Reposted by samAlem Matthees @alemmatthees.bsky.social · 10/10/2026(2/3) After this point there was no excuse for this gross level of negligence, already spanning decades before, especially considering it was costing tens of billions $ in economic losses every year, not to mention the suffering involved. The inept bungling by the NIH and CDC have cost us all. 2255
Reposted by samDr Noor Bari @njbbari3.bsky.social · 10/10/2026Your regular reminder that exposure to pathogens such as harmful bacteria and viruses is not the same as exposure to good bacteria. Like drinking a probiotic yoghurt is not the same as drinking sewage. 📢 1028973
Reposted by samBrian Goldstone @brian-goldstone.bsky.social · 10/10/2026It's World Homeless Day, and I'll just say: Homelessness isn't some great unsolvable mystery. People are homeless because they don't have homes. This suffering persists not for lack of solutions, but because enormous wealth and power are invested in maintaining the very structures that produce it. 212323918
Reposted by samtalia jane @taliajane.bsky.social · 10/10/2026The left isn’t weak because of infighting. The left is weak because every facet of our society and economy is geared to the benefit of fascism and white supremacy and it is the challenge of multiple lifetimes to dismantle all of that. 151841410
Reposted by samSue Poncin @sueponcin.com · 04/10/2026“Imaging findings revealed lower overall cerebral blood flow among participants with post-COVID condition.” Left postcentral gyrus - touch, pain, right side body position Right middle cingulate cortex - turns decisions into physical movements What Long Covid has done to me. Every single day.radiologybusiness.comMRI links long COVID fatigue to reduced cerebral blood flowThe study also distinguishes between feeling fatigued and becoming progressively less able to maintain performance post-COVID. 12812
Reposted by samOliver Willis @owillis.bsky.social · 07/10/2026Look how easy it is to frame this issue! This handsome writer did it and he’s not very smart www.dailykos.com/stories/2026... 7786157
Reposted by sammtsw @mtsw.bsky.social · 07/10/2026imagine if the mainstream media covered Republicans' number one donor — the biggest political donor in US history! — and his controversial views with as much scrutiny as they covered Hasan Piker's 312298600
Reposted by samAlem Matthees @alemmatthees.bsky.social · 07/10/2026Scary facts in #DecodeME presentation (Ponting): Stigmatised illness. Symptoms not always believed. 75% of people with #ME/CFS say they have little or no access to healthcare. One in four patients are housebound or bedbound. Across Europe, it takes nearly seven years on average to get a diagnosis.youtube.comDecoding ME: ME/CFS genetics and biomarker studies with Professor Chris Ponting, 24 September, 2026YouTube video by ME Support 13113
Reposted by samLucibee @lucibee.bsky.social · 07/10/2026'Recovery' was always a big problem for the PACE trial, to the extent that they didn't actually mention it at all in the main trial paper in 2011. Discussion of it was relegated to a later paper in 2013, which also contained a metric tonne of fudge, because they knew they were in trouble over it. 13812
Reposted by samAlem Matthees @alemmatthees.bsky.social · 07/10/2026The #PACEtrial recovery song by the late Graham McPhee uploaded to Youtube around 2014, which along with his more serious videos on the same channel, was used to argue that he was part of an organised campaign of harassment when he submitted a FOIA request for the fitness data from the PACE trial.youtube.com6: ME Recovery SongYouTube video by MEAnalysis 33512
Reposted by samTom Kindlon @tomkindlon.bsky.social · 07/10/2026New CDC study Characterizing Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Symptom Burden, Functional Impairment, and Comparison With Adults www.jpeds.com/article/S002... #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome 2237
Reposted by samMelody Schreiber @melodyschreiber.com · 01/10/2026Okay that was easy as hell, everyone go get pictures of your tits 2222
Reposted by samIt's ME(Jaime) @exceedhergrasp1.bsky.social · 24/09/2026Find every talk here: bsky.app/profile/exce... 196
Reposted by samAaron Rupar @atrupar.com · 30/09/2026I for one think it’s bad that the president can just say crazy stuff all day every day and 99% of it doesn’t make the news because we’ve normalized having an insane president 902257626106
Reposted by samBilly Hanlon @bhanlon15.bsky.social · 30/09/2026Boston: 'Warriors’ Kristaps Porzingis out indefinitely with unspecified health issue' 'According to a report from The Athletic, Porzingis said he was diagnosed with postural orthostatic tachycardia syndrome (POTS).' www.boston.com/sports/bosto...boston.comWarriors' Kristaps Porzingis out indefinitely with unspecified health issueFormer Celtics big man Kristaps Porzingis will miss the Warriors' trip to Hawaii as he deals with another health issue. 142
Reposted by samJared Yates Sexton @jysexton.bsky.social · 26/09/2026Just helping with editing here. These bots aren’t sentient. They’re doing what they’re programmed to do. OpenAI, a private company supposedly bound by laws, committed federal crimes. 17093013069
Reposted by sam#MEAction Network @meactnet.bsky.social · 23/09/2026Scientific Director Jaime Seltzer @exceedhergrasp1.bsky.social reporting live (virtually) from the NIH From Mechanisms to Medicine conference. #pwME #MyalgicEncephalomyelitis #MECFS #LongCovid #ChronicIllness #NIH 1159
Reposted by samKat Abughazaleh @katmabu.bsky.social · 23/09/2026My notifs have been filled with people realizing they should get tested! This is a topic I love educating people about so AMA about narcolepsy and I’ll answer in the morning (bc I’m sleepy rn) 2482172
Reposted by samGeorge Monbiot @georgemonbiot.bsky.social · 21/09/2026Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks. 131711288
Reposted by samMinestrone Monster @minstronemonster.bsky.social · 21/09/2026A harrowing thread of responses here demonstrating not just a failure to treat patients with ME, but an institutional insistence on persecuting, abusing, gaslighting and discrediting them. People have died. People will die. Lives have been destroyed. The scale of the injustice is staggering. 0289
Reposted by samDilek Sayedahmed @dileksayedahmed.bsky.social · 19/09/2026I truly, deeply, sincerely do think the guy flipping burgers at McDonalds should be able to afford rent, bills, and groceries with his paycheck alone. That's kind of the whole point of having a job and I can't believe this is considered a radical position.🤷🏽♀️ 162169344737
Reposted by samIron Spike @ironspike.bsky.social · 19/09/2026I’ll take this a step further and say, I believe we should be able to support an average-sized family on a single income at what we determine to be the minimum wage. A lot of Boomers got this. But for whatever reason, we’re considered ridiculous for proposing it. 21165350
Reposted by samKristen Lopez @kristenklopez.bsky.social · 11/09/2026As an actual disabled critic, BEING HEUMANN is a landmark for disabled representation that abled audiences aren't going to immediately grasp its power. An essential piece of disability history in an era when our rights are being eroded. My review is live: thefilmmaven.com/being-heuman...thefilmmaven.comBeing Heumann Review: The Disability Representation We've Been Waiting ForWe finally broke the Tod Browning "Freaks" record for most disabled cast members! 6319125
Reposted by samWajahat Ali @wajali.bsky.social · 13/09/2026MAGA and Trumpism in a nutshell. He ruins everything. Congrats, America. www.washingtonpost.com/style/2026/0...washingtonpost.comKennedy Center could close as early as Tuesday, warns of bankruptcy, documents showOfficials said the center is facing “certain financial collapse” within weeks, insist that adding President Donald Trump’s name may be the only way to avoid bankruptcy. 80799282
Reposted by samjamelle @jamellebouie.net · 14/09/2026this guy is one of the architects of a war that might rank as one of the worst strategic missteps in american military history and here is on CBS getting a softball interview about his feelings 32988421560
Reposted by samAmy Maxmen, PhD @amymaxmen.bsky.social · 14/09/2026Another unvaccinated person has likely died of measles. www.nytimes.com/2026/09/13/w...nytimes.comUnvaccinated Woman Likely Died of Measles Complications, Pa. County Coroner SaysThe case is the third reported death linked to a rapidly expanding outbreak that has sickened more than 670 people in the state. 03415
Reposted by samemily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 12/09/2026But why would there be so much misinfo/disinfo swirling around debilitating illnesses like ME & Long Covid that affect millions of people? I dunno, maybe the corporations who should be on the hook are happy not having to pay up & manufacturing doubt is a great way to delay taking responsibility? 0237
Reposted by samIt's ME(Jaime) @exceedhergrasp1.bsky.social · 11/09/2026MMR is 97% effective. BUT: - Some may not mount a robust enough immune response to vax for a variety of reasons - Protection CAN wane if there's been a major immune disruption, though this is rare - Most pertinent: intense, prolonged exposure to someone with measles can supersede protection 11239107
Reposted by samDavid Corn @davidcorn.bsky.social · 12/09/2026This is stochastic terrorism. Ted Cruz is an extremist encouraging violence. 27140531187
Reposted by samIt's ME(Jaime) @exceedhergrasp1.bsky.social · 11/09/2026Or visit the masterlist here: bsky.app/profile/exce... 061
Reposted by samHoward French @hofrench.bsky.social · 09/09/2026Yep. www.nytimes.com/2026/09/09/o...nytimes.comOpinion | JD Vance Doesn’t Want to Help Married Parents. He Wants to Hurt Single Mothers.Redistributing money from single working parents to married ones is not a pro-family policy. 745291
Reposted by samThe Volatile Mermaid @ohnoshetwitnt.bsky.social · 09/09/2026For the love of god someone please ask him when he thought Germany was great because I’ve got an idea. 642314390
Reposted by samDavid Ho @davidho.bsky.social · 09/09/2026The Lahaina fire in 2023 destroyed over 2,700 structures and killed at least 102 people, leaving 12,000 homeless. The disaster exacerbated the existing housing crisis in Hawaiʻi and Maui in particular, driven by vacation rentals and remote work, leaving many displaced families struggling to rebuild.nytimes.comThe Long Road to Rebuilding Lahaina After the 2023 Wildfire (Gift Article)Hawaii’s housing crisis was at a breaking point even before the fire. Since then, displaced families have struggled to rebuild their lives. 04816
Reposted by samBen K. @benjaminkabak.com · 09/09/2026They’re Nazis. We can stop beating around the bush. 12432128
Reposted by samLynn Stahl @msbtterswrth.altgov.info · 09/09/2026America doesn't have kings. And we never will. Come out for the next No Kings rally on OCT 17, and tell Don and his flunkies to get fucked. 0125
Reposted by samAaron Rupar @atrupar.com · 09/09/2026Jeanine Pirro: "The president is very much aware of the cryptocurrency fraud that is being literally imposed upon Americans, and he is well aware of the danger to Americans" 347909166
Reposted by samRichard Vallée @richardvallee.bsky.social · 07/09/2026No one is more excluded from medicine than those of us suffering from discriminated chronic illnesses like ME/CFS, Long Covid, etc. Our exclusion is literally standard practice, fully intentional and considered "good". Physicians hate and mock us. We don't have the luxury to be against vaccines. 1113
Reposted by samOpen Medicine Foundation (OMF) @openmedf.bsky.social · 09/09/2026OMF’s Clinical Trials Network Lite (CTN Lite) initiative will include treatment trials that use decentralized study designs, making the studies more accessible to people with more severe ME/CFS. 🔗Read more about CTN Lite: www.omf.ngo/introducing-...omf.ngoA new chapter in ME/CFS treatment research begins today—and your voice is essential to making it count. - Open Medicine FoundationLearn more about CTN Lite, a research model designed to accelerate ME/CFS treatment trials and expand access. 062
Reposted by samEric Topol @erictopol.bsky.social · 02/09/2026What is being done vs #LongCovid and other post-viral serious chronic illness? Not enough. www.nature.com/articles/d41...nature.comWhen do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromesHundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them. 6255106
Reposted by samRichard Vallée @richardvallee.bsky.social · 04/09/2026To put into perspective how little has been done, about $2B of research on Long Covid has yielded less than the institutionally-sabotaged research on ME/CFS did with crumbs. Not a single useful thing has come out of LC research yet. Not even a single bit, tt has effectively been entirely wasted. 193
Reposted by samJanet Johnson @jjohnsonlaw.bsky.social · 09/09/2026Celebrating the election of neo Nazis in Germany is quite a choice. 22708138
Reposted by samTom Kindlon @tomkindlon.bsky.social · 09/09/20262/ I very rarely post on LinkedIn these days but decided to do a longer post today on this. With a lot of researchers posting less often if at all on X, more are communicating via LinkedIn. #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome 3316
Reposted by samTom Kindlon @tomkindlon.bsky.social · 09/09/202610 years today, after a David vs Goliath FOI legal battle that damaged Alem Mathees, White et al were forced to release data from PACETrial (that cost UK taxpayers £5M) showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS. Please remind the world #MEcfs #PwME #CFS 516474
Reposted by samT. Ryan Gregory 🇨🇦 @tryangregory.bsky.social · 09/09/2026Viral infections are bad. Even common ones. Clean the air for FFS. 214550
Reposted by samJoanna Grossman @joannagrossman.bsky.social · 09/09/2026Another unconscionable result of the GOP’s war on women. www.propublica.org/article/ecto...propublica.orgEctopic Pregnancy Deaths Have Nearly Doubled. It’s Worse in States With Abortion Bans.With prompt and appropriate medical care, experts say, people shouldn’t die from an ectopic pregnancy. Women in Texas and Oklahoma have sued over delays in care, which, coupled with our new analysis, ... 49948508
Reposted by samThor Benson @thorbenson.bsky.social · 09/09/2026I think that's true. I think he is very aware of crypto scams 902553303
Reposted by samMollie Katzen @molliekatzen.bsky.social · 09/09/2026I am an ectopic pregnancy survivor who would have died had I not received a procedure that is now illegal in many states. 21423144
Reposted by sam🗽LOLGOP🗽 @lolgop.bsky.social · 09/09/2026Sorry, Dems. You're going to have to confront Silicon Valley autocracy before they brick democracy.patreon.comSorry, Dems, you're going to have to destroy Elon. Or he'll destroy you. | LOLGOP StudiosWe must confront Silicon Valley autocracy before they brick democracy. I recorded an emergency “episode” of The Trillionaire Kill Chain this 927553
Reposted by samFaine Greenwood @faineg.com · 08/09/2026“Elon Musk destroyed USAID as a mechanism for killing off as many of the global poor and non-white as he can before they kill him first (as he, insanely, believes)” is not a conspiracy theory. In truth, it’s very hard to conclude anything else. 7838621025