Sign in

Lilly

@lillyjade.bsky.social
2.1K followers 867 following 412 posts

Autistic. Interested in autism and broader neurodivergence/disability topics + misinformation. Former cog neuro/psych researcher. Attempting to write. She/her Curates @autisticbooks.bsky.social On Gadigal Land. Taking social media break.

PostsRepliesMedia
Reposted by Lilly
Dr Ingrid M🪁 @ingridm.bsky.social · 12/01/2026
“art in the service of social cohesion is propaganda”: Louise Adler standing tall as always. What a legend✊🏼❤️ www.theguardian.com/commentisfre...
theguardian.com
I cannot be party to silencing writers, which is why I am resigning as director of Adelaide Writers’ Week | Louise Adler
Cancelling the Australian Palestinian author Randa Abdel-Fattah weakens freedom of speech and is the harbinger of a less free nation
310529
Reposted by Lilly
Kaz Cooke @kazcooke.bsky.social · 10/01/2026
As stated, this is an interim list which will be updated. Many people on it won't even know about the fiasco yet. People are free to make their choice, once they know about it. (What an incredible line-up has been so insulted & sabotaged. Look at this list of what the festival was going to be.)
89823
Reposted by Lilly
💜 phonakins 🍉🌲 @phonakins.com · 09/01/2026
"A Total Fire Ban will be in place tomorrow, Sat 10 January for Greater Sydney, Illawarra Shoalhaven, Far South Coast, Greater Hunter, Monaro Alpine, Southern and Central Ranges and the Southern Slopes. Hot, dry and windy conditions are forecast across much of the state, increasing the fire danger"
A Total Fire Ban will be in place tomorrow, Saturday 10 January, for Greater Sydney, Illawarra Shoalhaven, Far South Coast, Greater Hunter, Monaro Alpine, Southern and Central Ranges and the Southern Slopes. Hot, dry and windy conditions are forecast across much of the state, increasing the fire danger.

Take action now. Know your fire risk and what you will do if fire threatens. Report all unattended fires to Triple Zero (000).

For more information on Total Fire Ban rules, visit the #RFS website: www.rfs.nsw.gov.au/fdr
198
Reposted by Lilly
Richard 🐗 🪵 @rogley8.ribbit.org · 09/01/2026
In an emergency the abc.net.au and emergency.vic.gov.au websites may be unavailable in your area. You can tune into the local radio stations on: Goulburn Valley: 97.7 FM Corryong: 99.7 FM Upper Murray: 106.5 FM Melbourne: 774 AM Alexandra: 102.9 FM Mansfield: 103.7 FM Eildon: 98.1 FM
057
Reposted by Lilly
John Delmenico @thebigjohnnyd.bsky.social · 03/12/2025
Happy International People with Disabilities Day Australia!
11512
Reposted by Lilly
Beatrice Adler-Bolton @reallandsend.bsky.social · 16/11/2025
To honor Alice—and all our disability ancestors—is to keep building that connective tissue she described. To love fiercely, politically, on purpose. To ensure the filaments they left behind continue to glow in us, and through us, long after the world has forgotten their names. We won’t.
315219
Reposted by Lilly
Beatrice Adler-Bolton @reallandsend.bsky.social · 16/11/2025
Alice Wong taught us that disabled people don’t just leave memories behind—they leave infrastructure. Lineages of care. Methods of collectivity, survival. She named the connective tissue that holds our communities together, even across death, even across the losses that come too fast and too often.
71890532
Reposted by Lilly
dr. thrasher, an american writer in ex(archia)(xile) @thrasherxy.bsky.social · 15/11/2025
“Don’t let the bastards grind you down. I love you all.”
Black text on a yellow background - This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing.
Hi everyone, it looks like I ran out of time. I have so many dreams that I wanted to fulfill and plans to create new stories for you. There are a few in progress that might come to fruition in a few years if things work out. I did not ever imagine I would live to this age and end up a writer, editor, activist, and more. As a kid riddled with insecurity and internalized ableism, I could not see a path forward. It was thanks to friendships and some great teachers who believed in me that I was able to fight my way out of miserable situations into a place where I finally felt comfortable in my skin.
We need more stories about us and our culture.
You all, we all, deserve the everything and more in such a hostile, ableist environment. Our wisdom is incisive and unflinching. I'm honored to be your ancestor and believe disabled oracles like us will light the way to the future. Don't let the bastards grind you down. I love you all.
1035171151
Reposted by Lilly
Dr Aimee Grant @draimeegrant.bsky.social · 10/11/2025
📣New research Q: What do neurodivergent people think about words like "neurodiversity". A: it's complicated; they use it, but it has limitations and could stigmatise. Full paper: journals.sagepub.com/doi/10.1177/... (1 of 2)
journals.sagepub.com
‘A Lovely Safe Umbrella to Describe Yourself With’ or ‘Meaningless’: An Online Survey of UK-Based Neurodivergent Adults’ Views of Neurodiversity-Related Terminology - Aimee Grant, Jennifer Leigh, Moni...
Background: Neurodivergence refers to people with ways of behaving and thinking that diverge from the norm. Examples include Autism, Attention Deficit Hyperacti...
42510
Reposted by Lilly
Australian Society of Authors @asauthors.bsky.social · 26/10/2025
The ASA welcomes the Albanese Government’s decision to rule out a Text and Data Mining (TDM) exception to Australian copyright law, which would have allowed for AI training on authors’ work. aapnews.aap.com.au/news/copyrig...
aapnews.aap.com.au
Copyright laws to protect creatives from AI data mining
Tech developers will not have a "free pass" to use creative works to train AI systems, but advocates say more protections are needed against copyright theft.
51713
Reposted by Lilly
Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 30/10/2025
Autumn shares a poem: “Nothing about us without us means all of us together The loud, the silent, the joyous, and the somber The future is an echo that arrives before the sound”
132
Reposted by Lilly
Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 30/10/2025
The first award is the Nothing About Us Without Us Award, given to self-advocates whose work fights to make sure that our community’s voices are being heard. This year, this award goes to Autumn Lauener for their tireless work supporting both the autistic and trans community across Texas.
154
Reposted by Lilly
Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 30/10/2025
“Most of all, we know that, whatever laundry list of activities they can and cannot do, the life of every autistic person is worth living.” – Colin Killick, ASAN’s Executive Director
174
Reposted by Lilly
Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 30/10/2025
“We know the world is full of autistic people, including those with high support needs, who do all those things amazingly, from nonspeaking poets, to policy experts with intellectual disabilities.”
141
Reposted by Lilly
Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 30/10/2025
“When the government spreads lies about autism, these lies put the autistic community in danger. They threaten our access to health care, our right to make choices for ourselves, and our right to live in the community.”
173
Reposted by Lilly
Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 30/10/2025
ASAN’s Annual Gala awards ceremony is starting now! #ASANGala Watch the livestream on YouTube starting NOW: youtu.be/36ZQOoLlZH8
youtu.be
2025 ASAN Gala Awards Ceremony
At this year’s Awards Ceremony, we will be honoring several awardees for their tireless work in advocacy, community building, and so much more. We’ll also hear remarks from ASAN’s Executive Director…
12011
Reposted by Lilly
Thinking Person's Guide to Autism @thinkingautism.com · 26/10/2025
Today in Hell yes, research: "Autistic children with little to no spoken language may understand more language than they produce, which means spoken vocabulary is not a good proxy for one’s understanding of words." journals.sagepub.com/doi/10.1177/... #autism #autistic #neurodiversity
journals.sagepub.com
Conceptualizing and describing autistic language: Moving on from ‘verbal’, ‘minimally verbal’ and ‘nonverbal’ - Kristen Bottema-Beutel, Alyssa Hillary Zisk, Jordyn Zimmerman, Betty Yu, 2025
58924
Reposted by Lilly
Haymarket Books @haymarketbooks.org · 27/10/2025
ALL Haymarket EBooks are 80% off through November 7th ✊🏾✊🏿✊🏽
haymarketbooks.org
Haymarket Ebooks on sale for $2!
At Haymarket, our mission is to publish books that contribute to struggles for social and economic justice. We strive to make our books a vibrant and organic part of social movements, and we believe t...
2336339
Lilly @lillyjade.bsky.social · 28/10/2025
You know you've been taken in by a book when only a few pages in to the library copy, you buy your own. Conspiracy Nation by @arielbogle.bsky.social and @cameronwilson.bsky.social publishing.hardiegrant.com/en-au/books/...
Photo of 2 copies of the book Conspiracy Nation: Exposing the Dangerous World of Australian Conspiracy Theories by Ariel Bogle and Cam Wilson. The cover is stylised with illustrations reflecting Australia and conspiracy theories in white, orange, and black. One copy displays the library's shelf number on its spine.
2283
Reposted by Lilly
Melissa @artistaffame.bsky.social · 28/10/2025
Me talking about why eradicating poverty isn’t just the morally correct position but it makes economic sense as well www.abc.net.au/news/2025-10...
abc.net.au
Price of poverty hurts us all, yet research reveals an easy fix
In 2020, Australia massively increased welfare payments and conducted a live experiment in ending poverty, but when the subsidy was removed, many were thrown back into hardship. Leaving aside the mora...
27032
Reposted by Lilly
Gerald Roche @geraldroche.bsky.social · 25/09/2025
I'm helping to set up a community of practice to end the bullying of autistic students in Australian schools. If you'd like to participate, please get in touch using the form below. Further details in the thread following. forms.gle/RFPJag4wffdq...
forms.gle
Expression of Interest: Community of Practice to Prevent Bullying of Autistic Students
Please use this form to express your interest in joining a community of practice to help end the bullying of Autistic students in Australia. There are 11 questions on this form. 10 are compulsory a...
31410
Reposted by Lilly
Melody Schreiber @melodyschreiber.com · 24/09/2025
Are you autistic? What did you think of the announcement yesterday? I want to hear from you for a Guardian US article: melodyschreiber@pm.me
58159
Reposted by Lilly
The Autism Books by Autistic Authors Project @autisticbooks.bsky.social · 23/09/2025
I am begging people to please seek out Autistic voices if you want to learn about autism. You will find that rather than wanting our lives to be prevented or cured, we want appropriate supports for ALL Autistic people (including those with intellectual disability and other co-occurring conditions).
09835
Reposted by Lilly
The Autism Books by Autistic Authors Project @autisticbooks.bsky.social · 23/09/2025
Autistic people are not your tragedies and we should not be the subject of your conspiracies and dehumanising rhetoric. We are not mythical creatures to pity but real people with needs and desires, just like you.
17422
Reposted by Lilly
The Autism Books by Autistic Authors Project @autisticbooks.bsky.social · 23/09/2025
It appears the foreseeable future will be even more difficult for autistic people & their loved ones because of the heinous disinformation coming from the US government &their supporters. We should not need to reiterate the humanity of Autistic people, but here we are, watching as progress is erased
111528
Reposted by Lilly
Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 21/09/2025
@annmemmott.bsky.social posted on linkedin: "If it is safe for you to speak out, when such an announcement happens, please do so. If it is not safe, please take really good care of yourselves and those you love....."
0183
Lilly @lillyjade.bsky.social · 22/09/2025
This is an excellent newsletter. If you haven't already subscribed, now would be the perfect time so you can discover accurate and informative information about autism.
030
Reposted by Lilly
John Choiniere @johnchoiniere.bsky.social · 21/09/2025
Acetaminophen/paracetamol use in pregnancy doesn't cause autism, no matter what RFK says this week. This is not an unsettled question. Evidence summarized here: sciencebasedmedicine.org/tylenol-and-...
sciencebasedmedicine.org
Tylenol and Autism
Earlier this year, HHS secretary RFK Jr. predicted that, "By September, we will know what has caused the autism epidemic and we'll be able to eliminate those exposures." Scientists have been researc
261122430
Reposted by Lilly
Thinking Person's Guide to Autism @thinkingautism.com · 18/09/2025
"I practice self-care by turning off the news periodically, and stepping back from the world. I made the realization that in my fight for justice, I was hurting my own mental health." Autistic academic TC Waisman on self-compassion and resilience, at TPGA: thinkingautismguide.com/2025/09/cher...
thinkingautismguide.com
Cherishing Compassion While Autistic and Marginalized
T.C. Waisman, Monique Botha, and Wenn Lawson—three deeply compassionate autistic experts—on navigating the world while autistic.
26522
Reposted by Lilly
Emily Paige Ballou @epballou.bsky.social · 19/09/2025
...and struggle to access appropriate medical care, therapy, and supports. The need for neurodiversity is because we ARE struggling, not because we're not.
082
Reposted by Lilly
Emily Paige Ballou @epballou.bsky.social · 19/09/2025
This is something that really gets me. That as neurodiversity proponents still get accused of being privileged or "very high functioning" or of looking at autism through rose-colored glasses... a ton of us still live in poverty, are marginally employed...
1439
Reposted by Lilly
Fergus Murray @oolong.co.uk · 18/09/2025
The other animation is Lightbulb Moments: Being Autistic. So much about Autistic experience is still missing from most professional accounts, which have been formulated from the outside. Many people talk about all these little epiphanies: 'I thought it was just me!' www.youtube.com/watch?v=3O6h...
youtube.com
Lightbulb Moments: Being Autistic
YouTube video by Thriving Autistic
23814
Reposted by Lilly
Fergus Murray @oolong.co.uk · 18/09/2025
First up is Discovering You're Autistic, about the experience of realising you're autistic, and the things we've found most valuable for anyone starting out on that journay. Realising that there are many other people out there with similar experiences is so powerful. www.youtube.com/watch?v=-eDv...
youtube.com
Discovering You're Autistic
YouTube video by Thriving Autistic
12613
Reposted by Lilly
Fergus Murray @oolong.co.uk · 18/09/2025
I'm so excited to finally be able to share these animations! Here's the @thrivingautistic.bsky.social page about them, along with the companion blogs (two of which I wrote myself). Please share them widely, if you like them. 😊 www.thrivingautistic.org/autistic-exp...
thrivingautistic.org
Educational Animation Videos about Autistic Experiences
Our two new neuro-affirming educational animation videos celebrate Autistic experiences and perspectives.
13513
Reposted by Lilly
The Psychologist @psychmag.bsky.social · 15/09/2025
Me and Monotropism: A unified theory of autism. @fergus.oolong.co.uk – science teacher, writer and 'autist' – on single attention and associated cognition in autism; a theory with a family connection… Now with 2025 update. www.bps.org.uk/psychologist...
bps.org.uk
Me and Monotropism: A unified theory of autism | BPS
Fergus Murray – science teacher, writer and 'autist' – on single attention and associated cognition in autism; a theory with a family connection… Now with 2025 update.
22617
Reposted by Lilly
Thinking Person's Guide to Autism @thinkingautism.com · 15/09/2025
Stanford Neurodiversity Summit #SNS25 Day 3 starts now, with Dr. @cnicolaidis.bsky.social's keynote. Dr. Nicolaidis is the founding editor of @autisminadulthood.bsky.social (highest rated for impace of all autism journals) and also runs the AASPIRE project with Dora Raymaker. #neurodiversity
102
Reposted by Lilly
Niamh Garvey @niamhgarvey.bsky.social · 14/09/2025
Worth a read
0124
Reposted by Lilly
Thinking Person's Guide to Autism @thinkingautism.com · 13/09/2025
Next at #SNS25: Sensory Differences in Neurodivergent Individuals (featuring at least one autistic clinical psychologist, Dr. Megan Anna Neff, so that's cool)
1153
Lilly @lillyjade.bsky.social · 13/09/2025
Excited to be attending #SNS25 online! Follow @thinkingautism.com for live posting.
010
Reposted by Lilly
Thinking Person's Guide to Autism @thinkingautism.com · 13/09/2025
Also we'll be live-skeeting the Stanford Neurodiversity Summit this weekend (Sat, Sun, Mon Pacific Time), so please follow along to hear neurodivergent insights as well as neurodiversity-informed best practices. #autism #neurodiversity
2264
Reposted by Lilly
Nick Feik @nickfeik.bsky.social · 12/09/2025
They know the climate chaos coming, they know their decision will make it worse, and kill any hope of mitigation, but they did it anyway - for their own benefit. Not a principle among them.
9246114
Reposted by Lilly
~ @modulusshift.bsky.social · 11/09/2025
this is really the whole thing, isn't it? we, as a culture, are so fucking hooked on the prosperity doctrine that we have to find failings in ourselves and others to explain problems our *children* have. stop trying to sound sciency when you mean to ask "why would God inflict autism on good parents"
23312
Reposted by Lilly
Autism: The International Journal of Research & Practice. @journalautism.bsky.social · 03/09/2025
Our Special Issue on The Social Model in Autism Research is now available online & all articles are free until 11th September! journals.sagepub.com/toc/AUT/curr... Here are some of the brilliant things you can find in it... #AutismResearch #AutRes
journals.sagepub.com
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
32718
Reposted by Lilly
Dr Aimée Fletcher (@aimee_speaks) @aimeespeaks.bsky.social · 11/09/2025
"In a village, we believe in independent and interdependent ways of being. One person can make a change, but we also all need to work together and depend on each other." TC highlights the role of interdependence in our culture. #AECONGRESS2025
162
Reposted by Lilly
Dr Aimée Fletcher (@aimee_speaks) @aimeespeaks.bsky.social · 11/09/2025
How to reduce stress: - reducing cortisol (healthy diet, exercise, sleep, feel good experience & community) - energy accounting (mental & physical health, balanced daily tasks, personalised wellbeing goals) - individual tools, adaptions & needs as priority: "what is right for me" #AECONGRESS2025
183
Reposted by Lilly
Dr Aimée Fletcher (@aimee_speaks) @aimeespeaks.bsky.social · 11/09/2025
"So what does this mean for autism?" Toudal explains impact of stress on Autistic people: - sensory sensitivities - social stressors with others - loss of sense of control (of others) - processing differences "Could these experiences influence how autistic people experience stress?" #AECONGRESS2025
182
Reposted by Lilly
Jon Adams @soundcube.bsky.social · 11/09/2025
How do we raise Autistic peoples QOL Listen to our narratives Ask us what we need Stop oppression Stop NT privilege of ‘we know best’ Involve not include us Believe us Stop traumatising us Pick us up when we fall Help us feel we truly belong so we don’t leave #AECongress2025 #AsIAm #AutismEurope
22411
Reposted by Lilly
Dr Aimée Fletcher (@aimee_speaks) @aimeespeaks.bsky.social · 11/09/2025
"We must breakdown barriers... to make sure that no one is left behind. Everyone has a right to live." Foley emphasises the importance of inclusion, accessibility & autistic people actively shaping the communities they live in - "but I know we have a long way to go." #AECONGRESS2025
1114
Reposted by Lilly
Shannon Rosa @shannonrosa.bsky.social · 29/08/2025
I'll be moderating three panels at the upcoming Stanford Neurodiversity Summit, and am especially delighted about the session Communication As a Human Right, featuring four non-speaking panelists—as well Dr. Vikram Jaswal: stanfordneurodiversityproject.stanford.edu/events/day-2... #neurodiversity
stanfordneurodiversityproject.stanford.edu
Human Rights Panel 2: Communication as a Human Right
Communication as a Human RightModerator: Shannon De Roche RosaObjectives:Understand the significance of communication as a human rightExplore various communication options available to neurodiverse in...
0168
Reposted by Lilly
Peel Autism Resource 🇨🇦 @peelautismresource.bsky.social · 11/09/2025
"More intensive therapy for autistic children is not associated with better outcomes in development, according to a new study in JAMA Pediatrics." hollandbloorview.ca/stories-news... #autism
hollandbloorview.ca
More therapy for autistic children isn't always better
'While some children and families may thrive with intensive intervention, other children may not.'
1134