The disability employment charter sets out the actions we believe the government should take to improve the working lives of disabled people.

Long COVID and Post-Infectious Syndromes ECHO A Practical Approach to Complex Long COVID & ME/CFS Patient Cases Bateman Horne Center and the University of Utah Health Project ECHO teams join forces once again to provide a case-based learning series illuminating strategies for assessment and management of Long COVID (PASC), ME/CFS, and related comorbid conditions. Patient cases are shared in this session for educational purposes. In some instances, the information does not relate to an individual and instead represents a compilation of disease presentation. In cases involving individual patient information, the patients have authorized the discussion of their case in this setting. In this ECHO session, Dr. Anthony Komaroff, Dr. Lily Chu, and Dr. Cindy Bateman share current evidence about biological abnormalities with ME/CFS, Long COVID, and other chronic illnesses along with treatment options and best practices for caring for patients. Dr. Komaroff shared how multiple biological abnormalities can contribute to a variety of symptoms that result in a vicious cycle of neuroinflammation, autonomic dysregulation, mitochondrial damage, and overall disruption of multiple body systems. Dr. Chu shared a framework for unravelling the pathophysiology of ME/CFS and highlighted research that identifies unique abnormalities in ME/CFS including exercise/activity intolerance, cognitive dysfunction, and unrefreshing sleep. Dr. Bateman shared practical tips for addressing the vicious cycles of ME/CFS and how clinicians can support patients who are stuck in these cycles. Key topics include: Biological Abnormalities Neuroinflammation Autonomic Dysfunction Mitochondrial Dysfunction Cerebral Perfusion Exercise and Activity Intolerance Cognitive Dysfunction Unrefreshing Sleep Post-Exertional Malaise Activity Pacing Time Stamps: 0:00 Housekeeping 1:10 Introduction 1:37 Dr. Komaroff Causes of Symptoms 10:35 Symptom Persistence 14:26 Dr. Kamaroff Summary 18:25 Q&A 27:15 Dr. Chu Unravelling Pathophysiology 31:36 CPET Research 25:37 Cognitive Dysfunction Research 39:06 Unrefreshing Sleep Research 43:37 Dr. Bateman What Do We Do Now? 48:35 Discussion & Q&A Note to community members: We advise viewers to always speak with their medical care team before making any adjustments or changes to their current care regimen. Bateman Horne Center’s involvement in this program is made possible with the additional support of the Open Medicine Foundation. 📘 Download the Clinical Care Guide: https://bit.ly/4jScKFu 🖥️ View the Slide Deck: https://batemanhornecenter.org/wp-content/uploads/2026/09/9_1_26-Komaroff-Chu-Bateman-Biological-Abnormalities.pdf

Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...

An ME/CFS writing group

Bezisterim produces moderate and broad treatment effects in several different long COVID subsets. BioVie, the drug manufacturer, hopes to move forward with a big phase III trial.

On the pause that protects what comes next.

George Monbiot speaks to Natasha Devon on LBC about the decades of neglect, dismissal and mistreatment of people with ME/CFS. They discuss the psychologisation of ME/CFS, graded exercise therapy (GET), the PACE trial, post-exertional malaise (PEM), and the urgent need for greater recognition, research and better care. Broadcast on LBC, 26 September 2026. Read George Monbiot’s Guardian article: https://www.theguardian.com/commentisfree/2026/sep/24/abandoned-dismissed-and-gaslighted-me-sufferers-betrayed

Multiple studies have found an increased response of the hormone prolactin to the drug buspironeContinue readingIncreased prolactin response to buspirone

The Liberal Democrat work and pensions spokesperson has pledged to do more to highlight that spending on social security is stable, so he can challenge right-wing politicians who claim it is spiral…

A cross-party committee of MPs has warned the government against using the Timms Review to cut disabled people’s access to personal independence payment (PIP), which it said would only increase pre…

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an artic...

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In this session of Bateman Horne Center's "Coffee" with a Clinician series, our panel discusses how orthostatic intolerance and dysautonomia are assessed in people with ME/CFS, Long COVID, and other infection-associated chronic conditions. We cover what dysautonomia is and why it's so debilitating, the tests used to evaluate it (active stand, Passive Stand / NASA Lean, and tilt table), the research on reduced blood flow to the brain, when to pursue full autonomic testing, how wearables can support pacing, and how post-exertional malaise (PEM) affects testing. We also answer questions submitted through the Q&A. This discussion is for educational purposes only and is not medical advice. Please consult your own clinician about your care. Jennifer Bell, FNP-C, is a BHC provider and has two immediate family members with ME/CFS Melanie Hoppers, MD, is a BHC medical provider and caregiver/mother to a young woman with ME/CFS Melissa Cortez, DO, is Chief of General Neurology and Director of the Autonomic Physiology Program at University of Utah Health Moderated by Clayton Powers, DPT (BHC Director of Education & Strategic Partnerships) Resources Clinical Care Guide: https://bit.ly/4jScKFu Passive Stand / NASA Lean Test instructions & form: Clinician: https://bit.ly/41oQs70 Patient: https://bit.ly/41sEbhN Presentation Slides: Coming Soon Transcript: https://bit.ly/3UYDQn7

New research from OMF's Computational Research Center finds measurable differences in sleep EEG microstructures in people with Long COVID and ME/CFS. Join OMF Journal Club on September 29 to go deeper...

When recognizing unfairness is part of telling the truth.

A guide for anyone who is struggling to cope

Decentralized study designs remove barriers for people with ME/CFS and Long COVID by replacing single-site requirements with flexible options like home collection kits, local labs, and virtual check-i...

Jennifer McCalla doesn't look sick, but living with long COVID and POTS is a full-time job. She writes about invisible illness and the fight to be believed.

WAMES e-news   Sign up for the latest news from WAMES, straight to your inbox. Read about: the activities of WAMES what is happening in Wales of interest to people...

Could a new mitochondrial drug called IVO-21 be the answer to the energy problems in ME/CFS, fibromyalgia, and long COVID?

The interconnected systems underneath a growing list of diagnoses.

Vanmorgen zat ik buiten in mijn schommelstoel chai te drinken.  Mijn moment van bezinning. Elke ochtend begin ik buiten, behalve als het hard regent, dan niet. Ieder seizoen heeft zijn eigen c…

There could be a reduction in the number of community hospital beds across the area.