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Dr Karri Gillespie-Smith

@karri-g-smith.bsky.social
789 followers 495 following 7 posts

Senior Lecturer, University of Edinburgh. Views my own. Scheme graduate. Autism, trauma, learning disabilities, social cognition and mental health.

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Reposted by Dr Karri Gillespie-Smith
Matthew Broberg-Moffitt (any/all) @mbrobergmoffitt.bsky.social · 02/08/2025
I’m an Autistic classically trained chef and I wrote a food aversion acceptance cookbook and guide titled COLOR TASTE TEXTURE, that’s all about finding out what works for specific sensory needs and how to customize food for them. It’s useful for all ages, no cooking experience necessary.
penguinrandomhouse.com
Color Taste Texture by Matthew Broberg-Moffitt: 9780593538593 | PenguinRandomHouse.com: Books
An accessible family cookbook that offers solutions rather than tricks to empower the food-averse, autistic, and picky eater, with 46 recipes. This much-needed cookbook combines tips and techniques.....
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Medical Research UK @medicalresearchuk.bsky.social · 10/07/2025
🔍 Researchers from the Eating Disorders and Autism Collaborative (#EDAC) have used an innovative 'photo voice' technique to empower Autistic people with eating disorders to shape the direction of future research. #MedSky 📄 read paper: lnkd.in/dAWSUVyT 🖼️ view virtual exhibition: lnkd.in/dnBHnAh5
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Katie Cebula @katiecebula.bsky.social · 01/07/2025
Happy first birthday to the Neurodivergent peer Support Toolkit (NEST)! If you are in a mainstream secondary school and interested in setting up a peer support group for neurodivergent young people, see the resources linked in this thread...
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Thinking Person's Guide to Autism @thinkingautism.com · 25/05/2025
In case you missed it: #AutINSAR is a much-needed discussion between autistic people, autism researchers, family members, and professionals about priorities in autism research. This year it happened during #INSAR2025. Recap at TPGA: thinkingautismguide.com/2025/05/what... #autism #neurodiversity
thinkingautismguide.com
What Autistic People Want From Autism Research: AutINSAR 2025
AutINSAR is a much-needed discussion between autistic people and autism researchers about priorities in autism research.
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Katie Cebula @katiecebula.bsky.social · 08/05/2025
Are you a care experienced adult (16+ years) or the supporter of care experienced children/adults in Scotland (e.g. foster parent, residential carer)? If so, we invite you to come to one of our ‘Sibling Cafes’ in May (choice of in-person or an online). To sign up and for more info: edin.ac/4cIYdcs
Sibling Cafes
Seeking care experienced adults and supporters to take part.
Now open to:
Care experienced adults (16+ years) in Scotland
Supporters of care experienced children/adults in Scotland (e.g. foster parent, residential carer)
We know that brothers and sisters are important to people who are care experienced. We would like to hear about your sibling experiences to improve research and care in the future.
Come along to one of our Sibling Cafes:
Information with activities and time to talk
An opportunity to discuss what is important to you about sibling relationships and have your say about how the Scottish Government collections information on siblings.
You don’t need to bring a sibling to the café.
Café dates:
Saturday 24th May Central Edinburgh
Friday 30th May Online
Find out more and sign up: https://edin.ac/4cIYdcs
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Emily Purcell @emilypurcell.bsky.social · 07/05/2025
As part of my MSc dissertation, I’m exploring the risk and protective factors associated with eating disorders in autistic and/or ADHD individuals. I invite you to complete the survey. @karri-g-smith.bsky.social lnkd.in/gcPpMs7c #ADHD #AutismAwareness #EatingDisorders #Research
A recruitment poster for a University of Edinburgh study titled "Understanding the Risk and Protective Factors Associated with Eating Disorder Behaviours in Autistic and/or ADHD People." The poster invites UK-based individuals aged 16+ who are autistic and/or have ADHD to participate in a 45–50 minute survey. No official diagnosis is needed. The study aims to improve understanding of eating disorders in neurodivergent populations and offers a prize draw for participants. Contact: s2663353@ed.ac.uk. Includes a QR code and survey link.
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Sue Fletcher-Watson @suereviews.bsky.social · 21/04/2025
At @journalautism.bsky.social we are recruiting! Thanks to a massive increase in submissions over recent years, we are dramatically expanding our team to appoint FIVE new editors! See details of the role and how to apply here, by May 23rd. journals.sagepub.com/pb-assets/PD...
journals.sagepub.com
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David Slack @slack2thefuture.bsky.social · 19/04/2025
Staple this to RFK Jr’s forehead.
A screengrab from Twitter.

HeatherLhaney @heather_l... asks:
“Why do you think we have so many more kids with Autism”

David Dennis Jr. @DavidDTSS quotetweets this reply:
“Probably for the same reason there are so many more planets in outer space now than there were before the telescope was invented”
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Reposted by Dr Karri Gillespie-Smith
Dr Julia Grace Patterson @jujuliagrace.bsky.social · 01/04/2025
URGENT - there are growing concerns that the NHS will be included in trade talks with Trump 🚨 EveryDoctor has set up a way to tell Keir Starmer within seconds that you do not want this. Please click here, and then share! bit.ly/TellKeir
bit.ly
Urgent Action Needed: Tell Keir Starmer to Keep the NHS Out of US Trade Deals
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Dr Julia Grace Patterson @jujuliagrace.bsky.social · 19/03/2025
Anyone else fed up of this stuff?🚨 “Peer who led government NHS review failed to declare shares in health firms.” This is about Lord Darzi… www.theguardian.com/society/2025...
theguardian.com
Peer who led government NHS review failed to declare shares in health firms
Lord Darzi’s undeclared interests in four companies included $500,000 of shares in US-based healthcare venture
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Erin Reed @erininthemorning.com · 09/03/2025
1. Major news in transgender care. Germany, Switzerland, and Austria have just released their trans youth care guidelines. They strongly recommend trans youth care and slam the Cass Review in England. Europe is not "pulling back" on trans care. Subscribe to support our journalism.
erininthemorning.com
New German, Swiss, And Austrian Guidelines Recommend Trans Youth Care, Slam Cass Review
The recommendations, released by the Association of the Scientific Medical Societies in Germany, come at a time when US politicians erroneously claim that Europe is "pulling back" on transgender care.
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Inspace @inspaceedinburgh.bsky.social · 05/03/2025
We are delighted to present a selection of *Photovoice photographs, drawings and digital art produced by Autistic people with eating disorders on Inspace @designinf.bsky.social City Screens on Potterrow, each evening across this week. #Photovoice #research #collaboration #data #photography
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Dr Karri Gillespie-Smith @karri-g-smith.bsky.social · 02/03/2025
We @EDACautism_ED launched our exhibition on Friday and Saturday. We were over the moon that so many participants and collaborators were able to make it along. @EDAC is more than a research grant or network – we are a #community of #Autistic people, (1/2)
A wide open space with 3 frames which have canvases that are lit up.  The canvases have a selection of images and text outlining the experiences of Autistic people with Eating Disorders.  There is a projector above the canvases.  A wide open space with 2 frames which have canvases that are lit up.  The canvases have a selection of images and text outlining the experiences of Autistic people with Eating Disorders.  There is a projector above the canvases.  A stand displaying menu sheets that detail how eating environments can be improved for Autistic people.  In front of a stand is a white table with a blank eating environment sheet and instructions for visitors to have a go at designing autism affirming eating environments.  Behind one of the canvases is a big grey column and behind that is a stand with images displayed representing the experiences of an Autistic person with Intellectual Disability who also had an eating disorder.  There is a row of projectors above the stands and canvases.  Woman standing with microphone in front of some seated guests with a slide in the background that says ‘The Eating Disorders and Autism Collaborative (EDAC) is a UK wide collaborative network that aims to bridge the gap between autism and eating disorders research. EDACResearch.co.uk’ with the symbol for EDAC (which is a purple and green circle interlinking around a white neurodiversity symbol).  Behind the woman is two seats and a table.Woman standing with microphone in front of a slide in the background that says ‘The Eating Disorders and Autism Collaborative (EDAC) is a UK wide collaborative network that aims to bridge the gap between autism and eating disorders research. EDACResearch.co.uk’ with the symbol for EDAC (which is a purple and green circle interlinking around a white neurodiversity symbol).  Behind the woman is two seats and a table.
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 28/02/2025
Well that was an amazing opening night of the EDAC "you're not alone" exhibition of Autistic experiences of ED's! Huge shout out to the amazing @Karri_G_Smith , Kyle and Sarah for the enormous amount of work pulling this together and for everyone who made it along tonight 🥰🥰🥰
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 24/02/2025
For anyone coming along to see our exhibition on autistic experiences of eating disorders and research priorities, our peer researcher @eatsleeplaugh.bsky.social has done this handy video to let you know where to go!
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 27/02/2025
We are recruiting UK based clinicians in eating disorder services to think about barriers & enablers for implementing autism affirming care, for example PEACE pathway. If you would be willing to be interviewed over TEAMS there is more information here! edinburgh.eu.qualtrics.com/jfe/form/SV_...
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Aut2Ask 🦦 @aut2ask.bsky.social · 26/02/2025
🎉GOAL: get 200 autistic (self dx / questioning valid!) folks in a room to connect and chat about healthcare. See below! Share to help us! We hit 125 folks last month us06web.zoom.us/meeting/regi...
us06web.zoom.us
Welcome! You are invited to join a meeting: Autism and Healthcare. After registering, you will receive a confirmation email about joining the meeting.
Aut2Ask presents: AUTISM and HEALTHCARE. Join us for a discussion about healthcare. We'll welcome three Healthcare Workers: @anise.green, @autismoutloud, and @smilesandscrubs We'll be discussing Mi...
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Mike Galsworthy @mikegalsworthy.bsky.social · 19/02/2025
Unapologetically. ✊🇪🇺
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Carole Cadwalladr @carolecadwalla.bsky.social · 12/02/2025
This isn't a surprising but it is devastating. The great betrayal of Ukraine begins. We, in Europe, are in a place of danger. We all owe Ukraine & its people a debt of gratitude for its extraordinary courage. 😢
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 03/02/2025
EDAC is proud to host an exhibition of photographs, drawings and digital art on the experience and research priorities of autistic people with eating disorders . inspace.ed.ac.uk/youre-not-al.... 1st to 8th march (closed Sunday Tuesday and Thursday, free drop in 10-5 quiet hour on sat.
Image of hand holding up plastic cup with two silver metal spoons in it against a turquoise background. Written text above this stating exhibition details 1st to 8th march (closed Sunday, Tuesday and Thursday) time 10am to 5pm, free/drop in, location at inspace, 1 Crichton street, Newington, Edinburgh, EH 8 9AB
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Fiona duffy @fionaduffy.bsky.social · 21/01/2025
New publication with @edaceatingautism.bsky.social, @eatsleeplaugh.bsky.social @emynimbley.bsky.social and others, qualitative study of clinicians experience of eating disorder focused family therapy (FBT or FT-AN) with Autistic young people and their families onlinelibrary.wiley.com/doi/10.1002/...
onlinelibrary.wiley.com
Clinicians' Experiences of Eating Disorder Focused Family Therapy With Autistic Young People
Objective Eating disorder focused family therapy (FT-ED) is the leading outpatient intervention for adolescents with Anorexia Nervosa. Autistic people report poorer eating disorder treatment experie...
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Saskia Grassie @saskiagrassie.bsky.social · 24/01/2025
Fascinating thread & Table Talk @edaceatingautism.bsky.social @fergus.oolong.co.uk talking with Kyle Buchan re monotropism & autistic experiences of eating, incl. sensory; impact of cognitive load; neuro-normative expectations; orthorexia; validation; trauma; safe foods & more youtu.be/CUyUkjUgKAw
youtu.be
Table Talk Episode 2 Monotropism
YouTube video by EDAC
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 13/01/2025
Thanks to everyone who joined our online launch earlier! Great to see so many people in attendance and sharing such insightful thoughts and questions. Feeling even more energised for the next steps!✨️ A recording and FAQ from the event will be available soon😊
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Ann Memmott @annmemmott.bsky.social · 13/01/2025
This is well worth a read. Autistic girls, & camouflaging/masking, at school. How friendships with other neurodivergent young people are a lifesaver. How bullying & exclusion happens from nonautistic pupils. Who has the behaviour and social skills problems, eh? link.springer.com/article/10.1...
link.springer.com
A “Round, Bruising Sort of Pain”: Autistic Girls’ Social Camouflaging in Inclusive High School Settings - Journal of Autism and Developmental Disorders
Although autistic females often “camouflage” their autism, few studies examine the degree to which adolescent females demonstrate these behaviors in inclusive school settings. We examined: (a) the nat...
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lisa golds @lisagolds.bsky.social · 12/01/2025
Happy to share the first empirical paper from my PhD thesis in collab with Angus MacBeth and @karri-g-smith.bsky.social - a cluster analysis of risk and protective factors for maternal smartphone use and mother-infant responsiveness onlinelibrary.wiley.com/doi/10.1002/... #PerinatalMentalHealth
onlinelibrary.wiley.com
Associations between maternal smartphone use and mother‐infant responsiveness: A cluster analysis of potential risk and protective factors
Contradictory results in the extant literature suggests that additional risk factors should be considered when exploring the impacts of maternal smartphone use on mother-infant relationships. This st...
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Ann Memmott @annmemmott.bsky.social · 08/01/2025
Slightly excited to find that nearly 400 papers (out of 8000 autism research papers) on PubMed mentioned autism *and* quality of life, last year. The graph shows the steep increase in the number of papers talking about quality of life (somehow). Getting there...
Graph showing how many research papers on PubMed academic site talked about autism and quality of life, per year of publication (in some sense...not necessarily our quality of life.  Could be that of carers etc).
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 06/01/2025
New publication by EDACs amazing post doc Michelle Sader on the Co-occurrence of autism and avoidant restrictive food intake disorder-meta analysis of prevalence rates ... onlinelibrary.wiley.com/doi/full/10.... @karri-g-smith.bsky.social @drhelensharpe.bsky.social @fionaduffy.bsky.social
onlinelibrary.wiley.com
The Co‐Occurrence of Autism and Avoidant/Restrictive Food Intake Disorder (ARFID): A Prevalence‐Based Meta‐Analysis
Objective Avoidant/restrictive food intake disorder (ARFID) is a feeding and eating disorder characterized by extensive avoidance and/or restriction of food. Existing research demonstrates that ARFI.....
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aslynn is just a ghoul 👻 @aslynnromano.com · 28/12/2024
"Misdiagnosis may further compound such experiences of exclusion, difference, & diminished self-worth. The label “borderline” is frequently used pejoratively & in sex/gender-typed ways, describing women." Misdiagnosis of BPD is harmful, esp when people are #ActuallyAutistic
liebertpub.com
Borderline Personality as a Factor in Late, Missed, and Mis-Diagnosis in Autistic Girls and Women: A Conceptual Analysis | Autism in Adulthood
Autism without intellectual disability is diagnosed later and with greater difficulty in girls/women relative to boys/men. For autistic girls and women, the journey to an autism diagnosis may include ...
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Bobbi Elman @autismadvocate.co.uk · 18/12/2024
Exactly this @aimautistic.bsky.social @ausomecharlie.bsky.social @emergentdivergence.com @queerlyautistic.bsky.social #TransRightsAREHumanRights
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KittyKatGirl😻🙏💞🐞 @mary1kathy.bsky.social · 18/12/2024
A recruiter called me yesterday offering me a fabulous position. Paid relocation, sign on bonus, famous hospital near beaches. Huge salary…. It was in Texas. No thank you. As a woman I would NEVER live or work in Texas. Good luck with your search. publichealth.jhu.edu/2024/analysi...
publichealth.jhu.edu
Analysis Suggests 2021 Texas Abortion Ban Resulted in Increase in Infant Deaths in State in Year After Law Went into Effect | Johns Hopkins Bloomberg School of Public Health
Researchers use statistical modeling to estimate infant deaths expected if one of the country’s most stringent state abortion laws had not been enacted.
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MissHalcyon @misshalcyon.bsky.social · 14/11/2024
Are you an Autistic therapist, psychiatrist, or scientist in the field of psychology, especially Autism studies? We need you! Please just ask if you want to be added or removed! go.bsky.app/ARPDrD4
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Mike Galsworthy @mikegalsworthy.bsky.social · 06/12/2024
“Its replacement, the Turing scheme, is less inclusive and far narrower in scope: there is no funding for overseas students to come to the UK, and students from disadvantaged backgrounds receive less funding than under Erasmus+.”
sussexbylines.co.uk
Bring back Erasmus+ and youth mobility in Europe
Taking Britain out of the Erasmus+ programme was a huge mistake. Labour must rejoin and accept the EU’s offer of a youth mobility scheme
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Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 04/12/2024
💜🌟🌈 My neuro-affirming starter pack includes a collection of wonderful individuals and organizations dedicated to supporting autistic individuals and effecting positive change. Please follow and share. 💜🌟🌈 go.bsky.app/9N5UEUC
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Monotropism.org @monotropism.org · 28/11/2024
Monotropism Archives: "Positive hyper-focussing abilities - giving more to an individual's leading interests and less to others - can make for enhanced processing not diminished" Dinah Murray: Dimensions of Difference Full article: monotropism.org/dinah/dimens... Find out more: www.monotropism.org
Title: Monotropism
Image: Dandelion Puff
Text: "Positive hyper-focussing abilities - giving
more to an individual's leading interests
and less to others - can make for
enhanced processing not diminished"

Dinah Murray: Dimensions of Difference

Chapter 3 cited in:
Milton, D. (2020). The Neurodiversity Reader: Exploring Concepts, Lived Experience
and Implications for Practice. Pavilion Publishing and Media Limited.
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Steven Kapp @drstevenkapp.bsky.social · 30/10/2024
New paper by neurodivergent team critical of a) treating autism via oxytocin & b) animal models for autism research (low clinical relevance & validity). We argue instead for participatory research w/ esp. marginalized autistic ppl. Free via this link until Dec 19 authors.elsevier.com/a/1k0eB15hUd...
authors.elsevier.com
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Centre for Research in Autism and Education @craeioe.bsky.social · 18/11/2024
Interoception – how we feel what our body is doing – has been linked to wellbeing. A team, with Geoff Bird, looked at a new app that might how accurate someone is at feeling signals form their body. It uses the ‘Phase Adjustment Task’.
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Phaedra Longhurst @phaedralonghurst.bsky.social · 24/11/2024
In collaboration with @fionaduffy.bsky.social, @karri-g-smith.bsky.social, @dr-liz-evans.bsky.social, @kerenmaclennan.bsky.social and Emy Nimbley, we moaned over the lack of ED measures for the autistic ED community 👺 doi.org/10.1080/1064...
doi.org
Measuring eating disorders in Autistic people: a proposal for future research
While diagnostic pathways for identifying Autism in eating disorder (ED) populations have been developed, the field continues to lack validated psychometric tools to measure EDs for use in the Auti...
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Amy Pearson @dramypearson.bsky.social · 14/11/2024
🚨 NEW PAPER ALERT: CW: Abuse. Two papers out today in Autism in Adulthood from our @vamhn.bsky.social funded project on supporting autistic adults who have experienced intimate violence. The first paper focuses on meaning-making, and the second on intervention 🧵Thread (& links) incoming.
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Charli Clement @charliclement.bsky.social · 23/11/2024
‘We aren’t suggesting that good autism research can’t be done by non-autistic researchers. But autistic people should always be involved in research in a meaningful way and should be listened to at every stage’ so appreciate this discussion on such a platform! theconversation.com/why-autistic...
theconversation.com
Why autistic people must be at the heart of autism research
A research project led entirely by autistic people aims to change the way autism research is conducted.
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Jo Billington @drjobillington.bsky.social · 21/11/2024
“in primary schools, nearly 90% of those permanently excluded over the past 5 years also had special educational needs & disabilities” www.bbc.co.uk/news/article...
bbc.co.uk
Primary school pupil suspensions in England double in a decade
Mum Jo says Jacob is very caring but sensory issues led to him being excluded for disruptive behaviour.
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Dr Zoë Ayres @zjayres.bsky.social · 19/11/2024
Some really great study tips here from Lucy for neurodivergent students in a handy guide
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 19/11/2024
We are super proud to have worked with this with Phaedra Longhurst, @dr-liz-evans.bsky.social @kerenmaclennan.bsky.social @karri-g-smith.bsky.social @fionaduffy.bsky.social and Emy Nimbley 👇
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Fergus Murray @oolong.co.uk · 19/11/2024
Hey look it's me
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Altmetric @altmetric.com · 18/11/2024
We strongly suggest that academic publishers and other platforms that host research rapidly implement a Share to Bluesky button for their articles. Here's how: docs.bsky.app/docs/advance... #AcademicSky #HigherEd #Altmetrics
docs.bsky.app
Action Intent Links | Bluesky
Authors, websites, and apps can use action intent links to implement "Share on Bluesky" buttons, or similar in-app actions. Logged-in users will be directed to the corresponding action view in the Blu...
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Edinburgh Neuroscience @edinunineuro.bsky.social · 18/11/2024
🚨 Beautifully clear and accessible article about what neurodiversity means from @cjcrompton.bsky.social, @suereviews.bsky.social and colleagues!
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Helen Sharpe @drhelensharpe.bsky.social · 15/11/2024
New paper from the fab Emy Nimbley (not yet here on BSKY?) + others on outcomes of ED treatment for autistic people and those with high autistic traits. @eatingresearch.bsky.social @intjeatdisord.bsky.social onlinelibrary.wiley.com/doi/full/10....
onlinelibrary.wiley.com
A Mixed Method Systematic Review Into the Impact of ED Treatment in Autistic People and Those With High Autistic Traits
Objective Our understanding of the impact of eating disorders (ED) treatment in Autistic people remains elusive. Research has begun to explore ED treatment outcomes and experiences in this populatio...
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Alyssa Alcorn @aalcorn.bsky.social · 13/11/2024
🥳 Check out our new article introducing neurodiversity research--for kids! Frontiers For Young Minds is a peer-reviewed scientific journal for kids, with young reviewers (+ adults). With @cjcrompton.bsky.social @katiecebula.bsky.social @suereviews.bsky.social kids.frontiersin.org/articles/10....
kids.frontiersin.org
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