, features, clothes, or the way they stand. I’m talking to you Canadian “left”.

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Andrew Dobbie @a-dobbie11.bsky.social · 20/06/2026

Testing time again. I've been renting a Seqex IRC PEMF mat to help reduce systemic inflammation, improve cell health & microcirculation as well. So far, it definitely helps. Not just for a few days. My last tx was in April and my overall health has been quite good since then. Not perfect...good.

Seqex IRC PEMF mat for my Long COVID treatments

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valebodi.bsky.social @valebodi.bsky.social · 20/06/2026

Empirically, the research traces how people with #ME/CFS transform isolation into collective infrastructure through platforms such as MEpedia, online benefits forums, and campaigns like Millions Missing. Within these spaces, participants collaboratively curate

researchonline.ljmu.ac.uk

LJMU Research Online

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valebodi.bsky.social @valebodi.bsky.social · 20/06/2026

curate and test treatment protocols, translating biomedical research into practical guidance and shared care strategies. The analysis reveals how welfare bureaucracy converts impairment into administrative labour, and how patients counter this through acts of solidarity, creativity, and mutual

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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 19/06/2026

Light sensitivity is another symptom that's viewed as a "soft symptom" that is rarely taken seriously. Yet we don't actually know what causes it, and the study above suggests DEGENERATION OF THE BRAINSTEM (in TBI).

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kate @bookhaven.bsky.social · 19/06/2026

#NEISvoid Recommended incontinence supplies? An older relative is asking for help and I'm not sure what to recommend her. She's temporarily on her own, so it needs to be options for someone with low strength

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Cats of Yore @catsofyore.bsky.social · 19/06/2026

Sass machine! Photo from my collection, no date/info.

Black and white photo of a small shorthaired calico cat standing outside on rocky soil, looking sassy.

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s. e. smith @sesmith.lol · 19/06/2026

Our latest Bitch Media reprint at @theflytrapmedia.com is this fantastic piece by @mortuaryreport.bsky.social, writing about the need for disability in queer spaces and how disabled LGBTQIA+ people are often stuck on the margins due to lack of physical and attitudinal access.

theflytrapmedia.com

(Un)safe Refuge

The built-in ableism in queer spaces.

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kate @bookhaven.bsky.social · 19/06/2026

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kate @bookhaven.bsky.social · 18/06/2026

Overdue, but absolutely necessary

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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 18/06/2026

Viruses are bad. Tell a friend, clean the air, wear a mask.

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CZEdwards @czedwards.bsky.social · 18/06/2026

It never ceases to amaze me that goldfish can be trained to be less gullible than an executive in a sales meeting.

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Tanya Gold | Editor & Translator 💕📚 (they/iel) @tanyagold.bsky.social · 18/06/2026

I love these pinks not giving a shit and just basking in the light as their messy selves. 💕

A cluster of purple flowers (pinks) covered in pollen and cobwebs and half wilted. They're catching the sunlight in a way that makes it look like the petals are glowing.

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Maureen Johnson @maureenjohnsonbooks.com · 16/06/2026

My friend Merlin has been worried about you and is checking in.

A goober of a little black dog. Looks like an inkblot. Silly teeth. Concerned face.

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More Perfect Union @moreperfectunion.bsky.social · 16/06/2026

The 500 richest people on Earth got $366 billion richer yesterday, the single biggest jump ever. This is what a global economy rigged for billionaires looks like.

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rahaeli @rahaeli.bsky.social · 16/06/2026

We don't actually know the exact answer, but I personally think it's a combination of the people who are using their wallet names are generally more privileged and receive social capital for being assholes, and the fact that people feel more of an emotional connection to the reputation--

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rahaeli @rahaeli.bsky.social · 16/06/2026

Every other thing on that list has serious problems too, but the inclusion of a "real names" mandate in any list like this proves the speaker a) knows nothing about the actual science of online behavior b) is more motivated by punishing Bad People than stopping online abuse

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rahaeli @rahaeli.bsky.social · 16/06/2026

Your periodic reminder that people are *more* abusive online when they're using their "real names" than when they're using a persistent pseudonym and this effect has been replicated in literally every study that has ever been done

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s. e. smith @sesmith.lol · 16/06/2026

My book on grief, mourning, and how these things are not going well for us comes out in SIX WEEKS. And yes, audio and ebook too. Don't let the title fool you: Pet loss opens up the bigger, harder conversations in this book, which reframes grief as a collective project, not a solo endeavor.

bookshop.org

All My Dead Cats and Other Losses: Practicing Good Grief in a Culture That Fears Mourning

Practicing Good Grief in a Culture That Fears Mourning

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