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Ness

@nessau.bsky.social
190 followers 216 following 247 posts

Vegetation ecologist & research laboratory manager - on pause (MECFS / LC). Also: fire behaviour, libraries, cultural preservation, music, guinea pigs, TNR cats, sunsets. AUS

PostsRepliesMedia
Reposted by Ness
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 27/09/2026
Just listened to this full interview & it’s fantastic. @georgemonbiot.bsky.social doesn’t mince words, reminding us the #GreatestMEdicalScandal of the century is not just about neglect, it’s abuse by the medical system & complicity from all of society. Full interview (9 mins): youtu.be/H2rRf_f2hJs
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Reposted by Ness
Dan Wyke @danwyke.bsky.social · 24/09/2026
📰 New article in today's Guardian: "Abandoned, dismissed and gaslighted: there is no excuse for the way M.E. sufferers have been betrayed." Huge thanks to George Monbiot for trying to keep this issue in the public eye. www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Tortoise & Gecko @tortoiseandgecko.bsky.social · 26/08/2026
Episode 61: The Incubation Chamber Asleep and awake. theamazingadventuresof.tortoiseandgecko.au/p/episode-61 #tortoiseandgecko #sff #books 🪐📚️️💙
theamazingadventuresof.tortoiseandgecko.au
Episode 61
The Incubation Chamber
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Vanessa Smith @normalness.bsky.social · 03/07/2026
New section of the podcast - mutual aid. Please help if you can, Anna could use your help @halcionandon.bsky.social Details: chuffed.org/project/1619...
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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 28/06/2026
Orthostatic intolerance after spaceflight journals.physiology.org/doi/abs/10.1... 14 astronauts 10 minute stand test pre- and post-spaceflight All could finish the test pre-flight, only 5 could complete the test after. What's more interesting is the cardiovascular responses in each group 🧵
journals.physiology.org
Orthostatic intolerance after spaceflight | Journal of Applied Physiology | American Physiological Society
Orthostatic intolerance occurs commonly after spaceflight, and important aspects of the underlying mechanisms remain unclear. We studied 14 individuals supine and standing before and after three space...
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Reposted by Ness
Belinda Medlyn @bmedlyn.bsky.social · 22/06/2026
I am hiring! My former postdocs have all gone on to great ongoing roles, so I am now looking for 2 new postdocs in dynamic vegetation modelling: Modelling vegetation-fire interactions in Australia Modelling Australian vegetation distributions Details linked below - please share!
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Ness @nessau.bsky.social · 21/06/2026
Yeah, at the least it's handy for getting in close to kitchen benches etc. Mine has a single footrest plate that folds up such that it barely sticks out further than the front wheels (Just grabbing the latest photo from my gallery, excuse the cats)
3 cats surround a black electric wheelchair on a timber deck
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Ness @nessau.bsky.social · 21/06/2026
I'm sorry for your crash. This illness is horrendously unforgiving
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Ness @nessau.bsky.social · 21/06/2026
I've heard some shops will bring one for a trial. I don't know how difficult that is to arrange though
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Ness @nessau.bsky.social · 21/06/2026
I'm fortunate to have a small one. It's against the safety instructions, but indoors I often use it with the foot rest raised so it's more manoeuvrable in tight spaces. I'm not recommending that; just saying it's Usage As Applied (as compared to Usage As Designed)
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Ness @nessau.bsky.social · 20/06/2026
World refugee day, 20 June We recorded this more than a decade ago and it still brings tears to my eyes Arbitrary or mandatory imprisonment of refugees is cruel & illegal Everyone has a right to safety when they flee conflict or persecution stevetowson.bandcamp.com/track/christ... #RefugeeDay
stevetowson.bandcamp.com
Christmas Island, by Steve Towson
track by Steve Towson
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Reposted by Ness
Louise Milligan @milliganreports.bsky.social · 15/06/2026
THREAD: 1. Some years ago women academics contacted me unsolicited on Twitter (which I no longer use) about an academic in Melbourne. They’d made complaints to a faculty head about the man’s targeted, obsessive bullying of women colleagues, including First Nations women. The university kept him on.
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🐈‍⬛💜 phonakins 🍉🌲 @phonakins.com · 10/06/2026
Anna needs to escape her family in Melbourne. She needs a place to go and someone to get her there. Are you that person? Do you know a place?
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Michiel @murtoz.bsky.social · 10/06/2026
#SevereMErgency #pwME, please sign this petition and email the hospital if you can. Instructions on the petition. @tessamunt.bsky.social - here we go again. @jamesmurrayldn.bsky.social @sharonhodgsonmp.bsky.social how many more times will you allow this to happen? We need safe beds for the Severe!
change.org
Sign the Petition
Save Caroline Roberts’ Life now: A very severe ME/CFS patient with high mortality risk.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 01/06/2026
Hey, #NEISvoid and #MECFS ppls-- I know we SAY this a lot but is it cited anywhere you know of? - We're probably not diagnosing ppl at the mild end AND ppl at the severe end at the rare we're dxing moderate presentation.
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CrouchingTigger @crouchingtigger.eurosky.social · 20/05/2026
A few midweek flowers for you, Bluesky 🙂
A close-up of a light pink Pasque flower (Pulsatilla vulgaris)A deep blue gentian flower (Gentiana acaulis) next to a small houseleek (Sempervivum)A close-up of a purple Pasque flower (Pulsatilla vulgaris)A pale yellow wood avens (Geum urbanum)
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Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social · 30/04/2026
Does #MutualAid exist anymore? Crowdfunding stalled. Too sick to stay visible? People too broke? If you’re reading please share pinned post! Help if able. Room or granny flat? Board neg. Land for trailer/ cabin? LMK. Dying, Dr backed! #DisabilityMA 💕💸 #MADBoost 💸❤️ bsky.app/profile/halc...
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Michiel @murtoz.bsky.social · 19/05/2026
#pwME there was a study in the past year or two showing the detrimental effects of psychologising physical illness. I can't find it anymore tho, does anybody have the link to the study?
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Ness @nessau.bsky.social · 13/05/2026
Congrats for achieving that 🤩🤩 And for marking an endpoint on a task that probably felt eternal
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Reposted by Ness
Anil van der Zee @anilvanderzee.bsky.social · 12/05/2026
For #MEAwarenessday I interviewed 8 men about their experience with ME. As far as I'm aware there's never been a film with just men talk about ME. Make sure to check out and please share!! #myalgicEman #pwme #millionsmissing #millionsmissing #severeME #MECFS youtube.com/watch?v=z_MC...
youtube.com
Men about living with M.E. (with subtitles)
YouTube video by Anil about ME
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Ness @nessau.bsky.social · 12/05/2026
And a spoken word piece, Descriptions (54:08) descriptions.bandcamp.com/track/descri...
descriptions.bandcamp.com
Descriptions, by Action for ME
track by Action for ME
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Ness @nessau.bsky.social · 12/05/2026
Post-Covid ME/CFS | Covid-19 Survivor Diaries Episode 12 (33:10) youtu.be/ndQc_SAkk54 and the COVID-19 Survivor Diaries series m.youtube.com/@SurvivorDia...
youtu.be
Post-Covid ME/CFS | Covid-19 Survivor Diaries Episode 12
YouTube video by Survivor Diaries
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Ness @nessau.bsky.social · 12/05/2026
"The pandemic isn’t over’: my year of long Covid – video" (7:55) www.theguardian.com/society/vide...
theguardian.com
‘The pandemic isn’t over’: my year of long Covid – video
Darren Parkinson is one of about 2 million people living with long Covid in England and Scotland. The illness is having a detrimental impact on his life, stopping him from being the kind of active and...
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Ness @nessau.bsky.social · 12/05/2026
The Lingering Impact of Corona: Investigating the Aftermath of the Pandemic | GER (+ ENG sub) | WDR (44:43) youtu.be/YrnI-e6BbJY
youtu.be
Hirschhausen und der lange Schatten von Corona: Auf den Spuren der Pandemie | Doku | WDR
YouTube video by WDR
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Ness @nessau.bsky.social · 12/05/2026
Justin's Long Covid Story - Canadian Covid Society (5:10) youtu.be/p8HPBmtHzEg and other shorts by Canadian Covid Society www.youtube.com/@CanadianCov...
youtu.be
Justin's Long Covid Story - Canadian Covid Society
YouTube video by Canadian Covid Society
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Ness @nessau.bsky.social · 12/05/2026
Mila Hermisson's message to the world: "Learn About ME" (1:32) youtu.be/hc9m6BJdvJY
youtu.be
Mila Hermisson's message to the world: "Learn About ME"
YouTube video by For chronically ill and their loved ones
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Ness @nessau.bsky.social · 12/05/2026
ME/CFS crash caught on camera (5:03) youtu.be/azstDODefFs and other videos in Galen Warden's YouTube channel youtube.com/@mamagalen
youtu.be
ME/CFS CRASH CAUGHT ON CAMERA
YouTube video by Galen Warden
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Ness @nessau.bsky.social · 12/05/2026
ME/CFS: Warum der Weg zur Diagnose so beschwerlich wie die Krankheit selbst ist (14:43) youtu.be/pxkFh7Kz4j8
youtu.be
ME/CFS: Warum der Weg zur Diagnose so beschwerlich wie die Krankheit selbst ist
YouTube video by ZDFheute Nachrichten
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Ness @nessau.bsky.social · 12/05/2026
Long Covid: A parallel pandemic (19:41) youtu.be/7lfGu_UA75A
youtu.be
Long Covid: A parallel pandemic
YouTube video by Knowable Magazine
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Ness @nessau.bsky.social · 12/05/2026
Horizon "ME" Myalgic Encephalomyelitis June 1988 (48:29) youtu.be/hF33CGuxSRA An image tracking fault may make this copy unsuitable for people with visual sensitivity.
youtu.be
Horizon "ME" Myalgic Encephalomyelitis June 1988
YouTube video by al
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Ness @nessau.bsky.social · 12/05/2026
What About ME? - A Documentary by Luke Stephenson (10:33) youtu.be/o-Y0ZP9uDPI
youtu.be
What About ME? - A Documentary by Luke Stephenson
YouTube video by Luke Stephenson
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Ness @nessau.bsky.social · 12/05/2026
27-year-old died from malnutrition due to severe ME, inquest finds (9:50) youtu.be/10hCNt6ajSE
youtu.be
27-year-old died from malnutrition due to severe ME, inquest finds
YouTube video by Channel 4 News
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Ness @nessau.bsky.social · 12/05/2026
What happened to Sophia Mirza who died from ME/CFS (7:48) youtu.be/7mZMpvtD3rg
youtu.be
What happened to Sophia Mirza who died from ME/CFS
YouTube video by MaverickMiracle
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Ness @nessau.bsky.social · 12/05/2026
ME/CFS-Betroffene Katrin - Meine Geschichte (13:41) youtu.be/AvAufK7vv44
youtu.be
ME/CFS-Betroffene Katrin - Meine Geschichte | #LebendigBegraben #MECFS #LebenRetten
YouTube video by Sozialhummel
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Ness @nessau.bsky.social · 12/05/2026
ME/CFS in adolescents | NANO Documentary (13:00) youtu.be/rTz5TVs6kws
youtu.be
ME/CFS Erkrankung bei Jugendlichen | NANO Doku
YouTube video by 3sat NANO
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Ness @nessau.bsky.social · 12/05/2026
Chronically exhausted: The silent suffering behind ME/CFS | RTL Aktuell (22:23) youtu.be/rjL-OX6RAX0
youtu.be
Chronisch erschöpft: Das stille Leid hinter ME/CFS | RTL Aktuell
YouTube video by RTL Aktuell
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Ness @nessau.bsky.social · 12/05/2026
ME/CFS ITN report from September 1994 (2:13) and other videos on Maggie Wallace's YouTube ME/CFS Playlist, youtube.com/playlist?lis...
youtube.com
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Ness @nessau.bsky.social · 12/05/2026
CFS and the CDC's Failure to Respond: Primetime Live (1996) (12:46) youtu.be/AW0x9_Q8qbo
youtu.be
CFS and the CDC's Failure to Respond: Primetime Live (1996)
YouTube video by Laurel B
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Ness @nessau.bsky.social · 12/05/2026
Sick and Tired – BBC Panorama (Nov. 1999) | Documentary on the mistreatment of children with ME/CFS (38:25) youtu.be/SHhU1EA2vcI
youtu.be
Sick and Tired – BBC Panorama (Nov. 1999) | Documentary on the mistreatment of children with ME/CFS
YouTube video by D S
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Ness @nessau.bsky.social · 12/05/2026
Dr. Anne Macintyre's Frontline Program about ME/CFS (Vintage VHS) (25:17) youtu.be/lINkStCj3rs
youtu.be
Dr. Ann McIntire's Frontline Program about ME/CFS (Vintage VHS)
YouTube video by hoofbags
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Ness @nessau.bsky.social · 12/05/2026
Fighting Disbelief: Chronic Fatigue Syndrome (12:43) youtu.be/iym0mBx8fCI?...
youtu.be
Fighting Disbelief: Chronic Fatigue Syndrome
YouTube video by SBS The Feed
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Ness @nessau.bsky.social · 12/05/2026
Documentary on life with severe ME/Chronic Fatigue Syndrome on BBC1 (7:49) youtu.be/cPH3kKkEYAI
youtu.be
Documentary on life with severe ME/Chronic Fatigue Syndrome on BBC1
YouTube video by Claire Wade
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Ness @nessau.bsky.social · 12/05/2026
Mothers with ME/CFS | Local Focus (7:27) youtu.be/14oT6mi8PVU and Today is ME day | Local Focus (6:32) youtu.be/UTiG17d_w9E
youtu.be
Mothers with ME / CFS | Local Focus
YouTube video by nzherald.co.nz
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Ness @nessau.bsky.social · 12/05/2026
Spotlight on Myalgic Encephalomyelitis on Breakfast TVNZ for World ME Day, May 12, 2025 (8:54) youtu.be/G7atNubdhL8
youtu.be
Spotlight on Myalgic Encephalomyelitis on Breakfast TVNZ for World ME Day, May 12, 2025
YouTube video by ANZMES videos
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Ness @nessau.bsky.social · 12/05/2026
What causes long COVID? - RAZOR Science Show (28:29) youtu.be/biuo_tW_7Dw
youtu.be
What causes long COVID?
YouTube video by RAZOR Science Show
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Ness @nessau.bsky.social · 12/05/2026
Living with M.E - Short Documentary (7:52) youtu.be/Hvw-aMxs0gE
youtu.be
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Ness @nessau.bsky.social · 12/05/2026
What happens when you have a disease doctors can't diagnose | Jennifer Brea - TedX (17:07) youtu.be/Fb3yp4uJhq0
youtu.be
What happens when you have a disease doctors can't diagnose | Jennifer Brea
YouTube video by TED
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Ness @nessau.bsky.social · 12/05/2026
Opening Up About My Illness (9:18) youtu.be/MPJd31ka4_M
youtu.be
Opening Up About My Illness
YouTube video by Ellbat
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Ness @nessau.bsky.social · 12/05/2026
The Unravelling - A Scientist. An Artist. A Father (16:31) vimeo.com/1017483971
vimeo.com
THE UNRAVELLING - A SCIENTIST . AN ARTIST . A FATHER
Self-funded short documentary about the true nature of Covid / Sars-CoV-2, and the impact that Long Covid has had on one family. Derived from material photographed in Sept. 2024 for the feature lengt...
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Ness @nessau.bsky.social · 12/05/2026
M.E.: Lives devastated - and sufferers told it's made up (12:13) youtu.be/pobf0RPlJuw
youtu.be
M.E.: Lives devastated - and sufferers told it's made up
YouTube video by Channel 4 News
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