iiinova — where your digital self keeps evolving

Linda @lindaoh.bsky.social · 16/08/2026

Little country walk earlier.

010

Reposted by Linda

Carlow Weather @carlowweather.bsky.social · 12/08/2026

19:03 and getting close to peak now as you can feel the dimming like there is cloud but no cloud here in Carlow

3506

Reposted by Linda

Ciara Knight @ciara.bsky.social · 12/08/2026

Don’t have eclipse glasses so just taking these instead

0428

Reposted by Linda

🇨🇦Joe Vipond🇨🇦 @jvipondmd.bsky.social · 12/08/2026

Hey if you are in Eastern or Northern Canada right now you are experience a partial solar eclipse! My favourite pinhole camera: Leaf shadows! Just look at the ground shadows behind any tree to experience the eclipse live!

712972407

Reposted by Linda

Martin Grimshaw Has Long Covid @thrivingplanet.bsky.social · 12/08/2026

Everyone with #MECFS & #LongCovid deserves £compensation for harm, neglect, abandonment, and blocked research and treatments. Instead of healthcare we have gaslighting. It's a scandal. I would write more but waking up in pain and discomfort and a broken brain, every fecking day, dulls my eloquence.

44025

Reposted by Linda

Anna Holmes @annabookwriter.bsky.social · 10/08/2026

Reality TV where I Gordon Ramsey the fuck out of inaccessible businesses. “Oh, JUST one step? And how many steps is this 60 pound wheelchair hopping up, huh? Do you want me to try? Okay, then you can mop my blood off your artisanal foyer. How’s that sound?”

38747138

Reposted by Linda

Taryn de Vere @taryndevere.bsky.social · 11/08/2026

Christ this woman and her daughter are so lucky they had the means to take this to the High Court. What a horrific time they had with the previous judge, who sounds like she needs training on coercive control, domestic abuse and basic empathy. share.google/RggPq56pZYU0...

share.google

Judge who threatened to remove mother’s custody conducted ‘flawed’ hearing, High Court rules

Orders made without District Court hearing girl’s views – a ‘fundamental requirement’

152

Reposted by Linda

Memento (spooky) Morty 🌙 @mementomorty.bsky.social · 10/08/2026

anyone who voted to confirm rfk jr needs to spend a day with me in the ICU while patients who aren't vaccinated against respiratory viruses struggle to breathe so they can see what they've created today

211448257

Reposted by Linda

StarDust949 @stardust949.bsky.social · 11/08/2026

M.E ( #MyalgicEncephalomyelitis) is a highly stigmatised condition that completely destroys people’s lives. Despite this, sufferers are disbelieved, abandoned & abused. J K Rowling chose to vilify this vulnerable group in her Cormoran Strike books. #Tranphobia & #Ableism go hand in hand. #MECFS

0125

Reposted by Linda

Tom Cox @dj-acid-reflux.bsky.social · 11/08/2026

Fucking canvassers at the door again. I'm not opening it.

After knocking politely with the most flexible of her hoofs, a brown cow waits shyly outside the front door of the Welsh folly where I stayed this weekend.

2332731

Reposted by Linda

Kelly @broadwaybabyto.bsky.social · 11/08/2026

I mourn my independence. I fear what will happen to me when I lose even more function. When someone helps me accomplish these tasks, I feel a load off. I replenish spoons. I can get through another day. We all deserve that care and comfort.

0649

Reposted by Linda

Kelly @broadwaybabyto.bsky.social · 11/08/2026

Please don’t offer disabled people “thoughts and prayers”. Don’t offer empty platitudes and inspirational memes. Offer real, tangible help… and then follow through. We lack support for the most basic activities of daily living. That’s where we need help.

217250

Reposted by Linda

Tom Kindlon @tomkindlon.bsky.social · 10/08/2026

“This exhaustion is cellular”: Excerpts from the new book ‘What Is Myalgic Encephalomyelitis Like?’ by @madelleine.bsky.social @thesicktimes.org thesicktimes.org/2026/08/08/t... #MyalgicEncephalomyelitis #PwME #MEcfs #CFS

Commentary International

“This exhaustion is cellular”: Excerpts from the new book ‘What Is Myalgic Encephalomyelitis Like?’

Written by

Madelleine Muller

–

August 8, 2026

Essays focusing on Severe Myalgic Encephalomyelitis (ME), from a new book by an international group of writers documenting their ME experiences.

Photo of book cover and Madelleine Muller

Sources: Courtesy WIMEL writers and Madelleine Muller

03310

Reposted by Linda

Introvert Problems @introvertproblems.bsky.social · 10/08/2026

One of the worst things you can hear as an introvert is, “Let’s go around the room and introduce ourselves.”

2132335

Reposted by Linda

Tom Kindlon @tomkindlon.bsky.social · 09/08/2026

VSL#3® supplementation improves fatigue in long COVID: results from the DELong#3 randomized placebo-controlled trial www.frontierspartnerships.org/journals/bri... "the change in [Chalder Fatigue Scale] score was greater in the VSL#3® group compared to placebo" #LongCovid #PostCovid #PASC

frontierspartnerships.org

Frontiers Publishing Partnerships | VSL#3® supplementation improves fatigue in long COVID: results from the DELong#3 randomized placebo-controlled trial

BackgroundLong COVID is frequently characterized by persistent fatigue and impaired quality of life. Increasing evidence suggests that gut microbiota dysbios...

075

Reposted by Linda

victoria @vashetc.blacksky.app · 09/08/2026

Yesterday was Severe ME/CFS awareness day. From 2022 to 2025 I suffered from severe to very severe ME/CFS. In 2024 I went outside perhaps 3-4 times, each time in an ambulance gurney to go to the emergency room. this disease, it takes everything... and the medical system takes the rest. 🧵

23011

Reposted by Linda

Tom Kindlon @tomkindlon.bsky.social · 09/08/2026

Long COVID The Answers: Biological evidence for #LongCOVID, post-exertional malaise (Part I) youtu.be/3IFHSPlFY6E?... Dr Funmi Okunola interviews Profs Rob Wüst & Mark Faghy @profmarkfaghy.bsky.social about their work. Duration: 33 minutes. Part 1 of a 2-part podcast special. #PEM #PostCovid 1/

youtu.be

Biological evidence for long COVID, post-exertional malaise - Prof Rob Wüst & Prof Mark Faghy - PT1

YouTube video by Long Covid The Answers

2185

Reposted by Linda

Sheryl Weikal says Prosecute ICE @leftistlawyer.com · 09/08/2026

A simple syllogism. P1. Dental care is healthcare. P2. All healthcare should be free at the point of service. C. Therefore, dental care should be free at the point of service.

24813173

Linda @lindaoh.bsky.social · 09/08/2026

Having a coffee and a walk around #Kilkenny Castle.

030

Reposted by Linda

Mads @blueforpwme.bsky.social · 08/08/2026

…Many are still psychologised which is an appalling failing of healthcare. Patients have lost their lives due to lack of care over many decades now.

101

Reposted by Linda

Mads @blueforpwme.bsky.social · 08/08/2026

For those at the severe end, well being out is something they can only dream of. Mild M.E. means loss of 50% of functioning. Moderate = mostly housebound & closer to 70% loss Severe = bed bound more or less 90+% loss (My personal experience & can differ across the board)

101

Reposted by Linda

Mads @blueforpwme.bsky.social · 08/08/2026

With devastating effects, even at what is called the ‘mild’ end. Mild is an understatement. Those who are seen outside of the home who appear to be ‘well’ are most definitely not, and are also not representative of the full M.E. Spectrum either….

111

Reposted by Linda

Mads @blueforpwme.bsky.social · 08/08/2026

#SevereMEDay 25% group People seem to think M.E. is this mild, ineffectual disease. It is not. It’s a severely life affecting, life limiting, life changing neurological, neuro-immune disease of the brain and spinal cord. In turn, a multi-system issue (lack of oxygen to tissues, perfusion etc)….

Bold white text in capital letters reads: SEVERE M.E. DAY and underneath reads the date: 08.08.2026 set against a gradient blue background from dark to light top to bottom.

544

Reposted by Linda

Jamie Crawford @jamiecrawford68.bsky.social · 08/08/2026

Unless it’s someone you know personally, you won’t meet anyone with severe ME. They’re typically bedbound, and live in constant, well, discomfort doesn’t come close to it. See below. The govt, and by extension NHS, do nothing. It’s a living hell. #severeMEday #severeMECFS

04225

Reposted by Linda

It's ME(Jaime) @exceedhergrasp1.bsky.social · 08/08/2024

Today, Aug 8, is #SevereMEDay. Today we discuss severe-presenting #MECFS and remember people with severe ME. #MECFS is an infection-associated chronic illness, which means it is often, but not always, kicked off by an infection. ~Half of #LongCOVID cases at 6 mo meet the dx criteria for ME/CFS. 🧵

Two diagrams from the Mayo Clinic Proceedings article I co-authored. On the left, a diagram of a woman's body, including symptoms of fatigue, muscle aches, PEM, cognitive dysfunction, unrefreshing sleep, orthostatic intolerance, temp. dysregulation, urinary frequency, myalgia, sensory sensitivity/reactivity, swollen lymph nodes & other flu-like symptoms, shortness of breath, palpitations/chest pain, appetite changes and diarrhea/constipation. On the right, a wheel diagram of symptoms that may flare in post-exertional malaise, the pathology that occurs w/overexertion in which many symptoms flare and new symptoms may appear. It notes that PEM is not deconditioning, not being more tired than usual after activity, not second-day muscle soreness and symptoms are not necessarily relieved by sleep. It includes all the symptoms mentioned in the first diagram but has some sections on what it's like in the patient's own words.

13235147

Reposted by Linda

FunkisHen @funkishen.bsky.social · 08/08/2026

The worst part is that still, 21 years later, Severe ME patients are still told they're mentally ill and treated horrendously by the health care system. Being denied care such as feeding tubes, being disrespected while dying. What the fuck are we doing?

12811

Reposted by Linda

Prof Ros Gleadow FAA 💙💚 @rgleadow.bsky.social · 08/08/2026

More evidence that ME is related to vascular and mitochondrial dysfunction and not from deconditioning - these poor people should never,never be encouraged to exercise outside their energy envelopes 🤗💔 . #GET is harmful #pwME

0103

Reposted by Linda

Karistina Lafae 🧚‍♀️ AuDHD Bedbound Faerie Godmother @karistinalafae.northsky.social · 07/08/2026

I miss #SevereMECFSDay pretty much every year. Because of my Severe ME/CFS. Severe means losing 80% of your ability to function. Bedbound. But it's still not as dire as Very Severe ME/CFS, where you are bedridden, unable to tolerate light and sound. People die of it.

0168

Linda @lindaoh.bsky.social · 08/08/2026

Had a rare few glasses of Cava tonight so of course it's 3.40 and I can't sleep with an upset stomach and restless legs.

000

Reposted by Linda

Michael Love @elkmovie.bsky.social · 05/08/2026

I’m on a small-ship Alaska cruise with my son; our boat rescued a stranded vessel last night and apparently we did that after the Coast Guard radioed Mark Zuckerberg’s yacht - which was closer - and they repeatedly refused to respond. (There was near unanimous booing when the captain announced this)

11672001854

Reposted by Linda

Nate O @nateo.bsky.social · 06/08/2026

This is misogyny and anti-disability discrimination on par with old-timey doctors claiming women are prone to ‘hysteria’ and the vapours. It is unacceptable seeing this in any newspaper. UK philosophers should loudly condemn it as a whole, since it is authored by an ex-colleague. It is wrong

Why are young women using walking sticks?
A disproportionate number of Gen Z females are affected by vague syndromes and may be victims of social contagion

Kathleen Stock
Wednesday August 05 2026, 9.00pm BST, The Times
Listen
• 5:42 min
Share
In 19th-century Paris, walking with a cane was a symbol of the dandyish flâneur, strolling elegantly around the city with an ironically arched eyebrow. In 21st-century Britain, canes are the unironic preserve of vulnerable looking girls.
Sometimes you see groups of them, each leaning on a walking stick as they edge gingerly along. Startlingly fresh-faced users have been visible at Pride parades for a while, and there are growing numbers on university campuses. The message sent to onlookers is about a life spent in pain; though what kind of pain, exactly, remains unclear.
TikTok has hundreds of videos on the subject: how to match your stick to your outfit, how to dance with a cane, how mobility aids can still look hot. And the trend is not just for walking aids

To point this possibility out tends to produce anger in those affected or those that care for them. Arguing that certain kinds of disability are socially created, particularly in females, looks at odds with the dictum that young women with chronic illnesses tend to be disbelieved by doctors, and that this is a very bad thing.
When talking about trends across huge populations, though, both things can be true - indeed, they might even be connected. And in the socially constructed case, we are still talking about illness rather than deliberate feigning. It's just that the source of illness is, in part, a story the sufferer has unconsciously learnt. And this is very good news. For unlike biologically fixed disorders, stories can be changed for the better, and happier endings produced for the sufferers concerned.
Rather than it being cruel to say this, in fact, it is cruel not to.
We owe it to potentially able-bodied young people to challenge their tendencies to neuroticism and fear; to get them out into the world as functioning adults, wherever that is possible. For their sake, we need to help them ditch the props, and - quite literally - to stand on their own two feet.
Kathleen Stock is a contributing editor at UnHerd
Hugo Rifkind is away

3239786

Reposted by Linda

Tressie McMillan Cottom @tressiemcphd.bsky.social · 06/08/2026

people with chronic pain warned us at the time but the criminalization of women and minority people’s pain after the opioid crisis is a public health disaster. I’ve had friends denied pain management after hysterectomies, dental extractions and broken bones.

332926853

Reposted by Linda

J. Offir, PhD @joffirphd.bsky.social · 06/08/2026

7/ not possibly have" cancer. 🔺️This isn't just folks trying to weed out internet liars. It's about an underlying assumption that sick people caused their own illness (& so, differ morally & physically from their accusers, who must be "safe" from the same fate). That's called Just World Thinking.

17310

Reposted by Linda

J. Offir, PhD @joffirphd.bsky.social · 06/08/2026

(Long) Commentrary🧵: Sydney Towle, who recently turned 26, has died of cholangiocarcinoma. 2 lessons to be learned from online responses to this TikTok influencer: 🔺️The public couldn't be worse at discerning fact from fiction. 🔺️Disabled & chronically ill folks... www.nytimes.com/2026/08/06/s...

nytimes.com

Sydney Towle, Who Chronicled Her Cancer on TikTok, Dies at 26 (Gift Article)

For an audience that grew to more than a million followers, she challenged assumptions about how people with serious illnesses should look and live.

411346

Reposted by Linda

Michiel @murtoz.bsky.social · 06/08/2026

#pwME, here we go again. CW yet another pwSME at risk of starvation by the NHS.

055

Reposted by Linda

fesshole 🧻 @fesshole.bsky.social · 06/08/2026

I've started looking into whether it's possible to become a monk. I have no interest in any type of religion. I just want to be left alone in a quiet space for a long time.

4957938

Reposted by Linda

ashley fairbanks @ziibiing.com · 06/08/2026

waffles’ best trick is that if you want him to lay down somewhere, you just place his little blanket in the exact spot it’s like his wireless charging base

dirty ass little white dog on a pristine blue baby blanket

422312

Reposted by Linda

ME/CFS Science @mecfsscience.org · 06/08/2026

1) 🇺🇸 A new NIH study argues that the fatigue experienced by ME/CFS patients likely has a central (in the brain) rather than a peripheral (in muscle) origin. They put patients in an MRI scanner and recorded electromyography during grip strength exercises. A brief breakdown.

1288

Reposted by Linda

Chris Ponting @cgatist.bsky.social · 06/08/2026

Today is the 1-year anniversary of the #DecodeME genetics preprint. It was an emotional day for many including everyone in the team that delivered the project #pwME #MEcfs @actionforme.bsky.social institute-genetics-cancer.ed.ac.uk/sites/defaul...

institute-genetics-cancer.ed.ac.uk

78929

Reposted by Linda

Kevin Teljeur @kevinteljeur.bsky.social · 05/08/2026

I thought that Re-Turn, the Irish bottle deposit scheme not-for-profit was an organisation set up by the Government. It is not. It is a consortium set up by the trade. The people who run it are paid a lot of money to do so.

185