Listening to Lux by Rosalia while painting today. The track Berghain featuring Björk is my jam.
Everette Minchew
@everettem.bsky.social
726 followers 1.2K following 502 posts
🔵 Resist Disabled, Composer, visual artist, dad, husband, conlanger, linguistics nerd, etc Posts in English, Spanish, and Esperanto a goddamn delight since 1977 #MECFS since 2012 #pwME #POTS #Fibro #MillionsMissing #ACAB Alabama, US He/him
![I'm writing as [a person with ME/CFS / a Long Covid patient / a caregiver / a supporter] to ask NIAID to slow down this proposed reorganization of the Division of Clinical Research. Consolidated clinical research infrastructure is what turns discoveries into treatments patients can actually access, and millions of us living with [ME/CFS / Long Covid] are counting on the clinical trials NIAID supports, including the Long Covid treatment trials now underway. Please extend the public comment period so the public can review the full plan, and please protect the coordinated clinical research oversight this division provides. [One line in your own words — who you are, and what waiting for treatment has meant for you or your family.] Thank you.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:txmnbmxsm2uhx2d4mopmhjr3/bafkreifnh7njot2cawgoqzbfiviysg6umzyuqlau5ny32qoach43uqrriq)
![>>Satire - Friend Confused Why You Haven't 'Beaten' Incurable Genetic Condition Yet [man and women making the cringe face] - mybodyistryingtokillme.com](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:dbzmdmsaz6lkhb4tv3culzme/bafkreihclmxljthkd3z7u2ktkpcd4atp2ms747v22dhmbn6zy3ygof7sbq)
