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Les Turner ALS Foundation @lesturnerals.bsky.social · 30/07/2026

Every step you take and every dollar you raise helps make a difference. Your fundraising supports ALS research, multidisciplinary care, support services, equipment, grants and resources for families across our community. Register and start fundraising today: p2p.onecause.com/alswalkforlife

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Les Turner ALS Foundation @lesturnerals.bsky.social · 28/07/2026

Who's on your Walk team this year? Whether it's family, friends, coworkers, or neighbors, the ALS Walk for Life is the perfect day to come together, make memories, and support the ALS community. Join us October 24 at Soldier Field: p2p.onecause.com/alswalkforlife

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Les Turner ALS Foundation @lesturnerals.bsky.social · 24/07/2026

Need plans for October 24? We've got you covered. Join thousands of supporters at Soldier Field for a fun, meaningful day on Chicago's lakefront. Walk with your team, meet new people, and be part of something that truly makes a difference. Register here: p2p.onecause.com/alswalkforlife

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Les Turner ALS Foundation @lesturnerals.bsky.social · 22/07/2026

Registration is now open for the National ALS Registry 2026 Annual Meeting! Join the ALS community on August 19–20 to learn more about the Registry’s ongoing work to advance ALS research and support the ALS community. Register: www.zoomgov.com/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 21/07/2026

Every team has a story. For Gary Kravitz, it's a 22-year tradition of honoring his mother through the ALS Walk for Life. Now it's your turn to create your own. Join us on October 24 at Soldier Field. Register today: p2p.onecause.com/alswalkforlife

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Les Turner ALS Foundation @lesturnerals.bsky.social · 20/07/2026

Thinking about traveling with ALS? Join us for practical advice, personal experiences, and a live Q&A designed to help you travel with greater confidence. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 17/07/2026

Never been to the ALS Walk for Life? This is your year. Expect an inspiring community, an unforgettable walk along Chicago's lakefront, and hundreds of people coming together for something bigger than themselves. Register here: p2p.onecause.com/alswalkforlife

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Les Turner ALS Foundation @lesturnerals.bsky.social · 16/07/2026

Les Turner ALS Foundation joined 34 patient advocacy organizations in urging the federal Office of Management and Budget to withdraw a proposed rule that could weaken the biomedical research infrastructure supporting people living with neuromuscular diseases. Read: lesturnerals.org/neuromuscula...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 15/07/2026

Travel didn't stop after Craig's ALS diagnosis. Hear Craig & Emily Mandell share their experiences and practical advice for traveling with ALS. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 06/07/2026

Meet Kari Brouwer, OTR/L, an Occupational Therapist at Northwestern Medicine. Join Kari on July 23 for practical tips on planning and traveling with ALS. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 22/06/2026

Learn how the ALS Turbocharged Living Scale offers a new way to measure quality of life and focus on what matters most. Join us Thursday, June 25, at 12pm CT. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 17/06/2026

Meet Peggy Plews-Ogan, MD, physician, educator, and ALS advocate. Learn how the ALS Turbocharged Living Scale was developed and the impact it can have on people living with ALS. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 12/06/2026

Join us Thursday, June 25, at 12pm CT for a live webinar with Peggy Plews-Ogan, MD. Learn how the ALS Turbocharged Living Scale offers a new way to think about quality of life beyond physical function. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 10/06/2026

Support for ALS families across Illinois is growing. Thanks to $300,000 in newly approved state funding for ALS care and research, more people will have access to the care, services, and support they need throughout their ALS journey. Read more: lesturnerals.org/together-we-...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 03/06/2026

Thank you for being part of the 2026 Lew Blond Memorial Run/Walk. From the 5K and 1-Mile Walk to the Little Lew Dash, it was incredible to see the community come together in support of the Les Turner ALS Foundation and in memory of former Maple School teacher Lew Blond.

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Les Turner ALS Foundation @lesturnerals.bsky.social · 01/06/2026

Tomorrow’s the day! We’re excited to gather with the ALS community for Lou Gehrig Day with the Chicago Cubs at Wrigley Field. Check if there are still tickets available: e.givesmart.com/events/OQR/

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Les Turner ALS Foundation @lesturnerals.bsky.social · 26/05/2026

Meet Juan Reyes and Kelly McGinn. Juan is involved with I AM ALS and Kelly is an active member of Her ALS Story. Learn how advocacy, resilience, and community can shape life after diagnosis. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 19/05/2026

Meet Rob Akins and Tina Cascio. Learn how advocacy, outreach, and service helped shape their ALS journeys. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 14/05/2026

Join us Thursday, May 28, at 12 pm CT for a live ALS panel with Juan Reyes and Kelly McGinn. Learn how support and advocacy can create strength after diagnosis. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 08/05/2026

Join us Thursday, May 28, at 12 pm CT for a live ALS panel with Rob Akins and Tina Cascio. Learn how connection, advocacy, and community support can make an impact after an ALS diagnosis. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 30/04/2026

Join us as we gather with the White Sox and Cubs for two special games in support of the ALS community. Chicago White Sox vs. Detroit Tigers – Sunday, May 31 at 1:10 p.m. CT Chicago Cubs vs. Athletics – Tuesday, June 2 at 7:00 p.m. CT Tickets: lesturnerals.org/events/lou-g...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 20/04/2026

Meet Melissa Diaz-Viera, LCSW, advocate and research contributor in the ALS community. Join her Thursday, April 23, at 12:00 p.m., CT. Learn how lived experience shapes ALS decisions. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 15/04/2026

Meet Danielle Burks, LCPC, founder of Journey to Healing. Join her Thursday, April 23, at 12:00 p.m., CT. Learn about the emotional side of ALS care decisions. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 10/04/2026

Meet Matt Creen, a longtime member of the ALS community. Join him Thursday, April 23, at 12:00 p.m., CT. Hear real perspectives on ALS care decisions. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 03/04/2026

Join us this Thursday, April 23, at 12:00 p.m., CT for a live discussion on informed decision-making in ALS. Learn about the medical, emotional, and practical considerations of tracheostomy and invasive mechanical ventilation. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 23/03/2026

Learn how tissue donation supports ALS research and what the process involves. Join us Thursday, March 26, at 12:00 p.m., CT. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 18/03/2026

Meet Dr. Lyle Ostrow, Associate Professor of Neurology at Temple University and founder of the ALS Postmortem Research Core. Join him this Thursday, March 26, at 12:00 p.m., CT. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 17/03/2026

Join our Living After Loss Bereavement Group, a supportive space to connect with others who understand, share stories, and honor the memories of loved ones. RSVP: supportgroup@lesturnerals.org

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Les Turner ALS Foundation @lesturnerals.bsky.social · 16/03/2026

“We have an ongoing effort at the Pranger ALS Clinic to increase enrollment so we can get a clear picture of who is getting ALS and the magnitude of the disease, which we believe is grossly underreported.” - Dr. Steven Goutman, researcher. Learn more at cdc.gov/als. #ALS #ALSClinic

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Les Turner ALS Foundation @lesturnerals.bsky.social · 11/03/2026

ALS affects more than just health — it affects daily life, family, and the future. Our Support Services Team is here to listen, guide, and connect you to the resources you need — from clinical education to financial assistance and end-of-life planning. Please email supportservices@lesturnerals.org

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Les Turner ALS Foundation @lesturnerals.bsky.social · 10/03/2026

Tissue donation is one of the most powerful contributions a person living with ALS can make. Join us Thursday, March 26, at 12:00 p.m., CT to learn more about the process and its impact on research. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 09/03/2026

ALS can impact mobility in different ways over time. Planning ahead can help you stay independent and safe at home and in your community. Our ALS & Mobility Guide provides information on durable medical equipment (DME) and other tools designed to support movement: lesturnerals.org/als-mobility...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 02/03/2026

A Nat’l ALS Registry study showed that people with ALS were more likely to have engaged in vigorous physical activity from the ages of 15-44 than other adults of the same age. This data helps researchers understand the relationship between physical activity and ALS. cdc.gov/als #ALSRegistry #ALS

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Les Turner ALS Foundation @lesturnerals.bsky.social · 27/02/2026

Through shared memories, we celebrate the lives that continue to shape us. Submit a Celebration of Life in honor of someone lost to ALS. Celebration of Life form: lesturnerals.org/get-involved...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 26/02/2026

Diane Rutledge led her community for decades. After her ALS diagnosis, she found new ways to stay connected through assistive communication technology and compassionate care. Her story is one of strength, adaptation, and community. Read more: lesturnerals.org/faces-of-als...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 24/02/2026

In a world of automated emails, a handwritten note still means something. Our Gratitude Group volunteers personally welcome and thank new donors with handwritten messages — often sharing their own stories and connection to ALS. Join the Gratitude Group: lesturnerals.org/get-involved...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 23/02/2026

Breathing changes can happen with ALS. The My ALS Decision Tool™: Breathing Support explains non-invasive ventilation (NIV) and helps you understand your options — now or in the future. Learn more and talk with your care team: lesturnerals.org/respiratory/...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 18/02/2026

Join us on April 11 for the 38th Annual Hope Through Caring Gala at the Radisson Blu Aqua Hotel in Chicago. Our annual fundraiser advances ALS care, research, and advocacy. Event details: e.givesmart.com/events/JKw/

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Les Turner ALS Foundation @lesturnerals.bsky.social · 17/02/2026

Join us February 28 from 10:30–11:30 AM CT for Navigating ALS Together — an ongoing support group for people and families living with ALS. Facilitated by Rochelle Walwer, LCSW. RSVP: Email supportgroup@lesturnerals.org

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Les Turner ALS Foundation @lesturnerals.bsky.social · 16/02/2026

When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als #ALSRegistry #ALSBiorepository #ALS

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Les Turner ALS Foundation @lesturnerals.bsky.social · 12/02/2026

Join us for the 38th Annual Hope Through Caring Gala, the Les Turner ALS Foundation’s signature fundraiser uniting leaders in ALS research, philanthropy, and people living with ALS. For more information: lesturnerals.org/events/hope-...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 11/02/2026

Smart home modifications can support mobility, comfort, and care. Explore practical guidance in our ALS & Home Modifications Guide: lesturnerals.org/als-home-mod...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 09/02/2026

Learn what hospice care really is, when it may be appropriate, and how it supports people living with ALS, families and care partners. Join us Thursday, February 12 at 12:00 p.m. CT Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 06/02/2026

The ALS Better Care Act has been reintroduced in the U.S. House and Senate. Thank you to Reps. Jan Schakowsky, Brian Fitzpatrick, Jason Crow, and Mike Quigley, and Sens. Chris Coons and Lisa Murkowski for introducing this bipartisan legislation. Learn more: lesturnerals.org/get-involved...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 04/02/2026

Federal funding plays a critical role in advancing ALS research and care. The budget includes investments across NIH, ACT for ALS, DoD research programs, ARPA-H, and the National ALS Registry. Thank you to our ALS advocates for helping drive this progress. Read: lesturnerals.org/congress-app...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 04/02/2026

ALS researchers and scientists are working to better understand the causes of the disease. When more people living with ALS sign up for the National ALS Registry, the more accurate the picture will be. Let’s do more and end ALS. cdc.gov/als/ALSJoinALSRegistry.html #ALS #ALSRegistry #endALS

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Les Turner ALS Foundation @lesturnerals.bsky.social · 04/02/2026

Research led by Vladimir Gelfand, PhD, at the Les Turner ALS Center shows that a mutation in Ataxin-2 (ATXN2) disrupts microtubule stability, affecting neuron growth and function and advancing understanding of microtubule dynamics in ALS. Read full story: lesturnerals.org/discovering-...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 03/02/2026

Meet Katie Lord, RN, BSN, Hospice Nurse and Education Coordinator at ILHPCO. Join her Thursday, February 12 at 12:00 p.m. CT. Register: us02web.zoom.us/webinar/regi...

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Les Turner ALS Foundation @lesturnerals.bsky.social · 02/02/2026

ALS Awareness Night with the Chicago Blackhawks was one to remember. Grateful to Dan Payne, his family, and the ALS community for showing up strong at the United Center — and to Diane Duffy and Response Management Services for making this night possible.

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Les Turner ALS Foundation @lesturnerals.bsky.social · 30/01/2026

Join us Thursday, February 12 at 12:00 p.m. CT for a live webinar on hospice care and how it supports people living with ALS, families and care partners. Register: us02web.zoom.us/webinar/regi...

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