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Lilly

@lillyjade.bsky.social
2.1K followers 866 following 412 posts

Autistic. Interested in autism and broader neurodivergence/disability topics + misinformation. Former cog neuro/psych researcher. Attempting to write. She/her Curates @autisticbooks.bsky.social On Gadigal Land. Taking social media break.

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Lilly @lillyjade.bsky.social · 14/01/2026
Sending you all the love. We're always here if you need to vent ❤️🫂
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Lilly @lillyjade.bsky.social · 14/01/2026
I hope this bought you a small moment of joy! Keep them coming ❤️
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Dr Ingrid M🪁 @ingridm.bsky.social · 12/01/2026
“art in the service of social cohesion is propaganda”: Louise Adler standing tall as always. What a legend✊🏼❤️ www.theguardian.com/commentisfre...
theguardian.com
I cannot be party to silencing writers, which is why I am resigning as director of Adelaide Writers’ Week | Louise Adler
Cancelling the Australian Palestinian author Randa Abdel-Fattah weakens freedom of speech and is the harbinger of a less free nation
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Lilly @lillyjade.bsky.social · 12/01/2026
This is stunning!
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Lilly @lillyjade.bsky.social · 12/01/2026
The accessories aren't welded to Barbie - people can pick and choose what to play with. You're never going to represent everyone and they did well to consult with ASAN. At the end of the day, it is a child's toy & not designed to represent an adult with decades of honed Oscar-worthy masking skills.
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Lilly @lillyjade.bsky.social · 12/01/2026
The world of so many autistic people opens up when they're given access to appropriate AAC, but far too many people are denied the basic right of communication and live a restricted, impoverished life as a result. AAC representation is a good thing and maybe it will help more people access it.
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Lilly @lillyjade.bsky.social · 10/01/2026
Hoping you and your family remain safe. I grew up in the Blue Mountains and had my yard burn and was evacuated multiple times. I know how eerie and scary it can be.
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Kaz Cooke @kazcooke.bsky.social · 10/01/2026
As stated, this is an interim list which will be updated. Many people on it won't even know about the fiasco yet. People are free to make their choice, once they know about it. (What an incredible line-up has been so insulted & sabotaged. Look at this list of what the festival was going to be.)
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Lilly @lillyjade.bsky.social · 10/01/2026
💔
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🐈‍⬛💜 phonakins 🍉🌲 @phonakins.com · 09/01/2026
"A Total Fire Ban will be in place tomorrow, Sat 10 January for Greater Sydney, Illawarra Shoalhaven, Far South Coast, Greater Hunter, Monaro Alpine, Southern and Central Ranges and the Southern Slopes. Hot, dry and windy conditions are forecast across much of the state, increasing the fire danger"
A Total Fire Ban will be in place tomorrow, Saturday 10 January, for Greater Sydney, Illawarra Shoalhaven, Far South Coast, Greater Hunter, Monaro Alpine, Southern and Central Ranges and the Southern Slopes. Hot, dry and windy conditions are forecast across much of the state, increasing the fire danger.

Take action now. Know your fire risk and what you will do if fire threatens. Report all unattended fires to Triple Zero (000).

For more information on Total Fire Ban rules, visit the #RFS website: www.rfs.nsw.gov.au/fdr
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Richard 🐗 🪵 @rogley8.ribbit.org · 09/01/2026
In an emergency the abc.net.au and emergency.vic.gov.au websites may be unavailable in your area. You can tune into the local radio stations on: Goulburn Valley: 97.7 FM Corryong: 99.7 FM Upper Murray: 106.5 FM Melbourne: 774 AM Alexandra: 102.9 FM Mansfield: 103.7 FM Eildon: 98.1 FM
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John Delmenico @thebigjohnnyd.bsky.social · 03/12/2025
Happy International People with Disabilities Day Australia!
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Lilly @lillyjade.bsky.social · 05/12/2025
I'm pretty sure there was a period in the 90s where I thought this too!
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Lilly @lillyjade.bsky.social · 05/12/2025
Sounds like a more preferable activity. Hope the call was brief and productive!
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Lilly @lillyjade.bsky.social · 05/12/2025
Amazing 😍 Hoping it goes really well. You'll definitely have to keep us updated 💜
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Beatrice Adler-Bolton @reallandsend.bsky.social · 16/11/2025
To honor Alice—and all our disability ancestors—is to keep building that connective tissue she described. To love fiercely, politically, on purpose. To ensure the filaments they left behind continue to glow in us, and through us, long after the world has forgotten their names. We won’t.
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Beatrice Adler-Bolton @reallandsend.bsky.social · 16/11/2025
Alice Wong taught us that disabled people don’t just leave memories behind—they leave infrastructure. Lineages of care. Methods of collectivity, survival. She named the connective tissue that holds our communities together, even across death, even across the losses that come too fast and too often.
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Lilly @lillyjade.bsky.social · 12/11/2025
Yes, this is what I was trying to say! Sorry if it wasn’t clear (I am much better at explaining myself with long passages rather than being succinct as is needed on social media) 😊
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Dr Aimee Grant @draimeegrant.bsky.social · 10/11/2025
📣New research Q: What do neurodivergent people think about words like "neurodiversity". A: it's complicated; they use it, but it has limitations and could stigmatise. Full paper: journals.sagepub.com/doi/10.1177/... (1 of 2)
journals.sagepub.com
‘A Lovely Safe Umbrella to Describe Yourself With’ or ‘Meaningless’: An Online Survey of UK-Based Neurodivergent Adults’ Views of Neurodiversity-Related Terminology - Aimee Grant, Jennifer Leigh, Moni...
Background: Neurodivergence refers to people with ways of behaving and thinking that diverge from the norm. Examples include Autism, Attention Deficit Hyperacti...
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Lilly @lillyjade.bsky.social · 11/11/2025
It became very apparent to me that this wasn't a reality once I began to learn about the experiences of earlier diagnosed autistics, both those of a similar age to me, and present day.
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Lilly @lillyjade.bsky.social · 11/11/2025
I completely agree. I think if you're late diagnosed, it's very easy in those early days to romanticise about a life that could have been if you were diagnosed at a young age and given all the support you needed. But those supports weren't around, and generally aren't now either.
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Lilly @lillyjade.bsky.social · 11/11/2025
I suspect I am reading the same book. I'm not very far in, but it otherwise seems good so far.
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Australian Society of Authors @asauthors.bsky.social · 26/10/2025
The ASA welcomes the Albanese Government’s decision to rule out a Text and Data Mining (TDM) exception to Australian copyright law, which would have allowed for AI training on authors’ work. aapnews.aap.com.au/news/copyrig...
aapnews.aap.com.au
Copyright laws to protect creatives from AI data mining
Tech developers will not have a "free pass" to use creative works to train AI systems, but advocates say more protections are needed against copyright theft.
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Lilly @lillyjade.bsky.social · 31/10/2025
🥲🫂
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Lilly @lillyjade.bsky.social · 31/10/2025
That sounds amazing. Maybe one day there won't be so much physical distance
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Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 30/10/2025
Autumn shares a poem: “Nothing about us without us means all of us together The loud, the silent, the joyous, and the somber The future is an echo that arrives before the sound”
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Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 30/10/2025
The first award is the Nothing About Us Without Us Award, given to self-advocates whose work fights to make sure that our community’s voices are being heard. This year, this award goes to Autumn Lauener for their tireless work supporting both the autistic and trans community across Texas.
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Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 30/10/2025
“Most of all, we know that, whatever laundry list of activities they can and cannot do, the life of every autistic person is worth living.” – Colin Killick, ASAN’s Executive Director
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Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 30/10/2025
“We know the world is full of autistic people, including those with high support needs, who do all those things amazingly, from nonspeaking poets, to policy experts with intellectual disabilities.”
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Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 30/10/2025
“When the government spreads lies about autism, these lies put the autistic community in danger. They threaten our access to health care, our right to make choices for ourselves, and our right to live in the community.”
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Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 30/10/2025
ASAN’s Annual Gala awards ceremony is starting now! #ASANGala Watch the livestream on YouTube starting NOW: youtu.be/36ZQOoLlZH8
youtu.be
2025 ASAN Gala Awards Ceremony
At this year’s Awards Ceremony, we will be honoring several awardees for their tireless work in advocacy, community building, and so much more. We’ll also hear remarks from ASAN’s Executive Director…
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Lilly @lillyjade.bsky.social · 28/10/2025
Oh that is the worst. Our next door neighbours added another whole story to their house and it was sensory hell for six months. I hope it doesn’t last too long for you.
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Lilly @lillyjade.bsky.social · 28/10/2025
Yes I know! But don’t worry, the library had it back within a couple of hours of my copy arriving. I’d filled it with post-it notes marking things so had to wait for my copy to transfer them to the right spots!
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Lilly @lillyjade.bsky.social · 28/10/2025
I’ve already finished, it’s fantastic! I’m working on some stuff around mis/disinformation, so it’s been super interesting and really relevant. Info dumped half the book to my partner until they said they were just going to read it too. Well written and really easy to read. Brilliant work!
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Thinking Person's Guide to Autism @thinkingautism.com · 26/10/2025
Today in Hell yes, research: "Autistic children with little to no spoken language may understand more language than they produce, which means spoken vocabulary is not a good proxy for one’s understanding of words." journals.sagepub.com/doi/10.1177/... #autism #autistic #neurodiversity
journals.sagepub.com
Conceptualizing and describing autistic language: Moving on from ‘verbal’, ‘minimally verbal’ and ‘nonverbal’ - Kristen Bottema-Beutel, Alyssa Hillary Zisk, Jordyn Zimmerman, Betty Yu, 2025
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Haymarket Books @haymarketbooks.org · 27/10/2025
ALL Haymarket EBooks are 80% off through November 7th ✊🏾✊🏿✊🏽
haymarketbooks.org
Haymarket Ebooks on sale for $2!
At Haymarket, our mission is to publish books that contribute to struggles for social and economic justice. We strive to make our books a vibrant and organic part of social movements, and we believe t...
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Lilly @lillyjade.bsky.social · 28/10/2025
You know you've been taken in by a book when only a few pages in to the library copy, you buy your own. Conspiracy Nation by @arielbogle.bsky.social and @cameronwilson.bsky.social publishing.hardiegrant.com/en-au/books/...
Photo of 2 copies of the book Conspiracy Nation: Exposing the Dangerous World of Australian Conspiracy Theories by Ariel Bogle and Cam Wilson. The cover is stylised with illustrations reflecting Australia and conspiracy theories in white, orange, and black. One copy displays the library's shelf number on its spine.
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Lilly @lillyjade.bsky.social · 28/10/2025
100%! and I must say your garden is looking very inviting at this time of year 🍂
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Lilly @lillyjade.bsky.social · 28/10/2025
Happy napping and carving! I really hope your time stays protected so you get that much needed reset.
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Melissa @artistaffame.bsky.social · 28/10/2025
Me talking about why eradicating poverty isn’t just the morally correct position but it makes economic sense as well www.abc.net.au/news/2025-10...
abc.net.au
Price of poverty hurts us all, yet research reveals an easy fix
In 2020, Australia massively increased welfare payments and conducted a live experiment in ending poverty, but when the subsidy was removed, many were thrown back into hardship. Leaving aside the mora...
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Gerald Roche @geraldroche.bsky.social · 25/09/2025
I'm helping to set up a community of practice to end the bullying of autistic students in Australian schools. If you'd like to participate, please get in touch using the form below. Further details in the thread following. forms.gle/RFPJag4wffdq...
forms.gle
Expression of Interest: Community of Practice to Prevent Bullying of Autistic Students
Please use this form to express your interest in joining a community of practice to help end the bullying of Autistic students in Australia. There are 11 questions on this form. 10 are compulsory a...
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Lilly @lillyjade.bsky.social · 25/09/2025
I don’t have the qualifications to participate, but this is so important and I’m really glad you’re doing this. Happy to support from the fringes
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Melody Schreiber @melodyschreiber.com · 24/09/2025
Are you autistic? What did you think of the announcement yesterday? I want to hear from you for a Guardian US article: melodyschreiber@pm.me
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The Autism Books by Autistic Authors Project @autisticbooks.bsky.social · 23/09/2025
I am begging people to please seek out Autistic voices if you want to learn about autism. You will find that rather than wanting our lives to be prevented or cured, we want appropriate supports for ALL Autistic people (including those with intellectual disability and other co-occurring conditions).
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The Autism Books by Autistic Authors Project @autisticbooks.bsky.social · 23/09/2025
Autistic people are not your tragedies and we should not be the subject of your conspiracies and dehumanising rhetoric. We are not mythical creatures to pity but real people with needs and desires, just like you.
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The Autism Books by Autistic Authors Project @autisticbooks.bsky.social · 23/09/2025
It appears the foreseeable future will be even more difficult for autistic people & their loved ones because of the heinous disinformation coming from the US government &their supporters. We should not need to reiterate the humanity of Autistic people, but here we are, watching as progress is erased
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Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 21/09/2025
@annmemmott.bsky.social posted on linkedin: "If it is safe for you to speak out, when such an announcement happens, please do so. If it is not safe, please take really good care of yourselves and those you love....."
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Lilly @lillyjade.bsky.social · 22/09/2025
This is an excellent newsletter. If you haven't already subscribed, now would be the perfect time so you can discover accurate and informative information about autism.
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John Choiniere @johnchoiniere.bsky.social · 21/09/2025
Acetaminophen/paracetamol use in pregnancy doesn't cause autism, no matter what RFK says this week. This is not an unsettled question. Evidence summarized here: sciencebasedmedicine.org/tylenol-and-...
sciencebasedmedicine.org
Tylenol and Autism
Earlier this year, HHS secretary RFK Jr. predicted that, "By September, we will know what has caused the autism epidemic and we'll be able to eliminate those exposures." Scientists have been researc
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