Sign in

Lisa McCorkell

@lisamccorkell.bsky.social
3.6K followers 69 following 30 posts

formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022

PostsRepliesMedia
Reposted by Lisa McCorkell
Julie Rehmeyer @julierehmeyer.bsky.social · 03/04/2026
Over two years ago, the magnificent Beth Mazur ended her life while visiting me. I miss her. www.nytimes.com/2026/04/03/s...
nytimes.com
May I End My Life With You?
1214142
Reposted by Lisa McCorkell
s. e. smith @sesmith.lol · 25/03/2026
Thinking of my beloved tiger queen Alice Wong today, and what better a way to celebrate than with her work; Alice was so many things, and among them was an incredibly sharp, talented writer with a luminous love for words.
219646
Reposted by Lisa McCorkell
Eric Topol @erictopol.bsky.social · 16/03/2026
Now at 2 million downloads and the 4th highest @altmetric.com rated peer-reviewed paper in the past 3+ years Thanks to @ahandvanish.bsky.social @lisamccorkell.bsky.social @julialmv.bsky.social www.nature.com/articles/s41...
nature.com
Long COVID: major findings, mechanisms and recommendations - Nature Reviews Microbiology
Long COVID is an often debilitating illness of severe symptoms that can develop during or following COVID-19. In this Review, Davis, McCorkell, Vogel and Topol explore our knowledge of long COVID and ...
3289105
Reposted by Lisa McCorkell
loscharlos @loscharlos.bsky.social · 15/03/2026
“You’re not just becoming disabled,” said Elle Seibert, 31, who has dealt with debilitating fatigue and cardiac symptoms since 2020. “You’re realizing how easily society at large and people in your life will abandon you when you cannot offer them things.” www.latimes.com/science/stor...
latimes.com
Long COVID leaves thousands of L.A. county residents sick, broke and ignored
Six years after the COVID-19 pandemic began, doctors are still treating long COVID patients with complex symptoms and unknown futures.
3305128
Reposted by Lisa McCorkell
Patient-Led Research Collaborative @patientled.bsky.social · 15/03/2026
For #LongCovid Awareness Day, we’re releasing the 2026 Long Covid Fact Sheet! This is a list of key statistics about LC, using recent data to reflect contemporary risks. We hope this will be useful for journalists, policymakers, patients, & others! /1
patientresearchcovid19.com
2026 Long COVID Fact Sheet – Patient Led Research Collaborative
214294
Reposted by Lisa McCorkell
victoria @vashetc.blacksky.app · 15/03/2026
its long covid awarness day, if you wanna help me be reconnected to all of my belongings that I couldnt bring with me in the air ambulance i had to take across the country (that i had to take bc of lc) you can donate here gofund.me/deac55be8 I know others need it more so I understand if not <3
gofund.me
Donate to Critical Healthcare Support for Victoria, organized by Vee Copeland
Hello everyone, My name is Victoria and thank you for checking out my gofundme.… Vee Copeland needs your support for Critical Healthcare Support for Victoria
02019
Reposted by Lisa McCorkell
Patient-Led Research Collaborative @patientled.bsky.social · 11/03/2026
We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together. The guide focuses on 24 medications, but includes a few other interventions for breadth /1
rthm.com
Long COVID Treatment Guide
An evidence-supported guide covering treatments addressing multiple Long COVID symptoms & mechanisms — focused on prescription medication, with a limited set of supplements, OTC medications, procedure...
8314190
Reposted by Lisa McCorkell
Eric Topol @erictopol.bsky.social · 18/01/2026
3 years ago @ahandvanish.bsky.social, @lisamccorkell.bsky.social, @julialmv.bsky.social and I published a review on #LongCovid. Since then it has been downloaded nearly 2 million times and is #4 of >500,000 papers published since by @altmetric.com www.nature.com/articles/s41...
nature.com
Long COVID: major findings, mechanisms and recommendations - Nature Reviews Microbiology
Long COVID is an often debilitating illness of severe symptoms that can develop during or following COVID-19. In this Review, Davis, McCorkell, Vogel and Topol explore our knowledge of long COVID and ...
1026083
Reposted by Lisa McCorkell
Leah Lakshmi Piepzna-Samarasinha @thellpsx.bsky.social · 17/11/2025
lithub.com/remembering-.... read this achingly beautiful piece by @thrasherxy.bsky.social I keep thinking, @sfdirewolf.bsky.social was irreplaceable but she nurtured a whole-ass huge forest (or series of forests). No one can replace her, except for all of us doing the work she nurtured in us.
lithub.com
Remembering Alice Wong: Writer, Advocate, Friend
Though we were in frequent conversation for a decade, I only got to meet my friend Alice Wong in person just once. And when I did, I  was a bundle of nerves—and that was before she cussed me out wi…
38434
Reposted by Lisa McCorkell
Chloé de Canson @chloedecanson.bsky.social · 08/11/2025
Many Long COVID trials have reported negative results in 2024 and 2025. In our Comment for @thelancetinfdis.bsky.social we argue that inadequate outcome measures might have played a role. (1/12)
THE LANCET
Infectious Diseases
COMMENT • Online first, November 07, 2025
Negative results in long COVID clinical trials: choosing outcome measures for a heterogeneous disease
Lara Goxhaj • Lisa McCorkell • Femke van Rhijn-Brouwer . Letícia Soares . Julia Moore Vogel . Chloé de Canson
14520
Reposted by Lisa McCorkell
Susannah Fox @susannahrfox.bsky.social · 21/05/2025
The C in Trump’s CFPB stands for Corporate not Consumer. Gift link: www.nytimes.com/2025/05/21/o...
nytimes.com
Opinion | Trump Is Turning Our Consumer Watchdog Into a Corporate Protector
063
Reposted by Lisa McCorkell
Putrino Lab @putrinolab.bsky.social · 21/05/2025
Thank you to some amazing colleagues who took time and precious energy to craft this rapid response to the recent @bmj_latest piece. When people try to hijack #LongCOVID, #MECFS and other complex illness as psychosomatic it is important we strike back: www.bmj.com/content/389/... 1/
bmj.com
Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.
13287111
Reposted by Lisa McCorkell
betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 07/04/2025
Today @thesicktimes.bsky.social: I did an exit interview with @lisamccorkell.bsky.social, reflecting on her five years at the Patient-Led Research Collaborative. You can read the transcript or listen on our podcast (thanks to @hashtagjames.bsky.social!!). thesicktimes.org/2025/04/07/l...
thesicktimes.org
Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRC - The Sick Times
Lisa McCorkell, one of the founders of the Patient-Led Research Collaborative (or PLRC), recently stepped down after five years co-leading the organization. The Sick Times co-founder and managing edit...
05116
Reposted by Lisa McCorkell
Julia MV @julialmv.bsky.social · 15/03/2025
If you are not disabled: Please use the occasion of #LongCOVIDAwarenessDay to educate yourself about the ongoing risks of COVID to yourself & those around you. We're begging you to consider the risks you can pose to others & act accordingly. There are many great articles, including this one: 1/2
23325
Reposted by Lisa McCorkell
Michael Sieverts @yogafogie.bsky.social · 13/03/2025
Esp now we need reminders of the great work that often goes unnoticed in the US govt. Excellent feature from the @washingtonpost.com on @cureid.bsky.social . #LongCOVID #LongCOVIDAwareness2025 wapo.st/3Ft2hBe
wapo.st
Opinion | The free-living bureaucrat
Michael Lewis on Heather Stone of the Food and Drug Administration.
043
Lisa McCorkell @lisamccorkell.bsky.social · 05/03/2025
Today is my last day in my role at @patientled.bsky.social. I am honored to have served in this role as part of the #LongCovid movement the last 5 yrs. While there’s still much to be done to achieve support, treatment, & cures for all, I’m so proud of the progress we’ve made b/c patients led the way
1313614
Reposted by Lisa McCorkell
SammyJo Wilkinson @sammyjoebv.bsky.social · 28/02/2025
Just sent to my reps, and posted in Solving MS where many have the double whammy of MS+LC. I used this to quickly email all my reps. They have told me email is better that call right now because so many people are contacting them. democracy.io
Trump commands the HHS to terminate a committee on Long COVID
173
Lisa McCorkell @lisamccorkell.bsky.social · 24/02/2025
Honored to be part of the congressional briefing on #LongCovid that @immunologyaai.bsky.social is hosting this Wednesday with @virusesimmunity.bsky.social & @ejohnwherry.bsky.social! If you can, please call your congresspeople and ask their staffers to attend! www.aai.org/Public-Affai...
aai.org
The American Association of Immunologists - AAI Congressional Briefing (February 2025)
15812
Reposted by Lisa McCorkell
Ezra S @ezra.zone · 12/02/2025
Excited to see this Long Covid Congressional Briefing on Feb 26 held by the American Association of Immunologists - with amazing panelists @virusesimmunity.bsky.social, @ejohnwherry.bsky.social, and @lisamccorkell.bsky.social! Just contacted all my congresspeople to suggest they send their staffers.
aai.org
The American Association of Immunologists - AAI Congressional Briefing (February 2025)
23211
Reposted by Lisa McCorkell
Miles W. Griffis @mileswgriffis.bsky.social · 21/02/2025
NEW: Trump commands the HHS to terminate a committee on Long COVID. “We need answers of why this specific committee was targeted in light of the commitment made to Long COVID [in Kennedy’s hearing] said @lisamccorkell.bsky.social. thesicktimes.org/2025/02/21/t...
thesicktimes.org
Trump commands HHS to terminate advisory committee on Long COVID - The Sick Times
A new executive order from the Trump Administration commands the Department of Health and Human Services (HHS) to terminate the Secretary’s Advisory Committee on Long COVID. The order, “Commencing the...
24321
Lisa McCorkell @lisamccorkell.bsky.social · 20/02/2025
Three weeks ago RFK committed to collaborating with healthcare providers, researchers, and patients to better understand and mitigate #LongCovid's impact. The Advisory Committee would have been a key part of that, and now it will be terminated. www.whitehouse.gov/presidential...
whitehouse.gov
Commencing the Reduction of the Federal Bureaucracy
By the authority vested in me as President by the Constitution and the laws of the United States of America, it is hereby ordered:     Section 1.
4239
Reposted by Lisa McCorkell
Carl T. Bergstrom @carlbergstrom.com · 22/01/2025
"Officials halted midstream a training workshop for junior scientists, called off a workshop on adolescent learning minutes before it was to begin, and canceled meetings of two advisory councils." It could've been telegraphed in advance. The fear, uncertainty, chaos, and disruption are the point.
science.org
Trump hits NIH with ‘devastating’ freezes on meetings, travel, communications, and hiring
Researchers facing
11632227
Reposted by Lisa McCorkell
Patient-Led Research Collaborative @patientled.bsky.social · 26/11/2024
NYT columnist @zey.bsky.social has written about PLRC & how we've made some of the best #LongCovid research possible, despite being a small group of chronically ill people. She's very kindly chosen us as this year's nonprofit to donate to, and we're deeply honored! www.nytimes.com/2024/11/26/o...
nytimes.com
Opinion | Donate This Holiday Season: Long Covid Research Need Your Help
A group of long Covid patients is financing research and making progress.
110845
Reposted by Lisa McCorkell
Emily Johnson @emilyrj.bsky.social · 08/11/2024
Thank you @lisamccorkell.bsky.social and @patientled.bsky.social for speaking to @statnews.bsky.social to keep Long Covid and patients with infection associated chronic conditions at the front of the science and medicine conversation www.statnews.com/2024/11/08/t...
Lisa McCorkell, co-founder, Patient-Led
Research Collaborative
Over 20 million American adults and children
have long Covid; millions more have other infection-associated chronic conditions and have
been suffering for decades. I have deep concern that existing health care access, safety net access, and research funding issues will be made even worse, resulting in severe consequences to Americans' lives, and that more and more people will join our community if Covid continues to spread unchecked.The Trump administration must prioritize ensuring that people can access quality health care, that a safety net is in place and is robust for those who need it, that people have the right and ability to protect themselves from viruses, and that there is significant research funding for long Covid and other infection-associated chronic conditions to get us to treatments and cures.
These issues do not just impact one party — we've seen bipartisan support in Congress, and we'll need additional leaders to step up to
address this crisis across government.
0205
Lisa McCorkell @lisamccorkell.bsky.social · 05/11/2024
NIAID issued an RFI for RECOVER-TLC! They seek responses on: 1. Potential therapeutics for #LongCovid 2. Interest in being involved on working groups 3. Biomarkers to be used in Long COVID clinical trials 4. General feedback on RECOVER-TLC More info here: grants.nih.gov/grants/guide...
grants.nih.gov
NOT-AI-25-007: Request for Information (RFI): Researching COVID to Enhance Recovery Treating Long COVID (RECOVER-TLC)
NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Request for Information (RFI): Researching COVID to Enhance Recovery Treating Long COVID (RECOVER-TLC) NOT-AI-25-007. ...
182
Reposted by Lisa McCorkell
C.H. Romatowski @romatowski.bsky.social · 14/04/2024
Wow, what a beautiful, humanizing piece. Really remarkable to see the Audubon Society of all places produce such a high-quality account of life with Long Covid. Hope more outlets are taking notes! Feat. @edyong209.bsky.social @lisamccorkell.bsky.social @ezra.zone
audubon.org
A New Birding Club Wants to Help COVID Long-Haulers Safely Enjoy Nature Together
Ed Yong, an award-winning science journalist who widely covered the pandemic, recently launched The Spoonbill Club to provide community—and an accessible hobby—for folks with long COVID.
02010
Reposted by Lisa McCorkell
Ed Yong is offline @edyong209.bsky.social · 18/03/2024
In my newsletter, I wrote about The Spoonbill Club--a series of birding trips that I started for Bay Area folks with long-COVID and related energy-limiting illnesses. We've done 2 small pilots that I think worked well. Here's more on the intention & planning: buttondown.email/edyong209/ar...
A spoonbill in flight
36851213
Reposted by Lisa McCorkell
Dr. Lucky Tran @luckytran.com · 28/11/2023
FINALLY! Just in time for the winter COVID surge, the CDC now has a useful wastewater dashboard. It indicates that nationally COVID wastewater levels are HIGH and rising further. You can access the dashboard here: cdc.gov/nwss/rv/COVI...
CDC's wastewater dashboard showing:

Nationally, COVID wastewater levels are high

The region with highest levels is the Midwest

Chart shows most regions are increasing
24881539
Lisa McCorkell @lisamccorkell.bsky.social · 21/11/2023
Chronic illness & disability community: I’ll be a panelist at a NASEM workshop on public access to federally-funded research results & Id love to hear ur thoughts on: What are barriers to accessing & understanding research results? What are implications of barriers? What does true access look like?
53017
Lisa McCorkell @lisamccorkell.bsky.social · 18/10/2023
In the US alone, 6% of adults & millions of children have Long COVID, with those numbers bound to grow, yet we risk losing momentum on research to date. We need a moonshot - at least $1 billion/yr in US gov funding for the next 10 years www.nature.com/articles/d41...
nature.com
Long COVID research risks losing momentum – we need a moonshot
Investing US$1 billion every year for the next ten years into long COVID research could improve the lives of millions and save trillions in economic costs. Investing US$1 billion every year for the ne...
514259
Reposted by Lisa McCorkell
Michael Sieverts @yogafogie.bsky.social · 18/10/2023
More great work on the need for more research on Long COVID and infection-associated chronic illness from @lisamccorkell.bsky.social and @patientled.bsky.social. Please share! www.nature.com/articles/d41...
nature.com
Long COVID research risks losing momentum – we need a moonshot
Investing US$1 billion every year for the next ten years into long COVID research could improve the lives of millions and save trillions in economic costs. Investing US$1 billion every year for the ne...
079
Reposted by Lisa McCorkell
It's ME(Jaime) @exceedhergrasp1.bsky.social · 07/10/2023
Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
mayoclinicproceedings.org
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...
22429157
Reposted by Lisa McCorkell
Patient-Led Research Collaborative @patientled.bsky.social · 07/10/2023
We’re so excited to be here!
86917