Sign in

Lyle W. Ostrow MD PhD

@lyleostrow.bsky.social
583 followers 323 following 53 posts

Neurologist/Neuroscientist at Lewis Katz School of Medicine, Temple University, and the ALS Hope Foundation. Director, TUHS ALS Postmortem Core collab with CDC ALS Registry. Chair, DoD (CDMRP) ALS Research Programmatic Panel. Views my OWN.

PostsRepliesMedia
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 12/02/2026
Join on zoom! Today at 4PM ET. temple.zoom.us/j/99060976097
110
Reposted by Lyle W. Ostrow MD PhD
Alexandra Whiteley @alexwhiteley.bsky.social · 23/10/2025
I'm so excited to see this Perspective with @jasonsynaptic.bsky.social out in Neuron! About 8% of our genome is made up of the remnants of LTR-containing retroelements - here, Jason and I explore the activities of retroTEs in neurological health and disease! authors.elsevier.com/c/1lzTx3BtfH...
authors.elsevier.com
2115
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 11/10/2025
Great meeting. Lots of work to do. #BetterTogether #EndALS #NEALS2025 #NEALSMtg
020
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 19/06/2025
Listener effort measures clinically meaningful change of dysarthria in amyotrophic lateral sclerosis url:https://academic.oup.com/braincomms/article/doi/10.1093/braincomms/fcaf232/8161195 #BetterTogether #EndALS
010
Reposted by Lyle W. Ostrow MD PhD
Carlos Brody @carlosbrody.bsky.social · 08/05/2025
we're crowd-sourcing a searchable repository of tangible benefits stemming from federally-funded research. Come enjoy the great stories; or send in an idea; or volunteer to join the team. publicusaresearchbenefits.com please share and re-share so we get more great stories in there!
publicusaresearchbenefits.com
Searchable database of tangible benefits that federally-funded research gave us.
A crowd-sourced site. Health and Well-being. National Security. Prosperity.
1139113
Reposted by Lyle W. Ostrow MD PhD
Les Turner ALS Foundation @lesturnerals.bsky.social · 18/04/2025
When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als #ALSRegistry #ALSBiorepository #ALS
021
Reposted by Lyle W. Ostrow MD PhD
Stars and Stripes @starsandstripes.bsky.social · 25/04/2025
Nonprofit agencies that assist ALS patients and support research sent a letter to the bipartisan ALS Congressional Caucus after a leaked proposed budget memo from the Health and Human Services Department called for defunding the registry and a biorepository with thousands of lab specimens.
stripes.com
Proposal would defund ALS registry for disease that afflicts veterans at higher rate than general public
Advocates for patients with amyotrophic lateral sclerosis — a fatal condition known as Lou Gehrig’s disease — urged lawmakers to keep funding the National ALS Registry that serves as a centralized dat...
0148
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 01/04/2025
We own several games from www.neurdgames.com and love them all. I just ordered 2 copies of this new one and can't wait to play!
neurdgames.com
GAMES | Neurd Games
140
Reposted by Lyle W. Ostrow MD PhD
Frank Beier @beierlab.bsky.social · 14/03/2025
Changes to MSc, PhD and postdoc funding programs from 🇨🇦 tri councils. Harmonization across councils, more awards, and new eligibility for international PhD and postdoc applicants!
nserc-crsng.gc.ca
NSERC - Latest News - Launch of the new Harmonized Tri-agency Scholarship and Fellowship programs
As announced in Budget 2024, the scholarship and fellowship programs administered by the three federal research funding agencies – the Canadian Institutes of Health Research (CIHR), the Natural Sciences and Engineering Research Council (NSERC), and the Social Sciences and Humanities Research Council (SSHRC) – have been streamlined into a new harmonized talent program called the Canada Research Training Awards Suite (CRTAS) that will open for applications in summer 2025.
215952
Reposted by Lyle W. Ostrow MD PhD
ALS United Greater New York @alsofgny.bsky.social · 13/03/2025
URGENT: Protect #ALS Research Funding! Congress may slash CDMRP funding in the CR, halting critical ALS research. ALS cases could rise 70% by 2030, & veterans face 2x the risk. We must act NOW! Tell your Senators to protect funding! als-ny.org/the-threat-t... #ALSResearch
041
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 11/03/2025
060
Reposted by Lyle W. Ostrow MD PhD
The ALS Association @alsassociation.bsky.social · 10/03/2025
We are very concerned about the proposed budget cuts at the NIH and the DOD that could impact ALS research. Our Board of Trustees and staff are taking to Capitol Hill on Wednesday to urge Congress to continue to fund ALS research.
2214
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 10/03/2025
195
Reposted by Lyle W. Ostrow MD PhD
Kristin Anderson, PhD @immunegirl.bsky.social · 10/03/2025
A vote for this legislation is a vote to cut federally funded cancer research. Please take action today to ask Congress to vote no on the CR and instead approve a full-year FY25 Defense Appropriations Act that fully funds the OCRP and CDMRP. www.votervoice.net/Shares/B0Y6T...
votervoice.net
Oppose 57% Cut to Congressionally Directed Medical Research Programs Vote NO on the FY25 Continuing Resolution
As early as this Tuesday, the House will be voting on a continuing resolution to fund government programs through the end of fiscal year 2025 (FY25). The proposed legislation, introduced in the House,...
032
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 10/03/2025
WOW. This is absolutely remarkable work!
140
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 07/03/2025
www.facebook.com/share/p/16De...
facebook.com
Redirecting...
031
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 28/02/2025
Please read this if you want to understand more about how indirect rates are set, and why indirect costs are critical to research. Then, sign the petition linked in the article. #ScienceMatters #BetterTogether
053
Reposted by Lyle W. Ostrow MD PhD
iamals.bsky.social @iamals.bsky.social · 24/02/2025
Each year ALS advocates ask Congress to support the federal funding of ALS research through appropriations requests. Help these advocates supercharge their requests in YOUR district by becoming a constituent! iamals.org/action/help-...
iamals.org
Help The Legislative Team - I AM ALS - ALS is Relentless. So Are We!
ALS Advocates! I AM ALS’ Legislative Affairs Community Team needs your help. Every single day, this team reaches out to legislators to convince them to beco ...
062
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 19/02/2025
From Everything ALS: 🔬 Join us for a free webinar with Dr. Laura P.W. Ranum! 🧠 📅 Date: February 19, 2025 ⏰ Time: 7 PM EDT | 4 PM PDT 📍 Free Online Webinar 📢 Register now and be part of the conversation: everythingals.org/events
020
Reposted by Lyle W. Ostrow MD PhD
Katie Langin @klangin.bsky.social · 14/02/2025
Dear federal scientists: If you have been affected by the probationary firings and would be willing to speak with Science, please reach out to me by email (klangin@aaas.org) or on Signal. We can guarantee annonymity.
2424541286
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 14/02/2025
"GsMTx-4 can reverse hyperalgesia, restoring withdrawal thresholds to baseline levels." @ostrowkimber.bsky.social,
120
Reposted by Lyle W. Ostrow MD PhD
Brain @brain1878.bsky.social · 13/02/2025
Using data from the UK Biobank, Yi et al. identify two subtypes of preclinical type 2 diabetes: one with high leptin and BMI, and a greater susceptibility to psychiatric conditions; the other with abnormal glucose metabolism and increased risk of neurodegenerative disorders. tinyurl.com/mudt44kk
022
Reposted by Lyle W. Ostrow MD PhD
Eric Topol @erictopol.bsky.social · 11/02/2025
A Direct Hit, by @holdenthorp.bsky.social @science.org www.science.org/doi/full/10.... "This is a moment to unite."
24899375
Reposted by Lyle W. Ostrow MD PhD
Silas Maniatis @manimota.bsky.social · 10/02/2025
NYGC is organizing a number of efforts to address the changes to NIH IDCs and other changes to federal policy. If you are a US citizen, or in the US working in science, please consider signing this petition. The more signatures the stronger our hand in interacting with law makers. chng.it/kK2HMP5pGk
chng.it
Sign the Petition
Petition to Reverse the NIH Indirect Cost Cap (NOT-OD-25-068)
21011
Reposted by Lyle W. Ostrow MD PhD
emptywheel @emptywheel.bsky.social · 09/02/2025
This is critically important. When asked to PROVE the claims that Elon is spewing on Xitter, Trump had nothing. Nothing. Until they present proof, no media outlet should repeat unsubstantiated claim this is about efficiency.
21903323
Reposted by Lyle W. Ostrow MD PhD
Alt National Park Service @altnps.bsky.social · 09/02/2025
183274896307
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 09/02/2025
#ScienceMatters #BetterTogether
051
Reposted by Lyle W. Ostrow MD PhD
Rick Huganir @rhuganir.bsky.social · 07/02/2025
This is the end of science as we know it if it stands—15% IDCs for all NIH Grants. grants.nih.gov/grants/guide...
grants.nih.gov
NOT-OD-25-068: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost Rates
NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost Rates NOT-OD-25-068. OD
69562
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 05/02/2025
Tomorrow (Thursday) night at 7pm ET!
020
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 05/02/2025
#ScienceMatters #BetterTogether
000
Reposted by Lyle W. Ostrow MD PhD
Indy Auntie @indyauntie.bsky.social · 05/02/2025
Spent day with anxious ALS patients, caregivers, and resource providers; scientists who have (had?) pride in U.S. research infrastructure; and grassroots advocates who've achieved impressive results. Money quote: "Patient needs don't change when you strike DEIA language from government websites." 😢
032
Reposted by Lyle W. Ostrow MD PhD
ALS Advocacy @alsadvocacy.bsky.social · 05/02/2025
#ScienceMatters
062
Reposted by Lyle W. Ostrow MD PhD
Charles Gaba ✡️ @charlesgaba.com · 02/02/2025
📣 UPDATE: OK, still working with some others to figure out the best way to present it all, but in the meantime here's the first batch of links to the most-recent archived versions of every page at the CDC prior to the Trump/Musk Purge: acasignups.net/25/02/02/whi...
acasignups.net
In which I provide links to archived versions of every CDC.gov page available pre-purge (Part 1 of 15)
As horrific as it is that the Trump/Musk Administration is purging data from federal websites, it's good to know that the Internet Archive has been archiving much of it. However, in addition to the Ar...
65971434
Reposted by Lyle W. Ostrow MD PhD
Gary Swergold MD, PhD @gs314.bsky.social · 31/01/2025
🧪 If I were Canadian PM I would immediately: 1. Create a new $15B science fund 2. Offer any credentialed US scientist funding for lab startup and replacement of NIH grants if they move to Canada 3. Immediate permanent residency 4. Citizenship after 2 years Overnight a science superpower
1236409396967
Reposted by Lyle W. Ostrow MD PhD
iamals.bsky.social @iamals.bsky.social · 24/01/2025
The ALS Calendar is intended to be a one-stop shop for ALS-related events of all kinds, from all across the internet. Whether you're a person hosting a local event or an organization putting on a webinar, add it to the ALS Calendar so folks can find them in one place! www.iamals.org/als-calendar/
iamals.org
Events - I AM ALS - ALS is Relentless. So Are We!Event SeriesEvent SeriesEvent SeriesEvent SeriesEvent SeriesEvent SeriesEvent SeriesEvent SeriesEvent SeriesEvent SeriesEvent SeriesEvent SeriesEvent S...
042
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 23/01/2025
Anyone else keep checking to see if Pubmed is still online?
262
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 22/01/2025
TODAY (WED Jan 22) at 4 PM PT | 7 PM ET - a free webinar featuring Molly Gale Hammell, Ph.D., Associate Professor at the Institute for Systems Genetics, NYU Langone Medical Center. www.everythingals.org/events #ALSResearch #NeurodegenerativeDiseases #FreeWebinar #Genomics #ALS
020
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 26/12/2024
Happy Hanukkah! #Banorah
150
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 01/12/2024
November 2024 ALS Hope Foundation Newsletter. #EndALS #BetterTogether mailchi.mp/alshopefound...
050
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 18/11/2024
Ha! A review just published cites papers @ostrowkimber.bsky.social and I separately wrote ~20 yrs ago - right next to each other in the bibliography! I wonder if the authors know KL & LW Ostrow are different people. Not ALS, but still #BetterTogether. #IDefinitelyMarriedUP ❤️ tinyurl.com/5xz4s425
190
Reposted by Lyle W. Ostrow MD PhD
Paul Wicks, PhD. @drpaulwicks.bsky.social · 18/11/2024
New starter pack! ALS/MND Scientists, clinicians, and nonprofits, comment to request add! go.bsky.app/Eobkvxp
781
Reposted by Lyle W. Ostrow MD PhD
Willy Skinner @willygrant.bsky.social · 18/11/2024
If you are looking for a curated feed of the ALS/MND Community, here you go. Pin it to follow posts from this community. bsky.app/profile/did:...
0229
Reposted by Lyle W. Ostrow MD PhD
Ammar Al-Chalabi @ammaralchalabi.bsky.social · 16/11/2024
The MND Association, My Name'5 Doddie Foundation and Darby Rimmer Foundation have funded our project with the Mario Negri Institute in Italy to study whether there is a link between #ALS #MND and professional football. Read about it here: www.mndassociation.org/media/latest... @ukmndri.bsky.social
mndassociation.org
New research project investigates potential link between professional football and MND
New research project investigates potential link between professional football and MND
1148
Reposted by Lyle W. Ostrow MD PhD
Ilan Schwartz @germhuntermd.bsky.social · 17/11/2024
If you have made it this far you probably don't need it, but this is a fantastic step-by-step how-to explainer by @kenkoonwong.bsky.social to share with friends not yet on #MedSky #IDSky www.kenkoonwong.com/blog/bluesky/
kenkoonwong.com
A Step-by-step 🦋 Tutorial for #IDSky | Everyday Is A School Day
BlueSky combines customizable filters, an ad-free experience, and free API access for data analysis. Here's a simple guide to help you navigate the platform and connect with the #IDSky community.
26218
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 17/11/2024
On Monday I have a very important job - hanging this incredible artwork created by Stacie Votaw with her eyes. Read more about Stacie here: tinyurl.com/42f9jkyp You can view more of her artwork in the Artistry of ALS Gallery: tinyurl.com/2j7ubh3u
140
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 17/11/2024
No context. Just felt like posting these agate brain clocks.
010
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 15/11/2024
Tomorrow is Day 3 of the 7th Annual ALS ONE Research Symposium - Neurotech Day, presented by EverythingALS. It is completely FREE to attend. Starts at 10AM EST. Register here: www.alsoneresearchsymposium.org #EndALS #BetterTogether
151
Reposted by Lyle W. Ostrow MD PhD
ALS Advocacy @alsadvocacy.bsky.social · 14/11/2024
More Than Our Stories 2025 www.morethanourstories.org Registration will open in about a month. Be there or be square.
morethanourstories.org
HOME | morethanourstories
152
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 13/11/2024
Happening Today, Tomorrow, and Friday! Its free to register and join the symposium. #BetterTogether #EndALS
alsoneresearchsymposium.org
7th Annual ALS ONE Research Symposium
ALS ONE's annual global research symposium: uniting researchers, clinicians and individuals living with ALS from around the world for three days of sharing important ALS research and hope.
020
Lyle W. Ostrow MD PhD @lyleostrow.bsky.social · 12/11/2024
020