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ALowerhouse

@vertigogrl.bsky.social
652 followers 383 following 164 posts

An unintentional collector of an alphabet soup of chronic illnesses #MECFS #EDS #MCAS #POTS. Pronouns: she/her

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Karrie @karriehiggins.bsky.social · 8h
Hey all, it's a bad time to go without healthcare needs! Today is the 1st Disposition Hearing for the hypnotist on 20 felony sexual assaults + the new felony SA charge (not sure if they will arraign on that today). I also need to file an amended report for my case w/new evidence. Might erase SOL!
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Emily Johnson @emilyrj.bsky.social · 14/10/2026
In 3 months, I’ll get another major neurosurgery: Craniocervical Fusion, Extradural Decompression of the LLCT/MTH, Bilateral C1 Tubercle Resection This procedure will be out-of-state, costly and have a long recovery Please donate and boost! Ty www.gofundme.com/f/help-emily...
gofundme.com
Donate to We've got your back! Get Emily spine and brain care, organized by Jess Smolinski
*PLEASE SHARE even if you can't donate* Hello, everyone! This f… Jess Smolinski needs your support for We've got your back! Get Emily spine and brain care
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pumpkin @pumpkinstars.bsky.social · 13/10/2026
yay it’s happening! check out their quote post to see the donate buttons they will surely need something when they get here and moving is expensive on top of staying alive while chronically ill!
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pumpkin @pumpkinstars.bsky.social · 10/10/2026
keep aid circulating please final push to come here and last minute expenses came up and needs. any donations help! please share / donate if able!
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Elsa Sjunneson, Order of the Bat @snarkbat.bsky.social · 06/10/2026
It’s officially book day! Dear Blind Lady is OUT! 291 pages of as many questions as I could answer. I’m grateful to all my contributors, but most especially Alice Wong who wrote the section on how to work with PCA’s. Buy the book, come to an event, fight ableism.
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Maggie Tokuda-Hall @maggietokudahall.bsky.social · 04/10/2026
Here's the thing: most books that are banned don't make the lists that get circulated each #BannedBooksWeek. If you're a book creator and your book gets banned, please respond to this post with your book and its buy link on bookshop.org. That way we can support indies and banned books 💛
bookshop.org
Bookshop.org: Buy books online. Support local bookstores.
A better way to buy books online. Every purchase financially supports local independent bookstores.
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pumpkin @pumpkinstars.bsky.social · 22/09/2026
eee I just realized like one minute ago JUST realized that @ommerdraven.unitedsyncretic.org can carve pumpkins maybe when they get here!!! So my basically bedridden self might see an actual regular size pumpkin in October again!!! 👇 share and donate below in these final weeks before they come!!
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Matthew Cortland (they) @matthewcort.land · 20/09/2026
We're in an unprecedented public health emergency that's disproportionately harming disabled people. What can we learn from public opinion data about how to advocate for a public health that protects everyone, prioritizes those at greatest risk, and respects our rights? Join me 9/21 @ 07:30 PM ET ⤵️
us05web.zoom.us
Welcome! You are invited to join a webinar: The Public Health Emergency. After registering, you will receive a confirmation email about joining the webinar.
We're living through an unprecedented public health emergency that is disproportionately harming disabled Americans. What can we learn from public opinion data about how to advocate for a public healt...
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Anna Holmes @annabookwriter.bsky.social · 15/09/2026
In a tough spot. We’re doing all we can to get to the next handhold, but my body has decided to act like a petulant expensive child. Things I need (COVID shot, MCAS friendly food) are taking a backseat to visa fees. I know things are hard all over, but so appreciate any help. ko-fi.com/elyssiabooks
ko-fi.com
Support Anna and Jason
Support Anna and Jason
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pumpkin @pumpkinstars.bsky.social · 12/09/2026
It’s so exciting that two trans people I care about get to leave a red state and live with me in California! If you can please share this post and donate if able, it will help Draven + their trans kid meet their survival needs in this final stretch before they come here.
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Karrie @karriehiggins.bsky.social · 09/09/2026
I could really use help with groceries, legal / court fees, and cat stuff, too. Also my hearing aids are beyond repair now. They were old. I got them with a grant from the Rauschenberg Foundation and cannot afford new ones. Scared about that for court. $4500 specialty aid (NO I cannot use Air Pods).
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Kristin Houlihan, Writer @kristinwrites.bsky.social · 07/09/2026
National day dot com tells me it’s National buy a #book day so I have one for you:
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Kelly @broadwaybabyto.bsky.social · 06/09/2026
With the increase in food and medication recalls, it’s easy to feel a loss of control. One small thing you can do to make a huge difference is to wear a mask. It keeps you & your community safe. It shows solidarity with disabled people. It’s a form of resistance. It’s community care.
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Karrie @karriehiggins.bsky.social · 04/09/2026
This is $1,168 away from a milestone that would allow me to catch up on some important care! Please keep sharing and thank you so much! Again, I cannot access Help Hope Live funds without medical receipts. Also could use help with court fees, groceries & ride costs to appointments!
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Kelly @broadwaybabyto.bsky.social · 01/09/2026
I wrote this article nearly two years ago but it’s just as relevant today. I wish every healthcare worker would read it and realize patients deserve protection. They deserve to be safe in the place they go to get care. They deserve masks in healthcare:
disabledginger.com
A Plea to Maskless Healthcare Workers from Vulnerable Patients
If you see a mask - wear a mask. Better yet - wear a mask all the time and show us you understand that we're still IN a pandemic. We are depending on you to keep us safe - please don't betray that.
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Stickman Communications @stickmancomms.bsky.social · 29/08/2026
I now have 112 downloadable products on my webshop! Today's batch of downloadable products include quite a few mental health/mental illness related cards. Below are photos of the physical versions of some of the card downloads I added today. www.stickmancommunications.co.uk/mental-healt...
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Stickman Communications @stickmancomms.bsky.social · 20/08/2026
Another batch are now available as downloads as well as physical cards - these 4 are some of my favorites from today. I use the fidget card and the sensory sensitivity card myself, and the grounding technique and eating challenges cards I loved creating. www.stickmancommunications.co.uk/downloadzone
Smiling white woman with blue glasses and hair tied back. Holding up 2 cards in each hand They aren't fully readable as they are pretty small on the photo, but: 1 has a blue border and says about finding eating challenging, 2 has a rainbow border and describes the 54321 grounding technique, 3 is about needing to fidget, and 4 is about sensations that most people fine okay can be extremely painful, exhausting or overwhelming for me.
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#MEAction Network @meactnet.bsky.social · 19/08/2026
You are invited the the Severe ME Artists Project Gallery! We have such a unique and powerful selection of work. What we have included here is just a small random sample of what you will find chosen at random. www.meaction.net/severe-me-ar... #pwME #SevereME #art #SevereMECFS
Three artworks by artists with severe ME featured in the Severe ME Artists Project 2026, showcasing diverse styles and experiences. Three artworks in different styles by Molly December, Faith McCloud, and Cathrine Teigen. Text: "Please see our full gallery of amazing art submitted by those living with severe myalgic encephalomyelitis." A velvet rope like you might find at an artists gallery is under the artworks.
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MeetJess @meetjess.bsky.social · 18/08/2026
I genuinely LOVE my Readimasks and use them for things like scans, the dentist, and my hair appointments. They make these situations so much easier for me💛 If you’ve been meaning to try them, or already do, use MeetJess20 for 20% off! (I earn a small commission from sales) readimask.com
readimask.com
ReadiMask
ReadiMask is the only strapless N95 respirator with a perfect seal to keep you and yours safe. MRI Safe.
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Kelly @broadwaybabyto.bsky.social · 11/08/2026
Please don’t offer disabled people “thoughts and prayers”. Don’t offer empty platitudes and inspirational memes. Offer real, tangible help… and then follow through. We lack support for the most basic activities of daily living. That’s where we need help.
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#MEAction Network @meactnet.bsky.social · 09/08/2026
Tonight we light a candle in memory of those we have lost to #SevereME. We mourn. We hold all who are mourning in love. We come together as people with debilitating illness, caregivers, partners, allies, advocates, researchers, & clinicians. #SevereMEday
A single glowing candle with blurred lights in the background honoring those lost to severe ME on August 8.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 08/08/2026
Today is #SevereME day. Please take a look at and share the thread below: help teach people about severe ME.
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Rebel @rebellionista.bsky.social · 08/08/2026
It’s the evening of #SevereMEDay and I am absolutely exhausted. Hopefully I’ve spread some awareness today. Have had some happy tears as some first donations have come in. There is still kindness in the world 💙🥲 #SevereME #MECFS #pwme #NEISvoid #ChronicIllness #ChronicPain gofund.me/097f8b8bc
gofund.me
Donate to Bedridden and in agony, help Emma access treatment, organized by Emma Jane
Hi, I’m Emma. I’m housebound and mostly bedridden with ME/CFS, Fibromyalg… Emma Jane needs your support for Bedridden and in agony, help Emma access treatment
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#MEAction Network @meactnet.bsky.social · 08/08/2026
In honor of #SevereMEday, #MEAction is honored to share the Severe ME Artists Project 2026! Over 100 of you submitted photos, drawings, writing, and videos of your work! We are thrilled to share so many amazing and powerful pieces of artwork. ow.ly/FSXw50ZxJTC #SevereME #art #artist
Empty bench in front of a frame (like you would find at an art gallery)/ Framed sign has text: Severe ME Artists Project 2026. Under the frame is  a QR code and website link bit.ly/SMEart2026,
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Collective for Racial and Disability Justice @crdjustice.bsky.social · 06/08/2026
The Olmstead v. Lois Curtis Supreme Court decision is under attack! The U.S. DOJ is aiming to weaken the 1999 decision, which protects disabled people’s right to live in the community rather than institutions. Olmstead must be protected. Community integration is a civil right! Learn more here. [1/7]
Title Text: DOJ & Olmstead. Text: What changed, why it matters, and what to watch. Symbol scales balacing, represents law. Text: A plain-language guide to recent federal actions affecting disabled people’s right to live in the community. Cut out photos below of Lois Curtis and Elain Wilson in 1999. Right, group photo of several people with disabilities holding signs with text: I am Olmstead. Background photo of the Supreme Court building with an American flag near. Logo text below: UCLA Law, Center for Racial & Disability Justice, and Disability Rights California.
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Kelly @broadwaybabyto.bsky.social · 04/08/2026
It’s not your fault you’re disabled. It’s not your fault you’re chronically ill. It’s not your fault you’re living in poverty, lacking health insurance, homeless or unemployed. The billionaire class wants us to believe these are moral failings so they don’t have to help people. We should help.
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Emily Johnson @emilyrj.bsky.social · 03/08/2026
Please boost this! I need many more donations to keep getting neurosurgery care I may need 1-2 more medical trips that this fundraiser currently can’t cover (even with patient flight assistance, even with my SSDI covering as much as possible) I’m worsening and need help
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pumpkin @pumpkinstars.bsky.social · 03/08/2026
if you see pumpkins in the wild i would like to see! or halloween aisles in stores or ooo halloween pajamas! if you let me know / tag me i will be so happy 🥰🎃
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pumpkin @pumpkinstars.bsky.social · 01/08/2026
if anyone wants to get the visible app, made for #MECFS and #LC and similar… i just got it and i have a referral code! if you join with this link we both save $20. i’m still checking it out and will post my review later, and give updates as i go #NEISvoid join.makevisible.com/737a439fc7df37
join.makevisible.com
Visible: You are invited
You just got referred
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Emily Johnson @emilyrj.bsky.social · 31/07/2026
Updated my GoFundMe, please share and comment, need more donations www.gofundme.com/f/help-emily... Highlights: may need more neurosurgery trips and surgeries due to vein issues, stage 3 gastroparesis aka gastric failure, stage dyssynergic defecation, more severe sleep data confirmed
gofundme.com
Donate to We've got your back! Get Emily spine and brain care, organized by Jess Smolinski
*PLEASE SHARE even if you can't donate* Hello, everyone! This f… Jess Smolinski needs your support for We've got your back! Get Emily spine and brain care
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Sam Wise Masks @theailingwitch.bsky.social · 30/07/2026
Did you know the best way to support me is FREE? I just want folks to follow my Patreon & read what I write. I think some of it’s pretty darn good! Supporting my writing encourages me to keep going, & makes me feel like my words matter when I can’t do anything else. patreon.com/TheAilingWitch
patreon.com
The Ailing Witch — Fantasy writer and funky poet.
Get more from The Ailing Witch on Patreon. Fantasy writer and funky poet.. Support The Ailing Witch and get exclusive access to their work.
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s. e. smith @sesmith.lol · 28/07/2026
ALL MY DEAD CATS AND OTHER LOSSES, my book about grief; who is allowed to mourn and how; and why people want to pathologize the experiences that make us human, is available now in print, ebook, and audiobook formats, wherever fine books are sold (or loaned, shoutout to libraries).
bookshop.org
All My Dead Cats and Other Losses: Practicing Good Grief in a Culture That Fears Mourning
"Both a grief book that doesn't read like a clinician's notes and a memoir wrapped around a bigger subject, All My Dead Cats takes grief from the taboo to the universal." — BooklistHave you suffered a...
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Sam Wise Masks @theailingwitch.bsky.social · 24/07/2026
📌 Hey cuties! I’m Sam, a queer & disabled writer who loves fantasy, poetry, knitting, & pastries. Every single thing I write and share is FREE. All I ask is folks check it out and follow me if you like my stuff! This is how I make my joy. I hope it brings you some too. patreon.com/TheAilingWitch
patreon.com
The Ailing Witch — Fantasy writer and funky poet.
Get more from The Ailing Witch on Patreon. Fantasy writer and funky poet.. Support The Ailing Witch and get exclusive access to their work.
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Kelly @broadwaybabyto.bsky.social · 24/07/2026
When I could hide my disabilities, people accepted me. When I couldn’t hide them, they tolerated me. When I became vocal & demanded ableism be addressed, they abandoned me. This is why we need a Disability Pride month. This is why we need advocates. We shouldn’t have to hide.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 21/07/2026
I was thinking not a lot of chatter about the study and I sure do hope we get enough responses. Half a day and 100+ responses, should've known y'all wouldn't let me down! ❤️ There's a good chance we'll have to cut participation swiftly, so if you would like to participate, I hope you will soon!
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Julie Rehmeyer @julierehmeyer.bsky.social · 17/07/2026
The Sick Times does invaluable work on all aspects of Long Covid, ME/CFS, and related diseases. I’m proud to be on their board. Please support them.
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Emily Johnson @emilyrj.bsky.social · 15/07/2026
I’m a second author on this, please sign and share this!
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#MEAction Network @meactnet.bsky.social · 13/07/2026
Upcoming event: Virtual Town Hall on Medicaid cuts led by multiple orgs on July 14th at 7 pm ET. go.caringacross.org/a/medicaidto...
go.caringacross.org
Speak Up, Show Up: A Virtual Town Hall on Medicaid Cuts
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#MEAction Network @meactnet.bsky.social · 13/07/2026
It is Medicaid Monday! We have some important updates and resources to share. How are you taking action? But first, a quick reminder on what this is about and why we are focusing on Medicaid on our social media every Monday this summer. ⬇️ All links: ow.ly/AON150Zmwb1 #Medicaid #pwME #disability
"Medicaid Monday updates and resources. Take action!" Simple text-based graphic in orange and reds.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 13/07/2026
If you haven't seen it yet, Scott Hugo has written a request for a formal ethics investigation into WIRED for its highly unusual reporting on #LongCOVID. Hosted on #MEAction; well worth a read: lnkd.in/gQz8GriC
lnkd.in
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Matthew Cortland (they) @matthewcort.land · 13/07/2026
As I prepare for surgery in a couple of days I wanted to dash off a quick 'actionable analysis' post that's our tag line here at Shouldn't Need to be a (Public Health) Lawyer.... Here's how to protect yourself from Cyclosporiasis, the explosive diarrhea parasite taking the country by storm
patreon.com
Cyclosporiasis Is Here: How to Protect Yourself | Shouldn't Need to Be a Lawyer by Matthew Cortland
Cyclospora infection is often asymptomatic, but when symptoms occur, illness is characterized by anorexia, nausea, flatulence, fatigue, abdo
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Sabina Nordqvist @nordqvistbooks.bsky.social · 02/07/2026
I am offering a 30-min AMA Zoom call to support @romancingthevote.com! You can talk to me about your manuscript or publishing journey, get advice about disability representation in a manuscript or idea you’re forming, or ask me whatever is on your mind! www.32auctions.com/organization...
32auctions.com
30-min Zoom session w/Sabina Nordqvist
Auction item '30-min Zoom session w/Sabina Nordqvist' hosted online at 32auctions.
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betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 01/07/2026
Help The Sick Times become more sustainable!!
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Brianne Benness @bennessb.bsky.social · 30/06/2026
fun update: in order to get anything done at all (maybe), I’m starting a weekly zoom coworking habit on Tuesday afternoons through Shut Up & Write. join me! www.shutupwrite.com/series/id2w2...
shutupwrite.com
Shut Up & Write! | Free Global Writing Community
The world's largest nonprofit community of writing groups. Free in-person and online writing sessions in 80+ countries since 2007.
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pumpkin @pumpkinstars.bsky.social · 28/06/2026
#NEISvoid I made a thread with MCAS diet information and resources to low histamine and low FODMAP diets. i shared some of my experiences too. #MCAS
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Sparrow / Liz @untonuggan.myatproto.social · 25/06/2026
hello and solidarity to my heat wave sufferers I'm betting you've heard of heat exhaustion/heat stroke by now but you might also want to be aware of an increasingly common chronic condition that Epically Fucks With Your Heat Tolerance: Postural Orthostatic Tachycardia Syndrome (#POTS)
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Elsa Sjunneson, Order of the Bat @snarkbat.bsky.social · 25/06/2026
Coming on October 6th 2026 is my new nonfiction title DEAR BLIND LADY from @sasquatchbooks.bsky.social I’m so excited to share this snarky but helpful guide to how to be better humans to one another. Preorder anywhere you buy books, and check out snarkbat.com for more!
A teal book cover, with a graphic. Dear Blind Lady is the title with a pair of sunglasses as the B and a white cane as the I. The author name Elsa Sjunneson is printed inside the cane. a post it reads “but not like Helen Keller” with the subtitle of “disability advice you didn’t know you needed” at the bottom
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Matthew Cortland (they) @matthewcort.land · 23/06/2026
So maybe subscribe to Patreon.com/mattbc (there are free and paid options) and get some tips for dealing with insurers so that maybe a tiny amount of good comes out of this bullshit?
patreon.com
Shouldn't Need to Be a Lawyer by Matthew Cortland — creating Shouldn't Need to Be a Lawyer
Get more from Shouldn't Need to Be a Lawyer by Matthew Cortland on Patreon. creating Shouldn't Need to Be a Lawyer. Support Shouldn't Need to Be a Lawyer by Matthew Cortland and get exclusive access t...
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DisabledInSTEM @disabledinstem.bsky.social · 22/06/2026
The past few weeks have been incredibly scary, and I still have a long road to recovery ahead of me, but I'm grateful to be starting to feel a little better each day. Thank you all for the support, kind messages, and encouragement during this difficult time. 💜 www.amazon.com/hz/wishlist/...
amazon.com
Check out my list on Amazon
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DisabledInSTEM @disabledinstem.bsky.social · 22/06/2026
Several people have reached out asking how they can help during my recovery. I wasn't sure what to say, so I put together a small Amazon wishlist for anyone who was interested.
amazon.com
Check out my list on Amazon
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