Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info

Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs

Life on hold by severe #MECFS, currently 99% bedbound 🛌 Documenting my life like it is now, advocacy through photography 📷 📍Finland https://nikosuvisto.c

Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid. https://linktr.ee/andrewgifford.photography Bristol, UK. 335.42 ppm. He/h

They/E/She Disabled Genderqueer Bisexual Disaster, est. 1989 BLM ACAB 🍉 RPs may be 🔞 FFXIV NA: Naia🌊 Guldstyr🌟 Blooming🌹 pic: tacticiankate

Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery

linktr.ee/jomaselli I try to write stuff & make things but I’m usually too sick & too busy raising a human 🧿 🍁 tkaronto 🌴 via sicily & bari ♾️ AuDHD ♿️ di

Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. Ⓐ💚, (FR/DE/EN, but posts in english) Clinging

Vegetation ecologist & research laboratory manager - on pause (MECFS / LC). Also: fire behaviour, libraries, cultural preservation, music, guinea pigs, TNR cats

#MyalgicEncephalomyelitis #pwME #SevereME #HyperPOTS #MCAS #PEM #PostExertionalNeuroImmuneExhaustion #PostExertionalSymptomExacerbation 😷

We're an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and carers, clinicians, scientists and advocates who su

I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.

Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Cov

Independent historical researcher (involuntarily self-taught), writing at a frustratingly slow 🐌 pace due to severe chronic illness.

I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Health. Science. Chronically ill punk rocker. I think about the future a lot.

ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.

Science defender and eco-worrier. (she/her) No DMs please (can't access).

#pwME #ME #MEcfs #MEcvs Dutch Retired Granddad

Occupational Therapy Lecturer at Australian Catholic University. Returned from UK to Brisbane. Interested in #MECFS #PWME #mentalhealth,#OTeducation

Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy

Severe #MECFS for a very long time. Loves nature poetry children hope. Hates arrogance dishonesty injustice.

Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmi

ME sufferer from Sweden. Interested in everything that can make us/our situation better. #ME #ME/CFS

Evidence-based medicine over eminence-based medicine. #MECFS

ME/CFS and related things. (she/her) I'm also trying out a more lighthearted personal account: @lighterkatiej.bsky.social

Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.

Carer for my daughter with very severe ME | ME-Myalgic Encephalomyelitis |

♿️ Naval Architect & Marine Engineer. I’ll never shut up if I think something is unfair or deeply wrong. I’m annoying, I know! #pwME #MECFS #EDS #Endometriosis

95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 37 years, severe ME 32 years. @IrishMECFSAssoc trustee 29 years 26 publ

Long Covid, MECFS, ADHD, etc. Patient-led research is my jam. A bit obsessed with GIP.

🍋eugenics leads to fascism🍋LC/ME/MCAS/lupus/endo🍋still with her🍋OG khive🍋smash the motherfucking white supremacist patriarchy on the right AND the left🍋

Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research NB: Posts ≠ advice. Registered Charity RCN 20100254.