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ME/CFS warrior

@justjones43.bsky.social
1.5K followers 4.2K following 165 posts

Standing at the corner of Social determinants of health & Common sense and wondering where everyone else is. Free-thinker. Sometimes my thoughts wander off and I have to go look for them. 📷 are mine, unless reposts.

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ME/CFS warrior @justjones43.bsky.social · 4h
#SquirrelSaturday It was so hot one year that this squirrel was sprawled out on the concrete. This is also what #MECFS feels like. #Spoonie #NaturePhotography #WildLife #SquirrelsOfBluesky
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Planned Parenthood GNHAIK @ppgnhaik.bsky.social · 30/09/2026
🚨CW: SA Consent means ACTIVELY agreeing to be sexual with someone, and sexual activity without consent is rape or sexual assault. Consent is ⬇️ 📍Freely given: consenting is a choice you make without pressure, manipulation, or under the influence of drugs or alcohol.
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ME/CFS warrior @justjones43.bsky.social · 12h
#BirdOfTheDay is #Black&Red Downy Woodpecker 📷 Susan - a.k.a. Snow White #NaturePhotography #BirdLife #ForestFriend @alan678.bsky.social
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ME/CFS warrior @justjones43.bsky.social · 02/10/2026
Great Blue Heron This juvenile heron was super chill, which is how I was able to get so close to take this pic. 📷 Susan #BirdOfTheDay#BestBeaks #BirdsofBluesky #Nature #NaturePhotography #ECK @helenbennett.bsky.social @robcrank68.bsky.social @atlanticbirding.bsky.social
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ME/CFS warrior @justjones43.bsky.social · 02/10/2026
#ForestFriday #ECK #Nature #NaturePhotography @forestfriday.bsky.social
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ME/CFS warrior @justjones43.bsky.social · 02/10/2026
It’s baffling that on a platform full of people calling out broken policies, a real-life policy failure gets zero traction. The system completely failed me. Please don't look past the real human cost. 💸💕 www.freefunder.com/campaign/nee... #MutualAid #FundFriday #DisabilitySky #HelpSky #Spoonie
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Mark Simmonds @markbirdingpinoso.bsky.social · 02/10/2026
My #birdoftheday #bestbeaks is this White-throated Kingfisher taken in Thailand. One of the best beaks on a Kingfisher for sure. #birds #birdphotography
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The Mouthy Renegade Writer @mouthyrenegade.bsky.social · 02/10/2026
Imagine how much better the world would be if we protected women’s safety as aggressively as men’s reputations.
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ME/CFS warrior @justjones43.bsky.social · 02/10/2026
American white ibis #BirdOfTheDay#BestBeaks #BirdsofBluesky #Nature #NaturePhotography @helenbennett.bsky.social @robcrank68.bsky.social @atlanticbirding.bsky.social
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ME/CFS warrior @justjones43.bsky.social · 02/10/2026
Fun fact about shingles: Airborne Infection Isolation Rooms (AIIRs) can be used to treat some patients with shingles. You can't leave the room the entire time. Ask me how I know.
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ME/CFS warrior @justjones43.bsky.social · 02/10/2026
Shingles more than once? 🙋‍♀️ Try 4x. factors that can impact shingles recurrence [...]: Being biologically female ✅️ Having an autoimmune disease ✅️ 🚨High levels of stress and anxiety ✅️ Shingles in the eye w/ previous shingles infection ✅️ www.ncoa.org/article/can-... @craigspencer.bsky.social
ncoa.org
What Are Your Chances of Getting Shingles Twice?
Worried about getting shingles twice? Learn how common recurrences are, risk factors, and why the Shingrix vaccine is recommended for adults 50+. Protect yourself from shingles, complications, and lon...
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Elizabeth Warren @warren.senate.gov · 01/10/2026
For the typical worker, more than half of every dollar of income growth is going right back out the door in debt payments. This new report from @tcfdotorg.bsky.social and @protectborrowers.bsky.social makes it clear: the economy is rigged against working families.
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jamelle @jamellebouie.net · 01/10/2026
seen on my porch this morning
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Chronic Illness Humor @chronicillness.bsky.social · 12/01/2025
#spoonie #chronicillness #chronicillnessmemes
(in red) Do you run? 

(in black) Yes, out of spoons, brain cells, options, fucks, meds, and money.
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✨ Soft Grit Spoonie ✨ @softgritspoonie.bsky.social · 17/05/2025
#chronicillness #chronicillnessmemes #chronicallyill #spoonie
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Tom Kindlon @tomkindlon.bsky.social · 10/10/2024
#chronicillness #Spoonie #MEcfs #Spoonie #alt4me
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JBC @johnbcaddell.bsky.social · 01/10/2026
behold beautifully bundled #butterflies #InsectThursday #insects #bugs
Monarch butterflies wintering at Natural Bridges State Park in Santa Cruz, CA
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ebisback.bsky.social @ebisback.bsky.social · 01/10/2026
Pathetic and Insanity 😡 I've been there.
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ME/CFS warrior @justjones43.bsky.social · 01/10/2026
​Without universal healthcare, living with a debilitating illness like ME/CFS carries a double penalty: the physical burden of the disease, and systemic financial devastation. ​💕💸 #MutualAid #HelpSky #HelpPeopleLive2026 #DisabilityCrowdfund #MABoost @jamellebouie.net @mutualaiddirective.bsky.social
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ME/CFS warrior @justjones43.bsky.social · 30/09/2026
Good evening Bluesky! ✨️ #Sunsets #SunsetPhotography #NaturePhotography #Nature
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Cynthia @cynthia-hounds.bsky.social · 17/05/2026
That $7.25 an hour minimum wage works out to about $15K a year, so to get to that $40k, you'd need to work 2-2/3 jobs (and that's gross, not after taxes). Considering that this Congress WORKED 88 DAYS this year, they got paid about $1,980 a day. Plus all those other freebies. They're the parasites.
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Lynn Miclea @lynnmiclea.bsky.social · 28/09/2026
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Brant Reeves @bireeves95.bsky.social · 28/09/2026
My insurance rates a medication I need as Tier 2, making it more expensive to me…..
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4fuxake @blueheartedly1.bsky.social · 17/05/2026
Also fuck Mike Johnson for saying politicians can't survive off $175k salaries but they expect citizens to live off $40k or $7.25 an hour. Fuck all the way off
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4fuxake @blueheartedly1.bsky.social · 28/09/2026
Every bit of this 👇
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ME/CFS warrior @justjones43.bsky.social · 29/09/2026
Today's #BirdOfTheDay is any bird starting with #EFG Great Egret #BirdsOfBluesky #Nature #NaturePhotography
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ME/CFS warrior @justjones43.bsky.social · 28/09/2026
@helenbennett.bsky.social Today's #BirdOfTheDay theme is #BokehBirds - any bird captured with a soft, muted or blurry background Tufted titmouse #BirdsOfBluesky #Nature #NaturePhotography
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Geert Klein Breteler @geertkb.bsky.social · 28/09/2026
Today's #BirdOfTheDay theme is #BokehBirds, any bird captured with a soft, muted or blurry background. This is what quiet attention looks like: stillness, precision, color that seems almost impossible in nature. #Kingfisher #IJsvogel #BirdOfTheDay #SonyAlpha #birds #birdphotography #EastCoastKin
A kingfisher with iridescent blue-green crown and wings, rust-orange underside, and dark eye, sits upright on a lichen-covered branch. The background is a soft, blurred bokeh of warm brown and muted greens, with fine detail on the bird's head, eye, and bill. Photo by Geert Klein Breteler.
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Dom Barker @dakuan808.bsky.social · 28/09/2026
Today's #BirdOfTheDay is hosted by @helenbennett.bsky.social and the themes are #BokehBirds, birds with soft, muted or blurry backgrounds. Have yerselves a Kingfisher at dusk, settings etc: dombarker.co.uk/posts/965
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Robert Reich @rbreich.bsky.social · 27/09/2026
The response when progressive policies that help millions of people are proposed... "How will you pay for it?" The response when the richest 1% ask for tax cuts, or banks ask for bailouts, or defense contractors ask for more contracts... "How much do you need?" It doesn't have to be this way.
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ME/CFS warrior @justjones43.bsky.social · 27/09/2026
It's been awhile since I've tried to use the little sign language I know, but I still remember the power of connecting when I used ASL at work and it wasn't expected. It's such a beautiful thing when someone feels understood. #SignLanguage
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ME/CFS warrior @justjones43.bsky.social · 27/09/2026
#BirdOfTheDay is #SeaBirds Brown Pelican #NaturePhotography #BirdLife #BirdsOfBluesky #SuperSeaBirdSunday @robcrank68.bsky.social @atlanticbirding.bsky.social
A close-up, eye-level photograph of a Brown Pelican perched on a weathered wooden railing against a backdrop of a choppy blue ocean and a partly cloudy sky. The pelican has a yellowish head crown, a long grey and pinkish bill, greyish-brown textured wing feathers, dark legs, and webbed feet.
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Rhuta Bhayga @rhutabhayga.bsky.social · 27/09/2026
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ME/CFS warrior @justjones43.bsky.social · 27/09/2026
@robcrank68.bsky.social #SwantasticSunday I always thought it was cool that swans mainly mate for life. 🫶 #BirdsOfBluesky #Nature
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Abdul El-Sayed @abdulelsayed.bsky.social · 26/09/2026
Here's how we get Medicare for All done: Make Medicare whole (no one can keep all the parts straight!) Include vision, dental, and hearing. Begin extending to more people, starting with children. We arrive at Medicare for All, which means great Medicare for everyone.
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Timothy McBride @mcbridetd.bsky.social · 27/09/2026
Black Infant Deaths Rise Despite Broader US Gains www.medscape.com/viewarticle/...
medscape.com
Black Infant Deaths Rise Despite Broader US Gains
The COVID pandemic revealed just how fragile decades of progress on infant and maternal health truly were.
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Prof Peter Hotez MD PhD DSc(hon) @peterhotezmdphd.bsky.social · 21/09/2026
Covid
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Jon Douglas @atranscendedman.bsky.social · 23/09/2026
Lily Emmanuel developed fatigue, brain fog, breathing problems and multi-system illness after suspected COVID. Years of fluctuating disability led her into Long COVID research, where she now helps shape clinical trials. fnih.org/patient-enga...
fnih.org
Long COVID Struggle Inspires Interest in Medical Research | FNIH
Grappling with Long COVID as a high school freshman changed everything for Lily Emmanuel. Over time, this led to an enduring interest in science and research.
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Physicians for a Healthy Democracy @physiciandemocracy.medsky.social · 04/06/2025
@drneilstone.bsky.social
COVID vaccines were tested.  COVID vaccines work.  COVID vaccines are not experimental.
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ME/CFS warrior @justjones43.bsky.social · 27/09/2026
Got my COVID and FLU shot, both in the same arm, and all good. I'm always fatigued from CFS, but 💉💉 were fine. Pharmacists are some of the nicest people and the one who did my shots was no exception! 🫶 The CDC vaccine locator is down👎 Try science here: www.chop.edu/parents-pack...
chop.edu
Vaccine Websites
Find a collection of websites suggested by the Vaccine Education Center at The Children's Hospital of Philadelphia, featuring vaccine information for families and professionals. Vaccine Education Center websitesThe Vaccine Education Center is a member of the World Health Organization's (WHO) Vaccine Safety Net because our website meets the criteria for credibility and content as defined by the Global Advisory Committee on Vaccine Safety. Learn more about WHO's Vaccine Safety Net.Check out the Vaccine Education Center’s primary website, which includes the following sections:Vaccines and DiseasesVaccine SafetyVaccine Science & HistoryVaccine ScheduleHuman Immune SystemAbout VECParents PACK is the Vaccine Education Center’s program for the public. The website includes personal stories related to vaccine-preventable diseases, resources for evaluating information, and more.Vaccine Update is the Vaccine Education Center’s program for healthcare providers. The website includes archived articles, webinars, and online learning for healthcare providers.Vaccine Makers Project is the classroom program of the Vaccine Education Center. Free lesson plans and activities offer information about immunology, infectious diseases and vaccines.HillemanFilm.com is the Vaccine Education Center’s website for science and history enthusiasts. Find stories and film clips related to vaccine scientists and their work.Vax Pack Hero is an online game that introduces more than 50 vaccine scientists and other heroes.Prevent-HPV.org — Provides answers to dozens of questions about HPV and the HPV vaccine.COVIDVaccineAnswers.org – Provides answers to dozens of questions related to COVID-19 disease and the vaccines.Websites of other credible sources of vaccine and related informationAboutKidsHealth is a health education website for children, youth and their caregivers. Their CARD (Comfort, Ask, Relax, Distract) System provides strategies that caregivers can use to help children cope before and during vaccinations or other needle-related procedures.Albert B. Sabin Vaccine Organization is a nonprofit public organization. The Institute is dedicated to continuing the work of Dr. Albert Sabin who envisioned the enormous potential of vaccines to prevent deadly diseases. The Sabin Vaccine Institute promotes rapid scientific advances in vaccine development, delivery and distribution worldwide via vaccine research and development, academic support and public awareness.American Academy of Pediatrics (AAP) is an organization of pediatricians interested in promoting the health and well-being of children.American College of Obstetricians and Gynecologists (ACOG) is an organization of obstetricians and gynecologists interested in promoting the health and well-being of women and their families. In addition to their interest in all aspects of healthcare for women, ACOG provides information about vaccines.American Lung Association (ALA) is an organization that works to save lives by improving lung health and preventing lung disease. In addition to information about prevention through vaccination, ALA also offers a series of informative webpages about different diseases that affect the lungs.American Medical Association (AMA) is an organization of physicians interested in promoting the health and well-being of adults and adolescents.Autism Science Foundation supports autism research and provides information about autism to the general public. ASF serves to increase awareness of autism spectrum disorders and the needs of individuals and families affected by autism. Its website also provides information about autism and vaccines. ASF has a YouTube channel that features interviews with top autism researchers, ASF grantees, autism book authors, and others.CHIVA Africa is a group based in the U.K. that provides mentoring, support and practical training to South African medical professionals.Common Health Coalition is a collaboration “of America’s leading health organizations in pursuit of a reimagined health system.” The coalition offers numerous resources and a weekly newsletter, 2-4-2 Digest.Families Fighting Flu is a group of families who have experienced firsthand what it is like to lose a child to the flu or to have a child experience severe medical complications from the flu.Familydoctor.org is a website offered by the American Academy of Family Physicians (AAFP) that includes information about health-related topics across the lifespan.Fluoride Exposed is a website related to the science of fluoride; it also highlights 10 important public health achievements including vaccinations.Gates Foundation is an organization dedicated to improving the health and lives of people throughout the world.The George Washington University online MPH program has created resources related to vaccines: A History of Measles in the United States and Producing Prevention: The Complex Development of Vaccines for their Public Health Online blog.Global Polio Eradication is devoted to eradicating polio throughout the world.Gretchen LaSalle MD is a website by a family physician and author, who is “passionate about prevention, community health and education.”HealthyChildren.org is a website about children’s health for families. The site is offered by the American Academy of Pediatrics and is also available in Spanish.Healthy With Harvey is a nonprofit that uses a friendly dog to teach children 3 to 7 years of age simple, science-based, healthy behaviors.Hepatitis B Foundation is an organization dedicated to research and education related to hepatitis B. The organization is dedicated to finding a cure.History of Vaccines is a project of the College of Physicians of Philadelphia designed to provide a compelling history of vaccination and to promote public understanding of how vaccines have helped to improve human health.Immunize.org is a nonprofit organization that works to boost immunization rates and prevent disease. Immunize.org provides excellent and timely information, practical tips about vaccine use, and translations of vaccine information in several languages.Institute for Vaccine Safety is based at The Johns Hopkins Hospital and provides excellent, thorough and up-to-date information on vaccine safety.International Ventilator Users Network is a nonprofit organization devoted to assisting those who rely on ventilators to survive as well as to support polio survivors.K12 Academics is a national education & disability resource website with a community-based approach. The site has an informative page about autism.The Kaiser Permanente Vaccine Study Center helps ensure that the nation's vaccines are safe and effective by conducting research to advance scientific understanding of vaccines at all levels of development.Let’s Get Real About Childhood Vaccines is a website offered by Immunize.org. The site addresses common questions parents have about vaccines and offers personal stories and resources.The Meg Foundation helps people, especially kids, learn ways to manage pain and anxiety that can come with vaccinations or other medical procedures.Migration Health Initiative offers toolkits, translated materials, training and workforce development resources, and information about best practices for use with communities experiencing migration.Milestones Autism Resources is a nonprofit dedicated to educating, coaching and connecting families, professionals and individuals with ASD through evidence-based strategies. National Foundation for Infectious Diseases is a nonprofit organization focused on educating and engaging the public, communities, and healthcare professionals about infectious diseases across the lifespan. The website has trusted information and free resources to help ensure healthier lives for all.PATH is a nonprofit organization that works globally to promote health equity while addressing the most pressing health challenges. In this capacity, some of their efforts are focused on vaccine development and delivery.Public Health Communications Collaborative (PHCC) provides timely resources to bolster public health communications.Sepsis Alliance is the leading sepsis organization in the U.S., working to save lives and reduce suffering from sepsis. Sepsis Alliance provides healthcare professionals, the general public, those impacted by sepsis and lawmakers with the education, support and advocacy to help save lives and limbs from sepsis.Shot@life aims to decrease vaccine-preventable childhood deaths and give children a shot at a healthy life.Texas Children's Global Health Vaccine Program offers information about vaccines development.Unity Consortium is a non-profit organization that unites public and private organizations to address the challenges surrounding adolescent and young adult healthcare with a focus on prevention and immunization. It provides useful resources for parents, teens and healthcare providers.Vaccinate Your Family (VYF) (formerly known as Every Child by Two (ECBT)) is a national non-profit organization dedicated to protecting people of all ages from vaccine-preventable diseases.Vaccines for Africa provides up-to-date, evidence-based information about vaccines and immunization practices relevant in Africa. The site is administered by the University of Cape Town.Vaccine Information is Immunize.org's website for the general public and healthcare professionals. It features reliable information about vaccine preventable diseases and helpful resources such as disease photos, videos and related websites.Vaccine Integrity Project is a project of the Center for Infectious Disease Research and Policy (CIDRAP) at the University of Minnesota. Formed in 2025, the project focuses on evaluating the breadth of scientific information about vaccines so that policymakers, clinicians and others can ensure that vaccine-related practices and decision making are grounded in accurate and complete analyses.The Vaccine Mom is a blog by a mom who is also a scientist who studies immunology.ViralTruths.org is a website offered by Vaccinate Your Family. People can report issues about getting vaccines, get info on the latest topics about vaccines, and get timely updates related to vaccine policies.Voices for Vaccines is a not-for-profit public organization that provides science-based, accessible information about the benefits and risks of vaccines and vaccine-preventable diseases.
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ME/CFS warrior @justjones43.bsky.social · 26/09/2026
#SquirrelSaturday The proximity of people standing behind you when you're stuck waiting in a line. #SquirrelsOfBluesky #NaturePhotography #PersonalSpace #WhyAreYouSoClose #PublicEtiquette #Relatable
A close-up photo of a squirrel staring directly into the camera lens, perfectly illustrating a total lack of personal space
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ME/CFS warrior @justjones43.bsky.social · 26/09/2026
@robcrank68.bsky.social @atlanticbirding.bsky.social Today's #BirdOfTheDay is #Borbs - birds looking plump. Amazing how many colors! #NaturePhotography #GobbleGobble
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ME/CFS warrior @justjones43.bsky.social · 25/09/2026
This is a cool website to list #monarch caterpillar/butterfly & #hummingbird sightings. I love data and would love to know the monarchs made it to Mexico, or at least enjoyed life trying, yet didn't want to stick Monarch Watch tags to their wings. 🦋 #NatureSky #Stewards #Nature journeynorth.org
journeynorth.org
Journey North
Help us track wildlife migrations and seasonal change across North America for Monarch Butterflies, Hummingbirds, and more!
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Ariaa® @ariaa.bsky.social · 24/09/2026
What started as one teenager’s idea is now pulling millions of kilograms of plastic out of the world’s oceans. I've been donating to this amazing org. since it's inception. Hope you will too. theoceancleanup.com/donate/ #Innovation #PlasticPlanet #OceanCleanUp #EnvironmentalSolutions
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ME/CFS warrior @justjones43.bsky.social · 24/09/2026
My last two monarchs of the season were set free today. Thankfully it warmed up and there was a hint of sun. I wish I could get a good pic of my released #monarchs on native plants but they like to go high first. I hope they make it to Mexico ☀️🦋✨🦋✨🙏 #Pollinators #NativeGardening #NatureSky#Wings
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ME/CFS warrior @justjones43.bsky.social · 24/09/2026
@atlanticbirding.bsky.social #BirdOfTheDay alt is any bird staring at you. Ring-billed Gull at Canadian Falls I must have missed the foreboding psst in this stare... "um, lady, you might want to stay on this side, eh?" (while visiting from the U.S. a few years ago) @birdscanada.bsky.social 🇨🇦
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ME/CFS warrior @justjones43.bsky.social · 24/09/2026
@atlanticbirding.bsky.social #BirdOfTheDay is #TheDivers Belted Kingfisher #WildlifePhotography #Nature #FeatheredFriends #BirdNerd
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Robert Reich @rbreich.bsky.social · 24/09/2026
Cost of extending ACA subsidies: $30 billion/year Cost of Trump's Iran War: $43 billion in roughly seven months (and that's a low estimate) It's not a question of what we can afford. It's a question of priorities.
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Evie Nyx @evienyx7.bsky.social · 24/09/2026
At this point in my life, "friends with benefits " are just my friends who have health insurance
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Ms. Magazine @msmagazine.com · 23/09/2026
In 2024, nearly 2,400 women were killed by men, according to the Violence Policy Center. Of these, 86.9 percent knew their killer—nearly nine out of 10.
msmagazine.com
A Restraining Order Is Not Enough When an Abuser Has a Gun
Nearly 2,400 women were killed by men in 2024, according to a recent Violence Policy Center report. Nearly nine out of 10 knew their killer, and firearms were used in 63.4 percent of these homicides. ...
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