Sign in

Esther

@shakinginmyboots.bsky.social
279 followers 294 following 154 posts

Wife, mom, Activist YOPD Ambassador Parkinson’s Foundation Board Member. Past life hospital Quality Director MSHA, CPHQ El Paso, TX 🏠 linktr.ee/elabibkiyarash

PostsRepliesMedia
Esther @shakinginmyboots.bsky.social · 07/03/2025
Since I can’t seem to coax Gavin over here I will direct you to his blog. The closest thing to Parky Yoda I have met #parkinsons yourmove.fitness/blog/f/up-si...
yourmove.fitness
Up-side to Down
Having now spent almost 1/3 of my life with Parkinson’s, I feel like I’m finally understanding how to turn this mutha’ ***** on its head. Well, sometimes anyway.
051
Esther @shakinginmyboots.bsky.social · 01/03/2025
youtube.com/watch?v=_dD5... Still my favorite video on vibrotactile😆 #parkinsons
youtube.com
000
Esther @shakinginmyboots.bsky.social · 27/02/2025
Ellen Bookman , a person with Parkinson’s,writes a beautiful letter to her daughter www.keepfngoing.com/post/a-lette...
keepfngoing.com
A Letter to my daughter.
Parkinson's is a challenging journey, both for me and for those who love me..
150
Reposted by Esther
Kevin J. Black @kjbinstl.bsky.social · 21/02/2025
#NIH cuts by #DOGE
011
Reposted by Esther
Alberto Espay @albertoespay.bsky.social · 18/02/2025
A man genetically destined to develop early Alzheimer's… doesn’t. Why? A Nature study explores possible explanations: tau pathology limited to the occipital region, significant heat exposure, and a proteomic profile rich in heat shock proteins. Anything else? (1/4) 🔗 www.nature.com/articles/s41...
nature.com
Longitudinal analysis of a dominantly inherited Alzheimer disease mutation carrier protected from dementia - Nature Medicine
A rare case of asymptomatic dominantly inherited Alzheimer’s reveals confined tau pathology and unique proteomic features, highlighting potential resilience mechanisms decades beyond expected onset.
1104
Esther @shakinginmyboots.bsky.social · 15/02/2025
I can handle my own spirituality thx. Go do Health stuff plz🤨 #hhs #parkinsons
020
Reposted by Esther
AltCityHall @altcityhall.altgov.info · 13/02/2025
Critical:
A black and white photo of sand partially covering gears, with the critical instructions “Be sand in the gears for the next four years.”
110720
Esther @shakinginmyboots.bsky.social · 14/02/2025
Happy Valentine’s Day! Check out the first episode of the newest season of the Young Onst Parkinson’s Network’s Podcast “Living Well Starts Here” where Melissa Livingston and me talk about sex, intimacy & relationships with #parkinsonsdisease #yopd yopn.podbean.com/e/navigating...
030
Reposted by Esther
The Parkinson's Foundation @parkinsondotorg.bsky.social · 14/02/2025
Join us online next Wednesday for a webinar on Impulse Control Disorders: Understanding & Managing the Challenges. This webinar will explore what causes Impulse Control Disorders, how to manage them, & practical tools to support those impacted. Register for free: Parkinson.org/events/2025/Feb19WW
parkinson.org
Impulse Control Disorders: Understanding and Managing the Challenges
This webinar will explore what causes ICDs, how to manage them, and practical tools to support those impacted.
031
Reposted by Esther
The Parkinson's Foundation @parkinsondotorg.bsky.social · 12/02/2025
Check out our latest podcast episode, featuring Melissa Grassia Chisholm, MS, CCC-SLP. In this episode, she explains how speech & swallowing problems can develop in people with Parkinson's & discusses diagnostic procedures, therapies, and programs that can help improve speech & swallowing. (1/2)
111
Esther @shakinginmyboots.bsky.social · 09/02/2025
For someone who generally has a lot to say I am at a loss for words. Here’s some flowers #parkinsonsdisease
010
Reposted by Esther
The Parkinson's Foundation @parkinsondotorg.bsky.social · 06/02/2025
Rebecca Wallings, PhD, is leveraging her Parkinson’s Foundation Launch Award to investigate how aging impairs a type of immune cell outside the brain — & how this impairment impacts the development of PD. 🔬 Learn more about Dr. Wallings & her research: Parkinson.org/blog/research/meet-dr-wallings
parkinson.org
Meet a Researcher Studying How Boosting Immune Cells Could Lead to a Preventative Parkinson’s Therapy
There is a lot to know about Parkinson's disease. Learn about symptoms, how it is diagnosed and what treatment options are available.
041
Reposted by Esther
Darby Saxbe @darbysaxbe.bsky.social · 04/02/2025
🚨BREAKING. From a program officer at the National Science Foundation, a list of keywords that can cause a grant to be pulled. I will be sharing screenshots of these keywords along with a decision tree. Please share widely. This is a crisis for academic freedom & science.
list of banned keywords
12652769315654
Esther @shakinginmyboots.bsky.social · 28/01/2025
“The Good Addiction “ open.substack.com/pub/shakingi...
open.substack.com
Inbox | Substack
010
Esther @shakinginmyboots.bsky.social · 26/01/2025
www.theguardian.com/society/2025...
theguardian.com
The mind/body revolution: how the division between ‘mental’ and ‘physical’ illness fails us all
New research shows western medicine’s traditional split between brain and body is, in fact, far from clear cut – and could provide a breakthrough for many complex conditions
110
Reposted by Esther
Alberto Espay @albertoespay.bsky.social · 26/01/2025
Here is a guide to what a + α-synuclein seed amplification assay (αSyn-SAA) means for Parkinson’s. ✅ Confirms a clinical diagnosis ❌ Cannot diagnose asymptomatic people ❌ Doesn’t define PD biologically ❌ Can’t stage, predict progression, or monitor treatment (1/2) www.prd-journal.com/article/S135...
prd-journal.com
The α-synuclein seed amplification assay: Interpreting a test of Parkinson's pathology
The α-synuclein seed amplification assay (αSyn-SAA) sensitively detects Lewy pathology, the amyloid state of α-synuclein, in the cerebrospinal fluid (CSF) of patients with Parkinson's disease (PD). Th...
121
Esther @shakinginmyboots.bsky.social · 25/01/2025
My thoughts on Anger and Parkinson’s open.substack.com/pub/shakingi...
open.substack.com
Inbox | Substack
010
Esther @shakinginmyboots.bsky.social · 24/01/2025
Thank you @drisubramanian.bsky.social for raising awareness on the stigma we face as people with Parkinson’s. As always you are a shining example of what collaboration is🌷 @alliesiggy.bsky.social as always 👏👏
010
Reposted by Esther
Jane Liebschutz, MD MPH (she/her) @liebschutz.bsky.social · 22/01/2025
All NIH study sections canceled indefinitely. This will halt science and devastate research budgets in universities.
583121984962
Reposted by Esther
Becca Miller PhD @rebeccamil.bsky.social · 23/01/2025
#yopd folks in america - the shutdown of NIH grant reviewing is going to have a major impact on Parkinson's disease research to mention just one disease among, well, all of them. yikes. #nih #parkinsons
074
Esther @shakinginmyboots.bsky.social · 23/01/2025
Let me know when Amazon acquires DHHS
000
Esther @shakinginmyboots.bsky.social · 23/01/2025
If history has taught us anything it is that the sick & disabled will be targeted first
010
Esther @shakinginmyboots.bsky.social · 22/01/2025
I had my Mom enrolled in a monthly flower subscription service. I cancelled it as she has passed. They sent me a free bouquet and condolences. The Bouqs is my go to flower service. Direct from growers. Highly recommend
030
Esther @shakinginmyboots.bsky.social · 22/01/2025
When I was diagnosed with Young Onset Parkinson’s I was so confident I was going to try ALL the things. Find some overlooked discovery or shortcut. Now I try & focus on learning about the disease and being grateful for what I have. It’s like a weight has been lifted off my shoulders
040
Esther @shakinginmyboots.bsky.social · 21/01/2025
Part of my frustration with social media rn is what I call “The Rise of the Device” the constant barage of gizmos and gadgets, jaw dropping videos of fellow Parkies dramatically freed from an array of symptoms. Is this helping? Maybe it’s just me. Good listen: search.app/pCxDK46zfDHG...
search.app
The Dramatic Cure
In recent months, many of us have become familiar with the sense of fear expressing itself in our bodies. We may feel restless or physically exhausted. At times, we may even have trouble catching our ...
100
Esther @shakinginmyboots.bsky.social · 20/01/2025
Deleted my X account. I actually live on the Southern border. The level of misinformation if crazy
110
Esther @shakinginmyboots.bsky.social · 18/01/2025
Crexont Day 1 youtube.com/watch?v=-CGu... please subscribe #parkinsons
youtube.com
000
Reposted by Esther
Elizabeth Peñate @eli10-77.bsky.social · 12/01/2025
I have very good news for Parkinson's patients in El Salvador. Talks will soon begin for the creation of a foundation for Parkinson's patients, of which I will be a part. @shakinginmyboots.bsky.social
121
Esther @shakinginmyboots.bsky.social · 06/01/2025
Pain in Parkinson’s. Get tired of reading studies that’s conclusion is we need more studies or personal care management. There aren’t even enough doctors to do that, especially outside major cities. I appreciate the wirk but I don’t have the luxury of time onlinelibrary.wiley.com/doi/10.1002/...
050
Esther @shakinginmyboots.bsky.social · 05/01/2025
Happy New year! Took a social media break, turned 50, kids back to school Wednesday. Here’s my big Parkinson’s flex #yopd
050
Esther @shakinginmyboots.bsky.social · 10/12/2024
I hope you can join us for the kickoff event to start pre-planning for a different kind of Parkinson’s Awareness Month event. 2025 we ORGANIZE! www.eventbrite.com/e/pd-womens-... #parkinsons
031
Esther @shakinginmyboots.bsky.social · 09/12/2024
PSG was all I hoped it would be and more. The best part was connecting with fellow Parkinson’s advocates that I can learn from🌷😍💝#psg2024
060
Reposted by Esther
Prof Malú Gámez Tansey @malutansey.bsky.social · 03/12/2024
The final #WPC Research Spotlight of 2024 is Tue 12/3 at 11AM ET w our newly minted PhD Dr Janna Jernigan to talk about Inflammation and Parkinson's! Registration is FREE at web.cvent.com/survey/c0524... You can read her blog on inflammation beforehand at www.worldpdcongress.org/home/2024/11...
web.cvent.com
WPC Research Spotlight Series 2024
083
Esther @shakinginmyboots.bsky.social · 29/11/2024
on World Movement Disorders Day I claim my space to live free of stigma. The fact that I can still do the things I want is something I’m grateful for #MoveDisorder
1131
Reposted by Esther
AJ Lees @ajlees.bsky.social · 29/11/2024
The study of Parkinson’s disease dream content has always been of great interest to me. Interested to hear of remebrances by the birdsong community. Personal accounts please and not things like auguries or restored movement in dreams that are in our literature
042
Esther @shakinginmyboots.bsky.social · 29/11/2024
What doesn’t kill me makes me stronger…and funnier 😂 #parkinsons #yopd #positivevibes
040
Esther @shakinginmyboots.bsky.social · 29/11/2024
Nov 29 is World Movement Disorder Day and IMDS is finally embracing patient engagement with the theme of stigma. This is what change looks like🗣️. Share your story using #movedisorder #nothingaboutuswithoutus youtu.be/dBLGNVEaRZc?...
youtu.be
World Movement Disorders Day 2024 - Dr. Fung
YouTube video by International Parkinson and Movement Disorder Society
021
Esther @shakinginmyboots.bsky.social · 28/11/2024
Been something on my mindl lately about debate and honesty in Parkinson’s circles. Why is anything outside unbridled support considered criticism? What are we afraid of? If something feels wrong why don’t we speak up? I’m just going to park this here and re-visit it in 6 months
120
Reposted by Esther
The Parkinson's Foundation @parkinsondotorg.bsky.social · 20/11/2024
Learn about PRODUODOPA (VYALEV) in this thread: For more information, check out our latest Science News article: buff.ly/40X7eLl #Parkinsons #ParkinsonsDisease
151
Reposted by Esther
The Parkinson's Foundation @parkinsondotorg.bsky.social · 22/11/2024
We understand that many care partners work or volunteer outside of their caregiving role. 💼 🏠 Today for Caregivers Month, explore our tips for finding balance between these responsibilities: Parkinson.org/resources-support/carepartners/caring-for-self/work
parkinson.org
Balancing Work & Caregiving
Learn tips to balancing work & caregiving for your loved one.
031
Reposted by Esther
The Parkinson's Foundation @parkinsondotorg.bsky.social · 26/11/2024
Every year, the Parkinson’s Foundation Helpline receives calls from the PD community looking for advice when it comes to navigating the holidays. So, we put our specialists’ top recommendations in this article: Parkinson.org/blogs/tips/parkinsons-holiday-guide
parkinson.org
Your Guide to the Holidays with Parkinson’s
By thinking ahead about possible stressors, this article is designed to help you plan and prepare to enjoy your holiday season while best managing PD symptoms.
052
Reposted by Esther
The Parkinson's Foundation @parkinsondotorg.bsky.social · 19/11/2024
We love blue at the Parkinson's Foundation, so hello BLUEsky! 🩵👋 Follow us here to stay connected to the Parkinson's community, learn about research updates, receive PD resources and more! Parkinson.org
parkinson.org
Homepage
The Parkinson’s Foundation makes life better for people with Parkinson’s disease (PD) by improving care and advancing research toward a cure.
2416
Esther @shakinginmyboots.bsky.social · 27/11/2024
Please please complete this survey. We need you to speak up 🗣️
081
Esther @shakinginmyboots.bsky.social · 27/11/2024
Sometimes the best way to heal is to immerse yourself in nature
050
Reposted by Esther
The Parkinson's Foundation @parkinsondotorg.bsky.social · 26/11/2024
Earlier this month, CBS Sunday Morning aired a segment about a Parkinson's Foundation Community Grant recipient, Up ENDing Parkinson's! Check it out:
youtube.com
Combating Parkinson's with rock climbing
There is currently no cure for Parkinson's Disease. But some with Parkinson's are finding that an unusual therapy – rock climbing – is helping them improve t...
041
Esther @shakinginmyboots.bsky.social · 26/11/2024
Young Onset #ParkinsonsDisease is a distinct and separate condition than the one people diagnosed later in life experience. Symptoms, course of progression, medication side effects, etc. Why are we treated the same? #yopd
280
Esther @shakinginmyboots.bsky.social · 26/11/2024
Let’s talk about #Parkinsons perks, i’ll go first.. -can leave early from any social gathering by spilling stuff
580
Reposted by Esther
Becca Miller PhD @rebeccamil.bsky.social · 19/11/2024
New article published about importance of hospital changes needed to keep #parkinsons folks safe in the hospital - great work and kudos to @parkinsondotorg.bsky.social and all their advocacy around this for the #pdcommunity www.sciencedirect.com/science/arti...
sciencedirect.com
Protecting Parkinson's Patients: Hospital Care Standards to Avoid Preventable Harm
2152