Kristin @wecanthrivepd.bsky.social · 02/04/2025www.wired.com/story/doctor...wired.comDoctor Behind Award-Winning Parkinson’s Research Among Scientists Purged From NIHLeading scientists at the National Institutes of Health, the US’s leading medical research agency, were swept up Tuesday in the Trump administration’s latest firing blitz. 140
Reposted by KristinKristin @wecanthrivepd.bsky.social · 14/11/2024I want to share my starter pack of Parkinson's Peeps! Please write me if you'd like to be added. go.bsky.app/UPQMXtK 574
Reposted by KristinJon Cooper @joncooper-us.bsky.social · 26/01/2025Scientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on ALL purchasing — including supplies for their ongoing research to treat cancer, Alzheimer’s, heart disease and many infectious diseases.cnn.comScientists at NIH can’t purchase supplies for their studies after Trump administration pauses outside communications | CNNScientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on all purchasing, including supplies f... 1591719845
Kristin @wecanthrivepd.bsky.social · 15/01/2025www.nytimes.com/2025/01/11/o...nytimes.comOpinion | The Terrifying Realization That an Unresponsive Patient Is Still in There (Gift Article)After brain injury, some patients are no longer able to respond to the world around them. Is this really the case? 071
Reposted by KristinThe Parkinson's Foundation @parkinsondotorg.bsky.social · 10/01/2025Join us online next Wednesday for Empowerment Through Movement! 💪 This webinar will be focused on practical, evidence-based strategies to integrate movement into your daily life. Register for free: Parkinson.org/events/2025/Jan15WWparkinson.orgEmpowerment Through MovementJoin us for an empowering session focused on practical, evidence-based strategies to integrate movement into your daily life. 041
Reposted by KristinJames Boxall 🇨🇦🍁 @jamesgis.bsky.social · 04/01/2025This warms my heart, and I'm sure everyone in the Parkinson's community. An inspiration. And bonus, a Canadian :-) yes! @mjfoxfoundation.bsky.social 0121
Kristin @wecanthrivepd.bsky.social · 05/01/2025This is so well deserved. No one has used his or her celebrity better than Michael J. Fox has. Thank you, Michael, from all of us with #Parkinsons. We love you. ❤️❤️❤️ bsky.app/profile/moll... 2112
Kristin @wecanthrivepd.bsky.social · 30/12/2024Interesting #TEDtalk by a MDS about the interaction of mind and body. #Parkinsons #MovementDisorders youtu.be/XtSNBqC1z18youtu.beIt’s All in Your Head: Challenging Dualism in Health Care | Dr. Sarah Lidstone | TEDxUofTYouTube video by TEDx Talks 230
Reposted by KristinAnton Hur @antonhur.com · 11/12/20245th person to be cured of HIV “Today, researchers announced the Dusseldorf patient still has no detectable virus in his body, even after stopping his HIV medication four years ago.”abcnews.go.com5th person confirmed to be cured of HIVResearchers are announcing that a 53-year-old man in Germany has been cured of HIV. 1417527725
Kristin @wecanthrivepd.bsky.social · 11/12/2024I've been spending time in the #Parkinsons community on #Reddit. It's a great place to ask questions and give answers. Enjoying the more active engagement. (Plus joining other communities, too, like my city and state, and TV shows I like, lol.) 030
Reposted by KristinMichael Okun @michaelokun.bsky.social · 07/12/2024Why not use cycling wheelchairs for Parkinson's and beyond? Check out this video by Okada and colleagues in the Movement Disorders Clinical Practice. No person with Parkinson's should ever be 'left behind.' Love the added exercise component. movementdisorders.onlinelibrary.wiley.com/doi/10.1002/... 3154
Reposted by Kristinhijade2madre.bsky.social @hijade2madre.bsky.social · 06/12/2024Disabled people: In case of emergency YOU SHOULD HAVE MORE THAN 1 BAG PREPARED 👝 Bedside bag - items you need if you are trapped in or near your bed. Meds, supplies, snacks, water. 🎒Carry on bag- items you need to keep on your person. Wallet, meds, med supplies. 614851
Reposted by KristinMichael Okun @michaelokun.bsky.social · 06/12/2024It is such an honor to have two of my best friends in the world as literal giants in the Parkinson’s field. Jumping and with a cowboy hat I still can’t measure up to their brilliance. Here is to a new roadmap for Parkinson. 0172
Kristin @wecanthrivepd.bsky.social · 06/12/2024Ellie @pdmama.bsky.social just saw the video you posted to YouTube about the Beech Band. Is this for real? Do the effects persist? Pretty amazing. youtu.be/D1ck6k3mTJM?...youtu.beTesting the @beechbandon peak dose aggressive #parkinsons #dyskinaesia #parkinsonsdisease #yopdYouTube video by PD Mama 420
Kristin @wecanthrivepd.bsky.social · 06/12/2024Is Carl Beech on here? I don’t think he is yet. I just saw this amazing video he posted to FB of the Beech Band which he is developing. It helps with dyskinesia & speech & more. #Parkinsons #ParkinsonsDisease www.facebook.com/share/r/15JX...facebook.comRedirecting... 120
Reposted by KristinMichael Okun @michaelokun.bsky.social · 05/12/2024Why is there a crisis approaching for Parkinson's disease? Well, have a look at the formula. The number of cases is exploding and the costs are skyrocketing. Pair that with a decreasing number of available specialists. Key note this morning for the combined Parkinson Foundation/PSG meeting, 3124
Reposted by KristinThe Parkinson's Foundation @parkinsondotorg.bsky.social · 04/12/2024It's Older Driver Safety Awareness Week! 🚘 The ability to drive with Parkinson's depends on a one’s specific symptoms & the presence of other age-related changes. We're here to help you evaluate your driving ability: Parkinson.org/living-with-parkinsons/management/activities-daily-living/driving 142
Reposted by KristinFlyaway (she/her) @flyaway.bsky.social · 02/12/2024Discover Your Bluesky Digital Persona – Let our AI analyze your posts, roast your takes, and reveal what your posting history says about you (spoiler: probably too much time online 🤓). Blueskyroast.com ~~~~~ I don't think one Wordle post a day is that heavy, but I'll accept the rest of my roast 😆 111
Reposted by KristinThe Science of Parkinson's @scienceofpd.bsky.social · 23/11/2024Mandatory listening: A fascinating & wonderful 'Stimulating Brains' podcast episode from @andreashorn.org interviewing Mark McAuley & Susan Boehnke on patient-led #Parkinsons research, patient-centered care & neuroscience education stimulatingbrains.org/63-mark-mcau... 2144
Reposted by KristinStimulating Brains @stimulatingbrains.org · 20/11/2024Mark McAuley is a successful CEO but also has Parkinson's Disease and DBS. To learn more about it, he started a research project in Susan Boehnke's course at Queens University. A fantastic journey about patient-led research and fantastic science education…! stimulatingbrains.org/63-mark-mcau... 165
Reposted by KristinAndreas Horn @andreashorn.org · 20/11/2024This is a really special episode about a group of fantastic people – patient, students, educators – that carried out a really interesting research project about DBS – using fNIRS and gait measurements! Haven't heard of anything of the kind before – truly inspiring! Tune in below 👇👇 095
Reposted by KristinMary Elizabeth Sutherland @meharpist.bsky.social · 21/11/2024This month's issue of @naturehumbehav.bsky.social covers such an important - and under-discussed and researched - topic. For more, see the collection here: www.nature.com/collections/...nature.comMenstruation MattersMenstruation is part of human life, yet we hide it behind stigma and taboos. In this Focus, our authors discuss why menstruation matters. Tackling significant ... 094
Reposted by KristinAbhimanyu Mahajan @amahajanmd.bsky.social · 21/11/2024Interested in migrating over and following people who treat and study movement disorders but not sure where to start? Link (not exhaustive): go.bsky.app/F4ZDiMh 055
Reposted by KristinAndrew K Kauffmann @jkaye82.bsky.social · 28/11/2024Love these reflections on #writing from an embodied place @lilydunn.bsky.social and what it can mean to write about one's #health or experience of #care londonlitlab.substack.com/p/writing-he... Thought-provoking on how our #stories can be non-linear, and defy strict orthodoxies on #narrativelondonlitlab.substack.comWriting Health and Care StoriesDo you suffer from chronic illness, or disability, or do you care for someone who does? Dr Lily Dunn explores how writing can be a powerful tool for expression. 122
Kristin @wecanthrivepd.bsky.social · 30/11/2024@markahirsch.bsky.social This is interesting! We often talk about the positive benefits of exercise and movement, including dance, on symptoms of #Parkinsonsdisease. But I’ve never seen the impact on feelings such as shame, anxiety, confidence, etc. highlighted before. 121
Reposted by KristinMark Hirsch @markahirsch.bsky.social · 16/11/2024Tango Argentino and experience of shame in #Parkinson’s "In general, participants described reduced body fatigue, anxiety, shame and frustration and increase in joy, pride, curiosity as well as reinforcement of partnership" pubmed.ncbi.nlm.nih.gov/31987239/pubmed.ncbi.nlm.nih.govPerceived effects of Tango Argentino on body experience in persons with Parkinson's disease (PD)-A qualitative study with affected persons and their partners - PubMedThe perceived effects of TA courses may be linked to a positive body awareness and body control which may be related improved motor symptoms, social and everyday life. These perceived effects should b... 021
Reposted by KristinMichael Okun @michaelokun.bsky.social · 12/10/2023Do you know the forgotten drugs that block dopamine receptors and worsen Parkinson's? Amisulpride (Barhemsys) Metoclopramide (Reglan, Gimoti) Droperidol (Inapsine) Chlorpromazine (Thorazine) Prochlorperazine (Compazine, Compro). pubs.acs.org/doi/10.1021/... 143
Reposted by KristinMichael Okun @michaelokun.bsky.social · 05/11/2023Where you live could be important for breathing particulate matter and later coming down with Parkinson's? Mississippi-Ohio River Valley? State-of-the-art geographic analytic techniques showed association between PM2.5 and PD that varied in strength by region. n.neurology.org/content/earl... 063
Reposted by KristinMichael Okun @michaelokun.bsky.social · 26/11/2024Can deep brain stimulation (DBS) applied during sleep modify memory consolidation in Parkinson's? YES. It has long been pondered that low frequency stimulation could be a 'key' to improving cognition and thinking. Setting the device to be on at 4 Hz for 25 minutes in NREM? Wow! 0114
Reposted by KristinWHO @who.int · 25/11/2024It’s the International Day to End Violence against Women and Girls! 1 in 3 girls and women around the world experience physical and/or sexual violence by: A husband A boyfriend An intimate partner A lover A parent A relative A colleague A boss A stranger bit.ly/3gy8pfq #NoExcuse 13527289
Reposted by KristinAbhimanyu Mahajan @amahajanmd.bsky.social · 24/11/2024Can DBS improve memory in PD? ✅18 Patients randomized (1:1 ratio) to either 4 Hz or 130 Hz DBS during early NREM sleep ✅4 Hz DBS improved overnight memory retention ✅Stronger memory improvement correlated with ⬆️ cortical low frequency... 121
Reposted by KristinAbhimanyu Mahajan @amahajanmd.bsky.social · 21/11/2024New to #BlueSky and interested in following people who treat and study movement disorders? #NeuroSky #MedSky #AcademicSky Link (not exhaustive): go.bsky.app/F4ZDiMh 23614
Reposted by KristinKristin @wecanthrivepd.bsky.social · 29/11/2024Dr Laurie Mischley is the only one I know who is actively researching prevention and communicating about it to the #Parkinsons #PDcommunity. Who else is doing this? There must be others. 001
Reposted by KristinMedias 🇨🇦 @mediasca.skyfleet.blue · 29/11/2024Stress and inflammation may help trigger Parkinson’s disease: studyglobalnews.caStress and inflammation may help trigger Parkinson’s disease: study | Globalnews.caEnvironmental factors like prolonged stress, chronic inflammation and toxic exposure could play a key role in triggering Parkinson's disease, even in people without genetic risk. 001
Reposted by Kristinnirahymanwrites @chronicinbklyn.bsky.social · 29/11/2024I just caught up to his four-ep Parkinson’s arc on my #ERbinge. My dude has done it all! 021
Reposted by KristinBauris T., Ph.D @aiinlabcoat.bsky.social · 29/11/2024This week's AI Healthcare Roundup: • Parkinson’s Disease Hidden Clues Found in a Simple Walk • Why Gen Z Doctors Are Breaking the Rules of Medicine • AI Regulation Faces Uncertainty in the Trump Administration #AI #AINews #AIHealthcare www.aiinlabcoat.com/p/parkinson-...aiinlabcoat.comParkinson’s Disease Hidden Clues Found in a Simple Walkplus: AI Regulation Faces Uncertainty in the Trump Administration 082
Reposted by KristinKevin Quinn @kevq.bsky.social · 24/11/2024I’ve been gaining a lot of followers here on Bluesky lately, especially from the Parkinson’s community (👋🏽), and I thought I’d share this blog post with everyone #fwiw … wp.me/p5KNFc-qC. 🔭✌🏻👍🙂wp.meStargazing for mental health and well-beingFirst published in issue 7 of The West Dorset Magazine, May 2022 Hi. As someone who lives with Parkinson’s, I’m keenly aware of the need to be mindful of my mental well-being, stress ma… 13310
Reposted by KristinThe National @scotnational.bsky.social · 27/11/2024Del Amitri star Justin Currie has spoken about his 'scary' Parkinson's diagnosis 🗣️'When you have Parkinson’s it’s like someone else taking control ... you have to let that guy do some of the writing' Read the full interview ⬇️thenational.scotDel Amitri star Justin Currie on his 'scary' Parkinson's diagnosisAs Del Amitri begin a tour of Scotland, singer songwriter Justin Currie reveals how his Parkinson’s diagnosis has brought the present into sharp… 2174
Reposted by KristinScience Friday @scifri.bsky.social · 29/11/2024In 2018, actor and author Alan Alda spoke publicly about his diagnosis of Parkinson’s disease. In today’s episode, we revisit a conversation with him about how being an advocate for science changes his perspective on his condition. Listen here 🎧: buff.ly/3Mut28J 118521
Reposted by KristinRory Cellan-Jones @rorycj.bsky.social · 28/11/2024open.substack.com/pub/rorycell... congrats to Parkinson’s UK on launching its Tech Guide to Parky gadgets -here’s my reviewopen.substack.comA "Which?" Guide to Parkinson's TechAs a former* technology journalist with Parkinson’s I get told about lots of gadgets designed to help people dealing with the neurological disease - and I have tried quite a few of them. 518124
Kristin @wecanthrivepd.bsky.social · 29/11/2024Was hoping to get a thread going here, but no bites yet. Trying again. Anybody have ideas for gifts for people with #Parkinsonsdisease? #Parkinsons #PDCommunity 241
Reposted by KristinMichael Okun @michaelokun.bsky.social · 14/11/2024We are already at ~12 million cases worldwide w/ Parkinson's which is approaching where we thought we would be in 2040. Can we double down and spend some money and time on preventing cases and lifting the living? Only a few pennies on the dollar go to prevention research. 4169
Kristin @wecanthrivepd.bsky.social · 29/11/2024This graphic is shocking. Almost double the number of #Parkinsons cases in 9 years? Our world is awash in environmental toxins. 340
Reposted by KristinHannah Lönneker @hloenneker.bsky.social · 29/11/2023Today is world #MoveDisorder day! In my PhD, we found impairments in numerical cognition for Parkinson's patients without cognitive impairment (multi-digit arithmetic) and with cognitive impairment ((non-) symbolic magnitude comparison), while transcoding and number line estimation were spared. 253
Reposted by KristinEsther @shakinginmyboots.bsky.social · 29/11/2024Nov 29 is World Movement Disorder Day and IMDS is finally embracing patient engagement with the theme of stigma. This is what change looks like🗣️. Share your story using #movedisorder #nothingaboutuswithoutus youtu.be/dBLGNVEaRZc?...youtu.beWorld Movement Disorders Day 2024 - Dr. FungYouTube video by International Parkinson and Movement Disorder Society 021