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Dr Jackie Ryan

@proudmum95.bsky.social
2.3K followers 762 following 27 posts

I am a mostly retired Autistic autism researcher. Latest project was co-design of a toolkit for staff to support Autistic autonomy. Autistic rights are human rights. Participatory autism research. #AutRes

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Reposted by Dr Jackie Ryan
Autihub.org @autihub.org · 01/09/2026
Launching the Autistic Scholars Project on AutiHub: a free public database of academic publications authored/co-authored by autistic people. 354 autistic authors, 1,799 publications — with daily monitoring for new publications by included authors. autihub.org/en/autistic-...
autihub.org
Autistic Scholars Project
The Autistic Scholars Project is a public, freely accessible database that indexes academic publications authored or co-authored by at least one autistic …
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Senator Paula Simons 🇨🇦 @senatorpaulasimons.bsky.social · 31/08/2026
I have NO regrets about leaving Musk’s site. But I wish I could extend my reach here, with Alberta’s referendum hard upon us. Don’t be shy. Please follow. Please recommend me to your friends. I post about Canadian politics, Alberta, Edmonton, and an absurd array of other topics! #cdnpoli
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Christine Bélanger (They/She, Iel/Elle) @neurodivergeaunt.bsky.social · 10/08/2026
There's no room for #inaccessibility in #healthcare #SDiT @cbcnews.ca @thestar.com @citynewstoronto.bsky.social @globalnews.ca
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Petra Michaela @petramichaela.bsky.social · 09/08/2026
Sometimes peace isn’t found by escaping life… it’s found beneath the trees, where the only things asking for your attention are birdsong, rustling leaves, and the path ahead. Have a peaceful Sunday!
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Ann Memmott @annmemmott.bsky.social · 09/08/2026
www.linkedin.com/pulse/narrow... What a write up! Goodness me, this is good. About e.g. the 'rise' of autism and ADHD. And why the world simply made us visible, then blamed us for it.
linkedin.com
The Narrowing Door:- Neurodiversity, Capitalism, and the Invention of the Abnormal Mind
An essay on autism, ADHD and the political economy of diagnosis by a Mum who is just trying to figure out what is happening. I.
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Dr Jackie Ryan @proudmum95.bsky.social · 28/07/2026
This new paper nicely encapsulates the issues between the neurodiversity movement and the medical model of autism.
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The Autistic Coach | Mati (he/they) @theautisticcoach.bsky.social · 10/07/2026
We just have to build the parachute before the landing - not judge ourselves for needing one.
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The Autistic Coach | Mati (he/they) @theautisticcoach.bsky.social · 10/07/2026
Good things also cost spoons. The concert you loved. The dinner that fed your soul. The friend you laughed with for hours. Processing is processing. Autistic folx aren’t broken for being exhausted by joy.
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Autism @autismtalk.bsky.social · 07/07/2026
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Thinking Person's Guide to Autism @thinkingautism.com · 01/06/2026
If you don't have any interest in autistic people themselves, maybe don't work in or research autism? Just a thought. #autism #neurodiversity #INSAR2026
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Raider @iwillnotbesilenced.bsky.social · 26/04/2026
When children are shot in their classrooms, all politicians can offer are thoughts and prayers. When a shooting happens near them, they demand a $350 million golden ballroom to protect themselves.
Don't normalize a system that protects power more than it protects children.
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💙🪄 Keep Rising 🪄💙 @keeprising.bsky.social · 24/04/2026
💖 cats just wanna have fun 💛💙🩷🤎 #caturday 💛💚🩷💜
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Thinking Person's Guide to Autism @thinkingautism.com · 21/04/2026
AAC app sale! To mark #AutismAcceptanceMonth and expand access to AAC, @assistiveware.bsky.social is offering a 50% discount on some of their most popular apps through April 27. Details: www.assistiveware.com/aac-app-sale #autism #communication #AAC
assistiveware.com
Autism Acceptance Month Sale 2026 - AssistiveWare
Everyone has something to say. Working closely with the AAC community, we build apps and share best practice to help you communicate with the world.
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M Meerkat @kackbro.bsky.social · 04/04/2026
LOVE ❤️ ROBIN WILLIAMS ❤️.....
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Peel Autism Resource 🇨🇦 @peelautismresource.bsky.social · 21/02/2026
From #Aucademy “Profound” Misunderstanding: Why The Lancet Commission on Autism & The Guardian Got It Wrong aucademy.co.uk/2026/02/19/c... #autism #neurodiversity
aucademy.co.uk
“Profound” Misunderstanding: Why The Lancet Commission on Autism & The Guardian Got It Wrong
Nothing About Us, Without Us – Except This, ApparentlyThe “Profound Autism” ProblemA Commission That Contradicts ItselfWomen Don’t Have “Different Autism” – They Experience Different PrejudiceThe E…
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Thinking Person's Guide to Autism @thinkingautism.com · 25/10/2025
How can autistic people recover from short-turn autistic burnout? @mx-joyner.bsky.social has very specific, tried-and-true strategies that might help you or your autistic loved one, at TPGA (and yes this includes kids and adults with high support needs). thinkingautismguide.com/2025/10/we-g...
thinkingautismguide.com
We. Get. Tired! Recovering From Situational Autistic Burnout — THINKING PERSON'S GUIDE TO AUTISM
Parents need to know that autistic kids get TIRED. We autistics need rest, more frequently and in greater durations than non-autistic people.
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Jaime Hoerricks, PhD @jaimehoerricks.bsky.social · 12/10/2025
A critique of “consensus” in autism research—how inclusion becomes performance, power remains untouched, and cure rhetoric persists. Yet amid it all, autistic-led scholarship rises—quiet, defiant, building truth brick by brick open.substack.com/pub/autside/...
open.substack.com
Consensus Without Consent: The Myth of Democracy in Autism Research
On the illusion of democracy in autism research—and the quiet, stubborn work of autistic scholars reclaiming the right to define our own existence.
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Ward Q. Normal (he/him) @wardqnormal.bsky.social · 22/09/2025
Steve Silberman is so pissed about this Tylenol bullshit that he's screaming from the afterlife he didn't even believe in. Increased rates of autism are due to testing, a broadened definition, and greater awareness. It's not vaccines. It's not Tylenol. It's like his work never happened.
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Shannon Rosa @shannonrosa.bsky.social · 20/09/2025
Three incredible books and writers, for when you allow yourself to step back from screaming at the world: Death of the Author, by @nnedi.bsky.social. The Book of Love, by @kellylink.bsky.social Indiginerds, edited by @alinapete.bsky.social What are your current three "take me away" reads?
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Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 23/08/2025
Explore 10 key ideas for neuro-affirming practice. Building neurodivergent competency means creating safety & belonging. Inspired by David… autisticrealms.com/creating-autisti…
Post Image
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Dr Jackie Ryan @proudmum95.bsky.social · 12/08/2025
My research, "‘It's Really Who They Are and What They Want’: Staff Perspectives on Supporting Autonomy for Autistic Adults With Intellectual Disabilities", has been published! Read it here: doi.org/10.1111/jar.... #publishedarticle @wileyinresearch
doi.org
‘It's Really Who They Are and What They Want’: Staff Perspectives on Supporting Autonomy for Autistic Adults With Intellectual Disabilities
Background Autonomy is a crucial component of self-determination, yet it is limited for Autistic individuals, especially those with co-occurring intellectual disabilities. We explored how profession...
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Pattern-chaser @pattern-chaser.bsky.social · 09/07/2025
To anyone who is NOT #autistic, you need to know this. A person can be an #autist AND an #arsehole, but one does not cause the other! This is true no matter what defence lawyers (or the gutter press) tell you. #Autism does not make you saint or sinner; you do that yourself. #GreggWallace #ElonMusk
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𝑀𝒶𝓎𝓇𝒶°❀⋆.ೃ࿔*:・🫧 @lepapillonblue.bsky.social · 14/05/2025
Repost if you’re still calling it the Gulf of Mexico. ✋🏽
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Kristen Bottema-Beutel @kbottemabeutel.bsky.social · 02/06/2025
With @michealsandbank.bsky.social @shanclapoint.bsky.social @jhinsonwilliams.bsky.social @yueyangshen.bsky.social Ruoxi Guo, and Tiffany Woynaroski
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Kristen Bottema-Beutel @kbottemabeutel.bsky.social · 02/06/2025
We conclude that, because of a lack of appropriate conceptualization of what constitutes "problem behavior" and poorly validated measures, we know very little about how interventions might support autistic children who engage in behavior that could be harmful to themselves or others. 4/4
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Kristen Bottema-Beutel @kbottemabeutel.bsky.social · 02/06/2025
and all but one measure mixed together behaviors that were inherently harmful (e.g., aggression) and behaviors that were nonnormative but not inherently harmful (e.g., hand flapping). 3/4
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Kristen Bottema-Beutel @kbottemabeutel.bsky.social · 02/06/2025
and only 8% of studies defined the behavior construct they targeted. For the most common "problem behavior" measures, only two were validated along six different validation dimensions in autistic children, 2/4
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Kristen Bottema-Beutel @kbottemabeutel.bsky.social · 02/06/2025
Curious about how autism intervention researchers define and measure "problem behavior"? We examined 102 intervention studies with young autistic children and found that only 1/3 of studies give a reason for targeting the behavior they aim to reduce, 1/4 acamh.onlinelibrary.wiley.com/doi/10.1111/...
acamh.onlinelibrary.wiley.com
<em>Journal of Child Psychology and Psychiatry</em> | ACAMH Pediatric Journal | Wiley Online Library
Background Some autistic children exhibit behavior that caregivers, clinicians, and researchers consider problematic. However, there is little consensus about the types of behaviors that should be t...
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Prof Peter Hotez MD PhD DSc(hon) @peterhotezmdphd.bsky.social · 26/05/2025
www.amazon.com/Science-Unde...
Preorder Science Under Siege
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Occupy Calgary 🇨🇦 @calgaryoccupy.bsky.social · 25/05/2025
~5 Manipulation Tactics Premier Danielle Smith Uses These tactics appeared in Danielle Smith's May 5th speech to Albertans.
Angela WelzAlbertans United To Stop The UCP
sSodrenopt94a9733c049if278tfh22i886f1i13utl7l809m22llct464lg  ·
5 Manipulation Tactics Premier Danielle Smith Uses
1. Victimhood Framing
She paints Alberta as a victim of Ottawa - saying billions are taken, jobs are lost, and opportunities are stolen.
> Why it's manipulative: It makes people feel attacked, even when the situation is more complex. It turns federal policies into personal betrayals, which increases anger and fear.
2. Scapegoating the Federal Government
She blames almost every problem - economy, jobs, investment, inflation - on Ottawa,
> Why it's manipulative: It simplifies complex issues and deflects attention from what her own government could be doing better. It makes one easy enemy, the feds.
3. Us vs. Them Language
She divides Canadians into good Albertans vs. out-of-touch eastern elites, freedom-loving citizens vs, interfering bureaucrats.
> Why it's manipulative: It creates tribal loyalty, making people suspicious of outsiders or those who disagree.  It makes unity look like weakness and division look like a strength.
4. Emotional Extremes
She uses strong emotional words like 'attacks', 'crippling , 'ravaged,' and 'hostile.
> Why it's manipulative: This ramps up fear and urgency, When people are scared or angry, they stop questioning - and follow the strongest voice in the room.
5. Pretending to Be the Only Reasonable Voice
She says she respects both separatists and federalists and just wants "a fair deal." She seems moderate - while planting radical ideas (like separation) as "understandable."
> Why it's manipulative: It disguises hardline rhetoric as balanced. It allows her to push extreme positions without taking full responsibility.
These tactics appeared in Danielle Smith's May 5th speech to Albertans.
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Sue Fletcher-Watson @suereviews.bsky.social · 07/05/2025
Really thrilled to be able to announce this! Writing this with Robert has been a huge honour and I can’t wait to hear what readers think of it.
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Thinking Person's Guide to Autism @thinkingautism.com · 05/05/2025
"I want parents to learn what disability advocates taught me, what I wish I had known before my son’s diagnosis: that autistic people have always been part of our societies, & are valuable human beings who deserve unqualified love, acceptance, & access to supports." www.buzzfeed.com/shannonrosa/...
buzzfeed.com
My Autistic Son Needs 24/7 Support. And That's OK.
We have a good life, because we stopped buying into mainstream notions about what happy families look like.
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MSc Psychology and Learning Disability @uoppald.bsky.social · 04/05/2025
@drstevenkapp.bsky.social's panel at International Society for Autism Research on Neurodivergence-affirming research practices for autistic people w/ high support needs illustrates relevance of neurodiversity framework for people w/ significant disabilities - an important principle of our MSc course
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Thinking Person's Guide to Autism @thinkingautism.com · 03/05/2025
Question: How can we include autistic people with high support needs who also have motor difficulties that can interfere with some forms of successful AAC use? Sutherland: Simpler methods like PECs can help. But important to acknowledge that some people don't yet have successful AAC. #INSAR2025
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Dr Aimée Fletcher (@aimee_speaks) @aimeespeaks.bsky.social · 03/05/2025
An excellent website full of Holly's excellent PhD work, presentations & publications:
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Thinking Person's Guide to Autism @thinkingautism.com · 03/05/2025
Sutherland: when they've talked to care providers, they find out via that they actually do share goals with the #neurodiversity paradigm. And then the research speaks for itself, because it's addressing those shared goals. #INSAR2025
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Dr Aimee Grant @draimeegrant.bsky.social · 03/05/2025
Completely agree with Blasko and Jaswal: Access to AAC is a human rights issue for non-speaking and semi-speaking Autistic people. #INSAR2025
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Thinking Person's Guide to Autism @thinkingautism.com · 03/05/2025
Now Q&A (though we have to leave in 5 min for #AutINSAR prep, darn it). First question: How do we overcome the manufactured divide of #ProfoundAutism? #INSAR2025
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Thinking Person's Guide to Autism @thinkingautism.com · 03/05/2025
Blasko: (using AAC in real time) I hope the questions are kind, and I have strong feelings but I am respectful [*got up to pace*] of all perspectives. #INSAR2025
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Dr Aimée Fletcher (@aimee_speaks) @aimeespeaks.bsky.social · 03/05/2025
Blasko using AAC: "I hope the questions are kind, and I habe strong feelings, and I am respectful of all perspectives." #INSAR2025
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Dr Aimée Fletcher (@aimee_speaks) @aimeespeaks.bsky.social · 03/05/2025
Jaswal and Blasko highlight the importance of ensuring that no autistic person with high support needs is left behind in research. THIS is the discussion that I would have expected in a SIG about research priorities for autistic people with HSN. We need more authentic representation. #INSAR2025
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Dr Aimée Fletcher (@aimee_speaks) @aimeespeaks.bsky.social · 03/05/2025
Chat GPT state that participation in research involves: - communication skills - critical thinking - collaboration - self-advocacy Therefore, autistic people with HSN need to have formal & informal opportunities to learn & develop these skills to address the gatekeeping that exists. #INSAR2025
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Dr Aimée Fletcher (@aimee_speaks) @aimeespeaks.bsky.social · 03/05/2025
Jaswal highlights the potential harm that not including autistic people with HSN can (and does) have. Blasko & Jaswal highlight that there is a need for going further than accommodations, but true involvement is providing opportunities to enable HSN autistic people to participate. #INSAR2025
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Dr Aimée Fletcher (@aimee_speaks) @aimeespeaks.bsky.social · 03/05/2025
Now hearing from Grant Blasko & Vikram Jaswal, who are the discussants for this panel. Opening the discussion by highlighting why it is important that there is a panel on neuroaffirming and inclusive research practices for autistic people with HSN. #INSAR2025
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Thinking Person's Guide to Autism @thinkingautism.com · 03/05/2025
Blasko and Jaswal: To truly participate in research, autistic people with HSNs, we need to support their: Communication skills Critical thinking Collaboration Self-advocacy #INSAR2025
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Thinking Person's Guide to Autism @thinkingautism.com · 03/05/2025
Blasko and Jaswal: Important to presume competence, have intentional and ongoing conversations about power sharing, and ensure that accessibility is "baked in" to all research efforts involving autistic people with the highest support needs. #INSAR2025
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Thinking Person's Guide to Autism @thinkingautism.com · 03/05/2025
Blasko and Jaswal: Questions & commentary: How do we make CBPR (community based participatory research) possible for autistic people with the highest support needs? Because it's the right thing to do morally, ethically, and scientifically. #INSAR2025
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Thinking Person's Guide to Autism @thinkingautism.com · 03/05/2025
Blasko and Jaswal: Why is this panel happening? Well, some people here don't understand how autistic with HSNs can participate, and don't understand the #neurodiversity paradigm. Previous panelists talked about how to include autistic people with HSNs successfully in research. #INSAR2025
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Thinking Person's Guide to Autism @thinkingautism.com · 03/05/2025
Now: AAC user and UW college student Grant Blasko and Dr. Vikram Jaswal. Blasko, via AAC: He is trying to broaden his understanding of complex issues, grateful to be included and for support of fellow panel members. Jaswal works at UVA on communication in folks like Blasko. #INSAR2025
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Thinking Person's Guide to Autism @thinkingautism.com · 03/05/2025
Blasko and Jaswal: Many autistic people with the highest support needs have not been provided with appropriate AAC (augmentative and alternative communication). #INSAR2025
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