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National Voices

@nationalvoices.bsky.social
1K followers 176 following 407 posts

A coalition of over 200 charities making what matters to people matter in health and care. Account monitored Mon-Fri, 9am-5pm.

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National Voices @nationalvoices.bsky.social · 06/10/2026
🚀 Today, the Government published its response to the National Commission into the Regulation of AI in Healthcare, accepting all 44 recommendations. A new UK-wide, cross-system Programme Board will oversee delivery, with a full implementation roadmap to follow by spring 2027.
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Patient Safety Learning @patientsafetylearning.org · 17/09/2026
Today is #WorldPatientSafetyDay! In a new blog on the hub, we set out the need for a transformation in our approach to patient safety and consider this year’s theme, “Safe care for noncommunicable diseases”. www.pslhub.org/learn/organi...
pslhub.org
World Patient Safety Day 2026
In this blog to mark World Patient Safety Day 2026, Patient Safety Learning argues that we need a transformation in our approach to patient safety.
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National Voices @nationalvoices.bsky.social · 14/09/2026
🚀 In this week’s blog, Janet Clarke, Communities Manager at Macmillan Cancer Support, reflects on Macmillan’s partnership with Touchy-Feely and the impact of bringing lived experience into conversations about cancer care. 🔗 tinyurl.com/4bnewb5t
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Victoria Nunn @viva-victoria.bsky.social · 11/09/2026
Good regulation for AI in healthcare: what people with learning disabilities, carers and young people told @nationalvoices.bsky.social about safe, trustworthy and equitable use of #AI in healthcare #Health #Healthcare #AIinHealth #AIinHealthcare #LD #Carers #YoungPeople #LearningDisabilities
nationalvoices.org.uk
Good regulation for AI in healthcare: what people with learning disabilities, carers and young people told us
This report summarises what young people, unpaid carers, and people with a learning disability told us about the conditions needed for safe, trustworthy and equitable use of AI in healthcare.
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National Voices @nationalvoices.bsky.social · 04/08/2026
Through a generous grant from The Point of Care Foundation, National Voices is in a position to offer every local Healthwatch the chance to join us as members for the next 12 months, helping to strengthen collaboration, amplify community voices and support person-centred health and care.
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Compassion in Dying @compassionindying.bsky.social · 14/07/2026
Today, we launch our new report: Bridging the gap: How to ensure people's decisions are respected at the end of life. It shows that too many people are still dying in ways they explicitly said they did not want. compassionindying.org.uk/resource/bri...
compassionindying.org.uk
Bridging the gap
How to ensure people’s decisions are respected at the end of life
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National Voices @nationalvoices.bsky.social · 03/06/2026
📢 A few members of the National Voices team will be heading to #ConfedExpo2026 and we can't wait to be there. Ahead of the conference, we've reflected on why staying connected to patients' experiences matters more than ever during a period of change for health and care. 🔗 tinyurl.com/39djwvjy
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National Survivor User Network @nsunnews.bsky.social · 02/06/2026
With other mental health organisations, we have written to Secretary of State Bridget Phillipson & the Chair of the EHRC to raise concerns about the EHRC Code of Practice & the impact it could have on trans & non-binary people’s safety and wellbeing. Read the letter: www.nsun.org.uk/news/joint-l...
nsun.org.uk
Joint letter: voicing concerns about the EHRC Code of Practice
NSUN and other mental health organisations have written to Secretary of State Bridget Phillipson and the Chair of the Equality and Human Rights Commission to raise concerns about the EHRC Code of Prac...
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National Voices @nationalvoices.bsky.social · 02/06/2026
📢 Who will speak for patients when no one is listening? In this week’s blog, Jacob Lant reflects on Parliament’s debate on the Health Bill, exploring two key themes: the proposed Single Patient Record and the future of independent patient voice. 🔗 tinyurl.com/y2ubtwz8
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National Voices @nationalvoices.bsky.social · 28/05/2026
📢 In this week’s blog, Aisha Mazhar unpacks the findings from Arthritis UK's new report, highlighting the barriers to timely diagnosis and the urgent need for holistic, personalised care from day one. Read the blog🔗 tinyurl.com/bj7kyax2 Read the report 👉 tinyurl.com/5cbc29nt
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Centre for Mental Health @centreformh.bsky.social · 14/05/2026
New blog for @nationalvoices.bsky.social from Abdi Hassan from Coffee Afrik CIC and @andybell-centremh.bsky.social on our trauma informed care and racialised communities report. Meaningful trauma-informed care must be anti-racist: www.nationalvoices.org.uk/blogpost/tra... #MentalHealthAwarenessWeek
nationalvoices.org.uk
Trauma-informed care and racialised communities
Abdirahim Hassan and Andy Bell explore why trauma-informed care must also be anti-racist, recognising how structural racism and inequality shape mental health outcomes for racialised communities.
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The Health Foundation @healthfoundation.bsky.social · 11/05/2026
How can the NHS boost productivity? @alisonmoulds.bsky.social​ and Charlotte MacLeod share a snapshot of insights and ideas on the health service’s productivity challenge from respondents to our #NHSProductivityCommission's recent call for evidence. Discover what we heard ⬇️ bit.ly/4wo29ZF
A green background with the text: 'The call for evidence submissions revealed enthusiasm to engage and demonstrated considerable insights on productivity across stakeholder groups.
Alison Moulds
Senior Policy and Engagement Manager
NHS Productivity Commission'
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National Voices @nationalvoices.bsky.social · 12/05/2026
📢 To mark Mental Health Awareness Week, Amy Gill from @rethinkcharity.bsky.social reflects on the growing pressures facing mental health services, the urgent need for safer care, and why lasting change will only happen through sustained investment and collective action. 🔗 tinyurl.com/y2kasd48
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Eamonn Dunne @eamonnjd.bsky.social · 11/05/2026
About two-thirds of people with vision loss report loneliness, and roughly 1 in 4 experience depression or anxiety. Early support and screening are vital for maintaining mental well-being! @rnib.bsky.social @slcouncils.bsky.social @visionaryuk.bsky.social @nationalvoices.bsky.social
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National Voices @nationalvoices.bsky.social · 07/05/2026
🧵 🚀 We’re pleased to share the findings from our recent project with NHS England Transformation Directorate, exploring how patient-facing messaging can be designed and delivered to prompt action while remaining inclusive for people most at risk of exclusion. 🔗 tinyurl.com/bddj5z6a [1/5]
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National Voices @nationalvoices.bsky.social · 16/04/2026
🧵 🚀 Last year we partnered with @thekingsfund.bsky.social , @healthwatchengland.bsky.social & @ipsosintheuk.bsky.social to research patients’ experiences of NHS communications and admin. We found widespread frustration with poor communication, and hard-to-navigate processes. [1/4]
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National Voices @nationalvoices.bsky.social · 25/03/2026
🧵 Today, the 2025 British Social Attitudes (BSA) findings on health and social care were released. 📊 The BSA is a long-running, independent survey tracking public views on key social issues, including health, wellbeing, and public services. [1/6]
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National Voices @nationalvoices.bsky.social · 24/03/2026
🌟 It’s Share for Better Care Week! The Care Quality Commission and @healthwatchengland.bsky.social want to hear from you about your experiences with your local health and social care services. 🔗https://tinyurl.com/4beywchn
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National Survivor User Network @nsunnews.bsky.social · 19/03/2026
🚨 NEWS 🚨 NSUN has today published ‘Not Just a Story’, a new report exploring experiences of engaging with the media as people with lived experience of mental ill-health, distress or trauma. Scroll for a summary of the report and its findings. www.nsun.org.uk/resource/not...
nsun.org.uk
Not Just a Story: the media's engagement with lived experience (2026) - NSUN website
This report explores the experiences of people with lived experience of mental ill-health, distress or trauma when engaging with the media. During the... more
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National Voices @nationalvoices.bsky.social · 13/03/2026
🎉 Congratulations to Gemma Peters at Macmillan Cancer Support and Maddy Desforges OBE at NAVCA on their appointments to the new Civil Society Council. This announcement marks an important moment for engagement between government and civil society.
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National Voices @nationalvoices.bsky.social · 04/03/2026
🧵 ✨ We’re delighted to share that the Care Quality Commission (CQC) has awarded a three-year contract to the Voices for Health Equity Partnership to deliver its Public Engagement Network programme from 1 April. [1/6]
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Compassion in Dying @compassionindying.bsky.social · 24/02/2026
This month we have published new user-led information on assisted dying for our website. Here’s why (a thread) ⬇️ compassionindying.org.uk/blog-post/ne...
compassionindying.org.uk
New user-led content on assisted dying
Our research showed that people need clarity on what an assisted death is, and if it is currently legal in the UK.
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Nuffield Council on Bioethics (NCOB) @nuffieldbioethics.bsky.social · 09/02/2026
This week marks the next stage of our major public dialogue reviewing the 14-day rule for human embryo research, in partnership with @sciencewise.bsky.social and delivered by @ipsosintheuk.bsky.social, @nationalvoices.bsky.social and @theliminalspace.bsky.social. Find out more here:🔗 bit.ly/4rFZZ4B
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National Voices @nationalvoices.bsky.social · 12/02/2026
📢 Beyond compliance: Why patient engagement must shape medical device design In this week's blog, Louis Horsley, National Voices' Research and Insight Manager, stresses the importance of medical device design being shaped by meaningful patient engagement. 🔗 tinyurl.com/2bdk3m42
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National Voices @nationalvoices.bsky.social · 06/02/2026
🚀 Organising cancer care around people, not systems Earlier this week, the government launched its National Cancer Plan for England. In a new blog, @matt-heath.bsky.social, Policy and Comms Manager at National Voices, reflects on the Plan and its person-centred approach. 🔗 tinyurl.com/ye23uhwh
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National Voices @nationalvoices.bsky.social · 05/02/2026
🚀 Turning lived experience into impact In this week’s blog, Katie-Rose, a National Voices' Lived Experience Partner, reflects on using her lived experience to help shape and analyse our research into patients’ experiences of medical devices outside hospital settings. 🔗 tinyurl.com/bp566t43
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National Voices @nationalvoices.bsky.social · 15/01/2026
🧵 🚀 Today, we’ve published a new report with the Department of Health and Social Care, Patient views on medical devices prescribed to them outside of hospital in England, exploring people’s experiences of using medical devices prescribed under Part IX of the NHS Drug Tariff. 📄 tinyurl.com/ys754rbp
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National Voices @nationalvoices.bsky.social · 18/12/2025
🚀 We’re pleased to announce the publication of our new report summarising a roundtable discussion we held with some of our member charities in mid-November. [1/4]
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National Voices @nationalvoices.bsky.social · 25/11/2025
In this week’s blog, Tim Clarke shares how the NHS Transformation Directorate is tackling digital exclusion head-on, from library partnerships and free data schemes to inclusive design and accessibility testing across the NHS App and website. 🔗 tinyurl.com/4aefm427
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National Voices @nationalvoices.bsky.social · 17/11/2025
📢 In this week’s blog, Jacob Lant, Chief Executive at National Voices, argues that the NHS doesn’t need more patient feedback, it needs to start listening to and acting on the vast experience data it already has. 👉 tinyurl.com/z62f8hbr
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National Voices @nationalvoices.bsky.social · 14/11/2025
📢 In this week’s blog, Louis Horsley, National Voices’ Research and Insight Manager, shares new research commissioned by the Care Quality Commission (CQC) for the State of Care 2024/25 report, exploring people’s experiences of follow-up care after hospital discharge. 🔗 tinyurl.com/49skzzfu
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National Voices @nationalvoices.bsky.social · 13/11/2025
🧵 📢 The British Medical Association (BMA) has announced industrial action by Resident Doctors at NHS organisations across England from 14 November to 19 November. Here’s our response. 1/5
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National Voices @nationalvoices.bsky.social · 11/11/2025
🧵 💡 How do we get more health value from every pound invested in the NHS? National Voices is proud to be supporting @The Health Foundation with their new NHS Productivity Commission, which is asking this very question. [1/4]
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National Voices @nationalvoices.bsky.social · 10/11/2025
📢 In this week’s blog, Catherine Jameson, Vikki Wylde, Emma Johnson and Kirsty Roberts, researchers from the @bristoluni.bsky.social, share how they co-produced an inclusive patient information leaflet (PIL) template to make research participation more accessible to everyone.
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National Voices @nationalvoices.bsky.social · 27/10/2025
We recently said a fond farewell to Sharon Brennan, after two and a half years as Director of Policy & External Affairs. Before moving on, Sharon penned a thoughtful blog about her time at National Voices, and the impact of embedding lived experience in policy influencing. 🔗 tinyurl.com/yp9uxhmt
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National Voices @nationalvoices.bsky.social · 24/10/2025
🧵 🚀 National Voices’ new research with the Care Quality Commission explores patients’ experiences of follow-up care after leaving hospital. 🔗 tinyurl.com/76nepdcx [1/4]
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Carers UK @carers-uk.bsky.social · 21/10/2025
Unpaid carers are at breaking point. Our new #CostOfCaring report reveals a system stretched to its limit – and it’s carers who are paying the price. 52% are caring for longer hours 49% have cut back on essentials like food and heating 42% say their health has worsened
A person opens an almost empty kitchen cupboard, highlighting the text: "49% of carers said they’ve cut back on essentials such as food, heating, clothing, and transport costs." The logo "Carers UK" is in the top left corner.
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National Voices @nationalvoices.bsky.social · 22/10/2025
Today, the National Voices team had the pleasure of hearing from @tinukeawe.bsky.social , co-founder of Five X More, who shared the vital work she and Clotilde Abe are leading to improve the experiences and outcomes of Black maternal health in the UK. [1/5]
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National Voices @nationalvoices.bsky.social · 15/10/2025
To mark #ChallengePoverty Week, Jamie Thunder, Senior Policy Manager at @mariecurieuk.bsky.social reflects in our latest blog on how poverty shapes people’s final months and highlights the action and support needed to end financial hardship at the end of life. 🔗 tinyurl.com/bdfpnjdf
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National Voices @nationalvoices.bsky.social · 08/10/2025
In this week’s blog, Gethyn Williams, part of the GoVo Help Team at the Royal Voluntary Service, introduces GoVo, a new national volunteering platform designed to make finding and offering volunteering opportunities simpler, more flexible, and inclusive. 🔗 tinyurl.com/ym9ywy37
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National Voices @nationalvoices.bsky.social · 01/10/2025
How far have we come in improving LGBTIQ+ cancer care? In this week’s blog, OUTpatients explores progress in LGBTIQ+ cancer care, from screening access to specialist guidance, and discusses what still needs to be done to achieve equity. 🔗 tinyurl.com/ycypmyaa
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Usha Grieve @ushagrieve.bsky.social · 29/09/2025
Good to hear @sharonbrennan.bsky.social @nationalvoices.bsky.social championing the crucial role that VCSE’s will play in realising the shift to community and brilliantly making the point that the 10YP care plan target must not result in tokenistic recording of patient wishes. #LabourConference2025
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National Voices @nationalvoices.bsky.social · 23/09/2025
🧵 Why we’re speaking out: National Voices is committed to challenging inequality and discrimination – in access to health and social care, across the VCSE sector, and in wider society where we can. [1/4]
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National Voices @nationalvoices.bsky.social · 22/09/2025
In her farewell blog, our Senior Policy and External Affairs Officer, @lucysey.bsky.social, reflects on three and a half years at National Voices, exploring how collaboration can turn individual stories into lasting system change. 🔗 tinyurl.com/58ssppne
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National Voices @nationalvoices.bsky.social · 19/09/2025
🧵 Today is LGBT+ Parents and Carers Day 🌈 At National Voices, we stand with Proud 2 b Parents and all those celebrating. This year’s theme is Visibility — ensuring LGBT+ parents, carers and their children are seen, heard and valued. #LGBTQIAParentsCarersDay [1/3]
Colourful text reads "LGBT+ Parents & Carers Day", with capital letters stylised as playful characters, and a small Progress Pride flag next to the word "Day".
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Leukaemia UK @leukaemiauk.bsky.social · 18/09/2025
📢 EXCLUSIVE: Over a quarter (26%) of leukaemia patients in England experience avoidable delays in their diagnosis, resulting in a significant impact on patient outcomes and NHS resources, according to the results of a study commissioned by Leukaemia UK. 👇 (1/2)
An orange graphic with an icon of a timer. The text reads, “1 in 4 leukaemia patients faces an avoidable delay in diagnosis”.
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Leukaemia UK @leukaemiauk.bsky.social · 18/09/2025
Read more about the findings in our report: www.leukaemiauk.org.uk/news/1-in-4-... (2/2)
leukaemiauk.org.uk
1 in 4 leukaemia patients in England experiences an avoidable delay in diagnosis - Leukaemia UK
A first of its kind study, commissioned by Leukaemia UK, has revealed that a quarter (26%) of leukaemia patients in England experience avoidable delays in their diagnosis, resulting in a...
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Compassion in Dying @compassionindying.bsky.social · 02/09/2025
Last month @nationalvoices.bsky.social published a blog where we explored what information and support people need in order to understand assisted dying laws that are currently being considered across the British Isles. compassionindying.org.uk/blog-post/as...
compassionindying.org.uk
Assisted dying: how do we meet people’s needs and why the third sector should lead the way
As assisted dying laws are being debated in Parliaments across the British Isles, we asked the people we support what information and support they need to understand the law and have conversations wit...
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National Voices @nationalvoices.bsky.social · 28/08/2025
📣 We’re hiring! National Voices is looking for a Project and Policy Officer to support our work advocating for inclusive and person-centred care. We welcome applications from people who want to make a real difference in policy and practice.
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National Survivor User Network @nsunnews.bsky.social · 27/08/2025
@nationalvoices.bsky.social are recruiting Lived Experience Partners to join their team. Lived Experience Partners will work with the team to inform and influence their work, providing unique insight and expertise. Apply for this role by 12th September. www.nationalvoices.org.uk/work-with-us...
nationalvoices.org.uk
Vacancies
Closing date: Friday 12 September 2025  National Voices is recruiting Lived Experience Partners to join our team.   Our Lived Experience Partners are people with either:    Our Lived Experience Partne...
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