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DrMichelleBull💙

@michelleb4.bsky.social
1K followers 419 following 59 posts

A mixture of stuff #MECFS #LongCovid #frailty #mtb #cycling #feelthefearanddoitanyway co-founder @PhysiosForME Views are all my own

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Reposted by DrMichelleBull💙
Tom Kindlon @tomkindlon.bsky.social · 20/06/2026
Great to see this in UK Chartered Society of Physiotherapy's magazine "Frontline"👏 @physiosforme.bsky.social "How can physiotherapists provide effective therapies while ensuring [ME] patients with this debilitating condition feel safe & supported?" www.csp.org.uk/frontline/ar... #MEcfs #PhysioEd
Chartered Society of Physiotherapy logo

Logo for Frontline, the physiotherapy magazine for CSP members 

Do no harm: supporting people with ME/CFS

How can physiotherapists provide effective therapies while ensuring patients with this debilitating condition feel safe and supported? Physios for ME offer their thoughts
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DrMichelleBull💙 @michelleb4.bsky.social · 17/05/2026
Do you work with older people but wouldn’t describe yourself as a “frailty specialist”. If so, this is for you! Frailty doesn’t always present neatly. It might look like a fall. New confusion. A sudden change in mobility. A carer saying: “they’re just not themselves.” 1/9
Poster detailing course content
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DrMichelleBull💙 @michelleb4.bsky.social · 12/05/2026
Really proud of getting this article published. We set this as an aim when we first got together so am really pleased 🥳 Thank you to @thecsp.bsky.social for supporting this important message
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DrMichelleBull💙 @michelleb4.bsky.social · 20/03/2026
Does anyone know if any of the ME/CFS charities have prepared a response to the #SEND reform consultation at all? @actionforme.bsky.social @meassociation.org.uk
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DrMichelleBull💙 @michelleb4.bsky.social · 21/02/2026
Today I had the pleasure of speaking with a knowledgeable patient group about pacing in ME/CFS, with a particular focus on how wearables might support pacing and symptom management. In preparing the talk, I looked at the emerging research on wearable-supported pacing including.. 1/5
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DrMichelleBull💙 @michelleb4.bsky.social · 15/10/2025
Update on our latest publication @physiosforme.bsky.social @claguenjc36.bsky.social @sunsopeningband.bsky.social
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DrMichelleBull💙 @michelleb4.bsky.social · 16/09/2025
Went to Manchester for the #hsjpatientsafety awards - so proud to have won the education and training category with our amazing Frailty Academy #frailty
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DrMichelleBull💙 @michelleb4.bsky.social · 14/09/2025
Taking some time to find my way round @bsky.app Anyone got any top tips for me as I am still trying to work out how to get the best from being here! Thank you
media.tenor.com
a small white dog wearing a pink tutu is standing on a gravel road
ALT: a small white dog wearing a pink tutu is standing on a gravel road
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Physios For ME @physiosforme.bsky.social · 01/09/2025
Pleased to have assisted @thecsp.bsky.social to write this piece for their magazine, which goes out to all chartered physiotherapists in the UK.
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Physios For ME @physiosforme.bsky.social · 08/08/2025
It is #SevereMEDay Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission. We can play a key role in education of other health professionals, to advocate for safe management and care @thecsp.bsky.social www.physiosforme.com/severe-me
physiosforme.com
Severe ME | Physiosforme
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DrMichelleBull💙 @michelleb4.bsky.social · 10/07/2025
Proud to be part of the RoyalSurrey frailty team heading for @rcphysicians.bsky.social awards this evening- finalists in two categories for the #EPCA2025 awards
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DrMichelleBull💙 @michelleb4.bsky.social · 29/06/2025
A fab weekend spent with like minded colleagues who I well and truly count as friends!
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Dr Nicola Clague-Baker @claguenjc36.bsky.social · 29/06/2025
youtu.be/vv0pUwoF9J0?si… Well done @michelleb4.bsky.social you represented @physiosforme.bsky.social so well. Some great #ME talks, well done all at the ME/CFS conference, digging deeper - Norway.
youtu.be
Michelle Bull - Living with ME/CFS and Long Covid - Managing symptoms (Norwegian subtitles)
YouTube video by Norges ME-forening - Rogaland Fylkeslag
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DrMichelleBull💙 @michelleb4.bsky.social · 25/05/2025
Proud to stand alongside colleagues in supporting the need for evidence based science to improve care for people living with #ME and or #LongCovid There is no place for the outdated nonsense in recent BMJ article
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Binita Kane @binitakane.bsky.social · 21/05/2025
Our evidence-based rebuttal to *that* BMJ opinion piece published last week. This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community. www.bmj.com/content/389/...
bmj.com
Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.
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DrMichelleBull💙 @michelleb4.bsky.social · 17/05/2025
Great response from @naomidharvey.bsky.social www.bmj.com/content/383/...
bmj.com
Steps doctors and other medical professionals can take today to improve medical care for people with Myalgic Encephalomyelitis
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DrMichelleBull💙 @michelleb4.bsky.social · 15/05/2025
Feel very privileged to have spent time with @putrinolab.bsky.social & others in the last week discussing actual evidence based robust science relating to ME and Long Covid. There is no room for this sort of nonsense @bmj_latest
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Carmen Scheibenbogen @scheibenbogen.bsky.social · 11/05/2025
Tomorrow the 3rd International ME/CFS Research Conference of Charité will take place in Berlin. You can still register for free. Thank you Cort Johnson for the announcement. www.healthrising.org/blog/2025/05...
healthrising.org
The 2025 Berlin International ME/CFS Research Conference is Almost Here! - Health Rising
For the third year in a row, Dr. Carmen Scheibenbogen and the Charité Fatigue Center (CFC) at Charité —Universitätsmedizin (a good German tongue twister :)) in Berlin are bringing us an ME/CFS and lon...
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DrMichelleBull💙 @michelleb4.bsky.social · 11/05/2025
Just back from a wonderful week in Norway for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different. Fantastic to meet @putrinolab.bsky.social @bmhughes.bsky.social in person along with others who I can't find to tag ...1/3
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DrMichelleBull💙 @michelleb4.bsky.social · 09/05/2025
What a great letter. Thank you
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DrMichelleBull💙 @michelleb4.bsky.social · 02/03/2025
@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social I'm an ally for people with ME - they deserve better from us as health professionals #FundThePlan
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Physios For ME @physiosforme.bsky.social · 23/02/2025
A new international survey has been released exploring the experiences of athletes with ME / Long Covid (with PEM) Please share widely - all info on our website here www.physiosforme.com/athletessurvey
physiosforme.com
ME in Athletes Survey | Physiosforme
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DrMichelleBull💙 @michelleb4.bsky.social · 21/01/2025
🚨 We're recruiting 🚨 If you're looking for a role in NHS ops as part of a great team, take a look! As the national focus shifts to community based services, you’ll be at the forefront, leading the delivery of outstanding care for older adults #frailty www.royalsurrey.nhs.uk/current-vaca...
royalsurrey.nhs.uk
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Jugdeep Dhesi @jkdhesi.bsky.social · 23/12/2024
40% of ED attendances are over 65yrs. Average wait for admission in>75yrs =12 hours. 10% attendances from care homes. Waiting is especially bad for older -risk of delirium, deconditioning, acute kidney injury/LOS. But much could be done to avoid these probs @gerisoc.bsky.social @rcem.bsky.social
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Jugdeep Dhesi @jkdhesi.bsky.social · 05/01/2025
Great opportunity to talk on BBC Breakfast today about the amazing work of our frailty teams across the four nations. Thank you to everyone working in these services today in the snow!! @gerisoc.bsky.social
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Jugdeep Dhesi @jkdhesi.bsky.social · 03/01/2025
We know considered, timely (soon!) social care reform is essential to deliver quality healthcare for older (&younger) people &to reduce daily crisis management in NHS. A consistent message from patients, carers, @gerisoc.bsky.social & our partner organisations. Let’s build on what we already know
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DrMichelleBull💙 @michelleb4.bsky.social · 04/01/2025
Sunday morning #CPD (on a Saturday - have had some days off & no idea what day of the week it is really!) A great article from @otskiff.bsky.social & Ciara Brean journals.lww.com/cptj/fulltex... Lots of learning about cognitive dysfunction in #LongCovid & #MECFS @physiosforme.bsky.social
journals.lww.com
More than “Brain Fog”: Cognitive Dysfunction and the Role... : Cardiopulmonary Physical Therapy Journal
e activity is considered when working with people with long COVID, particularly when identifying triggers of post exertional symptom exacerbation. There are many potential mechanisms that could be dri...
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Kristin Houlihan, Writer @kristinwrites.bsky.social · 04/01/2025
I’d like to crowdsource a poem, if you all are willing: If you have #LongCovid, please name your worst 3-5 symptoms. I’m gonna track responses and make a word cloud. The more the better so please share!
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valebodi.bsky.social @valebodi.bsky.social · 30/12/2024
The increased alanine and BCAA levels in females, in particular, suggested, for the first time I can remember, a metabolic reason why more women may have ME/CFS. It turns out that women, more so than men, rely on a process called anaplerosis to replenish their www.healthrising.org/blog/2024/12...
healthrising.org
Why Do More Women Get ME/CFS? Study Suggests it May be the Mitochondria... - Health Rising
Major chronic fatigue syndrome metabolomic finds problems with energy production and lipid metabolism in ME/CFS.
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Long COVID Physio @longcovidphysio.bsky.social · 30/12/2024
We promised that the #LCPForum was research generating … … so here it is 💙📰 Priorities for Research, Education, Clinical Practice, and Policy From the Long COVID Physio International Forum #LongCOVID journals.lww.com/cptj/fulltex...
journals.lww.com
Priorities for Research, Education, Clinical Practice, and... : Cardiopulmonary Physical Therapy Journal
litation. Methods: We conducted an international consultation on priorities for long COVID and rehabilitation with people living with long COVID, clinicians, researchers, and other key interest-hol...
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Todd Davenport @sunsopeningband.bsky.social · 30/12/2024
Karin Steere PT DPT PhD provides an overview on the science and clinical application of measuring heart rate variability in people with #LongCovid, potentially of interest to people and companies using HRV measurements to monitor disease activity and guide pacing. journals.lww.com/cptj/fulltex...
journals.lww.com
Evidence-Based Clinical Utility of Heart Rate Variability... : Cardiopulmonary Physical Therapy Journal
ts: Measurement devices vary significantly in their validity and reliability when compared with the gold standard of electrocardiogram (ECG). Wrist and hand devices typically demonstrate diminished ...
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Todd Davenport @sunsopeningband.bsky.social · 30/12/2024
Helen Skiffington OT BSc (UK) and Ciara Breen MSc HCM (Ireland) contribute a clinical perspective on clinical identification and management of cognitive dysfunction in individuals with #LongCovid. journals.lww.com/cptj/fulltex...
journals.lww.com
More than “Brain Fog”: Cognitive Dysfunction and the Role... : Cardiopulmonary Physical Therapy Journal
e activity is considered when working with people with long COVID, particularly when identifying triggers of post exertional symptom exacerbation. There are many potential mechanisms that could be dri...
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DrMichelleBull💙 @michelleb4.bsky.social · 29/12/2024
Glad to have been part of this work - and the opportunity to learn from working with colleagues whose paths wouldn't usually cross mine. Exciting to see it published
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Mills @darlingems.bsky.social · 24/12/2024
This book has a lot of great insight, especially to those who are new to or relatively unfamiliar with ME/CFS.
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Physios For ME @physiosforme.bsky.social · 23/12/2024
We'll be taking a break for the Christmas period, but wanted to wish everyone a restful season. We'll be back in 2025 to continue our work in education, advocacy and research for #pwME ❤️
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sarah boothby @swastrosarah.bsky.social · 18/12/2024
Thankful to @physiosforme.bsky.social for being able to reference their seminal, "A Physiotherapists's guide to Understanding and Managing ME/CFS" (2023) and Jessica Kingsley Publishers for this initiative. It will assist NHS staff to know better what specialist services should be offering.
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Physios For ME @physiosforme.bsky.social · 23/12/2024
Happy that our book continues to help educate and inform physios and other health and care professionals You can find out more here www.physiosforme.com/our-book
physiosforme.com
Our Book | Physiosforme
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Mark Faghy @profmarkfaghy.bsky.social · 01/12/2024
#12waysofERASE #1 We adapt our research to the participants rather than participants being made to adapt to our research. We design our environment to be quiet with adjustable lighting and temperature. Easy accessibility with parking and wheelchair availability is essential.
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Mark Faghy @profmarkfaghy.bsky.social · 30/11/2024
As we approach December & our final week of remdesivir infusions for 2024, we thought it timely to share how we have used and considered LC lived experience to guide our award-winning research. Each day for the next 12 days we will share our guiding principles that make the #12waysofERASE
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DrMichelleBull💙 @michelleb4.bsky.social · 01/12/2024
👀 👀 worth a watch to see how the lived experience of people should inform research (as opposed to them being dismissed as activists or worse)
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Brian Hughes @bmhughes.bsky.social · 28/11/2024
A new BMJ review claims that #LongCovid can be treated using CBT and physical exercise As ever, the devil is in the detail TL; DR the authors' own risk-of-bias analyses show that their own conclusion is unwarranted (Too bad they hid the crucial deets in an online supplement!) cc #pwME #MECFS
thesciencebit.net
That BMJ review of Long Covid therapies does not show what it says it does
The BMJ have published a “living systematic review” of interventions for the management of Long Covid. It sets out to gather all relevant studies, and to comb their findings in order to see what works...
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Kirstie Sivapalan @kirsties.bsky.social · 28/11/2024
Some shockingly bad statements here: Two of CBT studies cited - one didn't include PEM in fatigue criteria, other excluded PEM or "exercise contraindicated" but somehow conclusion is CBT best option for LC? But apparently, the reviewers think they're free from any ideology... t.co/3KlzbMXOmt
t.co
https://www.bmj.com/content/387/bmj-2024-081318/article-info?_gl=1*1ntpkb4*_up*MQ..*_gs*MQ..&gclid=Cj0KCQiAo5u6BhDJARIsAAVoDWu6wCwB8OFH3qDndRpTLwa5naMPA1KwRn3bxjIT9lbiepLDYlaedwMaAi6LEALw_wcB&gbraid=0...
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DrMichelleBull💙 @michelleb4.bsky.social · 21/11/2024
Fantastic presentation from @CMO_England to finish off my two days at #BGSConf . So good to hear #AHPs being included in workforce planning discussions @gerisoc.bsky.social
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Adam Gordon MBE @adamgordon1978.bsky.social · 21/11/2024
Chris Whitty reminds #bgsconf that the majority reach later life in relatively good health @gerisoc.bsky.social
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Adam Gordon MBE @adamgordon1978.bsky.social · 20/11/2024
“Be more Ted Lasso” - if you want to improve systems be curious about why motivated colleagues who are doing their best don’t always do what we think is the right thing says @sheffielddoc.bsky.social #bgsconf @gerisoc.bsky.social
media.tenor.com
a man with a mustache is pointing at another man in front of a sign that says `` believe you must '' .
ALT: a man with a mustache is pointing at another man in front of a sign that says `` believe you must '' .
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DrMichelleBull💙 @michelleb4.bsky.social · 16/11/2024
A thread worth reading about the importance of considering the whole energy envelope for people with #ME and/or #LongCovid Like @sunsopeningband.bsky.social I'm equally passionate about the benefits of exercise to support rehab - when it is safe and appropriate to do so!
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Dr Nicola Clague-Baker @claguenjc36.bsky.social · 15/11/2024
In the runup to Xmas it's worth highlighting our book as a possible present for #physios and other #hcps wanting to learn about #ME. I'm still v proud of what we produced and it is still v relevant. @PhysiosForME www.awesomebooks.com/book/9781839...
awesomebooks.com
A Physiotherapist's Guide to Understanding and Managing ME/CFS | Karen Leslie,Nicola Clague-Baker,Natalie Hilliard,Michelle Bull | 9781839971433
A Physiotherapist's Guide to Understanding and Managing ME/CFS by Karen Leslie,Nicola Clague-Baker,Natalie Hilliard,Michelle Bull | 9781839971433, Buy new & second-hand (used) books online with Free U...
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DrMichelleBull💙 @michelleb4.bsky.social · 14/11/2024
There is a survey on improving physiotherapy education, with opportunity for service users to input. Follow this link, click "complete a survey", and scroll to "Charities and Patient Groups- Patient Advocates" A great opportunity to be heard! www.csp.org.uk/networks/hig...
csp.org.uk
Transforming Quality in Pre-Registration Physiotherapy Education
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DrMichelleBull💙 @michelleb4.bsky.social · 13/11/2024
Still getting used to the world over here! Just wondering if the #ME community can point me in the direction of any research/articles about #ME in #olderpeople Thank you
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DrMichelleBull💙 @michelleb4.bsky.social · 17/09/2024
On #WorldPatientSafetyDay, happy to be one of the 200 healthcare professionals who signed the letter to @wesstreeting in collaboration with #There4ME calling for urgent action to improve care for people with severe #ME and #LongCovid.
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