iiinova — where your digital self keeps evolving

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The Sick Times @thesicktimes.org · 15/09/2026

Novel drug bezisterim may help improve fatigue, post-exertional malaise, and neurological symptoms in people with Long COVID, according to preliminary clinical trial results that the treatment’s developer, BioVie, shared this morning. thesicktimes.org/2026/09/15/b...

ID: A hand placing a pill in a weekly organizer. The text reads, “The Sick Times. Bezisterim may help with some Long COVID symptoms, drug’s developer reports in early trial results. By Betsy Ladyzhets. News.” The following slides feature quotes from the story at The Sick Times.

“What really stands out to me about the data that have been presented today is that it shows a very clear direction” toward improving key symptoms, said Ezra Spier, a Long COVID patient-researcher who advised the trial team, during the webinar. “It gives the community some hope, because we’ve been seeing trial fail after fail after fail. Seeing something that provides demonstrated impact, I think is really exciting.”

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Tom Kindlon @tomkindlon.bsky.social · 02/05/2026

The efficacy of exercise in patients with myalgic encephalomyelitis/chronic fatigue syndrome: A systematic review and meta-analysis www.sciencedirect.com/science/arti... Screenshot from latest Science for ME weekly update Critical discussion www.s4me.info/threads/the-... #MEcfs #PwME

The efficacy of exercise in patients with myalgic encephalomyelitis/chronic fatigue syndrome: A systematic review and meta-analysis — Zhao et al
"our risk of bias assessment using the RoB 2.0 tool indicated a prevalent high risk of bias across the included studies" "subjective benefits do not translate into significant gains in objective cardiopulmonary or functional capacity"

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Patient-Led Research Collaborative @patientled.bsky.social · 11/03/2026

We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together. The guide focuses on 24 medications, but includes a few other interventions for breadth /1

rthm.com

Long COVID Treatment Guide

An evidence-supported guide covering treatments addressing multiple Long COVID symptoms & mechanisms — focused on prescription medication, with a limited set of supplements, OTC medications, procedure...

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Mills @darlingems.bsky.social · 26/11/2025

The way “maybe this is the best it’s gonna get and you just have to accept this is your baseline” coming from a medical professional when your quality of life is practically nil really hits different than their tired old “just drink water and think positive” line

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Kristin Houlihan, Writer @kristinwrites.bsky.social · 30/10/2025

Look at that bottom shelf and let that sink in for a minute. “Get dressed. Eat. Shower.” Out of reach. Fortunately eating has become not a problem for me. But I cannot change clothes every day (tho more easily than I used to) and I absolutely cannot shower by myself or frequently.

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Tom Kindlon @tomkindlon.bsky.social · 09/10/2025

An article on how being ill with ME, particularly severe ME, is psychologically challenging meglobalchronicle.wordpress.com/2022/09/25/l... #SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @ludiekje.bsky.social

thought scramble
Gepubliceerd op 25 september 2022
This disease chases you day and night. It keeps you awake at night and when you eventually fall asleep it follows you into your dreams. There is no escape.

Being bedridden with severe ME/CFS also means that you have a lot of time. Although time is the most valuable currency in the world and I have much of it, it is useless.

Finding distractions is hard. Then you just lie there alone with your thoughts. It’s like being in a lockdown. Not in the house or in the room but in your body. Only you and your thoughts. Nothing else. They are always there. Not to think is not possible. If the body doesn’t function any more, you are left alone with your thoughts. You might have suppressed them in the past but that’s not possible anymore. You can’t go out to clear your mind or distract yourself with sports or partying. You must face them. With them comes fear. Fear about the future.

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Tom Kindlon @tomkindlon.bsky.social · 04/10/2025

🧵 "The Trouble With Recovery Stories" by Naomi Whittingham @naomiwhitt.bsky.social (with severe ME for decades) alifehidden.com/2024/11/05/r... An excellent, articulate article discussing “Recovery Stories” and the complex impressions and impacts they bring about #MEcfs #CFS #PwME 1/

The Trouble With Recovery Stories
Posted on 5th Nov 2024

Photo of somebody up a tall mountain near the edge

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Tom Kindlon @tomkindlon.bsky.social · 03/10/2025

From Helen Connick who posted this as a comment on my FB page: "Made a guide for the people I live with, for when I'm getting the worst PEM, to help them help me rest, and understand" #PostExertionalMalaise #MEcfs #LongCovid

Medical Guidance: Supporting a Person in PEM (Post-Exertional
Malaise)
Post-exertional malaise (PEM) is a pathological worsening of symptoms following minimal effort. During PEM, even the smallest demand, conversation, light, sound, movement, can prolong the crash and permanently reduce baseline capacity. The role of family or housemates is to actively protect rest and prevent further harm.
Clinical Warning
When a person is in PEM, any additional activity, even sitting up, walking across a room, or answering one question, can worsen symptoms, reset recovery, and accelerate long-term decline. Rest must be strictly protected as a medical intervention.
Recommended Actions
Ensure they are lying flat, comfortable, and do not need to move.
Keep the environment dark and quiet (eye mask, blackout curtains, noise control).
Bring essentials (water, food, medication) to them so they do not get up.
Provide safe, simple meals or snacks within reach, respect dietary sensitivities and intolerances. Choose easy-to-digest foods that do not create extra strain.
Buffer household noise and interruptions (children, chores, visitors).
Believe and trust them, accept when they say it is a crash and wait until they indicate recovery. Use shorthand codes or signals (such as traffic light card, thumbs-up) to reduce verbal demands. Offer reassurance, remind them rest is treatment, not laziness.
Actions to Avoid
Do not ask questions or start conversation, even one can overload. Do not ask them to explain or justify what they are experiencing.
Do not make them sit up, walk, or fetch items.
Do not turn on lights or make noise without consent.
Do not touch or stimulate if they are hypersensitive.
Do not bring unsafe foods or expect them to make food decisions. Do not encourage them to 'push through', this causes harm.
Why This Matters
Every additional demand risks worsening symptoms, extending recovery time, and lowering long-term baseline. Believing them without questions and using shorthand c…

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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 27/09/2025

People with mild ME/Long Covid & people who have recovered, please start advocating for the most severe instead of mildwashing the disease & using your story to sell your personal projects while feeding the media narrative of “individual overcoming” 🙏

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Long Covid Collective @longcovidcollect.bsky.social · 08/09/2025

New research shows Long COVID isn’t “just fatigue.” Its impact on daily life can be as severe as stroke or Parkinson’s. Worth reading, worth sharing.

tolerance.ca

Tolerance.ca® - Long COVID is more than fatigue. Our new study suggests its impact is similar to a stroke or Parkinson’s

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Billy Hanlon @bhanlon15.bsky.social · 06/09/2025

Health Rising: “Screaming Immune Activation”: Major Lipkin Study Finds ME/CFS Systems Folding Under the Stress” “The end product of all these pathological processes, the authors believe, is “systemic inflammation” www.healthrising.org/blog/2025/09...

healthrising.org

"Screaming Immune Activation": Major Lipkin Study Finds ME/CFS Systems Folding Under the Stress - Health Rising

This amazing study shows why so many systems in ME/CFS patient's bodies fold under stress.

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Mills @darlingems.bsky.social · 27/08/2025

I continue to decline and now I’m dealing with daily neurological issues on top of PEM. It’s an endless gauntlet of bad luck day after day. How do you keep going when you don’t get a break? How do you convince yourself hanging in there is worth it? #pwME #mecfs #pwLC #LC #PEM

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valebodi.bsky.social @valebodi.bsky.social · 03/07/2025

Via @longcovidadvoc.com “And if in fatigue your batteries feel drained, in PEM they’re missing entirely. It’s the annihilation of possibility.” @edyong209.bsky.social #PEM #ME/CFS #LongCOVID

LONG COVID
ADVOCACY
“And if in fatigue your batteries feel drained, in PEM they're missing entirely.
It's the annihilation of possibility.”
ED YONG
JOURNALIST

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Tom Kindlon @tomkindlon.bsky.social · 05/06/2025

UK research: Exercise-induced Changes in Microclotting and Cytokine Levels Point to Vascular Injury and Inflammation in People with Long COVID www.researchsquare.com/article/rs-6... Screenshot from the Science for ME weekly update #PASC #LongCovid

Preprint: Research Square
Exercise-induced Changes in Microclotting and Cytokine Levels Point to Vascular Injury and Inflammation in People with Long COVID — Callum Thomas et al.
"Our findings reveal that submaximal exercise induces a shift in microclot size distribution: specifically, a decrease in the proportion of larger microclots (100–3000 µm²) is accompanied by a relative increase in smaller microclots (> 0–30 µm²) post-exercise." "The patterns demonstrated here suggest that larger microclots undergo fragmentation rather than clearance during exercise"

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Billy Hanlon @bhanlon15.bsky.social · 23/05/2025

NL Times: 'Muscles of long Covid patients respond differently to inactivity than healthy people' 'Researchers also saw issues when it came to energy production. This came as a result of malfunctioning mitochondria, which are the energy factories...' nltimes.nl/2025/05/23/m...

nltimes.nl

Muscles of long Covid patients respond differently to inactivity than healthy people

The muscles of people who suffer from long Covid or the chronic illness ME/CVS respond differently to a workout after a period of inactivity than the muscles of people with a clean bill of health, a s...

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Tom Kindlon @tomkindlon.bsky.social · 10/05/2025

In an international survey (n=1534) www.mdpi.com/2075-4418/9/..., 67% of those with ME/CFS reported they never recovered from a crash (that caused postexertional malaise). Patients & professionals should be informed of this risk. Exertion has ruined some people's health #MEcfs #CFS

Table 6. Duration of PEM, illness course, and functioning (N = 1534).
Items
%(n)
Length of prolonged, unpredictable recovery period
95.2 (1460)
Within 24 h
Between 1 and 2 days
Between 3 and 6 days
Between 1 week and 1 month
Between 1 and 6 months
Between 6 months and 1 year
Between 1 and 2 years
Over 2 years
Crash that has never resolved
14.1 (216)
38.9 (596)
58.0 (890)
46.7 (717)
30.3 (465)
13.6 (209)
9.8 (151)
12.3 (189)
67.1 (1029)

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The Sick Times @thesicktimes.org · 08/05/2025

Games can be sense-making tools, allowing players to vicariously experience the risks of contracting COVID-19, recognize #LongCOVID’s most challenging symptoms, and connect with others amid an ongoing public health crisis. Read more from @kaatefishman.bsky.social: bit.ly/4iQhmuE

A graphic titled: “Long COVID Mode, Real-world Long COVID symptoms translated into in-game effects.” Below the text, a video game character is shown hunched over, as though struggling to manage a symptom. Energy bars above his head indicate that he is facing reduced vitality, cognitive dysfunction, and reduced stamina. At the bottom of the image, the graphic shows that this mode was created for Elden Ring, The Witcher, and Minecraft, through collaboration with Long COVID Europe. The text reads, “The Sick Times. “Long COVID Mode”: Seeing the crisis through games. By Kate Fishman.” T

THE SICK TIMES: "If a bad outcome will only happen if you roll a one, that doesn’t mean it’s not gonna happen." - Zoyander Street, Artist and designer based in the United Kingdom

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Tom Kindlon @tomkindlon.bsky.social · 06/05/2025

From ME Research UK: Having “CFS/ME” deeply impacts “experience of adulthood & relationships, and the consolidation and formation of identity” finds a small Australian study. “People not understanding” was identified as "the biggest struggle" with having the disease More: tinyurl.com/mr3rr8nx #CFS

"The biggest struggle with having CFS....
I would love to say it's the fatigue, but honestly, it's not. I can deal with the fatigue. I've dealt with it for so long now... It's people, really, people and doctors and
it's people not understanding"

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Tom Kindlon @tomkindlon.bsky.social · 25/04/2025

🧵 It would be great if friends of people with ME/CFS or long COVID would take the time to read this. These conditions are very socially isolating and lonely and patients would love to maintain friendships www.emerge.org.au/how-to-suppo... #LongCovid #MEcfs 1/

How to support your friend who lives with ME/CFS or long COVID
Home
/
MECFS Information
/
How to support your friend who lives with ME/CFS or long COVID
Emerge Australia has put together this guide to help you understand what someone with ME/CFS may be experiencing, and to provide some tips to help support them to stay connected.

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Billy Hanlon @bhanlon15.bsky.social · 20/04/2025

SciTech Daily: 'Scientists Discover Drug That Could Finally End Long COVID Suffering' 'WEHI scientists discovered a drug that blocks long COVID in mice and may improve acute treatment options beyond current antivirals like Paxlovid.' scitechdaily.com/scientists-d...

scitechdaily.com

Scientists Discover Drug That Could Finally End Long COVID Suffering

WEHI scientists discovered a drug that blocks long COVID in mice and may improve acute treatment options beyond current antivirals like Paxlovid. WEHI researchers have developed a drug compound that p...

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Yann (ME/LC) @me-cfs.bsky.social · 19/04/2025

There’s a deeply unfair cruelty in ME/CFS, in that the more severe you are, the less you can control the amount of PEM you get. Which means you have less power to stop further worsenings. The further down you fall in the hole, the more you struggle to find ledges to hold onto.

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Tom Kindlon @tomkindlon.bsky.social · 18/04/2025

How I treat my patients with Myalgic Encephalomyelitis, Chronic Fatigue Syndrome (ME/CVS), fibromyalgia or “long COVID” by Prof. Frank Comhaire (in Belgium) jcimcr.org/pdfs/JCIMCR-... #MEcfs #CFS

Abstract Common to Myalgic encephalomyelitis, chronic fatigue syndrome and so-called long Covid is the panoply of complaints, with Post Exertional Malaise (PEM) as the most typical symptom. Added to that are permanent feeling of fatigue, decreased capacity to concentrate, so-called brain fog, non restorative sleep, diffuse pain, and – in case of long Covid – respiratory distress. Several recent studies have confirmed my original hypothesis that poor metabolism and energy production by the mitochondria are responsible for the majority of these phenomena. I have suggested that inhibition of Pyruvate dehydrogenase (Pdh) activity is the major reason for this. Pdh inhibition is probably caused by the excess of the phosphatase: Pyruvate Dehydrogenase Kinase (PDK). The latter results from “Systemic Immune Disorder” (what I called “SID”) and inflammation. Based on this hypothesis I have applied oral and infusion treatment modalities which were successful in approximately 80% of 130 consecutive patients. The pivotal substances are sodium dichloroacetate, that reduces PDK, Meldonium, that facilitates intracellular glucose metabolism, and low dose Nalexone, that optimises the function of microglia.

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Billy Hanlon @bhanlon15.bsky.social · 15/04/2025

SCV News: 'April 17: Public Health Town Hall on Long COVID' The Los Angeles County Department of Public Health will host a Town Hall on Long COVID where public health experts & community partners will answer questions on the long-term effects of COVID-19 scvnews.com/april-17-pub...

scvnews.com

April 17: Public Health Town Hall on Long COVID - SCVNews.com

The Los Angeles County Department of Public Health will host a Town Hall on Long COVID where public health experts and community partnerswill answer questions on the long-term effects of COVID-19.

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Yann (ME/LC) @me-cfs.bsky.social · 11/04/2025

What psychobehaviouralists don’t get about ME/CFS is that we desperately wish it was in our head and we just had to push ourselves and we’d get our life back; wish all we had to do was exercise and we would be cured. But it doesn’t work that way. We tried and tried and now we’re worse off for it.

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Tom Kindlon @tomkindlon.bsky.social · 08/04/2025

"'It’s like torture': The tilt table test could be risky for many people with Long COVID" [and ME/CFS] by @jewstein3000.bsky.social in @thesicktimes.bsky.social thesicktimes.org/2025/04/08/i... Contains quotes from patients and also some experts in the field #LongCovid #MEcfs #POTS

Key points you should know:

The tilt table test (TTT), commonly given to diagnose postural orthostatic tachycardia syndrome (POTS), a type of dysautonomia, can be dangerous for some people with Long COVID, especially those who experience post-exertional malaise (PEM).

It is well-known that the TTT can provoke fainting and even a temporarily stopped heart, but the medical literature doesn’t reflect how many patients can experience debilitating PEM after the exam.

Alternative tests, including the NASA lean test and active stand test, are becoming more commonly used because of their safety and accessibility, though there are debates about whether they are as reliable as the TTT.

Clinicians also debate whether the POTS diagnostic criteria are too strict in terms of determining who should be treated.

For patients who have no choice but to have a TTT, there are methods for mitigating the possible harm, including saline infusions and ample rest and recovery before and after.

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Billy Hanlon @bhanlon15.bsky.social · 07/04/2025

Pulse Today: 'Long Covid and ME patients report delays in diagnosis and low satisfaction' 'The parallels seen in the experiences of those with ME/CFS and long Covid suggest ‘significant improvement’ is needed in how patients are diagnosed and cared for' www.pulsetoday.co.uk/news/clinica...

pulsetoday.co.uk

Long Covid and ME patients report delays in diagnosis and low satisfaction

Patients with ME and long Covid face significant delays in diagnosis and report low satisfaction with specialist services.

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Long Covid Collective @longcovidcollect.bsky.social · 06/04/2025

According to a new study, people with Long Covid feel they must “prove” their illness is physical to be taken seriously. This pressure is not just exhausting—it’s harmful. We deserve care that acknowledges the whole truth: Long Covid is real. And support should never depend on how convincing we are.

medicalxpress.com

Study finds long COVID patients feel pressure to prove their illness is real

People living with long COVID often feel dismissed, disbelieved, and unsupported by their health care providers, according to a new study from the University of Surrey.

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Paul Keeble ME/LC @paulkeeble.co.uk · 01/04/2025

A tiny little local newspaper vastly outperforms the big guys by describing ME/CFS including a lot of the optional symptoms and just informs people without any spin. Its probably one of the best straight forward "disease you don't know about" articles. www.getsurrey.co.uk/news/health/...

getsurrey.co.uk

Little-known condition that makes you 'tired all the time'

The long-term condition has no known cure say the NHS

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Mills @darlingems.bsky.social · 01/04/2025

Having this be nation-wide would be amazing. Way to go, Illinois!

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Mills @darlingems.bsky.social · 01/04/2025

Watching @booker.senate.gov stand up and fight for the disabled, the researchers, the seniors, the parents, the protesters, etc. until he physically can’t anymore is truly amazing.

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Tom Kindlon @tomkindlon.bsky.social · 31/03/2025

Life shrinks with ME/CFS. Found on the CFS community on Reddit #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

"Life shrinks with ME/CFS" which highlights different severities of ME/CFS and how they affect patients.

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Tom Kindlon @tomkindlon.bsky.social · 31/03/2025

6/ ScienceNorway: Almost no ME/CFS patients return to work www.sciencenorway.no/chronic-fati... Image is from the latest Science for ME weekly update #MEcfs #CFS

ScienceNorway Almost no ME/CFS patients return to work An article about a study on ME prognosis based on wage development. Professor Karl Johan Tronstad comments: "As long as there's no effective treatment, many remain chronically ill. The study suggests that the help patients have received through the welfare and healthcare systems has had little rehabilitative effect," One of the researchers behind the study, Anne Kielland comments: "We can only acknowledge that our results were disheartening and indicated that the current policy measures for this group have not yielded significant improvements in their ability to regain income capacity,"

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Kelly @broadwaybabyto.bsky.social · 29/03/2025

“We’ve been conditioned by society that pain is weakness. That being sick is something you can overcome by simply trying harder.” You can’t “try harder” your way out of disability. It’s not a weakness or a moral failing. My latest includes tips to support the disabled person in your life:

disabledginger.com

Why Are Chronically Ill People Forced to Hide Their Pain?

And what would happen if we stopped hiding and showed the world the depths of our suffering?

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The Sick Times @thesicktimes.org · 28/03/2025

🚨 BREAKING: #LongCOVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, according to patient representatives in the initiative. bit.ly/3FO8LuQ

Long COVID advocates in matching teal shirts pose for a photo at the Senate Committee on Health, Education, Labor & Pensions hearing on Long COVID. The text reads, “The Sick Times. UPDATE: RECOVER Long COVID pathobiology grants restored. By Betsy Ladyzhets and Miles Griffis.”

Long COVID advocates stepped up to contact their representatives and advocate for RECOVER funding and other federal Long COVID initiatives to remain in place. While the research program’s broader future remains uncertain, these restored grants are a significant milestone, said RECOVER patient representative Megan Fitzgerald.

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Mills @darlingems.bsky.social · 27/03/2025

Nice work out of RECOVER but I’d argue that the part about resting recharging your proverbial battery isn’t exactly correct. I don’t know about others but no matter how much I rest, I don’t find myself recharged at all.

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Tom Kindlon @tomkindlon.bsky.social · 27/03/2025

"Research finds potential “molecular mimics” behind COVID-induced #autoimmune disease" www.eurekalert.org/news-release... “some of the human proteins the researchers identified as likely targets of COVID-induced autoimmunity are only found in people with specific genetics” #LongCovid #PASC

News Release 26-Mar-2025
Research finds potential “molecular mimics” behind COVID-induced autoimmune disease
Peer-Reviewed Publication
University of Utah Health

COVID infection has been linked to higher risk of autoimmune disorders, including rheumatoid arthritis and type 1 diabetes. But why the virus might cause the body’s immune system to go haywire remains unknown, making it difficult to develop therapies to avoid autoimmunity. One hypothesis is that viral “molecular mimics” that resemble the body’s own proteins trigger an immune response against the virus—and healthy tissues get caught in the crossfire.

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Holly Chessman @hollychessman.bsky.social · 26/03/2025

In 30 seconds you can support millions with Long Covid. Click to write to President Trump, HHS Secretary Kennedy and your members of congress demanding they stop closing #longcovid programs. This is not a restructuring. This is targeted erasure. #pwME #chronicillness bit.ly/4hKQ7B5

bit.ly

#LongCOVID Is Being Erased in Real Time—Help Us Stop It!

Trump Administration Impacts to Long COVID Closure of the HHS Office for Long COVID Research and Practice, which was intended to coordinate Long COVID efforts across federal agencies, represents a de...

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Long Covid Collective @longcovidcollect.bsky.social · 21/03/2025

New Yale study says our muscles can’t use oxygen properly during activity. It’s not deconditioning—it’s dysfunction. Long Covid isn’t laziness. It’s a system crash.

healthrising.org

Long COVID Invasive Exercise Study Suggests Purine Inhibitors May Help - Health Rising

A long COVID invasive exercise metabolomic study found reduced energy production and recommended purine inhibiting drugs.

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Tom Kindlon @tomkindlon.bsky.social · 21/03/2025

🧵 "Almost no ME/CFS patients return to work: "The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect," says a researcher." www.sciencenorway.no/chronic-fati... #MEcfs #CFS #PwME 1/

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Billy Hanlon @bhanlon15.bsky.social · 20/03/2025

CBS News: 'Columbia University faces federal deadline to make changes or lose $400 million in funds' 'Dr. Ian Lipkin is the director of Columbia University's Center for Solutions for ME/CFS..' "We really felt as though we were on the cusp..." www.cbsnews.com/newyork/news...

cbsnews.com

Columbia University faces federal deadline to make changes or lose $400 million in funds

The Trump administration's deadline to Columbia University to make changes is set for the end of the day Thursday.

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Mills @darlingems.bsky.social · 20/03/2025

Getting back to work feels like a pipe dream; I’d just take being able to independently take care of myself again. I wish more of these articles could be written without bias. None of us are useless because we can’t work anymore. Working is not all there is to life.

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Mills @darlingems.bsky.social · 20/03/2025

I wish my ME/CFS would “mysteriously disappear.”

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Mills @darlingems.bsky.social · 20/03/2025

The only thing is that they fail to mention the current administration has already disbanded the Congressional LC Committee and enacted deep cuts to NIH, making future research impossible for the foreseeable future.

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Tom Kindlon @tomkindlon.bsky.social · 14/03/2025

🧵 Thread where I'm going to post some slides from this sympathetic February presentation "Shame, Psychology and ME" uwe-repository.worktribe.com/output/13780... #MyalgicEncephalomyelitis #MEcfs @kacheston.bsky.social 1/

Professor of Dementia Research Richard Cheston Richard.Cheston@uwe.ac.uk
Professor in Mental Health (Dementia Care)

Katharine Cheston

Abstract
In 2008, when she was 15, Katharine Cheston became ill with Myalgic Encephalomyelitis or ME. Over the next decade and more Katharine, and ourselves as a family, encountered many different psychological ideas and therapies, often being offered by non-psychologists. One such belief system involves the constuction of ME as a psychiatric illness that is perpetuated by false illness beliefs and the avoidance of exercise.
This session is a personal reflection on this process, the role that shame played in our lives and the wider dearth of appropriate services for people with ME.

Presentation Conference Type Presentation / Talk
Conference Name Psychological Sciences Research Group meeting

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Mills @darlingems.bsky.social · 15/03/2025

LC has taken just about everything from me. Work, income, friends, my mobility. It’s heartbreaking we’ve all been left behind because we’re the unwanted reminders the public doesn’t want to see. And there’s no end in sight for us.

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 15/03/2025

March 15 is International #LongCOVIDAwarenessDay, a time to raise awareness and amplify the voices of millions worldwide who continue to suffer from the prolonged effects of COVID-19.

This image is a graphic for Long COVID Awareness Day, which is observed on March 15. It features a ribbon with the text "LONG COVID" on it, symbolizing awareness and support for those affected by Long COVID. The background is a gradient from black to gray.

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Andrew Gurza @andrewgurza6.bsky.social · 14/03/2025

I often struggle with not feeling good enough as a disabled person. I struggle with comparison to non-disabled people and other disabled people. We leave disabled people with only two choices - to be superheroes or pitiable cripples. We leave almost no room for them to have human emotions.

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Kylie Eleison @gonebabygone.bsky.social · 12/03/2025

Today is the 35th anniversary of the Capitol Crawl, in which disabled activists discarded their mobility aids at the foot of the Capitol steps to climb them in support of passage of the Americans with Disabilities Ac. Jennifer Keelan-Chaffins, 8, told reporters "I'll take all night if I have to!"

Three people in sky blue shirts and jeans climbing the steps of the US Capitol, including a young blonde girl wearing a red and white bandanna around her head and turning to look at the camera

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