Alan Carson @alancarson15.bsky.social · 11/01/2026www.bbc.co.uk/news/article.... Poor bordering on irresponsible from @bbcbbc.co.ukThe battle over Canada's mystery brain diseaseA small Canadian province feared it had a mystery neurological illness on its hands. The search for answers set off a battle for the truth. 120
Reposted by Alan CarsonJon Stone @jonstoneneuro.bsky.social · 30/12/2025At the year's end, our Edinburgh FND Research Group 2023-25 report. A huge thank you to those who have given to us, and an update on what we've all been doing. ☑️ 2023-5 Report here - bit.ly/3KWEcpH ☑️ You can donate here - neurosymptoms.org/en/donate/ Thank you! 191
Alan Carson @alancarson15.bsky.social · 22/11/2025magazine.hms.harvard.edu/articles/fun...magazine.hms.harvard.eduFunctional Neurological Disorder, Reframed 040
Reposted by Alan CarsonFND Portal @fndportal.bsky.social · 13/11/2025Just renewed my @fndsociety.bsky.social membership! They've done a huge amount of work over the last few years to improve research, treatment, and education for folks with FND. And there's clearly more ahead. Check them out! 011
Reposted by Alan CarsonDavid L Perez MD, MMSc @davidlewisperez.bsky.social · 01/11/2025@fndsociety.bsky.social Advanced Course for the Assessment & Management of Functional Neurological Disorder is OPEN for registration & ON-DEMAND viewing of talks. Webinar on Nov 6th 9am EST @fndportal.bsky.social @jonstoneneuro.bsky.social @alancarson15.bsky.social www.fndsociety.org/fnd-educatio... 153
Reposted by Alan CarsonFND Portal @fndportal.bsky.social · 20/10/2025An important study (IMO) looking at social dynamics re: FND on Twitter. People w FND face continual attack by a variety of groups who dismiss our condition and experiences - ranging from abusive clinicians to other disabled people. It makes it even harder to exist in public with this dx. 0147
Alan Carson @alancarson15.bsky.social · 18/10/2025Not sure we need word ‘may’- the rate of diagnostic increase is biologically implausible and speaks to diagnostic practice- probably previously under disgnosed now considerably over diagnosed 020
Alan Carson @alancarson15.bsky.social · 18/10/2025www.jmir.org/2025/1/e73439jmir.orgAn Exploration of How Functional Neurological Disorder Is Discussed on X (Twitter): Mixed Methods Study Using Social Network and Content AnalysisBackground: Functional neurological disorder (FND) is one of the commonest conditions in neurological practice, describing symptoms like paralysis and seizures that can be severe and disabling. It is ... 010
Reposted by Alan CarsonJon Stone @jonstoneneuro.bsky.social · 01/10/2025Pleased that "Continuum" the AAN journal asked for this article on the management of functional movement disorder - coauthored with @alancarson15.bsky.social Article paywalled but podcast is free. Some snippets in thread🧵 Article: continuum.aan.com/doi/full/10.... Podcast: x.com/ContinuumAAN.... 273
Alan Carson @alancarson15.bsky.social · 20/09/2025onlinelibrary.wiley.com/doi/10.1111/...onlinelibrary.wiley.comFunctional/dissociative seizures: Proposal for a new diagnostic label and definition by the ILAE task forceThe acceptability and validity of the term 152
Reposted by Alan CarsonFND Ireland @fndireland.bsky.social · 19/09/2025📢 Delighted to have Dr. Caoimhe McLoughlin speak at our first #FNDIreland Conference on 'The Role of Neuropsychiatry in FND' and share her research on Stigma in #FND which she completed under the supervision of @jonstoneneuro.bsky.social and @alancarson15.bsky.social. 💚🧡 @fndportal.bsky.social 012
Reposted by Alan CarsonFND Portal @fndportal.bsky.social · 04/09/2025It’s not “dismissing” someone to give them a diagnosis of Functional Neurological Disorder. Like all other conditions, it’s either 1. A correct dx for that person, or 2. not. When you say “dismissing as FND,” you reveal that you think there’s a hierarchy of disorders, some more legit than others 2123
Alan Carson @alancarson15.bsky.social · 04/09/20252 of last 3 sold out so when bookings go live later this year- get in 010
Alan Carson @alancarson15.bsky.social · 14/08/2025www.thelancet.com/journals/ecl... No surprises here- but good to see confirmed- what many of us who followed the evidence have been sayingthelancet.comEffects of therapeutic interventions on long COVID: a meta-analysis of randomized controlled trialsExercise training should be prioritized for improving cardiopulmonary function and exercise capacity in Long COVID, supported by high-certainty evidence. Respiratory muscle training and PEA-LUT offer ... 000
Alan Carson @alancarson15.bsky.social · 22/07/2025Alasdair has dedicated himself to this topic for last 25 years- ghis should be cracking 110
Alan Carson @alancarson15.bsky.social · 21/07/2025Great work by veronica the app is now available - Mementum by cogniss 031
Alan Carson @alancarson15.bsky.social · 30/06/2025Maybe they could pay their fair share of taxes instead? 030
Reposted by Alan CarsonSarah Garfinkel @sarahgarf.bsky.social · 04/06/2025What an amazing opportunity! Taught by the brilliant @vaughanbell.bsky.social and free for @bnpa.bsky.social members. BNPA is a wonderful society uniting psychiatrists, neurologists, neuropsychologists, neuroscientists and psychologists. Join today 144
Alan Carson @alancarson15.bsky.social · 26/05/2025academic.oup.com/brain/advanc.... This is interestingacademic.oup.comClassifying neurogenic dysphagia as a movement disorderSwallowing is a complex sensorimotor task with widespread control throughout the nervous system. Jones et al. explore swallowing disorders in neurological 012
Reposted by Alan CarsonRoss Colquhoun @rosscolquhoun.bsky.social · 12/05/2025Westminster keeps misdiagnosing why voters turn to Farage. Mimicry isn’t cure - it feeds decline. The real remedy is education, a better standard of living, and hope. Brexit sped up UK’s decline and left voters searching for easy targets to blame, aided by Reform/Tories/Labour. 1247
Alan Carson @alancarson15.bsky.social · 08/05/2025It is slightly disappointing the tendancy in psychanalysis to a ‘creationist’ approach with all ideas starting with Freud but the basic principles of object relations theory has so much to offer to all medicsl encounter not just FND 030
Reposted by Alan CarsonTim Nicholson @timnicholson.bsky.social · 29/04/2025📣Fantastic FND Society course on diagnostics, aetiology & Mx of functional seizures+ epilepsy 13-14 June online (or in person Boston USA!) 👌👌 @fndsociety.bsky.social @jonstoneneuro.bsky.social @alancarson15.bsky.social @mahyog.bsky.social @davidlewisperez.bsky.social @fndportal.bsky.social 055
Alan Carson @alancarson15.bsky.social · 01/05/2025 This was rather good www.cambridge.org/core/journal...cambridge.orgNeuropsychiatry as a paradigm propelling neurology and psychiatry into the future | BJPsych Open | Cambridge CoreNeuropsychiatry as a paradigm propelling neurology and psychiatry into the future - Volume 11 Issue 2 010
Reposted by Alan CarsonVaughan Bell @vaughanbell.bsky.social · 09/04/2025Clinical psychologists: The British Neuropsychiatry Association are running a free training day on 'Understanding Neuropsychiatric Problems for Clinical Psychologists'. Fri 4 July, London You just need to be a BNPA member to attend and you can join for £70 👇bnpa.org.ukBritish Neuropsychiatry Association founded in 1987.Academic & professional body for practitioners & professionals allied to medicine at the interface of the clinical & cognitive neurosciences, & psychiatry 022
Reposted by Alan CarsonDavid L Perez MD, MMSc @davidlewisperez.bsky.social · 06/04/2025Standing room only for 2 hour symposium on functional neurological disorder (#FND) at the #AAN2025 meeting - with a focus on functional seizures, post concussive syndrome / functional cognitive disorder & pathophysiology. #BarbaraDworetzky @mattburkemd.bsky.social 1184
Reposted by Alan CarsonMicah G. Allen @micahgallen.com · 04/04/2025Do you have #ADHD or #autism? We're running a short, anonymous survey on interoception. It takes just 15–20 minutes, and your input would mean a lot. 👉 docs.google.com/forms/d/e/1F...docs.google.comAarhus University Student SurveyThis questionnaire will take approximately 15- 25 minutes to complete. Please answer in a safe environment and as truthfully as possible. As a neurodiverse research team, we prioritize the comfort an... 11116
Reposted by Alan CarsonProf Danny Altmann @daltmann.bsky.social · 03/04/2025Association between Wealth and Mortality in the United States and Europe | New England Journal of Medicine www.nejm.org/doi/full/10.... Survival in top wealth quartiles, Europe, higher than wealthiest Americans. Survival in wealthiest U.S. quartile similar to that in poorest quartile in Europe.nejm.orgAssociation between Wealth and Mortality in the United States and Europe | NEJMAmid growing wealth disparity, we have little information on how health among older Americans compares with that among older Europeans across the distribution of wealth. We performed a longitudinal... 04023
Alan Carson @alancarson15.bsky.social · 03/04/2025www.neurology.org/doi/10.1212/...neurology.orgCost Utility of Specialist Physiotherapy for Functional Motor Disorder (Physio4FMD) | Neurology Clinical PracticeBackground and ObjectivesFunctional motor disorder (FMD), a motor-dominant variant of functional neurologic disorder, is a disabling condition associated with high health and social care resource use ... 021
Alan Carson @alancarson15.bsky.social · 02/04/2025www.youtube.com/watch?v=q0JY...youtube.comCOFFI Consumer-Researcher Online Seminar IVYouTube video by CAG 010
Alan Carson @alancarson15.bsky.social · 01/04/2025academic.oup.com/brain/advanc.... I have to confess to not being persuaded- comes down to how specific you believe these investigations to be. Clinicslly such cases look much more nociplastic to meacademic.oup.comThe presence and prognosis of nerve pathology following whiplash injury: a prospective cohort studyFundaun et al. investigate grade II whiplash injuries (WADII) and find that two-thirds of patients have signs of acute nerve injury and nerve-related pain, 000
Alan Carson @alancarson15.bsky.social · 29/03/2025New drug for lower back pain could be ‘a gamechanger’. My money is on Dr Ellis’s comments 000
Alan Carson @alancarson15.bsky.social · 26/03/2025Thousands have sought second opinion after NHS hospitals adopted Martha’s rule, MPs hear- it woukd be good to see some hard data on efficacy of this- how often did it really change management and if it did, did that alter long term outcome. I ve no preconceptions but would benefit from proper study 010
Alan Carson @alancarson15.bsky.social · 25/03/2025road.cc/content/news...road.ccJames May tells councils to stop being "t***s" and build more cycle lanesFormer Top Gear host calls "anti-cycling rage" in the Telegraph "nonsense" and thinks "the best thing you could do with the driving test is make a part of it on a bicycle" 000
Reposted by Alan CarsonMike Galsworthy @mikegalsworthy.bsky.social · 20/03/2025The UK would now want to rejoin the EU by 55% to 33% Removing those that don’t know - that’s a 62.5% to 37.5% breakdown. 593109112718
Alan Carson @alancarson15.bsky.social · 10/03/2025@thelancet.bsky.social what fresh hell is this- went to log in via institutional access and told had to go to customer services to check some details then forwarded to other departments- long holds- why? 300
Alan Carson @alancarson15.bsky.social · 08/03/2025www.fletcherssolicitors.co.uk/medical-negl.... Personal injury teams getting involved may have more impact on situation than leng review- consent may be a gateway to litigationfletcherssolicitors.co.ukAre Physician Associates a Risk To Patients? | Fletchers SolictorsAre Physician Associates putting NHS patients at risk? A tragic case raises concerns about training, supervision, and patient safety. Read more. 000
Alan Carson @alancarson15.bsky.social · 08/03/2025www.nature.com/articles/s41...nature.comProspective cohort study of fatigue before and after SARS-CoV-2 infection in the Netherlands - Nature CommunicationsFatigue is one of the most common persistent symptoms of SARS-CoV-2 infection. Here, the authors report fatigue before, during, and after acute SARS-CoV-2 infection using data from a prospective cohor... 042
Reposted by Alan CarsonBNPA.bsky.social @bnpa.bsky.social · 03/03/2025Discounted Early Bird registration for the British Neuropsychiatry Association conference closes Thursday. It happens March 13-14 in London. We'd love to see you there bnpa.org.uk/agm/ Sleep engineering, TBI, FND treatment, impulse control disorders, and more. See the programme at the link abovebnpa.org.ukBritish Neuropsychiatry Association founded in 1987.Academic & professional body for practitioners & professionals allied to medicine at the interface of the clinical & cognitive neurosciences, & psychiatry 042
Alan Carson @alancarson15.bsky.social · 02/03/2025neurologyopen.bmj.com/content/7/1/... Very pleased to see this diagnostic aid for Functional cognitive disorders out. It needs further testing but i m feeling optimistic given the cumulative wisdom of the clinicians who kindly provided input into the developmentneurologyopen.bmj.comDevelopment of a diagnostic checklist to identify functional cognitive disorder versus other neurocognitive disordersBackground Functional cognitive disorder (FCD) poses a diagnostic challenge due to its resemblance to other neurocognitive disorders and limited biomarker accuracy. We aimed to develop a new diagnosti... 11511
Alan Carson @alancarson15.bsky.social · 02/03/2025Interesting conceptually but i wonder if in cases of functional tremor if the tremor is in fact the core treatment target- it s often absent with distraction anyway 000
Reposted by Alan CarsonAndrea Love, PhD | Biomedical Scientist @drandrealove.bsky.social · 01/03/2025No, COVID-19 vaccines aren’t causing immunosuppression. A preprint has been wildly misinterpreted. •No correction for prior COVID-19. •No assessment of T cell exhaustion. •No differences in CD4 T cells. •EBV reactivation wasn’t detected. Read my analysis: news.immunologic.org/p/no-covid-1...news.immunologic.orgNo, COVID-19 vaccines don’t suppress your immune system—here's the scienceA recent preprint filled with fundamental scientific flaws is fueling anti-vaccine disinformation. 17528159
Alan Carson @alancarson15.bsky.social · 28/02/2025inews.co.uk/news/how-rev.... Fabulous article on functional cognitive disorderinews.co.uk'How I reversed my memory loss from overlooked brain condition’Suzanne was forced to quit work when she started suffering memory problems, but later diagnosed with a condition that mimics dementia 142
Reposted by Alan CarsonDavid L Perez MD, MMSc @davidlewisperez.bsky.social · 27/02/2025Sharing economic analysis paper led by #ChrisStephen in functional neurological disorder. FND inpatient & ED costs in adults & children rising steadily - $2 billion in 2019 - coupled with limited research funding. @albertoespay.bsky.social @fndsociety.bsky.social www.neurology.org/doi/10.1212/... 0104
Reposted by Alan CarsonBNPA.bsky.social @bnpa.bsky.social · 10/01/2025Our 2025 annual conference is happening in London, March 13-14. Neuropsychiatry of sleep, FND treatment, impulsive control disorders, neuropsychiatry of TBI and much more. Sign up, it'll be great to see you there bnpa.org.uk/agm/ 034
Reposted by Alan CarsonFND Portal @fndportal.bsky.social · 15/02/2025Delighted to learn about this: FND Aotearoa, the first FND patient group in Aotearoa / New Zealand! 🙌 www.fnda.nz/homefnda.nzFNDAThis is Aotearoa/New Zealand's first local comprehensive resource for Functional Neurological Disorder patients, their whanau and their medics. 2173
Reposted by Alan CarsonStoyan Popkirov @popkirov.bsky.social · 15/02/2025Worth thinking about implicit and explicit (motor) self-efficacy, and how both can be reinforced therapeutically. 041
Alan Carson @alancarson15.bsky.social · 15/02/2025onlinelibrary.wiley.com/doi/10.1002/... dizziness common after tbi every acute patient shoukd be screened for bppv but make sure youre also familiar with pppd in chronic situationsonlinelibrary.wiley.comPrevalence and treatment outcomes of persistent postural‐perceptual dizziness after traumatic brain injuryBackground Persistent postural-perceptual dizziness (PPPD) is a chronic functional vestibular disorder that is a potential sequela of traumatic brain injury (TBI). Currently, little is known about h..... 042
Reposted by Alan CarsonFND Portal @fndportal.bsky.social · 13/02/2025FNDPortal.org is updated to reflect that Bluesky is now my primary social media platform, and the account on X is no longer monitored. More substantive updates coming soon.fndportal.orgFND PortalHey, sometimes the wires get crossed 1161
