iiinova — where your digital self keeps evolving

Oncogene Cancer Research @oncogenecancer.bsky.social · 30/08/2026

100 miles. 24 hours. DONE. 🏃‍♂️🔥 Huge congratulations to Paul, who ran for Amy, Tyson & everyone living with oncogene-driven lung cancer. £2k+ raised so far. Now those legs need a VERY long rest. 😂 Help him go further 👇 www.kindlink.com/fundraising/...

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Oncogene Cancer Research @oncogenecancer.bsky.social · 12/07/2026

£10,000 raised for #lungcancer research. ⛳ Thanks to every player, sponsor, supporter & co-founder @janclark1.bsky.social who made our Golf Day at Tall Pines Golf Clubin Bristol possible. Every pound funds life-saving research. This is what community looks like. #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 23/06/2026

We’re now on Substack. We exist because too many people affected by #lungcancer are still given too little — too little time, clarity & support. We’re working to accelerate research, empower patients & help research reach patients faster. 👇 oncogenecancerresearch.substack.com/p/welcome-to...

Card promoting that we are now on Substack.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 05/06/2026

Living w ALK+, ROS1+ or other lung cancers can mean learning as you go. Questions like these ones here. To help w answers, Nuvalent worked w @alkpositive.bsky.social @lungevity.bsky.social @go2forlungcancer.bsky.social @iaslc.bsky.social, LCRF & Ros1ders More at 👉elevatelungcancercare.com

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Oncogene Cancer Research @oncogenecancer.bsky.social · 10/05/2026

Proud to support this webinar on May 14 from LCRF & Susan Wojcicki Foundation on heritable genetics, genomics & lung cancer research w Dr @pateloncology.bsky.social, Dr Isabel Preeshagul, ROS1ders' @jfreemandaily.bsky.social @alkpositive.bsky.social's Marc Muskavitch 👉https://lnkd.in/gFcBUffA

Card says: Our DNA: A blueprint for lung cancer research. What we know, what we're learning and why it matters for patients. Register at LCRF.org/together

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Oncogene Cancer Research @oncogenecancer.bsky.social · 01/05/2026

Sarah was training for marathon #7 when a cough changed everything. It was stage 4, EGFR ex 21 #lungcancer But it hasn't changed her determination On 3 May, Sarah & 10 friends take on a 54 km challenge - this one is for more time Read more 👉https://oncogeneresearch.org/sarahs-ultramarathon #LCSM

Photo of 10 young healthy people all in sporting clothes, in out door locations with blue skies. It includes Sarah who is living with stage 4 EGFR exon 21 lung cancer. The text says: Young Lungs: Back to the Island referring to the Isle of Wight Ultra Challenge

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Oncogene Cancer Research @oncogenecancer.bsky.social · 29/04/2026

As a #lungcancer community, we see the impact of myths every day - delaying diagnosis, shaping who gets screened, influencing research funding. This @cnn.com piece challenges 7 of the most persistent misconceptions & highlights where science is moving. edition.cnn.com/2026/04/29/h... #LCSM

edition.cnn.com

The truth behind 7 common lung cancer myths | CNN

Screening guidelines often fail to pinpoint who’s at risk, and few people who are eligible for screening actually get checked. Some of the problems can be traced to persistent myths about lung cancer.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 26/04/2026

There is something powerful about the @londonmarathon.bsky.social The theme music makes us nostalgic, the costumes make us smile and the stories make us emotional. Especially gratetul to Mandy supporting our continued work at @icr.ac.uk Read more👇 oncogeneresearch.org/icr-festival-t… #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 13/04/2026

Stage 4 oncogene-driven #lungcancer isn’t one-size-fits-all. Targeted therapies can control disease for years, but progression is inevitable. Guidance (STS and ESMO) supports LCT in selected cases. Why not discuss it more? A patient perspective 👇 bmjoncology.bmj.com/content/bmjo... @bmj.com

Don't rule out surgery in stage 4 lung cancer. Published in BMJ Oncology - a patient and advocacy perspective for clinical consideration. Card includes photos of the five authors.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 14/03/2026

📣 England fans: Win 2 tickets to England vs Uruguay at Wembley on 27 March. £5 to enter and every penny supports life-saving #lungcancer research. Thank you to everyone who has already entered. 🩵 Enter 👇 raffall.com/415661/enter-r… #lcsm #raffle #research

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Oncogene Cancer Research @oncogenecancer.bsky.social · 07/03/2026

We were pleased to join fellow advocates, clinicians and researchers at #BTOG26. Multidisciplinary conversations like these matter — bringing the thoracic community together to keep pushing progress in #lungcancer. #LCSM #StrongerTogether

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Oncogene Cancer Research @oncogenecancer.bsky.social · 28/02/2026

Progress in #lungcancer doesn’t only happen in clinics or labs. Why not use your skills to accelerate patient-focused outcomes? We’re seeking volunteers w expertise in finance, legal, marketing, data, digital, project management & research. Interested? www.oncogeneresearch.org/volunteer

Photo of two young people looking at a laptop. Text says call for volunteers.

Text says turn your skills into progress.

Two young women photographed with words research cannot wait.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 04/02/2026

#LungCancer can turn life upside down – fear, questions, a future that looks different. This #WorldCancerDay @younglungcancer.bsky.social & OCR honour the people who steady the spin: clinicians, researchers, nurses, fellow patients, families. Who helps you turn your world downside up. #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 24/01/2026

We believe progress happens when patient voices, medical, research & industry come together. Subscribe to receive patient stories, practical support & updates from us, shared occasionally & with care. Join our community here: 👇 oncogenecancerresearch.eo.page/rymgx #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 21/01/2026

We’re proud to share our first Annual Report. In our 1st year, we focused on helping our community live longer & better lives, through empowerment, advocacy & research. Thank you for walking alongside us. This is just the beginning. 👉 oncogeneresearch.org/annual-report #LCSM

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Reposted by Oncogene Cancer Research

Princess Vimentin PhD | Cancer Biologist @princess-vimentin.bsky.social · 16/01/2026

Some good news! 5 yr survival rates for some hard to treat cancers have increased. Liver cancer, with a 7% relative survival rate in the 1990s rose to 22% Lung cancer- 15% to 28% Myeloma- 32% to 62% This is in part due to early detection & better treatment. 🧪 www.cancer.org/research/acs...

How 5-year Relative Cancer Survival Rates (%) Changed from 1975 to 2021

Relative survival is a measure of life expectancy among people with cancer compared to that among the general population of the same age, race/ethnicity, and sex. This table shows how the 5-year relative survival rate (%) changed for 12 common cancer types all stages combined over three diagnosis periods. All survival rates improved over time except for cancer of the uterine cervix (cervical cancer) and uterine corpus (endometrial cancer). Source: Cancer Statistics 2026 Slideshow

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Oncogene Cancer Research @oncogenecancer.bsky.social · 18/01/2026

For people living w #lungcancer, biomarker testing is not an abstract system, it is a lifeline. It shapes treatment, quality of life & time. It’s the beginning of hope. Pleasure to have our Chair @yvonnediaz.bsky.social represent the patient voice at @thermofishersci.bsky.social European meeting

Six people standing together in a formal old room that is wood panels with slides behind them. Speakers at a conference
including Yvonne Diaz of OncogeneCancer research and executives from Thermo Fisher. Also medical oncologist and pathologist.

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Reposted by Oncogene Cancer Research

Lung Cancer Research Foundation @lcrf.org · 09/01/2026

LCRF's Sr. Dir. Research & Administration, Dr. Dhru Deb, explains how early funding for NTRK gene fusion research led to the first targeted therapy for this driver. Our commitment to #LungCancer research continues to make an impact. Read more: LCRF.org/connecting3

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Reposted by Oncogene Cancer Research

Duncan Edmonstone @edmonstone.net · 04/01/2026

Part 3, the last part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social We discuss brain mets, brain surgery, and their implications for driving in the UK. We also talked about returning to work and then adjusting my life so I can stop working. youtu.be/yIWw0U2yg5c?...

youtu.be

Duncan on brain surgery, work and redefining life with advanced lung #cancer | #podcast

YouTube video by Oncogene Cancer Research

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Oncogene Cancer Research @oncogenecancer.bsky.social · 11/01/2026

A must-read for the ALK+ community. Professor Elena Klenova, a scientist w background in cancer research & education & an ALK+ patient, explains ALK #lungcancer in clear, accessible terms - from biology to TKIs. Written for patients & clinicians alike. oncogeneresearch.org/patient-publis…

This card says “Reserach spotlight”snd features a photograph of Professor Elena Kelnova in a white lab coat. She is a PhD, genetics and living with ALK+ lung cancer. The card says: read Elena‘s published paper designed to help patients and families understand ALK+ lung cancer in clear and empowering terms.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 03/01/2026

Months for some. Years for others. More than one doctor. More than one misdiagnosis. Delayed #lungcancer diagnosis is not rare, especially when you are young & do not fit the “profile”. Help us change the narrative. Help us create more awareness. #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 31/12/2025

2025 was powered by our patient community, alongside clinicians, researchers & industry partners working together to drive progress. Thank you for showing up in big ways and small. Here’s to a better 2026 for all of us. Happy new year! #HNY2026

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Oncogene Cancer Research @oncogenecancer.bsky.social · 30/12/2025

Not all advanced #lungcancer is the same. And neither are patients. This @lungcancerstoday.bsky.social article shares a recap from Dr Mara Antonoff @iaslc.bsky.social @ascocancer.bsky.social #NACLC on surgery in oligometastatic lung cancer. Have a read 👇 www.lungcancerstoday.com/post/the-ias...

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Oncogene Cancer Research @oncogenecancer.bsky.social · 22/12/2025

Cancer does not pause for the holidays. For those living with cancer, scans and worries do not stop. We are thinking of everyone navigating this season alongside cancer, and thanking those working every day to improve outcomes. Wishing you rest, love, and peace. #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 09/12/2025

Angus Pratt was unforgettable - his large white ribbon, red toque and dry humour lit up every many conferences & events. After navigating breast cancer as a man & later EGFR LC, he found a real kinship with the #lungcancer community. He leaves a big mark on our hearts. #LCSM

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Reposted by Oncogene Cancer Research

Duncan Edmonstone @edmonstone.net · 07/12/2025

The 2nd part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social In this part, I discuss my advocacy work, especially my work with Greater Manchester Cancer Alliance. We also talk about who inspired me to become a patient advocate, Cameron Millar youtu.be/8wRLznxVN0U 1/2

youtu.be

Duncan never saw lung #cancer coming. Now he's fighting to change the system. | #podcast

YouTube video by Oncogene Cancer Research

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Oncogene Cancer Research @oncogenecancer.bsky.social · 06/12/2025

Logan, diagnosed with stage 4 ALK+ #lungcancer age 32, thought he was protecting his son until this moment. Be sure to watch the full interview to learn about how hard it was to get diagnosed and how he’s supporting others. 🎙️youtube.com/playlist?list=… #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 30/11/2025

#BiomarkerTesting has changed everything in #lungcancer. It gives those in our community the chance to receive the right treatment at the right moment. It's why @thermofishersci.bsky.social José Luis Costa believes in continued innovation. #StoriesOfLungCancer #LCAM25

Photograph of Dr Jose Luis Costa, of Thermo Fisher Scientific. He provides a quote for our lung cancer awareness campaign. He says: We want to see every patient receive the diagnostic that can guide the most precise treatment.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 29/11/2025

Progress in #lungcancer happens when we refuse to accept today’s limits as tomorrow’s reality. As Nuvalent’s Dr Henry Pelish reminds us — let’s keep pushing science’s limits. #StoriesOfLungCancer #LCAM25

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Reposted by Oncogene Cancer Research

UCLA Radiology @uclaradiology.bsky.social · 28/11/2025

Lung cancer causes more deaths than colon, breast & prostate cancers combined. Early detection saves lives. If you're 50–80 with a smoking history, ask your doctor about a low-dose CT lung screening. bit.ly/487gjDn

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Oncogene Cancer Research @oncogenecancer.bsky.social · 28/11/2025

#Biomarkertesting helps people with #lungcancer get the right treatment at the right time. Yet too many still miss out. This video created w @thermofishersci.bsky.social is a great resource for anyone diagnosed. Help share to empower & inform more people👇 www.oncogeneresearch.org/biomarker-te...

The image shows a drawing of two women - one a journalist called Sofia and a doctor known as Dr Ana. It says: Biomarker Testing: Watch this new education video. It's all you need to know about lung cancer and biomarker testing. Produced by Thermo Fisher with support from Oncogene Cancer Research.

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Reposted by Oncogene Cancer Research

ALK Positive Inc. @alkpositive.bsky.social · 27/11/2025

It’s a simple wish: to see your child grow up. But for people with ALK+ lung cancer, like Amanda, Jenna, Carla, and Hope, there are no guarantees. You can help give them more precious years with their kids by supporting research. What would you give for more time?

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Reposted by Oncogene Cancer Research

ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 28/11/2025

As Lung Cancer Awareness month comes to a close please consider buying a pair of laces & supporting much needed research into the leading cause of cancer deaths worldwide & in Australia. docs.google.com/document/d/e...

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Oncogene Cancer Research @oncogenecancer.bsky.social · 28/11/2025

Not all #lungcancer is the same - and neither should be our treatments. Today, we can personalize care to each person's unique biology. As Dr Lauren Byers @mdanderson.bsky.social highlights, innovation is making precision care a reality. Let’s keep pushing for more. #StoriesOfLungCancer #LCAM25

Photograph of Dr Lauren Byers from MD Anderson Cancer Center. In this quote she says: we have more ways to personalise patients’ treatments, especially in lung cancer which was previously treated as one size fits all.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 27/11/2025

Behind a young adult facing #lungcancer, there’s often someone holding them up. For @Janclarkgirls, whose daughter Amy was diagnosed at 20, success means seeing Amy work, travel, hike & more. To every care partner who carries someone this, we see you. #StoriesOfLungCancer #LCAM25

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Oncogene Cancer Research @oncogenecancer.bsky.social · 26/11/2025

What brings Dr Melinda Hsu hope? Seeing researchers, clinicians & advocates advance survivorship science, creating innovative ways to improve long-term quality of life for people living with #lungcancer. Every step forward brings hope. #StoriesOfLungCancer #LCAM25

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Reposted by Oncogene Cancer Research

UW-Madison Department of Surgery @wiscsurgery.bsky.social · 21/11/2025

A @uwhealth.bsky.social story shares the importance of early detection for lung cancer. Last year, Dr. Andrea Axtell performed a life-saving procedure on a patient whose lung cancer was detected early. #ExceptionalPeople #ExtraordinaryResults go.wisc.edu/wqo9g3

go.wisc.edu

Early action saves Shannon from lung cancer

Shannon underwent a biopsy and tumor removal surgery under one anesthesia at UW Health and is now lung cancer free.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 25/11/2025

Every advance in #lungcancer research is more than data - it’s hope for patients and families. Mark Reale of Takeda reminds us that breakthroughs are measured in the lives they touch. #StoriesOfLungCancer #LCAM25

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Oncogene Cancer Research @oncogenecancer.bsky.social · 24/11/2025

Hope is the heart of research for people with #lungcancer. It's why Dr Jessica Lin @massgeneralbrigham.bsky.social says, progress happens when we all come together to push the boundaries of what’s possible. Let's keep working together to keep hope & progress alive. #StoriesOfLungCancer #LCAM25

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Reposted by Oncogene Cancer Research

Yvonne Diaz @yvonnediaz.bsky.social · 24/11/2025

No two lung cancers are the same. We may each have lung cancer and be facing the same storm, but we each experience different waves, have different tools, unique experiences. There are many paths. Together we bring more light and hope.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 23/11/2025

Progress in #lungcancer doesn’t happen in isolation. It takes industry, researchers, clinicians & patient advocates pushing forward together. Annarita Egidi’s words remind us what can be achieved when we come together. #StoriesOfLungCancer #LCAM25

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