Kristin @wecanthrivepd.bsky.social · 02/04/2025Agreed. They are all about survival of the fittest. Anybody with vulnerabilities can go away and die. They feel nothing about that. Sociopaths. 100
Kristin @wecanthrivepd.bsky.social · 02/04/2025www.wired.com/story/doctor...wired.comDoctor Behind Award-Winning Parkinson’s Research Among Scientists Purged From NIHLeading scientists at the National Institutes of Health, the US’s leading medical research agency, were swept up Tuesday in the Trump administration’s latest firing blitz. 140
Reposted by KristinKristin @wecanthrivepd.bsky.social · 14/11/2024I want to share my starter pack of Parkinson's Peeps! Please write me if you'd like to be added. go.bsky.app/UPQMXtK 574
Kristin @wecanthrivepd.bsky.social · 26/01/2025Also, #Parkinsonsdisease research. www.ninds.nih.gov/current-rese...ninds.nih.govFocus On Parkinson's Disease ResearchParkinson’s disease (PD) is a chronic, progressive movement disorder that affects the lives of between 500,000 and 1 million Americans. People with PD experience changes in movement, including slownes... 020
Kristin @wecanthrivepd.bsky.social · 26/01/2025www.ninds.nih.gov/current-rese...ninds.nih.govFocus On Parkinson's Disease ResearchParkinson’s disease (PD) is a chronic, progressive movement disorder that affects the lives of between 500,000 and 1 million Americans. People with PD experience changes in movement, including slownes... 000
Reposted by KristinJon Cooper @joncooper-us.bsky.social · 26/01/2025Scientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on ALL purchasing — including supplies for their ongoing research to treat cancer, Alzheimer’s, heart disease and many infectious diseases.cnn.comScientists at NIH can’t purchase supplies for their studies after Trump administration pauses outside communications | CNNScientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on all purchasing, including supplies f... 1591719845
Kristin @wecanthrivepd.bsky.social · 19/01/2025Our apologies… first, Trump screwed up our country, now he’s going to screw up the world. 100
Kristin @wecanthrivepd.bsky.social · 15/01/2025www.nytimes.com/2025/01/11/o...nytimes.comOpinion | The Terrifying Realization That an Unresponsive Patient Is Still in There (Gift Article)After brain injury, some patients are no longer able to respond to the world around them. Is this really the case? 071
Kristin @wecanthrivepd.bsky.social · 12/01/2025Very nice piece, Carla. I can relate to too much of it! 😊 110
Kristin @wecanthrivepd.bsky.social · 12/01/2025Go to Reddit and find the Bluesky subReddit. Ask your question there, there are lots of people there that know about these things. Actually, I can link it for you here. www.reddit.com/r/BlueskySoc...reddit.comBlueskyBluesky Social is a microblogging social platform being developed in conjunction with the decentralized AT Protocol. Previously invite-only, the flagship Beta app went public in February 2024. All are... 000
Reposted by KristinThe Parkinson's Foundation @parkinsondotorg.bsky.social · 10/01/2025Join us online next Wednesday for Empowerment Through Movement! 💪 This webinar will be focused on practical, evidence-based strategies to integrate movement into your daily life. Register for free: Parkinson.org/events/2025/Jan15WWparkinson.orgEmpowerment Through MovementJoin us for an empowering session focused on practical, evidence-based strategies to integrate movement into your daily life. 041
Reposted by KristinJames Boxall 🇨🇦🍁 @jamesgis.bsky.social · 04/01/2025This warms my heart, and I'm sure everyone in the Parkinson's community. An inspiration. And bonus, a Canadian :-) yes! @mjfoxfoundation.bsky.social 0121
Kristin @wecanthrivepd.bsky.social · 05/01/2025This is so well deserved. No one has used his or her celebrity better than Michael J. Fox has. Thank you, Michael, from all of us with #Parkinsons. We love you. ❤️❤️❤️ bsky.app/profile/moll... 2112
Kristin @wecanthrivepd.bsky.social · 31/12/2024Yes, I loved the idea of sitting down with the patient with a neurologist, psychologist, and physical therapist, and as a team working on a plan. 020
Kristin @wecanthrivepd.bsky.social · 30/12/2024Interesting #TEDtalk by a MDS about the interaction of mind and body. #Parkinsons #MovementDisorders youtu.be/XtSNBqC1z18youtu.beIt’s All in Your Head: Challenging Dualism in Health Care | Dr. Sarah Lidstone | TEDxUofTYouTube video by TEDx Talks 230
Reposted by KristinAnton Hur @antonhur.com · 11/12/20245th person to be cured of HIV “Today, researchers announced the Dusseldorf patient still has no detectable virus in his body, even after stopping his HIV medication four years ago.”abcnews.go.com5th person confirmed to be cured of HIVResearchers are announcing that a 53-year-old man in Germany has been cured of HIV. 1417527725
Kristin @wecanthrivepd.bsky.social · 11/12/2024And I should add that, even though everybody is incognito, everybody seems to be kind and even funny. 000
Kristin @wecanthrivepd.bsky.social · 11/12/2024Yes, take a look! :-) And everybody uses fake names there, so it’s all very incognito. 😎 020
Kristin @wecanthrivepd.bsky.social · 11/12/2024I've been spending time in the #Parkinsons community on #Reddit. It's a great place to ask questions and give answers. Enjoying the more active engagement. (Plus joining other communities, too, like my city and state, and TV shows I like, lol.) 030
Kristin @wecanthrivepd.bsky.social · 11/12/2024Oh, thank you! I've never heard of that before. Sounds fun! 🎭 000
Reposted by KristinMichael Okun @michaelokun.bsky.social · 07/12/2024Why not use cycling wheelchairs for Parkinson's and beyond? Check out this video by Okada and colleagues in the Movement Disorders Clinical Practice. No person with Parkinson's should ever be 'left behind.' Love the added exercise component. movementdisorders.onlinelibrary.wiley.com/doi/10.1002/... 3154
Kristin @wecanthrivepd.bsky.social · 07/12/2024Can’t read the article because of the paywall. If you can screenshot relevant excerpts, that would be helpful. 000
Kristin @wecanthrivepd.bsky.social · 07/12/2024That’s great. Is it like a Theracycle? That is, are the pedals electrically powered? 010
Reposted by Kristinhijade2madre.bsky.social @hijade2madre.bsky.social · 06/12/2024Disabled people: In case of emergency YOU SHOULD HAVE MORE THAN 1 BAG PREPARED 👝 Bedside bag - items you need if you are trapped in or near your bed. Meds, supplies, snacks, water. 🎒Carry on bag- items you need to keep on your person. Wallet, meds, med supplies. 614851
Kristin @wecanthrivepd.bsky.social · 07/12/2024Thank you! Buying it as a gift for myself and for a friend. 🎁 110
Reposted by KristinMichael Okun @michaelokun.bsky.social · 06/12/2024It is such an honor to have two of my best friends in the world as literal giants in the Parkinson’s field. Jumping and with a cowboy hat I still can’t measure up to their brilliance. Here is to a new roadmap for Parkinson. 0172
Kristin @wecanthrivepd.bsky.social · 06/12/2024So true. And he has moved so fast with it. Really impressive. 120
Kristin @wecanthrivepd.bsky.social · 06/12/2024It really is amazing. So if you keep wearing the watch with it turned on, it doesn’t continue to work indefinitely? But works for a while? 010
Kristin @wecanthrivepd.bsky.social · 06/12/2024Ellie @pdmama.bsky.social just saw the video you posted to YouTube about the Beech Band. Is this for real? Do the effects persist? Pretty amazing. youtu.be/D1ck6k3mTJM?...youtu.beTesting the @beechbandon peak dose aggressive #parkinsons #dyskinaesia #parkinsonsdisease #yopdYouTube video by PD Mama 420
Kristin @wecanthrivepd.bsky.social · 06/12/2024Is Carl Beech on here? I don’t think he is yet. I just saw this amazing video he posted to FB of the Beech Band which he is developing. It helps with dyskinesia & speech & more. #Parkinsons #ParkinsonsDisease www.facebook.com/share/r/15JX...facebook.comRedirecting... 120
Reposted by KristinMichael Okun @michaelokun.bsky.social · 05/12/2024Why is there a crisis approaching for Parkinson's disease? Well, have a look at the formula. The number of cases is exploding and the costs are skyrocketing. Pair that with a decreasing number of available specialists. Key note this morning for the combined Parkinson Foundation/PSG meeting, 3124
Reposted by KristinThe Parkinson's Foundation @parkinsondotorg.bsky.social · 04/12/2024It's Older Driver Safety Awareness Week! 🚘 The ability to drive with Parkinson's depends on a one’s specific symptoms & the presence of other age-related changes. We're here to help you evaluate your driving ability: Parkinson.org/living-with-parkinsons/management/activities-daily-living/driving 142
Reposted by KristinFlyaway (she/her) @flyaway.bsky.social · 02/12/2024Discover Your Bluesky Digital Persona – Let our AI analyze your posts, roast your takes, and reveal what your posting history says about you (spoiler: probably too much time online 🤓). Blueskyroast.com ~~~~~ I don't think one Wordle post a day is that heavy, but I'll accept the rest of my roast 😆 111
Reposted by KristinThe Science of Parkinson's @scienceofpd.bsky.social · 23/11/2024Mandatory listening: A fascinating & wonderful 'Stimulating Brains' podcast episode from @andreashorn.org interviewing Mark McAuley & Susan Boehnke on patient-led #Parkinsons research, patient-centered care & neuroscience education stimulatingbrains.org/63-mark-mcau... 2144
Reposted by KristinStimulating Brains @stimulatingbrains.org · 20/11/2024Mark McAuley is a successful CEO but also has Parkinson's Disease and DBS. To learn more about it, he started a research project in Susan Boehnke's course at Queens University. A fantastic journey about patient-led research and fantastic science education…! stimulatingbrains.org/63-mark-mcau... 165
Reposted by KristinAndreas Horn @andreashorn.org · 20/11/2024This is a really special episode about a group of fantastic people – patient, students, educators – that carried out a really interesting research project about DBS – using fNIRS and gait measurements! Haven't heard of anything of the kind before – truly inspiring! Tune in below 👇👇 095
Reposted by KristinMary Elizabeth Sutherland @meharpist.bsky.social · 21/11/2024This month's issue of @naturehumbehav.bsky.social covers such an important - and under-discussed and researched - topic. For more, see the collection here: www.nature.com/collections/...nature.comMenstruation MattersMenstruation is part of human life, yet we hide it behind stigma and taboos. In this Focus, our authors discuss why menstruation matters. Tackling significant ... 094
Reposted by KristinAbhimanyu Mahajan @amahajanmd.bsky.social · 21/11/2024Interested in migrating over and following people who treat and study movement disorders but not sure where to start? Link (not exhaustive): go.bsky.app/F4ZDiMh 055