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Reposted by Workwell Foundation

Workwell Foundation @workwellfoundation.bsky.social · 01/10/2026

Interested in Helping to Develop a Non-Invasive Way to Measure Blood Flow to the Head? If you are a woman between the ages of 18-65 and you have myalgic encephalomyelitis (ME) or you are healthy, you may be eligible to participate in a study. conta.cc/4Ale4cN #MECFS @sunsopeningband.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 01/10/2026

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Workwell Foundation @workwellfoundation.bsky.social · 16/07/2026

LONG COVID PROJECT ECHO CPET and Metabolic Dysfunction @batemanhornecenter.bsky.social partnered with the @uofuhealth.bsky.social to conduct a #LongCOVID and Post-Infectious Syndromes ECHO WATCH HERE www.youtube.com/watch?v=fazA... Share with your health care provider. @sunsopeningband.bsky.social

youtube.com

Cardiopulmonary Exercise Test (CPET) & Metabolic Dysfunction with Long COVID - April 7, 2026

YouTube video by Bateman Horne Center

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Reposted by Workwell Foundation

Solve M.E. @solveme.bsky.social · 21/05/2026

Wed. 6/3 at 10 am PDT / 1 pm EDT, Kantor & Kantor @ Workwell Foundation offer a free webinar: "Proving Disabling Post-Exertional Malaise and Fatigue: Understanding Disability Benefits and the Two-Day CPET." Register here: ow.ly/A4NP50Z2Yva

Webinar announcement on disability benefits and post-exertional malaise, co-hosted by Kantor & Kantor and Workwell Foundation.

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Workwell Foundation @workwellfoundation.bsky.social · 27/05/2026

Join Kantor & Kantor and Workwell for a free webinar "Proving Disabling Post-Exertional Malaise and Fatigue: Understanding Disability Benefits and the Two-Day CPET" Wednesday, June 3rd 10:00 AM PST (US and Canada) Register here: conta.cc/3OzfqOf #MECFS #LongCOVID #PEM

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Workwell Foundation @workwellfoundation.bsky.social · 06/05/2026

WORKWELL JOINS "COFFEE WITH A CLINICIAN" The sessions are dedicated to sharing key principles & practical tips from the BHC Clinical Care Guide. Wed, May 13th 10 am MT (9 am PT / 11 am CT / 12 pm ET) Register for Free: conta.cc/4cQjeE7 #MECFS #LongCOVID #PEM #CPET #PT @sunsopeningband.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 24/04/2026

A win for Two-Day CPET in Long COVID Clinical & Translational Metabolism: #MECFS and #LongCOVID Demonstrate Similar Bioenergetic Impairment and Recovery Failure Read more: conta.cc/4vL6c29 #CPET #PT #PEM #POTS #DoNoHarm #nonprofit #Science @sunsopeningband.bsky.social @springernature.com

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Reposted by Workwell Foundation

Workwell Foundation @workwellfoundation.bsky.social · 05/04/2026

HAPPY EASTER This Easter, Workwell celebrates hope, resilience, and community. Thank you for helping us empower patients and advance evidence‑based research. Your support makes a meaningful difference. #HappyEaster #MECFS #LongCOVID #HOPE #PT #PEM #POTS #StopRestPace #DoNoHarm #nonprofit #Science

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Workwell Foundation @workwellfoundation.bsky.social · 05/04/2026

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Workwell Foundation @workwellfoundation.bsky.social · 02/04/2026

LONG COVID PROJECT ECHO CPET and Metabolic Dysfunction Bateman Horne Center has partnered with the UofU to conduct a #LongCOVID and Post-Infectious Syndromes ECHO. Read more: conta.cc/4bmeDZA Tuesday, April 7th at 11am PT, 12pm MT, 2pm ET Invite your health care provider @sunsopeningband.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 24/03/2026

Introducing a New #Disability Service: A #NASA 10‑Minute Lean Test An evidence‑based assessment used to identify orthostatic intolerance — a common but often overlooked contributor to symptoms. Read More: conta.cc/4bnFjcN #MECFS #LongCOVID #Fibromyalgia #OI #POTS #PT @sunsopeningband.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 04/03/2026

WORKWELL JOINS "COFFEE WITH A CLINICIAN" The sessions are dedicated to sharing key principles and practical tips from the BHC Clinical Care Guide. Wed, March 11th 10 am MDT (9 am PT / 11 am CT / 12 pm ET) Register for Free conta.cc/3NeLfuQ #MECFS #LongCOVID #PEM @batemanhornecenter.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 22/01/2026

Our latest work now posted as a pre-print on Research Square: "ME/CFS and Long COVID Demonstrate Similar Bioenergetic Impairment and Recovery Failure on Two-Day Cardiopulmonary Exercise Testing" Read more: www.researchsquare.com/article/rs-8... #MECFS #LongCOVID #PEM @sunsopeningband.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 01/01/2026

2025 YEARLY WRAP-UP Together, we’ve made 2025 a year of impact and purpose. With your support, Workwell has advanced research, strengthened advocacy, fostered education and brought hope to countless lives. Thank you for being part of this mission! Read more: conta.cc/4pak2ap #MECFS #LongCOVID

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Workwell Foundation @workwellfoundation.bsky.social · 31/12/2025

HAPPY NEW YEAR With your support, Workwell steps into the New Year with hope and purpose. Thank you for standing with us. conta.cc/3KnKw9s #HappyNewYear #MECFS #LongCOVID #HOPE #PEM #PT #OT #StopRestPace #DoNoHarm #nonprofit #Science Please consider us in your end of year giving plan.

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Workwell Foundation @workwellfoundation.bsky.social · 25/12/2025

HAPPY HOLIDAYS The Workwell Team wishes everyone a Happy Holiday Season filled with many blessings of hope and happiness. conta.cc/3JmgvGy Please consider us in your end of year giving plan. #HappyHolidays #MerryChristmas #MECFS #LongCOVID #HOPE #PEM #nonprofit #Science

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Workwell Foundation @workwellfoundation.bsky.social · 22/12/2025

Recommended Long COVID Outcome Measures and their Implications for Clinical Trial Design, with a Focus on Post-Exertional Malaise. Read more: conta.cc/48NAk3p #LongCOVID #MECFS #HOPE #PEM #PT #OT #DoNoHarm #nonprofit #Science @sciencedirect.bsky.social @sunsopeningband.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 17/12/2025

HOLIDAY HOPE This Holiday Season, we invite you to stand with us in our mission to improve the lives of people living with #MECFS, #LongCOVID, and other #fatigue-related illnesses. Read more: conta.cc/3XNIbrs #HOPE #HolidaySeason #Advocacy #Education #Research #nonprofit @sunsopeningband.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 09/12/2025

Workwell Advocates for You in Rapid Response to Long Covid Exercise Trial. In the Long Run, Misleading Participants Will Harm More Than Help in Long COVID Research. Read more: conta.cc/3KA1Vf6 #LongCOVID #Advocacy #Exercise #PEM #DoNoHarm #nonprofit #Science @sunsopeningband.bsky.social @bmj.com

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Reposted by Workwell Foundation

C.H. Romatowski @chromatowski.bsky.social · 03/12/2025

As I say, I think Workwell is doing crucial work on a topic that’s both central and badly underexamined. And they do it on a shoestring. If you’re in a position to give, I hope you will!

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Reposted by Workwell Foundation

Workwell Foundation @workwellfoundation.bsky.social · 02/12/2025

On this #GivingTuesday, we invite you to stand with us in our mission to improve the lives of people living with #MECFS, #LongCOVID & other fatigue-related illnesses. Your support fuels groundbreaking #research, innovative testing & #education. Read more conta.cc/4oBUYsP @sunsopeningband.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 02/12/2025

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Reposted by Workwell Foundation

Workwell Foundation @workwellfoundation.bsky.social · 19/11/2025

BLACK FRIDAY SALE Online Accredited Courses. Premium plans marked down to the price of a Standard #Education subscription + 1 extra month added to all plans. Read more: conta.cc/4p0iuzn #Medbridge #BlackFriday #MECFS #LongCOVID #PEM #PT #healthcare #nonprofit #science @sunsopeningband.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 27/11/2025

Thanksgiving reminds us how fortunate we are to work with people like you. Your support inspires us to keep growing, improving, and delivering our best. From all of us at Workwell, thank you for being part of our journey. We wish you a wonderful holiday and a season full of possibility.

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Workwell Foundation @workwellfoundation.bsky.social · 19/11/2025

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Workwell Foundation @workwellfoundation.bsky.social · 05/11/2025

Blood Flow to the Head in a #pwME Experiencing #PEM: A Case Report. This work lays the foundation for a larger study into the role of cerebral hypoperfusion. conta.cc/4oSvO8V #MECFS #POTS #CPET #PT #nonprofit #science @carolinechristian.bsky.social @sunsopeningband.bsky.social @wearlumia.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 17/10/2025

Why Effort Preference Misses the Mark. It is not about motivation- it’s about biology. @nature.com Even minor exertion can lead to #PEM. conta.cc/4mM0B5C #MECFS #C_Scheibenbogen #Huisarts_Vink @sunsopeningband.bsky.social @marydimmock.bsky.social @davetuller1.bsky.social @openmedf.bsky.social

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Reposted by Workwell Foundation

Bateman Horne Center @batemanhornecenter.bsky.social · 14/10/2025

Milestone moment for ME/CFS awareness! The American College of Sports Medicine has added a section on ME/CFS to its Exercise Guidelines for the first time ever, thanks to @workwellfoundation.bsky.social and collaborators. Read more: bit.ly/46P31vP #MECFS #ACSM @acsm1954.bsky.social

"History Made! The American College of Sports Medicine includes ME/CFS in global exercise guidelines for the first time."

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Workwell Foundation @workwellfoundation.bsky.social · 27/12/2024

As we approach the end of 2024, @workwellfoundation.bsky.social invites you to consider making a tax-deductible gift to support our #science. Our work has never been more critical as we better understand the similarities between #LongCOVID & #MECFS. #PEM #PESE Read more: www.givesignup.org/g/bam466

givesignup.org

I donated to Workwell Foundation - won't you please join me in supporting this important organization?

Join me in supporting Workwell Foundation with a donation to their HOPE Campaign.

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Workwell Foundation @workwellfoundation.bsky.social · 12/12/2024

@workwellfoundation.bsky.social Health's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. #PEM is a life-altering problem. It requires clinicians to think differently. Read more: conta.cc/3ZdaYac #MECFS #LongCOVID #PESE @sunsopeningband.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 11/12/2024

Workwell Health's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. PEM is a life-altering problem. It requires clinicians to think differently. conta.cc/3ZdaYac #MECFS #LongCOVID #PEM #PESE @workwellfoundation.bsky.social @sunsopeningband.bsky.social

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Reposted by Workwell Foundation

Todd Davenport @sunsopeningband.bsky.social · 03/12/2024

No fancy fundraising, but this #GivingTuesday, please consider my friends at the Workwell Foundation. We’re trying pull back the veil on mysterious conditions to uncover helpful and accessible strategies that works for people with ME/CFS, Long Covid, and related conditions. Thanks for considering.

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Workwell Foundation @workwellfoundation.bsky.social · 03/12/2024

In honor of International Day of Person with Disability. Workwell continues to provide resources and #hope to people with #MECFS and #LongCOVID and other #fatigue related illnesses. Read More: www.givesignup.org/g/bam466 #GivingTuesday #IDPwD24 #Disability #nonprofit @workwellfoundation.bsky.social

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Reposted by Workwell Foundation

Todd Davenport @sunsopeningband.bsky.social · 02/12/2024

Hey, cool! The predictive basis for the model for biometric pacing we’ve been working on for almost the past 20 years at @workwellfoundation.bsky.social and that we shared early on with the kind folks at Visible seems to hold up well within a large dataset. Replication needed but good to see.

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Reposted by Workwell Foundation

Kristin Houlihan, Writer @kristinwrites.bsky.social · 02/12/2024

@sunsopeningband.bsky.social and @workwellfoundation.bsky.social are amazing! I can’t speak to visible but it seems they are too

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Workwell Foundation @workwellfoundation.bsky.social · 27/11/2024

#WorkwellFoundation appreciates you. It is our patients, physicians, attorneys and colleagues, who enable us to provide #disability services which drives #research and continued #education. We are blessed to have your support. #MECFS #LongCOVID #HOPE #LASnow #nonprofit #Science #HappyThanksgiving

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Reposted by Workwell Foundation

Todd Davenport @sunsopeningband.bsky.social · 26/11/2024

Quoting to amplify. Thanks for your work on this and for taking the time to speak with me about it, @spichaksimon.bsky.social. Needless to say, these evidence-based guidelines…are neither evidence based nor soundly worded guidance. @longcovidphysio.bsky.social @workwellfoundation.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 21/11/2024

🌟 Exciting News! 🌟 We have some exciting updates to share! We've launched a brand-new Facebook page to bring you even more amazing content and updates! 👉Click this link to visit our new and improved Facebook page! www.facebook.com/workwellfoundationorg We'd love for you to follow us. Thank you!

facebook.com

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Workwell Foundation @workwellfoundation.bsky.social · 21/11/2024

#WorkwellHealth's Small Group Mentoring for Rehab Clinicians. Confidence. Competence. A Chance to Provide Real Help. Post-exertional malaise #PEM is a life-altering problem. It requires clinicians to think differently. Read more: conta.cc/3TP6enm #MECFS #LongCOVID #DoNoHarm #WorkwellFoundation

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Reposted by Workwell Foundation

María Richardson @diatoma.bsky.social · 18/11/2024

This weekend in these cruel waves my spirit is holding on to the lifebuoy studies & genuinely caring work of @workwellfoundation.bsky.social @sunsopeningband.bsky.social @physiosforme.bsky.social @longcovidphysio.bsky.social , actual experts on exercise/exertion & #ME #PEM #PENE

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Reposted by Workwell Foundation

Tom Kindlon @tomkindlon.bsky.social · 16/11/2024

"Pacing with a heart rate monitor to minimize post-exertional malaise (PEM) in ME/CFS and #longCOVID" by @workwellfoundation.bsky.social From the AMMES November 2024 Newsletter workwellfoundation.org/pacing-with-... #MyalgicEncephalomyelitis #MEcfs #CFS #PwME @sunsopeningband.bsky.social

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Workwell Foundation @workwellfoundation.bsky.social · 15/11/2023

Workwell teams up with STAT Health Our research aims to understand whether cerebral blood flow is reduced during post-exertional malaise (PEM) and if this metric helps explain the worsened orthostatic symptoms many report while in PEM. Check out our new blog on this exciting collaboration!

workwellfoundation.org

Workwell Teams up with STAT Health | Workwell Foundation

Workwell Foundation recently teamed up with Daniel Lee, the co-founder and CEO of STAT Health, to test an exciting new in-ear wearable device that measures blood flow to the head.

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