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Janice Cowden

@janicetnbcmets.bsky.social
864 followers 301 following 68 posts

🌍 Avid Traveler | Proud Nana of 3 | #MetastaticBreastCancer #PatientAdvocate / Knowledge Seeker | Retired Nurse | Dx #mTNBC 2016, “Dancing w NED” since 11/2016 | 🚫politics | @METAvivor @The_Right_Dose @OncoAlert #bcsm

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Reposted by Janice Cowden
METAvivor @metavivor.bsky.social · 03/02/2025
#METAvivor #MetastaticBreastCancer #Transparency #ThankYou #DonorPolicy
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Janice Cowden @janicetnbcmets.bsky.social · 31/01/2025
THIS‼️ 🔺brain mets occur in 15 - 30% of MBC pts; ⬆️ in #TNBC & #HER2+ 🔺delayed MRI=⬆️ adv disease, req. ⬆️WBR & ⬆️ dx LMD 🔺earlier det=earlier intervention = better outcomes for pts ”.. maybe we should be routinely performing brain MRIs in those patients”💡 #bcsm #BCBM www.medpagetoday.com/hematologyon...
medpagetoday.com
Time to Reconsider MRI to Detect Asymptomatic Brain Mets in Breast Cancer?
Initial MRI showed asymptomatic brain lesions in 14% of patients, increasing to 25% at 6 months
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Janice Cowden @janicetnbcmets.bsky.social · 20/01/2025
Spent the past 5 days with an incredible group of #advocates @ the 2025 Bag It Cancer #EscapeToThrive2025 leadership conference in Tucson, AZ. Miraval Resort & Spa was the ideal spot to #restore, #refresh, & #rejuvenate!
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Reposted by Janice Cowden
Julie Gralow @jrgralow.bsky.social · 18/01/2025
Thanks to the patient advocates who serve on our @ascocancer.bsky.social CDK study advisory group and data safety monitoring committee. @janicetnbcmets.bsky.social @paspears88.bsky.social connection.asco.org/do/empowerin...
connection.asco.org
Empowering Patients: ASCO’s Inclusive Approach to Clinical Trials
ASCO's CDK4/6 Inhibitor Dosing Knowledge (CDK) Study prioritizes patient advocacy and engagement to improve outcomes and quality of life for individuals with cancer.
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Wendy Woodward, MD, PhD @ibcradiation.bsky.social · 14/01/2025
www.nytimes.com/2025/01/08/p... Amazing story from a stage IV inflammatory breast cancer patient about finding love. #IBC #oncsky #cansky
nytimes.com
Finding the Magic, Just in Time
Clare Cory was 59 years old and had been single almost her whole life. She thought her love story was over. Then everything changed.
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Janice Cowden @janicetnbcmets.bsky.social · 14/01/2025
Happening tonight: Tuesday 1/14/25, 5 pm PT / 8 pm ET ~ #TumorBoardTuesday (#TBT) - HR+ #MBC! Join @zoezhang.bsky.social & @dr-rshatsky.bsky.social for this great educational session! #bcsm #PatientAdvocate
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Reposted by Janice Cowden
Dr. RShatsky @dr-rshatsky.bsky.social · 05/12/2024
#OncoSky #CanSky Listen up!! For those who used to enjoy Tumor Board Tuesday #TBT. We have been speaking to the wonderful Dr. P @mpishvaian.bsky.social and we will be starting some Tumor Board Tuesday “Sky Chats” over here soon! Stay tuned! #TBT is a wonderful learning/CME resource!!! #bcsm
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Dr. RShatsky @dr-rshatsky.bsky.social · 09/01/2025
Hello all, wanted to let you know about a fantastic interactive learning opportunity! This Tuesday the 14th my lovely fellow and I will be presenting Tumor board Tuesday #TBT about new developments in HR+ MBC! It will be 5pm pacific, 8pm eastern! #bcsm #OncSky #CanSky #MedSky #breastcancer #MBC
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Reposted by Janice Cowden
DSP💙#🟦✡️ @drawstickpeople.bsky.social · 05/01/2025
Especially important for our #oncosky community due to weakened immunity to infections. Please read this excellent educational public health tgread by @tmprowell.bsky.social
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Janice Cowden @janicetnbcmets.bsky.social · 05/01/2025
📑 benefits of P2P online support, “..most reported was being better informed…a predominant aspect of group participation is the exchange of info, the sharing of knowledge related to the disease, tx methods, or rec.”https://link.springer.com/content/pdf/10.1007/s00520-024-09119-5.pdf #bcsm #cancer
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Martha Carlson @marthacarlson.bsky.social · 04/01/2025
Lori Carey lived long on Enhertu. She was a wealth of knowledge about getting thru its rough start and the photographer of some of the most beautiful landscapes I’ve seen. I hope she got to say goodbye to those she loved and that Rebel was by her side too💔 #cansky #cancer #Stage4NeedsMore
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The OncoAlert Network 🚨 @oncoalert.bsky.social · 01/01/2025
Happy New Year from OncoAlert @doublewhammied.bsky.social @janicetnbcmets.bsky.social @kjankovic.bsky.social @seanmmcbride.bsky.social @icromeattini.bsky.social @jdmunter.bsky.social @achoud72.bsky.social @jesusanampa.bsky.social @weoncologists.bsky.social
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Janice Cowden @janicetnbcmets.bsky.social · 31/12/2024
Reg for METAvivor Ground Swell is open. Share your story/exp, educate lawmakers who serve you in DC, make an impact, 👊 change advocating for policies that benefit all dx w/ & impacted by #metastaticbreastcancer, & 📣 need to ⬆️ 💲for MBC #research! #bcsm donate.metavivor.org/event/2025-g...
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Janice Cowden @janicetnbcmets.bsky.social · 23/12/2024
Taking a SoMe break for the holidays, spending time with family! Wishing everyone a holiday season filled with love, light, joy, & cherished moments with those you hold dear. See you in 2025! Thankful for the #bcsm community! #HappyHolidays  #Gratitude
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Reposted by Janice Cowden
Patricia Stoop @patriciastoop.bsky.social · 19/12/2024
#2SLGBTQIA young adult #cancer study in Canada #oncosky #cansky
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Janice Cowden @janicetnbcmets.bsky.social · 18/12/2024
It’s a privilege to be part of this meaningful work! The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project. @therightdose.bsky.social @oncoalert.bsky.social #bcsm #DoseOptimization #QoL
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Matt Sikora @mjsikora.bsky.social · 10/12/2024
Loving tumor heterogeneity session at #SABCS24! Talk by Nick Navin w/ cool implications for #lobular BrCa tumorigenesis. In healthy breast cells, 16q/CDH1 loss common (~8% of cells from 49 patients), led to luminal clonal outgrowth... earliest precursors of ILC??? pubmed.ncbi.nlm.nih.gov/39567687/
pubmed.ncbi.nlm.nih.gov
Normal breast tissues harbour rare populations of aneuploid epithelial cells - PubMed
Aneuploid epithelial cells are common in breast cancer<sup>1,2</sup>; however, their presence in normal breast tissues is not well understood. To address this question, we applied single-cell DNA sequ...
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Janice Cowden @janicetnbcmets.bsky.social · 10/12/2024
Kicking off #SABCS24 w/ imp topics, communicating a MBC dx with pts, disease progression & prognosis, about #clinicaltrials. The Do’s & Don’ts. #metastaticbreastcancer #AdvancedBC #bcsm @sabcs.bsky.social @mbcalliance @ABCGlobalAll
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Janice Cowden @janicetnbcmets.bsky.social · 10/12/2024
View from the Marriott Rivercenter! All is calm, all is bright ~ the action begins tomorrow! Excited for another fabulous week of education, information, & connection at #SABCS24! Let’s do this! #bcsm @oncoalert.bsky.social #metastaticbreastcancer #PatientAdvocates @sabcs.bsky.social
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Janice Cowden @janicetnbcmets.bsky.social · 09/12/2024
✈️ Tampa —>Houston for BCM researcher/lab visits today, now 🚌 Houston—>San Antonio via Vonlane (fancy bus) w/ @amybeumer.bsky.social See you soon @sabcs.bsky.social!! #bcsm @oncoalert.bsky.social #SABCS24
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Make Cancer Less Shitty @cancersuckless.bsky.social · 07/12/2024
If you haven't already checked out @cancercaremascc.bsky.social - it's an entire global organization of clinicians, researchers, and even advocates focused on trying to #MakeCancerLessShitty #Cansky #SuppOnc #hpm #SurvOnc
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Rod Ritchie @malefitness.bsky.social · 07/12/2024
This is the best explanation of breast cancer in men published to date. www.mdanderson.org/cancerwise/m... #Cansky #Oncosky #CancerBS
mdanderson.org
Can men get breast cancer? 10 things to know
Breast cancer is often thought of as a woman’s disease. But men can get breast cancer, too. Breast medical oncologist Sharon Giordano, M.D., shares insights about male breast cancer.
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Janice Cowden @janicetnbcmets.bsky.social · 06/12/2024
Unfortunately relatable in so many areas - alkaline water, sugar, special diets, alternative, unproven “therapeutic” protocols, & let’s not forget coffee enemas 😳 All the 🤬 😡😤 feels about charlatans who promote these (incl other #cancer patients) #Oncosky #Cansky #bcsm #metastaticbreastcancer
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DSP💙#🟦✡️ @drawstickpeople.bsky.social · 05/12/2024
@janicetnbcmets.bsky.social pointed out how helpful having oncology tweetorials were on Twitter & the oncology health care community here is large & active so I'm sure they'll participate but we'll also need patients experts to do some, too. Any other ideas? #oncosky
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Reposted by Janice Cowden
DSP💙#🟦✡️ @drawstickpeople.bsky.social · 04/12/2024
The breast cancer community on Twitter was historically strong & proactive. @janicetnbcmets.bsky.social & i are discussing wsys to bring some of the most helpful aspects from Twitter to bsky such as tweetorials Would you participate & what topics interest you? (continued)
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Sarah D. Wald @sarahdwald.bsky.social · 01/12/2024
The Patient Centered Dosing Initiative does incredibly important work!
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Janice Cowden @janicetnbcmets.bsky.social · 01/12/2024
Does anyone know if there’s a setting on post sharing that only allows those you follow to share your posts? Is it under post interaction settings?
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Reposted by Janice Cowden
Daniel Stover, MD, FASCO @stoverlab.bsky.social · 23/11/2024
Wish that I could be at ISLB!! Visionary liquid biopsy expert @christianrolfo.bsky.social gives master class lectures on translational potential for innovative LB technologies & approaches 💯💯 @osucccjames.bsky.social @osuwexmed.bsky.social
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Reposted by Janice Cowden
Daniel Stover, MD, FASCO @stoverlab.bsky.social · 24/11/2024
Does anyone have the 🦋 version of this list?? @tmprowell.bsky.social @erikahamilton9.bsky.social @drsgraff.bsky.social @maryamlustberg.bsky.social @drteplinsky.bsky.social @ptarantinomd.bsky.social
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Tatiana Prowell, MD @tmprowell.bsky.social · 30/11/2024
Between now & the end of #GivingTuesday, I’ll mostly be posting about Healthcare Workers vs. Hunger #HCWvsHunger. Please support our multidisciplinary oncology team #DiagnoseAndTreats by donating to a food bank or hunger org this holiday season & logging for our team! /1
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Erika Hamilton MD, FASCO @erikahamilton9.bsky.social · 19/11/2024
#Oncologysky did you already vote once this month? Please make it twice and vote ✍️ 🗳️ in the #ASCO election if you are a member of ASCO!!! I'm lucky enough to be on the ballot 🗳️ this year for an undesignated spot on the Nomination Committee. society.asco.org/about-asco/a... Vote here ⬆️!
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Reposted by Janice Cowden
Julie Gralow @jrgralow.bsky.social · 29/11/2024
SONIA trial - Pts with ER+ breast cancer beginning treatment in the metastatic setting randomized to 1st line vs 2nd line use of CDK4/6 inhibitor (+ endocrine therapy). No sig difference in PFS. www.nature.com/articles/s41...
nature.com
Early versus deferred use of CDK4/6 inhibitors in advanced breast cancer - Nature
The phase 3 SONIA trial challenges the benefits of using cyclin-dependent kinase 4 and 6 inhibitors as a first-line compared with second-line treatment.
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Paolo Tarantino, MD @ptarantinomd.bsky.social · 30/11/2024
10 days to #SABCS24. Excited to present at the conference the results of 4 studies, made possible by collaborations with brilliant Dana-Farber colleagues and with multiple external partners (RevealGenomics, Yale, Novartis). Come meet me at the posters on December 11th and 12th!
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Maryam Lustberg MD MPH FASCO @maryamlustberg.bsky.social · 30/11/2024
Come join me Thursday morning Dec 12 as I discuss these wonderful 4 poster highlights #sabcs24 #survonc #bcsm @sabcs.bsky.social
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Janice Cowden @janicetnbcmets.bsky.social · 01/12/2024
Another great starter pack to follow: go.bsky.app/PowhjKD #CanSky #MedSky #OncoSky #advocates
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Janice Cowden @janicetnbcmets.bsky.social · 30/11/2024
Love where I live. #Gratitude
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Janice Cowden @janicetnbcmets.bsky.social · 29/11/2024
Attending @SABCSSanAntonio 2024 for the latest in #breastcancer & #metastaticbreastcancer research news? #SABCS24 schedule ~ done ✅ ‼️Be sure to note sessions featuring #patientadvocate voices‼️ #bcsm @OncoAlert
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Laura Esfeller @lauraesfeller.bsky.social · 28/11/2024
Happy Thanksgiving to all, especially to my #oncsky family & fellow #cancersurvivors. While we may have challenges ahead in cancer research, I believe our community is so strong, dedicated and talented that we will weather whatever storms may come our way. Grateful to work alongside you all.
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Paolo Tarantino, MD @ptarantinomd.bsky.social · 28/11/2024
The results of SONIA are out on @Nature. 1L use of palbo did not improve PFS over 2L use, but led to more AEs & costs. An evolving treatment landscape challenges its interpretation— yet it shows that sequencing trials are possible. Congrats to the authors! www.nature.com/articles/s41...
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Janice Cowden @janicetnbcmets.bsky.social · 27/11/2024
Another great org has found its way to #BlueSky. Welcome @graspcancer.bsky.social!! See you @ #SABCS24 (@sabcs.bsky.social)! #research #bcsm
sabcs.bsky.social
San Antonio Breast Cancer Symposium (@sabcs.bsky.social)
SABCS is the world's largest gathering of doctors, researchers and scientists sharing state-of-the-art information on experimental biology, etiology, prevention, diagnosis, and therapy for breast canc...
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Reposted by Janice Cowden
Amy Beumer @amybeumer.bsky.social · 27/11/2024
The Patient Centered Dosing Initiative has made it to bluer skies :-) follow us here and find us at therightdose.org
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Amy Beumer @amybeumer.bsky.social · 27/11/2024
Those dying of BC in the US, and therefore the MBC population, is increasingly made up of those with distant recurrence from Stage 1-2 (49% in 2000 to 63% in 2017). Last paragraph is gold. We must educate. #bcsm From an amazing team @coffeemommy.bsky.social @drsgraff.bsky.social & Kevin Kalinsky
academic.oup.com
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Ilana Schlam @ilanaschlam.bsky.social · 27/11/2024
Looking forward to #SABCS24 - there is a lot of important research being presented, some to highlight: 🔑 Biomarker analysis of KN522 🔑 EMBER-3 🔑 MARGOT 🔑 SONIA 🔑 EUROPA 🔑 SOLTI VALENTINE 🔑 GeparDouze
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Janice Cowden @janicetnbcmets.bsky.social · 27/11/2024
@therightdose.bsky.social look who’s arrived on #BlueSky ~ PCDI (Patient Centered Dosing Initiative)! 💊 *Follow us here* @itsnotpink.bsky.social @amybeumer.bsky.social @marthacarlson.bsky.social @stage4kelly.bsky.social @faceofstage4.bsky.social @jolynn2019mbc.bsky.social
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Janice Cowden @janicetnbcmets.bsky.social · 24/11/2024
#bcsm #patientadvocates @focr.bsky.social #Oncobsky
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Janice Cowden @janicetnbcmets.bsky.social · 23/11/2024
YES, please‼️ #bcsm 👇🏻👇🏻👇🏻
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Janice Cowden @janicetnbcmets.bsky.social · 23/11/2024
Yesterday we said goodbye to the matriarch of my husband’s family, my 94+ y/o mother-in-law, who lived a full & wonderful life. An hour later, we celebrated a new life, the birth of her 11th great grandchild, a sweet, perfect baby boy, our great nephew. The circle of life ♥️
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Janice Cowden @janicetnbcmets.bsky.social · 23/11/2024
Last week was perfect! My ♥️ is full, spending time w. family (esp our grandjoys💖🩵💙) on DCL, completely disconnected- a much needed break from reality. Until seeing the inbox this am 🫣
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Janice Cowden @janicetnbcmets.bsky.social · 14/11/2024
“We have confirmed an ongoing system outage that may cause issues such as (but not limited to) login difficulties, “Invalid Handle” error messages, & search functionality problems. Our team is actively working to resolve the issue, and we appreciate your patience &understanding during this time.”
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Janice Cowden @janicetnbcmets.bsky.social · 14/11/2024
Anyone know why it’s showing “invalid handle” on accounts? (Not just mine!)
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