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Kristin

@wecanthrivepd.bsky.social
329 followers 296 following 132 posts

Dx’d #Parkinsons 2020. 🥊 Psychologist 🧠 Doing my best to thrive! 💯 💯 This account is focused on and follows Parkinson’s-related and medical/health content. Here to learn ✏️ and to give and receive support 🦋🦋🦋.

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Kristin @wecanthrivepd.bsky.social · 02/04/2025
www.wired.com/story/doctor...
wired.com
Doctor Behind Award-Winning Parkinson’s Research Among Scientists Purged From NIH
Leading scientists at the National Institutes of Health, the US’s leading medical research agency, were swept up Tuesday in the Trump administration’s latest firing blitz.
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Kristin @wecanthrivepd.bsky.social · 14/11/2024
I want to share my starter pack of Parkinson's Peeps! Please write me if you'd like to be added. go.bsky.app/UPQMXtK
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Kristin @wecanthrivepd.bsky.social · 26/01/2025
Will this impact any #Parkinsons research?
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Jon Cooper @joncooper-us.bsky.social · 26/01/2025
Scientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on ALL purchasing — including supplies for their ongoing research to treat cancer, Alzheimer’s, heart disease and many infectious diseases.
cnn.com
Scientists at NIH can’t purchase supplies for their studies after Trump administration pauses outside communications | CNN
Scientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on all purchasing, including supplies f...
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Kristin @wecanthrivepd.bsky.social · 15/01/2025
www.nytimes.com/2025/01/11/o...
nytimes.com
Opinion | The Terrifying Realization That an Unresponsive Patient Is Still in There (Gift Article)
After brain injury, some patients are no longer able to respond to the world around them. Is this really the case?
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 10/01/2025
Join us online next Wednesday for Empowerment Through Movement! 💪 This webinar will be focused on practical, evidence-based strategies to integrate movement into your daily life. Register for free: Parkinson.org/events/2025/Jan15WW
parkinson.org
Empowerment Through Movement
Join us for an empowering session focused on practical, evidence-based strategies to integrate movement into your daily life.
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James Boxall 🇨🇦🍁 @jamesgis.bsky.social · 04/01/2025
This warms my heart, and I'm sure everyone in the Parkinson's community. An inspiration. And bonus, a Canadian :-) yes! @mjfoxfoundation.bsky.social
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Kristin @wecanthrivepd.bsky.social · 05/01/2025
This is so well deserved. No one has used his or her celebrity better than Michael J. Fox has. Thank you, Michael, from all of us with #Parkinsons. We love you. ❤️❤️❤️ bsky.app/profile/moll...
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Kristin @wecanthrivepd.bsky.social · 30/12/2024
Interesting #TEDtalk by a MDS about the interaction of mind and body. #Parkinsons #MovementDisorders youtu.be/XtSNBqC1z18
youtu.be
It’s All in Your Head: Challenging Dualism in Health Care | Dr. Sarah Lidstone | TEDxUofT
YouTube video by TEDx Talks
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Anton Hur @antonhur.com · 11/12/2024
5th person to be cured of HIV “Today, researchers announced the Dusseldorf patient still has no detectable virus in his body, even after stopping his HIV medication four years ago.”
abcnews.go.com
5th person confirmed to be cured of HIV
Researchers are announcing that a 53-year-old man in Germany has been cured of HIV.
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Kristin @wecanthrivepd.bsky.social · 11/12/2024
I've been spending time in the #Parkinsons community on #Reddit. It's a great place to ask questions and give answers. Enjoying the more active engagement. (Plus joining other communities, too, like my city and state, and TV shows I like, lol.)
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Michael Okun @michaelokun.bsky.social · 07/12/2024
Why not use cycling wheelchairs for Parkinson's and beyond? Check out this video by Okada and colleagues in the Movement Disorders Clinical Practice. No person with Parkinson's should ever be 'left behind.' Love the added exercise component. movementdisorders.onlinelibrary.wiley.com/doi/10.1002/...
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hijade2madre.bsky.social @hijade2madre.bsky.social · 06/12/2024
Disabled people: In case of emergency YOU SHOULD HAVE MORE THAN 1 BAG PREPARED 👝 Bedside bag - items you need if you are trapped in or near your bed. Meds, supplies, snacks, water. 🎒Carry on bag- items you need to keep on your person. Wallet, meds, med supplies.
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Michael Okun @michaelokun.bsky.social · 06/12/2024
It is such an honor to have two of my best friends in the world as literal giants in the Parkinson’s field. Jumping and with a cowboy hat I still can’t measure up to their brilliance. Here is to a new roadmap for Parkinson.
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Kristin @wecanthrivepd.bsky.social · 06/12/2024
Ellie @pdmama.bsky.social just saw the video you posted to YouTube about the Beech Band. Is this for real? Do the effects persist? Pretty amazing. youtu.be/D1ck6k3mTJM?...
youtu.be
Testing the @beechbandon peak dose aggressive #parkinsons #dyskinaesia #parkinsonsdisease #yopd
YouTube video by PD Mama
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Kristin @wecanthrivepd.bsky.social · 06/12/2024
Is Carl Beech on here? I don’t think he is yet. I just saw this amazing video he posted to FB of the Beech Band which he is developing. It helps with dyskinesia & speech & more. #Parkinsons #ParkinsonsDisease www.facebook.com/share/r/15JX...
facebook.com
Redirecting...
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Michael Okun @michaelokun.bsky.social · 05/12/2024
Why is there a crisis approaching for Parkinson's disease? Well, have a look at the formula. The number of cases is exploding and the costs are skyrocketing. Pair that with a decreasing number of available specialists. Key note this morning for the combined Parkinson Foundation/PSG meeting,
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 04/12/2024
It's Older Driver Safety Awareness Week! 🚘 The ability to drive with Parkinson's depends on a one’s specific symptoms & the presence of other age-related changes. We're here to help you evaluate your driving ability: Parkinson.org/living-with-parkinsons/management/activities-daily-living/driving
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Flyaway (she/her) @flyaway.bsky.social · 02/12/2024
Discover Your Bluesky Digital Persona – Let our AI analyze your posts, roast your takes, and reveal what your posting history says about you (spoiler: probably too much time online 🤓). Blueskyroast.com ~~~~~ I don't think one Wordle post a day is that heavy, but I'll accept the rest of my roast 😆
Welcome to the Bluesky Circus: Admission Free but Opinions Charged!

From political rants to Wordle woes, this account has everything except the absence of chaos.

"A blend of impetuous intellect and wry humor, like a cat on a hot tin roof with a
thesaurus."

Authenticity: 88% 
Thought Leader: 70%

Key Topics:
95% Politics and Current Events
80% Wordle and Other Games
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The Science of Parkinson's @scienceofpd.bsky.social · 23/11/2024
Mandatory listening: A fascinating & wonderful 'Stimulating Brains' podcast episode from @andreashorn.org interviewing Mark McAuley & Susan Boehnke on patient-led #Parkinsons research, patient-centered care & neuroscience education stimulatingbrains.org/63-mark-mcau...
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Stimulating Brains @stimulatingbrains.org · 20/11/2024
Mark McAuley is a successful CEO but also has Parkinson's Disease and DBS. To learn more about it, he started a research project in Susan Boehnke's course at Queens University. A fantastic journey about patient-led research and fantastic science education…! stimulatingbrains.org/63-mark-mcau...
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Andreas Horn @andreashorn.org · 20/11/2024
This is a really special episode about a group of fantastic people – patient, students, educators – that carried out a really interesting research project about DBS – using fNIRS and gait measurements! Haven't heard of anything of the kind before – truly inspiring! Tune in below 👇👇
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Mary Elizabeth Sutherland @meharpist.bsky.social · 21/11/2024
This month's issue of @naturehumbehav.bsky.social covers such an important - and under-discussed and researched - topic. For more, see the collection here: www.nature.com/collections/...
nature.com
Menstruation Matters
Menstruation is part of human life, yet we hide it behind stigma and taboos. In this Focus, our authors discuss why menstruation matters. Tackling significant ...
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Abhimanyu Mahajan @amahajanmd.bsky.social · 21/11/2024
Interested in migrating over and following people who treat and study movement disorders but not sure where to start? Link (not exhaustive): go.bsky.app/F4ZDiMh
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Andrew K Kauffmann @jkaye82.bsky.social · 28/11/2024
Love these reflections on #writing from an embodied place @lilydunn.bsky.social and what it can mean to write about one's #health or experience of #care londonlitlab.substack.com/p/writing-he... Thought-provoking on how our #stories can be non-linear, and defy strict orthodoxies on #narrative
londonlitlab.substack.com
Writing Health and Care Stories
Do you suffer from chronic illness, or disability, or do you care for someone who does? Dr Lily Dunn explores how writing can be a powerful tool for expression.
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Kristin @wecanthrivepd.bsky.social · 30/11/2024
@markahirsch.bsky.social This is interesting! We often talk about the positive benefits of exercise and movement, including dance, on symptoms of #Parkinsonsdisease. But I’ve never seen the impact on feelings such as shame, anxiety, confidence, etc. highlighted before.
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Mark Hirsch @markahirsch.bsky.social · 16/11/2024
Tango Argentino and experience of shame in #Parkinson’s "In general, participants described reduced body fatigue, anxiety, shame and frustration and increase in joy, pride, curiosity as well as reinforcement of partnership" pubmed.ncbi.nlm.nih.gov/31987239/
pubmed.ncbi.nlm.nih.gov
Perceived effects of Tango Argentino on body experience in persons with Parkinson's disease (PD)-A qualitative study with affected persons and their partners - PubMed
The perceived effects of TA courses may be linked to a positive body awareness and body control which may be related improved motor symptoms, social and everyday life. These perceived effects should b...
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Michael Okun @michaelokun.bsky.social · 12/10/2023
Do you know the forgotten drugs that block dopamine receptors and worsen Parkinson's? Amisulpride (Barhemsys) Metoclopramide (Reglan, Gimoti) Droperidol (Inapsine) Chlorpromazine (Thorazine) Prochlorperazine (Compazine, Compro). pubs.acs.org/doi/10.1021/...
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Michael Okun @michaelokun.bsky.social · 05/11/2023
Where you live could be important for breathing particulate matter and later coming down with Parkinson's? Mississippi-Ohio River Valley? State-of-the-art geographic analytic techniques showed association between PM2.5 and PD that varied in strength by region. n.neurology.org/content/earl...
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Michael Okun @michaelokun.bsky.social · 26/11/2024
Can deep brain stimulation (DBS) applied during sleep modify memory consolidation in Parkinson's? YES. It has long been pondered that low frequency stimulation could be a 'key' to improving cognition and thinking. Setting the device to be on at 4 Hz for 25 minutes in NREM? Wow!
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WHO @who.int · 25/11/2024
It’s the International Day to End Violence against Women and Girls! 1 in 3 girls and women around the world experience physical and/or sexual violence by: A husband A boyfriend An intimate partner A lover A parent A relative A colleague A boss A stranger bit.ly/3gy8pfq #NoExcuse
1 in 3 women worldwide has experienced physical and/or sexual violence mostly at the hands of an intimate partner.
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Abhimanyu Mahajan @amahajanmd.bsky.social · 24/11/2024
Can DBS improve memory in PD? ✅18 Patients randomized (1:1 ratio) to either 4 Hz or 130 Hz DBS during early NREM sleep ✅4 Hz DBS improved overnight memory retention ✅Stronger memory improvement correlated with ⬆️ cortical low frequency...
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Abhimanyu Mahajan @amahajanmd.bsky.social · 21/11/2024
New to #BlueSky and interested in following people who treat and study movement disorders? #NeuroSky #MedSky #AcademicSky Link (not exhaustive): go.bsky.app/F4ZDiMh
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Kristin @wecanthrivepd.bsky.social · 29/11/2024
Dr Laurie Mischley is the only one I know who is actively researching prevention and communicating about it to the #Parkinsons #PDcommunity. Who else is doing this? There must be others.
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Medias 🇨🇦 @mediasca.skyfleet.blue · 29/11/2024
Stress and inflammation may help trigger Parkinson’s disease: study
globalnews.ca
Stress and inflammation may help trigger Parkinson’s disease: study | Globalnews.ca
Environmental factors like prolonged stress, chronic inflammation and toxic exposure could play a key role in triggering Parkinson's disease, even in people without genetic risk.
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nirahymanwrites @chronicinbklyn.bsky.social · 29/11/2024
I just caught up to his four-ep Parkinson’s arc on my #ERbinge. My dude has done it all!
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Bauris T., Ph.D @aiinlabcoat.bsky.social · 29/11/2024
This week's AI Healthcare Roundup: • Parkinson’s Disease Hidden Clues Found in a Simple Walk • Why Gen Z Doctors Are Breaking the Rules of Medicine • AI Regulation Faces Uncertainty in the Trump Administration #AI #AINews #AIHealthcare www.aiinlabcoat.com/p/parkinson-...
aiinlabcoat.com
Parkinson’s Disease Hidden Clues Found in a Simple Walk
plus: AI Regulation Faces Uncertainty in the Trump Administration
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Kevin Quinn @kevq.bsky.social · 24/11/2024
I’ve been gaining a lot of followers here on Bluesky lately, especially from the Parkinson’s community (👋🏽), and I thought I’d share this blog post with everyone #fwiw … wp.me/p5KNFc-qC. 🔭✌🏻👍🙂
wp.me
Stargazing for mental health and well-being
First published in issue 7 of The West Dorset Magazine, May 2022 Hi. As someone who lives with Parkinson’s, I’m keenly aware of the need to be mindful of my mental well-being, stress ma…
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The National @scotnational.bsky.social · 27/11/2024
Del Amitri star Justin Currie has spoken about his 'scary' Parkinson's diagnosis 🗣️'When you have Parkinson’s it’s like someone else taking control ... you have to let that guy do some of the writing' Read the full interview ⬇️
thenational.scot
Del Amitri star Justin Currie on his 'scary' Parkinson's diagnosis
As Del Amitri begin a tour of Scotland, singer songwriter Justin Currie reveals how his Parkinson’s diagnosis has brought the present into sharp…
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Science Friday @scifri.bsky.social · 29/11/2024
In 2018, actor and author Alan Alda spoke publicly about his diagnosis of Parkinson’s disease. In today’s episode, we revisit a conversation with him about how being an advocate for science changes his perspective on his condition. Listen here 🎧: buff.ly/3Mut28J
“If you get a diagnosis of Parkinson's, it's not a good idea to think, ‘Oh, that's it, everything is over.’ Many, many people have years to go. 
And it's a progressive disease, but you can slow the progress.”
—Alan Alda
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Rory Cellan-Jones @rorycj.bsky.social · 28/11/2024
open.substack.com/pub/rorycell... congrats to Parkinson’s UK on launching its Tech Guide to Parky gadgets -here’s my review
open.substack.com
A "Which?" Guide to Parkinson's Tech
As a former* technology journalist with Parkinson’s I get told about lots of gadgets designed to help people dealing with the neurological disease - and I have tried quite a few of them.
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Kristin @wecanthrivepd.bsky.social · 29/11/2024
Was hoping to get a thread going here, but no bites yet. Trying again. Anybody have ideas for gifts for people with #Parkinsonsdisease? #Parkinsons #PDCommunity
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Michael Okun @michaelokun.bsky.social · 14/11/2024
We are already at ~12 million cases worldwide w/ Parkinson's which is approaching where we thought we would be in 2040. Can we double down and spend some money and time on preventing cases and lifting the living? Only a few pennies on the dollar go to prevention research.
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Kristin @wecanthrivepd.bsky.social · 29/11/2024
This graphic is shocking. Almost double the number of #Parkinsons cases in 9 years? Our world is awash in environmental toxins.
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Hannah Lönneker @hloenneker.bsky.social · 29/11/2023
Today is world #MoveDisorder day! In my PhD, we found impairments in numerical cognition for Parkinson's patients without cognitive impairment (multi-digit arithmetic) and with cognitive impairment ((non-) symbolic magnitude comparison), while transcoding and number line estimation were spared.
Image of a brain and text stating "Movement disorders are neurological conditions that affect bodily motor control, disrupting an individual's life."Text stating "Movement disorders affect much more than movement. Non-motor symptoms can range from constipation and sleep problems to hallucinations and memory loss."Text stating "The prevalence of movement disorders increasing - and outpacing growth estimates. Parkinson's is now the fastest-growing brain disease."Text stating "Parkinson's disease is likely caused by multiple factors, and diagnosis is a multi-step process. Early signs can seem unassuming, like stiffness, anxiety, smaller handwriting, or constipation."
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Esther @shakinginmyboots.bsky.social · 29/11/2024
Nov 29 is World Movement Disorder Day and IMDS is finally embracing patient engagement with the theme of stigma. This is what change looks like🗣️. Share your story using #movedisorder #nothingaboutuswithoutus youtu.be/dBLGNVEaRZc?...
youtu.be
World Movement Disorders Day 2024 - Dr. Fung
YouTube video by International Parkinson and Movement Disorder Society
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