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Eating Disorders and Autism Collaborative

@edaceatingautism.bsky.social
603 followers 225 following 46 posts

A research network bridging the gap between autism and eating disorders research, driven by Autistic individuals with lived experience

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Reposted by Eating Disorders and Autism Collaborative
Tine Opitz @tineopitz.bsky.social · 13/04/2026
📢NEW PUBLICATION: Exploring career concerns and opportunities for UK-based early career researchers working in the field of eating disorders: Delphi study www.cambridge.org/core/journal... @eatingresearch.bsky.social @edaceatingautism.bsky.social @edinburghmentalhealth.org
cambridge.org
Exploring career concerns and opportunities for UK-based early career researchers working in the field of eating disorders: Delphi study | BJPsych Open | Cambridge Core
Exploring career concerns and opportunities for UK-based early career researchers working in the field of eating disorders: Delphi study - Volume 12 Issue 3
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Edinburgh University Eating Disorders Research Group @edresearch.bsky.social · 16/10/2025
We are currently recruiting adults age 16 or over based in the UK with a clinical or self diagnosed eating disorder who have experience of using, or attempting to obtain, GLP-1 weight loss injections. Please do complete the survey here edinburgh.eu.qualtrics.com/jfe/form/SV_...
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 11/09/2025
And we are very glad you agreed to doing this thing! It is fab, thanks you so much for bringing all your loved experience and expertise! 👏👏👏
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luis01.bsky.social @luis01.bsky.social · 11/09/2025
www.youtube.com/watch?v=ee5q... - I did a thing
youtube.com
Table Talk Episode 7 : Autistic Male Experiences of Eating Disorders
YouTube video by EDAC
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Reposted by Eating Disorders and Autism Collaborative
Fiona duffy @fionaduffy.bsky.social · 20/08/2025
Myself and @drhelensharpe.bsky.social have combined 2 0.4WTE postdocs to make 0.8 for 1 person or two 0.4 posts thanks to @medresfdn.bsky.social funding. Will be working across developing resources for food insecurity in EDs and adaptations to FT-AN for autistic young people at Edinburgh uni.
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Medical Research UK @medicalresearchuk.bsky.social · 31/07/2025
[2/2] A huge congratulations to: 🟩 @fionaduffy.bsky.social from The University of Edinburgh 🟩 @nicolabyrom.bsky.social from King's College London 🟩 @drhelensharpe.bsky.social from the University of Edinburgh 🟩 @dashanicholls.bsky.social from Imperial College London 👉 Read more: shorturl.at/GbQQk
shorturl.at
Medical Research Foundation | Transforming eating disorder care…
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Medical Research UK @medicalresearchuk.bsky.social · 31/07/2025
Meet the recipients of our new Eating Disorders Research Changing Policy and Practice Awards! ✨ These exceptional researchers are working to share their findings with healthcare professionals & policymakers, to improve support for those affected by life-threatening eating disorders. [1/2]
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 16/05/2025
We are recruiting Autistic adults (formal diagnosis or self identified), over 16years and fluent in English, who have experienced CBT-E for anorexia, bulimia or binge eating disorder in the past 3 years for a survey and an optional follow up interviews. edinburgh.eu.qualtrics.com/jfe/form/SV_...
Flyer on a white background with two speech bubbles top right of picture and QR code bottom right. Title: are you an autistic adult with experience of CBT-E for eating disorders? Main text: we want to learn more about experiences of enhanced contrive behavioural therapy for eating disorders (CBT-E) for Autistic people. We are looking for Autistic people over 16 with experience of CBT-E for anorexia, bulimia or binge eating. Taking part involves providing information about you, your experience of CBT-E and maybe a follow up interview to talk more about your experience. If you would be happy to take part please scan the QR code. If you have any questions please email Emy.nimbley@ed.ac.uk
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Medical Research UK @medicalresearchuk.bsky.social · 10/07/2025
🔍 Researchers from the Eating Disorders and Autism Collaborative (#EDAC) have used an innovative 'photo voice' technique to empower Autistic people with eating disorders to shape the direction of future research. #MedSky 📄 read paper: lnkd.in/dAWSUVyT 🖼️ view virtual exhibition: lnkd.in/dnBHnAh5
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LEADING Study @leading-study.bsky.social · 27/06/2025
📣 We’ve now opened our second phase of recruitment and are inviting cisgender adults with a current or past eating disorder to share their experiences too. Please follow the link to find out more: tinyurl.com/LEADINGStudy1
tinyurl.com
Qualtrics Survey | Qualtrics Experience Management
The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.
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Kai Thomas @drkaithomas95.bsky.social · 02/06/2025
Recruitment call for clinicians working in UK ED services (NHS or private practice) that are looking to implement the PEACE framework 📣 To find out more and to take part in the study, please see the poster below or click the following link: edinburgh.eu.qualtrics.com/jfe/form/SV_...
Poster has the title: Clinician perspectives on the implementation of the PEACE framework.
We want to learn more about experienced or perceived barriers and enablers towards implementing changes to eating disorder (ED) treatment for Autistic people with an eating disorder. If you are a healthcare professional working in an ED service that has implemented/is seeking to implement a PEACE framework, take part in our study! The study will involve a short survey collecting demographic information (5 minutes) an online interview that will take between 45 and 60 minutes. Please use the following link: https://edinburgh.eu.qualtrics.com/jfe/form/SV_0dEMYg36Natk0dw
If you have any questions, please email emy.nimbley@ed.ac.uk
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 29/05/2025
Very privileged to have received "highly commended" at Edinburgh Uni's Research Impact Prize event today for team culture! So great for our hardworking team and collaborators to be acknowledged .... not all of our team could make it along so this is for them!
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Phaedra Longhurst @phaedralonghurst.bsky.social · 28/05/2025
Autistic women or Non-binary folks (18+) needed 📢 With support from @edaceatingautism.bsky.social, we would like to hear your valuable expertise to review an intervention that aims to prevent body image concerns and disordered eating. For more info, please email Hannah at h.k.lewis@qmul.ac.uk
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National Autism Implementation Team @naitscotland.bsky.social · 27/05/2025
We are looking for #autistic & #ADHD people in Scotland🏴󠁧󠁢󠁳󠁣󠁴󠁿 to fill in a survey about experiences (in the last 10 years) of pregnancy, birth and the 1st year of being a parent. The survey is here👇 nait.scot/news-and-eve... @nctcharity.bsky.social @semascot.bsky.social @scottishautism.bsky.social
nait.scot
Perinatal Survey | NAIT
NAIT Perinatal Survey launched March 2025 to ask about experiences of neurodivergent people in Scotland during pregnancy, birth and the post-natal period.
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 16/05/2025
We are recruiting Autistic adults (formal diagnosis or self identified), over 16years and fluent in English, who have experienced CBT-E for anorexia, bulimia or binge eating disorder in the past 3 years for a survey and an optional follow up interviews. edinburgh.eu.qualtrics.com/jfe/form/SV_...
Flyer on a white background with two speech bubbles top right of picture and QR code bottom right. Title: are you an autistic adult with experience of CBT-E for eating disorders? Main text: we want to learn more about experiences of enhanced contrive behavioural therapy for eating disorders (CBT-E) for Autistic people. We are looking for Autistic people over 16 with experience of CBT-E for anorexia, bulimia or binge eating. Taking part involves providing information about you, your experience of CBT-E and maybe a follow up interview to talk more about your experience. If you would be happy to take part please scan the QR code. If you have any questions please email Emy.nimbley@ed.ac.uk
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Reposted by Eating Disorders and Autism Collaborative
Anna Carnegie @annacarnegie.bsky.social · 11/05/2025
Spent a great few days in Edinburgh this week with the @edaceatingautism.bsky.social team and others funded under the @ukri.org collaborations in eating disorders research call. Fab opportunity to chat all things peer research and hear updates from ECRs and teams working in the field.
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Ruth Knight @ruthknight.bsky.social · 09/05/2025
Day two in Edinburgh; looking forward to hearing about the incredible research that is being done across the Eating Disorder Research Network. Any conference with @edaceatingautism.bsky.social branded fidget spinners gets my vote!
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 03/05/2025
New research paper using photovoice to explore research priorities with autistic individuals with eating disorders onlinelibrary.wiley.com/doi/full/10....
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Fiona duffy @fionaduffy.bsky.social · 30/04/2025
Our @edaceatingautism.bsky.social postdoc @emynimbley.bsky.social has made this amazing clip of a recent ESRC Impact Acceleration event supporting lived experience, clinicians and researchers to come together to share understanding of autism and eating disorders, narrated by one of our collaborators
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 30/04/2025
New publication which EDAC is proud to be part of supporting implementation of PEACE pathway in clinical services www.mdpi.com/2072-6643/17...
mdpi.com
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 30/04/2025
New EDAC publication from our postdoc Michelle Sader, we will upload a plain speaking summary of this on our website shortly 👍 www.cambridge.org/core/journal...
cambridge.org
Neuroanatomical associations with autistic characteristics in those with acute anorexia nervosa and weight-restored individuals | Psychological Medicine | Cambridge Core
Neuroanatomical associations with autistic characteristics in those with acute anorexia nervosa and weight-restored individuals - Volume 55
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 04/04/2025
New podcast dropping today on autistic trans and non binary peoples experience of eating disorders open.spotify.com/show/6tEaThW...
Beige graphic with words TABLE TALK repeated round border. Top box includes a hand holding a sign with pronouns they/them and text "luka will be talking to us about autistic trans and non binary peoples experience of eating disorders. Our discussion will cover TNB eating disorder development, treatment, recovery, and research priorities!" Bottom graphic text stating "TOPIC: trans and non-binary experiences with table talk logo below which is two heads with speech bubbles over a table labelled table talk with text under table stating "by the eating disorders and autism collaborative."
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Edinburgh University Eating Disorders Research Group @edresearch.bsky.social · 15/03/2025
In-person ECR event for eating disorder researchers in UK on 8th May, focusing on funding applications and co-production. An optional second day networking event with 4 UKRI-funded ED research. ✍️Register interest here: qualtricsxm8tn52zk86.qualtrics.com/jfe/form/SV_...
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Institute of Psychiatry, Psychology & Neuroscience @kingsioppn.bsky.social · 12/02/2025
Are you a health care professional working in #EatingDisorders? KateTchanturia and her team’s workshop ‘Link between Eating disorders and #Autism: PEACE pathway Conference’ will share specially developed resources to take back to your clinic. #MedSky #AcademicSky Register: bit.ly/3Sk2Xgl
bit.ly
Link between Eating disorders and Autism: PEACE pathway Conference | King's College London eStore
We will be presenting an overview of our work, including outcomes, learning points and specially developed resources for clinicians and teams of health pro
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Inspace @inspaceedinburgh.bsky.social · 05/03/2025
We are delighted to present a selection of *Photovoice photographs, drawings and digital art produced by Autistic people with eating disorders on Inspace @designinf.bsky.social City Screens on Potterrow, each evening across this week. #Photovoice #research #collaboration #data #photography
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Inspace @inspaceedinburgh.bsky.social · 03/03/2025
You’re Not Alone photovoice exhibition with @edaceatingautism.bsky.social continues this week! Presenting the experiences and priorities of Autistic people with eating disorders through photographs, drawings and digital art. ⏰ 10am-5pm 📅 Until 8 Mar 2025 | Closed Tues/Thurs 🔗 edin.ac/42KbxdI
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Dr Karri Gillespie-Smith @karri-g-smith.bsky.social · 02/03/2025
We @EDACautism_ED launched our exhibition on Friday and Saturday. We were over the moon that so many participants and collaborators were able to make it along. @EDAC is more than a research grant or network – we are a #community of #Autistic people, (1/2)
A wide open space with 3 frames which have canvases that are lit up.  The canvases have a selection of images and text outlining the experiences of Autistic people with Eating Disorders.  There is a projector above the canvases.  A wide open space with 2 frames which have canvases that are lit up.  The canvases have a selection of images and text outlining the experiences of Autistic people with Eating Disorders.  There is a projector above the canvases.  A stand displaying menu sheets that detail how eating environments can be improved for Autistic people.  In front of a stand is a white table with a blank eating environment sheet and instructions for visitors to have a go at designing autism affirming eating environments.  Behind one of the canvases is a big grey column and behind that is a stand with images displayed representing the experiences of an Autistic person with Intellectual Disability who also had an eating disorder.  There is a row of projectors above the stands and canvases.  Woman standing with microphone in front of some seated guests with a slide in the background that says ‘The Eating Disorders and Autism Collaborative (EDAC) is a UK wide collaborative network that aims to bridge the gap between autism and eating disorders research. EDACResearch.co.uk’ with the symbol for EDAC (which is a purple and green circle interlinking around a white neurodiversity symbol).  Behind the woman is two seats and a table.Woman standing with microphone in front of a slide in the background that says ‘The Eating Disorders and Autism Collaborative (EDAC) is a UK wide collaborative network that aims to bridge the gap between autism and eating disorders research. EDACResearch.co.uk’ with the symbol for EDAC (which is a purple and green circle interlinking around a white neurodiversity symbol).  Behind the woman is two seats and a table.
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 28/02/2025
Well that was an amazing opening night of the EDAC "you're not alone" exhibition of Autistic experiences of ED's! Huge shout out to the amazing @Karri_G_Smith , Kyle and Sarah for the enormous amount of work pulling this together and for everyone who made it along tonight 🥰🥰🥰
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 27/02/2025
We are recruiting UK based clinicians in eating disorder services to think about barriers & enablers for implementing autism affirming care, for example PEACE pathway. If you would be willing to be interviewed over TEAMS there is more information here! edinburgh.eu.qualtrics.com/jfe/form/SV_...
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Medical Research UK @medicalresearchuk.bsky.social · 26/02/2025
🧠 Eating disorders often co-exist with autism, yet research in this area remains limited. Foundation-funded Dr Fiona Duffy & Dr Karri Gillespie-Smith are working to change that. Through @edaceatingautism.bsky.social, they’ve shared best-practice research guidelines. Read more: bit.ly/4k8JN8W #EDAW
medicalresearchfoundation.org.uk
Medical Research Foundation | Eating disorders and autism -…
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Phaedra Longhurst @phaedralonghurst.bsky.social · 25/02/2025
To my fellow AuDHDers, I would like to incorporate some PPI into the development of my grant proposal. While I do not have the funds to reimburse you, having your input would be a huge help in pursuing this important work! If interested, DM or email me at PL428@pgr.aru.ac.uk
media.tenor.com
a cat is playing with an apple laptop with the words research time written below it
Alt: a cat is playing with an apple laptop with the words research time written below it
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 24/02/2025
For anyone coming along to see our exhibition on autistic experiences of eating disorders and research priorities, our peer researcher @eatsleeplaugh.bsky.social has done this handy video to let you know where to go!
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Edinburgh University Eating Disorders Research Group @edresearch.bsky.social · 24/02/2025
We are also 1) recruiting parents and carers of autistic young people who have experienced family based treatment; and 2) individuals with intellectual disabilities to hear more about their experiences of having an eating disorders. Info on EDACs website and below!
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Edinburgh University Eating Disorders Research Group @edresearch.bsky.social · 24/02/2025
We are also supporting BEAT with their webinar on autism and eating disorders on Wednesday with more information here: workshops.beateatingdisorders.org.uk/workshops/au...
workshops.beateatingdisorders.org.uk
Autism and Eating Disorders Workshop - Workshops
Our virtual and in-person conferences & events allow you to learn more about eating disorders both through talks and workshops.
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Edinburgh University Eating Disorders Research Group @edresearch.bsky.social · 24/02/2025
On Friday there is a launch of EDACs exhibition "you're not alone" which is artwork created by Autistic people with eating disorders documenting their experiences and areas they would like people to research. open to the public next week in Edinburgh with info here! inspace.ed.ac.uk/youre-not-al...
inspace.ed.ac.uk
You’re Not Alone – Inspace
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Edinburgh University Eating Disorders Research Group @edresearch.bsky.social · 24/02/2025
Day 1 #EDAW25 updates from us is that we are delighted to host the eating disorders and autism collaborative (EDAC) for updates you can find them here @edaceatingautism.bsky.social and www.edacresearch.co.uk where they have open access publications, interviews with researchers and opportunities
Top right image of Edinburgh with logo of Edinburgh uni and words eating disorders and behaviour research group. Top left EDAW 2025 in capitals. Bottom of the image is text stating day 1: autism and eating disorders. We are proud to host EDaC a research network to support interdisciplinary research, led by autistic individuals with lived experience
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Edinburgh University Eating Disorders Research Group @edresearch.bsky.social · 24/02/2025
Please stay tuned during this years #EDAW where we will be bringing you daily updates of all the eating disorder research taking place at Edinburgh University....
Top right picture of Edinburgh university with blue and red logos and title Eating Disorders and Behaviour Research Group. Top left capital letters EDAW 2025. Text below picture stating, this EDAW Edinburgh university eating disorders and behaviour research group will be bringing you a daily overview of ED research taking place... stay tuned for updates
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 20/02/2025
This one is a must listen for people entering the qualitative field in autism research www.quahrc.co.uk/resources/ne... 👏👏👏
quahrc.co.uk
Neurodiversity Matters: Damian Milton on double empathy and autistic worlds | QUAHRC
How have mainstream theories of autism missed the mark by failing to qualitatively explore internal autistic worlds? Sohail speaks to legend among autistic autism researchers Dr Damian Milton about th...
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Dr Jay Watts @shrinkatlarge.bsky.social · 13/02/2025
Excellent podcast on the harms of the borderline personality disorder construct. Must listen: tinyurl.com/mbumjjr9 #AutismNotPD
tinyurl.com
Episode 3: Borderline Personality Disorder with Eleanor Higgins
EDAC Table Talk Podcast · Episode
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 03/02/2025
EDAC is proud to host an exhibition of photographs, drawings and digital art on the experience and research priorities of autistic people with eating disorders . inspace.ed.ac.uk/youre-not-al.... 1st to 8th march (closed Sunday Tuesday and Thursday, free drop in 10-5 quiet hour on sat.
Image of hand holding up plastic cup with two silver metal spoons in it against a turquoise background. Written text above this stating exhibition details 1st to 8th march (closed Sunday, Tuesday and Thursday) time 10am to 5pm, free/drop in, location at inspace, 1 Crichton street, Newington, Edinburgh, EH 8 9AB
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Ann Memmott @annmemmott.bsky.social · 01/02/2025
ndconnection.co.uk/blog/autism-... Latest autism research roundup from me, part of a monthly series for Neurodiverse Connection. I take a look at some of the best, or most surprising, new papers and what they might mean for autistic lives.
ndconnection.co.uk
Autism Research—What’s New in January — Neurodiverse Connection
In this month’s research roundup, Ann Memmott picks out some of the current big debates on Autistic lives, and showcases new and important research from teams and academics working within the field.
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 27/01/2025
Great to see ED research looking beyond the Anorexia lens and to be inclusive of ADHD and autism here onlinelibrary.wiley.com/doi/full/10....
onlinelibrary.wiley.com
Autism, ADHD, and Their Traits in Adults With Bulimia Nervosa and Binge Eating Disorder: A Scoping Review
Objective This review maps existing literature on the prevalence of autism and ADHD in adult patients with Bulimia Nervosa (BN) and Binge Eating Disorder (BED); patient and stakeholder perspectives .....
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Saskia Grassie @saskiagrassie.bsky.social · 24/01/2025
Fascinating thread & Table Talk @edaceatingautism.bsky.social @fergus.oolong.co.uk talking with Kyle Buchan re monotropism & autistic experiences of eating, incl. sensory; impact of cognitive load; neuro-normative expectations; orthorexia; validation; trauma; safe foods & more youtu.be/CUyUkjUgKAw
youtu.be
Table Talk Episode 2 Monotropism
YouTube video by EDAC
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Fiona duffy @fionaduffy.bsky.social · 21/01/2025
New publication with @edaceatingautism.bsky.social, @eatsleeplaugh.bsky.social @emynimbley.bsky.social and others, qualitative study of clinicians experience of eating disorder focused family therapy (FBT or FT-AN) with Autistic young people and their families onlinelibrary.wiley.com/doi/10.1002/...
onlinelibrary.wiley.com
Clinicians' Experiences of Eating Disorder Focused Family Therapy With Autistic Young People
Objective Eating disorder focused family therapy (FT-ED) is the leading outpatient intervention for adolescents with Anorexia Nervosa. Autistic people report poorer eating disorder treatment experie...
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Edinburgh University Eating Disorders Research Group @edresearch.bsky.social · 15/01/2025
Hot off the press! New paper by a range of co-authors including our own @drhelensharpe.bsky.social on key domains that may be relevant to the characterisation of individuals with FED to support personalisation of care👏👏👏👏 onlinelibrary.wiley.com/doi/full/10....
onlinelibrary.wiley.com
The current clinical approach to feeding and eating disorders aimed to increase personalization of management
Feeding and eating disorders (FEDs) are a heterogeneous grouping of disorders at the mind-body interface, with typical onset from childhood into emerging adulthood. They occur along a spectrum of dis...
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 13/01/2025
Was fab to be at our "sister" research network @edcrn.bsky.social launch today and to see so many enthusiastic clinicians at it!! Such a clever idea taking a step towards meaningful and comparable data to evaluate real life outcomes for people with eating disorders 👌👏👏👏👏
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 08/01/2025
We are so very proud that EDACs Professor Kate Tchanturia had been awarded an MBE the New Years honours list! 👏 👏
media.tenor.com
a woman wearing a gold top and hoop earrings is clapping her hands .
ALT: a woman wearing a gold top and hoop earrings is clapping her hands .
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ACAMH - Association for Child and Adolescent Mental Health @acamh.bsky.social · 07/01/2025
Brain differences in children who show symptoms of avoidant/restrictive food intake disorder (ARFID) bit.ly/Sader-ARFID-... New blog by Dr. Michelle Sader, neuroscientist and postdoctoral research fellow at the @abdnpsych.bsky.social, currently working on the @edaceatingautism.bsky.social #ARFID
bit.ly
Brain differences in children who show symptoms of avoidant/restrictive food intake disorder (ARFID)
Magnetic resonance imaging (MRI_ scans of children showing symptoms of avoidant/restrictive food intake disorder (ARFID) show differences in certain brain regions relative to children without ARFID sy...
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 06/01/2025
New publication by EDACs amazing post doc Michelle Sader on the Co-occurrence of autism and avoidant restrictive food intake disorder-meta analysis of prevalence rates ... onlinelibrary.wiley.com/doi/full/10.... @karri-g-smith.bsky.social @drhelensharpe.bsky.social @fionaduffy.bsky.social
onlinelibrary.wiley.com
The Co‐Occurrence of Autism and Avoidant/Restrictive Food Intake Disorder (ARFID): A Prevalence‐Based Meta‐Analysis
Objective Avoidant/restrictive food intake disorder (ARFID) is a feeding and eating disorder characterized by extensive avoidance and/or restriction of food. Existing research demonstrates that ARFI.....
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Eating Disorders and Autism Collaborative @edaceatingautism.bsky.social · 21/12/2024
An early Xmas pressie! Delighted that our best practice guidelines for conducting co-produced research with autistic indivudals with an eating disorder have now been published. Many thanks to all our co-authors! www.tandfonline.com/doi/full/10....
tandfonline.com
Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines
There is a notable overlap between autism and eating disorders (EDs), and autistic individuals may experience poorer ED treatment outcomes than non-autistic peers. To make meaningful change in this...
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