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Autihub.org

@autihub.org

2.1K followers 275 following 277 posts

AutiHub: an independent platform documenting autism research, autistic scholarship, scientific citations, participatory research, and the living history of autism science. autihub.org #AutismResearch #AutisticScholars #Autism #ActuallyAutistic

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Autihub.org @autihub.org · 11/09/2026

New on AutiHub: a search tool for exploring and analysing 15,000 public posts by Michelle Dawson (@autismcrisis.bsky.social) on autism science and related debates, across Twitter/X (2009–2023) and Bluesky (2023–present). autihub.org/en/michelle-...

Michelle Dawson posts analysis on Twitter/X and Bluesky (@autismcrisis)

This project documents public posts by Michelle Dawson (@autismcrisis) on autism science, scientific publications, and related debates. Twitter/X is treat…

100

Autihub.org @autihub.org · 01/09/2026

Launching the Autistic Scholars Project on AutiHub: a free public database of academic publications authored/co-authored by autistic people. 354 autistic authors, 1,799 publications — with daily monitoring for new publications by included authors. autihub.org/en/autistic-...

Autistic Scholars Project

The Autistic Scholars Project is a public, freely accessible database that indexes academic publications authored or co-authored by at least one autistic …

Autihub.org @autihub.org · 21/08/2026

Autidacts.org is becoming **Autihub.org**, opening the project to a broader range of initiatives focused on the participation and representation of autistic people in autism research and knowledge production. More information in the coming days: autihub.org #AutismResearch #ActuallyAutistic

AutiHub brings together citizen-led, open projects focused on autistic participation and representation in autism knowledge production.The site develops t…

Autihub.org @autihub.org · 15/03/2026

“The [EURORDIS] award was granted in recognition of the commitment of AIMS-2-TRIALS leaders to involving autistic people [...] as equal partners in this initiative.” “Equal partners.” Assertions are not evidence. This should be studied empirically. www.aims-2-trials.eu/2026/03/10/r...

aims-2-trials.eu

Roche and AIMS-2-TRIALS Receives EURORDIS Black Pearl Award 2026

Autihub.org @autihub.org · 21/09/2025

Editorial whose lead author has received AIMS-2-TRIALS funding mentions participatory research once—under “Shaping the future.” In 2025, that’s insufficient: participatory methods must be embedded in current studies, especially on interventions & therapeutic outcomes. doi.org/10.3389/frch...

Frontiers | Editorial: Advancing interventions and therapeutic outcomes for autistic youth: a multidisciplinary perspective

Current status of the field Autistic people and their families experience barriers in access to health and social care services (Mendez et al., 2023). Despit...

Autihub.org @autihub.org · 20/09/2025

1/6 The citizen-led project Autistic Participatory Metrics is officially underway — and its viability depends on volunteer participation — we need you. github.com/cedric-detie...

GitHub - cedric-detienne/Autistic-participatory-metrics: Empirical tools and methods to analyse participatory approaches in autism research

Empirical tools and methods to analyse participatory approaches in autism research - cedric-detienne/Autistic-participatory-metrics

Autihub.org @autihub.org · 19/05/2025

📢 Call for contributors Autistic Participatory Metrics — A new citizen-led initiative to assess to what extent autistic participation is included in autism research projects. Looking for autistic people, researchers, coders, and allies to get involved. #Autism #OpenScience #ParticipatoryResearch 1/4

Autihub.org @autihub.org · 25/04/2025

Regarding the "AIMS-2-TRIALS Autism Research": "Neurodivergent researchers were found to be under-represented in senior and clinical roles. The significant association between neuro-identity and career reinforce the notion that career progression may be influenced by neurodivergent identity."

Autihub.org @autihub.org · 16/04/2025

"approaches focused on high-quality clinical evidence (e.g. defined as meta-analysis of randomized controlled trials) may conflict with more pragmatic understandings of relevant knowledge including clinical expertise, patient experiences, and real-world data" ojrd.biomedcentral.com/articles/10....

ojrd.biomedcentral.com

‘We are the engine’: a focus group study on clinical practice guideline development with European patient advocates for rare congenital malformations and/or intellectual disability - Orphanet Journal ...

Background Individuals living with rare congenital malformations and/or intellectual disability often face challenges in accessing appropriate healthcare. Clinical practice guidelines (CPGs) may serve...

Autihub.org @autihub.org · 13/04/2025

"Non-speaking #autistic people should be involved in the design and conduct of research in which they are included as participants." Interactive bibliography (20% of references include at least one openly autistic author): autidacts.org/en/pg-ref/1601

Conceptualizing and describing autistic language: Moving on from ‘verbal’, ‘minimally verbal’ and ‘nonverbal’

Autihub.org @autihub.org · 12/04/2025

"organisations do not always explicitly state the bounds of the representational role in #autism advocacy" pubmed.ncbi.nlm.nih.gov/40130705/

pubmed.ncbi.nlm.nih.gov

Who Tweets for the autistic community? A natural language processing-driven investigation - PubMed

The formation of autism advocacy organisations led by family members of autistic individuals led to intense criticism from some parts of the autistic community. In response to what was perceived as a ...

Reposted by Autihub.org

Dr Aimee Grant @draimeegrant.bsky.social · 10/04/2025

New article out on @theconversation.com on why many Autistic adults don't like puzzle pieces symbols being used to represent us: theconversation.com/why-the-auti... #Autism #ActuallyAutistic

theconversation.com

Why the autism jigsaw puzzle piece is such a problematic symbol

To many autistic people, the puzzle piece represents stigma, exclusion and a harmful push to make them conform.

Autihub.org @autihub.org · 11/04/2025

A new review explores 'mirror neurons' approaches in neurorehabilitation for #autistic people. But imagine if autistic people were the majority — would we target non-autistic neurology for **rehabilitation** ? #Autism #Research onlinelibrary.wiley.com/doi/full/10....

onlinelibrary.wiley.com

What Else Is Happening to the Mirror Neurons?—A Bibliometric Analysis of Mirror Neuron Research Trends and Future Directions (1996–2024)

We conducted a bibliometric analysis of mirror neuron research to examine global publication trends, methodological advancements, and emerging applications. Our findings highlight robust internationa...

Autihub.org @autihub.org · 29/03/2025

"parent satisfaction was highly reported in PEERS studies (...), suggesting the undoubtedly success of intervention in meeting the needs of parents raising an adolescent with ASD" link.springer.com/article/10.1... Autistic adolescents’ satisfaction was not reported. And what about harm analysis?

link.springer.com

Effects of social skills training on social responsiveness of people with Autism spectrum disorder: a systematic review with meta-analysis - European Child & Adolescent Psychiatry

Social skills training (SST) is a widely proposed intervention to address social impairments in autism spectrum disorder (ASD). SST employs a series of activities aiming to enhance pro-social behavior...

Autihub.org @autihub.org · 29/03/2025

"Future research should explore whether restricted interests themselves function as risk factors or if they are markers of broader emotional dysregulation associated with depression and, in particular, with suicidal ideation." www.sciencedirect.com/science/arti... Hear autistics, expand ideas...

sciencedirect.com

Depressive symptomatology in autism and intellectual disability: A network analysis

Depression is a very common psychopathology in the ASD population. Despite the common comorbidity this association is not well understood. To understa…

Autihub.org @autihub.org · 29/03/2025

A study published on March 26, 2025 concludes that: "(...) repetitive behaviours of autistic students facilitate their uptake of social communication opportunities within online multiplayer gaming contexts." nasenjournals.onlinelibrary.wiley.com/doi/10.1111/...

nasenjournals.onlinelibrary.wiley.com

Multiplayer gaming and autism: Social communication through repetitive behaviours

The popularity of online multiplayer gaming among primary-school students, including autistic students, has rapidly increased over the past decade. Social characteristics and interactions of autistic...

Autihub.org @autihub.org · 29/03/2025

A study on “What Factors Have Been the Most Helpful and Harmful and When?” link.springer.com/article/10.1... — conducted without any autistic involvement at any level (design, coding, interpretation…). 🤷‍♂️ #NothingAboutUsWithoutUs

link.springer.com

What Factors Have Been the Most Helpful and Harmful and When? Identifying Key Impacts on Psychosocial Development According to Autistic Adults and Caregivers - Journal of Autism and Developmental Diso...

Few studies have asked autistic adults and caregivers directly about what has most positively and negatively impacted their lives. This study sought to: (a) identify positive and negative factors expe...

Reposted by Autihub.org

Michelle Dawson @autismcrisis.bsky.social · 03/03/2025

"individuals with lived experience might express opposing views" "dissensus should be actively encouraged and nurtured, not only among researchers with lived experience, but also as an asset among all partners involved in science" www.sciencedirect.com/science/arti... on dissensus, autism-relevant

sciencedirect.com

Embracing dissensus in lived experience research: the power of conflicting experiential knowledge

Lived experience is a crucial component in the development of innovative interventions and services in mental health care. To unlock the full potentia…

Autihub.org @autihub.org · 27/12/2024

1/2 🌟 New on Autidacts.org: You can now see the proportion of autistic authors cited in the bibliographies of studies shared on the site! The data will grow richer as more authors are added, but it’s a great start! 📚✨ For example: autidacts.org/en/pg-ref/32

‘Building our own house’ as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production

Autihub.org @autihub.org · 13/12/2024

On December 14, 2009 — 15 years ago — autistic researcher Scott Michael Robertson urged: "Shifting Research and Professional Focuses onto Real-Life Challenges [of Autistic People]". ** Thank you, Scott Michael Robertson ** More information: autidacts.org/en/pg-ref/1298 #AutRes #Neurodiversity

Neurodiversity, quality of life, and autistic adults: shifting research and professional focuses onto real-life challenges

Autihub.org @autihub.org · 10/12/2024

"The discomfort with status hierarchies discussed in #autistic writing has been ignored by researchers." (C. Caldwell-Harris & A. Schwartz, 2024) More details on this reference here 👇 autidacts.org/en/pg-ref/1296 #AutRes

Listening to autistic voices regarding competing for social status

Autihub.org @autihub.org · 10/12/2024

"Listening to and reading about the frequency of sexual and gender-based violence against autistic women, I came to realise that there may be a need for trauma evaluation in autism diagnostic protocols and trauma-informed support." (K. Callander, 2023). More details: 👇 autidacts.org/en/pg-ref/1286

Late identification and redefining the traumatised self following sexual violence

Autihub.org @autihub.org · 09/12/2024

"Educators, and universities at large, therefore have to take part of the responsibility if academic practices effectively (even if unintentionally) exclude students with #autism who have a different structure of motivation but are otherwise good students." (Boven, 2018) autidacts.org/en/pg-ref/1275

Special interests and inclusive academic learning: an autistic perspective

Autihub.org @autihub.org · 09/12/2024

"Similar to autistic doctors and artistic performers, [autistic veterinary surgeons] frequently cited a lack of neurodiversity awareness among colleagues and microaggressions (...) or discriminatory behaviour (...)." (K. Pickles et al.) More details: 👇 autidacts.org/en/pg-ref/1268 #AutRes

‘Part of the team as opposed to watching from the outside’: Critical incident study of autistic veterinary surgeons’ workdays

Autihub.org @autihub.org · 08/12/2024

From the abstract, two issues arise: one terminological—"neurodiverse populations" instead of "neurodivergent"; and the other ethical—referring to non-autistic individuals as a "healthy sample", really? www.nature.com/articles/s41...

Social attention in the wild - fixations to the eyes and autistic traits during a naturalistic interaction in a healthy sample - Scientific Reports

Scientific Reports - Social attention in the wild - fixations to the eyes and autistic traits during a naturalistic interaction in a healthy sample

Autihub.org @autihub.org · 08/12/2024

Nearly 15 years ago: "We hope that our work not only improves the lives of autistic adults, but also reinforces the idea that autism research should be conducted with, not just about, autistic people." (C. Nicolaidis et al., 2011). More : 👇 autidacts.org/en/pg-ref/1253 #AutRes #ParticipatoryResearch

Autihub.org @autihub.org · 07/12/2024

"researchers at all stages of their careers reported experiencing considerable challenges in incorporating meaningful participatory research practices within their work." (H. Pickard et al., 2022). Interactive bibliography here 👇 autidacts.org/en/pg-ref/1199 #AutRes #ParticipativeResearch

Participatory autism research: Early career and established researchers' views and experiences

Autihub.org @autihub.org · 03/12/2024

"Participants’ narratives around disclosure highlighted the unique challenges faced by #autistic mothers, such as concerns over being perceived as a 'fit parent' or even 'having their children removed'." (Ashton Ferguson et al., nov. 2024) More details here 👇 autidacts.org/en/pg-ref/1192

'It has shown me how much i am capable of': An exploration of autistic burnout experiences in motherhood

Autihub.org @autihub.org · 03/12/2024

"#Autistic individuals may feel more comfortable consenting to open-access use of their data if guidelines gave individuals the option to flag which organisation their data does/does not contribute towards (...)." (M. Sader et al., Nov 2024) More details here 👇 autidacts.org/en/pg-ref/1188 #AutRes

Ethical complexities and concerns surrounding magnetic resonance imaging and the open-access scientific framework in autism research

Autihub.org @autihub.org · 01/12/2024

"In this review, we highlighted that the concept of a gene for #autism is obviously a reductionist view and a source of confusion and exclusion." (C. Leblond et al., Nov 2024). Explore the interactive bibliography here: 👇 autidacts.org/en/pg-ref/1154 #AutRes #Genetics #Science

A genetic bridge between medicine and neurodiversity for autism

Autihub.org @autihub.org · 30/11/2024

"we call on universities and funding bodies to increase the scope for flexibility in PhD projects and the available funding for community involvement" (Elisa Genovesi et al., Nov 2024). More details on this reference here 👇 autidacts.org/en/pg-ref/1110 #AutRes

Community involvement in PhD students’ autism research projects: Challenges and opportunities

Reposted by Autihub.org

Jennifer Macko @sagewell.bsky.social · 22/11/2024

I’d love to see a language and research shift from "administering evidence-based intervention" to "using identifying affirming, socially validated practices" with social validation happening through community led participatory research. #AutRes #AcademicSky

Reposted by Autihub.org

Centre for Research in Autism and Education @craeioe.bsky.social · 20/11/2024

It is possible to make custom feeds here, so here's one for autism researchers. It takes the starter packs from the wonderful @lauramaycrane.bsky.social and tries to pull out alerts for new papers to keep in one place 🤞 bsky.app/profile/did:...

Autihub.org @autihub.org · 21/11/2024

"As #autistic people have moved into #autism research, standard ideas of its goals have been criticised, especially those tied to idealised notions of normalcy." (D. Milton, 2020). More details here 👇 autidacts.org/en/pg-ref/1030 #AutRes

From tokenism to full participation: autistic involvement in research and the delivery of services

Autihub.org @autihub.org · 21/11/2024

"Adopting a co-designed approach to discovery research can inform allies of the autistic community on better support for sensory processing differences, (..) and enable autistic people to participate with the world as they prefer." (Bec Poulsen et al., 2024) More infos 👇 autidacts.org/en/pg-ref/1038

How auditory processing influences the autistic profile: A review

Autihub.org @autihub.org · 19/11/2024

"Participants rejected the idea that suffering was inherent to autism (...). Instead, participants described autistic suffering as a product of not being neurotypical in a world that demands it, resulting in isolation, discrimination and victimisation." (M.Botha, 2022). autidacts.org/en/pg-ref/1010

'Autism is me': an investigation of how autistic individuals make sense of autism and stigma

Reposted by Autihub.org

Aut2Ask 🦦 @aut2ask.bsky.social · 19/11/2024

🧵Autistic Representation in Autism Research Historically, autism research has been conducted ON autistic people rather than with autistic people. In recent years, there has been an increase in research conducted by autistics for autistics. #autres #autsky #autism #research #academia #phd #phdsky

Autistic
Representation in Autism Research

"We understand the values and the traditions of our disciplines and we understand the lived experience of being autistic"
- Heather M. Brown

Historically, autism research has been conducted ON autistic people rather than WITH autistic people

In recent years, there has been an increase in research conducted by autistics for autistics
@THEPSYCHOBABBLEBCBAS

Autihub.org @autihub.org · 18/11/2024

"Although the autistic participants in our study did not request a space without nonautistic people, they requested a space without health professionals (service providers), who are almost always nonautistic." (A. Valderrama et al. 2022). More details 👇 autidacts.org/en/pg-ref/1023 #AutRes

For autistic persons by autistic persons: acceptability of a structured peer support service according to key stakeholders

Reposted by Autihub.org

Michelle Dawson @autismcrisis.bsky.social · 18/11/2024

Registered: in autism intervention research, "What are autism researchers’ rationales for targeting the social skills of autistic adolescents..." & "What autistic communities’ perspectives and priorities, if at all, are taken into account" etc www.crd.york.ac.uk/prospero/dis... systematic review

The Centre for Reviews and Dissemination is a department of the University of York and is part of the National Institute for Health Research. CRD undertakes high quality systematic reviews that evaluate the effects of health and social care interventions and the delivery and organisation of health care.

Autihub.org @autihub.org · 18/11/2024

"Although many entrenched barriers to success for autistic students and staff remain, literature highlights some opportunities for optimism, and the powerful role that autistic advocates can play." (C. Horlin et al., Nov 2024). More details 👇 autidacts.org/en/pg-ref/1003 #AutismAdvocacy #Inclusion

Thriving… or just surviving? Autistic journeys in higher education

Autihub.org @autihub.org · 18/11/2024

Seeking support to preserve Michelle Dawson's 15-year impact on autism research. Help us export her 17.7k posts from X/Twitter into an open format for future access. Read more here: bsky.app/profile/auti... #AutRes #Research #MichelleDawson #Autism #AutismHistory #ActuallyAutistic #Autistic

Autihub.org @autihub.org · 16/11/2024

Call to @autismcrisis.bsky.social and the BSky community: For 15 years, Michelle Dawson has illuminated autism research through her 17.7k posts on Twitter/X. We make a public appeal to Michelle Dawson and the community: who can help make this work accessible and usable in a lasting format? 1/5

Reposted by Autihub.org

Autihub.org @autihub.org · 14/11/2024

"This review (...) centralizes the voices of autistic women and girls (...) on school barriers [, contrasting with literature focused] on the perceptions (...) of professionals without the inclusion of the autistic individuals themselves." (K. Urbaniak et al., 2024). autidacts.org/en/pg-ref/935

Disability barriers autistic girls face in secondary education: A systematic review

Reposted by Autihub.org

The Autism Books by Autistic Authors Project @autisticbooks.bsky.social · 16/11/2024

Autistic Authors and Illustrators Starter Pack is here! If you're an Autistic author or illustrator and would like to be included, let me know! #AutisticAuthor #AutisticIllustrator #Autistic #ActuallyAutistic go.bsky.app/86ZkEZE

Autihub.org @autihub.org · 15/11/2024

"For autism research to be of maximum benefit to autistic people it should at least be participatory but ideally it should be autistic-led, as research led by autistics will almost always have the potential to be emancipatory (...)" (Chown et al., 2023). More info 👇 autidacts.org/en/pg-ref/720

Autism community research priorities: The potential of future research to benefit autistics

Autihub.org @autihub.org · 14/11/2024

"This review (...) centralizes the voices of autistic women and girls (...) on school barriers [, contrasting with literature focused] on the perceptions (...) of professionals without the inclusion of the autistic individuals themselves." (K. Urbaniak et al., 2024). autidacts.org/en/pg-ref/935

Disability barriers autistic girls face in secondary education: A systematic review

Reposted by Autihub.org

Stimpunks Foundation @stimpunks.org · 14/11/2024

Getting the R-word out of circulation - especially in health, education, and labor policy (see Rosa's Law) - was a monumental undertaking. Don't let it come back. Challenge its use.

Reposted by Autihub.org

Autihub.org @autihub.org · 11/11/2024

'it may (...) be equally important to educate others to be more aware and accepting of social presentation differences, rather than trying to change the many (...) factors of self-presentation that mark the expressions of individuals with ASD as atypical'(S. Sasson,2017). autidacts.org/en/pg-ref/883

Neurotypical peers are less willing to interact with those with autism based on thin slice judgments

Autihub.org @autihub.org · 11/11/2024

"Ecological model research often points towards the need for modification of environments in which autistic people live, rather than placing all the responsibility on autistic individuals to change" (W. Mandy, 2023). More details on this reference here 👇 autidacts.org/en/pg-ref/884

The old and the new way of understanding autistic lives: Reflections on the life of Donald Triplett, the first person diagnosed as autistic

Autihub.org @autihub.org · 11/11/2024

'it may (...) be equally important to educate others to be more aware and accepting of social presentation differences, rather than trying to change the many (...) factors of self-presentation that mark the expressions of individuals with ASD as atypical'(S. Sasson,2017). autidacts.org/en/pg-ref/883

Neurotypical peers are less willing to interact with those with autism based on thin slice judgments