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National Survivor User Network

@nsunnews.bsky.social
954 followers 152 following 576 posts

Creating a lived experience-led mental health justice movement to fight harmful systems and build better alternatives. Become a member via our website: linktr.ee/NationalSurvivorUserNetwo…

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National Survivor User Network @nsunnews.bsky.social · 14h
"Apart from meagre attempts at symptom management and harm reduction, where is the real commitment to helping people find peace of mind and fulfilling lives?" An anonymous NSUN member writes on their experiences of secondary care mental health services. www.nsun.org.uk/the-hopeless...
nsun.org.uk
The hopelessness of secondary care mental health services
Apart from meagre attempts at symptom management and harm reduction, where is the real commitment to helping people
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Stop Oxevision @stopoxevision.bsky.social · 02/10/2026
Next week the Lampard Inquiry will resume with hearings to hear evidence that may support the need for interim recommendations to be issued regarding observations and technology, including the use of Oxevision (now LIO health) www.bindmans.com/news-insight...
bindmans.com
Lampard Inquiry to consider further evidence in support of interim recommendations on the use of Oxevision in mental health inpatient settings | Bindmans
The Lampard Inquiry is a statutory investigation into deaths of people who died under the care of mental health services between 2000 and 2023.
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Just Treatment @justtreatment.org · 02/10/2026
Last night, hundreds of people gathered outside Palantir's London HQ to demand an end to their #NHS contract. The rally closed a day of protests at 40+ locations across England, and a week of action against Palantir around the world. ✊ #PeopleVsPalantir #NoPalantirInTheNHS #BackTheBreakClause
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Survivors' Poetry 🎤📚🌈 @survivors-poetry.bsky.social · 30/09/2026
SP returns to the Harrison in King's Cross Tuesday 13 October and we are so excited to welcome Oliver James Lomax as featured poet and Archie Shuttler as featured musician...🥰
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Good Law Project @goodlawproject.org · 30/09/2026
🚨 DEADLINE EXTENDED🚨 We've extended the deadline to apply for our Campaigns and Communications Manager to Sunday 4th! Apply here 👇 hr.moorepay.co.uk/hr/recruitment/ro…
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Manchester Disabled People Against Cuts @mdpac.bsky.social · 30/09/2026
Palestine is a Disability Justice Issue Manchester Disabled People Against Cuts Saturday 17th October Ascension Church Hulme M15 5TQ 11- 4.30 With Makan & Aman Ahluwalia-Hinrichs. •BSL•Accessible Venue• www.eventbrite.com/e/palestine-...
Palestine is a Disability Justice Issue  
Manchester Disabled People Against Cuts
Saturday 17th October 
Ascension Church Hulme
M15 5TQ
11- 4.30
With
Makan & Aman Ahluwalia-Hinrichs.
•BSL•Accessible Venue•
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Tympanic & Frisketty @luckyerica3.bsky.social · 29/09/2026
Makan are great, I've no doubts this will become such a valuable space.
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National Survivor User Network @nsunnews.bsky.social · 29/09/2026
In October 2026 the Lampard Inquiry is set to hear more evidence relating to Oxevision, a for-profit surveillance technology being used in NHS psychiatric wards. Our long-read outlines the Lampard Inquiry so far, and calls for the use of Oxevision to be ceased. www.nsun.org.uk/news/nsun-lo...
nsun.org.uk
NSUN long read: the Lampard Inquiry, Oxevision, and the risks of for-profit surveillance tech
This long-read outlines the background and timeline of events in the Lampard Inquiry, and argues that the use of Oxevision/LIO technology must be ceased immediately in all settings.
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National Survivor User Network @nsunnews.bsky.social · 29/09/2026
Announcing Madness & Palestine Solidarity Circle, a bi-monthly online sharing space co-hosted with @makanrights.bsky.social. Join us for our first session on 20 October to think, learn, and feel about Palestine, mental health, militarism, and colonialism. www.nsun.org.uk/news/madness...
nsun.org.uk
Madness and Palestine Solidarity Circle
An online sharing space to think, learn, and feel about Palestine, mental health, militarism, and colonialism.
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Good Law Project @goodlawproject.org · 25/09/2026
💫 We’re hiring 💫 We’re looking for a Campaigns & Communications Manager to turn complex legal and political issues into campaigns people understand, care about, and act on. Apply here 👇 hr.moorepay.co.uk/hr/recruitment/ro…
hr.moorepay.co.uk
Good Law Project
About the Role This is a role for someone who knows that great campaigns don’t just inform people, they move them. Someone who can see the bigger picture, move quickly when an opportunity emerges,
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National Survivor User Network @nsunnews.bsky.social · 23/09/2026
"My silence was not the absence of a story; it was the consequence of telling it so many times." Donna Samantha on the cumulative mental health impact of constantly proving you need support. www.nsun.org.uk/when-distres...
nsun.org.uk
When distress becomes administration: the cumulative mental health impact of constantly proving you need support
At what point does a person stop being someone in distress and become a case number to be managed?
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Asylum Magazine @asylummagazine.bsky.social · 21/09/2026
www.nsun.org.uk/what-does-pe...
nsun.org.uk
What does people’s use of AI reveal about the unmet needs of those using mental health services?
The most interesting question isn’t why people are turning to AI chatbots, but what kind of support is proving difficult to find elsewhere.
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Migrants Organise @migrantsorganise.bsky.social · 21/09/2026
On October 15, join us and @biddetention.bsky.social for the opening night of Taking Liberties, a new exhibition led and curated by people with lived experience of immigration detention and reporting.⁠ 🎟️ actionnetwork.org/events/takin... ℹ️ www.migrantsorganise.org/taking-liber...
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Make Space @makespaceco.bsky.social · 21/09/2026
We're delighted to see so many people sign up for workshops in our Arts and Ourselves creative programme already! We know we've been quiet for a while, so we thought we'd reintroduce ourselves... (1/6) www.makespaceco.org/artsandourse...
makespaceco.org
Arts & Ourselves — Make Space
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National Survivor User Network @nsunnews.bsky.social · 22/09/2026
Tomorrow we come together online to discuss what solidarity between the mad, disabled and migrant justice movements could look, and how we can work together to push back against efforts to pit us against each other. 4-5.30pm, sign up below. www.nsun.org.uk/news/borders...
nsun.org.uk
Borders, migration and mental health (with Brian Dikoff & Francesca Humi)
How do people experiencing mental ill-health navigate the immigration system? How does immigration policy seek to create distress?
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Islington Mind @mind-islington.bsky.social · 17/09/2026
"ChatGPT gave me continuity, language and a way to interrogate my care. It also flattered, over-validated and mirrored my framing. Ultimately, however, it responded to me as a person asking a question, rather than first and foremost as a bipolar patient"
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Discovering Liveability @d-liveability.bsky.social · 15/09/2026
Hub Event! 💻 More Than a Story: The Hidden Impact of Lived Experience Engagement Join us for a free online event on Wednesday 28th October where Maria Roberts will share learning from the UK and Australia about gathering suicide lived and living experience with safety and purpose.
events.bookitbee.com
More Than a Story: The Hidden Impact of Lived Experience Engagement
Hub Event with Maria Roberts (The Churchill Fellowship)
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National Survivor User Network @nsunnews.bsky.social · 15/09/2026
A growing number of people are turning to AI chatbots to support their mental health, with 31% of a surveyed group saying they preferred the experience over formal services. In this blog, Hayley explores what AI use reveals about mental health services. www.nsun.org.uk/what-does-pe...
nsun.org.uk
What does people’s use of AI reveal about the unmet needs of those using mental health services?
The most interesting question isn’t why people are turning to AI chatbots, but what kind of support is proving difficult to find elsewhere.
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National Survivor User Network @nsunnews.bsky.social · 15/09/2026
There is just one day until our panel discussion on borders, migration and mental health! Secure one of the final spots to hear from organisers, Brian Dikoff and Francesca Humi on Zoom from 4.00-5.30pm. www.nsun.org.uk/news/borders...
nsun.org.uk
Borders, migration and mental health (with Brian Dikoff & Francesca Humi)
How do people experiencing mental ill-health navigate the immigration system? How does immigration policy seek to create distress?
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Official page for Not The Void UK @notthevoiduk.bsky.social · 14/09/2026
Our website will be inactive while we switch over some billing details, it will be back. If you need us, you can always get us on: NotTheVoidUK@protonmail.com (E2EE, no AI used.) We have 4 facilitators who keep up with emails and will send you info re meetings. You are never a bother to us.
A cartoon by D Fisk. 

A scribbly black void declares
We're sorry but the voice mailbox for the void is full. Plesse try screaming into it at a later time to be transferred to the abyss please scream two.

 A woman points at a floating void saying 'yeah that's what yhe abyss's message said.
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Healing Justice Ldn @healingjusticeldn.bsky.social · 14/09/2026
Reminder if you want to explore more about the role, we are holding a Q&A Webinar 5pm TOMORROW - us02web.zoom.us/meeting/regi...
us02web.zoom.us
Welcome! You are invited to join a meeting: Healing Justice Ldn - Head of Organisational Strategy & Operations Webinar. After registering, you will receive a confirmation email about joining the meeti...
Welcome! You are invited to join a meeting: Healing Justice Ldn - Head of Organisational Strategy & Operations Webinar. After registering, you will receive a confirmation email about joining the meeti...
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Hearing Voices at Mind in Camden @hearingvoicesmic.bsky.social · 14/09/2026
The Hearing Voices Movement is a global community, and there are some big events coming up: - Intervoice Day Online, 16 November 2026 www.eventbrite.com/e/intervoice... - The World Hearing Voices Congress, Copenhagen, 17-18 November 2026 psykovision.dk/world-hearin... #WorldHearingVoicesDay
eventbrite.com
Intervoice Day-2026
Get ready to raise your voice and share your story at Intervoice Day-2026, where every voice matters!
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Disability News Service @johnpring.bsky.social · 11/09/2026
The Labour government risks alienating voters if it ignores new research which shows the public strongly oppose cuts to spending on disability benefits, disabled people’s organisations warned the PM this week. #DisabilityBenefits #TimmsReview www.disabilitynewsservice.com/burnham-must...
disabilitynewsservice.com
Burnham ‘must pay heed’ to new research which shows public do not back cuts to disability benefits
The Labour government risks alienating voters if it ignores new research which shows the public strongly oppose cuts to spending on disability benefits, disabled people’s organisations warned the p…
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Official page for Not The Void UK @notthevoiduk.bsky.social · 10/09/2026
Thank you for the mention, we are so grateful for all the knowledge and experience NSUN has shared with us, as well as funding we've recieved. Our upcoming Autumn/Winter dates will be up on our website soon. You can use the contact form to learn more and register for when we meet 20th September.
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National Survivor User Network @nsunnews.bsky.social · 10/09/2026
On World Suicide Prevention Day, we are spotlighting some of the work and writing that takes us beyond conversations around 'prevention' and instead considers how we can meaningfully support people experiencing suicidality and confront the conditions that can make life feel unbearable.
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Asylum Magazine @asylummagazine.bsky.social · 08/09/2026
Read a sample article from the Summer 2026 issue of @asylummagazine.bsky.social
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Survivors' Poetry 🎤📚🌈 @survivors-poetry.bsky.social · 09/09/2026
Coming up in two weeks time, Tuesday 22 September, Survivors Poetry Zoom Party, with @alanparrywriter.co.uk and @throwawayreg.bsky.social a featured poet double bill for the Ages. And open mic spoken word and music, of course 🥰 Ping us if you are for any reason not signed up to the mailing list 🙏❤️
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National Survivor User Network @nsunnews.bsky.social · 09/09/2026
How do people experiencing mental ill-health navigate the immigration system? How does immigration policy seek to create distress, and what can we do about it? Join us for a virtual Q&A on September 16th to find out.  www.nsun.org.uk/news/borders...
nsun.org.uk
Borders, migration and mental health (with Brian Dikoff & Francesca Humi)
How do people experiencing mental ill-health navigate the immigration system? How does immigration policy seek to create distress?
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National Survivor User Network @nsunnews.bsky.social · 02/09/2026
More than a decade has passed since Parliament abolished the Imprisonment for Public Protection sentence, yet almost 2,000 people remain subject to its consequences. In our latest blog, Sarah Markham unpacks the ongoing impact of the IPP sentence. www.nsun.org.uk/the-kafkaesq...
nsun.org.uk
The Kafkaesque trap of imprisonment for public protection
More than a decade has passed since Parliament abolished the Imprisonment for Public Protection (IPP) sentence, yet almost 2,000 people remain subject to its consequences.
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National Survivor User Network @nsunnews.bsky.social · 02/09/2026
What does solidarity look like between the mad, disabled, and migrant justice movements? Our 2-part event series on borders, migration and mental health will explore this question and more on 16 and 23 September, 4-5.30pm. www.nsun.org.uk/news/borders...
nsun.org.uk
Borders, migration and mental health (with Brian Dikoff & Francesca Humi)
How do people experiencing mental ill-health navigate the immigration system? How does immigration policy seek to create distress?
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National Survivor User Network @nsunnews.bsky.social · 27/08/2026
NSUN's September Mad Campaigns Lab will explore borders, migration and mental health. Join us online on September 16th to hear organisers Brian Dikoff and Francesca Humi discuss how immigration policy seeks to create distress, and what we can do about it www.nsun.org.uk/news/borders...
nsun.org.uk
Borders, migration and mental health (with Brian Dikoff & Francesca Humi)
How do people experiencing mental ill-health navigate the immigration system? How does immigration policy seek to create distress?
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Campaign for Disability Justice @campaignfdj.bsky.social · 26/08/2026
What an opportunity! The @ldnwriterscentre.bsky.social is commissioning Disabled writers in the capital to produce original work. Find out more and apply: buff.ly/JbQGgNE
londonwriterscentre.org.uk
Disabled Writers Commissions | London Writers Centre
Learn more about Disabled Writers Commissions, a Commissions, D/deaf, disabled and neurodivergent project from the London Writers Centre.
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National Survivor User Network @nsunnews.bsky.social · 26/08/2026
"I was bearing witness to something profound about the power of lived experience, leadership, connection and peer support." Alison Faulkner on the experience of supporting CAPITAL to tell its story. www.nsun.org.uk/capital-our-...
nsun.org.uk
CAPITAL: Our story
I was bearing witness to something profound about the power of lived experience, leadership, connection and peer support.
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ESRC Centre for Society and Mental Health @kingscsmh.bsky.social · 20/08/2026
Position paper, "Exploring the value of lived experience in a mental health research centre," co-authored by the Lived Experience Advisory Board (LEAB), ESRC Centre for Society and Mental Health (CSMH). @hannakienzler.bsky.social @ukri.org @nsunnews.bsky.social link.springer.com/article/10.1...
link.springer.com
Exploring the value of lived experience in a mental health research centre - Social Psychiatry and Psychiatric Epidemiology
This position paper has been collectively written and co-produced by the Lived Experience Advisory Board at the ESRC Centre for Society and Mental Health, along with a survivor researcher, lived exper...
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National Survivor User Network @nsunnews.bsky.social · 14/08/2026
NSUN is taking a summer break to rest and recuperate from a busy year so far. Our (virtual) office will be closed from 5pm today until Monday the 24th of August, so please note that our social media channels will not be monitored next week.
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National Survivor User Network @nsunnews.bsky.social · 12/08/2026
On a recent episode of The Radical Therapist podcast, Chloe Yates was asked a question which stayed with her: Do you think diagnoses can ever be liberating? Or are they always entangled in systems of control? She responds in our latest blog. www.nsun.org.uk/power-libera...
nsun.org.uk
Power, liberation and labels; diagnoses as descriptive terms
The discourse on diagnosis has been co-opted by neo-liberalism to justify cuts to state-funded mental health care.
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Elsa Williams @pidgewilliams.bsky.social · 11/08/2026
New piece for @nsunnews.bsky.social on Uta Frith and the worrying trend of voyeurism within autism research that has endured longer than any sappy Instagram infographic on burnout. Wrote this for the only reason I ever write anything: I felt like I had to.
nsun.org.uk
Uta Frith confirms my longstanding grudge against psychology: there’s a problem with power and permission
When the power shifts to a community owning the language, there is profound discomfort in medical spaces and beyond.
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National Survivor User Network @nsunnews.bsky.social · 11/08/2026
"When the power shifts to a community owning the language, there is profound discomfort in medical spaces and beyond." @pidgewilliams.bsky.social responds to a recent paper claiming that the diagnostic threshold for autism has become ‘too broad’. www.nsun.org.uk/uta-frith-co...
nsun.org.uk
Uta Frith confirms my longstanding grudge against psychology: there’s a problem with power and permission
When the power shifts to a community owning the language, there is profound discomfort in medical spaces and beyond.
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Discovering Liveability @d-liveability.bsky.social · 06/08/2026
Reminder! 🔔 Save the date: 30th September 2026 🗓️ Join the #DiscoveringLiveability team for the launch of our Lived and Living Experience Hub in Suicide Research. Details about what to expect from this online event will be shared at a later date. You can book your free ticket via the link below! 🔗
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National Survivor User Network @nsunnews.bsky.social · 05/08/2026
There is just under a week remaining to apply for our Grassroots Comms Fund! We are offering informal user-led groups with no/very little funding up to £300 to support their communications work. Apply by 9am on the 10th August. www.nsun.org.uk/news/nsun-gr...
nsun.org.uk
NSUN Grassroots Comms Fund 2026
£300 grants for grassroots user-led groups working around mental health to support communications activities.
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Victoria Nunn @viva-victoria.bsky.social · 03/08/2026
Storytelling becomes a carefully managed practice used to generate moments of emotional impact without disrupting power. People feel good, without anything changing Anonymous @nsunnews.bsky.social member writes on the extraction, curation and management of lived experience narratives
nsun.org.uk
Lived experience without change is just storytelling
Narratives are increasingly extracted, curated, managed, and circulated within systems that remain fundamentally unchanged.
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Greater Manchester Coalition of Disabled People @gmcdp.bsky.social · 30/07/2026
GM Disability Justice Picnic 1-4pm, Saturday 22nd August Alexandra Park Pavilion & Cafe M16 8PJ Food, Drink, games, socialising, open mic.
GM Disability Justice Picnic
1-4pm, Saturday 22nd August
Alexandra Park Pavilion & Cafe M16 8PJ
Food, Drink, games, socialising, open mic.
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National Survivor User Network @nsunnews.bsky.social · 28/07/2026
"Without power, involvement has limits. It can inform, it can influence at the edges, but it does not shape decisions in a meaningful or consistent way." Duncan Marshall, CEO of CAPITAL, on why lived experience must hold power. www.nsun.org.uk/from-involve...
nsun.org.uk
From involvement to accountability: why lived experience must hold power
You cannot claim co production while removing the conditions that allow lived experience to be independent, supported, and influential.
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National Survivor User Network @nsunnews.bsky.social · 28/07/2026
Our Grassroots Comms Fund for unregistered groups could contribute to the costs of your: - Media training - Website hosting - Design work - Social media advertising Apply for up to £300 to cover the costs of your communications-related work by 10/8/26. www.nsun.org.uk/news/nsun-gr...
nsun.org.uk
NSUN Grassroots Comms Fund 2026
£300 grants for grassroots user-led groups working around mental health to support communications activities.
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Stop Oxevision @stopoxevision.bsky.social · 24/07/2026
There is no "strong independent evidence" that [Oxevision] has improved patient safety, an inquiry has heard [The experts] concluded the studies did "not provide strong independent evidence of improved patient safety, acceptability or cost effectiveness" www.bbc.co.uk/news/article...
bbc.co.uk
Evidence lacking for Oxevision monitoring tech, inquiry hears
The Lampard Inquiry hears from experts about Oxevision technology.
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Manchester Community Central @mcrcommcentral.bsky.social · 20/07/2026
Applications are still OPEN for the Live Well Communities Fund: Empowering Leaders Social Action Grants! ✨15 grants of £1,500 available ✨Short leadership development programme ✨Support to bring your community ideas to life Apply here: ow.ly/h6ak50ZkzAM
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Blue @bluehmgn.bsky.social · 20/07/2026
this summer i'm taking a phd break to intern for @gfsc.community - i wrote a blog about their community technology partnership approach & why i think it matters to the care sector. I talk about the hell that oxevision is and the key work of the stop oxevision campaign. gfsc.community/how-health-t...
gfsc.community
How health technology is replacing care with surveillance
Surveillance technology in health and social care like Oxevision is intrusive, coercive and not fit for purpose, and much of its development links to warfare. Why is it being commissioned, and where c...
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