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Christine Bienvenu

@suissepatient.bsky.social
416 followers 496 following 98 posts

Swiss🇨🇭Montrealer🇨🇦 #ePatient #ASD/Aspie #ADHD Mom💙 #PatientPartner Université Patients @USorbonne graduate #BCSM #cancerdusein #TheWalkingGallery jacket313 #impliquonslespatients! #letpatientshelp! #PatientsUseAI enseignement recherche🔬 #PPI #PPIR 🧩 @HE_Arc

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Reposted by Christine Bienvenu
Amy Price @amyprice.bsky.social · 30/05/2026
Honored to co-author with @cvonraesfeld.bsky.social jopm.jmir.org/2026/1/e97972 @suissepatient.bsky.social @bengoldacre.bsky.social @patientled.bsky.social @lexfridman.bsky.social @hmkyale.bsky.social
jopm.jmir.org
Real-World Data Needs Real-World Doctors: When Automation Advances Faster Than Clinical Workflow
Health care is entering an era of unprecedented detection. Artificial intelligence (AI)–driven monitors and real-world data streams now identify clinical risks in minutes, promising a future of proact...
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Christine Bienvenu @suissepatient.bsky.social · 27/03/2025
Proud to have been part of this project #patientpartner #PPI and to share our publication. "Comparative inpatient care of #cancer vs. non-cancer #patients in #Switzerland during the #COVID_19 lockdown: a nationwide interrupted time series analysis." bmccancer.biomedcentral.com/articles/10....
bmccancer.biomedcentral.com
Comparative inpatient care of cancer vs. non-cancer patients in Switzerland during the national COVID-19 lockdown: a nationwide interrupted time series analysis - BMC Cancer
Background The COVID-19 pandemic exerted unprecedented pressure on healthcare systems worldwide, leading governments and hospitals to postpone elective procedures to prioritize care for COVID-19 patie...
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Reposted by Christine Bienvenu
Hannah Harris Green @whatsitlike.me · 23/02/2025
Trump officials are trying to sneak around federal judges’ orders. They could be held in civil contempt of court, which can include jail time and can’t be undone with a presidential pardon, according to @sbagen.bsky.social . My latest for @theguardian.com www.theguardian.com/us-news/2025...
theguardian.com
Trump halts medical research funding in apparent violation of judge’s order
Health department orders NIH to hold Federal Register submissions – critical step in process for funding studies
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Christine Bienvenu @suissepatient.bsky.social · 21/02/2025
In 2025... what a dark new world we're in. 😔
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Christine Bienvenu @suissepatient.bsky.social · 13/01/2025
#We seek #collaboration, not control!" Great article by @epatientdave.bsky.social with helpful tips to create #partnership with #patients. #PatientsUseAI. So #HCPs, come join us! #patientpartners #collaboration #coproduction #LetPatientsHelp! patientsuseai.substack.com/p/patientsus...
patientsuseai.substack.com
#PatientsUseAI: We seek collaboration, not control
AI’s potential to revolutionize healthcare dominates headlines and academic journals. But one critical voice is underrepresented: patients. By Gilles Frydman, pioneer (since the 1990s) of patient comm...
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Christine Bienvenu @suissepatient.bsky.social · 01/01/2025
Que 2️⃣0️⃣2️⃣5️⃣ vous apporte le meilleur: santé, bonheur, amour, moments partagés, sérénité, rêves, accomplissements, joie de vivre, paix, légèreté, couleurs, magie, surprises, musique, projets, mystères, amitiés, ... 🌺🏵🌸🌼🎋🌻🪻⚘️ B✨️O🥂N🍾N🥳E❤️🍀A🐖N🎩N💟É🎊E🌝🍸2🎆0🎉2🌞5🕺💃B🌿I☮️S💜E😘S🌹🪻🌷💐🌻🌿🌼🌺
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Reposted by Christine Bienvenu
John Terry @johntrterry.bsky.social · 19/12/2024
just blurted out in class "yes, you have to cite where you got your info. in a world in which lying loudly is the only thing that seems to get rewarded, citing your sources is an act of resistance" and folks, I really believe that.
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Sophie 💚Ⓥ🌱 @sophiesouthpaw.bsky.social · 19/12/2024
Shame must change sides. -Gisèle Pelicot #PersonOfTheYear #Survivor
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whirlwindhelp.bsky.social @whirlwindhelp.bsky.social · 19/12/2024
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Jamie Klingler @jamieklingler.bsky.social · 10/12/2024
On Thursday the 2024 issue of @theneweuropean.bsky.social comes out and they have given me the platform to explain why Gisèle Pelicot is my hero and how she radically changed the conversation about shame and sexual assault It is my proudest writing. app.theneweuropean.co.uk/2024/10/26/v...
Cover of Thursday’s issue which I wrote the cover story for about Gisèle Pelicot as person of the year 2024
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News Eye @newseye.bsky.social · 19/12/2024
“We share the same fight.” Gisèle Pelicot pays tribute to other victims of sexual abuse after her husband & 50 other men were jailed for her rape. Impossible to find the words to adequately describe this lady’s courage. Unquestionably, irrefutably 2024’s Person of the Year. Merci Madame.
Gisèle Pelicot in front of a bank of microphones talks to the press
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Scott McGrath @smcgrath.phd · 19/12/2024
Tagging for 🧪 🩺💻 #MLSky
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Christine Bienvenu @suissepatient.bsky.social · 19/12/2024
9months after stopping my #Herceptin & #Perjeta infusions (147 - 9yrs!) I got my #PET-SCAN & #ctDNA results back: ALL IS GOOD! 🥳 After being told, at age 35, that I had 32% chance of celebrating my 40th bday, Tuesday I will be celebrating my 50th! Take that #TNBC #HER2+ #breastcancer #fuckcancer!
media.tenor.com
a yellow smiley face wearing a party hat and confetti .
ALT: a yellow smiley face wearing a party hat and confetti .
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Louca-Mai Brady @louca-mai.bsky.social · 19/12/2024
Key @hsruk.bsky.social recommendation for #HealthResearch: 7. Emphasise Diversity & #PublicInvolvement ✅ Develop inclusive strategies to engage underrepresented communities in research & service design ✅ Co-create research & services to enhance trust, improve outcomes & reduce inequalities
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Christine Bienvenu @suissepatient.bsky.social · 19/12/2024
Article about #SCAPE Swiss Cancer Patient Experience study, where I was a #patientpartner in the steering committee. This was my first #PPI #PPIR experience w/ @chantalarditi.bsky.social Training #patients & #researchers to work together creates meaningful research. www.mdpi.com/2072-6694/16...
mdpi.com
Experiences and Needs of Swiss Cancer Survivors in the Domains of Health-Related Information and the Healthcare System
Background/Objectives: In recent years, the number of cancer survivors has rapidly increased in Switzerland, as well as worldwide. As cancer increasingly becomes a chronic condition, numerous bio-psyc...
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Reposted by Christine Bienvenu
Kellie O’Callaghan @kellieocallaghan.bsky.social · 18/12/2024
💭ADHD medications effective at reducing symptoms in adults but not improving quality of life, study finds www.abc.net.au/news/health/... #PatientExperience #LivedExperience #PatientEngagement #CommunityEngagement #Health #RuralHealth #RegionalHealth #Research #ClinicalTrials #Codesign
abc.net.au
ADHD drugs reduce symptoms in adults but don't improve quality of life, study finds
A major review of evidence on ADHD treatment in adults has found stimulant drugs and one type of non-stimulant are the only effective treatments for reducing core symptoms in the short term.
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Just Jack @just-jack-1.bsky.social · 25/11/2024
Good morning, Blue Sky. Being resilient is easier when you're surrounded by the right people. Build communities that make you smarter and tougher for the battles ahead. Never give up hope. Never stop fighting for what is right. And just. Whatever comes our way, we will face it together.
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John Collins @logicallyjc.bsky.social · 24/11/2024
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Louca-Mai Brady @louca-mai.bsky.social · 25/11/2024
Thank you to everyone who's booked so far - we should have some interesting discussions! #PPI people: It's filling up fast if you haven't booked already.
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George Takei @georgetakei.bsky.social · 24/11/2024
We’re not going back.
Post: 

Freddy Mercury died of AIDS 33 years ago today. With modern medical technology, he likely would have lived. Never forget how much progress against major infectious disease has been made in a short time. We are at risk now of rolling back much of that progress.
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Madhu Pai, MD, PhD @madhupai.bsky.social · 22/11/2024
‘A place of joy’: why scientists are joining the rush to Bluesky www.nature.com/articles/d41...
nature.com
‘A place of joy’: why scientists are joining the rush to Bluesky
Researchers say the social-media platform — an alternative to X — offers more control over the content they see and the people they engage with.
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Jean-François Cudennec @limpetnerd.eurosky.social · 20/11/2024
I will not hide my inner convictions anymore. Be the change you want to see in the world ! #AcademicSky 🧪
A man holds a sign in the street saying « stop asking for slides a week in advance of a talk »
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Claes de Vreese @claesdevreese.bsky.social · 22/11/2024
Another step towards AcademicSky Science magazine is here: @science.org
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Eric Topol @erictopol.bsky.social · 22/11/2024
Welcome newcomers to the friendly skies of @bsky.app, emerging as the science sharing platform for the future!
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Oncogene Cancer Research @oncogenecancer.bsky.social · 21/11/2024
So grateful for physician researchers like Dr @sofiamerajver.bsky.social who truly put their hearts and minds into improving outcomes for our patient community. #LCAM #grateful
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Alayna Park @alparkphd.bsky.social · 20/11/2024
I’ve started to put together a starter pack of researchers, funders, practitioners and decision-makers working to promote the production and use of evidence. Please comment to be added and repost to share. go.bsky.app/ErqVP8g
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News Eye @newseye.bsky.social · 21/11/2024
21 MILLION! 🚀 Another Bluesky milestone hit this morning.. User numbers have quadrupled in 90 days and doubled in just over 30 days. A tiny team of 20 in @bsky.app brilliantly managing exponential growth 👏
Bluesky live user counter showing 21,007,395 usersStats via @jaz.bsky.social showing a huge spike in daily likers in the last fortnightGraph from John Burn-Murdoch of the FT showing that Bluesky user numbers have now surpassed Threads in the US
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Kit Yates @kityates.bsky.social · 21/11/2024
"After recent changes to Elon Musk’s X, a gradual migration turns into a stampede" BlueSky really does feel like twitter felt before it became so toxic. www.science.org/content/arti...
science.org
Like ‘old Twitter’: The scientific community finds a new home on Bluesky
After recent changes to Elon Musk’s X, a gradual migration turns into a stampede
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Christine Bienvenu @suissepatient.bsky.social · 21/11/2024
My thing: #patientadvocacy #patientpartnership #PPI #PPIR (patient&public involvement in #research) #coproduction #patientempowerment #letpatientshelp! 🧩 Started 15yrs ago on Twitter, when #patients got together to build #patientcommunities, mentor one another, find their peers & become #empowered.
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Reposted by Christine Bienvenu
Yuri Quintana @yuriquintana.com · 21/11/2024
@roxanadaneshjou.bsky.social could you add me to ai med list. See academic.oup.com/jamia/articl...
academic.oup.com
Toward a responsible future: recommendations for AI-enabled clinical decision support
AbstractBackground. Integrating artificial intelligence (AI) in healthcare settings has the potential to benefit clinical decision-making. Addressing chall
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Christine Bienvenu @suissepatient.bsky.social · 20/11/2024
Ooops, there seems to lagging and internal server issues on #Bluesky @Bluesky tonight... Are we breaking the happy place? 😬
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Christine Bienvenu @suissepatient.bsky.social · 20/11/2024
Here's the #PPI starter pack! Come join in on the fun! #coproduction #collaboration #patientpartner 🧩🤝
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Christine Bienvenu @suissepatient.bsky.social · 20/11/2024
This is fantastic! When #PatientPartners engage in #PPI #PPIR, they want to do coproduction work, but sometimes their full-time job of being a #patient needs to take all of the space. Be mindful of that, we are doing our best! ❤️ (Thank you @kellieocallaghan.bsky.social for this lovely piece!)
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Kellie O’Callaghan @kellieocallaghan.bsky.social · 20/11/2024
💭 Reimagining the language of engagement in a post-stakeholder world For research to retain public trust, it must be experienced as inclusive, accessible and fundamentally relational tinyurl.com/467pj3rh #PatientExperience #LivedExperience #CommunityEngagement #Health #RuralHealth #RegionalHealth
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Christine Bienvenu @suissepatient.bsky.social · 19/11/2024
Thanks to @chantalarditi.bsky.social who involved me #patientpartner from the beginning (2018) in #SCAPE steering committee www.scape-enquete.ch/e/the-study-... I discovered the fascinating world of #PPIR (patient and public involvement in research). #coproduction #collaboration #letpatientshelp!
scape-enquete.ch
Patient experiences with cancer care
The SCAPE studies collect experiences of care of people treated for all types of cancer in Swiss hospitals.
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Christine Bienvenu @suissepatient.bsky.social · 19/11/2024
In the classes I give ( #patientpartner ), I always explain to #HCPs how much their words matter: they can make our #patientjourney wonderful or horrible! Thank you to those who make the effort - I can assure you that you are making a difference! ❤️
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Christine Bienvenu @suissepatient.bsky.social · 19/11/2024
As a #patientpartner I wholeheartedly support these! I always say in my classes to #HCPs that words really matter to #patients! They have an impact on our #patientjourney. I still have PTSD from clumsy (or downright awful) words that have been spoken to me! TY to all of you who make the effort! ❤️
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Louca-Mai Brady @louca-mai.bsky.social · 11/11/2024
I've set up a couple of 'starter packs' to help me and others find people with shared interests. The first is on #PublicInvolvement and #Co-production in health and care research: go.bsky.app/PWEAnFR
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Tim Baxter @timinclimate.naruresearch.com.au · 18/11/2024
Bluesky tip for newbies: Bluesky has no real algorithm. Likes here do nothing but show the poster that you enjoyed their content. That kindness is always going to be appreciated by creators, but if you want to help to boost something here, you have to repost it so others see it. 🙂
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Protect Our Care @protectourcare.org · 18/11/2024
RFK Jr. claims he's not anti-vax, but his decades of spreading vaccine misinformation say otherwise. His track record isn’t just dangerous—it’s disqualifying. The Senate must reject him. #StopRFK
statnews.com
RFK Jr. says he isn’t an anti-vaxxer. He’s wrong
RFK Jr. is not just an anti-vaxxer. His X account is one of the most prolific spreaders of anti-vaccine misinformation.
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Machine Pun Kelly @kellyscaletta.bsky.social · 19/11/2024
Part 2. www.youtube.com/watch?v=wog3...
youtube.com
BlueSky for Beginners 2
YouTube video by Machine Pun Kelly
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Machine Pun Kelly @kellyscaletta.bsky.social · 19/11/2024
Bumping this for all the newbies. Make sure you catch both parts. The first part shows you how to find the content you WANT to see, and the second shows you how to filter out the content you DON'T want to see.
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Christine Bienvenu @suissepatient.bsky.social · 19/11/2024
Holy sh**! I accidently opened X instead of Bluesky and was horrified for a second, thinking it had become like over there overnight! 😅😅😅 🙈 I need to remove the X app from my phone to not scare myself again.
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The New York Times @nytimes.com · 18/11/2024
Elon Musk asked X users to submit X-rays, MRIs, CT scans and other medical images to Grok, the platform’s A.I. chatbot, with the hope that if enough users feed the tool with their scans, it will eventually get good at interpreting them accurately.
nytimes.com
Elon Musk Asked People to Upload Their Health Data. X Users Obliged
Privacy experts cringed when people started feeding their medical images to the A.I. tool Grok.
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Scott McGrath @smcgrath.phd · 18/11/2024
New tool that helps you discover new accounts based off who you already follow. #AcademicSky 🩺🖥️🧬
bsky-follow-finder.theo.io
Bluesky Network Analyzer
Find accounts that you don't follow (yet) but are followed by lots of accounts that you do follow.
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Andrea @downing.bsky.social · 18/11/2024
Here’s how to do stuff with Bluesky that you could not on X. #medtech #bcsm #medsky #Xodus www.theverge.com/24295933/blu...
theverge.com
Here’s some cool stuff you can do with Bluesky
It’s not just an Alf pics repository.
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