iiinova — where your digital self keeps evolving

Marie Curie UK @mariecurieuk.bsky.social · 08/10/2026

People think hospice care only happens in hospices. It doesn't. Our nurses work in A&E to help people get the end of life care they need. They’re in GP practices identifying people who need care and helping them get it. They visit people’s homes to manage pain and to support families. 💛

191

Marie Curie UK @mariecurieuk.bsky.social · 15/09/2026

Terminally ill people deserve financial security. 💛 People with a terminal illness, no matter their age, should be able to access a State Pension level of income, so everyone has the money they need to live well in their final months. #PensionAwarenessWeek

022

Marie Curie UK @mariecurieuk.bsky.social · 17/08/2026

Nobody who is dying should be worrying about a council tax bill. 💔 We’re calling on councils in England to exempt people with less than 12 months to live.

142

Marie Curie UK @mariecurieuk.bsky.social · 14/08/2026

🚨 New data show significant gaps in end of life care in hospitals across England. Too many people are missing out on conversations about what matters most to them, and inequalities in care remain. The government must act.

041

Marie Curie UK @mariecurieuk.bsky.social · 05/08/2026

🚨 Thousands of terminally ill people are missing out on fast-tracked access to benefits payments they’re entitled to. This isn’t right. Everyone diagnosed with a terminal illness should be told what financial support is available – and how to access it quickly.

022

Marie Curie UK @mariecurieuk.bsky.social · 23/07/2026

❗One assessment for PIP costs around £282. Yet people living with a terminal illness are at risk of being re-assessed every three years. That’s public money being used on an outcome that rarely changes AND it adds stress and admin for people who are seriously ill. It doesn’t make sense.

021

Marie Curie UK @mariecurieuk.bsky.social · 20/07/2026

The UK government has already acknowledged the crisis in end of life care. It’s even set out plans to improve it. But plans alone won't fix the problem. Without dedicated investment, little will change. So Andy Burnham, are you with us? 💛

A letter written to Andy Burnham from Marie Curie, which reads:

"Dear Andy Burnham, Nobody should have to watch someone they love die without proper care and support.

But right now, that's what's happening.

Nearly 1 in 3 people die without proper end of life care.

People’s final days are spent in distress and families are left to cope alone.

We know that a better end of life is possible.

But to get there, services need investment.

Are you with us?

Sincerely, Marie Curie"

021

Marie Curie UK @mariecurieuk.bsky.social · 17/07/2026

Andy Burnham knows end of life care in the UK is broken. He now has the chance to fix it. 📹 Video from BBC Radio Manchester

111

Marie Curie UK @mariecurieuk.bsky.social · 16/07/2026

🚨 MPs head off for their summer break today. While Parliament is away, 22,000 people in England will die without the care they need. Terminally ill people deserve better. We should all get to spend our final days comfortable, free of avoidable pain and cared for.

031

Marie Curie UK @mariecurieuk.bsky.social · 15/07/2026

Financial anxiety is real. Now imagine living with an illness that’s only going to get worse and you rely on financial support to live. Yet you’re still being asked to prove how ill you are, again and again. This is why we need a more compassionate social security system.

000

Marie Curie UK @mariecurieuk.bsky.social · 09/07/2026

People living with an illness that won’t get better deserve financial security until the very end. Repost if you agree. 💛

045

Marie Curie UK @mariecurieuk.bsky.social · 07/07/2026

Imagine finding out your cancer is terminal by accident. This is happening in the NHS right now. Poor communication is leaving patients frightened, confused and unsupported at the end of life. 💔 This has to change.

231

Marie Curie UK @mariecurieuk.bsky.social · 23/06/2026

Everyone, everywhere deserves good end of life care. It should be available in people’s homes, in hospitals, GP surgeries and care homes. Care should be available at night, on weekends, and before families reach breaking point. Repost if you agree. 💛

001

Marie Curie UK @mariecurieuk.bsky.social · 22/06/2026

We can’t go on like this. 💔 The next Prime Minister must be the one to fix end of life care for good. Everyone deserves to spend their final days comfortable and cared for, where they want to be and with the people who matter most to them.

Close-up image of Keir Starmer, wearing a suit and burgundy tie. . A yellow text banner across the image reads: “6 prime ministers in 10 years” followed by a right arrow symbol, encouraging the viewer to swipe to the next image.

A hospital corridor with a wheeled hospital bed in the foreground, partially covered with a white sheet and dark clothing placed on top. Doors and clinical equipment line the corridor in the background. A yellow text banner across the centre reads: “the next must fix the end of life care crisis” with a siren emoji.

030

Marie Curie UK @mariecurieuk.bsky.social · 19/06/2026

Hi James Murray, congratulations on your new job 👋 As the new Secretary of State for Health and Social Care, we need you to urgently prioritise fixing end of life care. You have the power to make sure everyone has care and comfort in their final days of life - which is what we all deserve. 💛

Close-up of a yellow Marie Curie campaign board, with a quote from a campaigner that reads: “Everyone should have the right to excellent holistic end of life care in a place of their choosing. Both my younger sister and brother had a ‘good death’ pain free in a place of their choosing. You only get one chance to get it right.”

040

Marie Curie UK @mariecurieuk.bsky.social · 18/06/2026

OVER 3,000 people in Wales have ONE message for the new Welsh Government… ⏰ It’s time to fix end of life care. Too many people aren’t getting compassionate, dignified care and support in their final days of life. This is unacceptable. It has to change now – nawr.

011

Marie Curie UK @mariecurieuk.bsky.social · 11/06/2026

REACT, a service we provide with Bradford Teaching Hospitals, won an NHS Excellence Award! 🎉 Together we’re changing what happens when terminally ill people come to A&E - identifying those in their last year of life and getting rapid, specialist care in place at home. We couldn’t be more proud 💛

Group photo of the Bradford Hospice and Bradford Teaching Hospitals REACT team on stage at the NHS Excellence Awards, standing together and holding their award, with the NHS Excellence Awards backdrop behind them.

031

Reposted by Marie Curie UK

The PSP Association @pspassociation.bsky.social · 28/05/2026

We support @mariecurieuk.bsky.social’s call on the #government to ensure people living with #terminal conditions like PSP & CBD can access #financial support easier. Our recent #survey found 65% of people with PSP & CBD experience new costs they didn’t have before.

021

Marie Curie UK @mariecurieuk.bsky.social · 29/05/2026

This is needed. But for people who are dying & need urgent pain relief, it won’t be enough. We need more pharmacies with the right medicines, tools and training to support people in the last 12 months of life - so people get the care they deserve in their community 💛 www.bbc.co.uk/news/article...

bbc.co.uk

Pharmacies in England to prescribe more medication from autumn

The £340m deal will see five common conditions added to the list of things pharmacists can prescribe medication for from this autumn.

011

Marie Curie UK @mariecurieuk.bsky.social · 28/05/2026

People living with life-limiting illnesses that will only get worse shouldn’t have to be put through repeated benefits reassessments. They add stress and paperwork at a time when people are already dealing with so much. It has to stop. 🛑 www.independent.co.uk/news/uk/home...

independent.co.uk

Stop forcing terminally ill benefit claimants to prove illness, charities urge

Exclusive: The current system is ‘simply wrong’, more than 30 organisations write

23011

Marie Curie UK @mariecurieuk.bsky.social · 07/05/2026

❌ Nobody should die alone or in pain. ✅ Everyone deserves compassion, comfort and dignity at the end of their life. Whoever forms the next governments in Scotland and Wales has an urgent responsibility to improve end of life care, so everyone gets the support they need. Agree? Look below 👀 👇

132

Marie Curie UK @mariecurieuk.bsky.social · 06/05/2026

Ahead of the elections in Scotland and Wales tomorrow, we have one message for politicians: 🚨 Will you fix palliative and end of life care? Terminally ill people are spending their final weeks alone, in pain and in busy, unfamiliar hospital wards, when most people would prefer to be at home.

233

Marie Curie UK @mariecurieuk.bsky.social · 24/04/2026

The assisted dying debate has brought a lot of attention to what matters at the end of life. We’re not for or against assisted dying. We're focused on everyone getting the care and support they need at the end of their life. And right now, too many people are dying in pain and distress... (1/2)

100

Reposted by Marie Curie UK

Sue Ryder @sueryder.bsky.social · 24/04/2026

We've joined @age-uk.bsky.social, @hospiceuk.bsky.social, @mariecurieuk.bsky.social, and Together for Short Lives to call for urgent action in an open letter to Wes Streeting, as nearly one in three people die without the care they need. (Thread)

Quote from Sue Ryder Chief Executive James Sanderson reads "The Terminally Ill Adults (End of Life) Bill may be concluding in Parliament, but the Government's focus on end-of-life care reform cannot die with that bill."

111

Marie Curie UK @mariecurieuk.bsky.social · 15/04/2026

The Senedd election is less than a month away. But end of life care is already at breaking point. We're calling on the next Welsh Government to... 👉 Sustainably fund palliative and end of life care 👉 Ensure 24/7 access to end of life care 👉 Develop a strong palliative and end of life care workforce

Photo of an older man sitting indoors receiving medical care, with an IV drip visible in the foreground. Overlaid white text reads: ‘Urgent action needed to improve end of life care in Wales’. Smaller text beneath reads: ‘Gaps in care and a system under severe pressure means terminally ill people often go without care and support at the end of their life.

102

Marie Curie UK @mariecurieuk.bsky.social · 10/04/2026

With the Scottish Parliament election less than a month away, we have an urgent message for politicians… 🚨 Terminally ill people are dying without proper end of life care. We need a Right to Palliative Care in Scotland so everyone can be cared for & comfortable at the end of life. Are you with us?

A close-up photo of the Scottish Parliament. Text on screen reads: Scotland needs a new legal Right to Palliative Care. The next Scottish Government must make sure that palliative care is a right - not a privilege.

121

Marie Curie UK @mariecurieuk.bsky.social · 07/04/2026

The rise in State Pension age will mean thousands more terminally ill people a year will die without ever receiving a penny of their pension. 💔 This isn’t fair. Especially as many terminally ill people face hardship and poverty in the last year of their life.

130

Reposted by Marie Curie UK

Becca Stacey @beccastacey.bsky.social · 02/04/2026

From Monday, when the State Pension age increases, thousands more terminally ill people will die in poverty before being able to access this support New @mariecurieppa.bsky.social blog outlines why and how this inequality needs to change tinyurl.com/2p9navva

tinyurl.com

Rise in state pension risk to terminally ill people

As the State Pension age rises, thousands more people will miss out on vital financial support at the end of life.

032

Marie Curie UK @mariecurieuk.bsky.social · 02/04/2026

Everyone deserves care, compassion and dignity at the end of their life. But shockingly, someone dies without proper care and support EVERY 3 MINUTES in the UK. 💔

010

Marie Curie UK @mariecurieuk.bsky.social · 27/03/2026

Our social security system is failing terminally ill people. ❗ New data shows 1 in 3 people are missing out on benefits they are entitled to in the last year of their lives. Many terminally ill people are being pushed into poverty and hardship as a result. This has to change.

121

Marie Curie UK @mariecurieuk.bsky.social · 18/03/2026

Every year in the UK, around 200,000 people die with little support and unaddressed symptoms. That's roughly one person every 3 minutes. People are spending their final days in A&E, in pain, on their own and without the right support. This is a crisis. 🚨👇 www.express.co.uk/news/politic...

express.co.uk

Patients 'dying in hospital corridors' with UK hospices in 'crisis' | Politics | News | Express.co.uk

Just one in 20 people get to die in a hospice and a funding crisis threatens the future of these vital services.

012

Marie Curie UK @mariecurieuk.bsky.social · 12/03/2026

“Nearly 1 in 3 people had both unaddressed symptoms & concerns, and insufficient access to GP services at the end of life. This is a national, structural problem.” Well said. 👏 Too many people miss out on end of life care because services are overstretched. This has to change.

021

Reposted by Marie Curie UK

Sue Ryder @sueryder.bsky.social · 16/02/2026

We welcome new research published today by @mariecurieuk.bsky.social which shows that almost 1 in 3 people in England are dying without the care they need – that’s around 170,000 people each year. This is unacceptable. Our Chief Executive @jamescsanderson.bsky.social responds to this new research:

Quote from Sue Ryder Chief Executive, James Sanderson: "We welcome this piece of research from Marie Curie. How we die matters, but most of us don't think about it until it happens to someone we know. None of us want our loved ones to die in a hospital corridor or in the back of an ambulance. The memories we make once we know that someone we love is dying should be treasured and that time should be filled with love."

Continued quote from Sue Ryder Chief Executive, James Sanderson: "To think instead that people are experiencing pain, trauma and guilt is extremely distressing. This reality is happening to too many people. Enough people to fill Wembley Stadium nearly twice over, every year. This is something our government and our sector cannot tolerate any longer. If the Government's plan for end-of-life care, its Modern Service Framework, is shaped in partnership with the palliative care sector, then collectively I believe we can change this. Death deserves better."

123

Reposted by Marie Curie UK

Shaun Lintern @shaunlintern.bsky.social · 15/02/2026

🚨 Clare Welch pleaded for help from NHS 111 as her dying mother screamed in pain in the other room. Told a dr would call, 4 years on she is still waiting for that call back. New @mariecurieuk research has found 170,000 people die in pain every year: www.thetimes.com/article/7552...

thetimes.com

One in three dying in pain as palliative care crisis deepens

People in their final days are often not getting proper pain relief, as a study reveals an ‘enormous volume’ of unnecessary suffering

33416

Marie Curie UK @mariecurieuk.bsky.social · 16/02/2026

🚨 JUST IN: New research shows nearly 1 in 3 people don’t get the end of life care they need. This is unacceptable. Dying people deserve better. The UK government must make end of life care a priority so everyone feels cared for, comfortable and pain-free when they’re dying.

11610

Marie Curie UK @mariecurieuk.bsky.social · 04/02/2026

Today the UK government has shown it’s serious about improving cancer care. Crucially, the National Cancer Plan recognises that for people living with terminal cancer, timely palliative and end of life care is essential. ✅ These services are struggling right now. But there is a solution… 🧵

141

Marie Curie UK @mariecurieuk.bsky.social · 25/12/2025

We know that today can be a difficult day for a lot of people. 📞 Our Support Line is available on 0800 090 2309 from 10am to 2pm. If you need support, or just a chat, call us. 💛

043

Marie Curie UK @mariecurieuk.bsky.social · 25/11/2025

POV: You’re caring for your mum who’s been diagnosed with terminal cancer. 💔 You’ve cut back on your hours at work to care for her. The cold snap hits. It suddenly costs a lot more to keep the house warm. You wrap your mum in blankets and dread the energy bill coming through the door. 😩

110

Marie Curie UK @mariecurieuk.bsky.social · 24/11/2025

POV: Your son is diagnosed with terminal cancer and becomes too ill to work. You apply for benefits, but there are lots of forms to fill in & it’s not clear which forms are the right forms. You try phoning the DWP for help but can’t get through. Your son is dying. And the bills keep piling up.

100

Marie Curie UK @mariecurieuk.bsky.social · 19/11/2025

Every chair here represents someone who died in poverty in the UK. It's heartbreaking this is happening. 💔

Row after row of black chairs, laid out in a park. Above the photos of the chairs is text that reads 103,000 people died in poverty last year.

051

Marie Curie UK @mariecurieuk.bsky.social · 19/11/2025

🚨 BREAKING: 103,000 people died in poverty in the UK last year - that’s 281 people dying in poverty every day. This is so wrong. Everyone should get the financial support they need to spend their final months, weeks and days in comfort.

121

Marie Curie UK @mariecurieuk.bsky.social · 14/11/2025

❗Paramedics are often being left without access to patient information or medications when attending people nearing end of life who urgently need palliative care. This is so wrong.

Screenshot of a BBC news article, with the headline 'End of life care demand challenging for paramedics'

152

Marie Curie UK @mariecurieuk.bsky.social · 13/11/2025

🚨🎉 GOOD NEWS: The UK Government has committed to introducing a national strategy for palliative and end of life care. Minister of State for Care @skinnock.bsky.social outlines his plans. 👇 This is a crucial step towards fixing the gaps in palliative and end of life care. 🙌

072

Marie Curie UK @mariecurieuk.bsky.social · 23/10/2025

Wes Streeting has big ambitions for the NHS. But he has no plan to fix the gaps in palliative and end of life care. ❗ Dying people deserve better. We need a national strategy to improve palliative and end of life care – and we need it now.

102

Marie Curie UK @mariecurieuk.bsky.social · 21/10/2025

Here’s something nobody ever told you about hospices... 🤫 A lot of people think a hospice is a physical building – and you have to live near it to get support. That isn’t necessarily true. 🧵

111

Marie Curie UK @mariecurieuk.bsky.social · 20/10/2025

We hear from lots of people living with a terminal illness who are *very* worried about how they’ll manage their energy bills this winter. Secretary of State for Energy Security Ed Miliband highlights some of the support the UK government has made available.

000

Marie Curie UK @mariecurieuk.bsky.social · 15/10/2025

Here’s something nobody ever told you about hospices... 👀🧵 A lot of people think hospice care is just painkillers and medical treatment. ❌ That couldn't be further from the truth.

100

Marie Curie UK @mariecurieuk.bsky.social · 01/10/2025

🚨 The Labour Party has been talking a lot about their plans to build an NHS fit for the future at the Labour party conference. Here’s what that means for palliative and end of life care services. 🧵 👇 #Lab25

100

Marie Curie UK @mariecurieuk.bsky.social · 25/09/2025

🚨 Palliative and end of life care services are being pushed to breaking point. The @libdems.org.uk passed a new policy calling for urgent action at their party conference. Here’s some of what they’re proposing – and what else they said about palliative care at the conference… 🧵 👇

111

Marie Curie UK @mariecurieuk.bsky.social · 19/09/2025

🚨Whether assisted dying is made legal or not, the UK government must fix the gaps in palliative care. We have a neutral position on assisted dying. We’re not for or against it. But we do believe EVERYONE should have access to good palliative care at the end of their life.

051