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Yvonne

@emoyvonne.bsky.social
267 followers 448 following 88 posts

Navigating life with Long Covid. Dreaming about disability justice, anti-ageism, poetry, policy, the sky & the sea. 🖤🖤🖤

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Billy Hanlon @bhanlon15.bsky.social · 31/08/2026
Smithsonian Magazine: 'For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief' 'Long Covid saps the strength and vitality of patients, who have little recourse to fight it...' www.smithsonianmag.com/innovation/m...
smithsonianmag.com
For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief
Long Covid saps the strength and vitality of patients, who have little recourse to fight it. A team of specialists—including an afflicted researcher working mostly from her bed—is looking for answers
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 08/08/2024
Today, Aug 8, is #SevereMEDay. Today we discuss severe-presenting #MECFS and remember people with severe ME. #MECFS is an infection-associated chronic illness, which means it is often, but not always, kicked off by an infection. ~Half of #LongCOVID cases at 6 mo meet the dx criteria for ME/CFS. 🧵
Two diagrams from the Mayo Clinic Proceedings article I co-authored.  On the left, a diagram of a woman's body, including symptoms of fatigue, muscle aches, PEM, cognitive dysfunction, unrefreshing sleep, orthostatic intolerance, temp. dysregulation, urinary frequency, myalgia, sensory sensitivity/reactivity, swollen lymph nodes & other flu-like symptoms, shortness of breath, palpitations/chest pain, appetite changes and diarrhea/constipation.  On the right, a wheel diagram of symptoms that may flare in post-exertional malaise, the pathology that occurs w/overexertion in which many symptoms flare and new symptoms may appear.  It notes that PEM is not deconditioning, not being more tired than usual after activity, not second-day muscle soreness and symptoms are not necessarily relieved by sleep. It includes all the symptoms mentioned in the first diagram but has some sections on what it's like in the patient's own words.
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Melissa Gira Grant @melissagiragrant.com · 02/08/2026
if you hated covid "lockdowns" try long covid
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The Vertlartnic @thev.bsky.social · 04/07/2026
Long Covid Unlikely To Explain Increase In People Too Ill To Work, Because That Would Be Too Obvious, Say Experts
A graph
Headline:
Long Covid Unlikely To Explain Increase In People Too Ill To Work, Because That Would Be Too Obvious, Say Experts
Story by Gravel Bardsley and Melvin Bertenshawk

photo from Unsplash
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Yvonne @emoyvonne.bsky.social · 12/06/2026
“Ballard is the first ever contestant in Miss Wheelchair America who uses a wheelchair because of long COVID, which presents a fresh opportunity to educate.”
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Durham County Department of Public Health (DCoDPH) @durhamhealthnc.bsky.social · 28/05/2026
Did you know? Long COVID is recognized as a possible disability under the Americans with Disabilities Act. Talk to your doctor if after having COVID-19 you're experiencing new or ongoing symptoms limiting your daily life, & learn more about #LongCOVID as a disability: www.hhs.gov/civil-rights...
Long COVID (also known as post-COVID conditions) is wide range of symptoms and conditions that can last weeks, months, or even years after COVID-19 illness. What are the symptoms of long covid? Long COVID symptoms might be a continuation of symptoms from your initial illness, like a cough lasting several weeks or more, or might be new symptoms.  Common symptoms include extreme fatigue, problems with memory or thinking, and difficulty breathing. More than 200 symptoms of Long COVID have been identified. Long COVID can also affect multiple organ systems in your body, increasing your risk of heart attack, stroke, blood clots, and more.  Who is at risk of getting long covid? Anyone can develop Long COVID. People of all ages and genders are living with Long COVID, even if they previously had no other health conditions or if they only experienced mild symptoms while sick with COVID-19. The CDC estimates that about 1 in 5 adults who get COVID-19 will develop Long COVID.

Recovering from COVID-19 once does not mean you can’t develop Long COVID if you are infected again. Getting COVID-19 repeatedly increases your risk of Long COVID. What should i do if i think i have long covid? Talk to your doctor if you are experiencing new or ongoing symptoms in the weeks after having COVID-19. Long COVID may require comprehensive care or cause disability. Although there is currently no cure for Long COVID, treatments may help you manage your symptoms.

Long COVID disability is a recognized disability by the Americans with Disabilities Act. If you are unable to work due to Long COVID, you may be eligible to apply for Social Security Disability Insurance benefits.
 how can I prevent long covid? The only sure way to prevent Long COVID is to avoid COVID-19. According to the CDC, research suggests that vaccination can also help prevent Long COVID. 

Prevent Long COVID by preventing COVID-19: Wear masks
Improve ventilation in indoor spaces
Stay up to date on COVID-19 vaccines
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Ian Kremer @wolverinebear.bsky.social · 29/05/2026
Long COVID will cost the US an estimated $8 billion over just 3 years due to healthcare burden, managing symptoms and loss to the workforce theconversation.com/long-covid-w... #LongCovid #publichealth #economics #CDC #FDA #NIH
theconversation.com
Long COVID will cost the US an estimated $8 billion over just 3 years due to healthcare burden, managing symptoms and loss to the workforce
The US lacks the capacity to treat long COVID, and HHS defunding is taking the country further away from being able to handle the country’s growing number of long COVID cases.
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Adam @abrokenbattery.bsky.social · 31/05/2026
Post exertional malaise (PEM) is the hallmark symptom of #MECFS It’s not fatigue following activity. It is a dramatic deterioration and worsening of symptoms. Short video explainer - triggers, symptoms, and management. Repost for the last day of #MEAwarenessMonth
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Hannah Davis @ahandvanish.bsky.social · 28/05/2026
#LongCovid has not decreased from 2020-2024. Prevalence is 13-23% of US population, increasing 0.4%-1.5% every 3 months. Incidence was 10-29%, but began increasing in 2023. "These findings indicate an accumulating rather than resolving disease burden." jamanetwork.com/journals/jam...
2 line graphs showing cumulative prevalence and quarterly incidence rates of Long Covid across 4 US regions
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NPR @npr.org · 27/05/2026
Food insecurity affects more families now than during the coronavirus pandemic, according to a new survey from the Federal Reserve Bank of New York. n.pr/4nWXXfN
n.pr
More people are going hungry now than at the height of the pandemic
Food insecurity affects more families now than during the coronavirus pandemic, according to a new survey from the Federal Reserve Bank of New York.
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Pillow Writers @pillowwriters.bsky.social · 11/05/2026
“Imagine you must operate on 15% energy, at your best. If you go into the red it can take days, weeks or months to recover, and only to 15%.” Úna, Ireland, living with myalgic encephalomyelitis since 1982
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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 12/05/2026
Many older adults who died of COVID weren’t close to death before infection, study suggests "About 28% of older people in England who died of COVID-19 in the first 2.5 years of the pandemic would likely, if uninfected, have lived at least another 5 years" Source: www.cidrap.umn.edu/covid-19/man...
The news brief shown in the image was published on May 12, 2026, at 5:22 a.m.
The article, written by Mary Van Beusekom for CIDRAP, discusses a study from the UK Office for Health Improvement and Disparities. The study used data from March 2020 to September 2022 and estimated that approximately 28% of older adults in England who died from COVID-19 would have likely lived at least another five years if they had not been infected.
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Yvonne @emoyvonne.bsky.social · 05/04/2026
“The annual transition from death to rebirth – propelled irrepressibly forwards – deepens the feeling that we are out of sync with the rest of the ecosphere and with our fellow humans now expanding into life as the days lengthen.” Beautiful contemplations in this piece. #LongCovid #mecfs
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Guus @guusontheinternet.bsky.social · 15/03/2026
I’d really like to become a little less aware. I find myself not really having much to say today. #LongCovidAwarenessDay. Six years in, it feels like we’re still having to repeat the same things over and over, with little tangible change in day to day to life for most of us. 🧵
Written text: too fucking aware
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Patient-Led Research Collaborative @patientled.bsky.social · 15/03/2026
For #LongCovid Awareness Day, we’re releasing the 2026 Long Covid Fact Sheet! This is a list of key statistics about LC, using recent data to reflect contemporary risks. We hope this will be useful for journalists, policymakers, patients, & others! /1
patientresearchcovid19.com
2026 Long COVID Fact Sheet – Patient Led Research Collaborative
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ME Association @meassociation.org.uk · 15/03/2026
Long Covid awareness Day (March 15) aims to raise awareness of the long-term health problems people may experience after a COVID-19 infection. You can find out more about Long Covid and the symptoms here: meassociation.org.uk/vqei #LongCovid #LongCovidAwareness #LongCovidAwarenessDay2026
IMAGE DESCRIPTION: Graphic of a stick figure, with the Long Covid Awareness logo and the ME Association logo at the bottom. Heading - Common symptoms of Long Covid. The following symptoms are in bubbles around the stick figure: Cognitive dysfunction/brain fog, Pain, Headaches, Pins and needles/paraesthesiae, Sleep disturbances.IMAGE DESCRIPTION: Graphic of a stick figure, with the Long Covid Awareness logo and the ME Association logo at the bottom. Heading - Common symptoms of Long Covid. The following symptoms are in bubbles around the stick figure: Loss of taste and/or smell, Breathlessness, Cough.
IMAGE DESCRIPTION: Graphic of a stick figure, with the Long Covid Awareness logo and the ME Association logo at the bottom. Heading - Common symptoms of Long Covid. The following symptoms are in bubbles around the stick figure: Fatigue and PEM, Hair loss, Skin rash, Nausea, stomach pain and diarrhoea.IMAGE DESCRIPTION: Graphic of a stick figure, with the Long Covid Awareness logo and the ME Association logo at the bottom. Heading - Common symptoms of Long Covid. The following symptoms are in bubbles around the stick figure: Chest pain, Palpitations, PoTS
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Canadian Covid Society @covidsociety.ca · 14/03/2026
We invite you to reflect on the many losses of Long Covid, including those who have passed and those whose lives have been altered. #LongCovid #ILCAD2026 #LongCovidAwareness
Image of a lit cream taper candle against a slightly smoky black background. Text overlay to the right of the candle reads: “Today we mourn the lives lost and affected by Long Covid.”
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Billy Hanlon @bhanlon15.bsky.social · 05/03/2026
New Hampshire Bulletin: 'A priest, a police officer, and a politician — each is living with long COVID in 2026' newhampshirebulletin.com/2026/03/05/a...
newhampshirebulletin.com
A priest, a police officer, and a politician — each is living with long COVID in 2026 • New Hampshire Bulletin
Most people who contract COVID-19 recover from their symptoms within days or weeks. However, for some people, the illness turns from a viral infection into a long-term chronic condition called long CO...
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Alexis M. 🎃 @turnoftheshrew.bsky.social · 19/02/2026
I know everyone gets excited for spring, but I will be sad to see winter end. Winter is the quietest that it is all year— no lawn mowers, no leaf blowers. It’s darker, which I love. And everyone is inside, so I don’t feel like I’m missing out on, well, everything. #pwME Until next year. ❄️
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Lia Pas @liapas.bsky.social · 08/03/2026
For this #InternationalWomensDay I’m sharing a symptomatology #embroidery, body map (2016), in which I stitched my #MECFS symptoms freehand over a few months. ME/CFS affects mostly women, and the symptoms are often ignored or not taken seriously because of medical misogyny. #SciArt
An outline of a naked woman is embroidered on linen in the same bone white colour as the linen. She stands legs together, her right hand covering her groin, her left hand, palm up, extended slightly to her side. She looks to the right. Her entire body except for her belly is covered in intricate markings representing different neurological sensations. Her face is a mask of green lines, feathery grey lines cover her shoulders and chest. There is a thick band of intricate burgundy stitching around her waist. Her forearms and hands are covered in thick blue undulant lines. Her right leg has bands of burgundy along the muscles, with small dots around them. Her inner left leg has a thick line of blue running up it, with thin branches spreading towards her outer leg.
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Julia Métraux @juliametraux.bsky.social · 27/02/2026
There's been discourse on Long Covid on this site the past few days. I think some people are thoroughly underestimating how hellish chronic illness can make you feel, even if you aren't at an immediate risk of dying.
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Elana Levin @levin.bsky.social · 19/02/2026
If you don’t think you know anyone with long covid what you really mean is that people are uncomfortable sharing their health status with you or there are people who have dropped out of your life (due to illness) that you haven’t checked up on.
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Julia Métraux @juliametraux.bsky.social · 22/02/2026
Many disabled and chronically ill people are demonized for not working full-time jobs, when the truth is they can be forced out due to inaccessible policies. www.theguardian.com/world/2026/f...
theguardian.com
Decline in remote jobs risks shutting disabled people out of work, study finds
Research project warns fall in homeworking roles could undermine efforts to reduce unemployment
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Niko Suvisto @nikosuvisto.com · 12/02/2026
Hi! Our online art gallery, A Quiet Storm, will host an open call group exhibition on International ME/CFS Awareness Day, May 12, 2026. The submissions will open on March 12th. Our website is currently updated to a dark theme. Full statement below! 1/9 #MECFS #pwME #OpenCall #OnlineExhibition
A text: ‘Open call!’

Below it a hand-written text reads ‘Myalgic Encephalomyelitis Kills’.

A text: ‘An online Group Exhibition’.
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David Kronig @davekronig.bsky.social · 31/01/2026
If your idea of resistance doesn’t include disabled people then it’s destined to fail because as soon as one group is expendable, any group is. Masks make protest accessible AND help prevent protests from creating more disabled people. Masking is community care and self protection, and both are good
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Signe Maene @signemaene.com · 24/12/2025
'To those who keep their hearts their own The winter is the spring.' -John Clare 🎨 Lucy Grossmith
Artwork of an owl flying through a snow-covered landscape. There's a fox in the far background.
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Danielle Beckman @daniellebeckman.bsky.social · 21/11/2025
There is a lot of good research and amazing people working on #LongCovid in Europe! Yes, the road is long, but after today, I feel my hope is restored. Some of my favorite moments from today's meeting at the National Institute for Infectious Diseases Lazzaro Spallanzani in Rome:
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Yvonne @emoyvonne.bsky.social · 19/11/2025
For all of us LC Omicron babes: This research was completed during Omicron era (after 12/2021). “Overall, 10.3% of patients had long COVID symptoms three months after infection, and 81% of these patients continued to experience persistent or intermittent symptoms a year later.” …
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Long Covid Advocacy @longcovidadvoc.com · 15/11/2025
🧵 Rest in power, Alice Wong. @sfdirewolf.bsky.social A trailblazer, a fierce advocate, and a relentless voice for disability rights. Her work changed the landscape for so many. /1
Woman with dark hair and bright red lipstick, wearing a royal blue cardigan over a black shirt and shiny black puffer pants, seated in a motorized wheelchair with tubing from medical equipment visible, holds up a copy of "Year of the Tiger: An Activist's Life" by Alice Wong.
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Johnnie Jae @johnniejae.bsky.social · 01/11/2025
It is officially November 1 and the start of Native American Heritage Month as well as National Indigenous Disability Awareness Month. I highly suggest you follow these folks because they are brilliant and just some of the coolest folks ever. go.bsky.app/MEaiVa9
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maura quint @mauraquint.bsky.social · 31/10/2025
It's the time of year again -- time to do your holiday shopping from independent artists. It's more important than ever to support people actually making stuff! If you're an artist or craftsperson of any kind, please reply to this with what you make and a link to your store and I'll share it!
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C.H. Romatowski @chromatowski.bsky.social · 30/10/2025
I was a (paid) test user for this trial and am thrilled w/the accommodations it makes to include people as severely ill as I am! If you’re in the US and have Long Covid, check it out and share w/friends! Also: if you don’t see your state yet, you can sign up to be alerted when yours is added!
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Dr Satoshi Akima, FRACP @toshiakima.bsky.social · 25/10/2025
Long COVID Underdiagnosed in Seniors: What Doctors Need to Know
medscape.com
Long COVID More Common in Seniors: What Doctors Need to Know
Many long-COVID symptoms in people older than 65 years mimic signs of early aging, particularly cognitive, cardiac, and kidney issues.
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Kelly @broadwaybabyto.bsky.social · 18/10/2025
Now more than ever we need to be amplifying mutual aid. Donate to local food banks and community fridges. Check on the people in your life who may be struggling. Offer to drop off some groceries or a home made meal. Without November SNAP there will be many people going hungry. Help where you can
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Jennifer—em Dash—Graham @jgriffingraham.bsky.social · 20/10/2025
SNAP benefits are going to be paused on November 1. If you are able, now is a good time to give to food banks, food pantries, or local mutual aid groups.
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Yvonne @emoyvonne.bsky.social · 16/10/2025
Important awareness-raising piece about children with Long Covid, its impact on student absenteeism, and the struggle for accommodations. (Side note: U.S.-based pwLC can tell you there are not “400 adult [Long Covid] clinics” in the country as the article states! We wish! 💀)
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Tania J. Spencer @taniaspencer.bsky.social · 26/09/2025
Every anniversary, those of us living with #LongCOVID make a bargain with ourselves: next year I'm going to get better, we say quietly. We are the "lucky" ones, not bedridden, still dwelling in possibility. And every year, another year trundles past, & we still aren't better. #KeepOnKeepingOn
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Myra Batchelder @myrabatchelder.bsky.social · 01/09/2025
The fact the US lost over 1.2 million people to COVID-19, a larger population than some states, and some people still claim we did too much to try to save people’s lives. Millions of people became disabled by COVID-19 and Long COVID and the numbers continue to rise.
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Robyn Powell @robynmpowell.bsky.social · 26/07/2025
I was 8 years old when the ADA became law. As a disabled woman, I celebrate its promise—but also know how fragile our rights remain. 35 years later, we’re still fighting for true equality. www.damemagazine.com/2025/07/25/t... #ADA35
damemagazine.com
The Promise, and Failure, of the Americans With Disabilities Act - Dame Magazine
I was 8 years old when the Americans with Disabilities Act (ADA) became law. I didn’t yet understand legislation, or what “civil rights” meant. But I already knew there were places I couldn’t go — res...
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Niko Suvisto @nikosuvisto.com · 11/04/2025
Today it’s time to launch a big project I’ve had the privilege of working on: A Quiet Storm—an online art gallery showcasing the artwork of people living with severe ME/CFS. 1/7 www.aquietstorm.me #MECFS #pwME #OnlineArtGallery #AQuietStorm
aquietstorm.me
a quiet storm - an online gallery
An online art gallery showcasing the artwork of people living with severe ME/CFS
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Yvonne @emoyvonne.bsky.social · 15/03/2025
“Slumbery agitation” may be my new favourite descriptor, along with the relatable “fateful scrub of the crockery” (iykyk). Glad I got to read this telling of living with Long Covid on #LongCovidAwarenessDay
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Billy Hanlon @bhanlon15.bsky.social · 15/03/2025
Rolling Stone: 'Five Years of Pain, Fatigue, and Gaslighting: Life With Long Covid' 'We've been discounted for half a decade, still sick from a pandemic the rest of the world would rather forget' www.rollingstone.com/culture/cult...
rollingstone.com
Five Years of Pain, Fatigue, and Gaslighting: Life With Long Covid
People with Long Covid are still sick from a pandemic the rest of the world would rather forget.
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Maike Osborne @maosbot.bsky.social · 15/03/2025
A heartfelt thanks on Long Covid Awareness Day to the incredible myalgic encephalomyelitis community who've used their precious energy to provide crucial information and validation to desperate Long Covid sufferers like myself. Five years ago, you were the only ones who understood.​​​​​​​​​​​​​​​​
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Kelly @broadwaybabyto.bsky.social · 08/03/2025
“I don’t know anyone with Long Covid!” I promise you that you do. Long Covid is an invisible illness. You won’t know someone is impacted unless they choose to tell you. Many folks hide their disabilities because the world is NOT kind to disabled people. Be an ally. Be someone we can confide in
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Long Covid Families @longcovidfam.bsky.social · 04/03/2025
Please don’t co-opt the term Long COVID—it’s a medical diagnosis, not a catch-all for pandemic-related struggles. Using it incorrectly harms those living with this condition. Be accurate and respect the community fighting for recognition, research, and care. #LongCovid #HealthAdvocacy
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Kit Yates @kityates.bsky.social · 03/03/2025
"It may be tempting to try to put that time behind us, to pretend it never happened. But for the sake of those who didn’t get better, we need to keep talking about long Covid," www.theguardian.com/...
theguardian.com
‘We’re losing decades of our life to this illness’: long Covid patients on the fear of being forgotten
Five years on from March 2020, millions of people still face debilitating symptoms, with huge repercussions on public health and productivity. But politicians are starting to pretend the pandemic never happened
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Yvonne @emoyvonne.bsky.social · 09/02/2025
Long Covid support of the day is following the owls on #SuperbOwlSunday to regulate my nervous system 🦉
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Connect2Nature 🇨🇦 @invisitech.bsky.social · 06/02/2025
#Connect2Nature - Another Superb Owl Revisiting this shot of a Eurasian Eagle Owl taken at the Canadian Raptor Conservancy in honour of #SuperbOwlSunday It's also a bit of a timeline cleanse from the turmoil. This is a magnificent bird. #Nature #Birds #Owls #Photography
A Eurasian Eagle Owl perched on a snowy stump.
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Yvonne @emoyvonne.bsky.social · 02/02/2025
🇨🇦🤍
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Matthew Cortland (they) @matthewcort.land · 31/01/2025
My friends at AAPD had to release this statement today: "Leading Disability Organizations: President Trump’s Blame of Deadly Plane Crash on Disabled Federal Workers Is Baseless, Irresponsible" www.aapd.com/disability-o...
aapd.com
Leading Disability Organizations: President Trump’s Blame of Deadly Plane Crash on Disabled Federal Workers Is Baseless, Irresponsible - AAPD
For Immediate Release: January 30, 2025 Contact: Jess Davidson, jdavidson@aapd.com; 202-465-5528 WASHINGTON D.C. – In remarks today at the White House, President Trump cast potential blame for the tra...
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