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mookpixie

@mookpixie.bsky.social
194 followers 212 following 275 posts

Horizontalist she/they #pwME #PoTS #Fibro

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Reposted by mookpixie
mookpixie @mookpixie.bsky.social · 23/09/2026
Ok, Bluesky won’t let me access my messages until I verify my age… But the age verification process doesn’t work - just takes me to ‘this page no longer exists’ So I can’t actually reply to any messages here. 😩 You can message me on Instagram - my username is the same.
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Rebecca @rebeccafpainter.bsky.social · 23/09/2026
My Autumn legs painting for the Autumn Equinox! Oil on canvas 50 x 60 cm #oilpainting #autumnequinox
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mookpixie @mookpixie.bsky.social · 23/09/2026
Less than a day back here and it’s already finding ways to wind me up.
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mookpixie @mookpixie.bsky.social · 23/09/2026
Ok, Bluesky won’t let me access my messages until I verify my age… But the age verification process doesn’t work - just takes me to ‘this page no longer exists’ So I can’t actually reply to any messages here. 😩 You can message me on Instagram - my username is the same.
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mookpixie @mookpixie.bsky.social · 23/09/2026
Also, I hope you are all doing ok. I miss everyone desperately back over in the other place but I need Bluesky to allow private accounts before I feel comfortable being here full time.
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mookpixie @mookpixie.bsky.social · 23/09/2026
Hello pals. I’m just randomly logging back in to ask a favour. If you are able to spare a stamp and card, can get to a postbox, and would like to take part in a ✨secret surprise✨ then please message me for details. Thank you! 💜💜💜
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SeaWindowCraster @seawindowcraster.bsky.social · 18/06/2025
Dolphins heading south Craster 19.40
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Frances Ryan @francesryan.bsky.social · 18/06/2025
The “welfare reform bill” is out and let’s be clear: this is not reform - it is devastating cuts. Disabled people will be made poorer, sicker, and more isolated as a result. That it is a Labour government causing this misery will be a mark of shame on the party for years to come.
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mookpixie @mookpixie.bsky.social · 18/06/2025
A short clip of the mirrorbox at Glastonbury Tor today. m.youtube.com/watch?v=m4iH...
m.youtube.com
The Mirrorbox visit to Glastonbury June 18th 2025 (Clip2)
YouTube video by I Would Be Here If I Could
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mookpixie @mookpixie.bsky.social · 18/06/2025
My husband just sent me a photo from inside the box and now I’m having a little cry.
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Ollie @chamberlago.bsky.social · 18/06/2025
I Would Be Here If I Could is a project where a mirror box is taken to special places people with ME & Long Covid wish they could go back to and a message plays inside Today it's at Glastonbury Tor for my internet pal @mookpixie.bsky.social and you can read/listen to their message on the website
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mookpixie @mookpixie.bsky.social · 18/06/2025
@sazzi91.bsky.social Thank you for sharing my post! 💜
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mookpixie @mookpixie.bsky.social · 18/06/2025
I should also mention that there is a written transcript on the website if, like me, you struggle with listen to audio.
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mookpixie @mookpixie.bsky.social · 18/06/2025
A picture from the day I mention in my message for the mirrorbox. I am so happy it’s another blue sky and sunshine day today. You can listen to my message here: www.iwouldbehereificould.com/message/glas...
A photo from 2001 of a group of people in their 20s laying on the grass at the top of Glastonbury Tor. The sky is a beautiful blue and the sun is shining. St Michael’s Tower is partially visible in the background.
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mookpixie @mookpixie.bsky.social · 18/06/2025
Today!!! It’s a glorious day and the mirrorbox is already atop the Tor!
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Maike Osborne @maosbot.bsky.social · 13/06/2025
Learning about myalgic encephalomyelitis really changed me. The full depth of suffering associated with this horrific illness is right out in the open for anyone to read about and/or to develop themselves, and our society seems to have decided to address the problem solely by stigmatising patients
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mookpixie @mookpixie.bsky.social · 17/06/2025
@maryeilmicdom.bsky.social How are you getting on my lovely? You and your wonky leg have been in my thoughts. 💜
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mookpixie @mookpixie.bsky.social · 17/06/2025
Back momentarily to let you lot know that the Mirrorbox will be visiting Glastonbury Tor on my behalf tomorrow afternoon. www.iwouldbehereificould.com/mirrorbox-jo...
iwouldbehereificould.com
Mirrorbox Journey: Glastonbury Tor, Somerset – I Would Be Here If I Could...
The Mirrorbox will travel to the top of Glastonbury Tor! (wind permitting)
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Weird Bristol @weirdbristol.bsky.social · 23/05/2025
Now best known as a music venue, the Thekla (a 1958 German cargo ship) was opened as an art and theatre space after arriving in Bristol in 1983. Then called the Old Profanity showboat it was owned by Vivian Stanshall of the Bonzo Dog Doo-Dah Band and his wife, novelist Ki Longfellow.
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Briana Mills, LMFT ♿️🏳️‍🌈 @brianamillslmft.bsky.social · 02/05/2025
Say it with me: Disabled people deserve to live even if they can’t work.
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mookpixie @mookpixie.bsky.social · 03/05/2025
I keep forgetting to check in here. Hope everyone is getting on as ok as possible.
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Simon Lamrock @simonlamrock.com · 19/04/2025
Thousands show solidarity at #TransRightsAreHumanRights Demo in Parliament Square.
Photo of thousands of people with placards and flags packing Parliament Square.

Thousands show solidarity at #TransRightsAreHumanRights Demo in Parliament Square.
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Sooz Kempner @soozuk.bsky.social · 19/04/2025
There isn't a story on the BBC News site about today's trans rights rally at Parliament Square where it's estimated 20k attended. But they did have a story last week about the Let Women Speak transphobe rally in Bristol where 100 people attended.
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Matt Owen @mjowen174.bsky.social · 20/03/2025
Is he going to stop his PIP?
Is he going to stop his PIP?
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mookpixie @mookpixie.bsky.social · 21/03/2025
I’ve realised I don’t like bluesky being completely public. I like my profiles private thank you very much. So my way around it is to nip in every so often and check out how you all are, then deactivate my account until the next time I check back in. Not ideal but it’ll have to do.
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Roly Peck @rolypeck.bsky.social · 20/03/2025
This thread should be read by every single MP. No, by everyone. The assessment process in the UK is utterly brutal, leaving people traumatised and often without the miserly financial help that should be theirs unless they have the capacity to jump through every painful and humiliating hoop.
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Weird Bristol @weirdbristol.bsky.social · 07/03/2025
Distraught at having been dumped by her boyfriend in 1885, 23 year old Bristol barmaid Sarah Ann Henley threw herself from the Clifton Suspension Bridge. Astonishingly, her petticoats slowed her descent and she survived, going on to live a happy life until her death aged 85.
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Kate Arnold @dulcimerkate.bsky.social · 07/03/2025
One never knows what the record-buying public will go for. Only a few of these CDs left now, but it'll still be available as a digital download. My 'punk baroque' project with hammered dulcimer, strings, hurdy gurdy and Middle Eastern percussion. fearoftheforest.bandcamp.com/album/fairy-... #music
fearoftheforest.bandcamp.com
Fairy Tale Ending, by Fear of the Forest
10 track album
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Rebecca @rebeccafpainter.bsky.social · 07/03/2025
My painting of Tobias Menzies seeing as it's his birthday! Oil on linen. #art #portraitpainting
Oil painting of Tobias Menzies
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Shar A @sharal.bsky.social · 26/02/2025
Trying to get out of an armchair when you’re over 35
Ken Barlow having some kind of spasm
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mookpixie @mookpixie.bsky.social · 26/02/2025
It’s looking like another sleepless night.
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mookpixie @mookpixie.bsky.social · 25/02/2025
Actually, my kingdom for a regular life with no chronic illness. This sucks.
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mookpixie @mookpixie.bsky.social · 25/02/2025
My kingdom for a regular sleep cycle.
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mookpixie @mookpixie.bsky.social · 25/02/2025
I have entered the no sleep = napping during the day = no sleep cycle of doom.
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mookpixie @mookpixie.bsky.social · 24/02/2025
Crying my way through tonight’s Eastenders.
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mookpixie @mookpixie.bsky.social · 24/02/2025
I’ve used so many block lists on here. I don’t use them elsewhere as they rely on someone else’s opinion of who to block. That does mean some accounts get added that don’t necessarily deserve to be on there. But until there’s a way to make accounts private, I’m going to keep adding block lists.
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Rebecca @rebeccafpainter.bsky.social · 20/02/2025
A commission from a couple of years ago. Oil on linen 50 x 50cms. I'll be opening commissions back up in April so please get in touch via my website if it's something you might be interested in.
Oil painting of a girl looking out a window
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mookpixie @mookpixie.bsky.social · 20/02/2025
In too much pain to sleep. As soon as I get one ridiculous and painful problem sorted, another new one takes its place. Just can’t seem to catch a fucking break.
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lifeatthewindow.bsky.social @lifeatthewindow.bsky.social · 16/02/2025
It’s unreal to me that absolutely everything I’ve learned about how to cope with moderate then severe M.E. has been via other severely unwell people. Not one proper bit of help from the medical community apart from a very sympathetic GP whom I have to educate. #pwME #MECFS
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Kristin Houlihan, Writer @kristinwrites.bsky.social · 14/02/2025
No one is immune from #disability. Do yourselves a favor and reflect on that. Seriously. #DisabilityJustice
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Rebecca @rebeccafpainter.bsky.social · 27/11/2024
Search for Love in a Digital Age oil on fine canvas. 61 x 76cm Currently available on my website or free to look at here!! Dating in the 21st century is the pits eh?!? rebeccafosterartist.com/artwork/5310...
Oil painting self portrait of a woman taking a selfie at a mirror
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Kelly @broadwaybabyto.bsky.social · 13/02/2025
I still can’t believe having to mask temporarily during a global pandemic broke so many people. It’s been 5 years & they’re still irrationally angry at the sight of a mask. They’ve abandoned all sense of self preservation and community care, and lives will continue to be lost because of it.
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Harry Matthews @hmatthews92.bsky.social · 13/02/2025
Bargain Hunt total profit £2 meme
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mookpixie @mookpixie.bsky.social · 13/02/2025
I’m afraid my life doesn’t get more thrilling than this.
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mookpixie @mookpixie.bsky.social · 13/02/2025
Sometimes I can go weeks without having to clean my glasses. Today I have had to clean them about 20 times.
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Kelly @broadwaybabyto.bsky.social · 12/02/2025
When you’re chronically ill, your baseline is everything. Managing it can be a full time job. Non disabled people can’t understand how hard we work to ration energy, avoid infections & minimize setbacks. Even when you do everything “right”, progress can be wiped out in an instant 🧵
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mookpixie @mookpixie.bsky.social · 12/02/2025
Always incredibly proud of my amazing and talented pal @rebeccafpainter.bsky.social 💜
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The Vertlartnic @thev.bsky.social · 10/02/2025
Why Does Everyone Keep Getting Sick And Don’t Say It’s Because We Caught Covid.
Someone sick
Headline:
Why Does Everyone Keep Getting Sick And Don’t Say It’s Because We Caught Covid.
Story by Quentin Poops and Newton Zappel

Photo from Adobe: File #:  245369435
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Dorian Cope @doriancope.bsky.social · 07/02/2025
We have Jethro Tull to thank for Black Sabbath. Tony Iommi was only briefly in Tull but he learned the importance of discipline & professionalism. After 1 month he went back to B'ham, got serious with Sabbath & the rest is history. Here's Tony with Jethro Tull youtu.be/0TsFPHLTCKo?...
youtu.be
Jethro Tull - Song for Jeffrey - Rock and Roll Circus (1968)
YouTube video by eleanorriigby
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