iiinova — where your digital self keeps evolving

Dan Wyke @danwyke.bsky.social · 27/09/2026

We need to recognise the mistreatment and neglect of people with Myalgic Encephalomyelitis as an act of political violence, perpetrated by so-called medical professionals on behalf of financial (insurance companies) and governmental (DWP) institutions...

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Dan Wyke @danwyke.bsky.social · 27/09/2026

📻 YouTube recording of Natasha Devon's LBC radio show (26/9/26) in which guest George Monbiot articulates many of the talking points from his article about ME/CFS in the Guardian earlier this week. Thanks to Adam for making the whole interview available so quickly. youtube.com/watch?v=H2rR...

youtube.com

LBC | Natasha Devon interview with George Monbiot

YouTube video by Broken Battery

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Dan Wyke @danwyke.bsky.social · 24/09/2026

📰 New article in today's Guardian: "Abandoned, dismissed and gaslighted: there is no excuse for the way M.E. sufferers have been betrayed." Huge thanks to George Monbiot for trying to keep this issue in the public eye. www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Dan Wyke @danwyke.bsky.social · 10/09/2026

Why hasn't the current Health Secretary Yvette Cooper implemented the Delivery Plan for ME/CFS? It's unconscionable that someone who's responsible for the NHS would leave some of the most severely ill patients without any sort of specialist inpatient treatment whatsoever.

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Dan Wyke @danwyke.bsky.social · 10/09/2026

I've had two baseline-threatening "colds" over the summer. I don't know if my immune system will survive another winter. 😰

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Dan Wyke @danwyke.bsky.social · 07/08/2026

If the link is playing up, follow these rough instructions: Download the PL app; set up account ➡️ go to the 'Fantasy' section ➡️ hit 'Join Leagues' button ➡️ enter code 19izc3 ⚽

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Dan Wyke @danwyke.bsky.social · 07/08/2026

I've set up a fantasy football mini-league for the 2026-27 season: the "ME/CFS & LC Premier League"? If you'd like to play, follow the link and enter the code. Good luck and please remember to avoid triggering PEM while playing. fantasy.premierleague.com/leagues/auto-j… League Code: 19izc3

fantasy.premierleague.com

Fantasy Premier League, Official Fantasy Football Game of the Premier League

Official Fantasy Premier League 2026/27. Free to play fantasy football game, set up your fantasy football team at the Official Premier League site.

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Dan Wyke @danwyke.bsky.social · 20/07/2026

Good morning from Cornwall.

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Dan Wyke @danwyke.bsky.social · 07/06/2026

Apologies if this has already been pointed out but, last year, as predicted by patients, all three of the NIH RECOVER Initiative's large-scale brain retraining trials failed to improve cognition in #LongCovid patients. #MECFS www.healthrising.org/blog/2025/12...

healthrising.org

RECOVER's Neuro Long COVID Clinical Trial to Improve Cognition Flops... (As Expected) - Health Rising

The RECOVER Initiative's big Long COVID Neuro trial failed. Find out how and why and what should come next.

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Dan Wyke @danwyke.bsky.social · 25/05/2026

"This review charts the shift from early post-infectious observations through psychosocial dominance to contemporary biological frameworks, emphasising that pathology is state-dependent and revealed under physiological stress." (Download PDF for full text.) link.springer.com/article/10.1...

link.springer.com

Reframing ME/CFS: toward a unified mechanistic model of chronic post-infectious diseases - Journal of Translational Medicine

Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a severe multisystem illness marked by post-exertional malaise (PEM), cognitive dysfunction, autonomic disturbance, and impair...

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Dan Wyke @danwyke.bsky.social · 12/05/2026

Good news on #MEAwarenessDay. 🥳 Building on the success of 'Decode ME', which found evidence of genetic predisposition, the govt is providing £4.75m to delve deeper. 'Sequence ME' will aim to identify which specific genes are involved in #MyalgicEncephalomyelitis. archive.ph/2026.05.11-2...

archive.ph

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Dan Wyke @danwyke.bsky.social · 10/05/2026

Tomorrow marks the start of ME Awareness Week. The first rule of #MEAwarenessWeek is...

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Dan Wyke @danwyke.bsky.social · 09/05/2026

My dad has end-stage cancer but he still takes the time to send me pictures of his garden. 🥰

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Dan Wyke @danwyke.bsky.social · 06/05/2026

£200 for a 30 minute appointment with an ME-aware doctor (not naming names). The disability/chronic illness tax strikes again! #MyalgicEncephalomyelitis #MECFS

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Dan Wyke @danwyke.bsky.social · 05/05/2026

ME Awareness Week is approaching. I don't know that there's anything I can say that I haven't said before. A lot of progress *has* been made but acceptance and understanding by the whole medical profession and effective treatments for all patients are still a long way off. #MECFS

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Dan Wyke @danwyke.bsky.social · 04/05/2026

Bank Hols with ME are usually a downer but I've had a good afternoon. I listened to a podcast about Peter the Great, watched some snooker, read a few pages of Henry IV pt2 and listened to a talk about compassion by Rob Burbea. Fingers crossed I end today under my PEM threshold.

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Dan Wyke @danwyke.bsky.social · 23/04/2026

It was always a mistake for Integrated Care Boards to cut the number of district nurses. An increase in the number of people suffering from chronic conditions, like #MECFS and #LongCovid, means patients need home-visits more than ever.

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Dan Wyke @danwyke.bsky.social · 17/04/2026

"Simply put, the bodies of people with ME/CFS can not efficiently do the work of recovery. And because these abnormalities are found in pwME but not matched deconditioned controls, we can confidently say that PEM is not deconditioning." likeannopeningbandforthesun.substack.com/p/in-pursuit...

likeannopeningbandforthesun.substack.com

In Pursuit of Understanding the Crash

What Post-Exertional Physiology Tells Us About ME/CFS

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Dan Wyke @danwyke.bsky.social · 12/04/2026

My two key takeaways from this week on Twitter are: 1/ A lot of patients - especially women - have been gaslighted by doctors. 2/ A lot of doctors shouldn't be practicing medicine.

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Dan Wyke @danwyke.bsky.social · 12/04/2026

The only thing doctors are over-diagnosing is anxiety.

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Dan Wyke @danwyke.bsky.social · 11/04/2026

"Over-diagnosis" is a fiction designed to cast doubt on historically under-researched diseases which disproportionately affect women. Patients either meet diagnostic criteria or they don't.

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Dan Wyke @danwyke.bsky.social · 10/04/2026

The medical profession needs a radical overhaul. Since the pandemic started, there has been a sharp increase in chronic diseases which traditionally doctors have been taught to ignore/disbelieve. If drs cannot up their game, they should be stripped of their licence to practice.

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Dan Wyke @danwyke.bsky.social · 10/04/2026

The idea that ME/CFS is "over-diagnosed" is cooked up by biopsychosocial extremists to deny patients medical attention.

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Dan Wyke @danwyke.bsky.social · 05/04/2026

It's that time of the year again... Happy Easter, guys! 🐣🐇🍫

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Dan Wyke @danwyke.bsky.social · 05/04/2026

Saw my in-laws for two hours this week for the first time in 10 years. They are elderly and realistically this might be the last time I see them. There are people in this country who are responsible for preventing the development of treatments for ME, and breaking families apart.

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Dan Wyke @danwyke.bsky.social · 04/04/2026

I've recently discovered that an effective way to increase the inhibitory neurotransmitter GABA without resorting to Diazepam is to take, well, GABA. This stops my PEM in its tracks every time. Inexpensive and safer than benzos. Intending to experiment with a maintenance dose.

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Dan Wyke @danwyke.bsky.social · 31/03/2026

Another problem pwME face as a result of the difficulty their bodies have metabolising fat for energy is the accumulation of cholesterol. To make matters worse, pwME often can't tolerate statins because they can directly impair mitochondrial performance + cause neuralgia/myalgia.

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Dan Wyke @danwyke.bsky.social · 30/03/2026

One thing I hate about ME, that catches me out every time, is how long it takes for my body and mind to let go of even minor stressors. My fight-flight response gets activated at the drop of a hat and the associated thoughts rattle around my head for way longer than is helpful.

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Dan Wyke @danwyke.bsky.social · 22/03/2026

I sat in the garden for half an hour this morning and realised it was the first time I've been out of the house since a hospital appointment in October. People have no idea what life is like for us. #pwME #MECFS #LongCovid

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Dan Wyke @danwyke.bsky.social · 22/03/2026

I've been registered with the same surgery for 16 years and in all that time not a single dr there has indicated that they recognise me. Aside from being an inefficient way to practice medicine, I find it really rude! Is this a strategy GPs use elsewhere or unique to my surgery?

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Dan Wyke @danwyke.bsky.social · 19/03/2026

🪧 Bring Back Trains With Open Windows! ✊ 🚃

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Dan Wyke @danwyke.bsky.social · 19/03/2026

Timms Review of Personal Independence Payment: Call for Evidence Published: 19 March Closes: 28 May If you claim PIP, and can manage it, please provide details of your experience by completing this online form. #MECFS #pwME #LongCovid #Disability www.gov.uk/government/c...

gov.uk

Timms Review of Personal Independence Payment: Call for Evidence

This Call for Evidence is being administered by DWP on behalf of the Timms Review steering group and seeks to gather feedback and insight relating to the areas outlined in the Terms of Reference of th...

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Dan Wyke @danwyke.bsky.social · 19/03/2026

Have the wingnuts started organising meningitis parties yet?

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Dan Wyke @danwyke.bsky.social · 19/03/2026

It would have been a whole lot easier - and ultimately cheaper for the government - if they had installed air purifiers in schools and hospitals and other public buildings.

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Dan Wyke @danwyke.bsky.social · 19/03/2026

I wonder what could have happened to the immune systems of young people since 2020 that would affect how quickly meningitis has spread? Hint: you won't find the answer on the BBC website.

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Dan Wyke @danwyke.bsky.social · 15/03/2026

Six years on from the start of the pandemic, the political will to help #LongCovid patients is still lacking and clinical support is still hampered by a dogmatic element among HCPs who refuse to acknowledge the research about infection-associated chronic conditions like #MECFS.

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Dan Wyke @danwyke.bsky.social · 14/03/2026

Despite it all, the world keeps on giving us mornings like this.

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Dan Wyke @danwyke.bsky.social · 14/03/2026

Today the world feels less safe than at any time since the Cold War. As global security structures weaken, we all feel the economic and existential shockwaves. For people with ME/CFS, whose lives are already afflicted by physical and financial insecurity, this can feel overwhelming.

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Dan Wyke @danwyke.bsky.social · 13/03/2026

Fasciculations in my arms and legs and, curiously, my left eye are an early warning system that PEM is imminent. I would make a terrible poker player.

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Dan Wyke @danwyke.bsky.social · 08/03/2026

Being immunocompromised is exhausting. Everything I do requires at least five hand-washes! 😮‍💨

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Dan Wyke @danwyke.bsky.social · 03/03/2026

Whenever I see old photos of myself I fancy that I see signs of sickness. I seem malnourished and have dark rings around my eyes. I wonder how many embryonic health issues I downplayed or ignored, how many times I left my GP's without any answers. 1/2

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Dan Wyke @danwyke.bsky.social · 02/03/2026

I spend my life trying to avoid PEM or recovering from PEM.

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Dan Wyke @danwyke.bsky.social · 02/03/2026

College has wrecked my daughter's health. The train she takes has sealed windows and no-one wears a mask. At college there aren't any air purifiers and no-one masks. She's missed about 30-35% of her course through sickness and is understandably worried she won't pass her A-levels.

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Dan Wyke @danwyke.bsky.social · 01/03/2026

So waking up with PEM (from yesterday's haircut) is fun. 😩

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Dan Wyke @danwyke.bsky.social · 01/03/2026

Dreamt of my former best friend who visited me once eleven years ago then disappeared.

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Dan Wyke @danwyke.bsky.social · 28/02/2026

It is generally illegal for NHS hospitals in the UK to refuse admission if it is clinically necessary and urgent, but of course there are get-outs and they can refuse admission under specific, reasonable, and lawful grounds - that is, by saying pretty much whatever they want. 1/2

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Dan Wyke @danwyke.bsky.social · 25/02/2026

A lot of doctors should not be practicing medicine and a lot of so-called mental health professionals should not be allowed anywhere near a vulnerable patient population.

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