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slinkymahlinky

@slinkymahlinky.bsky.social
97 followers 291 following 79 posts

Caregiver, driver of the chronically ill, a fixture in waiting rooms throughout the nation. The pharmacists know me on sight Posts & reposts mostly about ME/CFS, hEDS, IC, POTS, APKD, Spondyloarthritis, & Fibromyalgia

PostsRepliesMedia
Reposted by slinkymahlinky
Rep. Mike Thompson @mikethompson.house.gov · 22/06/2025
Read my full statement on the bombing of Iranian nuclear sites below.
“It is Congress’ Constitutional responsibility to debate and approve any use of military force. This is why I called on Speaker Johnson last week to reconvene the U.S. House of Representatives, and I am calling on him once again to call us back into session now. Members must be briefed immediately on the evolving situation in the Middle East so we can fulfill our Constitutional responsibilities.”
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Long Covid Advocacy @longcovidadvoc.com · 21/06/2025
Our deep dive of the biomarker study by Ponting: 1. They clearly state it's a disease with strong female bias. 2. It's strength is that it's a large study that identifies population ave differences. 131,303 contols, 1455 ME cases 1/13 www.embopress.org/doi/full/10....
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Ahimsa @ahimsa-pdx.bsky.social · 21/06/2025
"Scale of how ME/CFS affects blood revealed" www.ed.ac.uk/news/scale-o... "People with ME/CFS have significant differences in their blood compared with healthy individuals, a new study reveals, suggesting a path towards more reliable diagnosis of the long-term debilitating illness." #MEcfs #PwME
ed.ac.uk
Scale of how ME/CFS affects blood revealed
People with ME/CFS have significant differences in their blood compared with healthy individuals, a new study reveals, suggesting a path towards more reliable diagnosis of the long-term debilitating i...
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Crazie Daizee @craziedaizee.bsky.social · 21/06/2025
AMAZING NEWS researchers found consistent biomarkers for #meCFS they've been trying for decades "these findings should also accelerate research into the minimum panel of blood traits required to accurately diagnose ME/CFS in real-world populations" and similar diseases #LongCovid / #Fibromyalgia
embopress.org
Replicated blood-based biomarkers for myalgic encephalomyelitis not explicable by inactivity | EMBO Molecular Medicine
imageimageThere are no cellular or molecular biomarkers diagnostic of myalgic encephalomyelitis (also known as chronic fatigue syndrome [ME/CFS]). We find hundreds of blood-based traits are different,...
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Wajahat Ali @wajali.bsky.social · 22/06/2025
"On Donald Trump, The Warmonger" I try to bring the receipts, connect the dots, and offer my analysis and predictions about what’s to come in light of the United States yet again bombing another Muslim majority country in my lifetime. Let me know your thoughts. open.substack.com/pub/thelefth...
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Kelly @broadwaybabyto.bsky.social · 22/06/2025
War is in many ways a disability justice issue. The violence that ensues causes disability Disabled people in war zones struggle to access adequate medical care or have their basic needs met It’s a cycle of violence that often harms the most vulnerable (whilst also creating more vulnerable people)
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Joshua J. Friedman @joshuajfriedman.com · 22/06/2025
Sen. Chris Murphy: "I was briefed on the intelligence last week. Iran posed no imminent threat of attack to the United States."
Tweet from Chris Murphy:

I was briefed on the intelligence last week.
Iran posed no imminent threat of attack to the United States. Iran was not close to building a deliverable nuclear weapon. The negotiations Israel scuttled with their strikes held the potential for success.
12:50 AM • Jun 22, 2025
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Noah Shachtman @noahshachtman.bsky.social · 22/06/2025
If this is confirmed, it means Trump gave more advance notice to the Iranians than to key members of Congress amwaj.media/en/media-mon...
amwaj.media
Exclusive: Iran given advance notice as US insisted attack on nuclear sites is ‘one-off’
The story: US President Donald Trump says three key nuclear facilities in Iran have been “obliterated,” while threatening more strikes “if peace does not come quickly.” This comes as Amwaj.media has l...
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Celeste Pewter @celestepewter.bsky.social · 22/06/2025
Trying to explain to my former Gen Z intern what the second Iraq War was like (he was 1 when it started), and honestly: Just know that every war in my lifetime has been started by a Republican president. Please remember that, no matter what bucket of lies the GOP tries to sell you, younger voters.
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Huxley @huxleymorgan.bsky.social · 22/06/2025
Black and white image of Iranian author Marjane Satrapi, smoking a cigarette. "The world is not divided between east and west. You are American, I am Iranian, we don't know each other, but we talk and we understand each other perfectly. The difference between you and your government is much bigger than the difference between you and me. And the difference between me and my government is much bigger than the difference between me and you. And our governments are very much the same."
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Eldritch kcarruthers @kcar.me · 21/06/2025
Covid rots the brain: Insights on the neurocognitive mechanisms underlying hippocampus-dependent memory impairment in COVID-19 - Scientific Reports www.nature.com/articles/s41598-025-…
Diagrams from the  article too small for me to see without my glasses
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Timothy Snyder @timothysnyder.bsky.social · 22/06/2025
Five things to remember about war:
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Citizen Portal News Massachusetts @citizenptnewsma.bsky.social · 22/06/2025
Massachusetts' parole board is setting a precedent by mandating disability accommodations to ensure eligible prisoners are released on time. Learn more here! #MA #CitizenPortal #CriminalJusticeReform #TimelyRelease #DisabilityAccommodations
citizenportal.ai
Parole board mandates accommodations for disabled prisoners in new decision guidelines
Parole board must evaluate disability accommodations and ensure timely release for eligible prisoners
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Chad Loder @chadloder.dev · 21/06/2025
Masked ICE agents spotted swapping out license plates this morning in Bell Gardens, CA
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Kelly @broadwaybabyto.bsky.social · 22/06/2025
Years ago I found myself in an ER with severe lower limb pain and unexplained bleeding/burns My feet looked like I had walked over hot coals I was given pain medication but no diagnosis or treatment In fact, I was told I was “wasting a bed” I begged not to be discharged 🧵
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Chris Ponting @cgatist.bsky.social · 20/06/2025
📢 Now published: www.embopress.org/doi/full/10..... Since the preprint, we replicated 9 of 14 traits in All of Us & showed that #pwME with PEM-like symptoms have stronger biomarker differences. bsky.app/profile/cgat...
embopress.org
Replicated blood-based biomarkers for myalgic encephalomyelitis not explicable by inactivity | EMBO Molecular Medicine
imageimageThere are no cellular or molecular biomarkers diagnostic of myalgic encephalomyelitis (also known as chronic fatigue syndrome [ME/CFS]). We find hundreds of blood-based traits are different,...
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Dr Amber, esq. @ambertutorslaw.bsky.social · 21/06/2025
Happy Saturday! Read something, learn something, hug something. Keep going!
SOME ARE POSTING ON SOCIAL MEDIA SOME ARE PROTESTING IN THE STREETS SOME ARE DONATING SILENTLY SOME ARE EDUCATING THEMSELVES
SOME ARE HAVING TOUGH CONVERSATIONS WITH FRIENDS & FAMILY
A REVOLUTION HAS MANY LAYERS BE KIND TO YOURSELF AND TO OTHERS WHO ARE TRAVELING IN THE SAME DIRECTION
JUST KEEP YOUR FOOT ON THE GAS.
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The Needling @theneedling.com · 21/06/2025
Seattleites Enjoy Perfect First Day of Summer: tinyurl.com/5n64zcry
Happy couple in thick, gray turtleneck sweaters sipping on gray mugs looking out a rainy window
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Courtney Milan @courtneymilan.com · 20/06/2025
This makes me emotional. I know it’s still not over. But it’s at least something.
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The Bulwark @thebulwark.com · 20/04/2025
Q: "How do you respond to Governor Newsom?" Sen. Van Hollen: "I think Americans are tired of elected officials or politicians who are all finger to the wind...Anybody who can't stand up for the Constitution and the right of due process doesn't deserve to lead."
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Timothy Snyder @timothysnyder.bsky.social · 28/02/2025
Here I react to the shameful encounter between American leaders and media and the Ukrainian president. No doubt there were more, but I saw five failures on our side: of hospitality, decency, democracy, strategy, and independence. Please watch and share. snyder.substack.com/p/five-failu...
snyder.substack.com
Five Failures in the Oval Office (video)
America hurt itself badly today.
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KLo @klogoldman.bsky.social · 28/02/2025
How much of our money do you think was paid to buy Andrew Tates' freedom to travel to the US?
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Matthew Cortland (they) @matthewcort.land · 01/02/2025
Our messaging should be along the lines of: "diversity, equity, inclusion, and accessibility (sometimes called DEIA)" Write out the words. Include accessibility (the feds do, and those are the policies directly under attack.)
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slinkymahlinky @slinkymahlinky.bsky.social · 02/02/2025
What the hell, @cantwell.senate.gov? Sincerely. Genuinely. Asking as constituent. What the hell are you doing?
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 01/02/2025
Hey, #SciSky! UPLOAD YOUR PAPERS TO RESEARCH GATE, before PubMed disappears. 🧪
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Maggie Koerth @maggiek.bsky.social · 31/01/2025
If you're a journalist downloading CDC data today, please consider filling out this form so we have a centralized guide to who has what. docs.google.com/forms/d/e/1F...
docs.google.com
Downloaded CDC Data And Where To Find It
Journalists and scientists are downloading a bunch of public health data they suspect might be at risk of deletion. Instead of all of us privately reinventing the wheel over and over, what if we share...
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 31/01/2025
Concerned about disappearing pages? Make a recurring donation to the Internet Archive. They fund & run the Wayback Machine, which can be used to see how pages looked in the past. The IA has endured transparent attacks over the past few years. #DoSomething and donate here: archive.org
archive.org
Internet Archive: Digital Library of Free & Borrowable Texts, Movies, Music & Wayback Machine
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Brian Tyler Cohen @briantylercohen.bsky.social · 30/01/2025
Trump wants to distract you from the fact that he gutted the Aviation Safety Committee and ousted the FAA administrator last week. Don’t let him.
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Anna Merlan @annamerlan.bsky.social · 30/01/2025
Robert F. Kennedy Jr. has spent two days of confirmation hearings claiming not to hold positions he's held for years, reversing statements he previously made, and denying saying things he said. With @kieraevebutler.bsky.social, we examined some of the wilder ones: www.motherjones.com/politics/202...
motherjones.com
Robert F. Kennedy Jr. is trying to hide who he is
How Trump's HHS nominee spent two days of hearings obfuscating decades of scientific falsehoods.
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southpaw @nycsouthpaw.bsky.social · 30/01/2025
NYT reports an air traffic controller’s seat was empty at DCA last night www.nytimes.com/live/2025/01...
Staffing at the air traffic control tower at Ronald Reagan National Airport was "not normal for the time of day and volume of traffic," according to an internal preliminary Federal Aviation
Administration safety report about the collision that was reviewed by The New York Times.
The controller who was handling helicopters in the airport's vicinity
Wednesday night was also instructing planes that were landing and departing from its runways. Those jobs typically are assigned to two controllers, rather than one.
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Alexandria Ocasio-Cortez @aoc.bsky.social · 30/01/2025
If you are a federal worker being offered a buyout, I would advise against taking it. Of course, this is a personal decision for everyone and it’s your choice. But these offers are a rush job. The legality is questionable and this admin does not keep to its word. They aren’t firing for a reason.
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Christopher Webb @cwebbonline.com · 30/01/2025
Such an important point… “The country has been hardened by a nine-year deliberate campaign of dehumanization.” — @NicolleDWallace We didn’t get here overnight. This wasn’t a quick process.
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Chad Topaz Queer DEI Race Traitor @chadtopaz.bsky.social · 30/01/2025
One of the very most amazing organizations in the world is @pflag.org and they have done important, helpful, and trustworthy work vetting information about the executive orders. on LGBTQ+, immigration, DEI, and reproductive issues. I can't recommend their list of resources highly enough.
pflag.org
Executive Order Explainers and Resources - PFLAG
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Matt Pearce @mattdpearce.com · 30/01/2025
fitting that the first big air disaster after years of loud, insistent warnings that understaffing would cause exactly this outcome, happens at the airport named after the guy who crushed the ATC union
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ck stewart @ckayfabe.bsky.social · 30/01/2025
i won’t be retweeting chris hayes but “it’s not dem’s fault they aren’t equipped for the attention age” is elitist “we’re simply too smart for the average person” bullshit and it is in fact the fault of the party who have been coasting on the perfect storm of obama’s cult of personality for 18 years
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Jessica Luther @jessicawluther.com · 30/01/2025
Stop fucking saying he blamed “DEI,” which is some abstract, non-tangible idea. He is blaming people of color having jobs he thinks they aren’t qualified for. He’s blaming race. He’s being racist every time he says it. Journalists need to get fucking backbones, my word.
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Kelly @broadwaybabyto.bsky.social · 30/01/2025
Earlier today, Anglican Priest Calvin Robinson ended a speech at a pro life summit in DC by giving the exact same Nazi salute that Elon Musk did. The crowd laughed & cheered. The Anglican Church revoked his license. This is how you handle Nazis. You condemn them. You don’t pander to them.
anglican.ink
Calvin Robinson's license revoked by the Anglican Catholic Church over political actions
Statement from the Anglican Catholic Church At approximately 3:00 pm today (1/29) members of the College of Bishops of the ACC were made aware of a post made on X showing the end of a speech made by C...
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Dr. Ayah Nuriddin @ayahnerd.bsky.social · 30/01/2025
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Long Covid Advocacy @longcovidadvoc.com · 30/01/2025
🗞️⚡ Great to see an astute take on RFK's and Ziyad Al-Zaly's statements yesterday by Elizabeth Yuko in Rolling Stone. Our view is that it would be wise to remember Maya Angelou's words that: "When someone shows you who they are, believe them the first time." Article 🖇️: tinyurl.com/3b623ej5
A man with gray hair, wearing a dark suit and white shirt, speaks at a podium labeled "Mr. Kennedy." He appears serious, addressing an audience. The image includes an overlay with the title "LONG COVID NEWS" and an article headline stating, "RFK Jr. Made Promising Statements on Long Covid. Too Bad the Rest of His Plans Undercut Them."
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Senator Martin Heinrich @heinrich.senate.gov · 30/01/2025
Exactly one week ago.
Associated Press Headline: Trump fires heads of TSA, Coast Guard and guts key aviation safety advisory committee.
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Erin Reed @erininthemorning.com · 29/01/2025
1. Breaking News: Donald Trump has signed an executive order targeting trans youth and teachers in schools who teach for them. It goes after "social transition" and threatens arrests. I will go through line by line, as I have the last 3 nights. Find the EO here: www.whitehouse.gov/presidential...
whitehouse.gov
Ending Radical Indoctrination in K-12 Schooling – The White House
By the authority vested in me as President by the Constitution and the laws of the United States of America, it is hereby ordered: Section 1.  Purpose and
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Chad Topaz Queer DEI Race Traitor @chadtopaz.bsky.social · 19/11/2024
If for NO REASON WHATSOEVER you woke up wanting a clickable/zoomable/hoverable map of ICE offices and detention facilities in the continental US, I've got ya. Preview image (not clickable) is below and here's the link. Sharing is caring! rawcdn.githack.com/chadtopaz/ic...
Screenshot of interactive map showing locations of ICE offices and detention facilities
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Melody Schreiber @melodyschreiber.com · 30/01/2025
This is day two of the confirmation hearing for Robert F. Kennedy Jr. to lead all U.S. health agencies. I wrote about the damage already done to public health and research under this administration — and how there's much more to come if he's confirmed: newrepublic.com/article/1908...
newrepublic.com
How Bad Could Trump’s Assault on Public Health Get?
Public health officials and experts were braced for challenges. The scale of the new administration’s moves in the first few days, however, has shocked them.
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Bill Corbett @billcorbett.bsky.social · 30/01/2025
So @schumer.senate.gov, @hakeem-jeffries.bsky.social, @democrats.org etc, here you go. He's blaming it on you, on your base. You can tsk-tsk with "wait for the investigation" OR you can turn it around and with one voice heap ALL the blame on Trump and Musk, relentlessly. The latter is how you win.
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Melody Schreiber @melodyschreiber.com · 30/01/2025
"it's time to start playing the game we are actually in"
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Michael Linden @michaelslinden.bsky.social · 28/01/2025
I'm a former OMB official and this is absolutely true. And let's also not forget that these illegal actions have direct, harmful consequences for actual people. New moms won't get help feeding their infants. Small businesses won't make payroll. People could lose their jobs, their homes.
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