Sleepy Amy @sleepyamy.bsky.social · 4hIf you ❤ 80s music or know someone who does, Justin's book will be a good choice for you. It's divided into easily digestible nuggets and full of cool facts. Impress your friends or just be like 'oh I didn't know that' to yourself. 🤓 🎹 💿 🎶 042
Reposted by Sleepy AmyFrances Ryan @francesryan.bsky.social · 9hDisability doesn’t care how old you are. Specialist food is no cheaper if you’re 19. Employers don’t lose their prejudice if you’re 21. This is blatant intergenerational inequality from Labour. Younger disabled people of all severities deserve better. www.theguardian.com/politics/202...theguardian.comKey disability benefit for young people may be axed under major welfare changesExclusive: Plan under discussion involves intensive support to help young people into employment 18531228
Reposted by Sleepy AmyLynne #TaxTheRich #WelfareNotWarfare. Eco-Socialist. Pro-🇵🇸 @bebsdotteragain.bsky.social · 7h🤔Quick survey (England Only); Who do you support the Green Party or Labour? Green Party… press Repost Labour Party… press Like 1131
Reposted by Sleepy AmyAction for ME @actionforme.bsky.social · 6h😇 Our Christmas Angels project is back! This heartwarming project enables people with ME to send Christmas cards to each other via Action for ME. Register & find out more info here 👇 www.actionforme.org.uk/our-christma... 012
Reposted by Sleepy Amysarah boothby @swastrosarah.bsky.social · 30/09/2026justice4me.uk Please support lawyers to challenge this injustice, on behalf of everyone with #ME and #LongCovidME, regardless of disease severity.justice4me.uk 0116
Reposted by Sleepy AmyHannah Vardit @hannahvardit.bsky.social · 29/09/2026i worry that men think being A Good Guy is dramatically and heroically intervening on behalf of an endangered woman and then being publicly rewarded on a grand scale when actually being A Good Guy is just usually saying, “hey man that’s not funny” or “wow that’s fucked up” and there is no reward 10133543752
Reposted by Sleepy AmyAdam @abrokenbattery.bsky.social · 29/09/2026“They’re the victims of this, but then they’re victimised for the sin of having this illness.” George Monbiot on why government and society as a whole need to stop gaslighting people with #MECFS and making them feel they’ve done something wrong. 23816
Reposted by Sleepy AmyGeorge Monbiot @georgemonbiot.bsky.social · 24/09/2026Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...theguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 17925231728
Reposted by Sleepy Amykate @bookhaven.bsky.social · 23/09/2026#NEISvoid What papers/resources have you found most helpful for onboarding new doctors in a hospital visit? Surgical considerations would also be helpful (ex: anesthesia asks) I'm making up a hospital packet in case of emergency/low functioning admission 🙏 Dx list 👇 #MECFS #hEDS #POTS #MCAS 195
Reposted by Sleepy AmyAlem Matthees @alemmatthees.bsky.social · 23/09/2026For the love of the universe and the sake of millions of people with #MECFS and #LongCOVID can some funding body please fund the rest of #SequenceME / LC already?! WGS is one of the greatest crowning achievements of science and has enormous potential for pointing the compass in the right direction.actionforme.org.ukSequence ME & Long CovidSequenceME & Long Covid is a major new whole-genome sequencing study to understand ME and Long Covid. 05726
Reposted by Sleepy Amychiller @chiller.eurosky.social · 23/09/2026Might have done a bit of a rant at my MP. It's quite a nice feeling actually. Give it a go. 1514949
Reposted by Sleepy AmyFirstname Lastname #FuckTrump @notunpackedyet.bsky.social · 22/09/2026#MEcfs folks, they're so close to £23k - still not their stretch target, but close. I've just put in another £250, I can't afford more right now. If you can add a few quid, it all helps. May come to nothing but, personally, I feel better knowing that this work is happening. #SevereME 063
Sleepy Amy @sleepyamy.bsky.social · 22/09/2026Four days left to go on this www.crowdjustice.com/case/justice...crowdjustice.comNHS care for ME nowCampaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness. 045
Sleepy Amy @sleepyamy.bsky.social · 21/09/20261687 screenshots in my gallery and those are just the uncategorised ones 🙃 020
Reposted by Sleepy AmyGeorge Monbiot @georgemonbiot.bsky.social · 21/09/2026Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks. 131711288
Reposted by Sleepy AmyJamie Crawford @jamiecrawford68.bsky.social · 18/09/2026You might have known someone who went on to develop MECFS or LC. We’re maybe someone you just stopped seeing over time, who dropped out of your social groups, or from work. We go quiet. Say you can’t meet up a few times, and you stop being asked. We’re there, but mostly we’re stuck at home. #MECFS 1187
Reposted by Sleepy AmyMartin Grimshaw Has Long Covid @thrivingplanet.bsky.social · 19/09/2026Can you spare a £fiver+ ? People with #MEcfs are crowd funding a legal challenge to the NHS for failing to provide care, especially for very severe ME - where patients are still being harmed despite many deaths. Globally countless millions with #LongCovid now meet the diagnostic criteria for ME. 065
Reposted by Sleepy Amysarah boothby @swastrosarah.bsky.social · 18/09/2026www.crowdjustice.com/case/justice... Please share widely #ME/cfs #LongCovidME #HumanRights #NHSReformcrowdjustice.comNHS care for ME nowCampaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness. 01618
Reposted by Sleepy AmyJessica Ellis @baddestmamajama.bsky.social · 18/09/2026People will cut out artificial food dyes, spend hours at the gym, drink vitamin infused water…and then go to the airport and rawdog breathing in an airborne pathogen that can disable you permanenty and is basically guaranteed to be there. 9412160
Reposted by Sleepy Amysolomonhughes.bsky.social @solomonhughes.bsky.social · 17/09/2026Nothing says "lets clean up politics to deal with Reform's super rich donors" like holding a No.10 drinks party for Labour's Ultra High Net Worth donors. 38231
Reposted by Sleepy AmyAndrew Gifford @andrewgiffordphoto.bsky.social · 16/09/2026Timms review is seeking to narrow/reduce PIP! Important: please complete this survey to help push back on this; benefitsandwork.co.uk/news/tell-us... In my case, PIP needs doubling/tripling as our NHS isn't clinically supporting my disease (ME/CFS).benefitsandwork.co.ukTell us if you support PIP awards based on disability costsGet the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments... 077
Sleepy Amy @sleepyamy.bsky.social · 16/09/2026If the idea of PIP being stuff instead of money bothers you, Benefits and Work are running a very short survey where you can have your say: benefitsandwork.co.uk/personal-ind...benefitsandwork.co.ukTimms surveyGet the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments... 159
Sleepy Amy @sleepyamy.bsky.social · 16/09/2026This is such a lovely low effort game, I've played lots on days when brain fog is moderately bad but I need something distracting. And you learn about critters too 🦜 130
Reposted by Sleepy AmyJanel Comeau 🍁 @verybadllama.bsky.social · 16/09/2026I mean if you really want to hear Ed Sheeran without any opening acts you can simply get put on hold with your bank 128115881943
Reposted by Sleepy AmyAdam @abrokenbattery.bsky.social · 16/09/2026Having the reality of your illness denied “is almost as bad as the actual physical symptoms themselves.” Ed Yong, speaking about #LongCovid patients being disbelieved and dismissed, and how gender and racial bias affect their care. 623988
Sleepy Amy @sleepyamy.bsky.social · 15/09/2026It's getting on for two years since this started, and I still don't have an explanation. 210
Reposted by Sleepy AmyMinestrone Monster @minstronemonster.bsky.social · 14/09/2026Hello chronic illness pals, has anyone had experience with hypophosphataemia following an iron infusion? 101
Sleepy Amy @sleepyamy.bsky.social · 13/09/2026I'm really not on top of my salt game at all. Trying different methods of increasing since going on fludrocortisone, and all seem to result in stomach upset. How do I get the damn stuff to absorb??? 200
Reposted by Sleepy AmyPaula Knight 🎨✒️♿ @paulaknight.bsky.social · 13/09/2026A couple of weeks ago it was my 3000th day bedridden. I drew this to mark the occasion. It's a long time for both illness-haver and carer #MyalgicEncephalomyelitis #MEcfs #ChronicIllness #DisabledArtists 810136
Reposted by Sleepy AmyKelly @broadwaybabyto.bsky.social · 11/09/2026Anyone can become disabled at any time. It’s not a moral failing. It’s not laziness or a lack of effort. It’s a part of the human condition. People get sick. Bodies break down. It’s a minority group you can join any time. 261182379
Reposted by Sleepy Amychiller @chiller.eurosky.social · 11/09/2026They haven't put the safeguards in. The safeguards have been well defined. They could easily have put them in. They have chosen not to. If you're pro this bill, I would urge you in the strongest possible terms to stop, and think why. And write to your MP about stopping it. 11815
Reposted by Sleepy AmyCoyote / J. Stryker 🇨🇦 | Memento Vivere 🍃 @easterncoyote.bsky.social · 10/09/2026Help! My abuser wants to kick me out. We live in the country. No public transportation. Nowhere to go. No photo ID. I’m medically vulnerable. The police took his side. If he wins, I’m dead. I need $50 for phone & internet service. (I’m using his wifi.) PAYPAL: catacaustic77@gmail.com. TY! 💚 03832
Sleepy Amy @sleepyamy.bsky.social · 10/09/2026Iridescence 💚 💙 💜 Some lovely colours on the Birds feed today 021
Reposted by Sleepy AmyAlex Andreou @sturdyalex.bsky.social · 10/09/2026This German comedy sketch (with English subtitles) perfectly captures so much of what is going on right now in the UK, the US, and across Europe. "Playing the 'Nazi Card' in the Third Reich", by Browser Ballett. 5330031272
Sleepy Amy @sleepyamy.bsky.social · 10/09/2026Is the government aware that money can already be exchanged for goods and services www.theguardian.com/politics/202...theguardian.comUK disabled people could swap Pip cash for ‘in kind’ support in benefit overhaulClaimants could trade part of payment for specialist equipment, services or training under proposal 2104
Reposted by Sleepy AmyKelly @broadwaybabyto.bsky.social · 09/09/2026Sharing my 🧵 on Assisted Dying and why many disabled people fear a slippery slope This is based on Canada’s MAiD It’s been “offered” to me when I was clear I wanted treatment My condition wasn’t terminal I don’t oppose the right to die, but we must ensure disabled people have the right to live. 3229100
Reposted by Sleepy AmyThe Author, Séamas O'Reilly @seamas.bsky.social · 08/09/2026Have seen this Nature piece about the effects of X's algorithm mentioned again and it bears repeating; exposure to a right wing algorithm makes you - measurably and predictably - more right wing, even after you stop using it. www.nature.com/articles/s41...nature.comThe political effects of X’s feed algorithm - NatureAmong users initially on a chronological feed, 7 weeks of exposure to X’s algorithmic feed in 2023 shifted political attitudes and account-following behaviour in a more conservative direction compared... 4239371776
Reposted by Sleepy AmyThe Guardian @theguardian.com · 07/09/2026I had an amazing experience as a disabled person at school in the 70s. Since then, discrimination has got far worse | Mik Scarlettheguardian.comI had an amazing experience as a disabled person at school in the 70s. Since then, discrimination has got far worse | Mik ScarletToxic narratives around ‘benefit scrounging’, fed by successive governments, have become embedded in the national psyche, says Mik Scarlet, campaigner and co-CEO of the national charity Phab 07024
Sleepy Amy @sleepyamy.bsky.social · 06/09/2026A right barney going on just outside my bedroom window between a large family of magpies and a few crows. Hope it doesn't descend into fisticuffs (beakicuffs?) 120
Reposted by Sleepy AmyJustin Lewis @whenisbirths.bsky.social · 30/08/2026We tried our very best with this in terms of marketing but (so far) we still struggled relatively to get it into shops. Do investigate if you haven’t and you’d like to, there is no other music history book quite like this one. #IntoTheGroove 42327
Reposted by Sleepy Amy#MEAction Network @meactnet.bsky.social · 29/08/2026As we come to the end of Severe ME Awareness month, we want to share so much love to each member of our community - whether you can be online or whether we know your story - we hold you in love. We fight for you. We show up over and over determined to create change. #PwME #SevereME 13022
Sleepy Amy @sleepyamy.bsky.social · 29/08/2026I contributed a message to this project - it's not in any of the listed places but you can read it on their website. An awesome and much needed creative project and well worth your time reading about. Very grateful to Alison for putting it together. 184
Sleepy Amy @sleepyamy.bsky.social · 20/08/2026If you're a chronically ill, bedbound person, it's hard to healthily vent anger if you don't have the usual outlets at your disposal (sport, exercise, loud music, screaming into a pillow, etc etc). When every action has a cost and potentially causes PEM. If this is you, how do you do it? 120
Sleepy Amy @sleepyamy.bsky.social · 20/08/2026One of the many things that bother me about C4's ADHD travesty is where he lies to get a diagnosis and meds, and therefore doesn't that make ADHD diagnosis too easy and therefore suspect etc - and it's that right wing way of thinking that everyone is on the take or trying to lie. See also: benefits. 140
Reposted by Sleepy AmyRod McMillan 🍉 🇸🇩 🇺🇦 📚 @morewretchthansage.bsky.social · 15/08/2026⏩ Gift Article As a #LongCovid carer, and volunteer with @longcovidscot.bsky.social It would be great of more people understood the reality of PEM and fatigue www.theatlantic.com/health/archi...theatlantic.comFatigue Can Shatter a PersonEveryday tiredness is nothing like the depleting symptom that people with long COVID and ME/CFS experience. 033
Reposted by Sleepy AmyThe Cosmic Shambles Network @cosmicshambles.com · 19/08/2026After Channel 4's 'The Great ADHD Myth?' aired last night, we gathered some experts to review just how wrong it got things. @robinince.bsky.social chats to Camilla Pang, @ginarippon.bsky.social, @drdeanburnett.bsky.social & @thepublicturner.bsky.social Full chat on The Incomplete Shambles Podcast. 03725