iiinova — where your digital self keeps evolving

Reposted by Caroline Elizabeth Christian

Rachel Riggs @rachelriggs.bsky.social · 18/03/2025

New recipe goes out in the SPRING newsletter on Thursday!

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Reposted by Caroline Elizabeth Christian

Whitney is Wicked @itswhitneywitch.bsky.social · 17/03/2025

Looking to connect with people who have median Arcuate Ligament syndrome MALS who have had surgery. What's your pain benefit? Any relief from other symptoms like nausea? Any effects on your comorbids?

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Caroline Elizabeth Christian @carolinechristian.bsky.social · 15/03/2025

Since the election, I have experienced profound dread, fear, sadness, anger, etc. Yesterday a new and more potent emotional valence set in due to the actions of 10 democratic senators: Hopelessness and despair. This is what happens when you feel no one w/ leverage is fighting for you.

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Reposted by Caroline Elizabeth Christian

The Bulwark @thebulwark.com · 04/03/2025

Former SSA commissioner Martin O'Malley: “We have a 50-year low in staffing while the baby boomer generation is swelling their ranks. That’s the underlying reality...these guys appear hell-bent on breaking it." The latest Press Pass from @cheetah.bsky.social: www.thebulwark.com/p/elon-is-co...

thebulwark.com

Elon Is Coming for Your Social Security

Plus: Don’t call it a “State of the Union” speech.

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Brian Shuell @bshuell.bsky.social · 19/02/2025

It was 10 years ago today at 5:20am that my life was uprooted. Only 11 minutes into my typical morning run, I collapsed. During the following days and weeks that I tried to keep going, I got sicker. Today, I am still sick. Today is my 10th #MECFS Ill-aversary. 10 years > 20% of my life. #neisvoid

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 20/02/2025

Aaand there it is: 2/19 - Executive Order from White House: 'Commencing The Reduction Of The Federal Bureaucracy’ "(iv) the Secretary of Health and Human Services shall terminate the Secretary’s Advisory Committee on #LongCOVID” HT @bhanlon15.bsky.social www.whitehouse.gov/presidential...

whitehouse.gov

Commencing the Reduction of the Federal Bureaucracy

By the authority vested in me as President by the Constitution and the laws of the United States of America, it is hereby ordered: Section 1.

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Rachel Riggs @rachelriggs.bsky.social · 01/02/2025

Sign up for my free newsletter if you're interested in this (dead easy) Cauliflower Soup recipe!! It goes out on February 15th. 💗 rachelriggs.substack.com #paleo #dairyfree #healthyfood #eatyourveggies #mecfs #longcovid

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Reposted by Caroline Elizabeth Christian

Jonathan V. Last @jvl.bsky.social · 29/01/2025

Watching the RFK hearing fills me with more despair than I thought possible. He's a lunatic. Republicans are craven. Democrats are useless. And all of these people know that this is a farce, but they're playing their parts instead of living in reality.

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Reposted by Caroline Elizabeth Christian

Spooky Back From The Dead Lazarus @jlazarus.bsky.social · 29/01/2025

“Constitutional crisis” is too mild a phrase for what’s happening here. I just don’t know what else to call it.

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Esther Choo @choo.bsky.social · 22/01/2025

My NIH study section that was to meet tomorrow was one of those canceled. This represents many months of work by the applicants and by the NIH staff and reviewers. Devastating is the correct word.

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Reposted by Caroline Elizabeth Christian

#MEAction Network @meactnet.bsky.social · 22/01/2025

Research study opportunity! The Mestinon/LDN LIFT study is seeking eligible participants within 150 miles of Brigham and Women's Hospital at Harvard Medical School. See details below. #pwME #MyalgicEncephalomyelitis #MECFS www.omf.ngo/studyme

omf.ngo

StudyME

StudyME: A comprehensive resource for ME/CFS research, providing valuable information and study opportunities.

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Reposted by Caroline Elizabeth Christian

Lois Beckett @loisbeckett.bsky.social · 08/01/2025

I'm on the late shift covering the impact of these Los Angeles fires, and looking to speak to people who have evacuated so far, and whose homes and businesses have been affected. If that's you or someone you know, send them my way: Lois.beckett@theguardian.com.

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Reposted by Caroline Elizabeth Christian

Julia Métraux @juliametraux.bsky.social · 08/01/2025

If you're in an evacuation zone in SoCal, please check in with any disabled/aging neighbors you have to see if they need help evacuating.

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Reposted by Caroline Elizabeth Christian

Todd Davenport @sunsopeningband.bsky.social · 16/11/2024

Probably against all better judgement, a journal has invited me to write a guest editorial on the topic of Long Covid. What should I cover?

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Reposted by Caroline Elizabeth Christian

Tom Kindlon @tomkindlon.bsky.social · 21/10/2024

It's been great to see the influx of people from the ME/CFS and long Covid community in the last week. Here's a starter pack by @chromatowski.bsky.social that's worth checking out: bsky.app/starter-pack... It lists interesting people to follow and also has a feed #MEcfs #CFS #PwME #LongCovid 1/

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Caroline Elizabeth Christian @carolinechristian.bsky.social · 14/11/2024

Hello! Hoping to connect with friends in the #MECFS and #Longcovid chronic illness communities!

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Workwell Foundation @workwellfoundation.bsky.social · 15/11/2023

Workwell teams up with STAT Health Our research aims to understand whether cerebral blood flow is reduced during post-exertional malaise (PEM) and if this metric helps explain the worsened orthostatic symptoms many report while in PEM. Check out our new blog on this exciting collaboration!

workwellfoundation.org

Workwell Teams up with STAT Health | Workwell Foundation

Workwell Foundation recently teamed up with Daniel Lee, the co-founder and CEO of STAT Health, to test an exciting new in-ear wearable device that measures blood flow to the head.

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Reposted by Caroline Elizabeth Christian

Julie Rehmeyer @julierehmeyer.bsky.social · 04/10/2023

The Open Medicine Foundation has arrived here, guys! @openmedf.bsky.social

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Caroline Elizabeth Christian @carolinechristian.bsky.social · 04/10/2023

Patients often ask about a concise, accurate, and authoritative resource on #MECFS to share with their doctors - this new paper co-authored by @exceedhergrasp1.bsky.social is a fantastic choice. Well done!

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