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Lumia

@wearlumia.bsky.social
344 followers 1.2K following 56 posts

What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com

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Lumia @wearlumia.bsky.social · 12/06/2025
Replay of Lumia Lab LIVE, featuring guest experts Dr. Satish Raj & Dr. Amanda Miller, hosted by Lumia inventor Daniel Lee. #Dysautonomia #wearables #cardiology #pots #pwme #pwlc #medsky #citizenscience #bloodflow #neuroscience #posturalorthostatictachycardiasyndrome www.youtube.com/live/KnUiP_v...
youtube.com
What is Preload? The Key to Boosting Your Blood Flow | Lumia Lab LIVE with Dr. Satish Raj
YouTube video by Lumia
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Lumia @wearlumia.bsky.social · 12/06/2025
We're LIVE
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Lumia @wearlumia.bsky.social · 09/06/2025
Lumia is now on Reddit! Check out our #wearlumia subreddit: reddit.com/r/wearlumia/ #wearables #pots #dysautonomia #longcovid #bloodflow #pwme #mecfs #spoonies #posturalorthostatictachycardiasyndrome
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Lumia @wearlumia.bsky.social · 09/06/2025
Introducing Lumia Lab LIVE – our new livestream series! Watch a 5-minute science lesson & try a guided experiment with your Lumia wearable. ✨RSVP for June 11 at 7:30 PM ET with Dr. Satish Raj: evt.to/eidigoeiw #LumiaLabLIVE #wearlumia #pots #pwme #pwlc #dysautonomia #wearables #syncope #fainting
Text reads Lumia Lab Live. A caucasian female with hypermobile EDS, POTS and Long Covid Dysautonomia rests on a white bed with her eyes closed, a Lumia wearable device is visible in her ear on close inspection. An iPhone is lying next to her running Live Mode data collection on the blood flow to her head as well as heart rate.
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Lumia @wearlumia.bsky.social · 06/06/2025
Our June newsletter is now available! Check your inbox or simple take a look here: In this one, we share Maya's story & announce the debut of Lumia Lab LIVE: mailchi.mp/lumiahealth.... You can subscribe for our monthly email at the www.lumiahealth.com site. #pots #wearables #dysautonomia #wearlumia
mailchi.mp
Lumia Health Newsletter
What you feel is real. Track blood flow to your head with Lumia.
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Lumia @wearlumia.bsky.social · 06/06/2025
Jill Brook, MA, host of the POTScast, is speaking at #dyscourse2025 right now on nutrition for people with Dysautonomia, #POTS and other chronic illnesses. Low blood volume, or hypovolemia, plays a big role! #Dyscourse #dysautonomia Register and attend this free event today: t.co/LKKfrcKiqL
Image is a biography card for Jill Brook, MA, and has a small photo of her with the following bio: Jill Brook, MA
Jill is a long-time patient and nutritionist in California. She earned degrees from Princeton University and UCLA, then worked as a nutrition researcher before opening private practice and later serving as Nutrition Consultant to Dysautonomia Clinic. After her own 17-year diagnostic delay, Jill is passionate about improving awareness and research. She recently retired to focus on founding PatientsCount.org with her data scientist husband, so far resulting in over a dozen peer-reviewed research publications. She also serves as Research Liaison to Standing Up to POTS, host of The POTScast and aspiring comic via DoodleThru cartoons. She lives in northern California with her husband and 3 dogs.
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Lumia @wearlumia.bsky.social · 06/06/2025
Excellent talks today at #dyscourse. Registration will be open during the event, and replays will post to their website. Good info for healthcare providers as well as patients with Dysautonomia. t.co/LKKfrcKiqL #DysCourse2025 #Dysautonomia #POTS #pwme #pwlc #LongCovid #chronicillness #medsky
Image is a text graphic with today's agenda at DysCourse by The Dysautonomia Project. 

🕒 Here’s what’s coming up TODAY (all times in EST):
12–1PM – The Struggle is Real  with Dr. Frye
1:05–2:05PM– Practical Nutrition Tips with Jill Brook, MA
2:10–3:10PM – Managing Medications with Dr. Snapper
3:15–4:15PM– Keynote: Practical Tips for POTS Patients with Dr. Raj
 4:15–5:15PM – Resource Hall– Explore tools, products & partner orgs!

Let’s make today a powerful day of learning, community, and hope — all in honor of Christina Tournant. [Photo of Christina at bottom.]
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Lumia @wearlumia.bsky.social · 04/06/2025
RSVP for Lumia Lab LIVE! Science isn’t just for labs. Become the experiment! ✨ Short expert talk ✨ Live experiment w/ Lumia Add event: evt.to/eidigoeiw June 11 at 7:30 PM ET with Dr. Satish Raj. #LumiaLabLIVE #wearlumia #citizenscience #pots #pwme #longcovid #longcovid #wearables #dysautonomia
A female presenting person with POTS, Dysautonomia and Long Covid explores orthostatic changes in blood flow using a Lumia wearable tracker. She has brown hair and is lying flat on a white bed wearing a white long sleeve shirt and teal pants. Next to her, there is an iPhone running Lumia Live Mode for high frequency data recording. A text treatment shows the logo for Lumia Health and a Lab LIVE tag. Lumia Lab LIVE debuts on June 11 at 7:30 ET and is a 30 minute session with expert education and a live group experiment for those wearing Lumia wearable trackers. The public is welcome to attend and observe. Future Lumia Lab LIVE events will offer the chance to contribute your data for research.
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Lumia @wearlumia.bsky.social · 04/06/2025
Here's a replay of the webinar with Lumia inventor Daniel Ewok Lee, Direct Sync & the Power of Live Mode. Direct to iPhone Sync is available for all Lumia Members. youtu.be/7_0AJyTq8io?... #wearlumia #lumiahealth #wearables #medsky #dysautonomia #chronicillness #longcovid #pwme #pots #neisvoid
youtu.be
Lumia Member Update: Direct Sync & the Power of Live Mode | Lumia Wearable Earpiece Tracker
YouTube video by Lumia
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Reposted by Lumia
Maya Lindemann @mayalongcovid.bsky.social · 03/06/2025
Such an honor & privilege to represent the chronic illness community ❤️🌺
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Lumia @wearlumia.bsky.social · 03/06/2025
Meet Maya: After a 2020 COVID infection, @mayalongcovid.bsky.social went from diver & school nurse to bed-bound with ME/CFS, POTS & MCAS. Now, she serves on Lumia’s PAC, bringing the chronic illness community’s voice forward. Read her story: tinyurl.com/wearlumia #longcovid #pots #wearlumia #pwME
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Lumia @wearlumia.bsky.social · 30/05/2025
Visit to NASA to share Lumia wearable tech and test #bloodflowrestriction with Hydro BFR bands. Full blog post: lumiahealth.com/blogs/news/v... #dysautonomia #wearable #medtech #health #medsky #bfr #wearlumia #lumiahealth
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Lumia @wearlumia.bsky.social · 29/05/2025
Just updated our handle -- @wearlumia.bsky.social from lumiahealth.bsky.social to match our other social media handles! We have also completed the legal name update from STAT Health to Lumia Health. What you feel is real. #wearlumia #wearable #lumia #pots #pwme #longcovid #pwlc #dysautononmia.
lumiahealth.bsky.social
Bluesky
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Lumia @wearlumia.bsky.social · 28/05/2025
✨DIRECT SYNC!✨ The feature you’ve been waiting for is here! Download the update. This lets Lumia sync directly from earpiece to iPhone. You can see you data and start a Live Mode while out. apps.apple.com/us/app/lumia... #wearlumia #pots #dysautonomia #pwme #pwlc #longcovid #syncope #lumiahealth
A female presenting person with hypermobility, syncope and orthostatic intolerace lies down reading a book while a kitten walks by. The person is wearing a Lumia ear wearable tracker that tracks blood flow to the head. Text reads: Lumia: Direct to iPhone Sync Now Available. Download app version 1.16.1 to get your Lumia data on the go.
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Lumia @wearlumia.bsky.social · 19/05/2025
Register for a zoom May 21 for #wearlumia Members & the curious public! Direct Sync & the Power of Live Mode! lumiahealth.com/blogs/news/s... Find out upcoming features & ideas for self discovery w/ Lumia Live Mode. The Lumia wearable earpiece and app are designed for #pwme #pots #pwlc #dysautonomia
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Lumia @wearlumia.bsky.social · 07/05/2025
Our May Newsletter is out with news about NASA, Direct Sync for Lumia, DysCourse, & more! mailchi.mp/lumiahealth.... #wearlumia #lumiawearable #bloodflow #NASA #bloodflowrestrictionbands #Hytro #lumia #pots #orthostaticintolerance #LongCOVID #pwme #mecfsawareness #dysautonomia
A female presenting person reclines in bed with the legs raised, and is checking the Lumia app to explore blood flow changes in this posture. Lumia tracks blood flow to the head with an in-ear wearable.
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Kelly @broadwaybabyto.bsky.social · 07/12/2024
MCAS - When You’re Allergic to Everything and Nothing All at Once An introduction to mast cell disease that examines what these cells do, why they misbehave and common symptoms, treatments and steps to diagnosis. It also explains the unique type of idiopathic anaphylaxis we often deal with: /8
disabledginger.com
When You're Allergic to Everything and Nothing... That's MCAS
An intro guide to Mast Cell Activation Syndrome and how it has fundamentally changed my life. Living under the constant threat of anaphylaxis is hard - but there are ways to make it easier.
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Lumia @wearlumia.bsky.social · 15/04/2025
Recipients selected by the Patient Advisor Council for the Lumia Health Financial Assistance Program are onboarding. We emailed all other applicants. To hear about future opportunities, subscribe: mailchi.mp/lumiahealth.... #longcovid #wearables #wearlumia #pots #pwme #chronicillness #dysautonomia
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Kelly @broadwaybabyto.bsky.social · 07/12/2024
If you’re dealing with Long Covid - there’s a chance you’re also dealing with MCAS and/or POTS/Dysautonomia. They’re two of the most common comorbids - and can have a devastating impact on quality of life. New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting? A mega 🧵 of resources
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Ziyad Al-Aly MD @zalaly.bsky.social · 19/10/2024
My first post has to be about #LongCOVID 🔹 400 million individuals affected worldwide 🔹 $1 trillion in annual economic costs 🔹 Countless lives & communities shattered The time for a comprehensive policy and research response is now! Details in our review here www.nature.com/articles/s41...
nature.com
Long COVID science, research and policy - Nature Medicine
This Review outlines the current state of scientific evidence on long COVID, discusses its impacts on patients, health systems, economies and global health metrics, and proposes a forward-looking rese...
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Reposted by Lumia
Long COVID Justice @longcovidjustice.org · 03/04/2025
Long COVID can include many health issues. Ask doctors about: - #Dysautonomia (including postural orthostatic tachycardia syndrome, #POTS) - Myalgic encephalomyelitis (ME), which overlaps with chronic fatigue syndrome. Together, they’re often called ‘#ME/CFS.’ - #Hypermobility
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Lumia @wearlumia.bsky.social · 17/03/2025
We need your EAR! If you ordered a Lumia wearable back during 2023 or 2024, you should have received your order. If you haven't, we don't have your Ear Scan and have been trying to reach you. Email support@lumiahealth.com so we can ship your order! #wearlumia #lumiahealth #stathealth #dysautonomia
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Lumia @wearlumia.bsky.social · 03/04/2025
✨The latest edition of our email newsletter is out! ✨ mailchi.mp/lumiahealth....
mailchi.mp
Lumia Health Newsletter
Track blood flow to your head with Lumia.
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Reposted by Lumia
Technavance @technavance.bsky.social · 02/04/2025
Exciting news! Dr. Stefan Carp & Dr. Mari Franceschini just received their LBNP chamber with automated pressure control at @mghmartinos.bsky.social! They’re teaming up with Selina Zhu and Daniel Lee from @lumiahealth.bsky.social (formerly STAT Health) to push the boundaries of research using LBNP🔬💡
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Renegade Research @renegaderesearch.bsky.social · 19/03/2025
April 11, 2025 - Orthostatic Flow Syndromes Renegade Research #Clinician's Roundtable - Steven J. Smith, MD, retired interventional radiologist, will discuss his hypotheses and research results about how venous disorders may underlie some cases of POTS and more! us06web.zoom.us/webinar/regi...
Bio photo of Steve Smith 

April 11, 2025 - Renegade Research #Clinician's Roundtable

Orthostatic Flow Syndromes

A few slides and then a long Q&A discussion session with Steven J. Smith, MD, retired interventional radiologist. He will discuss his hypotheses and research results about how venous disorders may underlie some cases of POTS, fibromyalgia, #MECFS, migraine, brain fog, IBS, vulvodynia, ADHD, and more.

https://us06web.zoom.us/webinar/register/3817419991507/WN_stWTJAMYRse9wUGUsDwm-Q#/registration
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Lumia @wearlumia.bsky.social · 17/03/2025
We need your EAR! If you ordered a Lumia wearable back during 2023 or 2024, you should have received your order. If you haven't, we don't have your Ear Scan and have been trying to reach you. Email support@lumiahealth.com so we can ship your order! #wearlumia #lumiahealth #stathealth #dysautonomia
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Reposted by Lumia
jessamyn-ann.bsky.social @jessamyn-ann.bsky.social · 14/03/2025
Definitely going to be needing one of these clips for my Lumia. Super cool!
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Lumia @wearlumia.bsky.social · 13/03/2025
Meet Lumia Clip, a whole new way to #wearlumia! Our easy new adapter allows an alternate ear position for the Lumia Health #wearable. Lumia tracks changes in blood flow to the head for people with orthostatic intolerance from chronic illnesses #pots #dysautonomia #syncope #longcovid #mecfs #medsky
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Ninni @katfat2.bsky.social · 12/02/2025
Happy Valentines. Your heart's in the right place, but is your blood? Good article on #OI from the AHA. Folks so fortunate not to have OI, can you picture getting dizzy every time you stand, as vision fogs, hearing dulls, and heart pounds? Support research. #MEcfs #LongCOVID #OrthostaticIntolerance
From the article: "Figure 1. Physiological mechanisms involved in regulating blood flow with orthostasis (left) and order of activation of physiological changes that occur with standing (right)." The illustration shows that a supine person has high central blood volume (on the left) while a standing person (on the right) has several mechanisms that should operate to continue supplying adequate blood to the brain: "Upright position: blood volume redistributed [by] cerebral autoregulation, baroreflex counterregulation, humoral activation, splanchnic vasoconstriction [and] skeletal muscle pump activation. The order of activation is listed to the right of those figures: "Standing," then "Venous pooling and capillary filtration," then "Cerebral blood volume [lowers]," then "stroke volume [lowers]," then "baroreflex counter-regulation," and finally, "Heart rate [increases], Vasoconstriction, Humoral activation."
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Sparrow / Liz @untonuggan.myatproto.social · 20/02/2025
Since there is cerebral hypoperfusion in POTS You'd think that this system of hormones ("RAAS") Would be helping to direct more blood flow to the brain to help compensate But it's often doing the exact opposite (lowering sodium levels and blood volume)
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Dr Carey, Feminism and Prejudice and Zombies @redheadwhich.bsky.social · 20/02/2025
In people with me/cfs, cerebral blood flow is reduced. This causes a lot of symptoms: dizziness, fatigue, vision and speech impairment, etc
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jessamyn-ann.bsky.social @jessamyn-ann.bsky.social · 28/02/2025
This event is open to the public. Tune in with me and learn more about Lumia! #wearlumia #pots #mecfs #dysautonomia
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Lumia @wearlumia.bsky.social · 07/03/2025
The new edition of our Lumia Health newsletter is here! mailchi.mp/lumiahealth.... We feature our March 11 event with Lumia inventor Daniel Ewok Lee on the future of fitting the world's smallest wearable and how Lumia Flow Index compares to Cerebral Blood Flow. #cbf #wearlumia #pots #pwme #longcovid
A screenshot from the Lumia Health (formerly STAT Health) email newsletter showing a Lumia earpiece wearable held in a person's hands. In the background there's an iPhone showing the Lumia app and a graph of Lumia Flow Index -- representing blood flow to the head -- and movement tracking. The text in the image show that Lumia is in stock and orders are open at the website.
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Lumia @wearlumia.bsky.social · 05/03/2025
Did you order a STAT Health in-ear wearable in October-November 2023? We’re trying to reach ALL our original crowdfunding supporters! Please get in touch; we need an Ear Scan to ship your order! We’re Lumia Health now. (Same people, just name change.) #stathealth #lumiahealth #wearlumia #pots #stat
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Lumia @wearlumia.bsky.social · 28/02/2025
Rare is beautiful, and we see you. This #RareDiseaseDay we are honored to serve those in our community with rare diagnoses. Through research as well as the Lumia wearable, our mission is to improve lives and illuminate #invisibleillness. #dysautonomia #msa #aag #PAF #veds #marfan & more! #wearlumia
Image of Lumia Health ear wearable logo on a navy zebra background. Rare is beautiful, and we see you. On this Rare Disease Day, we are honored to serve those in our community living with rarer diagnoses. Through our research efforts as well as the Lumia wearable, our mission is to improve your lives and illuminate complex conditions.
In particular, we honor our Members with rare genetic connective tissue diseases, rare #synucleinopathy, #rarecancers with chemo-induced #neuropathy and #autonomicdysfunction, rare congenital differences like certain vascular #compressionsyndromes, and rarer forms of #dysautonomia.  
#multiplesystematrophy #msa #aag #PAF #pureautonomicfailure #autoimmuneautonomicganglionopathy  #marfan #vasculareds #veds #ehlersdanlossyndrome #loeysdietz #turnersyndrome #fd #dbhd #eaglesyndrome #raredisease #medicalzebra #spooniesupport #invisibleillness
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sagebird.bsky.social @sagebird.bsky.social · 03/02/2025
The Lumia Health device has been wonderful for our daughter, showing her blood flow to her brain and heart rate. It is helping her understand how to manage her own health. #wearlumia #pots #longcovid #dysautonomia
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jessamyn-ann.bsky.social @jessamyn-ann.bsky.social · 31/01/2025
Ever feel dizzy in the shower? Here’s why. White line is cerebral blood flow and blue line is my heart rate. Those two lines should never cross. Showers are brutal for blood flow. #wearlumia #dysautonomia #pots #mecfs
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jessamyn-ann.bsky.social @jessamyn-ann.bsky.social · 03/02/2025
Learning all about electrolyte supplements and how they affect my body. Remember, blue line is HR, white is cerebral blood flow. Pic A is my body on Trioral. Pic B is my body on Liquid IV. Lumia allows me to see in real time how these products work for me. Fascinating! #wearlumia #pots #mecfs
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Lumia @wearlumia.bsky.social · 27/02/2025
Highlight on one of our upcoming features!
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Lumia @wearlumia.bsky.social · 26/02/2025
One way Lumia can help people self-manage complex conditions with #orthostaticintolerance is by reinforcing compliance with a doctor's lifestyle recommendations & treatment plan, & by driving awareness of what factors or interventions contribute to symptoms. #chronicillness #medsky #neisvoid #pwme
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jessamyn-ann.bsky.social @jessamyn-ann.bsky.social · 22/02/2025
This is what a flare looks like for me with Lumia. Blue is HR, white is blood flow. Each time the lines meet is when I stood up. I guess it’s time for me to start taking something for these palpitations, too. 😢 *Lumia is not a medical device. #pots #mecfs #dysautonomia #chronicillness #wearlumia
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jessamyn-ann.bsky.social @jessamyn-ann.bsky.social · 18/02/2025
Here I’m doing a live demonstration of what it’s like to live with POTS (or other forms of OI) using my Lumia. We look fine on the outside, but this is what’s happening inside. Remember blue is my HR and gray is blood flow to my head. Note: Lumia is not a medical device. #wearlumia #pots #mecfs
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