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jo

@moerakijo.bsky.social
1.3K followers 2K following 477 posts

Living with Long Covid and ME Love books, libraries, histories she/her Aotearoa New Zealand #LongCovid #ME #WearAMask😷 #CovidIsNotOver #LongCovidAwareness

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Reposted by jo
It's ME(Jaime) @exceedhergrasp1.bsky.social · 20h
Our paper about the challenges and opportunities in decentralized clinical trials for #LongCOVID is out! We discuss the regulatory, clinical, & disease-specific challenges we faced in building a clinical trial network for Long COVID. Please read and share with your networks! 🧪
frontiersin.org
Frontiers | Facilitators and barriers to decentralized Long COVID platform clinical trials using repurposed drugs
Long COVID is an emerging chronic condition that results in substantial impairments in quality of life, physical function, and ability to maintain gainful em...
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Adam @abrokenbattery.bsky.social · 21h
"This is the opposite of how science ought to work." George Monbiot on those pushing "false and dangerous" cures for #MECFS, "entrenched" in their beliefs and doubling down rather than admit the "great harm" to the lives of thousands of people.
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David Tuller @davetuller1.bsky.social · 18h
This interview with @georgemonbiot.bsky.social has had almost 5,000 views since I posted it yesterday: www.youtube.com/watch?v=Maae...
youtube.com
Interview with George Monbiot about Guardian column on ME/CFS
YouTube video by David M Tuller
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Bateman Horne Center @batemanhornecenter.bsky.social · 20h
October is Dysautonomia Awareness Month. Standing can bring on a racing heart, dizziness, weakness, and other symptoms for people with POTS. This month, we’ll share resources to help patients, families, and clinicians understand POTS, dysautonomia and orthostatic intolerance.
Teal poster with a white awareness ribbon and text declaring October as Dysautonomia Awareness Month.
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#MEAction Network @meactnet.bsky.social · 02/10/2026
We are delighted to bring you this new campaign at the request of our amazing caregiver volunteer Denise Lopez-Majano. Denise is turning 70 and wants to help spread kindness throughout our community - 70 acts of kindness by December 7th! DETAILS: ow.ly/1IPH50ZTE55 #pwMe #Caregiver
Bright yellow poster promoting '70 Acts of Kindness' campaign for Denise Lopez-Majano's 70th birthday with QR code to scan. Text: In honor of her 70th birthday, Denise Lopez-Majano is launching a campaign to encourage more kindness in our community and world in a very accessible way! #70by70
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PHANZA Professional Historians of New Zealand / Aotearoa @phanza.bsky.social · 01/10/2026
Dunedin Heritage Weekend is coming up 9-11 October, with talks, tours and events exploring some of the stories, places and people that have shaped Dunedin. Come along and get a taste of Dunedin's rich heritage resources. www.southernheritage.org.nz/events
southernheritage.org.nz
Events | Southern Heritage Trust
Join us to appreciate Otago’s rich social, cultural, architectural and industrial heritage.
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Bateman Horne Center @batemanhornecenter.bsky.social · 01/10/2026
October’s online outreach events are coming up: • Oct. 6, 1 p.m. MDT: Support Group  • Oct. 14, 10 a.m. MDT: “Coffee” with a Clinician  • Oct. 20, 1 p.m. MDT: Support Group Register Here: bit.ly/4npZ4Ud
Upcoming October events: Oct 6 chronic illness symptoms; Oct 14 cognitive impairment; Oct 20 relationships—chronically ill.
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betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 01/10/2026
Have you done The Sick Times' reader survey yet? We plan to use the results to inform future stories, updates to our website, and more! www.surveymonkey.com/r/SS6ZH8S
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Adam @abrokenbattery.bsky.social · 01/10/2026
“I was just horrified… The most heartbreaking stories… Treatment is absolutely appalling for patients.” @georgemonbiot.bsky.social speaking to @davetuller1.bsky.social about the hundreds of messages he received from people around the world with #MECFS about their experiences of treatment.
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Sarah @no1sarah.bsky.social · 01/10/2026
It's the first day of Dysautonomia Awareness Month. I had never heard of it before it happened to me as a result of a Covid infection. It is dysfunction of the autonomoc nervous system - which controls everything our body does without our conscious control: 1/
Blue banner which reads "Dysautonomia awareness month October 2026"
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David Tuller @davetuller1.bsky.social · 01/10/2026
Here's my interview with Guardian columnist @georgemonbiot.bsky.social about his recent column on the awful treatment of people with ME/CFS: virology.ws/2026/10/01/t...
virology.ws
Trial By Error: Interview with George Monbiot on Recent Guardian Column | Virology Blog
By David Tuller, DrPH As I mentioned last week, George Monbiot, the British investigative journalist and longtime contributor to The Guardian, published a c ...
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🐶🐙Dr. Caffiend☕️😷 @captcaffiend.bsky.social · 01/10/2026
If anyone in Auckland/waikato/bay of plenty is going away over summer and would like me and the doggos to look after your place …let me know. Would prefer a longer stay (eg 6 weeks or so) but shorter might work too
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Emerge Australia @emergeaustralia.bsky.social · 01/10/2026
💙 October is Dysautonomia Awareness Month. Dysautonomia and orthostatic intolerance can affect people with ME/CFS and long COVID. Melbourne landmarks will light up turquoise on 2 and 23 October to raise awareness. Learn more: zurl.co/BRujL #DysautonomiaAwarenessMonth
Emerge Australia graphic for Dysautonomia Awareness Month. A pair of hands holds a teal awareness ribbon. Text reads: “October is Dysautonomia Awareness Month,” with the Emerge Australia logo in the bottom right.
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New Zealand Council of Trade Unions @nzctu.bsky.social · 01/10/2026
Care and support workers have waited far too long for their work to be valued properly, and today’s announcement from the Greens shows there is a clear path to getting it done. #nzpol
union.org.nz
Greens' pay equity commitment a win for care and support workers NZCTU
The New Zealand Council of Trade Unions Te Kauae Kaimahi welcomes the Green Party's commitment to restore pay equity and fund a settlement for around 65,000 care and support workers.
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Sue Poncin @sueponcin.com · 29/09/2026
A Pause on Hope: Resting from recovery www.sueponcin.com/blog/a-pause... Long Covid has been a constant in my life since January 2021 and since April 2021 I have been fighting and hoping for a cure, an answer, a light at the end of the tunnel. I'm tired. Here is your permission to rest.
sueponcin.com
A Pause on Hope — Sue Poncin
Resting from recovery “Hope is a verb” has been my mantra since the day I saw it on a sweatshirt and I’ve been living it since the day I hit rock bottom in April 2021 and decided not to quit. I start...
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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 30/09/2026
New Zealand COVID weekly update: 30 September 2026 21 September to 27 September 2026: 🔹New cases: 78 (+36.8%)⚠️ 🔹Deaths: (data removed from dashboard) 8 September to 14 September 2026: 🔸Hospitalisations: 10 (-9.0%) Source: healthnz.govt.nz/about-us/hea...
A screenshot of a Health New Zealand (Te Whatu Ora) COVID-19 reporting dashboard generated in Microsoft Power BI. The dashboard is current "As at Sunday, September 27, 2026."
The main section, titled OVERALL COUNTS, features a large line graph displaying cases and a 7-day rolling average from 2020 through late 2026. The graph shows a massive, sharp spike in early 2022, followed by a smaller spike in late 2022, a third minor wave in mid-2023, and a long, low, flat baseline extending through 2024, 2025, and 2026.
To the left of the graph, a CONTENTS sidebar contains vertical navigation buttons labelled Age, Ethnicity, District, Deprivation, and Definitions. Above the graph, a REPORT TYPE dropdown menu is set to "Cases."
In the top right corner, three KPI metric cards display key statistics:
•	2.7M Reported Total since 01-01-20
•	296 Reported Last 30 Days (29-08-26 to 27-09-26)
•	78 Reported Last 7 Days (21-09-26 to 27-09-26)
The bottom of the interface shows standard Power BI navigation controls indicating page "1 of 6" and a zoom slider set to 62%.
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🦝 Pepper Raccoon: Trash Priestess 🦝 @pepperraccoon.com · 29/09/2026
🤘 KICK IT 🤘 The Bird of the Year is the Black Robin/Karure, coming in like a tiny wrecking ball to smash the competition. Thread Project premium screenprinted tees in unisex and fitted sizes S-5XL. Pre-order this tee NOW: pepperraccoon.com #birds #boty #kikorangi
A detailed dark fantasy style illustration of a black robin on a branch, holding a tiny spiked mace. The words Black Robin are in high stylised handlettered text, and the border features Chatham Island forget-me-nots.A flatlay of green t-shirts, featuring a detailed dark fantasy style illustration of a black robin on a branch, holding a tiny spiked mace. The words Black Robin are in high stylised handlettered text, and the border features Chatham Island forget-me-nots.
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Mike DiGirolamo @mikedigirolamo.bsky.social · 29/09/2026
For the first time in 150 yrs, kiwi once again live in the hills surrounding Wellington. More than 250 were successfully translocated back to the region, thanks to the efforts of the iwi (nations of Aotearoa), community members, and the Capital Kiwi Project. They join the podcast this week:
news.mongabay.com
Iwi and community-led effort return kiwi to Wellington for first time in over a century
For the first time in 150 years, kiwi once again live in the hills surrounding Wellington, Aotearoa New Zealand. More than 250 manu (“birds” in the Māori language) were successfully translocated back ...
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Kereru Brewing Co @handle.invalid · 29/09/2026
Is someone's birthday coming soon? Do they like beer? Check out our new Happy Birthday top sheets that you can choose from to customise your beer gift box. You can also let us know if you want a special note included with your gift. www.kererubrewing.co.nz/shop/beer/pe...
A selection of different, colourful top sheets which all say Happy Birthday. We've got all sorts of cheerful images to choose from featuring artwork from our various beer labels.
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Too Long Covid 💚 @toolongcovid.bsky.social · 29/09/2026
Read this and think of the kids with Long Covid or MECFS who are pressured into school.
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Alem Matthees @alemmatthees.bsky.social · 28/09/2026
(1/12) No. The painful truth about #LongCOVID is not the alleged suppression of brain retraining, but that the scale of the pandemic and aftermath were preventable. Systemic and collective failures emerged from a chain of poor decisions. Millions dead. Millions of lives ruined. Trillions $ lost.
wired.com
The Painful Truth About Long Covid
There might finally be a way forward for long Covid treatment—if only you were allowed to talk about it.
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Tom Kindlon @tomkindlon.bsky.social · 27/09/2026
Two researchers have explored how language can be used to tackle epistemic injustice in healthcare for people with ME/CFS. Read more: tinyurl.com/bdnwr8n6 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps
Researchers have proposed two ways language can be used to tackle epistemic injustice in healthcare: 

Look closely at the words used in healthcare. Identify language that leaves out people's experiences or reinforces unfair assumptions, then work with people with the disease, their families, healthcare professionals, researchers and policymakers to replace it with fairer and more inclusive language 
Make language part of how unfairness is investigated and taught. When examining why some people are not heard or included in medical knowledge, also consider how everyday terms and labels shape attitudes and decisions. Help students and healthcare staff recognise and question these hidden assumptions. 
o 
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Reminder: Epistemic injustice is the harm done to a person which is related to their own knowledge or personal experience. 
■% INFORM. INFLUENCE. INVEST. RESEARCH UK SCO36942 
Wallat and Hille. The American Journal of Bioethics (2026)
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ME Research UK @meresearchuk.bsky.social · 24/09/2026
In case you missed it - Sleep dysfunction can feel like a heavy weight on top of an already debilitating condition. We have drawn together some of the common themes about the experience of sleep dysfunction from our recent survey. tinyurl.com/sleepdysmeim...
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Louise Hutt @saycheeselouise.bsky.social · 27/09/2026
If you'd like to support your favourite disabled candidate, from the only party who has a disability policy, and who is enduring these out the gate debates - you can find the donate link here 😘 www.greens.org.nz/louisehutt_2...
greens.org.nz
Louise Hutt | Hamilton West
We are building a future where we do more, faster, to protect our planet and make sure everyone is treated equally.
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Dr Aleisha Ward @nzjazzhistory.bsky.social · 27/09/2026
I just discovered this nifty website- handy for all of us who are suffering right now: pollencount.org/pollen/new-z...
pollencount.org
Pollen Count in New Zealand Today | Live City Levels
Pollen count in New Zealand today: live tree, grass & weed levels across 3 cities, plus 4-day hourly forecasts. Updated daily.
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Adam @abrokenbattery.bsky.social · 27/09/2026
“It has sent many people from having mild or moderate cases to severe #MECFS… it has turned people housebound, bedbound. It has completely destroyed their lives.” @georgemonbiot.bsky.social on the harm caused by graded exercise therapy (GET) for #MECFS.
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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 26/09/2026
I’m only seeing people with ME or Long Covid sharing this. If you’re not affected, can you please read it & share? Ableist propaganda goes viral all the time, which encourages outlets to publish more of it. Can we please make the truth go viral instead?
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Heather Hogan @heatherhogan.bsky.social · 26/09/2026
It would be so cool if you would take this survey! Instagram is right on your tail with their engagement in our survey, Bluesky! Come on now, don't let META beat you!!!!
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Louise Hutt @saycheeselouise.bsky.social · 26/09/2026
At the Hamilton PSA debate, candidates were asked about disability NZF: Incoherent answer Labour: We don't have a policy announced Opportunities: We have no policy whatsoever Me: this govt's attacks on the disabled community are unacceptable, here's our policy, it was co-written by disabled people
The Green Party will build an Aotearoa where disabled people are valued and they and their whānau live with dignity and autonomy. An Aotearoa where disabled people and whānau have access to the services they need — like transport and good quality housing — means everyone can thrive in caring communities. 

Our current laws, policies and social norms mean disabled people are often denied the same rights as others and are excluded from places and activities non-disabled people take for granted. These barriers are often worse for tāngata whaikaha Māori and for disabled people from marginalised communities. 

The current Government has made it harder for disabled people to access the support they deserve and which enables them to participate equally in life and their communities. 

The Green Party is ambitious in its plan to create a more accessible Aotearoa by building on the Enabling Good Lives framework and grounding our approach in Te Tiriti o Waitangi. Our approach will operate on a high-trust model and apply to all disabled people, including those with disabling conditions who do not currently access support. The Green Party is committed to an Aotearoa where disabled people and whānau thrive in caring communities.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 25/09/2026
We've seen a distinct drop in interest in these conditions as people have memory-holed COVID; they'd like to forget infection-associated chronic conditions, but they're impacting everyone, including kids. I'm the Scientific Director at #MEAction, and I advocate for #MECFS, #LongCOVID, & other IACCs.
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Frances Ryan @francesryan.bsky.social · 24/09/2026
As I lay in bed with PEM, always grateful to my colleague @georgemonbiot.bsky.social for helping bring M.E. into mainstream attention. The way people with M.E. are ignored and actively harmed by medics who have been trusted to help them is a hidden scandal. www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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The Guardian @theguardian.com · 24/09/2026
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Billy Hanlon @bhanlon15.bsky.social · 23/09/2026
JAMA: 'Long COVID: The Problem Society Wants to Forget: A Healthy Dialogue With E. Wesley Ely' jamanetwork.com/journals/jam...
jamanetwork.com
Long COVID: The Problem Society Wants to Forget
Long COVID, including the difficulty in defining it and caring for patients experiencing it, is discussed by JAMA Senior Editor Derek C. Angus, MD, MPH, and E. Wesley Ely, MD, MPH, professor of medici...
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Miles W. Griffis @mileswgriffis.bsky.social · 23/09/2026
NEW ⭐: The Sick Times is listed as a finalist in NASW's Journalism Awards for our story on axed RECOVER grants for #LongCOVID. We're so proud of our small publication; Congrats to all the finalists and winners from ProPublica, NYT, the Guardian, Science, and others! www.nasw.org/2026Sciencei...
nasw.org
Announcing the 2026 NASW Science in Society Journalism Award winners
The National Association of Science Writers and its Awards Committee are pleased to announce the winners of the <strong>2026 NASW Science in Society Journalism Awards.</strong> This year, NASW is awar...
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Christchurch City Libraries Ngā Kete Wānanga o Ōtautahi @christchurchlib.bsky.social · 23/09/2026
Dirty Work by Nicky Hager is in the catalogue now. Hot tip for you Bluesky buddies in Ōtautahi Christchurch! christchurch.bibliocommons.com/v2/record/S3... ^DR
static.klipy.com
I don't want to do your dirty work
Alt: Tony Soprano singing Dirty Work
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Simon Spichak @spichaksimon.bsky.social · 23/09/2026
For @thesicktimes.org, I covered a petition that over 1,700 people have signed calling for a pause to a trial that's applying for ethical approval to test a psuedoscientific program for #LongCOVID called The Lightning Process. thesicktimes.org/2026/09/22/p... 1/n
Screenshot of Sick Times article. Title: "People with Long COVID demand pause of McMaster University clinical trial"

DEK: The trial, run by researchers at McMaster University in Canada, is testing the Lightning Process, a pseudoscientific mind-body program that outside experts have heavily criticized.

Image: A college buildingey points you should know:

A petition signed by 1,700 people asks for a pause and independent review of a trial run by McMaster University researchers who want to test the Lightning Process.
 
The Lightning Process is a pseudoscientific mind-body program to try to treat Long COVID that has been accused of exploiting people with Long COVID and related diseases.
 
The trial is designed in part by a Lightning Process practitioner and prescreens participants for motivation using a questionnaire that isn’t validated for Long COVID.
 
There are very few trials and little funding in Canada for Long COVID research, and advocates believe that studying the Lightning Process instead of pathobiological pathways is a waste of funding.
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Make it Easy | Kia Māmā Mai @makeiteasy.bsky.social · 22/09/2026
Today is the International Day of Sign Languages and the 75th anniversary of the World Federation of the Deaf! This year's theme is "Declaring Deaf People's Human Rights", of which reasonable accommodations are a huge part. To learn more check out our Easy Read document at: tinyurl.com/5ywadrau
Blue tile with heading Easy Read document and the Make it Easy logo. Inside the tile is an image of an Easy Read translation called "Removing barriers: A guide about reasonable accommodation for disabled people". There is also an image of the first contents page of the document.Two people are sitting on chairs. They are communicating with each other using sign language.
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Disabled Persons Assembly NZ @dpanz.bsky.social · 22/09/2026
Canterbury locals, come meet the candidates and get your questions answered on disability issues. Saturday 26 September, 12 to 3:30pm (forum starts 1pm) BrainTree Wellness Centre, 70 Langdons Road, Papanui RSVP: Kaituitui.Ootautahi@dpa.org.nz or via linktr.ee/RoadToTheElectionCHCH
Flyer titled "Canterbury Disability Electoral Forum" with the tagline "Meet the candidates. Ask your questions. Get answers on disability issues." Event details: "Join us. Saturday 26 September, 12pm to 3:30pm. 12pm Networking, 1pm Forum starts. BrainTree Wellness Centre, 70 Langdons Road, Papanui." Bullet points: Light refreshments provided; NZSL interpreters available; ample parking including accessible spaces. RSVP text: "Email Ingrid to RSVP: Kaituitui.Ootautahi@dpa.org.nz." Logos for "A Whole New Attitude, Disabled Persons Assembly NZ," "Disability Leadership Canterbury, Waitaha for Every Body," and "WRLG, Waitaha EGL Regional Leadership Group" under "Brought to you by." Text reads "Scan for our Linktree to RSVP or join the conversation. Or use the website below: linktr.ee/RoadToTheElectionCHCH" next to a QR code. On the right, an illustration of two sheets of paper, the top one handwritten with "Our voices and votes count!", above an orange ballot box with a checked ballot going in.
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betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 22/09/2026
Today @thesicktimes.org: People with Long COVID are demanding a pause and review for a planned clinical trial that would test the Lightning Process, a pseudoscientific mind-body treatment. By @spichaksimon.bsky.social: thesicktimes.org/2026/09/22/p...
thesicktimes.org
People with Long COVID demand pause of McMaster University clinical trial - The Sick Times
The trial, run by researchers at McMaster University in Canada, is testing the Lightning Process, a pseudoscientific mind-body program that outside experts have heavily criticized.
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Lit Hub @literaryhub.bsky.social · 22/09/2026
Today, the Booker Prize Foundation announced the six books on the 2026 Booker Prize shortlist. buff.ly/Nz4VNdp
buff.ly
Here’s the shortlist for the 2026 Booker Prize.
Today, the Booker Prize Foundation announced the six books on the 2026 Booker Prize shortlist, whittled down from the “Booker’s Dozen” announced in July. The Booker is the UK’s mo…
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Felix Geiringer @barristernz.bsky.social · 22/09/2026
I'm at Unity Bookshop Wellington for the Nicky Hager book launch. The event is not due to start until 6 pm, but the room is mostly full already and filling up fast.
Unity Bookshop filling fast.
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jo @moerakijo.bsky.social · 22/09/2026
The Disability Debate, hosted by The D*List and The University of Auckland Disabled Students Association Join live in-person at The University of Auckland Grafton campus, or jump on the livestream to participate from anywhere in Aotearoa.
events.humanitix.com
Elections 2026: Disability Debate
With the upcoming elections in Aotearoa, AUDSA and The D*List invite you all to debate the issues that matter to Deaf and disabled communities.
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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 22/09/2026
COVID-19 — not TikTok — is disabling young women "People are so unaware of the myriad conditions COVID-19 can trigger and exacerbate." "Long COVID is a well-documented illness" producing "outcomes like ME, POTS and autoimmune disease" and "increasing risk of heart attacks, strokes and blood clots"
Screenshot of a September 21, 2026 article from The Sick Times headlined “COVID-19 — not TikTok — is disabling young women.” A subheading reads: “‘Sickfluencers’ are symptoms of a mass disabling event.” The article is written by Julia Doubleday. Below the headline is a photo of a young woman with long dark hair wearing a white face mask, teal sweater and black pants, standing outdoors beside a railing with trees in the background. Image source credited to Charlotte May/Pexels.
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Richard Easther @rjme.bsky.social · 22/09/2026
This needs a serious look -- NZ First copied their health policy almost word-for-word from the website of an advocacy group stuffed with fringe practitioners and for-profit "supplement" pedlars... www.stuff.co.nz/politics/361...
stuff.co.nz
NZ First’s health policy copy-pasted from advocacy group’s website
New Zealand First released a health policy on Sunday that is largely copy-and-pasted from a charitable trust called Make New Zealand Healthy.
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Make it Easy | Kia Māmā Mai @makeiteasy.bsky.social · 21/09/2026
Did you know this month is Cervical Screening Awareness month? If you have a cervix, now is a good time to check if you need a cervical screening. Find our Easy Read docs about cervical screening in our Easy Read Library at: tinyurl.com/yc3u4ydz
Blue tile with heading Easy Read document and the Make it Easy logo. Inside the tile is an image of an Easy Read translation called "Cervical Screening – What you need to kno". There is also an image of the contents page of the document.
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Too Long Covid 💚 @toolongcovid.bsky.social · 21/09/2026
"It’s very telling that POTS, ME, and EDS are all listed as common “sickfluencer” diagnoses. These are all associated with Long COVID and were considered relatively rare prior to COVID-19." thesicktimes.org/2026/09/21/c...
thesicktimes.org
COVID-19 — not TikTok — is disabling young women - The Sick Times
The Telegraph published an article titled, “How having a disability became cool." This article shores up the government narrative that rising rates of disability are being driven, not by the ongoing a...
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The Sick Times @thesicktimes.org · 21/09/2026
We want to know how you feel about the job we’re doing at The Sick Times. Please help us by taking this quick survey: www.surveymonkey.com/r/SS6ZH8S
A black background with white text reads, “If you have 5 minutes, we’d love your feedback on our Long COVID journalism. What do you say? Take the survey. The Sick Times.”
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betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 21/09/2026
Today @thesicktimes.org: We republished a recent piece by Julia Doubleday at The Gauntlet, pushing back on a much-derided ableist article in The Telegraph. "The state and its media allies are working desperately to sever the connection between COVID-19 and its consequences."
thesicktimes.org
COVID-19 — not TikTok — is disabling young women - The Sick Times
The Telegraph published an article titled, “How having a disability became cool." This article shores up the government narrative that rising rates of disability are being driven, not by the ongoing a...
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Bateman Horne Center @batemanhornecenter.bsky.social · 21/09/2026
After each online support group, we’ll share a few reflections from Timothy’s Shared Wisdom. This week: navigating others’ limitations, practicing acceptance, and finding meaning amid chronic illness. Get the full monthly recaps by email: bit.ly/3POhK4d
Dismissive responses reflect others' limited empathy; don't internalize—be selective about whom you explain yourself to.Timothy's wisdom: don't personalize others' denial; their capacity, not your worth. Support Group 9/15/26Green background titled Timothy's Shared Wisdom: quote on dual consciousness—acceptance plus pursuing improvement.
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