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Julie Rehmeyer

@julierehmeyer.bsky.social
6.2K followers 2.1K following 658 posts

Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.

PostsRepliesMedia
Julie Rehmeyer @julierehmeyer.bsky.social · 24/09/2026
Whoa! Speaking of @environmentalvoter.bsky.social, they've teamed up with Patagonia for a program that launches Saturday where if you get three voters to commit to a voting plan, you get a $100 voucher for Patagonia! It launches Saturday. www.nytimes.com/2026/09/22/b...
nytimes.com
Patagonia Offers $100 to Customers Who Help Others Plan to Vote (Gift Article)
The outdoor apparel brand, which sued the Trump administration this month, is ramping up its environmental activism before the midterm elections.
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Jen-of-Λrc @jen-of-arc.bsky.social · 24/09/2026
PSA: Maine is one of 13 states that allow electronic voting for seniors & those w/ disabilities. Have her call ☎️ her local election office & sign up for this. I contacted mine in Utah—it was quick—and I’m all signed up to vote 🗳️ electronically! Here’s the full list of states that allow it:
eballot.com
These States Allow Online Voting for Citizens. Does Yours?
Find out which forward-thinking US states allow email and online voting options for certain voters.
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Julie Rehmeyer @julierehmeyer.bsky.social · 23/09/2026
Last week I called up a stranger, an environmentalist who didn't vote. She was 82, couldn't drive to the polls anymore, and didn't know Maine now lets any voter sign up to get a mail ballot automatically for every election. I explained how. She was thrilled. "Take yourself to lunch!" she cried.
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Julie Rehmeyer @julierehmeyer.bsky.social · 08/09/2026
I'm still recovering from my lumpectomy — the two week mark is tomorrow — and I've been pretty nonfunctional. But today is a little bit better, and I'm using my bit of functionality to make calls with @environmentalvoter.bsky.social.
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Julie Rehmeyer @julierehmeyer.bsky.social · 27/08/2026
I'm on the board of The Sick Times, which provides invaluable information about Long Covid, ME, etc. Signing up for their email list will support them and give you brief summaries and links to all their articles — I find it really helpful. pages.viral-loops.com/the-sick-tim...
pages.viral-loops.com
The Sick Times newsletter
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Julie Rehmeyer @julierehmeyer.bsky.social · 17/07/2026
The Sick Times does invaluable work on all aspects of Long Covid, ME/CFS, and related diseases. I’m proud to be on their board. Please support them.
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Julie Rehmeyer @julierehmeyer.bsky.social · 13/04/2026
Big thanks to David Tuller for this interview about my Modern Love piece about Beth Mazur. www.youtube.com/watch?v=DXeR... The essay itself is here: www.nytimes.com/2026/04/03/s...
youtube.com
Interview with Julie Rehmeyer about her NY Times' Modern Love piece
YouTube video by David M Tuller
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Katie Holten @katieholten.bsky.social · 06/04/2026
“I feel like I don’t really exist,” she said, her voice small. Her cognitive dysfunction didn’t show—from the outside, her brilliance still blazed—but that invisibility deepened her frustration. Beautiful and true, essay by @julierehmeyer.bsky.social Gift link: www.nytimes.com/2026/04/03/s... #ME
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Ralf Wittenbrink @ralfwittenbrink.bsky.social · 05/04/2026
»Darf ich mein Leben bei dir beenden?« Die Myalgische Enzephalomyelitis (ME) hatte Beth Mazur »ihre Karriere, ihre Kinderwünsche, das Snowboarden und oft sogar die Kraft zum Aufstehen geraubt. Aber der schlimmste Verlust war ihr brillanter Verstand als Technologieexpertin. 🧵
Beth Mazur
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Julie Rehmeyer @julierehmeyer.bsky.social · 03/04/2026
Over two years ago, the magnificent Beth Mazur ended her life while visiting me. I miss her. www.nytimes.com/2026/04/03/s...
nytimes.com
May I End My Life With You?
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Rachel Graves @rachelgraves.bsky.social · 02/01/2026
6. Through the Shadowlands: A Science Writer’s Odyssey Into an Illness Science Doesn’t Understand, Julie Rehmeyer. @julierehmeyer.bsky.social and I have many of the same health problems, ...
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Julie Rehmeyer @julierehmeyer.bsky.social · 30/11/2025
Congratulations! And what a beautiful thread.
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Julie Rehmeyer @julierehmeyer.bsky.social · 21/11/2025
New essay: The environmental story that shaped so many of us — small is beautiful — now collides with the scale the climate crisis actually demands. I wrote about why we need to update our instincts for the world we’re living in now, not the world of 1973. jrehmeyer.substack.com/p/small-is-b...
jrehmeyer.substack.com
Small Is Beautiful — But It’s Not Enough
Why our environmental intuitions must evolve for the climate crisis
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Beatrice Adler-Bolton @reallandsend.bsky.social · 16/11/2025
Alice Wong taught us that disabled people don’t just leave memories behind—they leave infrastructure. Lineages of care. Methods of collectivity, survival. She named the connective tissue that holds our communities together, even across death, even across the losses that come too fast and too often.
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Julie Rehmeyer @julierehmeyer.bsky.social · 13/11/2025
Rachel Riggs has a gorgeous, delicious new cookbook out — and I got to have a really interesting conversation with her about it. It'll help you make wonderful food even when one friend is gluten free and one is dairy free and one doesn't eat nightshades... jrehmeyer.substack.com/p/deliciousn...
jrehmeyer.substack.com
Deliciousness, Born from the Fire of Chronic Illness
Rachel Riggs's beautiful new cookbook
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Julie Rehmeyer @julierehmeyer.bsky.social · 08/11/2025
A moving tribute to Walker, who died of ME way way too young.
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Julie Rehmeyer @julierehmeyer.bsky.social · 04/11/2025
It's election day! I voted by mail a week ago, so I'm celebrating by making calls with @environmentalvoter.bsky.social, the Environmental Voter Project, reaching out to folks who care about the environment but often don't vote. I'm amazed by the impact I can see from it. 1/
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Environmental Voter Project @environmentalvoter.bsky.social · 04/11/2025
🔗 environmentalvoter.org/get-involved
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Julie Rehmeyer @julierehmeyer.bsky.social · 03/11/2025
ME friends: If you want a way of resisting our terrible national situation, phone banking with the Environmental Project is a great way to go! You can do it in small increments. It's easy, they train you, and it's effective. See details below on how it works.
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Allison 🎃🍁👻 @allisonzee.bsky.social · 03/11/2025
Julie's essay is worth your time. Promise.
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Julie Rehmeyer @julierehmeyer.bsky.social · 02/11/2025
I just spent an hour volunteering with the Environmental Voter Project (EVP). It’s one of the most effective, nonpartisan ways I know to pitch in during these dire days. www.environmentalvoter.org
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Julie Rehmeyer @julierehmeyer.bsky.social · 31/10/2025
How do you love something you can’t fix? That question runs through Emily Johnston’s “Loving a Vanishing World”—and through my new essay about illness, climate grief, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
jrehmeyer.substack.com
Two Systems in Collapse
What illness can teach us about responding to climate change
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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 31/10/2025
Beautiful essay. “‘We cannot expect to feel hopeful, at least not very often, and having any particular hope is likely to end in heartbreak.’… Instead, we practice a kind of hopeless action—we keep trying because trying itself is a form of faith, a muscular type of prayer.“
doomed.xn--its-so0a
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Julie Rehmeyer @julierehmeyer.bsky.social · 30/10/2025
I’m so glad.
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Julie Rehmeyer @julierehmeyer.bsky.social · 30/10/2025
How do we love what we can't save — a planet, or a body? I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system... #MyalgicE #mecfs #ClimateAction #climatecrisis
jrehmeyer.substack.com
Two Systems in Collapse
What illness can teach us about responding to climate change
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Robert Saunders (aka McMullen) @roberthmcmullen.bsky.social · 17/10/2025
Poignant sequel to Rilke’s poem The Panther by Veronica Ashenhurst who has severe ME/CFS: www.westtrestlereview.com/wtr_septembe...
westtrestlereview.com
Rilke's Panther Befriends Me by Veronica Ashenhurst
Now, the cat soars through rooms of sky, roars at stars, and recalls old years of midnight hunts. He springs his unbound will, and comes to condole with me. I can see his paws, claws withdrawn like sw...
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The Open Notebook @theopennotebook.bsky.social · 24/10/2025
Thanks to @cenmag.bsky.social, @hothousemag.bsky.social, @ksjatmit.bsky.social and @undark.org, @statnews.com, @7homaslin.com and @transjournalists.org, every dollar you give will be matched 1:1 up to $5,5000. Your gift will have twice the impact. 💌 $25 → $50 💌 $50 → $100 💌 $100 → $200
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Julie Rehmeyer @julierehmeyer.bsky.social · 24/10/2025
Woohoooooo! TON’s 15th birthday celebration has begun! Please pitch in to support this incredible organization.
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Julie Rehmeyer @julierehmeyer.bsky.social · 30/09/2025
It's been a long time since I've been on a podcast. I think this one, Ask the Patient Advocate with Dr. Elena Borrelli, has some interesting tidbits in it, particularly toward the end when I was asked about sources of hope. shows.acast.com/660d7e37088d...
shows.acast.com
Living with the ME/CFS, Long COVID, and the Power of Advocacy with Julie Rehmeyer | Ask The Patient Advocate
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Julie Rehmeyer @julierehmeyer.bsky.social · 26/09/2025
So glad to be on the emeritus board!
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Julie Rehmeyer @julierehmeyer.bsky.social · 24/09/2025
Pretty darn cool to get a shoutout from @billmckibben, one of my heroes! billmckibben.substack.com/p/the-stupid.... This is for my piece on how a dying coal plant sparked New Mexico's ambitious climate law — and created a blueprint other states can follow. jrehmeyer.substack.com/p/how-a-dyin...
billmckibben.substack.com
The Stupidest Speech in UN History
Everyone's saying so!
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Julie Rehmeyer @julierehmeyer.bsky.social · 23/09/2025
It seemed impossible: New Mexico — poor, bluish-purple, oil-and-gas-heavy — passed a clean energy law more ambitious than almost any other state had achieved. Not only that, it did so with broad bipartisan support. The catalyst? A dying coal plant. jrehmeyer.substack.com/p/how-a-dyin...
jrehmeyer.substack.com
How a Dying Coal Plant Sparked New Mexico’s Ambitious Climate Law — and What Other States Can Learn
New Mexico's Energy Transition Act
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Julie Rehmeyer @julierehmeyer.bsky.social · 20/09/2025
Generalized joint hypermobility, and especially extreme joint hypermobility, greatly increase the risk of Long Covid: bmjpublichealth.bmj.com/content/3/2/...
bmjpublichealth.bmj.com
Variant connective tissue as a risk factor for long COVID: a case-control study of data from a retrospective online survey of adults in the USA and UK
Introduction This study explored the extent to which two measures of joint hypermobility, a marker of variant connective tissue, predict the development of long COVID after COVID-19 infection, and whe...
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Julie Rehmeyer @julierehmeyer.bsky.social · 13/09/2025
We’ve had Evie the EV now for almost a week — and wow we really love her, even more than I expected. What I didn’t anticipate was how significant the smoothness and quiet would be. It feels like you’re just gliding along. John and I enthuse to one another each time we drive her.
Woman with light brown hair (Julie Rehmeyer) and man with a baseball cap and an orange shirt (John Kadlecek), with his arm draped over her shoulder, standing in front of a brand new silver Equinox EV (Evie).
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Julie Rehmeyer @julierehmeyer.bsky.social · 12/09/2025
If you're tempted to take advantage of the exceptional deals available on EVs right now that are weirdly hard to find, here are a couple of resources that will help you track them down: jrehmeyer.substack.com/p/a-hodge-po...
jrehmeyer.substack.com
Paid subscriptions, audio, EV resources, oh my!
Accepting paid subscriptions; an audio version of "So What the Heck Are Colleges Supposed to Do in the Age of AI?"; and a couple of EV resources
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Julie Rehmeyer @julierehmeyer.bsky.social · 12/09/2025
I wrote about the wonderful op-ed by Walter Sterling, president of St. John's College, about what the heck colleges should do in the age of AI — but I forgot to provide an audio version! Bad me. I fixed that here: jrehmeyer.substack.com/p/a-hodge-po...
jrehmeyer.substack.com
So What the Heck Are Colleges Supposed to Do in the Age of AI?
In 1989, during my sophomore year at St.
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Julie Rehmeyer @julierehmeyer.bsky.social · 12/09/2025
I started my Substack entirely free, but then people volunteered to pay to support me! It made my heart swell. So now I'm accepting payments — but all the content is still free. jrehmeyer.substack.com/p/a-hodge-po...
jrehmeyer.substack.com
Paid subscriptions, audio, EV resources, oh my!
Accepting paid subscriptions; an audio version of "So What the Heck Are Colleges Supposed to Do in the Age of AI?"; and a couple of EV resources
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Julie Rehmeyer @julierehmeyer.bsky.social · 10/09/2025
There are some incredible deals available on EVs right now — but bizarrely, it’s not so easy to find them. I can’t understand why dealers aren’t trumpeting this to the heavens. open.substack.com/pub/jrehmeye...
open.substack.com
Go Buy an EV
We Just Bought an EV for Less Than a Gas Car, and You Can Too
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Julie Rehmeyer @julierehmeyer.bsky.social · 07/09/2025
Go buy an EV! We just bought one that was cheaper than gas, and some are MUCH cheaper. Plus they're just better — quiet, clean, safe, fun to drive, and cheaper to own. But the $7500 federal tax rebate ends Sept 30, so you gotta get going. jrehmeyer.substack.com/p/go-buy-an-ev
jrehmeyer.substack.com
Go Buy an EV
We Just Bought an EV for Less Than a Gas Car, and You Can Too
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Julie Rehmeyer @julierehmeyer.bsky.social · 02/09/2025
Now that AI can churn out a term paper in seconds, how should colleges respond? My latest piece in The Weighing wrestles with that question, in dialogue with Walter Sterling’s new op-ed. jrehmeyer.substack.com/p/so-what-th...
jrehmeyer.substack.com
So What the Heck Are Colleges Supposed to Do in the Age of AI?
In 1989, during my sophomore year at St.
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Julie Rehmeyer @julierehmeyer.bsky.social · 01/09/2025
What the heck are colleges supposed to do now that AI is undermining the foundations of education? Walter Sterling, president of my alma mater and former employer St. John's College, has an answer. www.latimes.com/.../2025-09-... Proud to have supported him in writing this.
latimes.com
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Elizabeth Jacobs, PhD @elizabethjacobs.bsky.social · 31/08/2025
New Mexico is overriding the federal government on the topic of COVID19 vaccines to ensure their residents can access them. States hold a tremendous amount of public health power. They should use it.
koat.com
State steps in to ensure access to COVID-19 vaccine
Public health order counters potential limitations set by the USFDA
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David Tuller @davetuller1.bsky.social · 28/08/2025
Here's a post highlighting recent blogs worth reading from @julierehmeyer.bsky.social on Beth Mazur's death, @whitneydafoe.bsky.social on "real life," and @drelke.bsky.social on society's exercise obsession virology.ws/2025/08/28/t...
virology.ws
Trial By Error: Three Blogs--Julie Rehmeyer on Beth Mazur's Death; Whitney Dafoe on Real Life; Elke Hausmann on Exercise and "The Salt Path" | Virology Blog
By David Tuller, DrPH Two years ago, Beth Mazur, who co-founded #MEAction and spent years advocating for better care and more research, committed suicide du ...
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Julie Rehmeyer @julierehmeyer.bsky.social · 26/08/2025
Why you care about New Mexico's energy transition — even if you don't realize it yet. open.substack.com/pub/jrehmeye...
open.substack.com
The New Mexico Paradox
Energy Transition Leader and Laggard
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Julie Rehmeyer @julierehmeyer.bsky.social · 21/08/2025
have been impressed and amazed at the work the Change the Air Foundation has done around indoor air quality and mold. changetheairfoundation.org. They've done so much I can't list it all, but I'd just say, if you're dealing with a moldy house, start with their resources.
changetheairfoundation.org
Change the Air Foundation
Our mission is to empower the world to achieve better health by meaningfully addressing their indoor air quality.
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Julie Rehmeyer @julierehmeyer.bsky.social · 21/08/2025
So grateful for for this, and for @meghanor's work as a whole.
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Julie Rehmeyer @julierehmeyer.bsky.social · 20/08/2025
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Julie Rehmeyer @julierehmeyer.bsky.social · 20/08/2025
I told Beth I felt sort of pre-dead: I’d given up all my goals for life, every purpose I’d organized myself around, every expectation that used to ground me. And yet I was still alive. So what was left, with all of that gone? What is it to live, pre-dead? jrehmeyer.substack.com/p/holding-wh...
jrehmeyer.substack.com
Holding What Has No Meaning
Almost two years ago, on the winter solstice, I was given the most terrible honor of my life: My dear friend Beth Mazur chose to end her life while visiting me.
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Ann Finkbeiner @annfinkbeiner.bsky.social · 19/08/2025
This chain, honest, is a cure for what ails us -- the need for journalists who aren't science journalists to assess and write about science. That is, to detect the BS that various government agencies are trying to pass off as science. SCIENCE BS DETECTORS, right here! free! get yours!
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Julie Rehmeyer @julierehmeyer.bsky.social · 17/08/2025
Check out this beautiful poem, friends.
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