iiinova — where your digital self keeps evolving

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Hey all, it's a bad time to go without healthcare needs! Today is the 1st Disposition Hearing for the hypnotist on 20 felony sexual assaults + the new felony SA charge (not sure if they will arraign on that today). I also need to file an amended report for my case w/new evidence. Might erase SOL!

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ALowerhouse @vertigogrl.bsky.social · 16/10/2026

In a very similar situation. It’s very scary. Shows how fragile our support networks are at the best of times and how for many they are non-existent. I wish it were different. 🫂💙

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ALowerhouse @vertigogrl.bsky.social · 15/10/2026

It absolutely makes no sense! I’ve had many MRIs and never been examined for piercings. It feels like just a way to try to make this harder for you in hopes you’ll do things their way. And their way is ableist and refuses to acknowledge that airborne diseases exist. I’m so sorry!! 😡

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Emily Johnson @emilyrj.bsky.social · 14/10/2026

In 3 months, I’ll get another major neurosurgery: Craniocervical Fusion, Extradural Decompression of the LLCT/MTH, Bilateral C1 Tubercle Resection This procedure will be out-of-state, costly and have a long recovery Please donate and boost! Ty www.gofundme.com/f/help-emily...

gofundme.com

Donate to We've got your back! Get Emily spine and brain care, organized by Jess Smolinski

*PLEASE SHARE even if you can't donate* Hello, everyone! This f… Jess Smolinski needs your support for We've got your back! Get Emily spine and brain care

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pumpkin @pumpkinstars.bsky.social · 13/10/2026

yay it’s happening! check out their quote post to see the donate buttons they will surely need something when they get here and moving is expensive on top of staying alive while chronically ill!

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pumpkin @pumpkinstars.bsky.social · 10/10/2026

keep aid circulating please final push to come here and last minute expenses came up and needs. any donations help! please share / donate if able!

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Elsa Sjunneson, Order of the Bat @snarkbat.bsky.social · 06/10/2026

It’s officially book day! Dear Blind Lady is OUT! 291 pages of as many questions as I could answer. I’m grateful to all my contributors, but most especially Alice Wong who wrote the section on how to work with PCA’s. Buy the book, come to an event, fight ableism.

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Maggie Tokuda-Hall @maggietokudahall.bsky.social · 04/10/2026

Here's the thing: most books that are banned don't make the lists that get circulated each #BannedBooksWeek. If you're a book creator and your book gets banned, please respond to this post with your book and its buy link on bookshop.org. That way we can support indies and banned books 💛

bookshop.org

Bookshop.org: Buy books online. Support local bookstores.

A better way to buy books online. Every purchase financially supports local independent bookstores.

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pumpkin @pumpkinstars.bsky.social · 22/09/2026

eee I just realized like one minute ago JUST realized that @ommerdraven.unitedsyncretic.org can carve pumpkins maybe when they get here!!! So my basically bedridden self might see an actual regular size pumpkin in October again!!! 👇 share and donate below in these final weeks before they come!!

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Matthew Cortland (they) @matthewcort.land · 20/09/2026

We're in an unprecedented public health emergency that's disproportionately harming disabled people. What can we learn from public opinion data about how to advocate for a public health that protects everyone, prioritizes those at greatest risk, and respects our rights? Join me 9/21 @ 07:30 PM ET ⤵️

us05web.zoom.us

Welcome! You are invited to join a webinar: The Public Health Emergency. After registering, you will receive a confirmation email about joining the webinar.

We're living through an unprecedented public health emergency that is disproportionately harming disabled Americans. What can we learn from public opinion data about how to advocate for a public healt...

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Anna Holmes @annabookwriter.bsky.social · 15/09/2026

In a tough spot. We’re doing all we can to get to the next handhold, but my body has decided to act like a petulant expensive child. Things I need (COVID shot, MCAS friendly food) are taking a backseat to visa fees. I know things are hard all over, but so appreciate any help. ko-fi.com/elyssiabooks

ko-fi.com

Support Anna and Jason

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ALowerhouse @vertigogrl.bsky.social · 13/09/2026

The fragrance-free Honest conditioning detangler has helped me. But it had to be used on wet hair which is a downside when it can be hard to wash hair with fatigue.

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pumpkin @pumpkinstars.bsky.social · 12/09/2026

It’s so exciting that two trans people I care about get to leave a red state and live with me in California! If you can please share this post and donate if able, it will help Draven + their trans kid meet their survival needs in this final stretch before they come here.

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Karrie @karriehiggins.bsky.social · 09/09/2026

I could really use help with groceries, legal / court fees, and cat stuff, too. Also my hearing aids are beyond repair now. They were old. I got them with a grant from the Rauschenberg Foundation and cannot afford new ones. Scared about that for court. $4500 specialty aid (NO I cannot use Air Pods).

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Kristin Houlihan, Writer @kristinwrites.bsky.social · 07/09/2026

National day dot com tells me it’s National buy a #book day so I have one for you:

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Kelly @broadwaybabyto.bsky.social · 06/09/2026

With the increase in food and medication recalls, it’s easy to feel a loss of control. One small thing you can do to make a huge difference is to wear a mask. It keeps you & your community safe. It shows solidarity with disabled people. It’s a form of resistance. It’s community care.

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Karrie @karriehiggins.bsky.social · 04/09/2026

This is $1,168 away from a milestone that would allow me to catch up on some important care! Please keep sharing and thank you so much! Again, I cannot access Help Hope Live funds without medical receipts. Also could use help with court fees, groceries & ride costs to appointments!

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Kelly @broadwaybabyto.bsky.social · 01/09/2026

I wrote this article nearly two years ago but it’s just as relevant today. I wish every healthcare worker would read it and realize patients deserve protection. They deserve to be safe in the place they go to get care. They deserve masks in healthcare:

disabledginger.com

A Plea to Maskless Healthcare Workers from Vulnerable Patients

If you see a mask - wear a mask. Better yet - wear a mask all the time and show us you understand that we're still IN a pandemic. We are depending on you to keep us safe - please don't betray that.

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Stickman Communications @stickmancomms.bsky.social · 29/08/2026

I now have 112 downloadable products on my webshop! Today's batch of downloadable products include quite a few mental health/mental illness related cards. Below are photos of the physical versions of some of the card downloads I added today. www.stickmancommunications.co.uk/mental-healt...

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ALowerhouse @vertigogrl.bsky.social · 21/08/2026

I understand that feeling too well. I’m so sorry. 😔

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ALowerhouse @vertigogrl.bsky.social · 21/08/2026

This one is hard. There are so many options when you’re not chronically ill. But illness can interfere with coping. I can’t walk it out, talk it out, or even cry it out without making my health worse! I don’t have answers but send this in solidarity & in hope that others have ideas. 💙

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ALowerhouse @vertigogrl.bsky.social · 20/08/2026

This illness is so mean. It makes every part of life so hard. I hope the day we finally are able to move forward and make a purchase that it will work out ok. 🤞

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Stickman Communications @stickmancomms.bsky.social · 20/08/2026

Another batch are now available as downloads as well as physical cards - these 4 are some of my favorites from today. I use the fidget card and the sensory sensitivity card myself, and the grounding technique and eating challenges cards I loved creating. www.stickmancommunications.co.uk/downloadzone

Smiling white woman with blue glasses and hair tied back. Holding up 2 cards in each hand They aren't fully readable as they are pretty small on the photo, but: 1 has a blue border and says about finding eating challenging, 2 has a rainbow border and describes the 54321 grounding technique, 3 is about needing to fidget, and 4 is about sensations that most people fine okay can be extremely painful, exhausting or overwhelming for me.

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ALowerhouse @vertigogrl.bsky.social · 20/08/2026

The same fear has kept me from buying one for so long. A family member got a new mattress and I reacted to it for a year (I never went in their room and they kept the door shut). I know I need to take the leap, but just, can’t. 😔

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#MEAction Network @meactnet.bsky.social · 19/08/2026

You are invited the the Severe ME Artists Project Gallery! We have such a unique and powerful selection of work. What we have included here is just a small random sample of what you will find chosen at random. www.meaction.net/severe-me-ar... #pwME #SevereME #art #SevereMECFS

Three artworks by artists with severe ME featured in the Severe ME Artists Project 2026, showcasing diverse styles and experiences. Three artworks in different styles by Molly December, Faith McCloud, and Cathrine Teigen. Text: "Please see our full gallery of amazing art submitted by those living with severe myalgic encephalomyelitis." A velvet rope like you might find at an artists gallery is under the artworks.

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MeetJess @meetjess.bsky.social · 18/08/2026

I genuinely LOVE my Readimasks and use them for things like scans, the dentist, and my hair appointments. They make these situations so much easier for me💛 If you’ve been meaning to try them, or already do, use MeetJess20 for 20% off! (I earn a small commission from sales) readimask.com

readimask.com

ReadiMask

ReadiMask is the only strapless N95 respirator with a perfect seal to keep you and yours safe. MRI Safe.

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ALowerhouse @vertigogrl.bsky.social · 18/08/2026

They were. They had what I needed, it came fast, very few errors ever and when there were there was a nice person to talk to who fixed it. I miss that. 😭

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ALowerhouse @vertigogrl.bsky.social · 18/08/2026

I miss them sooo much. Have had issues with every Vitacost order and iHerb order since the merge. Missing items, expired items. It’s hard to get resolution. I got an email at one point saying I’d get a refund, but a month later, nothing. So I have to attempt to contact them again. Grrrr!

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Kelly @broadwaybabyto.bsky.social · 11/08/2026

Please don’t offer disabled people “thoughts and prayers”. Don’t offer empty platitudes and inspirational memes. Offer real, tangible help… and then follow through. We lack support for the most basic activities of daily living. That’s where we need help.

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#MEAction Network @meactnet.bsky.social · 09/08/2026

Tonight we light a candle in memory of those we have lost to #SevereME. We mourn. We hold all who are mourning in love. We come together as people with debilitating illness, caregivers, partners, allies, advocates, researchers, & clinicians. #SevereMEday

A single glowing candle with blurred lights in the background honoring those lost to severe ME on August 8.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 08/08/2026

Today is #SevereME day. Please take a look at and share the thread below: help teach people about severe ME.

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Rebel @rebellionista.bsky.social · 08/08/2026

It’s the evening of #SevereMEDay and I am absolutely exhausted. Hopefully I’ve spread some awareness today. Have had some happy tears as some first donations have come in. There is still kindness in the world 💙🥲 #SevereME #MECFS #pwme #NEISvoid #ChronicIllness #ChronicPain gofund.me/097f8b8bc

gofund.me

Donate to Bedridden and in agony, help Emma access treatment, organized by Emma Jane

Hi, I’m Emma. I’m housebound and mostly bedridden with ME/CFS, Fibromyalg… Emma Jane needs your support for Bedridden and in agony, help Emma access treatment

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#MEAction Network @meactnet.bsky.social · 08/08/2026

In honor of #SevereMEday, #MEAction is honored to share the Severe ME Artists Project 2026! Over 100 of you submitted photos, drawings, writing, and videos of your work! We are thrilled to share so many amazing and powerful pieces of artwork. ow.ly/FSXw50ZxJTC #SevereME #art #artist

Empty bench in front of a frame (like you would find at an art gallery)/ Framed sign has text: Severe ME Artists Project 2026. Under the frame is a QR code and website link bit.ly/SMEart2026,

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Collective for Racial and Disability Justice @crdjustice.bsky.social · 06/08/2026

The Olmstead v. Lois Curtis Supreme Court decision is under attack! The U.S. DOJ is aiming to weaken the 1999 decision, which protects disabled people’s right to live in the community rather than institutions. Olmstead must be protected. Community integration is a civil right! Learn more here. [1/7]

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Kelly @broadwaybabyto.bsky.social · 04/08/2026

It’s not your fault you’re disabled. It’s not your fault you’re chronically ill. It’s not your fault you’re living in poverty, lacking health insurance, homeless or unemployed. The billionaire class wants us to believe these are moral failings so they don’t have to help people. We should help.

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Emily Johnson @emilyrj.bsky.social · 03/08/2026

Please boost this! I need many more donations to keep getting neurosurgery care I may need 1-2 more medical trips that this fundraiser currently can’t cover (even with patient flight assistance, even with my SSDI covering as much as possible) I’m worsening and need help

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pumpkin @pumpkinstars.bsky.social · 03/08/2026

if you see pumpkins in the wild i would like to see! or halloween aisles in stores or ooo halloween pajamas! if you let me know / tag me i will be so happy 🥰🎃

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pumpkin @pumpkinstars.bsky.social · 01/08/2026

if anyone wants to get the visible app, made for #MECFS and #LC and similar… i just got it and i have a referral code! if you join with this link we both save $20. i’m still checking it out and will post my review later, and give updates as i go #NEISvoid join.makevisible.com/737a439fc7df37

join.makevisible.com

Visible: You are invited

You just got referred

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Emily Johnson @emilyrj.bsky.social · 31/07/2026

Updated my GoFundMe, please share and comment, need more donations www.gofundme.com/f/help-emily... Highlights: may need more neurosurgery trips and surgeries due to vein issues, stage 3 gastroparesis aka gastric failure, stage dyssynergic defecation, more severe sleep data confirmed

gofundme.com

Donate to We've got your back! Get Emily spine and brain care, organized by Jess Smolinski

*PLEASE SHARE even if you can't donate* Hello, everyone! This f… Jess Smolinski needs your support for We've got your back! Get Emily spine and brain care

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Sam Wise Masks @theailingwitch.bsky.social · 30/07/2026

Did you know the best way to support me is FREE? I just want folks to follow my Patreon & read what I write. I think some of it’s pretty darn good! Supporting my writing encourages me to keep going, & makes me feel like my words matter when I can’t do anything else. patreon.com/TheAilingWitch

patreon.com

The Ailing Witch — Fantasy writer and funky poet.

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s. e. smith @sesmith.lol · 28/07/2026

ALL MY DEAD CATS AND OTHER LOSSES, my book about grief; who is allowed to mourn and how; and why people want to pathologize the experiences that make us human, is available now in print, ebook, and audiobook formats, wherever fine books are sold (or loaned, shoutout to libraries).

bookshop.org

All My Dead Cats and Other Losses: Practicing Good Grief in a Culture That Fears Mourning

"Both a grief book that doesn't read like a clinician's notes and a memoir wrapped around a bigger subject, All My Dead Cats takes grief from the taboo to the universal." — BooklistHave you suffered a...

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Sam Wise Masks @theailingwitch.bsky.social · 24/07/2026

📌 Hey cuties! I’m Sam, a queer & disabled writer who loves fantasy, poetry, knitting, & pastries. Every single thing I write and share is FREE. All I ask is folks check it out and follow me if you like my stuff! This is how I make my joy. I hope it brings you some too. patreon.com/TheAilingWitch

patreon.com

The Ailing Witch — Fantasy writer and funky poet.

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Kelly @broadwaybabyto.bsky.social · 24/07/2026

When I could hide my disabilities, people accepted me. When I couldn’t hide them, they tolerated me. When I became vocal & demanded ableism be addressed, they abandoned me. This is why we need a Disability Pride month. This is why we need advocates. We shouldn’t have to hide.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 21/07/2026

I was thinking not a lot of chatter about the study and I sure do hope we get enough responses. Half a day and 100+ responses, should've known y'all wouldn't let me down! ❤️ There's a good chance we'll have to cut participation swiftly, so if you would like to participate, I hope you will soon!

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Julie Rehmeyer @julierehmeyer.bsky.social · 17/07/2026

The Sick Times does invaluable work on all aspects of Long Covid, ME/CFS, and related diseases. I’m proud to be on their board. Please support them.

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Emily Johnson @emilyrj.bsky.social · 15/07/2026

I’m a second author on this, please sign and share this!

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#MEAction Network @meactnet.bsky.social · 13/07/2026

Upcoming event: Virtual Town Hall on Medicaid cuts led by multiple orgs on July 14th at 7 pm ET. go.caringacross.org/a/medicaidto...

go.caringacross.org

Speak Up, Show Up: A Virtual Town Hall on Medicaid Cuts

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#MEAction Network @meactnet.bsky.social · 13/07/2026

It is Medicaid Monday! We have some important updates and resources to share. How are you taking action? But first, a quick reminder on what this is about and why we are focusing on Medicaid on our social media every Monday this summer. ⬇️ All links: ow.ly/AON150Zmwb1 #Medicaid #pwME #disability

"Medicaid Monday updates and resources. Take action!" Simple text-based graphic in orange and reds.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 13/07/2026

If you haven't seen it yet, Scott Hugo has written a request for a formal ethics investigation into WIRED for its highly unusual reporting on #LongCOVID. Hosted on #MEAction; well worth a read: lnkd.in/gQz8GriC

lnkd.in

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