Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 13/10/2026Long Covid can be incredibly isolating. Our support groups bring healthcare workers living with Long Covid together with others who understand what they're going through. Connection matters. 022
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 20hYanto (Welshpool) completed the #CardiffHalfMarathon in one piece for #SHHUK! Watch his video summary of the day: youtu.be/fNh-FMWZCYA We are so close to hitting the fundraising target. Help us with one final push: justgiving.com/page/... Thank you for the amazing support!💙 #StillHereyoutu.beWelshpool @ Cardiff Half 2026 4th October 2026The weather may have brought the heat. But, fairdos, so did Cardiff.This time, Welshpool rocked up to the prime running event of the year - The Cardiff Half ... 021
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 15hCOVID IS AIRBORNE. A surgical mask is NOT the same as a properly fitted respirator. Healthcare workers deserved protection appropriate to the risk then. They deserve it now. Read about IPC Mistake #3 in the paper by @EvonneTCurran and @alitwy 👇 shh-uk.org/five-ipc-... 095
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 12hFor more information email supportgroup@shh-uk.org or go to shh-uk.org/long-covid-s...shh-uk.org 011
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 13/10/2026COVID IS AIRBORNE. That should fundamentally change how we prevent transmission. Ventilation matters. Air filtration matters. Respiratory protection matters. So why does healthcare IPC still struggle to fully reflect the science? shh-uk.org/five-ipc-... #SafeAir4All 04312
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 12/10/2026🚨 Five IPC mistakes. Five lessons we cannot afford to ignore. The Covid Inquiry exposed fundamental failures in how healthcare workers were protected. Have we actually learnt from them? Read the analysis by @EvonneTCurran and @alitwy 👇 shh-uk.org/five-ipc-... 0117
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 06/10/2026Huge congratulations to Yanto (Welshpool) for completing the #CardiffHalfMarathon in support of #SHHUK! 💙 The race is done, but the fundraiser is still open. Please consider donating or sharing to support healthcare workers living with #LongCovid: justgiving.com/page/... #StillHerejustgiving.comYanto Evans is fundraising for Supporting Healthcare Heroes UKHelp Yanto Evans raise money to support Supporting Healthcare Heroes UK 031
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 08/10/2026Yanto’s fundraiser for #SupportingHealthcareHeroesUK is still open after his amazing Cardiff Half Marathon run. If you meant to donate, there is still time to support healthcare workers living with Long Covid: justgiving.com/page/... Thank you so much for the support! #StillHere #LongCOVIDjustgiving.comYanto Evans is fundraising for Supporting Healthcare Heroes UKHelp Yanto Evans raise money to support Supporting Healthcare Heroes UK 011
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 08/10/2026“A safe place with no judgement.” 💙 For people living with Long Covid, finding others who understand can make a real difference. Our peer support groups offer a space to connect, share experiences and talk with people who understand. 122
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 09/10/2026Can vaccination before COVID-19 infection reduce the risk of Long Covid? A review of 16 observational studies involving 614,000+ people suggests it may — but more robust research is needed. Read the full summary: shh-uk.org/vaccinati...shh-uk.orgCOVID-19 Vaccination And Long COVID: Important Study Findings.A Spanish study links pre-infection COVID-19 vaccination with lower Long COVID risk and slightly fewer symptoms. Read the findings and limitations. 022
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 01/10/2026Yanto, known as Welshpool, is running the Cardiff Half Marathon this Sunday for #SupportingHealthcareHeroesUK. A #LongCovid survivor himself, he is raising funds for healthcare workers still living with the lasting impact of COVID. Please donate. 👉 justgiving.com/page/... #StillHere 011
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 01/10/2026📅 Our next coffee and chat peer support group for healthcare workers with Long Covid is coming up on the 13th October. Join us at 11am for an informal chat with other people living with Long Covid. 011
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 20/09/2026Advocacy is a collective effort — and your engagement plays a real role in making it happen. Thank you for helping us amplify the voices of healthcare heroes. 🙏 #LongCOVID #HealthcareWorkers #SupportingHealthcareHeroes #SHHUK 021
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 23/09/2026Do you know what #easyfundraising is? 🤔 It is one of the easiest ways to support a charity. Every time you shop online with your favourite retailers, they make a free donation to your chosen cause. No extra cost. No complicated steps. Watch the video and sign up💙 #SHHUK #Fundraising #LongCOVID 011
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 24/09/2026Ever left a packed room feeling stuffy, tired or foggy? 😮💨 That's often poor ventilation. Better airflow means healthier, more comfortable buildings for everyone. Read more 👇 shh-uk.org/indoor-ve... #IndoorAir #Ventilation #SafeAir4All 012
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 24/09/2026Want to keep up to date with what we're doing? Sign up to our newsletter for a monthly roundup of the latest from Supporting Healthcare Heroes! One email, once a month, keeping you up to date with the things that matter to our community. 📩 Sign up on our website: shh-uk.org/about/ 011
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 29/09/2026Our online support groups provide a safe, welcoming space for healthcare workers living with Long Covid to connect with others who understand. 👉 For more details on the sessions, visit our website: shh-uk.org/online-lo... 031
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 30/09/2026You can raise free donations for #SupportHealthcareHeroesUK every time you shop online through #easyfundraising! 💙 Over 8,000 retailers will donate on your behalf at no extra cost to you. Scan the QR code or visit the link to sign up. easyfundraising.org.... 012
Reposted by Alison Twycross RN PhDSheren Gaulbert @sherengaulbert.bsky.social · 30/09/2026Living with #LongCovid + caring for patients? @shh-uk.bsky.social runs free peer support groups. 🗓️ On Thursday 1st October at 7pm, I'll be sharing short, practical nervous-system regulating tools to fit into a busy clinical day. 📧 To get your joining link, email supportgroup@ssh-uk.org #MedSky 024
Reposted by Alison Twycross RN PhDLong Covid Journey @longcovidjourney.bsky.social · 08/09/2026“How are you?” For someone with Long COVID, that can be a really difficult question. Tell the truth? Say “I’m fine”? Explain? Or save your limited energy? Sometimes, “I’m fine” is the easiest answer even when you’re not. longcovidjourney.com/how-to-answe...longcovidjourney.comHow to Answer How Are You With Long COVID (Without Overexplaining)How to answer “how are you” with Long COVID without oversharing or exhausting yourself. Simple responses that actually work. 043
Reposted by Alison Twycross RN PhDNikki Smith @nikki-s.bsky.social · 08/09/2026Exciting news indeed! Long Covid Support becomes Long Covid UK, continuing with the same powerful drive to reduce impact of Long Covid, from community support to research involvement to influencing policymakers. The charity remains lived-experience informed, evidence based and determined. #LongCovid 074
Reposted by Alison Twycross RN PhDLong Covid UK @longcoviduk.bsky.social · 08/09/2026We are excited to announce that Long Covid Support has become Long Covid UK. Nothing about our purpose has changed. We are still here to support people living with Long Covid and to drive the change that is urgently needed. 1/ 1276
Reposted by Alison Twycross RN PhDLong Covid UK @longcoviduk.bsky.social · 08/09/2026Our new name better reflects the national work this community has built together. Alongside this new look, we’re launching a new website to improve access to information and support. Head to www.longcovid.org to find out more. Thank you for being part of this journey💙longcovid.orgLong Covid UK | Support Long Covid Awareness TodayLong Covid UK is a national charity dedicated to supporting those affected by Long Covid through community engagement, research, and systemic change. Join us today. 0145
Reposted by Alison Twycross RN PhDAm Chima @ace9801.bsky.social · 06/09/2026I strongly believe that the first step in advocacy is awareness. And I also believe that many whispers can collectively become a loud voice that cannot be easily ignored. #LongCOVID #PAIS #IACCIs #MEcfs #pwME 082
Reposted by Alison Twycross RN PhDAm Chima @ace9801.bsky.social · 06/09/2026Thank you @longcovidadvoc.com for all that you do in calling out such despicable dismissiveness conduct. “They” are trying everything and anything to “disappear and discredit” us. And this type of nonsense is never-ending! 😔 #LongCOVID #PAIS #IACCIs #MEcfs #pwME 0134
Reposted by Alison Twycross RN PhDShade 🏳️🌈🏳️⚧️🇮🇪🦄💙📚🎃 @sharrow.eurosky.social · 06/09/2026I've heard of 2 people who have gotten #Covid in the last 72 hours. Tested + I've not been in thier company but friends & me family have been. So mind yourself, #WearAMask on public transport, #GetVaccinated #keeptesting Any #Covid infection can push you into #LongCovid #spéirgorm 24419
Reposted by Alison Twycross RN PhDBilly Hanlon @bhanlon15.bsky.social · 06/09/2026MedPage Today: Why Is No One Talking About Long COVID? — Attention has waned but patients are still suffering by Jeffrey D. Klausner, MD, MPH, and Lao-Tzu Allan-Blitz, MD, MPH www.medpagetoday.com/opinion/seco...medpagetoday.comOpinion | Why Is No One Talking About Long COVID?Attention has waned but patients are still suffering 24216
Reposted by Alison Twycross RN PhDisabella mori @moritherapy.bsky.social · 06/09/2026I'm one of those really cool disabled people because, yay, I got #LongCovid! Spending most of my day in bed is so cool. Not being able to cook anything but the simplest meal (when I'm doing well) is awesome. And don't get me started on how fantastic it is to have a completely stunted social life. 1206
Reposted by Alison Twycross RN PhDC.H. Romatowski @chromatowski.bsky.social · 07/09/2026Also, not for nothing, new patients continue to join our ranks. #LongCovid 12910
Reposted by Alison Twycross RN PhDExplicitly Anti-Vaxx @bellamyj.blacksky.app · 07/09/2026This article cites 7% prevalence among US adults. It goes on to say that Long COVID is underdiagnosed. It is not ridiculous to estimate prevalence to be 10-12% of adults. For context HRC this year estimated that 12% of US adults are LGBTQ www.hrc.org/resources/lg... 1153
Reposted by Alison Twycross RN PhDKelly @broadwaybabyto.bsky.social · 07/09/2026Covid is a mass disabling event. Just because you had it and were “fine” doesn’t mean there isn’t silent damage in your body. Multiple infections increase the risk of long covid … you never know which one could leave you disabled. This is why we mask. Why we clean the air. 136494
Reposted by Alison Twycross RN PhDAdam @abrokenbattery.bsky.social · 07/09/2026“It’s like Groundhog Day… People need service delivery and action now… We need some respect.” Jane Ormerod of Long Covid Scotland gave evidence to both the Scottish Parliament Long Covid inquiry and the UK Covid Inquiry, and says many of the same issues still remain in Sept 2026. 11913
Reposted by Alison Twycross RN PhDSoos808 @soos808.bsky.social · 30/08/2026Protect yourself and others from Covid - which is spreading now - & Long Covid from repeated infections, by starting by masking, plus adding other measures. 073
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 01/09/2026Our September schedule 💙 Our online support groups provide a safe, welcoming space for healthcare workers living with Long Covid to connect with others who understand. 👉 For more details on the sessions, visit our website: shh-uk.org/august-se... 021
Reposted by Alison Twycross RN PhDEric Topol @erictopol.bsky.social · 02/09/2026What is being done vs #LongCovid and other post-viral serious chronic illness? Not enough. www.nature.com/articles/d41...nature.comWhen do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromesHundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them. 6255106
Reposted by Alison Twycross RN PhDBilly Hanlon @bhanlon15.bsky.social · 02/09/2026Nature: 'When do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromes' 'Hundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them.' www.nature.com/articles/d41...nature.comWhen do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromesHundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them. 14821
Reposted by Alison Twycross RN PhDvalebodi.bsky.social @valebodi.bsky.social · 02/09/2026When do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromes #ME/CFS #LongCOVID #PAIS #IACCs www.nature.com/articles/d41...nature.comWhen do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromesHundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them. 0208
Reposted by Alison Twycross RN PhDHealio Infectious Diseases @healioid.bsky.social · 02/09/2026🗨️ “It’s giving us a clue that there's more to SARS-CoV-2. It's waking up an army of dormant viruses that can cause persistent symptoms. It may connect to a disease like #longCOVID.” - Esther Melamed, MD, researcher from @utaustin.bsky.social. vist.ly/5gywdhealio.comStudy: COVID-19 unleashes ‘army of dormant viruses’A nasty bout of COVID-19 can awaken “an army of dormant viruses” lurking inside the body of people who have no known health problems, according to Esther Melamed, MD, PhD.Melamed, an assistant professor of neurology at the University of Texas at Austin Dell Medical School, and her research team tracked more than 1,000 hospitalized patients with SARS-CoV-2, the virus that causes the 032
Reposted by Alison Twycross RN PhDvalebodi.bsky.social @valebodi.bsky.social · 02/09/2026Cardiovascular, Renal, and Pulmonary Risks of Long COVID: A Retrospective Cohort Study Stratified by Age and Sex Results Among 2 613 432 adults identified with COVID‐19 within TriNetX network, 315 612 matched individuals were included in the study. #LongCOVID was associated with higher risk ofahajournals.orgCardiovascular, Renal, and Pulmonary Risks of Long COVID: A Retrospective Cohort Study Stratified by Age and Sex | Journal of the American Heart Association 164
Reposted by Alison Twycross RN PhDPutrino Lab @putrinolab.bsky.social · 02/09/2026Just a reminder (many seem to need it): A failed Paxlovid trial in #LongCOVID does not erase the validity of all the careful work demonstrating SARS-CoV-2 persistence LC, it just shows us that drugs that target acute infection don’t always work on chronic infection. That’s it. 18022
Alison Twycross RN PhD @alitwy.bsky.social · 28/08/2026My latest blog for @shh-uk.bsky.social. “A Summer of Contradictions” ⬇️⬇️⬇️ 023
Reposted by Alison Twycross RN PhDSupporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 28/08/2026We know Long Covid affects healthcare workers. We know Covid-19 is airborne. We know the Inquiry documented failures to protect staff. Yet protections are being downgraded. How does that make sense? Read our latest blog: shh-uk.org/a-summer-... 052
Reposted by Alison Twycross RN PhDHoeja Cat @hoejacat.bsky.social · 27/08/2026I know we talk a lot about how coronavirus can kill you but if I’m being honest, that’s not even clocking in at top 10 worst thing long covid can do 043
Reposted by Alison Twycross RN PhDKelly @broadwaybabyto.bsky.social · 27/08/2026There’s a large Long Covid conference happening in Amsterdam with very few people masking. Please, if you’re a doctor or researcher studying Long Covid, wear a respirator. Lead by example. Show you understand that repeat covid infections increase a person’s risk of disability. Mask up. 1029576
Reposted by Alison Twycross RN PhDemily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 23/08/2026“Pacing” is also a total misnomer in all but the very mildest stages of the disease. More often it means anything from “give up huge chunks of what makes your life meaningful & joyful” to “give up *everything* that makes you feel human, including thinking, feeling, seeing, hearing, & being clean” 36210
Reposted by Alison Twycross RN PhDWorld Health Network @thewhn.bsky.social · 21/08/2026Issue 3 available now! WHN Voices Magazine is a community publication created by and for people who care about public health, clean air, Long COVID, disability justice, and building a safer future. We're looking for articles, personal stories, poetry, artwork, interviews, reviews, (...) 187
Reposted by Alison Twycross RN PhDDB Maggi @dbmaggi.bsky.social · 21/08/2026Four in ten is NOT rare. “Four in ten healthcare workers worldwide who were infected with SARS-CoV-2 during the pandemic developed long covid, and a quarter still had symptoms after a year, a report has found.” #Covid #LongCovidbmj.comCovid-19: 40% of affected healthcare workers had long covid, and a quarter still had symptoms after a yearFour in ten healthcare workers worldwide who were infected with SARS-CoV-2 during the pandemic developed long covid, and a quarter still had symptoms after a year, a report has found. The report by t... 065
Reposted by Alison Twycross RN PhDRamses Temmerman @ramsestemmerman.bsky.social · 21/08/2026"The French national health insurance system no longer links ME/CFS to a psychiatric or psychological disorder. This "institutional" recognition was described as "an important step" by a patient association." Thanks to @millionsmissingfr.bsky.social 🙏 #MEcfs #MillionsMissingfranceinfo.frLes patients saluent la première reconnaissance officielle du syndrome de fatigue chronique par l'Assurance-maladieL'Assurance maladie ne relie donc plus l'encéphalomyélite myalgique à un trouble psychiatrique ou psychologique, rapporte vendredi France Inter. Une reconnaissance "institutionnelle" qualifiée "d'étap... 2189
Reposted by Alison Twycross RN PhDPlague Poems @plaguepoems.bsky.social · 21/08/2026A report has found “4 in 10 healthcare workers worldwide who were infected with SARS-CoV-2 during the pandemic developed long covid, and 25% still had symptoms after a year” and though you may not be a healthcare worker, remember: they are human, human just like you. 16821