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Patty Reboli Spears

@paspears88.bsky.social
585 followers 607 following 11 posts

Cancer Research Patient Advocate at UNC Lineberger CCC. Breast & Liver cancer, clinical trials, PROMs, #SciComm

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Reposted by Patty Reboli Spears
ewsomm.bsky.social @ewsomm.bsky.social · 20/05/2025
Great discussion with @rickbuck.bsky.social & all @theaacr.bsky.social is doing to unite cancer centers across the country to advocate for cancer research. #naccdopamn2025
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Reposted by Patty Reboli Spears
ewsomm.bsky.social @ewsomm.bsky.social · 09/09/2025
Dr. Ribisl gives one heck of a presentation, even for this non-scientist 😉 Fascinating research around smoking cessation & advertising + cancer control efforts. @unclineberger.bsky.social
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ewsomm.bsky.social @ewsomm.bsky.social · 09/09/2025
We love Shelley Earp, MD! 🩵 @unclineberger.bsky.social
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ewsomm.bsky.social @ewsomm.bsky.social · 09/09/2025
Kicking off 50 years of @unclineberger.bsky.social with @robertferrismdphd.bsky.social & the 48th Annual Scientific Symposium… looking forward to hearing the amazing reflections on #50years of #cancerresearch!
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Patty Reboli Spears @paspears88.bsky.social · 03/08/2025
Patient/community engagement can make a difference. Building trust and fostering communication directly with researchers matters. I am excited about this new fund to foster innovative cancer research! #UNCLinenerger #bcsm #lcsm #cancerresearch unchealthfoundation.org/gifts-at-wor...
unchealthfoundation.org
A Patient-Philanthropist's Vision for New Cancer Research - UNC Health Foundation
Philanthropy has always played a major role in research at UNC, but Barbara Dean has taken this one step further by being an active participant in supporting those research efforts. Dean’s experience ...
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UNC Lineberger Comprehensive Cancer Center @unclineberger.bsky.social · 27/04/2025
Patty Spears is set to chair the #AACR25 Patient Advocate Poster Symposium: 3 – 4:30 p.m. CT, Room S402. unclineberger.org/news/unc-lin... @paspears88.bsky.social @theaacr.bsky.social
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Patty Reboli Spears @paspears88.bsky.social · 26/04/2025
Landed in Chicago! On my way to @theaacr.bsky.social #AACR25 meeting as part of the #AACRSSP25 program! Looking forward to networking and learning about cancer research… @unclineberger.bsky.social #patientadvocacy @arosen380.bsky.social @jillfeldman4.bsky.social @bobriter.bsky.social
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Patty Reboli Spears @paspears88.bsky.social · 21/04/2025
New study from the Stanford Mind & Body Lab to better understand and support the health and well-being of people recently diagnosed with cancer. You can take part from home. For more info: www.embracestudy.org @stanford-cancer.bsky.social #bcsm #lcsm #mmsm #pcsm #crcsm #cancerwellbeing
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Patty Reboli Spears @paspears88.bsky.social · 20/04/2025
So excited about this session! Hear about patient and community engagement - @bobriter @e_paskett @EugeneManley CJ Williams, A. Co-Dyre, R. Prosser, B.Salhia, A. Saghian #patientengagement #AACRSSP #AACR25 @unclineberger.bsky.social @theaacr.bsky.social www.abstractsonline.com/pp8/#!/20273...
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Alex Sundermann, DrPH @sundermannaj.bsky.social · 26/03/2025
NIH cutting COVID research because “the pandemic is over” is like grounding all weather satellites because it’s sunny out today ☀️ We need to study pathogens before they’re emergencies ...It's not sunny in Pittsburgh today #PublicHealth
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American Association for Cancer Research (AACR) @theaacr.bsky.social · 26/03/2025
At today's Congressional Forum, Dr. Larry Saltzman testified that NIH-funded research was crucial to his 15-year survival with chronic lymphocytic leukemia. "For patients waiting on the next treatment, time is everything. These cuts could rob us of the time we need most."
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Jacek Debiec, MD, PhD, DPhil 🌎 🧠 @drjacekdebiec.bsky.social · 26/03/2025
"Grant termination letters went out last night to principal investigators of 29 awards made by the National Institute of Allergy and Infectious Diseases.., including 9 grants that were part of a program hoping to deliver antiviral drugs to prevent future pandemics." www.science.org/content/arti...
science.org
Saying ‘pandemic is over,’ NIH starts cutting COVID-19 research
Grant terminations halt research on improving vaccinations and preventing future pandemics
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Patty Reboli Spears @paspears88.bsky.social · 25/03/2025
Heads up: [Wed, March 26th at 2:30 pm (ET)] Congressional Forum on Capitol Hill to discuss the devastating cuts at NIH that are jeopardizing cures for Alzheimer’s Disease and many cancers. press release www.baldwin.senate.gov/news/press-r... Livestream at youtube.com/live/JofqSdWmhbM
baldwin.senate.gov
NEW: Baldwin, Welch Announce Forum on Devastating Trump Cuts at NIH Jeopardizing Cures for Alzheimer’s Disease, Cancers | U.S. Senator Tammy Baldwin of Wisconsin
WASHINGTON, D.C. – Today, U.S. Senators Tammy Baldwin (D-WI) and Peter Welch (D-VT) announced that...
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Reposted by Patty Reboli Spears
Tatiana Prowell, MD @tmprowell.bsky.social · 21/03/2025
#MedSky #NeuroSky Wonderful @nytimes.com op ed by @holdenthorp.bsky.social about his diagnosis of #autism spectrum disorder in midlife & his take on why the incidence of the condition appears to be increasing. www.nytimes.com/2025/03/20/o...
nytimes.com
Opinion | Sorry, R.F.K.: There Is No Autism Mystery (Gift Article)
Greater awareness, not vaccines, has driven an increase in diagnoses.
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OncoDaily @oncodaily.bsky.social · 08/03/2025
Fighting for Better Access to Genetic Testing - Rob Winn oncodaily.com/blog/252443r... #Cancer #Medicine #Health #FightAgainstCancer #Oncology #OncoDaily
oncodaily.com
Rob Winn: Fighting for Better Access to Genetic Testing - OncoDaily
Rob Winn: Fighting for Better Access to Genetic Testing / AACI, Association of American Cancer Institutes, cancer, fight against cancer, genetic testing,
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BK. Titanji @boghuma.bsky.social · 02/03/2025
Why basic research matters and defunding and firing scientists will cost us. Many life-saving breakthroughs started as curiosity-driven science with no clear application. Yet, these discoveries once seen as obscure ended up transforming medicine. Here’s why funding basic science is essential. A 🧵👇
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Stand Up for Science! @standupforscience.net · 01/03/2025
"When you hear about patients surviving stage 4 cancer because of immunotherapy, that was based on NIH research over many decades. When you hear about sickle cell disease being cured because of CRISPR gene editing, that was built on years of research supported by NIH" apnews.com/article/nih-...
apnews.com
Renowned geneticist Francis Collins retires from NIH, urging 'respect' for embattled workers
Dr. Francis Collins, a renowned geneticist, and former longtime director of the National Institutes of Health, is retiring from the government agency and urging “respect” for its embattled workers.
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BWJones @bwjones.bsky.social · 27/02/2025
By @katherinejwu.com "The NIH... supported 99 percent of the drugs approved in the U.S. from 2010 to 2019. The agency has had a hand in “nearly all of our major medical breakthroughs over the past several decades,” The NIH is in a struggle for its (and our) lives. This is existential to America:
theatlantic.com
Inside the Collapse at NIH
Administration officials pressured NIH to avoid clear advice from the agency’s own lawyers to restart grant funding now.
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Reposted by Patty Reboli Spears
Tatiana Prowell, MD @tmprowell.bsky.social · 27/02/2025
Don’t give up Don’t give up Don’t give up Don’t give up Don’t give up Don’t give up Don’t give up Don’t give up Don’t give up You can do it. Don’t give up.
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NPR @npr.org · 22/02/2025
The National Institutes of Health had to stop considering new grant applications, delaying funding for research into diseases ranging from heart disease and cancer to Alzheimer's and allergies.
npr.org
NIH funding freeze stalls applications on $1.5 billion in medical research funds
The National Institutes of Health had to stop considering new grant applications, delaying funding for research into diseases ranging from heart disease and cancer to Alzheimer's and allergies.
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Scott Delaney @scott-delaney.bsky.social · 21/02/2025
NIH indirects case update: Hearing ongoing now, and I'll try to live tweet some notable exchanges. Prior to more detailed arguments, Judge Kelley starts off with a few point questions to both sides: (I'm paraphrasing here)
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Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · 21/02/2025
"the silencing of science and health-related communications through suppression or erasure of information, and the corresponding silence by many in the fields of biomedicine and public health, deserve special consideration." "The free exchange of ideas is essential to scientific progress" @jama.com
jamanetwork.com
Reaffirming the JAMA Network Commitment to the Health of Patients and the Public
In the first month of the new administration responsible for leading the US, the executive branch has issued a flurry of orders, including ones associated with the dismissal or resignation of tens of ...
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@doublewhammied @doublewhammied.bsky.social · 20/02/2025
Let's do one in #Seattle !! 😎 Paging @uwmedicine.bsky.social @fredhutch.bsky.social #scienceforall
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American Association for Cancer Research (AACR) @theaacr.bsky.social · 18/02/2025
AACR urges Congress to reaffirm its long history of steadfast and bipartisan support for medical research by ensuring that NIH has all of the resources needed to advance its lifesaving mission to prevent, diagnose, and treat cancer and other diseases: AACR.org/NIH
aacr.org
AACR Legislative Action Center
Directly contact your elected officials about the importance of cancer research, the need for continued funding and the latest lifesaving breakthroughs. In the United States, you can do so by sending ...
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Reposted by Patty Reboli Spears
Eric Topol @erictopol.bsky.social · 11/02/2025
A Direct Hit, by @holdenthorp.bsky.social @science.org www.science.org/doi/full/10.... "This is a moment to unite."
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Eric Topol @erictopol.bsky.social · 08/02/2025
It's not "Breaking News" now, since it was announced by NIH yesterday. But it is breaking....... washingtonpost.com/health/2025/...
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Senator Patty Murray @murray.senate.gov · 08/02/2025
This is what amounts to an ILLEGAL & indiscriminate funding cut for research centers everywhere. It will mean shuttering labs across the country, layoffs in red & blue states, and derailing lifesaving research on everything from cancer to opioid addiction. We all need to speak out to save lives.
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Carl T. Bergstrom @carlbergstrom.com · 08/02/2025
1. Today the NIH director issued a new directive slashing overhead rates to 15%. I want to provide some context on what that means and why it matters. grants.nih.gov/grants/guide...
grants.nih.gov
NOT-OD-25-068: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost Rates
NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost Rates NOT-OD-25-068. OD
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Tatiana Prowell, MD @tmprowell.bsky.social · 01/02/2025
Happy #BlackHistoryMonth! Follow these #MedSky leaders among us: go.bsky.app/3wc2Q3G
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Janice Cowden @janicetnbcmets.bsky.social · 31/01/2025
THIS‼️ 🔺brain mets occur in 15 - 30% of MBC pts; ⬆️ in #TNBC & #HER2+ 🔺delayed MRI=⬆️ adv disease, req. ⬆️WBR & ⬆️ dx LMD 🔺earlier det=earlier intervention = better outcomes for pts ”.. maybe we should be routinely performing brain MRIs in those patients”💡 #bcsm #BCBM www.medpagetoday.com/hematologyon...
medpagetoday.com
Time to Reconsider MRI to Detect Asymptomatic Brain Mets in Breast Cancer?
Initial MRI showed asymptomatic brain lesions in 14% of patients, increasing to 25% at 6 months
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Reposted by Patty Reboli Spears
Esther Choo @choo.bsky.social · 24/01/2025
An explainer about how health research funding happens and why this NIH funding cycle shutdown matters: www.msnbc.com/opinion/msnb...
msnbc.com
Opinion | I’m a health researcher. NIH’s pause on research grants could have a devastating cost.
This is a potentially devastating event — not just for the scientific community, but for all Americans.
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NPR @npr.org · 25/01/2025
A Food and Drug Administration project to promote diversity in clinical studies of cancer treatments was removed from the agency's website, as the Trump administration halts DEI initiatives.
npr.org
The FDA pulls key DEI initiative for cancer studies from its website
A Food and Drug Administration project to promote diversity in clinical studies of cancer treatments was removed from the agency's website, as the Trump administration halts DEI initiatives.
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@doublewhammied @doublewhammied.bsky.social · 25/01/2025
"'This isn't just diversity 4 the sake of political correctness. This is diversity cuz it's nec 4 scientific reasons," said one researcher. Studies of new therapies can't tell scientists how they'll work in the real world if the study ..." 1/2 #MedSky #CanSky #IDSky #DEI www.npr.org/sections/sho...
npr.org
The FDA pulls key DEI initiative for cancer studies from its website
A Food and Drug Administration project to promote diversity in clinical studies of cancer treatments was removed from the agency's website, as the Trump administration halts DEI initiatives.
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Daniel P. Moriarity @dpmoriarity.bsky.social · 22/01/2025
If you are ready to advocate to your representatives (or friends and families) about the economic value of NIH funded research, you can check your state at www.unitedformedicalresearch.org/nih-in-your-...
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Seth Cotlar @sethcotlar.bsky.social · 21/01/2025
If you watch only one short video today, make it this one. Remarkable bravery, and the looks on the various faces could be material for a dissertation on gender, the family, and authoritarianism. youtu.be/gVInX42IQD8?...
youtu.be
Bishop Mariann Edgar Budde appeals to President Trump to have mercy upon immigrants and minorities
YouTube video by ONEST NETWORK
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Julie Gralow @jrgralow.bsky.social · 18/01/2025
Thanks to the patient advocates who serve on our @ascocancer.bsky.social CDK study advisory group and data safety monitoring committee. @janicetnbcmets.bsky.social @paspears88.bsky.social connection.asco.org/do/empowerin...
connection.asco.org
Empowering Patients: ASCO’s Inclusive Approach to Clinical Trials
ASCO's CDK4/6 Inhibitor Dosing Knowledge (CDK) Study prioritizes patient advocacy and engagement to improve outcomes and quality of life for individuals with cancer.
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Jame Abraham, MD, FACP @jameabraham.bsky.social · 12/01/2025
Impressive list of progress made by science and cancer research ! www.linkedin.com/pulse/year-c... @oncoalert.bsky.social
linkedin.com
The year in cancer: 24 advances in 2024
By W. Kimryn Rathmell Director, National Cancer Institute Dr.
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Kelly Shanahan @stage4kelly.bsky.social · 11/01/2025
Thank you @ascocancer.bsky.social for devoting an entire issue of JCO OP to the topic of #FinancialToxicity and thank you to @fumikochino.bsky.social @ryannipp.bsky.social for inviting me to 🖊️ a piece for this, on my experience with financial toxicity as someone with privilege and savings.
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The National Breast Cancer Coalition @nbccstopbc.bsky.social · 03/01/2025
A well-earned moment for NBCC President Fran Visco as she received the Presidential Citizens Medal yesterday! President Joe Biden honored her lifelong activism and work to end breast cancer.
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Patty Reboli Spears @paspears88.bsky.social · 22/12/2024
Great overview of SABCS 2024 @sabcs.bsky.social by an incredible writer and advocate Diane Mapes @doublewhammied.bsky.social www.fredhutch.org/en/news/cent...
fredhutch.org
What’s new in breast cancer research? SABCS24 looks at ctDNA, AI and ‘right-sizing’ treatment
More than 11,000 researchers, clinicians, patient advocates and drugmakers gathered last week at the San Antonio Breast Cancer Symposium to share the latest treatments, tricks and tools to take down b...
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Patty Reboli Spears @paspears88.bsky.social · 21/12/2024
This is a great demonstration of #collaboration in science and #datasharing … congrats to Aranzazu Fernandez Martinez and @unclineberger.bsky.social team! #bcsm #breastcancer www.sciencedirect.com/science/arti...
sciencedirect.com
Prognostic value of residual disease (RD) biology and gene expression changes during the neoadjuvant treatment in patients with HER2+ early breast cancer (EBC)
In HER2+ early breast cancer (EBC), we investigated tumor and immune changes during neoadjuvant treatment and their impact on residual disease (RD) bi…
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Patty Reboli Spears @paspears88.bsky.social · 10/12/2024
Need more of THIS in clinical trials … patient reported outcomes PROs to inform future patients.. #sabcs24 #sabcs2024 #bcsm
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Patty Reboli Spears @paspears88.bsky.social · 10/12/2024
Good discussions about recent FDA approvals - ribociclib for adjuvant tx and inavolicib for MBC. Questions about optimal dosing … “Don’t want to hit the patient hard … want to hit the cancer hard” - A. Wolff #sabcs24 #sabcs2024 #bcsm
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UNC Lineberger Comprehensive Cancer Center @unclineberger.bsky.social · 06/12/2024
A team of UNC-Chapel Hill researchers has received nearly $10 million in Advanced Research Projects Agency for Health (ARPA-H) funding to develop the Cancer Identification and Precision Oncology Center (CIPOC).
unclineberger.org
UNC researchers awarded up to $10M to leverage data science to accelerate cancer diagnosis and optimize delivery of precision oncology - UNC Lineberger
A team of researchers has received nearly $10 million in funding to develop the Cancer Identification and Precision Oncology Center.
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Elisa Agostinetto @elisaagostinetto.bsky.social · 27/11/2024
Out in @NatureComms further evidence that TNBC is an heterogeneous disease Spatial Transcriptomics is emerging as a powerful tool to assess the spatial architecture of TNBC, with implications on clinical outcomes and response to treatment @oncoalert.bsky.social www.nature.com/articles/s41...
nature.com
Spatial transcriptomics reveals substantial heterogeneity in triple-negative breast cancer with potential clinical implications - Nature Communications
Triple-negative breast cancer (TNBC) is a heterogenous disease with several molecular subtypes previously described. Here the authors perform a spatial transcriptomics analysis on a series of 92 patie...
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Julie Gralow @jrgralow.bsky.social · 27/11/2024
New systematic review and meta-analysis: Metastatic recurrence in women diagnosed with non-metastatic breast cancer. Open access article in Breast Cancer Research: link.springer.com/article/10.1...
link.springer.com
Metastatic recurrence in women diagnosed with non-metastatic breast cancer: a systematic review and meta-analysis - Breast Cancer Research
Background To assess proportions of metastatic recurrence in women initially diagnosed with non-metastatic breast cancer by stage at diagnosis, breast cancer subtype, calendar period and age. Methods ...
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Jill Feldman @jillfeldman4.bsky.social · 25/11/2024
Innovation shouldn't come at the expense of patient-centered care! Great article about prioritizing what matters to patients (QOL/OS/⬇️ burdens). It underscores palliative care being viewed as essential, not ancillary. We must rethink how we define progress in #oncology #pallonc #LCSM bit.ly/3OJQuQB
bit.ly
The trade-off between accelerated cancer drug approvals and patient preferences
Cancer care stands at a critical juncture where the urgency of rapid drug approvals must be balanced against the need for enduring patient-centric benefits. Robin Forrest and colleagues1 conducted a d...
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The OncoAlert Network 🚨 @oncoalert.bsky.social · 25/11/2024
QoL outcomes in patients participating in the CALGB 30610 trial (CALGB 70702): Alliance #LungCancer @elisabettabonzano.bsky.social @elisaagostinetto.bsky.social @realbowtiedoc.bsky.social @drlestercoll.bsky.social @stephenvliu.bsky.social @icromeattini.bsky.social buff.ly/4fNhTwU
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Hillary Andrews, PhD @hillstirsci.bsky.social · 20/11/2024
Looking forward to the @focr.bsky.social Annual Meeting Recap event for advocates on December 5! Register today! friendsofcancerresearch.org/event/friend...
friendsofcancerresearch.org
Friends Annual Meeting 2024 Recap: Sharing Next Steps and Opportunities with Advocates - Friends of Cancer Research
Friends Annual Meeting 2024 Recap: Sharing Next Steps and Opportunities with Advocates Thursday, December 5, 2024 12PM – 1PM ET Location: Virtual (Zoom) Webinar will also be streamed on YouTube Regist...
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