iiinova — where your digital self keeps evolving

Reposted by Sarah

UBI Works @ubiworks.bsky.social · 03/10/2026

It's commonly accepted that basic income would boost the economy, healthcare, and personal freedoms.

Portrait of Max Fawcett with quote arguing UBI boosts growth, supports jobs, and lowers healthcare costs.

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Dan Sohege @danielsohege.bsky.social · 03/10/2026

Labour once more attacking the vulnerable and already marginalized. Yes, more needs to be done to help young people, along with others, find employment, but not at expense of disabled people's lives. It's irrelevant someone's age if they need disability support 1/ www.theguardian.com/politics/202...

theguardian.com

Key disability benefit for young people may be axed under major welfare changes

Exclusive: Plan under discussion involves intensive support to help young people into employment

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Bateman Horne Center @batemanhornecenter.bsky.social · 02/10/2026

October is Dysautonomia Awareness Month. Standing can bring on a racing heart, dizziness, weakness, and other symptoms for people with POTS. This month, we’ll share resources to help patients, families, and clinicians understand POTS, dysautonomia and orthostatic intolerance.

Teal poster with a white awareness ribbon and text declaring October as Dysautonomia Awareness Month.

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Tessa Munt MP 🔶 @tessamunt.bsky.social · 02/10/2026

Thanks @thereforme.bsky.social! There must be serious review of the government’s inadequate response to #ME, with its cost to us all. Still considering best options to call for including @georgemonbiot.bsky.social proposed public inquiry, Select Committee Inquiry, a Czar or even referral to HSSIB.

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Sarah @no1sarah.bsky.social · 01/10/2026

It's the first day of Dysautonomia Awareness Month. I had never heard of it before it happened to me as a result of a Covid infection. It is dysfunction of the autonomoc nervous system - which controls everything our body does without our conscious control: 1/

Blue banner which reads "Dysautonomia awareness month October 2026"

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Darren Parkinson @greendarrenshipley.bsky.social · 01/10/2026

It's time for Andy Burnham's government to take #LongCovid seriously. A plan. Proper investment in research. Find treatments. Get us well again. It's not too much to ask.

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Kat Abughazaleh @katmabu.bsky.social · 29/09/2026

I literally don’t know a single woman who hasn’t been raped, stalked, groped, harassed, or sexually violated in some way at some point in their life. If you choose to doubt and dox survivors, just know every woman in your life is disgusted by you.

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EndMalnutritioninME @malnutritionme.bsky.social · 30/09/2026

Many people with severe and very #severeME do not receive enough care time to meet their basic daily needs of eating, drinking, washing, and toileting. People with #ME need recovery time between these activities and care visits do not allow for this.

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Lizzy @hopefullizzy.bsky.social · 29/09/2026

In 3weeks I turn 32. I’ve never had a relationship. Never been on holiday with friends. Never finished my education. Never been out to work. Never lived away from family. Each year, my world gets smaller. It’s 2yrs since I ate a meal. 16years since I went out on my own. I have #MECFS

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Greens Against Covid @greensagainstcovid.bsky.social · 27/09/2026

We are keen to see this voted through @greenparty.org.uk #Greenpartyconference. It's a significant improvement on the policies of the other parties, taking on board the findings of the #CovidInquiry, implementing disease prevention measures based on science, and research and support for illness.

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Sarah @no1sarah.bsky.social · 27/09/2026

Does a violin feel pain when it's badly played? It certainly sounds like it, according to countless witnesses.

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Lucibee @lucibee.bsky.social · 22/09/2026

NICE guidance NG206 is actually quite explicit. It says: "DO NOT offer people with ME/CFS ... any therapy based on physical activity or exercise as a cure for ME/CFS; ... or that uses fixed incremental [small, ie 10%] increases in physical activity or exercise, eg, graded exercise therapy" 🤦‍♀️

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Zack Polanski @zackpolanski.bsky.social · 24/09/2026

We can win in Holborn & St Pancras But we need your help on the streets to help make history. 💚

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Natasha Devon @natashadevon.bsky.social · 24/09/2026

George will be coming on my show this weekend to discuss this very important article.

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George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Kelly @broadwaybabyto.bsky.social · 22/09/2026

Spielberg is demonstrating he understands airborne infection and how to mitigate it! He’s outside at the opening of the Lucas Museum of Narrative Art and he’s wearing a KN95! A good respirator protects you and those around you. Covid is not over and a mask is a great way to stay healthy.

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shea in the catskills @sheainthecatskills.com · 23/09/2026

#Covid numbers are up. Airports are rife with it. The state will not keep us safe. Covid is not the flu. Even if your symptoms are mild, the risks of Long Covid are real, + the risk increases with each infection. Here's where I get my masks + tests. Let's keep each other safe 😷

sheainthecatskills.com

Protect yourself, care for each other

Covid numbers are up. Airports are rife with it. The state will not keep us safe. Covid is not the flu. Even if your symptoms are mild, the risks of Long Covid are real, + the risk increases with eac...

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Kristin Meekes @kmeekes.bsky.social · 22/09/2026

Clean indoor air would help reduce the spread of flu, covid, RSV, TB, measles…and on and on Clean air, vaccines, and normalizing masking are the way forward ✅

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Scott Santens @scottsantens.com · 22/09/2026

Nothing about UBI discourages work. It's a floor. It increases people's ability to choose what they do. It reduces survival stress. It enables people to spend more time with others. All of this increases well-being. All of this is what people born rich are born with. Where are the concerns for them?

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Sarah @no1sarah.bsky.social · 19/09/2026

So, if: parent 1 has absolved themselves of all responsibility for their child(ren), doesn't live with/see them, provides no financial support, & parent 2 is struggling, practically & financially, but doing their best to provide a loving home for their children: which parent receives the punishment?

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FrancesCrook@bsky.social @francescrook.bsky.social · 19/09/2026

Most children in prison have been in care, so will the idiot minister send the council to prison?

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crboxfoundationuk.bsky.social @crboxfoundationuk.bsky.social · 18/09/2026

If you are responsible for air quality decisions in a school, office or public building, two acronyms are worth knowing. CADR is how much clean air a unit delivers per hour. ACH is how many times the air in a room is fully replaced per hour. #CADR #ACH go.corsirosenthalfoundation.org.uk/lDBUoiH

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Left Foot Forward @left-foot-forward.bsky.social · 17/09/2026

Your regular reminder 👇 🏥 81% want publicly owned NHS 🏫 78% want publicly owned schools 💧 73% want publicly owned water 🚂 70% want publicly owned rail ✉️ 70% want publicly owned mail 🚍 67% want publicly owned buses 💡 65% want publicly owned energy

leftfootforward.org

EXCLUSIVE: Poll shows huge support for nationalisation of key industries and utilities

Privatisation has failed.

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CIDRAP @cidrap.bsky.social · 16/09/2026

Few people with the flu isolate for the recommended period Some people might shed the most influenza virus RNA just as their symptoms start to improve and they return to ordinary life. Read more: bit.ly/4rg4JyE

Close up of person's hands holding a cup of tea. Person is wearing a bathrobe.

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Get Yourself Active @getyrselfactive.bsky.social · 17/09/2026

Disabled people have a right to physical activity but many fear taking part will impact our eligibility for social security, new Activity Trap research shows. Join us for a webinar to discuss the research and next steps. 🗓️ 22nd October, 13:30 💻 Online www.eventbrite.co.uk/e/dismantlin...

eventbrite.co.uk

Dismantling the Activity Trap: A call for action

Sharing new Activity Trap research and action needed so disabled people can be active without risking social security

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Senthorun S. Raj @senthorun.bsky.social · 18/08/2026

A reminder: eugenics does not belong in academia — it belongs in the trash. It’s pretty basic.

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Adam @abrokenbattery.bsky.social · 16/09/2026

Having the reality of your illness denied “is almost as bad as the actual physical symptoms themselves.” Ed Yong, speaking about #LongCovid patients being disbelieved and dismissed, and how gender and racial bias affect their care.

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Trades Union Congress @tuc.org.uk · 16/09/2026

Young people want a job and a place of their own. But without guaranteed hours, what previous generations took for granted is out of reach.

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Prof. Catherine Rowett, ex MEP @catherinerowett.bsky.social · 16/09/2026

You don't solve the refugee problem by moving from hotels to barracks. You solve it by 1. Processing those waiting for an answer. 2. Addressing the causes of displacement, famine, economic deprivation and war. 3. Being honest about what is making life more and more rubbish for UK residents.

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Sarah @no1sarah.bsky.social · 15/09/2026

"Disability status is indeed a social identity akin to sexuality, gender, or race, because it describes the way we must move through the world in relation to others, and how others discriminate against us." open.substack.com/pub/thegaunt...

open.substack.com

COVID is disabling young women, not Tiktok

“Sickfluencers” are merely symptoms of a mass disabling event

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Living Streets @livingstreets.bsky.social · 14/09/2026

Our pavements are not for sale. Four in five Brits think delivery robots could cause issues for blind people and those with mobility issues. Tell the Government: pavements are for people, not vehicles. 👉 pavementoverload.com

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Michael Baym @baym.lol · 13/09/2026

Ten years ago Tami, Roy, and I released a movie we made of antibiotic resistance evolving in real time. I thought maybe a couple thousand people tops would see it. I couldn't have imagined it would be seen millions of times, and be taught from middle school through the graduate level worldwide

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Paula Knight 🎨✒️♿ @paulaknight.bsky.social · 13/09/2026

A couple of weeks ago it was my 3000th day bedridden. I drew this to mark the occasion. It's a long time for both illness-haver and carer #MyalgicEncephalomyelitis #MEcfs #ChronicIllness #DisabledArtists

A three panel one page comic featuring a white woman in a profiling bed in grey blue watercolour and the words 3,000 days in bed with severe myalgic encephalomyelitis. Other colours are brick red and muted orange

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Patient Safety Learning @patientsafetylearning.org · 13/09/2026

🧵#WorldSepsisDay 🧵 (1/5) Early recognition and treatment of sepsis is vital to save lives. Featured on the hub today, a series of short videos aiming to raise awareness of the key signs and symptoms of sepsis. www.pslhub.org/learn/patien... #patientsafety

pslhub.org

Spotting the signs of sepsis: a series of short videos

This series of short videos (each under two minutes), produced by Patient Safety Learning in collaboration with Ron Daniels and The UK Sepsis Trust, aims to raise awareness of the key signs and…

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Sarah @no1sarah.bsky.social · 11/09/2026

"Fragrances like air fresheners can trigger headaches, coughing or dizziness. " Or for some, asthma attacks or anaphylaxis. Fragrance isn't just a matter of personal preference/ taste. In public spaces, it's an accessibility issue.

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Adam @abrokenbattery.bsky.social · 11/09/2026

Today marks 25 years since 9/11. 8 months after the attack, psychiatrist Simon Wessely argued that illness reported around Ground Zero was being wrongly attributed to environmental toxins, suggesting “World Trade Centre Syndrome” was driven by social and psychological factors.

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Long Covid Kids @longcovidkids.bsky.social · 01/09/2026

📄 Our FREE IHCP template is available in Word and PDF to help families and schools start these conversations. It may also be useful elsewhere, although education law, guidance and processes differ. 🔗 www.longcovidkids.org/download-res... Every child deserves a childhood they can participate in. 🧡

Long Covid Kids graphic directing families to download the free Individual Healthcare Plan template from the Long Covid Kids website. The image shows the Long Covid Kids download resources webpage and the web address for the download resources page.

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Long Covid Kids @longcovidkids.bsky.social · 09/09/2026

.🧵 1/7 When Long Covid affects a child’s education, attendance is only part of the story. As a new school year begins, new research looks beyond whether children are present in school, to learning, attention and friendships. #Education #InclusiveEducation #Attendance

Long Covid Kids graphic. “When Long Covid affects a child’s education, attendance is only part of the story.” New research looks at the impact on learning, attention and friendships.

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World Health Network @thewhn.bsky.social · 09/09/2026

Long COVID can affect far more than just energy levels. Symptoms may involve the brain, heart, lungs, immune system, digestion, sleep, senses, mood and other parts of the body, and can persist long after the initial infection. Reducing your risk of COVID also reduces your risk of Long COVID.

Graphic from the World Health Network (whn.global). Large headline: “Long COVID can affect nearly every part of the body.” Supporting text: “Symptoms can involve the brain, heart, lungs, immune system, digestion, sleep, senses, mood, reproductive health and more.” A teal box at the bottom reads: “Avoid Long COVID by avoiding COVID.”

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Tom Kindlon @tomkindlon.bsky.social · 09/09/2026

10 years today, after a David vs Goliath FOI legal battle that damaged Alem Mathees, White et al were forced to release data from PACETrial (that cost UK taxpayers £5M) showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS. Please remind the world #MEcfs #PwME #CFS

Rethinking the treatment of chronic fatigue syndrome-a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
Carolyn E Wilshire 1 , Tom Kindlon 2 , Robert Courtney 3 , Alem Matthees 4 , David Tuller 5 , Keith Geraghty 6 , Bruce Levin 7
Affiliations Expand

PMID: 29562932 PMCID: PMC5863477 DOI: 10.1186/s40359-018-0218-3

Abstract

Background: The PACE trial was a well-powered randomised trial designed to examine the efficacy of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for chronic fatigue syndrome. Reports concluded that both treatments were moderately effective, each leading to recovery in over a fifth of patients. However, the reported analyses did not consistently follow the procedures set out in the published protocol, and it is unclear whether the conclusions are fully justified by the evidence.

Methods: Here, we present results based on the original protocol-specified procedures. Data from a recent Freedom of Information request enabled us to closely approximate these procedures. We also evaluate the conclusions from the trial as a whole.

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Jay Troyer @gr8flbluejay.bsky.social · 07/09/2026

Criselda Vasquez, American, The New American Gothic, 2017, oil on canvas, 72 x 48 in, private collection The artist's father, portrayed in the painting, was kidnapped by ICE on 31 March 2026

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Little Green Space @lgspace.bsky.social · 08/09/2026

A single 400-year-old ancient oak produces 234,000 litres of oxygen a year while soaking up carbon dioxide, and can support more than 2,000 species of bird, insect, fungus, and lichen. Nature is amazing - we need more of it, not less. Please repost if you agree 🌳

Mature oak trees with bare branches in an autumn woodland

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Adam @abrokenbattery.bsky.social · 08/09/2026

#MECFS and #LongCovid often means people miss out on places that matter. The Mirror Box brings their voices back into those spaces. This weekend it will be at the Royal Opera House, London, 12–13 Sept 2026. Listen to the recording & send a postcard back. www.iwouldbehereificould.com/message/the-...

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Sarah @no1sarah.bsky.social · 08/09/2026

"Require NHS organisations to introduce fragrance awareness measures, including signage, staff guidance, and consideration of low to zero fragrance areas to reduce preventable reactions in sensitive patients." petition.parliament.uk/petitions/76...

petition.parliament.uk

Petition: Require NHS settings to address fragrance exposure as a patient safety risk

Require NHS organisations to introduce fragrance awareness measures, including signage, staff guidance, and consideration of low to zero fragrance areas to reduce preventable reactions in sensitive pa...

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It's Pipes, Mum! Pipes is here! @scriblit.bsky.social · 07/09/2026

For UK & RoI based authors, illustrators etc etc only, but loads of people don't know this. NEVER feel bad getting a book from the library! We get paid! Really quite well! PLR money is a real help for small-mid range authors!

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Kent Current @kentcurrent.news · 07/09/2026

Kent Police made no arrests when about 200 masked far-right activists blocked Dover for hours. It still calls the action spontaneous, despite evidence that people involved gathered nearby the night before. We examine what happened and why the force says its response was proportionate.

kentcurrent.news

How did a masked far-right mob block Dover for hours without a single arrest?

Plus the dramatic collapse of Kent's council reorganisation, a Tory split at County Hall, and the week across the county

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Carole Bruce @cabruce.bsky.social · 29/08/2026

The Department for Work and Pensions has appointed Professor David Strain as its new Chief Medical Advisor. This is what he said at the inquest into the death of Maeve Boothby O’Neil from #ME I sincerely hope that he is reminded of these words he spoke under oath. He must work for changing this.

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