iiinova — where your digital self keeps evolving

DrMichelleBull💙 @michelleb4.bsky.social · 21/09/2026

Also worth looking at Norway and their draft guidance which i believe is "fatigue" based and lumps ME in with other types of fatigue

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DrMichelleBull💙 @michelleb4.bsky.social · 21/06/2026

It is hard when you have been taught one way but we do need to retain intellectual curiosity and listen to people who live every day with their condition

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Tom Kindlon @tomkindlon.bsky.social · 20/06/2026

Great to see this in UK Chartered Society of Physiotherapy's magazine "Frontline"👏 @physiosforme.bsky.social "How can physiotherapists provide effective therapies while ensuring [ME] patients with this debilitating condition feel safe & supported?" www.csp.org.uk/frontline/ar... #MEcfs #PhysioEd

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DrMichelleBull💙 @michelleb4.bsky.social · 17/05/2026

8/ If we want neighbourhood health to work well for older people living with frailty, we need to build frailty capability across the whole workforce. That is what our course is designed to support. #Frailty #OlderPeople #IntegratedCare #NeighbourhoodHealth #CGA 9/9

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DrMichelleBull💙 @michelleb4.bsky.social · 17/05/2026

Frailty for Professionals 📅 23–24 June 2026 💻 Virtual two-day course 🎓 13 CPD credits ✅ Fully accredited by the Royal College of Physicians 🏆 Part of our award-winning Frailty Academy Scan the QR code or email us on the poster or use the registration link to book. 8/9

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DrMichelleBull💙 @michelleb4.bsky.social · 17/05/2026

One of the things delegates often value most is learning alongside professionals from different backgrounds and organisations. That shared learning makes the discussion richer, more practical and more relevant to real-world care. 7/9

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DrMichelleBull💙 @michelleb4.bsky.social · 17/05/2026

This is not just a course for frailty specialists. It is for anyone working with older people including colleagues in community, primary care, urgent care, social care, care homes, rehabilitation, voluntary sector and neighbourhood teams. 6/9

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DrMichelleBull💙 @michelleb4.bsky.social · 17/05/2026

We’ll cover key areas including: • frailty awareness and early recognition • delirium and frailty syndromes • Comprehensive Geriatric Assessment • Advance Care Planning conversations • pragmatic prescribing and medicines review • ageing well, prevention and deconditioning 5/9

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DrMichelleBull💙 @michelleb4.bsky.social · 17/05/2026

...They will need shared knowledge, shared language and shared confidence. So join us for our next Frailty for Professionals course virtually on 23–24 June 2026. It’s a practical, case-based two-day course for people working with older people across health, care and community settings. 4/9

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DrMichelleBull💙 @michelleb4.bsky.social · 17/05/2026

Getting care right for older people living with frailty is one of the biggest opportunities in neighbourhood health (as well as having specific objectives in the framework). But new models of care need more than structures and pathways.... 3/9

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DrMichelleBull💙 @michelleb4.bsky.social · 17/05/2026

In neighbourhood, community, primary care, urgent care, social care, care home and rehab settings, recognising frailty early can make a real difference. It can help us intervene earlier, plan better, prevent avoidable harm and support people to stay well for longer. 2/9

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DrMichelleBull💙 @michelleb4.bsky.social · 17/05/2026

Do you work with older people but wouldn’t describe yourself as a “frailty specialist”. If so, this is for you! Frailty doesn’t always present neatly. It might look like a fall. New confusion. A sudden change in mobility. A carer saying: “they’re just not themselves.” 1/9

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DrMichelleBull💙 @michelleb4.bsky.social · 12/05/2026

Really proud of getting this article published. We set this as an aim when we first got together so am really pleased 🥳 Thank you to @thecsp.bsky.social for supporting this important message

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DrMichelleBull💙 @michelleb4.bsky.social · 20/03/2026

Does anyone know if any of the ME/CFS charities have prepared a response to the #SEND reform consultation at all? @actionforme.bsky.social @meassociation.org.uk

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DrMichelleBull💙 @michelleb4.bsky.social · 01/03/2026

Oh the irony indeed. This is the reality of pacing done well isn't it. I'll message you

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DrMichelleBull💙 @michelleb4.bsky.social · 21/02/2026

There’s much more to discover, but the evidence base is growing that wearables may be a useful tool for some people living with ME/CFS and/or Long Covid. Thank you to the Richmond & Kingston ME group for inviting me and for some excellent questions. 5/5 www.richmondandkingstonmegroup.org.uk

richmondandkingstonmegroup.org.uk

Richmond and Kingston ME Group | ME | United Kingdom

Richmond & Kingston ME Support Group. An active and supportive online community offering online chat and quieter meetings; WhatsApp and e-mail groups; local cafe gatherings and a range of information ...

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DrMichelleBull💙 @michelleb4.bsky.social · 21/02/2026

This AI generated infographic below summarises our @physiosforme.bsky.social feasibility study of heart-rate monitoring to support pacing, which found the protocol was feasible, well tolerated and well received, with high levels of continued use after the study ended. 4/5

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DrMichelleBull💙 @michelleb4.bsky.social · 21/02/2026

to capture what clinic visits often miss: fluctuation, delayed recovery & PEM. ME/CFS research needs the same quality & scale but the direction of travel matters: better measurement & more objective outcomes can support more realistic pacing conversations & larger scale trials 3/5

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DrMichelleBull💙 @michelleb4.bsky.social · 21/02/2026

work using heart rate, HRV & recovery patterns to better understand physiological strain over time. What’s encouraging is the progress in Long Covid (thanks to Rob Wust @putrinolab.bsky.social & others): more studies are using continuous, real-world data (HR/HRV/sleep/activity patterns)..2/5

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DrMichelleBull💙 @michelleb4.bsky.social · 21/02/2026

Today I had the pleasure of speaking with a knowledgeable patient group about pacing in ME/CFS, with a particular focus on how wearables might support pacing and symptom management. In preparing the talk, I looked at the emerging research on wearable-supported pacing including.. 1/5

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DrMichelleBull💙 @michelleb4.bsky.social · 16/09/2025

Went to Manchester for the #hsjpatientsafety awards - so proud to have won the education and training category with our amazing Frailty Academy #frailty

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DrMichelleBull💙 @michelleb4.bsky.social · 14/09/2025

Good plan - thank you for the advice 🙏🏻

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DrMichelleBull💙 @michelleb4.bsky.social · 14/09/2025

Taking some time to find my way round @bsky.app Anyone got any top tips for me as I am still trying to work out how to get the best from being here! Thank you

media.tenor.com

a small white dog wearing a pink tutu is standing on a gravel road

ALT: a small white dog wearing a pink tutu is standing on a gravel road

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Physios For ME @physiosforme.bsky.social · 01/09/2025

Pleased to have assisted @thecsp.bsky.social to write this piece for their magazine, which goes out to all chartered physiotherapists in the UK.

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Physios For ME @physiosforme.bsky.social · 08/08/2025

It is #SevereMEDay Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission. We can play a key role in education of other health professionals, to advocate for safe management and care @thecsp.bsky.social www.physiosforme.com/severe-me

physiosforme.com

Severe ME | Physiosforme

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DrMichelleBull💙 @michelleb4.bsky.social · 10/07/2025

Proud to be part of the RoyalSurrey frailty team heading for @rcphysicians.bsky.social awards this evening- finalists in two categories for the #EPCA2025 awards

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DrMichelleBull💙 @michelleb4.bsky.social · 29/06/2025

A fab weekend spent with like minded colleagues who I well and truly count as friends!

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Dr Nicola Clague-Baker @claguenjc36.bsky.social · 29/06/2025

youtu.be/vv0pUwoF9J0?si… Well done @michelleb4.bsky.social you represented @physiosforme.bsky.social so well. Some great #ME talks, well done all at the ME/CFS conference, digging deeper - Norway.

youtu.be

Michelle Bull - Living with ME/CFS and Long Covid - Managing symptoms (Norwegian subtitles)

YouTube video by Norges ME-forening - Rogaland Fylkeslag

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DrMichelleBull💙 @michelleb4.bsky.social · 25/05/2025

Proud to stand alongside colleagues in supporting the need for evidence based science to improve care for people living with #ME and or #LongCovid There is no place for the outdated nonsense in recent BMJ article

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Binita Kane @binitakane.bsky.social · 21/05/2025

Our evidence-based rebuttal to *that* BMJ opinion piece published last week. This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community. www.bmj.com/content/389/...

bmj.com

Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.

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DrMichelleBull💙 @michelleb4.bsky.social · 15/05/2025

Feel very privileged to have spent time with @putrinolab.bsky.social & others in the last week discussing actual evidence based robust science relating to ME and Long Covid. There is no room for this sort of nonsense @bmj_latest

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DrMichelleBull💙 @michelleb4.bsky.social · 11/05/2025

Plus the cycling was truly fantastic & I'm already planning my next trip. Would highly recommend Stavanger all round as a beautiful place to visit😎🚵🚴 3/3

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DrMichelleBull💙 @michelleb4.bsky.social · 11/05/2025

Was made to feel so welcome by the hosts - inspirational patient advocates. Feel very privileged to have been able to spend 3 days talking about ME with people who want to make change. Planning a more detailed update on @physiosforme.bsky.social v soon 2/3

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DrMichelleBull💙 @michelleb4.bsky.social · 11/05/2025

Just back from a wonderful week in Norway for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different. Fantastic to meet @putrinolab.bsky.social @bmhughes.bsky.social in person along with others who I can't find to tag ...1/3

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DrMichelleBull💙 @michelleb4.bsky.social · 02/03/2025

@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social I'm an ally for people with ME - they deserve better from us as health professionals #FundThePlan

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Physios For ME @physiosforme.bsky.social · 23/02/2025

A new international survey has been released exploring the experiences of athletes with ME / Long Covid (with PEM) Please share widely - all info on our website here www.physiosforme.com/athletessurvey

physiosforme.com

ME in Athletes Survey | Physiosforme

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DrMichelleBull💙 @michelleb4.bsky.social · 21/01/2025

🚨 We're recruiting 🚨 If you're looking for a role in NHS ops as part of a great team, take a look! As the national focus shifts to community based services, you’ll be at the forefront, leading the delivery of outstanding care for older adults #frailty www.royalsurrey.nhs.uk/current-vaca...

royalsurrey.nhs.uk

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Jugdeep Dhesi @jkdhesi.bsky.social · 23/12/2024

40% of ED attendances are over 65yrs. Average wait for admission in>75yrs =12 hours. 10% attendances from care homes. Waiting is especially bad for older -risk of delirium, deconditioning, acute kidney injury/LOS. But much could be done to avoid these probs @gerisoc.bsky.social @rcem.bsky.social

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Jugdeep Dhesi @jkdhesi.bsky.social · 05/01/2025

Great opportunity to talk on BBC Breakfast today about the amazing work of our frailty teams across the four nations. Thank you to everyone working in these services today in the snow!! @gerisoc.bsky.social

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Jugdeep Dhesi @jkdhesi.bsky.social · 03/01/2025

We know considered, timely (soon!) social care reform is essential to deliver quality healthcare for older (&younger) people &to reduce daily crisis management in NHS. A consistent message from patients, carers, @gerisoc.bsky.social & our partner organisations. Let’s build on what we already know

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Kristin Houlihan, Writer @kristinwrites.bsky.social · 04/01/2025

I’d like to crowdsource a poem, if you all are willing: If you have #LongCovid, please name your worst 3-5 symptoms. I’m gonna track responses and make a word cloud. The more the better so please share!

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valebodi.bsky.social @valebodi.bsky.social · 30/12/2024

The increased alanine and BCAA levels in females, in particular, suggested, for the first time I can remember, a metabolic reason why more women may have ME/CFS. It turns out that women, more so than men, rely on a process called anaplerosis to replenish their www.healthrising.org/blog/2024/12...

healthrising.org

Why Do More Women Get ME/CFS? Study Suggests it May be the Mitochondria... - Health Rising

Major chronic fatigue syndrome metabolomic finds problems with energy production and lipid metabolism in ME/CFS.

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