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The Parkinson's Foundation

@parkinsondotorg.bsky.social
1.7K followers 1.3K following 758 posts

The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community. Parkinson.org

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The Parkinson's Foundation @parkinsondotorg.bsky.social · 1h
Have you checked out our new and improved online store? Each item is designed to spark conversations about Parkinson’s disease while supporting the Parkinson’s Foundation. Check it out! ➡️ Shop.Parkinson.org
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 30/09/2026
Happy World Podcast Day! 🎧 Our Substantial Matters podcast series features interviews with Parkinson’s experts that highlight the treatments and strategies that can help you or your loved one live a better life with Parkinson’s disease. Check out recent episodes by visiting: Parkinson.org/Podcast
parkinson.org
Podcast: Substantial Matters
Every other Tuesday, we bring you a new podcast episode.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 30/09/2026
“The FDA approval of tavapadon is a momentous occasion, as the Parkinson’s community has waited more than 50 years for new, improved medication options," says Dr. Sneha Mantri, our chief medical officer. 🔗 Learn more about tavapadon and other dopamine agonists for PD: Parkinson.org/Dopamine
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 28/09/2026
🏈 Tonight? Chicago takes on the Eagles. Sunday? Chicago takes on Parkinson's disease! 👟 Register for Moving Day Chicago on October 4 and join us in the fight against PD. Learn more: MovingDayChicago.org
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 28/09/2026
Today for Hispanic Heritage Month, learn how five community leaders are Reaching Hispanic and Latino Communities ➡️ Parkinson.org/blog/awareness/community-grants-hispanic-latino
parkinson.org
How 5 Community Leaders Are Reaching Hispanic and Latino Communities
Meet five of our community grantees, awarded for their tailored educational, exercise and care partner programs created for the Spanish-speaking PD communities.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 24/09/2026
Learn how to get involved with Parkinson's disease research! 🔬 Parkinson.org/library/fact-sheets/research
parkinson.org
Getting Involved in Research
Learn more about the Parkinson's disease research process and how to get involved.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 23/09/2026
We're excited to #Move4PD this weekend in Dayton, OH! 🩵 👟 Check out our website to register or find a walk near you: MovingDayWalks.org 
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 22/09/2026
Dizziness and vertigo are commonly reported symptoms in people with Parkinson’s disease. Learn why this is and how these symptoms can be managed: Parkinson.org/understanding-parkinsons/non-movement-symptoms/vertigo
parkinson.org
Vertigo, Dizziness & Low Blood Pressure
Learn about vertigo & dizziness as they pertain to Parkinson's disease - two commonly reported symptoms.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 22/09/2026
🧠 Learn about cognitive changes that can accompany Parkinson's disease: Parkinson.org/understanding-parkinsons/non-movement-symptoms/cognitive
parkinson.org
Cognitive Changes
Brain changes that lead to motor symptoms can also result in slowness in memory and thinking.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 21/09/2026
Living alone with Parkinson’s involves the responsibility of keeping yourself safe, both now and in the future. Here are a few tips for making everyday tasks easier to manage: Parkinson.org/living-with-parkinsons/management/living-alone
parkinson.org
Living Alone
Consider these tips and resources if you are living alone with Parkinson's disease.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 18/09/2026
Read Tamara's PD Story to learn about her journey as a mother with early-onset Parkinson's disease. 🩵 ➡️ Parkinson.org/living-with-parkinsons/stories/tamara-zanvardine
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 14/09/2026
This week's Fitness Friday is LIVE! 💪 This workout will include the five fundamental human movements (push, pull, hinge, squat & loaded carry) to support activities of daily living. Register for free: Parkinson.org/events/2026/Sep18FF
parkinson.org
Live Fitness Friday - Move to Improve
Join us for a live fitness class, offered once a month.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 12/09/2026
As Rosh Hashanah begins, we’re wishing peace and health to all who celebrate. Shana Tova. 🩵 🍯
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 11/09/2026
Join us online next Wednesday for New Insights into Freezing and Fall Prevention in Parkinson's 🖥️ Register for free: Parkinson.org/events/2026/Sep16WW
parkinson.org
New Insights into Freezing and Fall Prevention in Parkinson's
Learn new insights on how freezing and other movement and non-movement symptoms can contribute to falls and how to lessen the risk.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 09/09/2026
Fighting - It's a Daily Thing 🩵 The Parkinson's Foundation is here to support your fight against PD every step of the way: Parkinson.org/Resources
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 04/09/2026
Join us online next Wednesday for an Expert Briefing on disease modification & stem cells 🔬 Register for free: Parkinson.org/events/2026/Sep9WW
parkinson.org
Expert Briefing: Disease Modification & Stem Cells: Where Are We Now?
This session will provide an overview of where the field stands--exploring breakthroughs in cell replacement therapies, disease-modifying trials, and ethical considerations.
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Reposted by The Parkinson's Foundation
Parkinson's Foundation Research @pfresearchteam.bsky.social · 27/08/2026
🚨 Big news! The Parkinson’s Foundation is now accepting LOIs for our research grants! 🚀 We're funding groundbreaking science through our Impact Awards, Stanley Fahn Junior Faculty Award, and Postdoctoral Fellowships. Apply now: www.parkinson.org/advancing-re... @parkinsondotorg.bsky.social
parkinson.org
For Researchers
The following information is for researchers, clinicians & fellows. Learn more about the application processes for the various Parkinson's Foundation programs.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 31/08/2026
Our CareMAP video series is your free guide to coping with the complex problems that arise as a result of advanced Parkinson's. These how-to videos and caregiver stories provide both practical and personal tips: Parkinson.org/library/videos/caremap
parkinson.org
CareMAP: Managing Advanced Parkinson's
Let CareMAP be your guide to coping with the complex problems that arise as a result of advanced PD.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 31/08/2026
Check out our latest Parkinson's-friendly exercise tutorial: Yoga for the Mind-Body Connection ➡️ www.youtube.com/watch?v=rz6B0pmCmBo
youtube.com
Parkinson's Disease Exercises: Breathe and Energize | Yoga for Mind-Body Connection
YouTube video by Parkinson's Foundation
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 28/08/2026
Join us online next Wednesday for Care Partner Conversations: a webinar series led by a panel of care partners who share practical tools, personal stories, and the resources that have supported them along the way. Register for free: Parkinson.org/events/2026/Sep2WW
parkinson.org
Care Partner Conversations
Led by care partners, these webinars will bring together spouses, partners, family members, and friends who provide care--or anyone interested in learning more about caregiving and Parkinson's disease.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 24/08/2026
TODAY: The federal Advisory Council shaping the National Plan to End Parkinson’s is meeting. Parkinson’s Foundation President and CEO, John Lehr, is bringing the PD community’s priorities to the table. Watch live at 10a.m. ET ➡️ www.hhs.gov/live/live-1/index.html#…
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 17/08/2026
We're less than a month away from the start of our fall Moving Day Walk season! 👟 Join us in one of these cities or through Moving Day @ Home ➡️ MovingDayWalk.org
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 17/08/2026
This week's Fitness Friday is LIVE! 💪 Join us online for yoga featuring mindful breathing and gentle, fluid movements designed to support mobility, balance, and relaxation for those living with Parkinson’s. Register for free: Parkinson.org/events/2026/Aug21FF
parkinson.org
Live Fitness Friday - Yoga for Mind-Body Connection
Join us for a live fitness class, offered once a month.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 12/08/2026
Meet the Paraquat Prevention Act, introduced by Anna Paulina Luna (R-FL) and Chellie Pingree (D-ME) to ban paraquat nationwide. Learn what the bill would do, why it matters to Parkinson’s prevention and how advocates can help build support: Parkinson.org/blog/policy/paraquat-prevention-act
parkinson.org
Meet the Bill: The Paraquat Prevention Act
The Paraquat Prevention Act would ban paraquat across the U.S. and protect farmers, farmworkers, rural families and other communities from exposure.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 11/08/2026
🎥 Watch this short video for 10 surprising symptoms of Parkinson's disease: Parkinson.org/library/10-surprising-symptoms-parkinsons-disease
parkinson.org
10 Surprising Symptoms of Parkinson's Disease
Learn about ten movement and non-movement symptoms of Parkinson's disease.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 07/08/2026
✈️ Join us online next Wednesday for a webinar on Traveling with Parkinson's! You'll learn how to travel with greater confidence, reduce stress, and focus on enjoying the experience. Register for free: Parkinson.org/events/2026/Aug12WW
parkinson.org
Traveling with Parkinson's
In this webinar, we'll share practical tips to help make travel easier--from packing medications and navigating airports to adjusting to new time zones and finding accessible accommodations.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 31/07/2026
Join us online next Wednesday for Parkinson's Basics: What You Need to Know 🖥️ This program offers an introduction and basic overview of Parkinson’s disease. Register for free ➡️ Parkinson.org/events/2026/Aug5WW
parkinson.org
Parkinson's Basics: What You Need to Know
This program offers an introduction and basic overview of Parkinson's disease (PD).
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 31/07/2026
"I was diagnosed in 2002 at the young age of 25," says Ian. "Today I'm 48. I've been battling Parkinson's disease for 23 years." "PD GENEration opened a door to knowledge I never had before." 📖 Read Ian's PD Story: Parkinson.org/living-with-parkinsons/stories/ian-rodriguez
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 30/07/2026
Did you know that dizziness and vertigo can be common in Parkinson's disease? 😵‍💫 Learn the causes and treatments for these PD symptoms: Parkinson.org/understanding-parkinsons/non-movement-symptoms/vertigo
parkinson.org
Vertigo, Dizziness & Low Blood Pressure
Learn about vertigo & dizziness as they pertain to Parkinson's disease - two commonly reported symptoms.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 29/07/2026
📢 Today, advocates across the country are urging Congress to protect medical research. A proposed federal rule could disrupt grants and clinical trials, putting years of progress at risk. Ask your lawmakers to urge the Administration to withdraw it: Policy.Parkinson.org/campaign/OMBRule/
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 29/07/2026
🎥 Watch this short video for insights on what all Parkinson's caregivers need to know: www.youtube.com/watch?v=OZInj5D79jY
youtube.com
Parkinson's Disease Caregiving: What Every Care Partner Needs to Know
YouTube video by Parkinson's Foundation
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 28/07/2026
It's important to remember you are still who you were before your diagnosis. While Parkinson’s might change your life, it doesn’t define you. 🩵 Know that we're here to help as you navigate life with PD: Parkinson.org/Resources
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 28/07/2026
✈️ Check out these eight tips for traveling with Parkinson’s disease: Parkinson.org/blog/tips/traveling-tips
parkinson.org
8 Tips for Traveling with Parkinson’s
For many, living with Parkinson’s disease (PD) makes it harder to leave the house, let alone travel.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 23/07/2026
Join the Parkinson's Advocacy Network to receive the latest PD policy news and opportunities for action! ➡️ policy.parkinson.org
policy.parkinson.org
Parkinson's Foundation Advocacy Network
Check out the Parkinson's Foundation Advocacy Center for actions you can take today to improve the lives of people with Parkinson’s and their loved ones and change the trajectory of Parkinson’s in the...
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 22/07/2026
More than 110,000 veterans with Parkinson’s disease receive care through the U.S. Department of Veterans Affairs. We're here to help veterans and their loved ones live well with PD. 🤝 o find resources tailored to the veteran community, visit: Parkinson.org/Veterans
parkinson.org
Veterans & Parkinson's
More than 110,000 veterans with Parkinson's disease receive care through the U.S. Department of Veterans Affairs.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 22/07/2026
It’s World Brain Day! Did you know that Parkinson’s is the fastest growing neurodegenerative disease in the world? ⏱️ Learn more about the disease already affecting more than 10 million people across the globe: Parkinson.org/understanding-parkinsons
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 20/07/2026
Parkinson’s disease can cause attention, memory, language and problem-solving difficulties, sometimes appearing at diagnosis and progressing slowly. Learn about managing these PD symptoms: Parkinson.org/understanding-parkinsons/non-movement-symptoms/cognitive
parkinson.org
Cognitive Changes
Brain changes that lead to motor symptoms can also result in slowness in memory and thinking.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 16/07/2026
Have a Parkinson’s appointment coming up? 🗓️ Start preparing at least 2 weeks in advance to make the most of it. This gives you time to reflect on your symptoms, goals, and concerns! Use this worksheet to help you prepare: Parkinson.org/library/fact-sheets/prepare-parkinsons-appointment
parkinson.org
Steps to Prepare for a Parkinson's Appointment
Start preparing at least two weeks before your next Parkinson's disease (PD) appointment so you're ready to talk about what matters most to you.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 16/07/2026
Caring for a loved one with Parkinson’s disease requires attention to your own physical, mental and emotional health. 🩵 Learn the signs of caregiver strain and burnout, and how to address them: Parkinson.org/resources-support/carepartners/caring-for-self
parkinson.org
Caring for the Care Partner
Find the balance between caring for a loved one with Parkinson's disease and caring for the care partner.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 15/07/2026
Explore apps and other tech tools that can help you track symptoms, stay on schedule with medications, try new exercises, and share information with care partners or your care team 📱➡️ Parkinson.org/living-with-parkinsons/management/tech-tools
parkinson.org
Tech Tools for Daily Living
Breadcrumb Home Living with Parkinson's Management & Lifestyle Breadcrumb Home Living with Parkinson's Management & Lifestyle Tech Tools for Daily Living Using technology to help manage health is becoming more common for tracking chronic conditions. For...
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 15/07/2026
Through Parkinson’s Research Ventures, we believe we’ll deliver the next new treatment for people with Parkinson’s in years, not decades. 🔬 Learn about the Parkinson's Foundation's investment in drug discovery and development: Parkinson.org/advancing-research/parkinsons-drug-discovery
parkinson.org
Drug Discovery and Development
The Parkinson's Foundation formed a strategic partnership with Parkinson's UK to jointly invest in drug discovery and development.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 13/07/2026
For many, living with Parkinson’s disease can make it harder to leave the house on a daily basis, let alone travel to a new time zone. However, as with any trip, planning and preparing can help. ✈️ Check out these eight tips for traveling with Parkinson’s: Parkinson.org/blog/tips/traveling-tips
parkinson.org
8 Tips for Traveling with Parkinson's
For many, living with Parkinson's disease (PD) makes it harder to leave the house, let alone travel.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 13/07/2026
Were you or a loved one recently diagnosed with Parkinson’s disease? Know that you’re not alone. 🩵 Find answers to the most frequently asked questions in this free guide: Parkinson.org/library/books/faq
parkinson.org
Frequently Asked Questions: A Guide to Parkinson's Disease
This book answers some of the most frequently asked questions about Parkinson's disease (PD).
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 10/07/2026
Sleep challenges affect more than 75% of people with Parkinson’s, including difficulty falling asleep, restless legs and acting out dreams. 💤 Learn tips for managing this PD symptom: Parkinson.org/understanding-parkinsons/non-movement-symptoms/sleep-disorders
parkinson.org
Sleep Disorders
More than 75% of people with Parkinson's disease report sleep disorders as a symptom.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 06/07/2026
Learn how to get involved with Parkinson's disease research 🔬 ➡️ Parkinson.org/library/fact-sheets/research
parkinson.org
Getting Involved in Research
Learn more about the Parkinson's disease research process and how to get involved.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 04/07/2026
Happy 4th of July from the Parkinson’s Foundation! 🇺🇸
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 30/06/2026
This free e-book is a practical guide to understanding how Parkinson's disease and other factors can affect cognition. 🧠 It includes treatment options and provides tips and strategies for managing cognitive challenges: Parkinson.org/library/books/cognition
parkinson.org
Cognition: A Guide to Thinking Changes in Parkinson's Disease
This book is a practical guide to understanding how Parkinson's disease and other factors can affect cognition.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 29/06/2026
Meet our three new Board members and our five new members of the People with Parkinson's Advisory Council! We're excited to welcome these dedicated leaders, whose experience and passion will help strengthen our work for the Parkinson's community: Parkinson.org/about-us/news/2026-new-board-members
parkinson.org
Parkinson's Foundation Announces Three New Board Members
NEW YORK & MIAMI (June 23, 2026) -- The Parkinson's Foundation appointed three new members to its board of directors, as well as five new members to its People with Parkinson's Advisory Council (PPAC).
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 26/06/2026
Looking to explore surgical treatment options for Parkinson's disease? 🧠 Learn about advanced treatment options like deep brain stimulation (DBS) and Duopa™ by visiting: Parkinson.org/living-with-parkinsons/treatment/surgical-treatment-options
parkinson.org
Surgical Treatment Options
Explore surgical treatment options that you may discuss with your Parkinson's disease specialist.
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The Parkinson's Foundation @parkinsondotorg.bsky.social · 25/06/2026
LGBTQ+ members of the Parkinson’s disease community are more likely to face unique challenges when seeking care and treatment. ➡️ Read on to learn how PD affects the LGBTQ+ community and explore our tips for living well: Parkinson.org/blog/awareness/6-tips-lgbtq
parkinson.org
6 Essential Tips for the LGBTQ+ Parkinson's Community
Learn how Parkinson's disease affects the LGBTQ+ community and tips for living well.
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