Reposted by Zachary Grin, PT, DPTJon Stone @jonstoneneuro.bsky.social · 21/02/2025New review article on health anxiety for neurologists with Huw Green in Practical Neurology ❌Health anxiety is NOT FND. ✅Can occur in any neurological condition, ✅Reassurance usually makes it worse ✅Specific treatment. pn.bmj.com/content/earl... Free link - tinyurl.com/5n7shutv 1218
Reposted by Zachary Grin, PT, DPTMatthew Hodson @matthewhodson.bsky.social · 16/02/2025Keith Haring died of AIDS aged 31 on 16 Feb 1990. One of his last works, Unfinished Painting, was deliberately incomplete, reflecting the devastating, unquantifiable loss to the arts due to AIDS. #LGBTplusHistoryMonth 142246936757
Zachary Grin, PT, DPT @zacharygrin.bsky.social · 15/02/2025“Current evidence did not show an association between patients with MCADs #MCAS and those with #POTS and/or #EDS.” www.jacionline.org/article/S009...jacionline.orgPrevalence Of Mast Cell Activation Disorders Amongst POTS And EDS Patients: A Scoping ReviewOur aim was to determine the prevalence mast cell activation disorders (MCADs) in patients diagnosed with Ehlers-Danlos Syndrome (EDS) and/or Postural Orthostatic Tachycardia Syndrome (POTS). 130
Reposted by Zachary Grin, PT, DPTFND Portal @fndportal.bsky.social · 31/01/2025If you’re a clinician looking for resources to share with patients with FND, neurosymptoms.org should be your go-to! Lots of great info on FND diagnosis, subtypes, treatment, and formulation - presented in wonderfully clear language. By expert neurologist @jonstoneneuro.bsky.socialneurosymptoms.orgFunctional Neurological Disorder (FND) – A Patient's Guide to FND 092
Reposted by Zachary Grin, PT, DPTME/CFS research @cfsresearch.bsky.social · 26/01/2025The mind/body revolution: how the division between ‘mental’ and ‘physical’ illness fails us all www.theguardian.com/society/2025...theguardian.comThe mind/body revolution: how the division between ‘mental’ and ‘physical’ illness fails us allNew research shows western medicine’s traditional split between brain and body is, in fact, far from clear cut – and could provide a breakthrough for many complex conditions 0155
Reposted by Zachary Grin, PT, DPTDr. Mark Cheng @drmarkcheng.bsky.social · 16/01/2025What @mcuban.bsky.social said!!!!! As a medical professional, the things I could tell you about how foul it is dealing with #insurance would blow your damn mind. 1621859360
Zachary Grin, PT, DPT @zacharygrin.bsky.social · 24/12/2024The FND misinformation in this video is very concerning. They discuss a number of FND symptoms but wrongly believe FND means feigning. They admit they don’t know the cause of the symptoms but they are open to learning more to figure it out. Dr. Ruhoy, please consider learning about FND ⬇️ #FNDaware 130
Zachary Grin, PT, DPT @zacharygrin.bsky.social · 23/12/2024We need to consider the neuropsychological & behavioral consequences of an infection too. The study’s results seem consistent with functional cognitive disorder. Good overview: www.elsevier.es/es-revista-n... #LongCovidelsevier.esFunctional cognitive disorder: Beyond pseudodementiaIntroductionMany patients with cognitive symptoms, such as subjective memory complaints, may 371
Reposted by Zachary Grin, PT, DPTDan Freedman, DO @dfreedman7.bsky.social · 18/12/2024Videos of people suffering from severe neurological symptoms get shared on social media periodically. These videos are often presented as the person faking, but some may have functional neurological disorder. It's important to recognize that FND =/= fake. What is FND? A brief primer for HCWs: 2144
Reposted by Zachary Grin, PT, DPTMichael Okun @michaelokun.bsky.social · 16/12/2024Want to save yourself heartache, discomfort and prevent medical errors when admitted to the hospital? Have your doctor arm you with a signed letter you can hand out to all the healthcare professionals who will be in your orbit. www.parkinson.org/library/book... 1115
Reposted by Zachary Grin, PT, DPTDr Leo Russell @leoistdp.bsky.social · 15/12/2024I've put together a starter pack for the FND science community. Please repost to share the link and do let me know of folks I've missed so I can add them to the group. Thanks everyone 🙏 🧵 1/ 44223
Reposted by Zachary Grin, PT, DPTLymeScience @lymescience.org · 13/12/2024A very nice statement from the American Academy of Allergy, Asthma & Immunology (AAAAI) debunking the myth of "toxic mold illness" that is spread by functional and integrative medicine quacks: www.aaaai.org/tools-for-th...aaaai.org Toxic Mold Syndrome: Separating Fact from Fiction Fungi are present in all human environments, both indoors and outdoors, but most fungi do not cause disease in humans. 112
Reposted by Zachary Grin, PT, DPTJon Stone @jonstoneneuro.bsky.social · 12/12/2024How common is FND? ‘Incidence and Prevalence of Functional Neurological Disorder: A systematic review’ – a new open access article in JNNP led by Sara Finkelstein with Clare Diamond, and @alancarson15.bsky.social jnnp.bmj.com/content/earl... 1/🧵 13916
Reposted by Zachary Grin, PT, DPTMatthew Burke @mattburkemd.bsky.social · 10/12/2024New to #bluesky and excited to share a new publication at the interface of my two main clinical interests in neuropsychiatry. "New Framework for the Continuum of Concussion and Functional Neurological Disorder" with @silverberglab.bsky.social in BJSM. Thread below 🧵 bjsm.bmj.com/content/earl... 2136
Reposted by Zachary Grin, PT, DPTDr Leo Russell @leoistdp.bsky.social · 11/12/2024Profession Consensus Guidelines & Briefing Papers for the assessment & treatment of Functional Neurological Disorder: Psychology tinyurl.com/4d62rcj6 Speech & Language Therapy jnnp.bmj.com/content/92/1... Physiotherapy tinyurl.com/4rebwjm2 Occupational Therapy jnnp.bmj.com/content/91/1...tinyurl.comFunctional Neurological Disorder: Neuropsychological and psychological management in children and adults | BPS - British Psychological SocietyBPS Explore is our easy-to-access central location for you to read and download a wide range of psychological content from practitioners, researchers and working groups. 1207
Reposted by Zachary Grin, PT, DPTAaron Fobian, PhD @draaronfobian.bsky.social · 07/12/2024🎉 We've just completed our 1st psychologist training for ReACT FND Health! 🎉 We are gearing up to offer ReACT for FND via telehealth in the US starting Jan 2025. This marks a major milestone in our mission to expand access to research-informed FND treatment. Stay tuned for updates! reactfnd.health 1141
Reposted by Zachary Grin, PT, DPTDr Leo Russell @leoistdp.bsky.social · 05/12/2024I've put together a starter pack for the FND science community. Please repost to share the link and do let me know of any folks I've missed so I can add them to the group. 32310
Reposted by Zachary Grin, PT, DPTDr Leo Russell @leoistdp.bsky.social · 04/12/2024🧵 ISTDP for functional symptoms in a nutshell 🥜 🧠 Bodily symptoms can result from habitual avoidance of emotions & physical anxiety states in the brain & nervous system. 💔 Habitual avoidance can be learned early in life when showing emotions led to parent overwhelm, rejection, or harm. 🧵 1/4 1147
Reposted by Zachary Grin, PT, DPTDr. Rachel Zoffness @drzoffness.bsky.social · 03/12/2024🥱 Chronic insomnia is a common sx of chronic pain. ❌ But poor sleep ➡️ more pain ➡️ worse sleep ➡️ more pain. 💊 Sleep meds aren't the answer & can make the problem worse. 🏆 The gold standard for tx is CBTi = CBT for insomnia. ✨The better we tx sleep, the better we tx pain✨ #medsky #neuroskyence 🧠 4264
Zachary Grin, PT, DPT @zacharygrin.bsky.social · 03/12/2024“Loneliness, fear avoidance in response to symptoms, and illness perceptions were directly linked to the outcomes. Biological (inflammatory markers) and clinical (severity of initial illness) variables were connected to the outcomes only via psychological or social variables.” #LongCovid #medsky 0110
Zachary Grin, PT, DPT @zacharygrin.bsky.social · 02/12/2024🚨 Common pseudoscience tactic! 🚩 Complex ideas are strung together using buzzwords & disconnected facts without evidence to substantiate them. It creates an illusion of deep insight but it’s just unfounded BS. Same tactics are used for anti-vax, chronic Lyme, and “wellness” propaganda. #medsky 2114
Reposted by Zachary Grin, PT, DPTWHO @who.int · 01/12/2024Early diagnosis + consistent antiretroviral therapy = long, healthy lives for people living with HIV. 💊️ Achieving an undetectable viral load means ZERO risk of transmission. #WorldAIDSDay: bit.ly/3Z5Ot5P 116745
Reposted by Zachary Grin, PT, DPTCrystal Markfort @markft1.bsky.social · 30/11/2024wanting to fill my feed with some interesting new articles: post an article or case you find interesting . I will go first publications.aap.org/pediatrics/a...publications.aap.orgAssessment of Multisensory Sensitivity May Assist With the Management of Children With Chronic PainChronic pain is a significant problem in adults; however, it can also be challenging to evaluate and manage effectively in pediatric and adolescent populations. Many theories implicate different facto... 153
Zachary Grin, PT, DPT @zacharygrin.bsky.social · 30/11/2024🚨 Pacing for #ME/CFS 🚨 “There is insufficient evidence to conclude that pacing exerts a positive effect in people with ME/CFS for physical function, pain, and fatigue; although pacing may reduce fatigue in ME/CFS patients” #medsky #physiosky www.tandfonline.com/doi/full/10....tandfonline.com‘Pacing’ for management of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): a systematic review and meta-analysisPacing typically comprises regulating activity to avoid post-exertional neuroimmune exhaustion, the worsening of symptoms after an activity. Yet, the efficacy of pacing to improve symptomology is u... 251
Reposted by Zachary Grin, PT, DPTMatthew Herper @matthewherper.bsky.social · 25/11/2024UnitedHealth pays its own physician groups considerably more than others, driving up consumer costs and its profits The latest in STAT's "Healthcare's Colossus" series on what has happened as the U.S.' s biggest health insurer bought up medical practices. www.statnews.com/2024/11/25/u...statnews.comUnitedHealth pays its own physician groups considerably more than others, driving up consumer costs and its profitsFirst-of-its-kind data analysis finds UnitedHealth Group pays many of its own physician practices significantly more than the average it pays other doctors in the same markets 43819
Reposted by Zachary Grin, PT, DPTDiana Kwon @dianakwon.bsky.social · 24/11/2024This @sciam.bsky.social feature looked at FND--another highly stigmatized & misunderstood condition--exploring the research into the biological underpinnings of the disorder and how this work is challenging the divide between neurology and psychiatry. www.scientificamerican.com/article/deco...scientificamerican.comDecoding a Disorder at the Interface of Mind and BrainA mysterious condition once dismissed as hysteria is challenging the divide between neurology and psychiatry 21411
Reposted by Zachary Grin, PT, DPTMaximilian Friedrich, vertigologist @vertigologist.bsky.social · 22/11/2024Tremor is common, and measuring its dynamic characteristics is important for disgnosis and prognostication. Marker-based motion capture helps, but is very resource-intensive. What if we could analyze tremor just with a smartphone video?! 🧠 www.nature.com/articles/s41...nature.comValidation and application of computer vision algorithms for video-based tremor analysis - npj Digital Medicinenpj Digital Medicine - Validation and application of computer vision algorithms for video-based tremor analysis 063
Reposted by Zachary Grin, PT, DPTFND Portal @fndportal.bsky.social · 22/11/2024One of my favorite conversations about pain: @drzoffness.bsky.social on the Ezra Klein show, chatting about the nature and functions of pain, and why we need more than a biomechanical understanding. Transformative! the-ezra-klein-show.simplecast.com/episodes/rac...the-ezra-klein-show.simplecast.comThis Book Changed My Relationship to Pain | The Ezra Klein ShowPhysical pain is a universal human experience. And for many of us, it’s a constant one. Roughly 20 percent of American adults — some 50 million people — suffer from a form of chronic pain. For some, t... 2172
Reposted by Zachary Grin, PT, DPTDr Leo Russell @leoistdp.bsky.social · 21/11/2024🚨 THE PSYCHOLOGICAL MANAGEMENT OF FND IN CHILDREN AND ADULTS 🚨 A new briefing paper from the Division of Neuropsychology @donbps.bsky.social Proud to be part of the team working on this chaired by @nielsdetert.bsky.social & dedicated to the late Jason Price who originally conceived of the idea 🙏❤️explore.bps.org.ukFunctional Neurological Disorder: Neuropsychological and psychological management in children and adults | BPS - British Psychological SocietyBPS Explore is our easy-to-access central location for you to read and download a wide range of psychological content from practitioners, researchers and working groups. 44416
Reposted by Zachary Grin, PT, DPTDr Leo Russell @leoistdp.bsky.social · 21/11/2024👩⚕️ 1 in 5 GP appointments are for folks with functional symptoms. 🫣 For some people these can be caused by how emotions are being dealt with. 🎙I had a discussion about this with Neurologist Dr Agne Straukiene and reflected on how this be managed for people who have both MS and functional symptoms.open.spotify.comNavigating the Intersection: Functional neurological disorder (FND) in the World of MSBeewellwithMS podcast by Dr Agne Straukiene · Episode 2156
Reposted by Zachary Grin, PT, DPTNeuroWoodworks @neurowoodworks.bsky.social · 21/11/2024One of my most intricate and painfully made pieces. This is the "Purkinje bear", composed of the 37 neurons individually, and manually cut in different woods. #neuroscience #brain #cerebellum #sciart 1218724
Reposted by Zachary Grin, PT, DPTNicole Rust @nicolecrust.bsky.social · 20/11/2024Do you know www.brainfacts.org? Terrific, accessible (free!) articles there about what’s new in brain research. Like this timely piece! The neuroscience behind conspiracy theories. www.brainfacts.org/thinking-sen... I’m delighted to soon step into an editorial role at this terrific effort!brainfacts.orgBrainFacts 07220
Reposted by Zachary Grin, PT, DPTFND Portal @fndportal.bsky.social · 21/11/2024Interesting paper from Sojka et al - an fMRI study of interoceptive processing in people with FND! Lower accuracy correlated w decreased activation in interoceptive areas Higher interoceptive trait prediction error correlated w reduced vmPFC activation pubmed.ncbi.nlm.nih.gov/39558709/pubmed.ncbi.nlm.nih.govAltered Neural Processing of Interoception in Patients With Functional Neurological Disorder: A Task-Based fMRI Study - PubMedThis study identified state and trait interoceptive disruptions in FND patients. Convergent between- and within-group findings contextualize the pathophysiological role of cingulo-insular (salience ne... 0112
Reposted by Zachary Grin, PT, DPTJon Stone @jonstoneneuro.bsky.social · 20/11/2024Another tweet reissue. This time 'Why FND is not feigning or malingering' from Feb 2023, a Nature Reviews Neurology paper with Mahinda Yogarajah and Mark Edwards nature.com/articles/s41.... a thread… 1/ 44215
Reposted by Zachary Grin, PT, DPTRana Awdish MD @ranaawdish.bsky.social · 19/11/2024Is sharing our writing a thing here? 😊 Proud of this piece because it represents the work of so many trying to make medicine and communication better for our patients. #MedSky www.mayoclinicproceedings.org/action/showP... 68848229
Reposted by Zachary Grin, PT, DPTDr Leo Russell @leoistdp.bsky.social · 19/11/2024Functional symptoms are real. They are not your fault. They are not "all in the mind". A short thread on a long misunderstanding. 🧵1/10 14115
Reposted by Zachary Grin, PT, DPTWill Chegwidden @willchegwidden.bsky.social · 18/11/20241/ So, I'm now going to share some of my favourite #FND resources (aimed at OTs/AHPs) and a few recent papers I found really interesting. I'm no FND expert but I have been involved in some programmes and it's a really exciting area of practice & when we get things right we can make such a difference 2165
Reposted by Zachary Grin, PT, DPTStoyan Popkirov @popkirov.bsky.social · 17/11/2024New Viewpoint on Functional Movement Disorder in prodromal Parkinson's: "Loss of dopaminergic neurons may increase likelihood of a mismatch between predictions of the sensory consequences of planned movement and actual sensory feedback." movementdisorders.onlinelibrary.wiley.com/doi/full/10.... 22210
Reposted by Zachary Grin, PT, DPTFOGOLF, FOLLOW GOLF @fogolf.bsky.social · 11/11/2024“It’s been mentally brilliant for me” www.fogolf.com/825158/its-been-ment… Five years after being diagnosed with a functional neurological disorder and shortly after losing her husband, Pauline Reid tried golf for the first time at her local club, which subsequently …fogolf.com“It’s been mentally brilliant for me”Five years after being diagnosed with a functional neurological disorder and shortly after losing her husband, Pauline Reid tried golf for the first time at her local club, which subsequently offered her a scholarship including specialist training and equipment. This has changed her life. Pauline Reid lives with a functional neurological disorder (FND) but has since found inspiration through golf to improve her physical, social and mental health. The Midlands-based golfer was diagnosed with FND in 2018 – which impacts how the brain receives and sends information to the rest of the body – and says there are days where 021
Reposted by Zachary Grin, PT, DPTJon Stone @jonstoneneuro.bsky.social · 15/11/2024I'm 'reissuing' some of my Twitter threads on Bluesky. This one is from June 2020. "Ten Myths about FND" in Eur J Neurology with Sarah Lidstone, Rui Araujo and Bas Bloem. People with FND come up against a lot of these during diagnosis and treatment. 1/ onlinelibrary.wiley.com/doi/epdf/10....onlinelibrary.wiley.comTen myths about functional neurological disorderClick on the article title to read more. 45415
Reposted by Zachary Grin, PT, DPTDr Leo Russell @leoistdp.bsky.social · 15/11/2024Some thoughts on how all healthcare professionals can improve care for Functional Neurological Disorder: 📖 Find out out more about FND 🏨 Make the case for FND provision as part of core services 🤝 Work jointly with multi-disicplinary colleagues 🧵 1/10 2136
Reposted by Zachary Grin, PT, DPTDr. Rachel Zoffness @drzoffness.bsky.social · 16/11/2024Hi friends- creating a Pain Science & Medicine starter pack!! 💥 ✅ interdisciplinary group ✅ scientists, educators, clinicians ✅ Please LMK if you'd like to be included. Tag anyone in the comments who should be part of this group. 🙏🏼 #medsky #psyscisky #PainSky #newbeginnings 🧠 go.bsky.app/4r8uAeG 4710940
Zachary Grin, PT, DPT @zacharygrin.bsky.social · 16/11/2024It’s a relief to start fresh on Bluesky! I’m intending to share my knowledge and passion for functional neurological disorders and functional somatic syndromes. Let’s start with an FND treatment thread! 🧵👇 #physiosky #medsky #neurosky #fndsky 3285