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Rose F. Kennedy Center @ Montefiore Einstein

@rfkcenter.bsky.social
108 followers 119 following 74 posts

Providing interdisciplinary clinical care, community services, training, and research along with advocacy and systems change. Associated with @EinsteinMed einsteinmed.edu/centers/childrens-e…

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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 18/12/2025
Seeking #presenters for CUNY Neurodiversity Conference 2026. 💫 This year's theme is "Fostering #Neurodivergent Joy in Higher Education". @beaconcollege.bsky.social @cuny.edu @thegraduatecenter.bsky.social See flyer below for more info!
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 01/12/2025
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 15/07/2025
Congrats to @sdeoliveira.bsky.social a brilliant neurodivergent scientist on her promotion to Associate professor @einsteinmededu.bsky.social who participated in our @einsteinmededu.bsky.social ICTR "Disability as Difference: Reducing Researcher Roadblocks" study funded by NCATS #MedSky #promotion
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 14/07/2025
What helps disability helps everyone. At @EinsteinICTR retreat, Dr Ariel Fishman cites parallels between this phenomena (aka "curb cut effect") & Translational Science. Read here : cambridge.org/core/journal... #MedSky @universitypress.cambridge.org @einsteinmededu.bsky.social @gnyha.org
Einstein-Montefiore ICTR Retreat
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 10/07/2025
Kicking off the @EinsteinICTR Retreat of @EinsteinMed and @MontefioreNYC as they share clinical & translational research insights. #EinsteinICTR #ResearchRetreat #EinsteinMed #MontefioreNYC #MedSky @einsteinmededu.bsky.social @einsteinphd.bsky.social
Albert Einstein College of Medicine and Montefiore  Institute For Clinical And Translational Research (ICTR) Retreat July 10th 2025 Albert Einstein College of Medicine and Montefiore  Institute For Clinical And Translational Research (ICTR) Retreat July 10th 2025
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 30/06/2025
"The Paul and Hava Story: A Pathway to Marriage" shares the perspectives of a married couple with developmental disabilities. Their story is a powerful reminder that love knows no limits. youtube.com/watch?v=HFcs... #DisabilityAwareness #Inspiration #LoveWins
youtube.com
The Paul and Hava Story: A Pathway to Marriage
YouTube video by NYS Council on Developmental Disabilities
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 24/06/2025
Why are most people with disabilities not represented in research? "Reducing Translational Science (TS) Roadblocks to Disability Research" dives into why this occurs & how TS can change this. A must-read by the CTSA at @einsteinmededu.bsky.social. www.cambridge.org/core/service... #disabilities
Einstein-Montefiore Self-Advocates shown, with Joanne Siegel- the Co-Director of our University Center of Excellence in Developmental Disabilities (UCEDD).  The paper is co-authored by UCEDD co-Director Karen Bonuck PhD and Dr. Ariel Fishman.
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 23/06/2025
Inspiring art installation at Jay Street-MetroTech featuring vibrant murals by New Yorkers with intellectual & developmental disabilities. A powerful collaboration between the @mta.info & @yainetwork.bsky.social which celebrates artistic talent thecity.nyc/2025/06/18/a... #DisabilityArt #SubwayArt
thecity.nyc
Art Goes Underground at Former Subway Storefronts in Murals From New Yorkers With Disabilities
The MTA has teamed with a nonprofit serving people with autism, Down syndrome and other special needs to display their work inside one-time newsstands.
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 23/06/2025
Free 6 wk bike program for kids 10+ in NYC! Learn bike mechanics, rules of the road, Meets weekly July-Aug in parks across NYC. Bikes, helmets, & vests provided. Register now! Parent/guardian required. www.bike.nyc/education/pr... @bikenewyork.bsky.social #BikeNYC #NYCSummer #BikeNewYork
bike.nyc
Summer Program for the Public - Bike New York
This free 6 week program for kids ages 10 and up offers participants a chance to learn the mechanics of riding a bike, the rules of the road, best practices...
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 23/06/2025
Inspirational stories from US ParaSwimming: From overcoming health challenges to achieving dreams, these athletes including veteran JessicaLong as she headlines at the World ParaSwimming Championship later this year. #ParaSwimming #TeamUSA #JessicaLong www.usparaswimming.org/news/2025/ju...
Picture of US ParaSwimmer
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 23/06/2025
The @rfkcenter.bsky.social UCEDD founded May 1st, 1966 now associated with @einsteinmededu.bsky.social EinsteinDeptMed, MontefioreNYC serves the Developmental Disabilities community through clinical services, research, community education & training. #RFKCenter #EinsteinMed #UCEDD #Montefiore
Picture of what the RFK UCEDD does the impact it hasPicture of what the RFK UCEDD does the impact it has
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 16/06/2025
Want to connect with a Parent Match in New York State or looking for support from another parent who understands? Fill out the form to be matched with a Support Parent. tinyurl.com/Request-a-Pa... Reach out to your Regional Coordinator to follow up #ParentMatching
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 16/06/2025
Free Summer Meals starting June 27th NYC's Summer Meals program, which offers free breakfast & lunch throughout NYC for ages 18 & under, will run from June 27th - August 29th. Learn more : schools.nyc.gov/school-life/... registration, documentation or ID is required. #SummerMealsNYC
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 12/06/2025
NYC afterschool programs need better funding for students w/disabilities: 74% of District 75 schools have afterschool programs vs the 93% outside. 100% of District 75 respondents named lack of transportation a barrier. 62,000 students with IEPs need school buses @einsteinmededu.bsky.social
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 04/06/2025
Join Bronx Borough President this Saturday
Resource Fair this Saturday with the Bronx Borough President at Seton Falls Park from 11 AM - 3 PM
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Em Rumble, LICSW @literapynyc.bsky.social · 31/05/2025
Cannot wait to see ya’ll at The Bronx Is Reading Book Fest in June! Grab your tickets and pull up on me 🥰📚 #booksky www.thebronxisreading.com/the-bronx-bo...
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 30/05/2025
"Stand up for Durable Medical Equipment"👨‍🦼 rally in support of the #parity bill, which ensures that #Medicaid #MCOs fully reimburse #DME providers. Thank you to Lativia Sturdivant, Joanne Siegel, Miriam Franco, #Self-Advocates, and all our #fearless leaders!
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Earl K. Miller @earlkmiller.bsky.social · 29/05/2025
Astrocytes make up a large proportion of brain cells. They propagate electrical influences without spiking. Brain communication involves more than just spikes and synapses. bcs.mit.edu/news/overloo... #neuroscience
bcs.mit.edu
Overlooked cells might explain the human brain’s huge storage capacity | Brain and Cognitive Sciences
MIT researchers developed a new model of memory that includes critical contributions from astrocytes, a class of brain cells.
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Integral Answers @integralanswers.bsky.social · 24/05/2025
2/ SPARK = Simons Foundation Powering Autism Research for Knowledge Launched: 2016 Participants: Over 300,000 and growing Focus: Genetics, family history, cognitive profiles Goal: Identify genes linked to autism and fuel research worldwide
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Integral Answers @integralanswers.bsky.social · 24/05/2025
1/ Time to explore SPARK – the largest autism research study ever conducted. This project is building the most comprehensive genetic + behavioral dataset in autism history. Here’s how it works—and why it matters.
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Niamh Garvey @niamhgarvey.bsky.social · 30/05/2025
My top areas I'd like to see more research in #Autism are: 1. Communication in non-speaking autistic people, especially those with #Apraxia. 2. Qualitative research into #PDA and long term effects of different parenting + care-giver styles. 3. Eating and #ARFID- Anxiety/control versus sensory.
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Raul Krauthausen @raulkrauthausen.bsky.social · 28/05/2025
As the founder of SOZIALHELD*INNEN e.V., a NPO and consultancy from Germany, focussing on Disability Mainstreaming, you get my hand-picked news from around the world about inclusion, accessibility and innovation: disabilitynewsdigest.substack.com/p/blind-skat...
disabilitynewsdigest.substack.com
Blind skateboarder Dan Mancina builds world's first adaptive skatepark: "Everyone should have the opportunity to try skating"
I’m Raul Krauthausen the founder of SOZIALHELD*INNEN, an NPO and consultancy from Germany, focussing on Disability Mainstreaming. With this newsletter, I share hand-picked links from around the world.
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 30/05/2025
May 30, 2025 - 🗽Governor Kathy Hochul announces confirmation of #OPWDD #Commissioner Willow Baer. 🏛️Congratulations, Ms. Baer, and thank you for your commitment to the #disability community! Read more here: tinyurl.com/2v7unwxc
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 29/05/2025
⚖️ The Americans with Disabilities Act will be turning 35: @aianational.bsky.social is hosting a #free webinar "ADA at 35: Navigating #Accesibility in the Hybrid #Interior" on 6/2 (6-8pm) with speakers from #ADAPT, #NYU @center4ds.bsky.social, #Duke and more! Learn more here: tinyurl.com/yzhhp33t
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 28/05/2025
#Vrbo Rolls Out Improvements Geared Toward Travelers with #Disabilities 🏖️ 😎 tinyurl.com/mnw2fxa3 "A major vacation rental platform is working to make it easier for #travelers with disabilities....adding 8 new accessibility attributes to its search." @vrbo.bsky.social @disabilityscoop.bsky.social
tinyurl.com
Vrbo Rolls Out Improvements Geared Toward Travelers With Disabilities
A major vacation rental platform is working to make it easier for travelers with disabilities to find accommodations that meet their needs.
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 27/05/2025
⭐ Save the Date! ⭐ #SpecialOlympics 🏅Unified #Health Summit 🏥 in #Rochester #NY @cityofrochester.bsky.social - Saturday, August 9th (8:30am - 4:30pm) - Register here: tinyurl.com/pxcwb7er #disabilities #advocacy #healthcare #athletes @specialolympicsny.bsky.social @2026usagames.bsky.social
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 19/05/2025
We had the honor of hearing Ms. #Wheelchair 🏆 New York -Latavia Sturdivant - speak at the #Bronx IFS Conference. Latavia is a #Lehman professor, #Columbia graduate, & #community leader. 🌟 @lehmancollege.bsky.social @columbiauniversity.bsky.social Learn about her #journey: tinyurl.com/yzcy27bw
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geedeeare.bsky.social @geedeeare.bsky.social · 12/05/2025
Willowbrook State School closed in 1987, but its lessons remain. People with intellectual and developmental disabilities were warehoused, neglected, and denied dignity. We must never forget—and never allow such injustice to happen again. #Disability #IntellectualDisability #Autism #ADHD
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Ansley Erickson @ansleyerickson.bsky.social · 11/12/2023
You might know Willowbrook as part of the history of disability in the US, but you probably don't know Willie Mae Goodman - a Black woman whose fight for her daughter, once a Willowbrook resident - has gone on for decades. #Black&LatinaEdActivism #nyccrhp nyccivilrightshistory.org/topics/black...
Willie Mae Goodman and her daughter Marguerite Goodman are photographed together. They are smiling broadly at one another while Willie Mae Goodman's arm is wrapped around Marguerite's shoulder.Mom is worthy opponent for state
by Lawrie Mifflin

Being the parent of a retarded child is difficult in any case, but for Miss Willie Mae Goodman, the difficulties are compounded, Miss Goodman a divorcee who lives alone in an East Harlem housing project has one child—a severely, retarded eighteen-year-old book old girl—and she fears that the state wants to move her daughter to an inferior institution.

Her daughter, Margaret and 174 others are patients at Gouverneur State School at 621 Water Street in lower Manhattan. They were moved from Willowbrook State School twelve years ago, and since then miss Goodman has been leaving a parent and community crusade to keep the children from being moved again.

Positive treatment
In the process, she has not only kept Gouverneur open three different times in the face of state efforts to close it. But she has helped to make treatment at Gouverneur more positive.

It isn’t easy to be optimistic about the children at Gouverneur. They are the most se
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Center for Independence of the Disabled, New York (CIDNY) @cidnyinc.bsky.social · 30/01/2025
Good news. Featuring CIDNY board member Bernard Carabello. "Planned transformation of former Willowbrook State School highlights commitment to inclusivity, empowerment, change" www.silive.com/news/2025/01...
silive.com
Planned transformation of former Willowbrook State School highlights commitment to inclusivity, empowerment, change
The state plans to create a Center for Learning commemorating the institution’s role in disability rights history.
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Disability Scoop @disabilityscoop.bsky.social · 06/05/2025
The 50th anniversary of the Willowbrook consent decree, which was a catalyst for the group home movement, comes at a precarious time for people with #disabilities.
disabilityscoop.com
50 Years On, Advocates Remember Willowbrook
The 50th anniversary of the Willowbrook consent decree, which was a catalyst for the group home movement, comes at a precarious time for people with disabilities.
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Staten Island Advance/SILive.com @silive.com · 02/05/2025
‘Remember where we came from’: 50th anniversary of landmark Willowbrook School Consent Decree celebrated at CSI
silive.com
‘Remember where we came from’: 50th anniversary of landmark Willowbrook School Consent Decree celebrated at CSI
The decree ended the cruel warehousing of the developmentally disabled in New York state.
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NEWS10 @news10.bsky.social · 06/05/2025
On Friday, Gov. Kathy Hochul’s Office and the Office for People With Developmental Disabilities celebrated the 50th anniversary of the Willowbrook Consent Decree.
news10.com
NYS recognizes 50th anniversary of Willowbrook Consent Decree
On Friday, Gov. Kathy Hochul’s Office and the Office for People With Developmental Disabilities celebrated the 50th anniversary of the Willowbrook Consent Decree.
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 15/05/2025
Happening now! 37th Bronx Individual & Family Support Conference #disability #advocacy Thank you everyone for your hard work & support! @aoc.bsky.social @ritchietorres.bsky.social @repritchie.bsky.social @repglatimer.bsky.social @nysdoh.bsky.social @nychealthy.bsky.social
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Rose F. Kennedy Center @ Montefiore Einstein @rfkcenter.bsky.social · 15/05/2025
Private equity buying residential, home & day services for people w Intellectual & Developmental Disabilities (I/DD). Aim is to double/triple investments in 4-7 year. Cutting costs harms people w IDD. @ndrnadvocates.bsky.social www.disabilityscoop.com/2025/05/12/i...
disabilityscoop.com
IDD Providers Increasingly Swallowed Up By Private Equity
In a major shift, disability service providers across the nation are being acquired by investment firms seeking a quick profit, raising serious questions about implications for care.
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Medical Library Association @medlibassn.bsky.social · 12/05/2025
Curious about how AI is really impacting health sciences? Join us online May 13 & 20 for an instructor-led course to explore the risks, benefits, and practical uses of generative AI, then turn that knowledge into effective library programming. Register here: bit.ly/3GEFqmU #medlibs
bit.ly
Exploring AI Literacy in Medical and Health Science Libraries and Developing AI Literacy Training – the course
Dates of Instructor-Led Sessions: May 13 & May 20, 2025, 10:00 a.m.–12:00 p.m, central time. If you are confused by the many claims about the value of generative AI in the medical and health sciences…
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PsyPost @psypost.bsky.social · 11/05/2025
11 fascinating studies that reveal how motherhood shapes minds, bodies, and brains
psypost.org
11 fascinating studies that reveal how motherhood shapes minds, bodies, and brains
Motherhood reshapes brains, behaviors, and bonds in surprising ways. These studies reveal how maternal affection, stress, biology, and caregiving influence everything from children’s intelligence and personality to mothers’ own mental health and neural architecture.
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Prof Erica Borgstrom @ericaborgstrom.bsky.social · 12/05/2025
Excited that Inside Our Minds (ADHD) will be on BBC 2 today (and iPlayer) - I saw it during production & cried each time! Props to @jonrainford.bsky.social for his work as the OU academic supporting this episode & next week's one (dyslexia-focused). www.bbc.co.uk/programmes/m...
bbc.co.uk
BBC Two - Inside Our Minds, Inside Our ADHD Minds
Chris helps a tour guide connect with his parents and a project manager process her grief.
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Hannah Morton @hannahmorton.bsky.social · 07/05/2025
Autistic Autism Diagnosticians Collaborative Connect with other autistic, credentialed professionals who diagnose autism to shape conversations around access, high-masking presentations, and differential diagnosis. Trainees welcome, Self-ID is valid. bit.ly/AutisticDiag... Please share! 🫶
A flyer titled Autistic Autism Diagnosticians Collaborative with a decorative logo in the top right corner and horizontal bars with additional details, as follows: 
Who? Credentialed, autistic professionals who assess and diagnose autism.
What? A free, collaborative space for peer 
support, mentorship, resource sharing, learning, and could extend to advocacy and research collaborations (if interested). 
Why? Autistic perspectives are critical for improving diagnostic access, clarifying differential diagnoses, and examining the impact of the autistic neurotype on diagnostic decision making. 
Where? We are an international group! Zoom virtual meetings; 
other platform(s) TBD.
https://bit.ly/AutisticDiagnostics
Note at bottom center reads: We welcome self-identified autistic clinicians and autistic professionals in training to undertake diagnostic assessments.
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NPR @npr.org · 12/05/2025
Some of the microplastics we ingest may come from the kitchen tools we use to prepare what we eat. If you want to reduce your reliance on plastic, here are some ideas.
npr.org
Should you toss your plastic kitchen tools for health reasons? Here's the scoop
Some of the microplastics we ingest may come from the kitchen tools we use to prepare what we eat. If you want to reduce your reliance on plastic, here are some ideas.
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Accessibility in the News @a11ynews.bsky.social · 12/05/2025
Nova Scotia releases updated accessibility plan with focus on infrastructure, services, and inclusion www.1015thehawk.com/2025/05/08/n... #a11y
1015thehawk.com
Nova Scotia releases updated accessibility plan with focus on infrastructure, services, and inclusion
Nova Scotia has released its updated accessibility plan, outlining the government's next steps toward becoming...
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Jesse Hession Grayman @kopyor.bsky.social · 10/05/2025
Congratulations to our former Development Studies student Sarah Albom (@thekiwisarah.bsky.social). With perseverance and patience, Sarah met the challenge of turning her BA Hons paper into her first peer-reviewed article for The Journal of Human Development and Capabilities. doi.org/10.1080/1945...
Screen capture of the title and abstract for the following newly published article in the Journal of Human Development and Capabilities:

Research Article
Title:  A Comparative Analysis of Disability Policies in Aotearoa New Zealand and the United Kingdom Through the Lens of the Capability Approach
Authors:  Sarah Albom &Jesse Hession Grayman
Published online: 09 May 2025

ABSTRACT
Disability policy intersects many policy domains, requiring cross-governmental responses. How policy understands and responds to disability affects capabilities for millions of people. Applying Amartya Sen’s capability approach (CA) positioned in the social model of disability, this research conducts a comparative thematic analysis to evaluate how Aotearoa New Zealand (NZ) and the United Kingdom’s (UK) national disability strategies may shape opportunities for disabled people to live in ways they value. No CA research currently exists on these countries’ strategies. We find both countries’ strategies perceive disability as a social issue needing government action to expand disabled people’s capabilities at the individual, community and national levels. Our framework can evaluate agency by whether policy-makers engage with disabled people (lived experts of their experiences) to create disability policy. While both strategies state the importance of including disabled people in designing policy, only NZ’s strategy consistently demonstrates disabled people drive its focus. Both strategies are limited in how they acknowledge or target the economic deprivation of disabled people as a significant barrier to those experiencing disability, and have insufficient mechanisms around monitoring implementation to ensure accountability from government agencies.

KEYWORDS:
Disability public policy; capability approach; Aotearoa New Zealand; United Kingdom
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Bronx Health REACH @bxhealthreach.bsky.social · 08/05/2025
HAPPENING NOW: If you are a new mom and need breastfeeding support: Join us for the Baby Café, a free service that gives breastfeeding support for mothers and their babies. 11am (English) or 1pm (Spanish).
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Em Rumble, LICSW @literapynyc.bsky.social · 11/05/2025
“The more we read together, the more I come to know my children.” Children of the Book by Ilana Kurshan (Pub date: 8/26) is a brilliant exploration of motherhood & voracious reading. I love how Kurshan shows her evolution as both a mother and a reader. A perfect mix of mom life and Bibliotherapy!
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Em Rumble, LICSW @literapynyc.bsky.social · 24/04/2025
✨5 days.✨ Until the release of Bibliotherapy in the Bronx!!🤗📚 I’m honored to be featured in Psychology Today in an article by Heather R.Artushin, LISW-CP: “How to Use Books to Boost Your Mental Health.” This book is my love letter to that process: #booksky www.psychologytoday.com/us/blog/well...
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Anonymous @youranonjd.bsky.social · 11/05/2025
Mother’s Day began not in florist ads but in activism. Ann Jarvis organized Mothers’ Work Clubs to fight child mortality and promote public health. Julia Ward Howe’s 1872 Mother’s Day Proclamation was a pacifist response to the carnage of war. It wasn’t built for brunch. It was born in protest.
Mother’s Day protest black & white
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Disability Innovation Institute UNSW (DIIU) @disabilityunsw.bsky.social · 12/05/2025
Prof. Jackie Leach Scully presented at the Nordic Network on Disability Research Conference in Helsinki last week, sharing her research - "The power of misrecognition: disability and AI-based decision making", co-authored with Georgia van Toorn and Sandra Gendera.
Professor Jackie Leach Scully standing, presenting at the conference.
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The Lancet Diabetes & Endocrinology @thelancetendo.bsky.social · 07/04/2025
New Research: Association between #maternal #diabetes and #neurodevelopmental outcomes in children: a systematic review and meta-analysis of 202 observational studies comprising 56·1 million #pregnancies thelancet.com/journals/lan... #gestational #diabetes #T1D #T2D #MedSky #EndoSky
thelancet.com
Association between maternal diabetes and neurodevelopmental outcomes in children: a systematic review and meta-analysis of 202 observational studies comprising 56·1 million pregnancies
Maternal diabetes is associated with an increased risk of neurodevelopmental disorders and impaired neurodevelopmental performance in children. Further high-quality research is needed to establish cau...
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