Reposted by Janice CowdenMETAvivor @metavivor.bsky.social · 03/02/2025#METAvivor #MetastaticBreastCancer #Transparency #ThankYou #DonorPolicy 071
Janice Cowden @janicetnbcmets.bsky.social · 31/01/2025THIS‼️ 🔺brain mets occur in 15 - 30% of MBC pts; ⬆️ in #TNBC & #HER2+ 🔺delayed MRI=⬆️ adv disease, req. ⬆️WBR & ⬆️ dx LMD 🔺earlier det=earlier intervention = better outcomes for pts ”.. maybe we should be routinely performing brain MRIs in those patients”💡 #bcsm #BCBM www.medpagetoday.com/hematologyon...medpagetoday.comTime to Reconsider MRI to Detect Asymptomatic Brain Mets in Breast Cancer?Initial MRI showed asymptomatic brain lesions in 14% of patients, increasing to 25% at 6 months 0204
Janice Cowden @janicetnbcmets.bsky.social · 20/01/2025Spent the past 5 days with an incredible group of #advocates @ the 2025 Bag It Cancer #EscapeToThrive2025 leadership conference in Tucson, AZ. Miraval Resort & Spa was the ideal spot to #restore, #refresh, & #rejuvenate! 060
Reposted by Janice CowdenJulie Gralow @jrgralow.bsky.social · 18/01/2025Thanks to the patient advocates who serve on our @ascocancer.bsky.social CDK study advisory group and data safety monitoring committee. @janicetnbcmets.bsky.social @paspears88.bsky.social connection.asco.org/do/empowerin...connection.asco.orgEmpowering Patients: ASCO’s Inclusive Approach to Clinical TrialsASCO's CDK4/6 Inhibitor Dosing Knowledge (CDK) Study prioritizes patient advocacy and engagement to improve outcomes and quality of life for individuals with cancer. 182
Reposted by Janice CowdenWendy Woodward, MD, PhD @ibcradiation.bsky.social · 14/01/2025www.nytimes.com/2025/01/08/p... Amazing story from a stage IV inflammatory breast cancer patient about finding love. #IBC #oncsky #canskynytimes.comFinding the Magic, Just in TimeClare Cory was 59 years old and had been single almost her whole life. She thought her love story was over. Then everything changed. 073
Janice Cowden @janicetnbcmets.bsky.social · 14/01/2025Happening tonight: Tuesday 1/14/25, 5 pm PT / 8 pm ET ~ #TumorBoardTuesday (#TBT) - HR+ #MBC! Join @zoezhang.bsky.social & @dr-rshatsky.bsky.social for this great educational session! #bcsm #PatientAdvocate 041
Reposted by Janice CowdenDr. RShatsky @dr-rshatsky.bsky.social · 05/12/2024#OncoSky #CanSky Listen up!! For those who used to enjoy Tumor Board Tuesday #TBT. We have been speaking to the wonderful Dr. P @mpishvaian.bsky.social and we will be starting some Tumor Board Tuesday “Sky Chats” over here soon! Stay tuned! #TBT is a wonderful learning/CME resource!!! #bcsm 43411
Reposted by Janice CowdenDr. RShatsky @dr-rshatsky.bsky.social · 09/01/2025Hello all, wanted to let you know about a fantastic interactive learning opportunity! This Tuesday the 14th my lovely fellow and I will be presenting Tumor board Tuesday #TBT about new developments in HR+ MBC! It will be 5pm pacific, 8pm eastern! #bcsm #OncSky #CanSky #MedSky #breastcancer #MBC 4429
Reposted by Janice CowdenDSP💙#🟦✡️ @drawstickpeople.bsky.social · 05/01/2025Especially important for our #oncosky community due to weakened immunity to infections. Please read this excellent educational public health tgread by @tmprowell.bsky.social 1113
Janice Cowden @janicetnbcmets.bsky.social · 05/01/2025📑 benefits of P2P online support, “..most reported was being better informed…a predominant aspect of group participation is the exchange of info, the sharing of knowledge related to the disease, tx methods, or rec.”https://link.springer.com/content/pdf/10.1007/s00520-024-09119-5.pdf #bcsm #cancer 030
Reposted by Janice CowdenMartha Carlson @marthacarlson.bsky.social · 04/01/2025Lori Carey lived long on Enhertu. She was a wealth of knowledge about getting thru its rough start and the photographer of some of the most beautiful landscapes I’ve seen. I hope she got to say goodbye to those she loved and that Rebel was by her side too💔 #cansky #cancer #Stage4NeedsMore 1263
Reposted by Janice CowdenThe OncoAlert Network 🚨 @oncoalert.bsky.social · 01/01/2025Happy New Year from OncoAlert @doublewhammied.bsky.social @janicetnbcmets.bsky.social @kjankovic.bsky.social @seanmmcbride.bsky.social @icromeattini.bsky.social @jdmunter.bsky.social @achoud72.bsky.social @jesusanampa.bsky.social @weoncologists.bsky.social 0113
Janice Cowden @janicetnbcmets.bsky.social · 31/12/2024Reg for METAvivor Ground Swell is open. Share your story/exp, educate lawmakers who serve you in DC, make an impact, 👊 change advocating for policies that benefit all dx w/ & impacted by #metastaticbreastcancer, & 📣 need to ⬆️ 💲for MBC #research! #bcsm donate.metavivor.org/event/2025-g... 021
Janice Cowden @janicetnbcmets.bsky.social · 23/12/2024Taking a SoMe break for the holidays, spending time with family! Wishing everyone a holiday season filled with love, light, joy, & cherished moments with those you hold dear. See you in 2025! Thankful for the #bcsm community! #HappyHolidays #Gratitude 2130
Reposted by Janice CowdenPatricia Stoop @patriciastoop.bsky.social · 19/12/2024#2SLGBTQIA young adult #cancer study in Canada #oncosky #cansky 031
Janice Cowden @janicetnbcmets.bsky.social · 18/12/2024It’s a privilege to be part of this meaningful work! The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project. @therightdose.bsky.social @oncoalert.bsky.social #bcsm #DoseOptimization #QoL 2339
Reposted by Janice CowdenMatt Sikora @mjsikora.bsky.social · 10/12/2024Loving tumor heterogeneity session at #SABCS24! Talk by Nick Navin w/ cool implications for #lobular BrCa tumorigenesis. In healthy breast cells, 16q/CDH1 loss common (~8% of cells from 49 patients), led to luminal clonal outgrowth... earliest precursors of ILC??? pubmed.ncbi.nlm.nih.gov/39567687/pubmed.ncbi.nlm.nih.govNormal breast tissues harbour rare populations of aneuploid epithelial cells - PubMedAneuploid epithelial cells are common in breast cancer<sup>1,2</sup>; however, their presence in normal breast tissues is not well understood. To address this question, we applied single-cell DNA sequ... 072
Janice Cowden @janicetnbcmets.bsky.social · 10/12/2024Kicking off #SABCS24 w/ imp topics, communicating a MBC dx with pts, disease progression & prognosis, about #clinicaltrials. The Do’s & Don’ts. #metastaticbreastcancer #AdvancedBC #bcsm @sabcs.bsky.social @mbcalliance @ABCGlobalAll 073
Janice Cowden @janicetnbcmets.bsky.social · 10/12/2024View from the Marriott Rivercenter! All is calm, all is bright ~ the action begins tomorrow! Excited for another fabulous week of education, information, & connection at #SABCS24! Let’s do this! #bcsm @oncoalert.bsky.social #metastaticbreastcancer #PatientAdvocates @sabcs.bsky.social 1343
Janice Cowden @janicetnbcmets.bsky.social · 09/12/2024✈️ Tampa —>Houston for BCM researcher/lab visits today, now 🚌 Houston—>San Antonio via Vonlane (fancy bus) w/ @amybeumer.bsky.social See you soon @sabcs.bsky.social!! #bcsm @oncoalert.bsky.social #SABCS24 1141
Reposted by Janice CowdenMake Cancer Less Shitty @cancersuckless.bsky.social · 07/12/2024If you haven't already checked out @cancercaremascc.bsky.social - it's an entire global organization of clinicians, researchers, and even advocates focused on trying to #MakeCancerLessShitty #Cansky #SuppOnc #hpm #SurvOnc 1133
Reposted by Janice CowdenRod Ritchie @malefitness.bsky.social · 07/12/2024This is the best explanation of breast cancer in men published to date. www.mdanderson.org/cancerwise/m... #Cansky #Oncosky #CancerBSmdanderson.orgCan men get breast cancer? 10 things to knowBreast cancer is often thought of as a woman’s disease. But men can get breast cancer, too. Breast medical oncologist Sharon Giordano, M.D., shares insights about male breast cancer. 13919
Janice Cowden @janicetnbcmets.bsky.social · 06/12/2024Unfortunately relatable in so many areas - alkaline water, sugar, special diets, alternative, unproven “therapeutic” protocols, & let’s not forget coffee enemas 😳 All the 🤬 😡😤 feels about charlatans who promote these (incl other #cancer patients) #Oncosky #Cansky #bcsm #metastaticbreastcancer 1183
Reposted by Janice CowdenDSP💙#🟦✡️ @drawstickpeople.bsky.social · 05/12/2024@janicetnbcmets.bsky.social pointed out how helpful having oncology tweetorials were on Twitter & the oncology health care community here is large & active so I'm sure they'll participate but we'll also need patients experts to do some, too. Any other ideas? #oncosky 031
Reposted by Janice CowdenDSP💙#🟦✡️ @drawstickpeople.bsky.social · 04/12/2024The breast cancer community on Twitter was historically strong & proactive. @janicetnbcmets.bsky.social & i are discussing wsys to bring some of the most helpful aspects from Twitter to bsky such as tweetorials Would you participate & what topics interest you? (continued) 7242
Reposted by Janice CowdenSarah D. Wald @sarahdwald.bsky.social · 01/12/2024The Patient Centered Dosing Initiative does incredibly important work! 161
Janice Cowden @janicetnbcmets.bsky.social · 01/12/2024Does anyone know if there’s a setting on post sharing that only allows those you follow to share your posts? Is it under post interaction settings? 130
Reposted by Janice CowdenDaniel Stover, MD, FASCO @stoverlab.bsky.social · 23/11/2024Wish that I could be at ISLB!! Visionary liquid biopsy expert @christianrolfo.bsky.social gives master class lectures on translational potential for innovative LB technologies & approaches 💯💯 @osucccjames.bsky.social @osuwexmed.bsky.social 0103
Reposted by Janice CowdenDaniel Stover, MD, FASCO @stoverlab.bsky.social · 24/11/2024Does anyone have the 🦋 version of this list?? @tmprowell.bsky.social @erikahamilton9.bsky.social @drsgraff.bsky.social @maryamlustberg.bsky.social @drteplinsky.bsky.social @ptarantinomd.bsky.social 1184
Reposted by Janice CowdenTatiana Prowell, MD @tmprowell.bsky.social · 30/11/2024Between now & the end of #GivingTuesday, I’ll mostly be posting about Healthcare Workers vs. Hunger #HCWvsHunger. Please support our multidisciplinary oncology team #DiagnoseAndTreats by donating to a food bank or hunger org this holiday season & logging for our team! /1 0279
Reposted by Janice CowdenErika Hamilton MD, FASCO @erikahamilton9.bsky.social · 19/11/2024#Oncologysky did you already vote once this month? Please make it twice and vote ✍️ 🗳️ in the #ASCO election if you are a member of ASCO!!! I'm lucky enough to be on the ballot 🗳️ this year for an undesignated spot on the Nomination Committee. society.asco.org/about-asco/a... Vote here ⬆️! 0236
Reposted by Janice CowdenJulie Gralow @jrgralow.bsky.social · 29/11/2024SONIA trial - Pts with ER+ breast cancer beginning treatment in the metastatic setting randomized to 1st line vs 2nd line use of CDK4/6 inhibitor (+ endocrine therapy). No sig difference in PFS. www.nature.com/articles/s41...nature.comEarly versus deferred use of CDK4/6 inhibitors in advanced breast cancer - NatureThe phase 3 SONIA trial challenges the benefits of using cyclin-dependent kinase 4 and 6 inhibitors as a first-line compared with second-line treatment. 1226
Reposted by Janice CowdenPaolo Tarantino, MD @ptarantinomd.bsky.social · 30/11/202410 days to #SABCS24. Excited to present at the conference the results of 4 studies, made possible by collaborations with brilliant Dana-Farber colleagues and with multiple external partners (RevealGenomics, Yale, Novartis). Come meet me at the posters on December 11th and 12th! 12710
Reposted by Janice CowdenMaryam Lustberg MD MPH FASCO @maryamlustberg.bsky.social · 30/11/2024Come join me Thursday morning Dec 12 as I discuss these wonderful 4 poster highlights #sabcs24 #survonc #bcsm @sabcs.bsky.social 02712
Janice Cowden @janicetnbcmets.bsky.social · 01/12/2024Another great starter pack to follow: go.bsky.app/PowhjKD #CanSky #MedSky #OncoSky #advocates 2157
Janice Cowden @janicetnbcmets.bsky.social · 29/11/2024Attending @SABCSSanAntonio 2024 for the latest in #breastcancer & #metastaticbreastcancer research news? #SABCS24 schedule ~ done ✅ ‼️Be sure to note sessions featuring #patientadvocate voices‼️ #bcsm @OncoAlert 0153
Reposted by Janice CowdenLaura Esfeller @lauraesfeller.bsky.social · 28/11/2024Happy Thanksgiving to all, especially to my #oncsky family & fellow #cancersurvivors. While we may have challenges ahead in cancer research, I believe our community is so strong, dedicated and talented that we will weather whatever storms may come our way. Grateful to work alongside you all. 0154
Reposted by Janice CowdenPaolo Tarantino, MD @ptarantinomd.bsky.social · 28/11/2024The results of SONIA are out on @Nature. 1L use of palbo did not improve PFS over 2L use, but led to more AEs & costs. An evolving treatment landscape challenges its interpretation— yet it shows that sequencing trials are possible. Congrats to the authors! www.nature.com/articles/s41... 0208
Janice Cowden @janicetnbcmets.bsky.social · 27/11/2024Another great org has found its way to #BlueSky. Welcome @graspcancer.bsky.social!! See you @ #SABCS24 (@sabcs.bsky.social)! #research #bcsmsabcs.bsky.socialSan Antonio Breast Cancer Symposium (@sabcs.bsky.social)SABCS is the world's largest gathering of doctors, researchers and scientists sharing state-of-the-art information on experimental biology, etiology, prevention, diagnosis, and therapy for breast canc... 051
Reposted by Janice CowdenAmy Beumer @amybeumer.bsky.social · 27/11/2024The Patient Centered Dosing Initiative has made it to bluer skies :-) follow us here and find us at therightdose.org 052
Reposted by Janice CowdenAmy Beumer @amybeumer.bsky.social · 27/11/2024Those dying of BC in the US, and therefore the MBC population, is increasingly made up of those with distant recurrence from Stage 1-2 (49% in 2000 to 63% in 2017). Last paragraph is gold. We must educate. #bcsm From an amazing team @coffeemommy.bsky.social @drsgraff.bsky.social & Kevin Kalinskyacademic.oup.com 32611
Reposted by Janice CowdenIlana Schlam @ilanaschlam.bsky.social · 27/11/2024Looking forward to #SABCS24 - there is a lot of important research being presented, some to highlight: 🔑 Biomarker analysis of KN522 🔑 EMBER-3 🔑 MARGOT 🔑 SONIA 🔑 EUROPA 🔑 SOLTI VALENTINE 🔑 GeparDouze 0144
Janice Cowden @janicetnbcmets.bsky.social · 27/11/2024@therightdose.bsky.social look who’s arrived on #BlueSky ~ PCDI (Patient Centered Dosing Initiative)! 💊 *Follow us here* @itsnotpink.bsky.social @amybeumer.bsky.social @marthacarlson.bsky.social @stage4kelly.bsky.social @faceofstage4.bsky.social @jolynn2019mbc.bsky.social 0173
Janice Cowden @janicetnbcmets.bsky.social · 24/11/2024#bcsm #patientadvocates @focr.bsky.social #Oncobsky 050
Janice Cowden @janicetnbcmets.bsky.social · 23/11/2024Yesterday we said goodbye to the matriarch of my husband’s family, my 94+ y/o mother-in-law, who lived a full & wonderful life. An hour later, we celebrated a new life, the birth of her 11th great grandchild, a sweet, perfect baby boy, our great nephew. The circle of life ♥️ 050
Janice Cowden @janicetnbcmets.bsky.social · 23/11/2024Last week was perfect! My ♥️ is full, spending time w. family (esp our grandjoys💖🩵💙) on DCL, completely disconnected- a much needed break from reality. Until seeing the inbox this am 🫣 290
Janice Cowden @janicetnbcmets.bsky.social · 14/11/2024 “We have confirmed an ongoing system outage that may cause issues such as (but not limited to) login difficulties, “Invalid Handle” error messages, & search functionality problems. Our team is actively working to resolve the issue, and we appreciate your patience &understanding during this time.” 211
Janice Cowden @janicetnbcmets.bsky.social · 14/11/2024Anyone know why it’s showing “invalid handle” on accounts? (Not just mine!) 320